PODCAST · kids
The Roadmap to Rare
by CSNK2A1 Foundation Podcast
This is the Roadmap to Rare. Hosted by OCNDS parent Eric Finn, this podcast explores the reality of the rare-disease journey—sharing hope through real stories, real challenges, and research. This is our rare disease roadmap.Every rare disease journey is different, but no family should have to navigate it alone.On Roadmap to Rare, Eric sits down with parents, advocates, clinicians, researchers, and leaders in the rare disease community to talk about what the path really looks like—from diagnosis to advocacy, research breakthroughs, and everything in between.Together, these conversations shine a light on the experiences that unite the rare disease community: resilience, determination, and hope for the future.
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Trailer: Roadmap to Rare
This is the Roadmap to Rare. Hosted by OCNDS parent Eric Finn, this podcast explores the reality of the rare-disease journey—sharing hope through real stories, real challenges, and research.On Roadmap to Rare, Eric sits down with parents, advocates, clinicians, researchers, and leaders in the rare disease community to talk about what the path really looks like—from diagnosis to advocacy, research breakthroughs, and everything in between.Subscribe so you can stay updated for new episodes!Your ideas help shape the conversations that matter most to the rare disease community. Feel free to submit us questions and topics of interest us at [email protected]. Or on our webpage https://www.csnk2a1foundation.org/roadmap-to-rare-podcast!Follow us on Instagram: @csnk2a1_foundationFollow us on Facebook: CSNK2A1 FoundationFollow us on LinkedIn: CSNK2A1 Foundation
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ABOUT THIS SHOW
This is the Roadmap to Rare. Hosted by OCNDS parent Eric Finn, this podcast explores the reality of the rare-disease journey—sharing hope through real stories, real challenges, and research. This is our rare disease roadmap.Every rare disease journey is different, but no family should have to navigate it alone.On Roadmap to Rare, Eric sits down with parents, advocates, clinicians, researchers, and leaders in the rare disease community to talk about what the path really looks like—from diagnosis to advocacy, research breakthroughs, and everything in between.Together, these conversations shine a light on the experiences that unite the rare disease community: resilience, determination, and hope for the future.
HOSTED BY
CSNK2A1 Foundation Podcast
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Frequently Asked Questions
How many episodes does The Roadmap to Rare have?
The Roadmap to Rare currently has 1 episodes available on PodParley. New episodes are automatically indexed when they're published to the podcast feed.
What is The Roadmap to Rare about?
This is the Roadmap to Rare. Hosted by OCNDS parent Eric Finn, this podcast explores the reality of the rare-disease journey—sharing hope through real stories, real challenges, and research. This is our rare disease roadmap.Every rare disease journey is different, but no family should have to...
How often does The Roadmap to Rare release new episodes?
The Roadmap to Rare has 1 episodes. Check the episode list to see recent publication dates and frequency.
Where can I listen to The Roadmap to Rare?
You can listen to The Roadmap to Rare on PodParley by clicking any episode. We provide an embedded audio player for direct listening, and you can also subscribe via your preferred podcast app using the RSS feed.
Who hosts The Roadmap to Rare?
The Roadmap to Rare is created and hosted by CSNK2A1 Foundation Podcast.
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