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Acromegaly With Risa From Colorado

EPISODE · Jan 31, 2025 · 1H 4M

Acromegaly With Risa From Colorado

from Rare Connection · host Joanna

Send us Fan MailJoin me as I talk with Risa about her diagnosis with Acromegaly (A rare benign cancer).  Learn about Risa's Symptoms and how she deals with her condition on a day to day basis.  Risa decided shortly after having surgery to go on a 1845 mile bike ride from Colorado to Mexico despite her doctors advising against it.  You can read more about her story in her book The Road Unpaved: Border to Border with a Brain Tumor and a Bike available on Amazon.  Her book is being turned into a movie.  Use the link below to order your copy.  Please consider subscribing to both this podcast and my YouTube channel Rare Chef.  Follow us on Facebook and X (Formerly Twitter) and join our Facebook Group.  Chapter Markers0:00:00 Intro0:04:10 Diagnosis story0:09:23 MRI Image Pituitary Gland0:11:54 Acromegaly explained0:14:31 Missed Signs0:18:45 How the Acromegaly diagnosis changed Risa's outlook on life0:20:51 treatments and navigating the healthcare system0:23:53 How the brain tumor affected Risa's daily life Physically and emotionally:25:42 Why Risa thinks Acromegaly might be more comon than we think0:28:26 What more doctors should know about diagnosing and treating Acromegaly0:30:36 Average life expectancy0:31:26 Advice to undiagnosed0:33:14  Risa;s biggest challenges in advocating for herself0:36:31 How Risa's diagnosis changed her approach to life0:39:58 Favorite travel spot0:40:59 Misconceptions0:46:47 balancing act0:49:07 inspiration for Risa's book The Road Unpaved: 0:52:14 Whar Risa hope's people take away from her story0:54:21 What's Next0:56:40 Advice for other facing life altering diagnoses1:00:23 Risa's advice to herself1:011;44 conclusionSupport the show

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Acromegaly With Risa From Colorado

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