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Ep32Pulse 118: Harmony Webinar, Hot Stove Dinner, State Advocacy, TREND GI Report, Community Publications

EPISODE · Mar 11, 2025 · 45 MIN

Ep32Pulse 118: Harmony Webinar, Hot Stove Dinner, State Advocacy, TREND GI Report, Community Publications

from PWS United · host PWSA | USA

The latest in PWSA | USA events and PWS news in research, family support, and advocacy.  Events United in Hope Conference Hotel Locator: PWSA (Prader-Willi Syndrome Association) | 2025 International Prader-Willi Syndrome Conference - 6/24/25 - 6/28/25 - Phoenix, AZ | Tempe | Advanced Reservation Systems Home - 2025 United in Hope PWS Conference Mural: 2025 PWS Conference Mural Photo Submission - Prader-Willi Syndrome Association | USA For info on sponsorship opportunities: [email protected] 50th Anniversary Journey of Hope Gala: PWSAUSA 50th Anniversary: Journey of Hope Celebration - Campaign Share your PWSA Memory: 50 Year Anniversary - Prader-Willi Syndrome Association | USA Other Events BIPOC Listening Sessions: Listening Session: Prader-Willi Syndrome Fundraisers Prader-Willi Hot Stove | Powered By GiveSmart Zahra's Night of Light - Campaign PWSA Fundraising Pages - Campaign Spotlight on Hope Share Your Story - Prader-Willi Syndrome Association | USA Advocacy United for Change: PWSA | USA Advocates Make a Powerful Impact During Rare Disease Week 2025 - Prader-Willi Syndrome Association | USA Call to Action for Illinois Families: Witness Slip Illinois General Assembly - Full Text of HR0173 Family Support Her Own Home with Family Nearby - Prader-Willi Syndrome Association | USA Ask Nurse Lynn: Interventions for Rectal Picking - Prader-Willi Syndrome Association | USA Ask Nurse Lynn - Prader-Willi Syndrome Association | USA Share Your "PWS in Adulthood" Story - Prader-Willi Syndrome Association | USA I Am Full – Stories for Jacob Book Club Discussion: [email protected] Research TREND Report: Gastrointestinal Issues in the PWS Community - Prader-Willi Syndrome Association | USA New Project Seeks to Identify Characteristics that Predict Challenging Behaviors in PWS - Prader-Willi Syndrome Association | USA Harmony Biosciences Initiates TEMPO PWS Study - Prader-Willi Syndrome Association | USA Announcements/Resource Spotlight Call for Nominations or Board of Directors mailto:[email protected] LisaGrazianoLMF​[email protected] Community Publications - Prader-Willi Syndrome Association | USA   Intro Music: https://www.bensound.com/; License certificate #2242442 

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Ep32Pulse 118: Harmony Webinar, Hot Stove Dinner, State Advocacy, TREND GI Report, Community Publications

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