All Episodes
Energy in Action by MitoAction — 157 episodes
Why Sleep Matters More Than You Think with Mitochondrial Disease
Free Housing for Hospital Visits? The Resource Every Family Should Know
Honoring Katie: The Rare Disease Friendships That Change Everything
Why Mito Care Is Finally Changing
How Mighty Matthew Keeps Moving Forward
Supporting Siblings in Rare Disease Families
Fighting for Approval and Winning
Hope for FAOD Patients Through Research
What PFDD Meetings Mean for the Mito Community
Creativity and Community: MitoArtisans in Action
Inside MitoAction: Support, Advocacy, and a Community That Cares
Mindset, Mito, and the Power of Positivity
Making Nutrition Work for You: Planning Meals with Mito in Mind
Parenting with Mito: Talking About the Tough Stuff
How Rory’s Family Built a Life That Works With LCHAD
After the Diagnosis: Genetic Counseling & the Mito Journey
Hearing Loss, Family, and Hope: A Student’s View on MIDD
Dogs for Mito Part 3: Life with a Therapy Dog
Married to Mito
Raregivers: Turning Caregiver Burnout into Breakthroughs
Navigating CPEO: Talia’s Search for Answers, Care, and Community
Nutrition Tips for Weak Muscles and Fatigue
How Tisento is Advancing Mitochondrial Research
The Fight for Educational Rights: What Mito Families Need to Know
How to Become Paired with A Service Dog with Rachel Friedman
Honoring Sandra Russell Through 15 Years of Derby Day
The Lifesaving Bonds Between Service Dogs and Their Mito Warriors
Faced with Medical Kidnapping: Skyler’s Story
Mitochondrial Shifts: A Conversation with Genetic Counselor Devin Shuman
The Superhero Project’s Mission to Empower Kids
From Diagnosis to Dalia’s Wish: A Loving Family's Journey with Mito
Raising Warriors: A Mother’s Journey with VLCAD
From Nurse to Advocate: Tania’s Mito Experience
Dateability: A Dating App for the Disability and Chronic Illness Community
A Family of Mito Warriors who PUBLISH!
Our Space: Building Community for Young Adults with Mitochondrial Disease
April - Mito and Social Media Extraordinaire
Sharickah - Mito Mom Warrior
Daily Living Aids
Rare Disease In the Room
Rare Sisters
Nutritionally Aware - Boosting Energy with the Foods You Eat
Being A Mother and Physician and Struggling with Mito
The Life and Legacy of Liel
Dr. Vockley's Journey in Mitochondrial Disease Care
Cegat Genetic Opportunities
Chemistry RX
Mito Artisans
Breathtaking
At College with Mitochondrial Disease
Mo's Personal Journey
Angel Flight New England
Medical Marijuana for Mitochindrial Disease
Courageous Parents Network
Marcy Young - Living with CPEO
Self Care for YOU
Advocate for YOU
The Passionate Life of Josie
LHON Collective
Mito Quilts of Hope
Introducing Positively Walking with Mito Podcast
Champs Foundation
Employed with Mito Disease
Mito Awareness Week and Parent Stories from the FAOD Community - Live from the IMC
Barth Syndrome - When the Lack of Fair, Equitable and Appropriate Regulatory Review Process Jeopardizes Ultra-Rare Drug Development
Navigating School for Our Kiddos
Patient Stories from the FAOD Community - Live from the IMC
Hailee The Mito Warrior
Jeremiah Gracen TK2D Warrior
Akron Children’s Hospital Mito Clinic Research Update
Grandparents As Rare - Go Find Your Bike
Exercise for Mitochondrial Patients
Shades of Grief with Dr. Kendall
Travel Tips from the PAR Community with Lisa Weinberger
Fighting Chronic Pain with the Neubie
Minds in Motion
Akron Children’s Hospital - Meet the Mito Clinic Team
A Painful Identity
Jireh Somera - Fabry Fighter
Monica and John Cline - Forever Gift of Compassion - Live Like JoJo
Rare Revolution
