264. Healing and Hope: Navigating Down Syndrome Regression Disorder (w/ Dr. Santoro & Dr. Quinn)

Today, we're chatting about the mysterious and challenging world of Down Syndrome Regression Disorder (DSRD). This condition has left many parents searching for answers as they witness profound changes in their children. Joining us are two leading experts, Dr. Jonathan Santoro and Dr. Eileen Quinn, who will share their insights and experiences from the frontlines of diagnosing and treating DSRD. Dr. Santoro serves as the Director of Neuroimmunology and Demyelinating Disorders Program and Director of Research for the Neurologic Institute at Children’s Hospital Los Angeles. He also has clinical research expertise in DSRD. Dr. Quinn serves as the Medical Director of the Down Syndrome Clinic at ProMedica Ebeid Children’s Hospital in Toledo. Dr. Quinn is also the mother of four perfect daughters, the youngest of whom, Sara, has Down syndrome. They’re helping us understand the symptoms, treatment options, and the ongoing fight to understand this perplexing disorder. Friends, we’re glad to bring this important conversation to everyone’s attention. --- SHOW NOTES Read The Washington Post article featuring Dr. Santoro and Dr. Quinn Regression in Down Syndrome Facebook group Information on Down Syndrome Regression Disorder Facebook Group Additional resources from the National Down Syndrome Society (NDSS) Learn more about DSRD JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today!  DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email [email protected] for more information! LET’S CHAT Email [email protected] with your questions and Good News for future episodes.