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ESPACIO DEBRA PIEL DE MARIPOSA - CAMPAÑA DE NAVIDAD

EPISODE · Dec 17, 2025 · 15 MIN

ESPACIO DEBRA PIEL DE MARIPOSA - CAMPAÑA DE NAVIDAD

from Bienvenidos a Getradio.tv · host Getradio.tv

Esta tarde en el espacio de Piel de Mariposa hemos contado con la presencia de Maria para hablarnos de la campaña de Navidad que están realizando en la FNAC de Marbella. La Piel de Mariposa, o Epidermólisis Bullosa (EB), es una enfermedad genética rara y crónica que causa una fragilidad extrema en la piel y membranas mucosas, haciendo que se formen ampollas y heridas ante el más mínimo roce o trauma, como si fueran las delicadas alas de una mariposa, debido a un "pegamento" proteico defectuoso entre las capas de la piel; no tiene cura, pero se maneja con cuidados paliativos y vendajes constantes para proteger las lesiones.

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ESPACIO DEBRA PIEL DE MARIPOSA - CAMPAÑA DE NAVIDAD

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