All Episodes

Episode 40: Let's Talk About Moments of Joy

Episode 39: Let’s Just Chat!

Episode 38: Aditi’s Life with Ria (age 6)

Episode 37: Let’s Talk About Gene Therapy

Episode 36: Let’s Talk About Bathing Our Kids

Episode 35: AI Chat with Cure5 Co-Founder Andreas Borg

Episode 34: Kim’s Life with LilyAnna (age 23)

Episode 33: Let’s Talk About Tube Feeding

Episode 32: Ali’s Life with Raegan (age 5)

Episode 31: Let’s Ring Out 2025

Episode 30: Kara’s Life with Bennett (age 9)

Episode 29: Anna’s Life with Addy (age 4)

Episode 28: Understanding CDKL5 Deficiency Disorder

Episode 27: CDKL5 Science Chat with Ben Goult

Episode 26: Keshia’s Life with Emani (age 16)

Episode 25: Let's Talk About AAC

Episode 24: Teresa’s Life with Louise (age 26)

Episode 23: We’re Back! Summer recap and an opportunity to share your knowledge with us and ASGCT!

Episode 22: What has been your biggest lesson learned?

Episode 21: How has this diagnosis changed you?

Episode 20: What does your family need more of and/or less of in this CDKL5 life?

Episode 19: What does support look like to you?

Episode 18: What impact does life with CDKL5 have on your family?

Episode 17: Ed’s Life With Haley (age 18)

Episode 16: Let’s Talk About Acceptance

Episode 15: Renee’s Life with Owen (age 5)

Episode 14: Carol-Anne’s Life with Amber (age 20)

Episode 13: Let's Talk About Adaptive Clothing

Episode 12: Hey! How Are We Doing??

Episode 11: Heather's Life with Ezra (age 3)

Episode 10: Let's Talk About Being Hospitalized

Episode 9: Stephanie's Life with Isobel (age 7)

Episode 8: The Importance of Seizure Action Planning

Episode 7: Advocacy, Rare Disease Day, & a Giveaway!

Episode 6: Let's Talk Constipation

Episode 5: Deshaun's Life with Braylon (age 15)

Episode 4: First Comes Epilepsy

Episode 3: Rachel's Life with Mimi (age 9)

Episode 2: Let's Talk About Holidays

Episode 1: Introducing CDKL5 in Color!

Trailer