Akathisia Stories

Stacey is a 48 year old housewife and artist residing in Southern California. She has had akathisia not just from pharmaceuticals, but also due to hormonal issues and what she believes was PANDAS in childhood. As a result, she has had bouts of akathisia since youth and has had it chronically since a protracted withdrawal from klonopin plus reinstatement that occurred approximately ten years ago. At the time of the withdrawal, she was wrongly diagnosed as bipolar and polydrugged. She is currently working on tapering off these medications. 

Katy Duffy and her husband, Ben, from Oregon share their experience with akathisia—a medication-induced disorder that was missed, misdiagnosed, and mistreated. They speak openly in the hope that others can recognize the signs sooner and avoid the suffering Katy endured.Akathisia affects the entire family, not just the person experiencing it. Katy and her husband describe that impact with honesty and clarity.Katy also partnered with MISSD to bring an akathisia awareness billboard to her Oregon community. Speaking out and advocating has been part of her healing—and a way to help others.

In Part 1, you met Katie Brennan — a Teacher of the Year, mother of six, and respected educator whose life changed after she developed medication-induced akathisia. With no prior history of mental illness, her symptoms were misdiagnosed as DSM-labeled disorders, leading to civil commitments that damaged her career, reputation, and her family.In Part 2, we turn to what comes next.Although medical experts have concluded that her civil commitments were rooted in misdiagnosed and mistreated akathisia, Katie is still seeking to have those commitment records expunged — records that continue to affect her professional standing and civil rights.Katie also raises important questions about how psychiatric diagnoses are defined. Disorders in the Diagnostic and Statistical Manual of Mental Disorders (DSM) are developed through committee review and voting by expert panels. These decisions shape how human experiences are understood and labeled in clinical settings.For example, the DSM labels "Prolonged Grief Disorder" as grief lasting beyond 12 months (6 months for children and adolescents), as a diagnosable condition — a change that has prompted discussion about where grief ends and pathology begins.Genetic differences in drug metabolism can increase the risk of adverse reactions to medications like SSRIs, yet most patients are prescribed these drugs without prior pharmacogenomic testing.Akathisia is one of several medication-induced disorders that can cause extreme inner torment and suicide. Others harmed by prescribed psychiatric drugs — including those suffering from PSSD and severe withdrawal — have also experienced life-altering consequences and iatrogenic death.Katie’s story is about accurate diagnosis, informed consent, and recognizing medication-induced injury before lives are permanently altered.Watch Part 2 — because surviving iatrogenic harm is only part of the journey. Reclaiming your name and your future is also a difficult path.One misdiagnosis can change everything. One informed voice can help protect others.

Katie Brennan is a former finalist for Minnesota Teacher of the Year, with a Masters Degree in Education and 48 additional upper division graduate credits in Education and English. During her 20 year teaching career, Katie taught high school English, including English for college credit. Katie is a woman of strong faith and the mother of six children and nine grandchildren. At age 48, with no history of mental illness, Katie was prescribed Ambien and Prozac during a stressful job transition and developed crippling akathisia. While suffering from akathisia, Katie was misdiagnosed as mentally ill, which led to three wrongful civil commitments within five years. These commitments justified the continued inappropriate and harmful use of the psychiatric medications causing the akathisia, perpetuating her suffering for an agonizing seven years. She has been in an ongoing legal battle since 2021, in both federal and state court, to vacate the wrongful civil commitments and restore her reputation, her dignity, and her civil and constitutional rights. Katie’s journey has taught her that her experiences in the mental health system, in which akathisia and other life-threatening medication reactions are often dismissed and ignored, are not unique. Katie, who is alive by the grace of God, is now dedicated to raising awareness of akathisia to prevent more needless suffering, offer hope, and save lives. She also advocates for better training on akathisia for providers, social workers, and court officers and the need for oversight and accountability in civil commitment proceedings. 

Derek Blumke is a writer, consultant, and veteran advocate dedicated to improving mental health outcomes and reducing avoidable harm. He served more than a decade in the U.S. Armed Forces and Michigan Air National Guard, and co-founded Student Veterans of America, Derek’s work now includes helping veterans who were harmed by the treatments meant to heal them, a journey he personally understands.Wendy Dolin is a licensed family therapist and the founder of MISSD. Widely recognized for her public health advocacy and education, Wendy has received humanitarian honors for her work helping both the public and medical community recognize akathisia — before tragedy occurs. Though honored by such recognition, the messages she receives from people who say MISSD helped them identify akathisia in time to seek appropriate care, mean more than any award.

Kristina Kaiser is a strategic communications consultant and educator with extensive experience in public relations, advocacy, and marketing across education, nonprofit, and public health sectors. She has directed large-scale awareness campaigns and academic programming that have strengthened organizational visibility and improved patient safety. Kristina has also developed accredited courses and educational resources, as well as fundraising campaigns and brand partnerships that expand impact. But what really drives her work is something deeply personal. Her daughter — and my cousin — Natalie died after developing prescription drug-induced akathisia. Since then, Kristina turned the heartbreaking loss of Natalie into a mission to make sure no other family has to suffer the same avoidable harm.