Skip to content
Energy in Action by MitoAction cover art

All Episodes

Energy in Action by MitoAction — 166 episodes · page 1 of 2

#
Title
1

Living Fully Despite Mito

2

Writing Your Way Through Chronic Illness

3

Mitoman Takes on American Ninja Warrior

4

The Research Unlocking Mitochondrial DNA

5

Exercise Without Fear: How to Build Stronger Mitochondria Safely

6

The Nutrition Advice Mito Patients Need

7

FAOD Families: Don’t Miss This Free Virtual Conference

8

The Fight That Changed Disability Rights Forever

9

How One FDA Meeting Gave the MELAS Community a Voice

10

Why Sleep Matters More Than You Think with Mitochondrial Disease

11

Free Housing for Hospital Visits? The Resource Every Family Should Know

12

Honoring Katie: The Rare Disease Friendships That Change Everything

13

Why Mito Care Is Finally Changing

14

How Mighty Matthew Keeps Moving Forward

15

Supporting Siblings in Rare Disease Families

16

Fighting for Approval and Winning

17

Hope for FAOD Patients Through Research

18

What PFDD Meetings Mean for the Mito Community

19

Creativity and Community: MitoArtisans in Action

20

Inside MitoAction: Support, Advocacy, and a Community That Cares

21

Mindset, Mito, and the Power of Positivity

22

Making Nutrition Work for You: Planning Meals with Mito in Mind

23

Parenting with Mito: Talking About the Tough Stuff

24

How Rory’s Family Built a Life That Works With LCHAD

25

After the Diagnosis: Genetic Counseling & the Mito Journey

26

Hearing Loss, Family, and Hope: A Student’s View on MIDD

27

Dogs for Mito Part 3: Life with a Therapy Dog

28

Married to Mito

29

Raregivers: Turning Caregiver Burnout into Breakthroughs

30

Navigating CPEO: Talia’s Search for Answers, Care, and Community

31

Nutrition Tips for Weak Muscles and Fatigue

32

How Tisento is Advancing Mitochondrial Research

33

The Fight for Educational Rights: What Mito Families Need to Know

34

How to Become Paired with A Service Dog with Rachel Friedman

35

Honoring Sandra Russell Through 15 Years of Derby Day

36

The Lifesaving Bonds Between Service Dogs and Their Mito Warriors

37

Faced with Medical Kidnapping: Skyler’s Story

38

Mitochondrial Shifts: A Conversation with Genetic Counselor Devin Shuman

39

The Superhero Project’s Mission to Empower Kids

40

From Diagnosis to Dalia’s Wish: A Loving Family's Journey with Mito

41

Raising Warriors: A Mother’s Journey with VLCAD

42

From Nurse to Advocate: Tania’s Mito Experience

43

Dateability: A Dating App for the Disability and Chronic Illness Community

44

A Family of Mito Warriors who PUBLISH!

45

Our Space: Building Community for Young Adults with Mitochondrial Disease

46

April - Mito and Social Media Extraordinaire

47

Sharickah - Mito Mom Warrior

48

Daily Living Aids

49

Rare Disease In the Room

50

Rare Sisters

51

Nutritionally Aware - Boosting Energy with the Foods You Eat

52

Being A Mother and Physician and Struggling with Mito

53

The Life and Legacy of Liel

54

Dr. Vockley's Journey in Mitochondrial Disease Care

55

Cegat Genetic Opportunities

56

Chemistry RX

57

Mito Artisans

58

Breathtaking

59

At College with Mitochondrial Disease

60

Mo's Personal Journey

61

Angel Flight New England

62

Medical Marijuana for Mitochindrial Disease

63

Courageous Parents Network

64

Marcy Young - Living with CPEO

65

Self Care for YOU

66

Advocate for YOU

67

The Passionate Life of Josie

68

LHON Collective

69

Mito Quilts of Hope

70

Introducing Positively Walking with Mito Podcast

71

Champs Foundation

72

Employed with Mito Disease

73

Mito Awareness Week and Parent Stories from the FAOD Community - Live from the IMC

74

Barth Syndrome - When the Lack of Fair, Equitable and Appropriate Regulatory Review Process Jeopardizes Ultra-Rare Drug Development

75

Navigating School for Our Kiddos

76

Patient Stories from the FAOD Community - Live from the IMC

77

Hailee The Mito Warrior

78

Jeremiah Gracen TK2D Warrior

79

Akron Children’s Hospital Mito Clinic Research Update

80

Grandparents As Rare - Go Find Your Bike

81

Exercise for Mitochondrial Patients

82

Shades of Grief with Dr. Kendall

83

Travel Tips from the PAR Community with Lisa Weinberger

84

Fighting Chronic Pain with the Neubie

85

Minds in Motion

86

Akron Children’s Hospital - Meet the Mito Clinic Team

87

A Painful Identity

88

Jireh Somera - Fabry Fighter

89

Monica and John Cline - Forever Gift of Compassion - Live Like JoJo

90

Rare Revolution

91

Dr. Neena Nizar - Share Your #RareDiseaseTruth & Give Love A Chance

92

Dalia’s Wish Makes Dreams Come True for the Del Forno Family

93

Exploring Palliative Care

94

Challenging the Status Quo - Robin Powers

95

The Navigation Project

96

Good Grief and the Holidays

97

Meeting My MELAS Mito Friend - Elizabeth Wood

98

Episode 069 - Give Kids the World with Justin Kiser

99

Special Episode - Live from the 2022 Global Genes Rare Patient Advocacy Summit with Tim McLerran, Head of Product, Medical Intelligence One, Inc

100

What Is It Like Being a Research Patient with UDN - Ted Will Tell You