Autism Odyssey

Betsy Hicks-Russ and Julie Swanson, aka the Life Skills Lady, shares insightful ways parents, educators, and caregivers can teach essential life skills, address barriers, and leverage accommodations to improve adult outcomes for autistic individuals. Discover how to set realistic goals, build motivation, and implement routines that foster independence at any age.Julie Swansonhttps://www.lifeskillslady.comBetsy Hicks-Russhttps://Betsyonthego.com

Betsy Hicks-Russ interviews David Kaufer, who discusses the biases and misconceptions surrounding non-speaking autistic individuals and their communication methods. Kaufer highlights the flaws in message passing tests, the role of expert witnesses in debunking alternative communication methods, and the importance of presuming competence. He also touches on recent legislative changes that support communication rights for non-speakers and shares personal experiences with his son, Stone, who uses spelling to communicate. The discussion emphasizes the need for advocacy, awareness, and a shift in societal perceptions of non-speaking individuals.https://davidkaufer.comhttps://BetsyOnTheGo.comTakeawaysDavid Kaufer challenges the biases against non-speaking autistic individuals.Message passing tests are flawed and do not accurately assess communication abilities.Expert witnesses often have financial incentives to debunk alternative communication methods.Presuming competence is crucial for empowering non-speaking individuals.Legislative changes are being made to support communication rights for non-speakers.Personal experiences highlight the effectiveness of spelling as a communication method.The conversation emphasizes the need for greater advocacy and awareness.There is a coordinated effort to undermine alternative communication methods.The psychological implications of message passing tests can lead to unfair assessments.The future of communication for non-speakers looks promising with increased awareness.

For many families of non-speaking autistic people, the search for communication doesn’t begin with choice—it begins with desperation. Years of therapy. Years of assessments. And still no reliable way to hear their child’s thoughts, preferences, or inner life.In Episode 3 of the Presume Competence Series, we build directly on the foundation laid in Episodes 1 and 2—where we explored why spelling-based communication works and how motor planning differences can interfere with traditional AAC and speech-based expectations.Once motor planning is understood, the question shifts. Not whether someone understands—but how they can most reliably express what they already know.This conversation examines how assessments are often used far beyond what they are capable of measuring. We unpack how speech and language tests are mistaken for measures of intelligence, how compliance and immediate motor output are confused with comprehension, and why brief assessment snapshots are treated as permanent conclusions. Our panel explores how these practices shape belief systems, silence parental intuition, and discourage families from exploring spelling-based communication—often through fear-based narratives that are not supported by the evidence they claim to rely on.As one panelist reminds us: no expert, in any capacity, ever has the right to tell a family there is no hope.We invite parents and professionals alike to reconsider the role assessments play in decision-making—and to remember that assessments are tools for gathering information, not verdicts on intelligence, potential, or inner language. Because when communication finally becomes possible, it changes everything. And no family should be told not to look simply because the system isn’t ready to see.BetsyOnTheGo.comAutismOdyssey.orgTakeaways:No expert has the right to tell you there's no hope.Assessments often fail to measure true intelligence.Spelling-based communication offers a reliable expression method.Motor planning is crucial for understanding non-speakers.Current assessments are often misused and misunderstood.Parents must advocate for their child's communication needs.The system often silences parental intuition.Spelling methods are not harmful, contrary to some claims.Education should equip and enrich, not just test.Parents are the legal authority in their child's education.Takeaways

Betsy Hicks-Russ and Natalia Meehan delve into the fascinating world of plant medicine, telepathy, and the healing power of herbs. They explore Nina's journey as a non-speaker who communicates through spelling, the importance of nutrition, and how plants can guide us in our healing journeys. The discussion also covers practical tips for using herbs, the significance of seasonal eating, and the role of mushrooms in immune health. Throughout the conversation, they emphasize the need for nourishment and the deep connection between humans and plants.Natalia Meehanhttps://www.floweringfutures.comBetsy Hicks-Russhttps://BetsyOnTheGo.comTakeawaysNina's communication through spelling has transformed her family's understanding of her needs.Herbs can guide personal healing journeys and provide essential nutrients.The importance of nourishing the body before making convenience food choices.Plants have been used for healing long before modern medicine.Aromatherapy can enhance well-being and grounding for individuals with sensory needs.Seasonal eating aligns with the body's natural rhythms and nutritional needs.Quality ingredients in herbal remedies can significantly impact health outcomes.Mushrooms like reishi and lion's mane offer immune support and cognitive benefits.Understanding the body's detoxification process is crucial for overall health.Herbal infusions can be a powerful way to extract the benefits of plants.

