"What's Her Problem?" Podcast

The Gold Standard in Lyme Disease TestingIssue #38 of “What’s Her Problem?”: When finances drive our medical decision-making, patients may miss out on receiving the best possible care.May is Lyme Awareness Month!There’s good news and there’s bad news. I usually give people the bad news first, but with you, I’m going to start with the good news, which is that 90% of this test has come back negative.The bad news is that you did test positive for long-term Lyme.My Functional Medicine physician spoke those words to me in October 2022 during a telehealth appointment. Recognizing the pivotal nature of what she said, I documented the precise way she said it....This week’s questions:Have you ever said no to a test that might have been diagnostically helpful due to the cost? Or been given a test that is known to be less accurate than another option?Related Posts:https://whatsherproblem.substack.com/p/interview-series-dr-wendie-trubow?r=heamxhttps://whatsherproblem.substack.com/p/what-if-there-had-been-another-treatment?r=heamxhttps://whatsherproblem.substack.com/p/my-heart-disease-has-copycats?r=heamxLinks/References:https://www.cdc.gov/lyme/hcp/diagnosis-testing/index.htmlhttps://www.cdc.gov/lyme/hcp/diagnosis-testing/index.htmlhttps://www.lymedisease.org/lyme-biobank-study/ https://www.lymedisease.org/mylymedata-clinician-lyme-survey-report/ https://igenex.com/the-igenex-advantage/ This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit whatsherproblem.substack.com/subscribe

Spoiler Alert! This post contains spoilers for HBO Max’s “The Pitt,” Seasons 1 and 2. Feel free to bookmark this and save it for later if you were planning to watch and don’t want any spoilers.Last year, I wrote about Season 1 of “The Pitt,” which has since gone on to dominate awards shows like the Emmys, Golden Globes, and even the AARP Awards. Season 2, whose finale premiered last Thursday on HBO Max, continues in that tradition of excellence. The way the writers carry every thread and storyline from episode 1 through the to the season finale is an impressive feat. They have chosen to tackle challenges in the U.S. health care system ranging from ICE to palliative care, violence against healthcare workers to sexual assault, and supportive decision-making to alcoholism (and so much more). I want to highlight 4 of this season’s topics that stood out to me (AI in Healthcare, Physician Burnout, Health Care Finances, and Cardiac Resuscitation of Women), as well as some miscellany.....This week’s questions:Have you watched Season 2 of “The Pitt”? What issues or storylines stood out to you?Related Posts:https://whatsherproblem.substack.com/p/the-pitt-and-doctor-centered-media?r=heamxhttps://whatsherproblem.substack.com/p/penicillin-anaphylaxis-and-the-allergist?r=heamxhttps://whatsherproblem.substack.com/p/penicillin-anaphylaxis-and-the-allergist-257?r=heamxLinks/References:https://www.ama-assn.org/practice-management/digital-health/more-80-physicians-use-ai-professionally-ama-survey#:~:text=The%20physicians%20surveyed%20were%20generally,interpret%20radiology%20or%20pathology%20results.https://pubmed.ncbi.nlm.nih.gov/37972797/#&gid=article-figures&pid=figure-1-uid-0 This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit whatsherproblem.substack.com/subscribe

My Heart Disease Has CopycatsIssue #36 of “What’s Her Problem?”: When several heart conditions look the same, how does the patient get the right diagnosis?My ears perked up last fall at the Hypertrophic Cardiomyopathy Association’s Annual Patient Meeting. Many doctors have told me there’s no known connection between two of my primary medical diagnoses: Hypertrophic Cardiomyopathy (HCM) and autoimmune sensory neuropathy. That I am probably just unlucky to have both. But one of the presenters mentioned a correlation between neuropathy and a heart disease called Cardiac Amyloidosis.... This week’s questions:Do you, or someone you know, have a disease that was difficult to diagnose because it closely resembled another disease or condition? What was your process of getting to the right diagnosis?Related Posts:https://whatsherproblem.substack.com/p/reflections-on-the-2025-hcma-annual?r=heamxhttps://whatsherproblem.substack.com/p/weird-science?r=heamxLinks/References:https://www.4hcm.org/amyloidosishttps://www.4hcm.org/amyloidosishttps://mcpress.mayoclinic.org/attr-cm/managing-the-heart-and-nerves-together-tips-for-living-with-attr-cm-and-neuropathy/https://www.4hcm.org/danonhttps://www.4hcm.org/rasopathieshttps://www.4hcm.org/fabryhttps://www.4hcm.org/pompehttps://www.4hcm.org/friedreich-s-ataxiahttps://www.4hcm.org/prkag2https://www.4hcm.org/how-is-hcm-diagnosedhttps://my.clevelandclinic.org/health/diagnostics/cardiac-pyp-scanhttps://whatsherproblem.substack.com/p/reflections-on-the-2025-hcma-annual?r=heamxhttps://www.4hcm.org/bigheartshttps://www.4hcm.org/center-of-excellence This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit whatsherproblem.substack.com/subscribe

Adventures in Event Venue AccessibilityIssue #35 of “What’s Her Problem?”: Attending events can become complicated with chronic illness and/or disability.Note: It’s important to acknowledge that accessibility and accommodations aren’t one-size-fits-all. My experience doesn’t reflect access to ASL interpretation, Audio Description, closed captioning, sensory accommodations, or types of mobility challenges that are different from my own.I love going to live events. Theatre, concerts, sports, I enjoy them all. But what used to be part of my professional day-to-day or a fun outing has become much more challenging with chronic illness and disability. Although I try to take the approach that it’s better to go and be a little complicated than not to go at all, the truth is that I do go to events less now than I used to.Having recently attended my two favorite events of the year, I wanted to document some of my adventures in event venue accessibility challenges here. Let’s walk through my preparation process and experience of going to an event now, in its infinitely more complicated form than what I had to think about before I got sick.........This week’s questions:Tell me about your experiences with venue accessibility. Any notable things, good or bad, that an event venue has done to accommodate you, or not?Related Posts:https://whatsherproblem.substack.com/p/whats-her-problem?r=heamxhttps://whatsherproblem.substack.com/p/interview-series-sarah-hom-accessibility?r=heamx This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit whatsherproblem.substack.com/subscribe