Dr. Neena Nizar - Share Your #RareDiseaseTruth & Give Love A Chance
Dalia’s Wish Makes Dreams Come True for the Del Forno Family
Exploring Palliative Care
Challenging the Status Quo - Robin Powers
The Navigation Project
Good Grief and the Holidays
Meeting My MELAS Mito Friend - Elizabeth Wood
Episode 069 - Give Kids the World with Justin Kiser
Special Episode - Live from the 2022 Global Genes Rare Patient Advocacy Summit with Tim McLerran, Head of Product, Medical Intelligence One, Inc
What Is It Like Being a Research Patient with UDN - Ted Will Tell You
Alex the Great and LCHAD
Tara Zier - Stiff Person Syndrome Research Foundation and Finding Your Purpose
Lovevery - Purposeful Play Customized for all Abilities
Meet Devin the Genetic Counselor and Mito Patient
Mary Morlino - Parenting with Sarcoidosis and Discussing the Global Genes 2022 RARE Patient Advocacy Summit
Jacob and CPEO Plus
Meet the Bartles
Owning My Story
Life with Leigh's
TJ Strong
Chris Freeman - Chronic Pain Dad
Top 10 Tips for Empowerment & Being Your Own Advocate
Dr. Stephanie Mihalas - Find Your Balance, Find Your Center
Advocate Like a Father
Finding Help with the Cost of Medications
Lisa Weinberger - Be Your Own Advocate, Listen To Your Body, Take Control of Your Health, & Ask Questions
You Never Give Up Hope in Life
Living Rare - An Adult's Perspective
Parenting & Living Life With Chronic Pain - Ross McCreery
The Strength of a Mom
Parents as Rare - Family Coping, Communication, & Mental Health Resources - Dr. Jennifer Young, Postdoctoral Scholar, Biomedical Ethics - Stanford University
Live Life, Dream Big, Be Positive
Removing Barriers in Ultra-Rare
Parents as Rare - Cowden Syndrome and Male Mental Health - David Ross
Empowering Parents Nationwide
EveryLife Foundation Newborn Screening
Silver Linings with Sarah Kate
Chronically Simple and Simply Unbreakable - Kristy Dickinson
Patient Led Trials
The Patient Teacher Program
Parents As Rare - Parenting with VCP Disease - Nathan Peck
The MitoSantas Program
Meet the Mito Girl
Parents as Rare - Emma and Spencer - The Heart of Parents As Rare
RNE Annual Conference
Making Mito Wishes Come True - A Partnership with Give Kids the World Village
Trailer - Parents As Rare
AllStripes and Cyclerion - Community Collaboration to Push Clinical Trials Forward
Fight - Research - Hope - Cure
Another Helping
Giving You the Power to Take Control of Your Healthcare Journey While Moving Mito Research
Having a Voice That Deserves To Be Heard
Patients as Partners in Ultragenyx LC-FAOD Research
One Step Closer
Chronically-Inspired
Caregiver Toolboxes...A Lifeline and Support
A Mom and Daughter's Journey With Mito
Lifeline: It's More Than What You Think
It's Probably Genetic
Adventure Awaits...A Teen's Inspiring Journey with Mito!
The Effects of Having a Diagnosis of TK2
Making Your Voice Heard Through Song
Clinical Trials and COVID-19
Service Dogs...A Man's Best Friend
Owning My Story...The DadVocate
No One Fights Alone....A Family's Journey with Mito!
If You Keep the Patient First, You'll Never Go Wrong
Life with Frankie...A Mom's Journey with Mito
The Positive Power of Peach…A Young Adults Inspiring Journey.
COVID Preparedness and Building Your Flu Box…Tips to Help You Stay Safe
MitoSantas – Bringing Smiles to the Faces of Children Affected by Mitochondrial Disease
The Light at the End of the Tunnel…A Mom’s Journey with MERRF Syndrome
Raising Christopher – A Mom’s Journey with LCHAD
Finding My Path – A Young Adult’s Journey To Live Beyond His Diagnosis.
Trying Not To Run Out Of Gas - A Young Adult's Journey with LCHAD and How She Continues to March Forward.
Energy in Action Launch