In this episode, we open a doorway into acknowledging the contrast of a neurotypical brain and body verses an autistic brain and body and how they each learn & process the world—we explore autistic communication, and the unique challenges that arise when AAC (Augmentative and Alternative Communication) devices are part of the equation. It also examines how traditional approaches like ABA (Applied Behavior Analysis) can create additional barriers by overlooking the impact of apraxia on motor-based communication. The essence of the conversation points out the fundamental flaw of the traditional methods—a lack of presumption of competence in the intellect of the individual leads to misguided perceptions of what a child’s motor response actually means. These methods can often lead to increased anxiety, meltdowns, and conditioning of rote motor responding instead of purposeful motor responding. The conversations highlight that the method yielding the most transformative outcomes for many nonspeaking individuals is presuming competence in their intellect and utilizing the letterboard—an approach that honors purposeful motor planning and supports unlimited expression, while illuminating what truly fosters meaningful communication: understanding the motor system behind expression, recognizing the parent’s role in nurturing a pathway to authentic voice, and embracing the power of community, consistent practice, and shared encouragement as individuals develop and strengthen their communication—however that voice comes forward.Love John Paul Foundationhttps://lovejohnpaul.org/Communication 4 All https://communication4all.org/Sara Intonato - Autism Changemakershttps://www.skool.com/autismchangemakers/about?ref=91091eabcbb74826b4cb2581d181dc47The importance of presuming competence in non-speakers.Understanding the differences in how autistic and neurotypical brains process information.Motor planning is crucial for effective communication.Scrambling loops can help break repetitive behaviors.AAC devices have limitations that can hinder communication.Independence in communication should not come at the cost of support.Autonomy is essential for the well-being of non-speakers.Parents play a vital role in their child's communication journey.Community support is crucial for parents of non-speakers.Daily practice and engagement are key to developing communication skills.

Betsy Hicks-Russ and Elizabeth Miller explore the complexities of caregiving, emphasizing the importance of self-care, community support, and the need to avoid comparison among caregivers. They discuss the emotional challenges caregivers face, the significance of establishing routines, and the necessity of recognizing burnout signs. The dialogue highlights the journey of finding joy in caregiving and the power of reflection in personal growth.Elizabeth Millerhttps://thehappyhealthycaregiver.comBetsy Hicks-Russhttps://BetsyOnTheGo.comTakeawaysCaregivers often lose their identity and struggle with self-care.Resentment can arise from comparing caregiving experiences.It's important to avoid the comparison trap among caregivers.Self-care needs vary and require introspection to identify.Recognizing signs of burnout is crucial for caregivers.Building a self-care toolbox can help manage stress.Establishing non-negotiable routines can enhance well-being.Morning rituals can set a positive tone for the day.Reframing self-care activities can make them feel less burdensome.Community support is vital for caregivers' mental health.Self-advocacy is essential in caregiving roles.

Betsy Hicks-Russ interviews Nicci Smith, the mother of Tanner from 'Love on the Spectrum.' They explore themes of identity, the challenges of parenting a child with autism, the importance of fitness and self-care, and the impact of social media on their lives. Nicci shares her journey of self-discovery, the significance of nutrition, and the realities of living with autism. The discussion also touches on the constructive criticism they face in the public eye and the importance of kindness in online interactions.Nicci Smith - Tanner with the tism - Tannerwiththe_tismNicci Smith - nicci_smith6Talk to Me Sis Podcast - ttmspodBetsy Hicks-RussBetsyonthego.comAutismOdyssey.orgTiktok, Instagram & Facebook - BetsyOnTheGoTakeawaysNicci Smith is a passionate advocate and mother of Tanner from 'Love on the Spectrum.'Navigating identity can be challenging for parents of children with special needs.Fitness and self-care are crucial for mental and physical well-being.Social media can amplify both support and criticism for public figures.Nutrition plays a vital role in maintaining health, especially in midlife.The journey of parenting a child with autism is filled with both challenges and joys.Constructive criticism can lead to personal growth and reflection.It's important to be open-minded and sensitive to the experiences of others.Creating a supportive community is essential for personal and collective well-being.Kindness and understanding should be prioritized in online interactions.

This episode brings together speech-language pathologists, seasoned practitioners, parents, and a scientist for an open, thoughtful conversation about spelling as a communication method for nonspeaking autistic individuals. Rather than meeting criticism with defensiveness, we invite listeners—including those who hold doubts—to explore the real science behind motor challenges, apraxia, and the often-overlooked intelligence of spellers.Our aim isn’t to argue, but to illuminate. There is no “debunking” to be done—only a call to look more closely, ask better questions, and recognize that at the very least, the evidence is far from settled. And when evidence is inconclusive, the safest and most humane path is to presume competence and allow individuals the right to communicate in the way that works for them.This conversation is a gentle invitation to pause judgment, listen with curiosity, and consider what becomes possible when we give every person a chance to be heard. It’s also the beginning of a larger series—there is more to explore, more evidence to share, and more voices to uplift.

