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Ep57 Pulse 130: Direct Support Professionals Week, DUR Written Testimony, Recursos en Español

EPISODE · Sep 9, 2025 · 34 MIN

Ep57 Pulse 130: Direct Support Professionals Week, DUR Written Testimony, Recursos en Español

from PWS United · host PWSA | USA

The latest in PWSA | USA events and PWS news in research, family support, and advocacy.  24 Hour Crisis Line: 941-312-0400 Direct Support Professionals Week In Recognition of Direct Support Professionals - Prader-Willi Syndrome Association | USA PWSA Memory The Evolution of PWSA | USA’s Logo: A Journey of Hope and Transformation - Prader-Willi Syndrome Association | USA Share your PWSA Memory: 50 Year Anniversary - Prader-Willi Syndrome Association | USA Events PWSAUSA 50th Anniversary: Journey of Hope Celebration - Campaign Hotel Options: Where Can We Take You? | Endless Experiences & Top Locations | Marriott Bonvoy Journey of Hope Gala Honoree Spotlight: Dr. Moris Angulo, MD - Prader-Willi Syndrome Association | USA Journey of Hope Gala Honoree Spotlight: Janalee Heinemann - Prader-Willi Syndrome Association | USA Fundraisers Cocktails for a Cause- A Night for Prader-Willi Syndrome - Campaign PWSA Fundraising Pages - Campaign Spotlight on Hope Share Your Story - Prader-Willi Syndrome Association | USA Advocacy Calling Minnesota PWS Families - Prader-Willi Syndrome Association | USA Calling Montana PWS Families - Prader-Willi Syndrome Association | USA Calling Alaska PWS Families - Prader-Willi Syndrome Association | USA Help Expand Disability Services for PWS – Share Your Story - Prader-Willi Syndrome Association | USA Family Support Grandparent Perspectives - Prader-Willi Syndrome Association | USA Ask Nurse Lynn: Glucose Monitoring - Prader-Willi Syndrome Association | USA Submit your own non-emergency medical question: Ask Nurse Lynn - Prader-Willi Syndrome Association | USA Research VYKAT XR FAQ for Parents Social Skills in Children with Prader-Willi Syndrome: A Survey of Caregivers | QuestionPro Survey [email protected] Harmony Biosciences TEMPO Trial Webinar Recording: Harmony Biosciences TEMPO PWS Study Webinar Aardvark Therapeutics HERO Trial: U.S. Sites Now Open - Prader-Willi Syndrome Association | USA Gainesville, Florida UF Shands Childrens Hospital Contact: Jennifer Miller, MD Phone: (352) 294-8229 Email: [email protected] www.heroforpws.com Recursos in Espanol: "Hoja de información del estudio clínico HERO" "El ensayo HERO"  una folleto "Estudio HERO"   Prader-Willi Syndrome Clinical Scholarship Announcement - Prader-Willi Syndrome Association | USA Request for Prader-Willi Syndrome Research Grant Applications Announcements/Resource Spotlight Sleep Summit - Prader-Willi Syndrome Association | USA  This episode is sponsored by Soleno Therapeutics, the makers of VYKAT XR. While PWSA | USA does not endorse any specific treatment, we recognize the importance of sharing information about options available to the PWS community. Decisions about medical care should always be made in consultation with a qualified healthcare provider. Please visit www.vykatxr.com for information on use and potential side effects. Intro Music: https://www.bensound.com/  License certificate #2242442 

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Ep57 Pulse 130: Direct Support Professionals Week, DUR Written Testimony, Recursos en Español

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