All Episodes
Immune Deficiency Foundation — 105 episodes
Every piece adds strength: Interactive art at the 2026 National Conference
2026 National Conference: What to Expect in San Antonio
"Make your own path as you walk." | CEO Jorey Berry introduces medical director Dr. Paula Henao
Exploring "Compromised: Life Without Immunity" | Behind the documentary
Why PI affects the skin: Common rashes, infections, and immune dysregulation (dermatology deep dive)
Primary immunodeficiency & dental health: Protecting your mouth when your immune system is fragile
Undiagnosed: Reuben & Sherri Johnson on CGD, chronic illness, and the fight for healthcare
Cancer risk in primary immunodeficiency (PI): Lymphoma, screening, and treatment explained
Job Hunting With Primary Immunodeficiency: HR Advice on Disclosure, Accommodations & Benefits
How FOXP3 changed immunology: Tregs, IPEX, and the Nobel Prize explained
Bold Conversations: Food justice with Dr. Jennifer Oilver
Living well with PI: Caregiving for chronic illness
Foundation Focus | September 2025
ChronicXTwenties: College and mental health roundtable
Foundation Focus | August 2025
Lunch and Learn: HLH with Dr. Michael Jordan
Undiagnosed: The wounds that won't close
Foundation Focus | July 2025
Bold Conversations: Misinformation with Dr. Cynthia Baur
ChronicXTwenties: Demystifying advocacy
Foundation Focus: June 2025 update with CEO Jorey Berry
Lunch & Learn: Understanding genetic variants in APDS
Jorey's monthly wrap-up: May 2025
Problems in practice: Insurance with Dr. Marcus Shaker
Jorey's monthly wrap-up: April 2025
SPECIAL LOOK: Advocacy Day 2025 Training
Living well with PI: Impact of federal policy changes on the PI community
Bold Conversations: The elephant in the exam room
Decoding PI: The science of gene therapy and gene editing
Jorey's monthly wrap-up: March 2025
Undiagnosed: Gaslit and Gatekept
ChronicXTwenties: Transitioning from pediatric to adult care with Riley and Nick
Jorey's monthly wrap-up: February 2025
Bold Conversations: Health insurance
CEO update from Jorey Berry: January 2025
Living well with PI: Mental health and wellness tips
Undiagnosed: The Businessman
Q&A: Protecting yourself against COVID, flu, and RSV
Decoding PI: Unraveling the GI Connection
Q&A: Antibody Deficiencies with Dr. Luke Wall
ChronicXTwenties: Heartbreakingly beautiful (Part 2)
ChronicXTwenties: Heartbreakingly beautiful (Part 1)
Bold Conversations: CGD and medical immigration with Susanna Raj
Bold Conversations: Inclusion in practice at the 2024 PI Conference
Bold Conversations: Social determinants of health
Ask the expert: PI and fatigue
The Student: Darcy Gott and the risk of experience
Undiagnosed (feat. Dr. Kelley Hagerich): Two Different Traumas
Young adult roundtable: College, mental health, and PI.
ADA-SCID Gene Therapy Update with Dr. Don Kohn
Undiagnosed (feat. The Autism Dad): Father and Son
Bold Conversations Part 5: Health disparities in primary immunodeficiency with Dionne Stalling
October 2023 CEO update with Jorey Berry
Bold Conversations Part 4: Health disparities in PI with Dr. Vivian Hernandez-Trujillo
Bold Conversations Part 3: The business case for health equity
Fireside chat with Emily V. Gordon
Undiagnosed (ft. Ironmouse): "The Performer"
CDawgVA talks history, career, and philanthropy
Transitioning from pediatric to adult care with Dr. Lauren Sanchez
Undiagnosed Episode 2: "The Gardener"
Community Q&A: Primary Immunodeficiency & Neurological Issues with Dr. Stacey Clardy
Bold Conversations Part 2: The roots of medical mistrust among Communities of Color
Undiagnosed Episode 1: "The Caretaker"
Bold Conversations Part One: What is Health Equity?
Skilled Nursing Facilities with Dr. M. Elizabeth M. Younger
Community Q&A: Gastrointestinal Issues and Primary Immunodeficiency
The Connection Between Mental and Physical Health
A SCID Compass Retrospective
Navigating Access to Quality Care with Primary Immunodeficiency
Returning to In-Person Events
State of the States: 2022 Policy Advocacy Overview
Immunoglobulin Replacement Therapy: As Individual As You with Dr. M. Elizabeth M. Younger
Convalescent Plasma and COVID-19 with Dr. Arturo Casadevall
Q&A with IDF's President and CEO, Jorey Berry
Supporting Siblings Of Children With Chronic Illness
What To Ask Your Healthcare Provider
IDF Advocate Connections: Becoming A Rare Disease Advisory Council Member
Opportunities For Young People Of Color In Science
Living With CGD: A Discussion About BMT - A Diagnosis-Specific Episode
Assessing Neurodevelopmental Outcomes In SCID Patients: A Collaborative Study By IDF And PIDTC
Swimming Upstream: Addressing Payer Challenges & Ensuring Access To Genetic Testing
Clinical Research Trials & You
How One Family Navigates Isolation For SCID During COVID - Part Of The SCID Compass Series
Teens & Vaccines - Part Of The Teen Series
Successful Fundraising & Team Building: Learning From An IDF Walk For PI Team Captain
The Public Face of PI
Health Equity
Plasma Ethics
Q&A with Kathryn Stephens
Low T Cell Counts In Babies - Part of the SCID Compass Series
Wiskott-Aldrich Syndrome (WAS) - A Diagnosis-Specific Episode
Pain Management: From Infusions To Everyday Life
Genetic Counseling - Part of the SCID Compass Series
A Year In Our Lives In The Age Of COVID-19 - Part Of The Teen Series
Importance Of Long-term Follow-up After Treatment - Part of the SCID Compass Series
Telemedicine: Getting Healthcare Online
Navigating Flu Season
All About Plasma
Being Independent - Part of the Teen Series
Common Variable Immune Deficiency (CVID) - A Diagnosis-Specific Episode
Hemophagocytic lymphohistiocytosis (HLH) - A Diagnosis Specific Episode
College Concerns - Part of the Young Adult Series
Employment and PI - Part of the Young Adult Series
Coping with the Emotional Dimensions of PI - Part of the Young Adult Series
Taking Control of Your Healthcare Management - Part of the Young Adult Series