BloodStream cover art

All Episodes

BloodStream — 113 episodes

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Title
1

Are Clinical Trials For Me?

2

Introducing: Movers & Shakers in Rare!

3

The Jonathan James episode!

4

Chris Bombardier returns to BloodStream!

5

Supporting Hemophilia Care Transitions: Insights from a Social Worker

6

Hemophilia B and Telemedicine with Zebra For Care!

7

Navigating the Hemophilia Journey: A Conversation with Dr. Singleton and Peter Fischer

8

Another Barb & Jeff Interview with Gary McLain

9

How the Patient Perspective Led to a Hemophilia Medical Breakthrough

10

FLOW Podcast Has a New Look!

11

A candid convo with HTC nurse practitioner, Joe Stanco

12

Climbing the Seven Summits to raise awareness?!

13

Lived experience across generations of bleeding disorders

14

Plasma donors, RARE BLOOD, and advocacy wins

15

What happened to HEMGENIX!? An update on gene therapy.

16

Understanding Hemophilia A & B with Inhibitors: SEVENFACT in Focus

17

100 Years of vWD w/ Dr. Nathan Connell

18

Psychosocial support and bye bye, BioMarin

19

Jeff & Barb with Connie Montgomery!

20

A preview of 2026 World Congress with Dr. Glenn Pierce

21

ASH 2025 Highlights

22

Amy's History in Hemophilia

23

Top Bleeding Disorders Stories of 2025

24

Blood Brothers - Part 3

25

The Stress of Shifting Roles with Cheri Clark

26

Blood Brothers - Part 2

27

Blood Brothers - Part 1

28

I'm Fine is back! Featuring Benjamin Denman

29

The Red Ink Project & Global Action Network for Sickle Cell

30

Beyond the Diagnosis

31

Joint Health and Gene Therapy - Live from BDC!

32

Channel swimmer (and blood brother!) Tim Stowers

33

WHO Guidelines Updated!

34

Emerging treatment for vWD?!

35

Patrick's Surgery and Ed Rogoff's book

36

Gene Therapy Around the World

37

Actress Sami Rappoport's short film, VIII. Plus Jeff & Barb with Dr. Joanna Davis

38

Bleeding Disorders Conference preview with NBDF's Phil Gattone

39

Hemophiliac of Love with Max Feinstein (!!)

40

Type 3 vWD, growing up and out with Rick Lindfors

41

Dr. Erik Berntorp (the best-kept secret in vWD) and cancer podcasting legend, Matthew Zachary

42

New Treatment Options and Trials

43

Stop the Bleeding!, a retrospective

44

Aging with a Bleeding Disorder

45

NBDF CEO weighs in on current events

46

Medicaid Cuts and vWD Clinical Trials

47

New Music from Trevor Martin and info about Deliver Us, an upcoming documentary

48

Shakeup at CDC - What does it mean???

49

I'm Fine: The Devil You Know

50

HFA CEO Dan Kelsey & Gene Therapy w Brendan Hayes

51

I'm Fine: Honesty & Lies

52

NBDF CEO Phil Gattone + Dr. Nathan Connell on ASH Highlights

53

I'm Fine: The First Fracture

54

Happy Rare Disease Day!

55

The wisdom of advocate Corbin Whittington

56

Dr. Ben Samelson-Jones on Gene Therapy

57

Behind the Mystery: Rare and Genetic Diseases

58

Max Feinsten talks elbow surgery

59

Jonathan Cappiello is 1 out of 20

60

Voices for Policy Change + 2025 HFA Preview with CEO Dan Kelsey

61

Gene Therapy Roundtable and Honoring Jess McLean (Page)

62

NBDF CEO drawing inspiration from local communities

63

The new insurance nightmare you need to know about

64

International Plasma Awareness Week, y'all!

65

Live at BDC with CEO Phil Gattone!

66

Hemophilia Film: What We Wished We Could Be

67

Gene Therapy Reimbursement? We got you covered.

68

The Dark Side of High Achievement

69

Clinical Trials, Caregiving, and NEW MUSIC!?

70

The multi-faceted role of HTC social workers

71

Life with an Invisible Disorder

72

Mild Hemophilia Matters

73

UK Blood Inquiry Clive Smith & Laurence Woollard

74

Navigating the Currents: Interferons in the Treatment of Polycythemia Vera

75

On the Shoulders of Giants is a hit (!) and I'm Fine is back

76

New NBDF CEO, Phil Gattone

77

Dr. Glenn Pierce on the upcoming WFH Congress + CEO of Plasma Protein Therapeutics Association, Anita Brikman

78

Highlights from ASH with Dr. Akshat Jain

79

HFA CEO Dan Kelsey and Rare Disease Day tribute

80

NBDF welcomes new CEO; HFA responds

81

Preserving Tainted Blood History and Bath Bleeds

82

Shakeup at HFA and a brand new Gene Therapy segment!

83

SNL screws up sickle cell.

84

The World Health Organization (WHO) gets it wrong

85

The Dark Side of Resilience + The Gratitude Game

86

Resisting Change and Holiday Dynamics

87

Introducing PNH: Facts, Fiction & FYI!

88

Rugby & Hemophilia and Treatment Transitions w/ Mosi Williams

89

Sexual Intimacy, Artificial Intelligence in Healthcare, and Mindset

90

Dr. Akshat Jain and NHL coach David Quinn

91

Embracing Change in Hemophilia Care and Back to School

92

Patrick and Amy's BDC Recap!

93

Taylor Swift changes Amy's life, plus a new segment, and other stuff.

94

NHF rebrand w/ Len Valentino & SHEmophilia w/ Priscilla Oren

95

It's here: Gene Therapy for Hemophilia A

96

Music w/ Max Feinstein and FLOW with Jessica Lauren Richmond

97

World Sickle Cell Day & Sing Me A Story

98

SHEmophilia, Music, and Michael Bishop

99

Fitusiran overview with Dr. Guy Young

100

The Ethics of Gene Therapy and a conversation with Gunnar Esiason

101

World Hemophilia Day and new music from Tamar Mitchell

102

So, we hit a nerve

103

Own Your Path

104

Rare Disease Day and Living in the Almost

105

Dear Hemophilia Community: A Warning

106

Washington Days and Amy's Big Win

107

Connie Montgomery and a Let's Talk Segment featuring Mike Hargett

108

Dr. Steven Pipe on HEMGENIX, hemophilia B's first gene therapy

109

Legislative wins and losses & CDC's Aditi Kantipuly

110

A Year in Review with NHF CEO, Len Valentino!

111

Gene Therapy is Here (Kinda!)

112

It's gratitude season, plus takeaways from WFH Gene Therapy Roundtables!

113

Are patient influencers a good thing?