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Edition 104: PWSA | USA Pulse

EPISODE · Aug 30, 2024 · 19 MIN

Edition 104: PWSA | USA Pulse

from PWS United · host PWSA | USA

(Please note, this episode was recorded under the name PWS Connect, and we have since changed the name to PWS United.) Carrie and Anne, from PWSA | USA's Communication Dept., share the news and resources from PWSA | USA's Pulse newsletter, edition #104. Our Pulse covers upcoming fundraising events and conferences, advocacy highlights and actions, family support resources and offerings, the latest in research, trial opportunities and more. The Pulse newsletter is published digitally every Friday. Future podcast Pulse episodes will air the following Tuesday.  Links: Planned Giving Webpage "Less Than No One" Spotlight United in Hope Conference United in Hope Mural RMC Inaugural Fundraiser Congressional Letter of Support Blog Post Military Family Form Rare Aware Art Share Submission Form Interdependence Blog Post Ask Nurse Lynn "BM & GI Concerns"  Aging research Webinar Recordings Call for Abstracts Project ECHO  Acadia Webinar Recording TREND Launch Report Harmony TEMPO Trial Sites Gastroparesis Article   Intro Music: https://www.bensound.com/; License certificate #2242442 

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Edition 104: PWSA | USA Pulse

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