Five Times Strangers Commented on My DisabilityIssue #34 of “What’s Her Problem?”: Visible disabilities seem to give people license to think they can ask questions or remark on them. This week’s questions:Under what circumstances might you consider commenting on a stranger’s visible disability? If you have a visible disability, how do you handle comments from strangers?Links/References:https://substack.com/@whatsherproblem/note/c-179320449?r=heamx&utm_source=notes-share-action&utm_medium=webRelated Posts:https://whatsherproblem.substack.com/p/how-are-you-feeling?r=heamx https://whatsherproblem.substack.com/p/whats-her-problem?r=heamx This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit whatsherproblem.substack.com/subscribe

The Paralympic SpiritIssue #33 of “What’s Her Problem?”: The Paralympics are a master class in inclusion, athleticism, and storytelling.Links/References:US Olympic and Paralympic websitearticle from BBC SportOn Track with HCMhttps://www.paralympic.org/news/milano-cortina-2026-opening-ceremony-speech-ipc-president#:~:text=From%201976%20to%202026%2C%20these,a%20new%20generation%20of%20heroes.https://www.instagram.com/reel/DV6O3dxjhEP/?utm_source=ig_web_copy_linkhttp://sports.yahoo.com/articles/hunter-woodhall-calls-disappointing-lack-145506050.html?guccounter=1&guce_referrer=aHR0cHM6Ly93d3cuZ29vZ2xlLmNvbS8&guce_referrer_sig=AQAAAHV6rZWMQmkmPm9djgsC3Cbdr09rnMPo366xNQ1EtjeuxiXFhSDvY8w1M3XNPaWab2ysF96RYJ0dZSfx7E63TvyXdhvHzkUoyNV8YuF1FNt4knNNiHgM6ItaxFNCtfdDm-Wj5LMIFqbjidTYLPXGJBkDqkEvtAvElyWn0Oz9fvu5https://www.nytimes.com/athletic/7113551/2026/03/13/mike-schultz-paralympics-snowboarding-biodapt-prosthetics/https://www.nbcolympics.com/news/three-americans-among-seven-win-medals-winter-and-summer-olympics#:~:text=At%20the%201988%20Winter%20Games,at%20the%202024%20Paris%20Games.This week’s questions:Did you watch the 2026 Milan-Cortina Paralympics? If so, what was your favorite sport or story of the games? If not, will you consider watching the 2028 Summer Paralympics in Los Angeles?Related Posts:https://whatsherproblem.substack.com/p/6-ways-rafael-nadal-helps-me-manage?r=heamx This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit whatsherproblem.substack.com/subscribe

This week’s questions:Have you thought about what you would do if you needed to make a career pivot? Are there other kinds of jobs that interest you? If you’ve already made a career pivot, what advice do you have for others looking to do so?Related Posts:https://whatsherproblem.substack.com/p/interview-series-sarah-hom-accessibility?r=heamxLinks/References:Chronically Ill, Wildly CapablespoonieszebrasTo learn more about Kristina Kelly, Little Engine Patient Advocacy, and Chronically Ill, Wildly Capable:www.littleenginepatientadvocacy.comInstagram: @littleenginepatientadvocacyTikTok: @littleengineadvocacyPurchase “Chronically Ill, Wildly Capable” on Amazon or Barnes and Noble This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit whatsherproblem.substack.com/subscribe

This week’s questions:Do you wear a mask in public when you are sick? Have you ever pushed back against a friend or family member who asked you to mask for their protection or your own? Did peer pressure play a role in your response?Related Posts:https://whatsherproblem.substack.com/p/it-may-be-risky-but-it-feeds-your?r=heamxhttps://whatsherproblem.substack.com/p/whats-her-problem?r=heamx This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit whatsherproblem.substack.com/subscribe

This is a free preview of a paid episode. To hear more, visit whatsherproblem.substack.comInterview Series: Dr. Wendie Trubow, MD, MBAIssue #30 of "What's Her Problem?": Toxins are wreaking havoc on our bodies, and Functional Medicine practitioners can help us mitigate their impact.This week’s questions:What’s one small thing you can do in your daily life to mitigate toxins? Have you seen a Functional Medicine practitioner?Links/References:Take Dr. Wendie’s Toxins QuizRead “Dirty Girl: Ditch the Toxins, Look Great, and Feel Freaking Amazing”American Academy of Anti-Aging Medicine (A4M)Institute for Functional Medicine (IFM)Environmental Working Group’s Skin Deep DatabaseThink Dirty AppDirty DozenClean 15Aspen CleanFive Journeys (Sign Up for Dr. Wendie’s Newsletter)https://www.facebook.com/WendieTrubowMDInstagram: @wendietrubowmd

Guest Post: Dawn Levitt, Two-Time Heart Transplant RecipientIssue #29 of "What's Her Problem?": Organ donors save lives.Part 5 of my 5-part series of Heart Month posts, bringing awareness to a variety of topics in cardiology.This week’s questions:Are you an organ donor? If not, would you consider becoming one?Links/References:http://www.4hcm.org/https://dawnlevitt.substack.com/https://www.4hcm.org/center-of-excellencehttps://www.organdonor.gov/sign-uphttps://www.4hcm.org/what-is-hcmEpidemiology of the inherited cardiomyopathies - PubMedAbout Hypertrophic Cardiomyopathy (HCM) | Heart Disease, Family Health History, and Familial Hypercholesterolemia | CDChttps://www.ahajournals.org/doi/pdf/10.1161/CIRCHEARTFAILURE.110.959288Related Posts:https://open.substack.com/pub/whatsherproblem/p/interview-series-lisa-salberg-founder?r=heamx&utm_campaign=post&utm_medium=web&showWelcomeOnShare=truehttps://whatsherproblem.substack.com/p/what-if-there-had-been-another-treatment?r=heamxhttps://whatsherproblem.substack.com/p/how-it-feels-for-someone-else-to?r=heamxhttps://whatsherproblem.substack.com/p/the-childrens-cardiac-safety-act?r=heamx This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit whatsherproblem.substack.com/subscribe

