All Episodes
Rare Mamas Rising: A Rare Disease Mom Podcast — 56 episodes
Plugging Into the Rare Community
Hoping Through the Holidays
Rhythms of Rising and Recovering
Rare Mamas Book Release Day + A Special Reading from the Introduction
The Making of Rare Mamas: Reflections on Writing and Rare Parenting
Introducing Rare Mamas: A Rare Disease Parenting Book by Nikki McIntosh
Holding On To Our Identity
Spring Cleaning - Letting Go of Things that No Longer Serve Us
EP 47 - Tackling Therapy Burnout
Sharing Our Stories to Create Change
Building Endurance in the New Year
Holidaying Your Way
Growing Our Gratitude
Adapting Halloween Traditions
Loving With Every Breath with Breath Taking Author Jessica Fein
Preparing for a Planned Hospital Stay
Blazing Trails to Cure and Care with The Charlotte and Gwenyth Gray Foundation to Cure Batten Disease with Founder Kristen Gray
Mother's Day Episode: On Bonding and Being There
Paying It Forward with TSC Alliance Director of Community Support and Outreach Shelly Meitzler
Transforming Love Into Advocacy
Charting the Unknown - Navigating the New Year Amid Uncertainty
Navigating Grief and Healing with Normal Broken Author Kelly Cervantes
A Rare Adoption Story with Rare Mama Monica Poynter
10 Minutes with Rare Mama Teri Furey - Larsen Syndrome Mom
Demystifying Differences with Author, Speaker, and Rare Mama Megan DeJarnett
Back-to-School Tips with Rare Mama Nikki McIntosh
Mid-Year Reset with Rare Mama Nikki McIntosh
A Moving Mission with The Stiff Person Syndrome Research Foundation Founder and President Dr. Tara Zier
Mother's Day Episode - Enduring, Planting, and Blooming with Rare Mama Nikki McIntosh
Driving Discoveries with Principal Investigator at Seattle Children's Research Institute and Assistant Professor Department of Pediatrics, Division of Genetic Medicine at the University of Washington and Rare Mama Kim Aldinger
Rare Mamas Rising Reflections with Rare Mamas® Creator, Podcast Host and Rare Mama Nikki McIntosh
Charging the Rare Community with The Disorder Channel Co-Founder, Global Genes Director of Community Engagement, Menkes Syndrome Advocate and Rare Dad Daniel DeFabio
Modeling Rare Advocacy with Thalassemia Advocate and Rare Mama Maria Hadjidemetriou
Finding Meaning and Purpose with STXBP1 Foundation Director of Development and Rare Mama Melissa Hioco
Lifting Her Voice and Envisioning Change with Through Evely's Eyes Founder and Rare Mama Tameka Diaz
Ten Minutes With A Rare Mama- Amanda Brundage, UFC Fighter and ALG13 Mom
A Big Reason to Be Here with FOXG1 Research Foundation Co-Founder, Executive Director, and Rare Mama- Nicole Johnson
Elevating Our Advocacy with Rare Action Network State Ambassador, Cure SMA Social Work Manager and Rare Mama Danyelle Sun
Turning Pain into Purpose with The Avalon Foundation President, Hypophosphatasia Advocate, Life Coach, and Rare Mama Deb Ayres
Father's Day - Ten Minutes With A Rare Dad- Tony McIntosh - SMA Dad
Motherhood Reflections - Exploring Our Journeys and Fostering Emotional Wellness for Ourselves and Our Families with NDF Emotional Wellness Director Carol Gelbard
A North Star In A Rare Universe with Cure Founder and Rare Mom Caroline Cheung-Yiu
10 Minutes with A Rare Mama- Catherine Oh-Congenital Nephrotic Syndrome Mom
The Passion Behind - Behind the Mystery TV Show with Co-Creator and Rare Mom Carri Levy and Writer- Producer Brittany Cocilova
Shining A Light on Undiagnosed Illnesses with Chief Clinical Officer of the NeuroBehavioral Institute, Undiagnosed Filmmaker, and Rare Mom Dr. Katia Moritz
Holiday How-Tos for Rare Mamas
Nutrition Coaching for Rare Mamas with Dietitian Nutritionist and Rare Mom Chardell Buchanan
The Power of Storytelling in Community Building with Loving Large Author Patti M Hall
Changing Lives One Child at a Time with Team Joseph CEO and Rare Mom Marissa Penrod
Raising Awareness with SMA Mom and Cure SMA Advisory Committee Member Mary McHale
Episode 005 - Lighting the Way With Once Upon A Gene Podcast Host and Rare Mom Effie Parks
Best Case Scenarios with Special Education Community Advisory Committee Chair; Rare Mama Rachel Niemeyer-Sutherland
Happy, But Different with Boston Children's Epilepsy Center Coordinator & Rare Mom Colleen Gagnon
Mother's Day Episode with A Rare Mama's Mama
Trailer - Rare Mamas Rising
The Sunshine in the Storm with Rare Cancer Mom & Advocate Stacey Walthers Naffah