All Episodes

Lived experience across generations of bleeding disorders

Plasma donors, RARE BLOOD, and advocacy wins

What happened to HEMGENIX!? An update on gene therapy.

Understanding Hemophilia A & B with Inhibitors: SEVENFACT in Focus

100 Years of vWD w/ Dr. Nathan Connell

Psychosocial support and bye bye, BioMarin

Jeff & Barb with Connie Montgomery!

A preview of 2026 World Congress with Dr. Glenn Pierce

ASH 2025 Highlights

Amy's History in Hemophilia

Top Bleeding Disorders Stories of 2025

Blood Brothers - Part 3

The Stress of Shifting Roles with Cheri Clark

Blood Brothers - Part 2

Blood Brothers - Part 1

I'm Fine is back! Featuring Benjamin Denman

The Red Ink Project & Global Action Network for Sickle Cell

Beyond the Diagnosis

Joint Health and Gene Therapy - Live from BDC!

Channel swimmer (and blood brother!) Tim Stowers

WHO Guidelines Updated!

Emerging treatment for vWD?!

Patrick's Surgery and Ed Rogoff's book

Gene Therapy Around the World

Actress Sami Rappoport's short film, VIII. Plus Jeff & Barb with Dr. Joanna Davis

Bleeding Disorders Conference preview with NBDF's Phil Gattone

Hemophiliac of Love with Max Feinstein (!!)

Type 3 vWD, growing up and out with Rick Lindfors

Dr. Erik Berntorp (the best-kept secret in vWD) and cancer podcasting legend, Matthew Zachary

New Treatment Options and Trials

Stop the Bleeding!, a retrospective

Aging with a Bleeding Disorder

NBDF CEO weighs in on current events

Medicaid Cuts and vWD Clinical Trials

New Music from Trevor Martin and info about Deliver Us, an upcoming documentary

Shakeup at CDC - What does it mean???

I'm Fine: The Devil You Know

HFA CEO Dan Kelsey & Gene Therapy w Brendan Hayes

I'm Fine: Honesty & Lies

NBDF CEO Phil Gattone + Dr. Nathan Connell on ASH Highlights

I'm Fine: The First Fracture

Happy Rare Disease Day!

The wisdom of advocate Corbin Whittington

Dr. Ben Samelson-Jones on Gene Therapy

Behind the Mystery: Rare and Genetic Diseases

Max Feinsten talks elbow surgery

Jonathan Cappiello is 1 out of 20

Voices for Policy Change + 2025 HFA Preview with CEO Dan Kelsey

Gene Therapy Roundtable and Honoring Jess McLean (Page)

NBDF CEO drawing inspiration from local communities

The new insurance nightmare you need to know about

International Plasma Awareness Week, y'all!

Live at BDC with CEO Phil Gattone!

Hemophilia Film: What We Wished We Could Be

Gene Therapy Reimbursement? We got you covered.

The Dark Side of High Achievement

Clinical Trials, Caregiving, and NEW MUSIC!?

The multi-faceted role of HTC social workers

Life with an Invisible Disorder

Mild Hemophilia Matters

UK Blood Inquiry Clive Smith & Laurence Woollard

Navigating the Currents: Interferons in the Treatment of Polycythemia Vera

On the Shoulders of Giants is a hit (!) and I'm Fine is back

New NBDF CEO, Phil Gattone

Dr. Glenn Pierce on the upcoming WFH Congress + CEO of Plasma Protein Therapeutics Association, Anita Brikman

Highlights from ASH with Dr. Akshat Jain

HFA CEO Dan Kelsey and Rare Disease Day tribute

NBDF welcomes new CEO; HFA responds

Preserving Tainted Blood History and Bath Bleeds

Shakeup at HFA and a brand new Gene Therapy segment!

SNL screws up sickle cell.

The World Health Organization (WHO) gets it wrong

The Dark Side of Resilience + The Gratitude Game

Resisting Change and Holiday Dynamics

Introducing PNH: Facts, Fiction & FYI!

Rugby & Hemophilia and Treatment Transitions w/ Mosi Williams

Sexual Intimacy, Artificial Intelligence in Healthcare, and Mindset

Dr. Akshat Jain and NHL coach David Quinn

Embracing Change in Hemophilia Care and Back to School

Patrick and Amy's BDC Recap!

Taylor Swift changes Amy's life, plus a new segment, and other stuff.

NHF rebrand w/ Len Valentino & SHEmophilia w/ Priscilla Oren

It's here: Gene Therapy for Hemophilia A

Music w/ Max Feinstein and FLOW with Jessica Lauren Richmond

World Sickle Cell Day & Sing Me A Story

SHEmophilia, Music, and Michael Bishop

Fitusiran overview with Dr. Guy Young

The Ethics of Gene Therapy and a conversation with Gunnar Esiason

World Hemophilia Day and new music from Tamar Mitchell

So, we hit a nerve

Own Your Path

Rare Disease Day and Living in the Almost

Dear Hemophilia Community: A Warning

Washington Days and Amy's Big Win

Connie Montgomery and a Let's Talk Segment featuring Mike Hargett

Dr. Steven Pipe on HEMGENIX, hemophilia B's first gene therapy

Legislative wins and losses & CDC's Aditi Kantipuly

A Year in Review with NHF CEO, Len Valentino!

Gene Therapy is Here (Kinda!)

It's gratitude season, plus takeaways from WFH Gene Therapy Roundtables!

Are patient influencers a good thing?