The Children's Cardiac Safety ActIssue #28 of "What's Her Problem?": You can help ensure ‘well-child’ and student-athlete pre-participation exams include cardiac screenings.Part 4 of my 5-part series of Heart Month posts, bringing awareness to a variety of topics in cardiology.This week’s questions:Does your state have Children’s Cardiac Safety Act legislation enacted yet? If not, will you send a letter to your representatives asking them to consider it?Links/References:http://4hcm.org/Sudden Death in the Young: Information for the Primary Care ProviderNew Jersey laws: https://drive.google.com/drive/folders/1GR_F2TFBizOny67tE0OHnhVunBjXdCk7?usp=sharingMassachusetts H2485Maryland SB0593Missouri HB1846Contact your state officials: https://ujoin.co/campaigns/1453/actions/public?action_id=1524HCMA’s YouTube pageChildren’s Cardiac Safety Act (Model Language)American Heart AssociationContact your state officialssend a letter to your representativesRelated Posts:https://whatsherproblem.substack.com/p/interview-series-lisa-salberg-founder?r=heamxhttps://whatsherproblem.substack.com/p/what-if-there-had-been-another-treatment?r=heamxhttps://whatsherproblem.substack.com/p/how-it-feels-for-someone-else-to?r=heamx This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit whatsherproblem.substack.com/subscribe

How It Feels for Someone Else to Control Your HeartIssue #27 of "What's Her Problem?": What happens when someone with an ICD, who is 100% pacemaker-dependent, needs to get an MRI?Part 3 of my 5-part series of Heart Month posts, bringing awareness to a variety of topics in cardiology.This week’s questions:Can you imagine what it would feel like to lose control of your heartbeat? Is there a medical test that you have avoided, for fear of it being uncomfortable or unsafe?Links/References:https://open.substack.com/pub/whatsherproblem/p/weird-science?r=heamx&utm_campaign=post&utm_medium=webhttps://open.substack.com/pub/whatsherproblem/p/interview-series-lisa-salberg-founder?r=heamx&utm_campaign=post&utm_medium=web&showWelcomeOnShare=truehttps://www.foundationsem.com/wp-content/uploads/2018/02/EKG-II-U12-Instructor-Resource-Packet-2.pdfhttps://www.medtronicacademy.com/features/mri-surescan-featurehttps://www.medtronicacademy.com/features/mri-surescan-featureRelated Posts:https://open.substack.com/pub/whatsherproblem/p/what-if-there-had-been-another-treatment?r=heamx&utm_campaign=post&utm_medium=web&showWelcomeOnShare=truehttps://open.substack.com/pub/whatsherproblem/p/holding-my-heartbeat-in-my-hands?r=heamx&utm_campaign=post&utm_medium=web&showWelcomeOnShare=truehttps://open.substack.com/pub/whatsherproblem/p/penicillin-anaphylaxis-and-the-allergist?r=heamx&utm_campaign=post&utm_medium=web&showWelcomeOnShare=truehttps://open.substack.com/pub/whatsherproblem/p/interview-series-lisa-salberg-founder?r=heamx&utm_campaign=post&utm_medium=web&showWelcomeOnShare=true This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit whatsherproblem.substack.com/subscribe

What If There Had Been Another Treatment OptionIssue #26 of "What's Her Problem?": When new medications like cardiac myosin inhibitors come to market, it is difficult not to wonder what would have happened if they had been available sooner.Part 2 of my 5-part series of Heart Month posts, bringing awareness to a variety of topics in cardiology.This week’s questions:Do you have any big “What If” moments in your own medical journey? If so, how do you reflect on them?Links/References:https://www.4hcm.org/center-of-excellencehttps://www.camzyos.com/what-is-camzyoshttps://whatsherproblem.substack.com/p/lets-discuss?r=heamxhttps://www.myqorzo.com/https://www.4hcm.org/medications-dynamic-page-template/myosin-inhibitorshttps://my.clevelandclinic.org/health/treatments/22318-beta-blockershttps://www.mayoclinic.org/diseases-conditions/high-blood-pressure/in-depth/calcium-channel-blockers/art-20047605#:~:text=When%20calcium%20channel%20blockers%20are,Examples%20are:https://www.camzyos.com/what-is-camzyosIt should be noted that both Camzyos and Myqorzo are currently only approved for use in adult HCM patients with obstruction. People who have never been obstructed and those like myself, who are post-myectomy and now considered non-obstructed because my obstruction was surgically removed, are not eligible to take the medications. Clinical trials are under way for non-obstructed patients to see if one or both drugs can help us too, and recent Camzyos clinical trials show that it is likely safe for children with obstruction.Related Posts:https://whatsherproblem.substack.com/p/reflections-on-the-2025-hcma-annual?r=heamx https://whatsherproblem.substack.com/p/lets-discuss?r=heamx This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit whatsherproblem.substack.com/subscribe

Interview Series: Lisa Salberg, Founder and CEO of the Hypertrophic Cardiomyopathy Association (HCMA)Issue #25 of "What's Her Problem?": Just one patient advocate can make a huge difference.Part 1 of my 5-part series of Heart Month posts, bringing awareness to a variety of topics in cardiology.This week’s questions:Are you a patient advocate? If so, how did you get started? If not, what do you think makes someone a great patient advocate?Show Notes:The Hypertrophic Cardiomyopathy Association (HCMA) Website: https://www.4hcm.org/Learn more about Centers of Excellence (COEs): https://www.4hcm.org/center-of-excellencehttps://www.4hcm.org/storehttps://whatsherproblem.substack.com/archivehttps://whatsherproblem.substack.com/notesRelated Posts:I was a guest on “Tales from the Heart” in 2024. You can watch that here:https://youtu.be/kiFXpo-dV1UReflections from the HCMA Annual Patient Meetinghttps://open.substack.com/pub/whatsherproblem/p/reflections-on-the-2025-hcma-annual?r=heamx&utm_campaign=post&utm_medium=webLet’s Discusshttps://open.substack.com/pub/whatsherproblem/p/lets-discuss?r=heamx&utm_campaign=post&utm_medium=webInterview Series: Sarah Homhttps://whatsherproblem.substack.com/p/interview-series-sarah-hom-accessibility?r=heamx&utm_campaign=post&utm_medium=web&triedRedirect=true This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit whatsherproblem.substack.com/subscribe

