145: Genetic Arrhythmogenic Cardiomyopathy: Sarah and Leslie's Story

Some conditions hide in your genes, without any symptoms. One of these conditions is genetic arrhythmogenic cardiomyopathy, an inherited condition that can lead to sudden cardiac arrest — even if you feel completely fine.In this episode, Sarah and Leslie talk about their shared diagnosis of FLNC cardiomyopathy — from how this gene mutation affects the function of the heart to how they're managing this rare condition. You'll hear how Leslie's ICD has saved her life more than once, how it feels to be shocked back to life, and the resilience that's helped them move forward.This is a raw, real, emotional episode about living with a genetic heart condition. Tune in to learn the signs to watch for, when to get tested, and where to find support!Topics discussed in this episode:What is genetic arrhythmogenic cardiomyopathy?How FLNC related ACM differs from other cardiomyopathiesCommon symptoms and why some people are diagnosed too lateTreatment and lifestyle managementHow Sarah and Leslie finally got diagnosedLeslie’s first cardiac arrest and its impactHow Sarah is processing her diagnosisWhat it feels like to be shocked by your ICDTypes of ICDs: transvenous, SICD, and EV-ICDMental and emotional recovery post-cardiac arrestThe WomenHeart organizationFind support or volunteer with WomenHeart:https://www.womenheart.org/Mentioned in this episode:Listen to the In The Heart of Care Podcasthttps://link.cohostpodcasting.com/6598429e-e927-45b0-9b57-7dd34a09d803?d=seASyqjs7