Penicillin, Anaphylaxis, and The Allergist Who Ghosted Me (Part 2)Issue #24 of “What’s Her Problem?”: Nine out of 10 people who think they are allergic to Penicillin are not.This week’s questions:Have you made any surprising discoveries in your medical journey? If you think you are allergic to Penicillin, would you consider getting re-tested to be sure?Links/References:[https://www.jaci-inpractice.org/article/S2213-2198(20)30804-7/pdf#:~:text=The%20first%20recognition%20of%20delayed,the%20overlabeling%20of%20drug%20allergies.DesBiens M, Scalia P, Ravikumar S, Glick A, Newton H, Erinne O, Riblet N. A Closer Look at Penicillin Allergy History: Systematic Review and Meta-Analysis of Tolerance to Drug Challenge. Am J Med. 2020 Apr;133(4):452-462.e4. doi: 10.1016/j.amjmed.2019.09.017. Epub 2019 Oct 21. PMID: 31647915.Eric Macy, N. Franklin Adkinson, The Evolution of Our Understanding of Penicillin Allergy: 1942-2022, The Journal of Allergy and Clinical Immunology: In Practice, Volume 11, Issue 2, 2023, Pages 405-413, ISSN 2213-2198, https://doi.org/10.1016/j.jaip.2022.09.006.https://nationalpenicillinallergyday.com/Macy E, Adkinson NF Jr. The Evolution of Our Understanding of Penicillin Allergy: 1942-2022. J Allergy Clin Immunol Pract. 2023 Feb;11(2):405-413. doi: 10.1016/j.jaip.2022.09.006. Epub 2022 Sep 15. PMID: 36116763. This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit whatsherproblem.substack.com/subscribe

Penicillin, Anaphylaxis, and The Allergist Who Ghosted Me (Part 1)Issue #23 of “What’s Her Problem?”: The search for answers after a medical scare can lead to some interesting discoveries.I have spent the last four decades thinking I was allergic to Penicillin. Last month, I learned that I am not.This week’s questions: How do you begin to approach a medical mystery? Have you ever learned about a surgical trauma that you don’t remember? How did you handle it?Links/References:https://whatsherproblem.substack.com/p/holding-my-heartbeat-in-my-hands?r=heamx This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit whatsherproblem.substack.com/subscribe

6 Ways Rafael Nadal Helps Me Manage Chronic IllnessIssue #22 of “What’s Her Problem?”: When chronic illness is getting us down, we can look to great sports figures for inspiration on the path forward.This week’s questions:Is there a sports figure or other celebrity from whom you’ve drawn inspiration? What did you learn from them?Links/References:Served by Andy Roddick: https://www.newsletter.servedpodcast.com/Roddick on playing Nadal for the first time: https://youtu.be/TIxlvqQ4DqI?si=8xWsqJO3Uqtn-iXwHighlights of the 2022 Australian Open Men's Final: https://www.youtube.com/watch?v=v27M_RgrLzURafa on "What happened": https://www.youtube.com/watch?v=kIkp6n53g2wChronic Illness is a Team Sport: https://whatsherproblem.substack.com/p/chronic-illness-is-a-team-sport?r=heamxThis 2025 interview (https://youtu.be/_SvPnVAJyVI?si=cu57pqTdDzZc3J-W) between Roddick and Nadal is a worthy way to spend an hour…I’ve watched it twice! @ Served Media“The Rafael Nadal Story-A Tennis Podcast Special,” 5/21/19 (thetennispodcast.net) @The Tennis Podcasthttps://rarediseases.org/rare-diseases/mueller-weisse-disease/https://projects.theplayerstribune.com/rafael-nadal-tennis/p/1https://www.cnn.com/2022/05/06/tennis/rafael-nadal-suffering-chronic-injury-spt-intlhttps://www.si.com/tennis/2012/09/18/rafael-nadal-talks-injury-career-vanity-fair#:~:text=%22I%20don't%20know%20how,%2C%22%20the%20tennis%20star%20saidhttps://projects.theplayerstribune.com/rafael-nadal-tennis/p/1https://www.abc.net.au/news/2021-08-20/tennis-rafael-nadal-ends-2021-season-because-of-foot-injury/100395850https://www.tennis.com/news/articles/rafael-nadal-records-that-may-never-be-broken-no-4-912-straight-weeks-in-the-top-10-retirement-statshttps://www.benrothenberg.com/p/rafael-nadal-retirement-ceremony-french-open-roland-garros-big-4-four-andy-murray-novak-djokovic-roger-federer?utm_source=publication-search This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit whatsherproblem.substack.com/subscribe

2025 RecapIssue #21 of "What's Her Problem?": By looking back, you can see how far you've come.A new year is almost upon us, “What’s Her Problem?” community! What better way to prepare than by taking stock of everything that’s happened for this publication in 2025 and looking ahead to 2026?This week’s questions:Do you have any feedback on “What’s Her Problem?” Any topics or questions you hope will be addressed in the future? Are there features or benefits for Free or Paid Subscribers that you’d like to see?Links/References:https://whatsherproblem.substack.com/p/the-doctor-will-see-you-nowish?r=heamxhttps://whatsherproblem.substack.com/p/whats-her-problem?r=heamxhttps://whatsherproblem.substack.com/p/holding-my-heartbeat-in-my-hands?r=heamxhttps://whatsherproblem.substack.com/p/how-are-you-feeling?r=heamxhttps://whatsherproblem.substack.com/p/weird-science?r=heamxhttps://whatsherproblem.substack.com/p/breaking-up-is-hard-to-do?r=heamxhttps://whatsherproblem.substack.com/p/the-time-delta-lost-my-walker-part?r=heamxhttps://whatsherproblem.substack.com/p/the-time-delta-lost-my-walker-part-e7d?r=heamxNotes“What’s Her Problem?” websitehttps://whatsherproblem.substack.com/t/hypertrophic-cardiomyopathyhttps://whatsherproblem.substack.com/t/chronic-illnesshttps://whatsherproblem.substack.com/t/disabilityhttps://whatsherproblem.substack.com/t/neuropathyhttps://whatsherproblem.substack.com/t/living-with-an-icd-implantable-cardioverterhttps://whatsherproblem.substack.com/t/resourceshttps://launchpsych.com/tips-for-managing-chronic-illness-and-mental-health/?fbclid=IwY2xjawMSxqlleHRuA2FlbQIxMABicmlkETFZSUhNWXl3cGxxcmV4OUpFAR5lm7Rck5ye_ZoluXT7wEnGrgEXp0j2tIgzxFbEgdw5-I7tnP_WYM3EROqYdg_aem_PjY9Eghzp-EDHfhK9xTs1whttps://whatsherproblem.substack.com/p/interview-series-sarah-hom-accessibility?r=heamxemail:[email protected] This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit whatsherproblem.substack.com/subscribe

It May Be Risky But It Feeds Your SoulIssue #20 of "What's Her Problem?": It is challenging to balance the risks and rewards of stepping outside of your healthcare routine.Links/References:https://www.4hcm.org/center-of-excellencehttps://whatsherproblem.substack.com/p/how-are-you-feeling?r=heamxhttps://whatsherproblem.substack.com/abouthttps://whatsherproblem.substack.com/p/reflections-on-the-2025-hcma-annual?r=heamxhttps://whatsherproblem.substack.com/p/whats-her-problem?r=heamxhttps://whatsherproblem.substack.com/p/the-time-delta-lost-my-walker-part?r=heamxhttps://whatsherproblem.substack.com/p/the-time-delta-lost-my-walker-part-e7d?r=heamxThis week’s questions:How do you balance the risks and rewards of travel or attending an event, if you are chronically ill or disabled? What do you do that feeds your soul? This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit whatsherproblem.substack.com/subscribe

Chronic Illness is a Team SportIssue #19 of "What's Her Problem?": My care team is critical to my health journey, and when a team member changes, I am forced to adjust.This week’s questions:How do you approach building your healthcare team? What tips do you have for managing times of transition in that team?Links/References:https://www.beckershospitalreview.com/quality/how-to-foster-excellence-in-multi-team-health-systems/ https://dock.health/blog/i-believe-healthcare-is-a-team-sport Primary care is a team sport. The Lancet, Volume 386, Issue 10011, 2365 https://www.aetna.com/health-guide/hmo-pos-ppo-hdhp-whats-the-difference.html This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit whatsherproblem.substack.com/subscribe

Go, Go Gadgets!Issue #18 of "What's Her Problem?": Chronic illness and disability require a lot of gadgets!FULL TEXT WITH LINKS:It’s Black Friday weekend, which culminates in Cyber Monday. With the holiday season upon us, there is no better time of year to get the best deals on health gadgets for yourself or your loved ones.Today, I am sharing a list of my favorite gadgets; the ones that have been most helpful to me in navigating chronic illness and disability. I have divided them into 8 categories:* Medication Organization* Shower and Bathroom Safety* Mobility Assistance* At-Home Exercise Equipment* Footwear* Air Filtration* General Comfort and Safety* Cardiac Monitoring ToolsEverything on the list is something that I own, use, and can vouch for.I have included a short blurb with each item or category of items, but if there is anything you want more information about, feel free to ask!If you are not currently in the market for anything, bookmark this post, and come back to it when you are.1. Medication Organization:So many meds, so many supplements, so little time. I organize my pills on a bi-weekly basis, setting up two of these organizers at a time:* Daily Pill OrganizerI have tried a lot of different pill cutters, and this one is, by far, the best:* Pill Cutter2. Shower and Bathroom Safety:One of the easiest places to get injured if you are unsteady on your feet is the bathroom, so I take bathroom safety very seriously.It doesn’t matter if you think you are too young for toilet safety or if you think this looks goofy. Better safe than sorry:* CommodeInside the shower, if you can’t safely stand, there is no shame in sitting down. If you have a tub, I recommend this:* Tub/Shower Transfer BenchIf you have a shower, I recommend this:* Shower ChairFor either a tub or a shower, I recommend the following:* Handheld Shower Head Set* Suction Shower Head Holder* Set of 2 Suction Grab Bars3. Mobility Assistance:If you just need a little bit of a balance check, a cane can be wonderful. I prefer the kind with a foam grip and offset handle.* Black Cane with Offset Handle and Foam Grip* Silver Cane with Offset Handle and Foam GripHowever, the cane tip that these come with is too narrow for me, so I swap them out for this guy:* Cane Tip/Cane Stand (Heavy Duty)Also made for a little bit of extra stability, grab a gait belt! Somone else can hold onto it gently as you walk to ensure you don’t fall. And if you do fall, it will help them lift you back up again safely.* Gait BeltFor even more stability as you walk, there are many different options for walkers (just don’t let an airline lose yours). Note: always check with your doctor or physical therapist about what the proper device is for your safety.This is the closest I could find to my walker:* WalkerI wear down the caps on the feet of my walker pretty frequently, so this is one of my most-often purchased items (yes, you can get the kind that look like tennis balls, but I think these are sleeker):* Walker Glide CapsThe rollator style of walker is very popular but also requires more stability than the classic two-wheeled walker. I have one of these because I like that it has a built-in seat, but I don’t use it very often because it is hard to lift into and out of a vehicle, and it has a tendency to start rolling faster than I want it to.* Drive Medical Rollator WalkerThis wheelchair is pretty close to the one I was confined to for the first couple of years of my autoimmune sensory neuropathy. In choosing a wheelchair, be sure to find one with seat width and depth measurements that are a match for the size of your body.* WheelchairFor extra mobility freedom, try a mobility scooter! I’ve had mine for nearly 6 years, and it was worth every penny. I have this one because I wanted a comfortable seat and arm rests. The turning radius on this scooter is impressive. It also comes apart into 6 pieces for easy transportation, but I have a lift in the back of my vehicle so I don’t have to ask anyone to take it apart and put it back together for me anymore.* Mobility ScooterHere are two of my most-used accessories for the mobility scooter:* Mobility Scooter Storage Cover* Walker Holder4. At-Home Exercise Equipment:With consultation from my physical therapy team, I have invested in a handful of reasonably-priced at-home exercise items that enable me to stick to my exercise routine outside of appointment times:* Exercise Resistance Bands* Hand Weights* Airex Foam Balance Pad* Weighted Slam Ball* Exercise Step* The Cuff Ankle and Wrist Weight5. Footwear:My neuropathy has had the greatest impact on my feet, so I have had to become very picky about my footwear.These slippers are the perfect combination of soft on the inside but sturdy in the sole.* SlippersThe nerves in my feet will no longer tolerate a shoe toe box that isn’t soft, so these sneakers all fit the bill for that. The Brooks make my balance feel very stable. The Kiziks are the perfect hands-free slip-in shoes, and the Limas are my favorite style of Kiziks:* Brooks Ghost Sneakers* Kizik Lima* Kizik StoreAs a person with the genetic heart condition Hypertrophic Cardiomyopathy (HCM), I occasionally get swelling in my feet and ankles, which is a sign of heart failure. I help stave that off by wearing compression stockings or socks on most days. I prefer the toeless compression stockings from Therafirm in warm weather and the cheap-but-effective Dr. Motion compression socks when it’s cold. There are lots of other good brands, but be sure to get properly fitted for the right size sock or stocking, and start with a light weight of compression before moving up, with guidance from your doctor.* Therafirm Open-Toe, Knee-High Compression Stockings, 15-20lbs* Dr. Motion Compression Socks6. Air Filtration:I feel very strongly about indoor air quality, and these are my go-to filter brands. Be sure to select one that matches the size of the room in which you are using it:* Molekule Air Purifier* AirDoctor7. General Comfort and Safety:I use a bed rail, not only to prevent myself from falling out of bed, but also for assisting myself in sitting up, which can be a struggle on some days. This one is very similar to what I have:* Bed RailIf you are a person that gets up to pee in the middle of the night, these are a must:* Night LightsThis set of pillows has been a lifesaver when I couldn’t find a comfortable position to sleep in:* Orthopedic Bed Wedge Pillow SetOne of the few items that helps improve the nerve pain in my feet when it gets intense:* Acupressure Mat and Pillow SetWith my hands and arms occupied by my walker, this little backpack has been the perfect purse for me, and it has some useful safety features too:* Purse BackpackIf you have a case of the dropsies, like me, these grabbing tools are the best. I keep one in every room, and I end up using them almost daily:* Reacher* Reacher 2-packIf you have sensitive skin, like me, this medical tape is better than all the other adhesives out there:* Medipore TapeI use this heating pad every single day for my various aches and pains:* Thermalon Microwave Heating PadI take my temperature every morning using a thermometer very similar to this one:* Digital Forehead Thermometer8. Cardiac Monitoring Tools:I take my blood pressure every morning, tracking it to see if there are any changes or trends to report to my cardiologist. I use the wrist blood pressure cuff because it is small and easily transportable, but I recommend the arm cuff if you don’t need to travel with it.* Arm Blood Pressure Cuff* Wrist Blood Pressure CuffI carry around a pulse oximeter with me everywhere I go. Is that overkill? Not to me. If I have a moment where I am concerned about my heart rate and oxygen levels, I just bust it out and have instant peace of mind. This one is close to what I have, and it is rechargeable:* Pulse OximeterAnd here’s an option for another style of pulse oximeter:* Pulse Ox 2Finally, have you ever wanted to be able to do your own EKG (electrocardiogram) at home to see if you’re having any arrhythmias? Look no further than AlivCor’s line of products. I carry the wallet card option, but all of the versions work well, and you can use the KardiaMobile app to send any concerning reports to your doctor’s office:* AlivCor Wallet-Sized Personal EKG Device* KardiaMobile 1-Lead Personal EKG Monitor* AliveCor KardiaMobile 6-Lead Personal EKG MonitorPhew! Chronic illness and disability really do require a lot of gadgets, but there are so many helpful tools available to make our lives easier and safer.HAPPY SHOPPING!Disclaimer: As an Amazon Associate, I earn from qualifying purchases.Each issue of “What’s Her Problem?” includes questions for further discussion. You can Leave a Comment publicly below, or become a Paid Subscriber to join the conversation in the private community Chat.This week’s question:What are your favorite health-related gadgets? This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit whatsherproblem.substack.com/subscribe

How Are You Feeling?Issue #17 of "What's Her Problem?": The simplest question is the hardest for people managing chronic illness to answer.When I analyze why adding the word “feeling” onto a generic “How are you?” changes the weightiness of the question, the first thing that comes to mind is the lyrics to the song “Life Support” from the musical Rent.This week’s questions:Do you engage in mental gymnastics when someone asks “How are you feeling?” Do you have any pet peeves about the way people respond to your answers? Are you a fellow lifelong Rent-head?Links/References:https://whatsherproblem.substack.com/p/lets-discuss?r=heamxetinghttps://jennifercrystalwriter.substack.com/https://www.globallymealliance.org/blog/how-to-respond-to-but-you-dont-look-sick?utm_source=substack&utm_medium=emailhttps://whatsherproblem.substack.com/p/good-news?r=heamxhttps://www.theguardian.com/lifeandstyle/2023/dec/06/silence-can-be-incredibly-hurtful-how-to-talk-to-someone-about-their-chronic-illnessLarson, Jonathan (1996). Rent [Musical]. Nederlander Theatre. Jack Nicholson. A Few Good Men. This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit whatsherproblem.substack.com/subscribe

The Time Delta Lost My Walker (Part 2)Issue #16 of “What’s Her Problem?”: Disabled passengers shouldn’t have to go to great lengths in self-advocacy in order receive proper treatment from airlines.Last week, I shared Part 1 of “The Time Delta Lost My Walker.” If you haven’t listened to it yet, go do that, and then come back to read the conclusion of this tale of woe and frustration.This week’s questions:Do you think the $250 total credit was sufficient? Was there anything I could have done to get the walker back more quickly and easily?Links/References:https://www.transportation.gov/lost-delayed-or-damaged-baggage#:~:text=Assistive%20devices%20used%20by%20passengers,if%20the%20device%20is%20damaged. https://www.reuters.com/world/usdot-will-not-enforce-biden-wheelchair-passenger-protection-rule-2025-09-29/ This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit whatsherproblem.substack.com/subscribe

The Time Delta Lost My Walker (Part 1)Issue #15 of "What's Her Problem?": The Airline Passengers with Disabilities Bill of RightsThis week’s questions:Were you familiar with the Airline Passengers with Disabilities Bill of Rights? Or the Air Carrier Access Act? Has an airline ever lost your mobility device?Links/References:https://whatsherproblem.substack.com/p/whats-her-problem?r=heamxhttps://whatsherproblem.substack.com/p/breaking-up-is-hard-to-do?r=heamxhttps://whatsherproblem.substack.com/p/interview-series-sarah-hom-accessibility?r=heamxTravelAbilityAir Carrier Access Act (ACAA) https://www.transportation.gov/airconsumer/passengers-disabilitiesAirline Passengers with Disabilities Bill of Rights https://www.transportation.gov/sites/dot.gov/files/2022-07/508_Airline_Passengers_with_Disabilities_Bill_of_Rights_07132022_ADA.pdfCode of Federal Regulations Title 14 Chapter II Subchapter D Part 382 Subpart I § 382.121https://www.ecfr.gov/current/title-14/chapter-II/subchapter-D/part-382/subpart-I/section-382.121Code of Federal Regulations Title 14 Chapter II Subchapter D Part 382 Subpart I § 382.125https://www.ecfr.gov/current/title-14/chapter-II/subchapter-D/part-382/subpart-I/section-382.125 https://www.transportation.gov/airconsumer/disabilitybillofrightshttps://www.transportation.gov/individuals/aviation-consumer-protection/wheelchair-and-guided-assistance#:~:text=Encounter%20A%20Problem?,the%20times%20they%20are%20operating. This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit whatsherproblem.substack.com/subscribe

Weird ScienceIssue #14 of “What’s Her Problem?”: Patients endure some bizarre tests in the pursuit of a diagnosis.The story of one of my weirdest medical tests, a CT scan with myelogram.This week’s questions:What is the weirdest or most uncomfortable medical test you have undergone to find a diagnosis? How do you decide what you’re willing to endure from a medical test in order to find answers? Is there a line or threshold?Links:https://www.gbs-cidp.org/cidp/https://my.clevelandclinic.org/health/diagnostics/4892-myelogramhttps://whatsherproblem.substack.com/t/living-with-an-icd-implantable-cardioverter This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit whatsherproblem.substack.com/subscribe

Reflections on the 2025 HCMA Annual Patient MeetingIssue #13 of "What's Her Problem?": Being a student of your disease or disability makes the journey a smoother one. Never stop learning.Last Saturday, I attended the Hypertrophic Cardiomyopathy Association’s (HCMA) Annual Patient Meeting for the first time.#BigHeartBigLifeEach issue of “What’s Her Problem?” includes questions for further discussion. You can Leave a Comment publicly below, or become a Paid Subscriber to join the conversation in the private community Chat.This week’s questions:How do you stay up-to-date on advances in your disease or disability? Is there a patient advocacy group you’re involved in or that you can reach out to, as needed?References/Links:4hcm.orghttps://www.4hcm.org/center-of-excellencehttps://www.4hcm.org/coe/upennhttps://www.4hcm.org/coe/ucsfhttps://whatsherproblem.substack.com/p/lets-discuss?r=heamxhttps://whatsherproblem.substack.com/p/surgiversary?r=heamxhttps://www.4hcm.org/coe/langonehttps://www.4hcm.org/coe/morristown-2https://whatsherproblem.substack.com/p/failing-up?r=heamxhttps://www.4hcm.org/elizabeth-t-mcnamee-advocacy-committeehttps://substack.com/@whatsherproblem/note/c-153812727?r=heamx&utm_source=notes-share-action&utm_medium=webPaterick TE, Patel N, Tajik AJ, Chandrasekaran K. Improving health outcomes through patient education and partnerships with patients. Proc (Bayl Univ Med Cent). 2017 Jan;30(1):112-113. doi: 10.1080/08998280.2017.11929552. PMID: 28152110; PMCID: PMC5242136.https://www.4hcm.org/hcm-many-namesNote: I am not a doctor and am presenting my general understanding, as opposed to the scientific details, though I hope you will research those further, if interested.https://www.4hcm.org/medications-dynamic-page-template/myosin-inhibitors This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit whatsherproblem.substack.com/subscribe

Breaking Up Is Hard To DoIssue #12 of “What’s Her Problem?”: Breaking up with a doctor is as hard as ending any other relationship, but it’s important for patients to find the care they deserve.This week’s questions:What’s your standout doctor (or dentist) break-up story? What methods do you use to find a new doctor? This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit whatsherproblem.substack.com/subscribe

SurgiversaryIssue #11 of “What’s Her Problem?”: Should I be celebrating medical milestones more?This is a big week of surgiversaries (surgical anniversaries) for me. I wrote about my hesitancy to celebrate.This week’s questions:Do you celebrate medical milestones like surgiversaries? If so, how? This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit whatsherproblem.substack.com/subscribe

Ladies in Pink GownsIssue #10 of “What’s Her Problem?”: Annual mammograms are a nerve-wracking but important screening tool for women.In honor of Breast Cancer Awareness Month (October)I scheduled my first mammogram as soon as I turned 40. As a lifelong rule follower, of course I was going to follow the guidance of groups like the CDC and American Cancer Society, who generally agree upon 40 as the best age to start screenings.Links:https://www.qtimaging.com/https://www.uchicagomedicine.org/forefront/cancer-articles/a-comfortable-mammogramEach issue of "What's Her Problem?" includes questions for further discussion. You can Leave a Comment publicly below, or become a Paid Subscriber on Substack to join the conversation in the private community Chat.This week’s question:Do you get your mammogram like clockwork? Has a doctor’s office or imaging center ever accidentally given you incorrect information and caused you to worry unnecessarily? This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit whatsherproblem.substack.com/subscribe

Being RashIssue #9 of “What’s Her Problem?”: Holter monitors and why medical professionals shouldn’t be so rash in their judgment of 'problem patients.'Each issue of "What's Her Problem?" includes questions for further discussion. You can Leave a Comment publicly below, or become a Paid Subscriber on Substack to join the conversation in the private community Chat.This week’s questions:Do you ever feel like a “problem patient?” How do you advocate for yourself when you have an uncommon medical need? Have you had a doctor or nurse respond rashly? This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit whatsherproblem.substack.com/subscribe

Interview Series-Sarah Hom, Accessibility Expert and Disability Justice AdvocateIssue #8 of "What's Her Problem?": Challenges in accessibility for theatre patrons and employeesWelcome to the very first installment of the “What’s Her Problem?” Interview Series!I had the great pleasure of speaking to Sarah Hom, the Director of Culture and Engagement, Audience Strategies at Roundabout Theatre Company in New York. Sarah is also the Founder of Lipstick and Cane Access and Disability Inclusion Consulting. She is a senior level arts administrator, consultant, trainer, and speaker. Her specialties include accessibility, belonging, and crafting meaningful customer experiences. (IG: lipstickandcane)We took a deep dive into challenges in accessibility for theatre patrons and employees, as seen through Sarah’s body of work, for which she just received an achievement award, as well as her personal experiences.Just a few notes about the Interview Series before you start watching/listening to Sarah and I chat about all things accessibility and inclusion in theatre:* This episode of the Interview Series is FREE to all “What’s Her Problem?” subscribers, regardless of your subscription level. However, all future Interview Series videos will be available only to Paid Subscribers and Open-Hearted Supporters. Upgrade now to be sure you won’t miss any future content.* Since the Interviews are in video form, you can choose to watch or just listen.* The audio will still be available on the “What’s Her Problem?” RSS Feed.* There is a link to the written transcript of our conversation at the top of this post, just below the video, if you prefer to read.* Closed captioning is also available by clicking the “CC” button on the video.* As always, there are questions for further discussion. You can Leave a Comment publicly below, or become a Paid Subscriber to join the conversation in the private community Chat.This week’s questions:As a theatre-goer, have you encountered accessibility issues? What would have made your visit feel more inclusive? Have you ever attended an autism-friendly, sensory-friendly, relaxed, audio-described, or ASL-interpreted performance? If so, how was your experience? This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit whatsherproblem.substack.com/subscribe

"The Pitt" and Doctor-Centered MediaIssue #7 of "What's Her Problem?": TV medical dramas tend to focus on the doctors, not the patients.Video: Actor Noah Wyle sits on a couch and talks about his Emmy-nominated show The Pitt on The Kelly Clarkson Show. Kelly Clarkson sits in an armchair, facing him. Note: I do not own the rights to any media from “The Kelly Clarkson Show,” nor any other NBC property.[Spoiler Alert: This post contains spoilers for The Pitt, ER, and Grey’s Anatomy]Each issue of "What's Her Problem?" includes questions for further discussion. You can Leave a Comment publicly below, or become a Paid Subscriber to join the conversation in the private community Chat.This week’s question:Are there any patient-centric medical dramas that I should watch? Or patient stories from doctor-centric shows that have stood out to you? If you could write a patient-centric show from scratch, what would you want to see in it that reflects your own experience?References:“The Pitt Is a Show About.” Anne Helen Petersen 5/1/25https://variety.com/2025/tv/news/the-pitt-noah-wyle-john-wells-er-differences-real-time-format-1236283401/https://pmc.ncbi.nlm.nih.gov/articles/PMC6876170/#:~:text=The%20Press%20Ganey%20survey%20uses,visits%20in%20July%201%2C%202018. This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit whatsherproblem.substack.com/subscribe

Failing UpIssue #6 of “What’s Her Problem?”: Step therapy purports to save patients and insurers money, but it frequently puts patients at risk.Each issue of "What's Her Problem?" includes questions for further discussion. You can Leave a Comment publicly below, or become a Paid Subscriber on Substack to join the conversation in the private community Chat.This week’s question:Have you participated in a step therapy program (knowingly or unknowingly)? Were there any adverse effects to your health as a result?Links and References:https://steptherapy.com/wp-content/uploads/2023/07/Flyer-Safe-Step-Act.pdfhttps://steptherapy.com/step-therapy-legislation-by-state/https://dawnlevitt.substack.com/p/pill-rhymes-with-kill-for-a-reason?r=heamx&utm_campaign=post&utm_medium=web&triedRedirect=truehttps://www.healthinsurance.org/glossary/step-therapy/Shan DM, Greenzaid JD, Greene E, Feldman SR. Analyzing the Benefits and Costs of the Safe Step Act on Patients, Physicians, and Insurers. J Psoriasis Psoriatic Arthritis. 2024 Jul;9(3):115-120. doi: 10.1177/24755303241253203. Epub 2024 May 7. PMID: 39301213; PMCID: PMC11361492.https://www.neurology.org/doi/pdfdirect/10.1212/CPJ.0000000000000208 /https://doi.org/10.1212/CPJ.0000000000000208 Bourdette, D. N., Hartung, D. M., & Whitham, R. H. (2016). Practices of US health insurance companies concerning MS therapies interfere with shared decision-making and harm patients. Neurology. Clinical Practice, 6(2), 177–182.https://www.aan.com/siteassets/home-page/conferences-and-community/regional-conferences/neurology-on-the-hill/participant-page/24-step-therapy-talking-points-premium-data.pdf This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit whatsherproblem.substack.com/subscribe

Holding My Heartbeat in My HandsIssue #5 of “What’s Her Problem?”: Living a life in which your health is dependent on technology is both miraculous and terrifying.How I felt after my first implanted cardiac device was removed after 8 years, and I was able to keep it.Each issue of "What's Her Problem?" includes questions for further discussion. You can Leave a Comment publicly below, or become a Paid Subscriber to join the conversation in the private community Chat.This week’s question: If you have an ICD, a pacemaker, or a defibrillator, how do you feel about being at least partially dependent on a piece of technology? If you don’t have one, how do you imagine it would feel to you? And would you want to keep it after it was replaced with a new one? This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit whatsherproblem.substack.com/subscribe

The Doctor Will See You Now(ish)Issue #4 Of “What’s Her Problem?”: Health care wait times show respect for neither the patients nor the doctors.This week’s question: What suggestions do you have for bringing back the R-E-S-P-E-C-T (sing it with me!) to healthcare? What is the longest you’ve sat in a waiting room to see a doctor? When is it worth it? How do you decide? This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit whatsherproblem.substack.com/subscribe

Let's DiscussIssue #3 of "What's Her Problem?": Peer support groups benefit both participants and group leaders.Why peer support groups for chronic illness are so helpful, through the lens of my experience moderating an online discussion group for Hypertrophic Cardiomyopathy.This week’s question: Have you attended a peer support group for an illness or disability? What benefits did you get from your participation, and what were the challenges? This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit whatsherproblem.substack.com/subscribe

Good NewsIssue #2 of "What's Her Problem?": Those of us with chronic illness are so used to receiving bad news from doctors that we don’t stop to celebrate the small wins when we do receive good news.How I'm learning to handle good news from doctors, instead of always waiting for the other shoe to drop.This week’s question: Do you celebrate your small wins with your health? If so, how do you celebrate? If not, why not? Do you subscribe to the progress principle? This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit whatsherproblem.substack.com/subscribe

What's Her Problem?Issue #1: People make assumptions about what chronic illness and disability "should" look like.My unfortunate encounter with a TSA agent and the origin story for calling my Substack "What's Her Problem?"Today’s question: How do you handle situations where the validity of your illness or disability is questioned?Visit whatsherproblem.substack.com to subscribe. This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit whatsherproblem.substack.com/subscribe

A brief introduction to "What's Her Problem?," a weekly Substack newsletter tackling Issues at the Heart of Chronic Illness and Disability. From writer, patient advocate, and disabled chronic illness warrior Debra Rafson. The voiceover/audio recording of every post will appear in this RSS feed, so subscribe now to stay up to date. whatsherproblem.substack.com This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit whatsherproblem.substack.com/subscribe