Betsy Hicks-Russ joins podcaster David Kaufer for a conversation about her journey from the early years to present. David broaches the subject of Telepathy (or the WooWoo topic) and the concept of non-local communication, exploring its scientific basis and the challenges in defining related terms like psy abilities and synesthesia. Both emphasizes the need for a better understanding of these phenomena and the potential abilities that may exist beyond current knowledge.David Kauferhttps://davidkaufer.comThe David Kaufer Podcast: The Lighter Side of the SpectrumBetsy Hicks-Russhttps://BetsyOnTheGo.comTakeawaysTelepathy often carries woo-woo connotations.Non-local communication is recognized in scientific discourse.Synesthesia is a term used in scientific contexts.There is a struggle to find the right language for these concepts.The speaker believes we are just beginning to explore these abilities.Understanding these phenomena requires open-mindedness.Scientific inquiry can help demystify telepathy.The conversation highlights the intersection of science and perception.There is a need for more research in this area.The speaker expresses curiosity about unexplored abilities.

Betsy Hicks-Russ and Carleigh Rochon of Bay Area Brain Spa, delve into the transformative effects of neurofeedback therapy, exploring its various types, mechanisms, and the importance of co-regulation in therapy. They discuss the evolution of neurofeedback technology, the significance of a calm environment for effective therapy, and the connection between nutrition and brain health. The conversation emphasizes the simplicity of effective therapies and the future of neurofeedback in holistic health, concluding with insights on the importance of self-care for caregivers.Carleigh Rochonhttps://bayareabrainspa.comBetsy Hicks-Russhttps://BetsyOnTheGo.comhttps://AutismOdyssey.orgTakeawaysNeurofeedback can have profound impacts on mental health.Real-time monitoring of brain activity is essential in neurofeedback.Co-regulation between caregiver and child enhances therapy outcomes.A calm environment is crucial for effective therapy sessions.Nutrition plays a significant role in brain health.Simplicity in therapy can often yield the best results.Neurofeedback technology has evolved significantly over the years.Self-care is vital for caregivers to provide better support.The lymphatic system is essential for overall health and wellness.Holistic approaches to health are becoming increasingly important.

Betsy Hicks-Russ and Becca Cramer explore the intersection of skepticism, telepathy, and the scientific community's response to non-verbal communication methods like spelling. They discuss personal experiences, the challenges faced by parents of non-speakers, and the potential for non-local communication to revolutionize understanding and treatment of individuals with communication challenges. The dialogue emphasizes the need for a shift in perspective within the scientific community and the importance of presuming competence in non-speakers.Becca Cramerhttps://substack.com/@beccacramer?r=3izcpe&utm_medium=iosInstagram - Becca_CramerBetsy Hicks-Russhttps://Betsyonthego.comhttps://AutismOdyssey.orgComprehensive list of studies. The site will be launched in Novemberhttps://PresumeComp.orgIf you need them earlier, email [email protected]:The skepticism surrounding telepathy often stems from a lack of understanding.Personal experiences can challenge scientific consensus.Non-local communication may offer a new framework for understanding telepathy.Trust and connection are crucial in communication with non-speakers.The scientific community has historically dismissed telepathy without thorough investigation.Parents often feel frustrated by the scientific community's dismissal of their experiences.Research on non-local communication is limited but necessary for progress.The language of spellers can be advanced despite their communication challenges.Believing in the words of non-speakers can change their treatment and understanding.The future of communication may involve new methods that transcend traditional speech.

Betsy Hicks-Russ and Natalia Meehan explore the intricate relationship between herbal medicine and autism, emphasizing the importance of gentle, holistic approaches to healing. They discuss the significance of community support, the body's innate healing abilities, and the vital role of gut health in overall well-being. The conversation also delves into the challenges of picky eating, the empowerment of parents in dietary choices, and the nourishing qualities of herbs and spices. Throughout, they highlight the connection between nature and healing, advocating for a more mindful and compassionate approach to health and nutrition.Natalia Meehan Flowering Futures https://floweringfutures.comInstagram - NataliaMeehanInstagram - TheNinaFoundationBetsy Hicks-Russhttps://BetsyOnTheGo.comhttps://AutismOdyssey.orgTakeawaysHerbal medicine can support the healing of sensitive bodies.Community and connection are vital for personal growth.The body has an innate ability to heal itself.Gut health is crucial for overall well-being.Nature provides essential healing benefits.Detoxification is important for autism support.Picky eating is often linked to gut health issues.Empowering parents can lead to better dietary choices.Flavorful herbs enhance the nutritional value of meals.Motor skills play a key role in communication for non-speakers.

Betsy Hicks-Russ and Kimber Allen, share Betsy's journey from grief to love after the sudden passing of her husband, John. She recounts how psychic medium, Kimber, connected her with John's spirit, leading to unexpected guidance and a new love with Ron. The conversation explores themes of love, loss, and spiritual connection.Kimber Allen - [email protected] Hicks-Russ - BetsyOntheGo.comAutism Odyssey - AutismOdyssey.org@BetsyOnTheGo TakeawaysBetsy Hicks-Russ shares her journey from grief to love.Kimber Allen, a psychic medium, connects Betsy with John's spirit.John's spirit guides Betsy to new love with Ron.Betsy finds peace and acceptance in her journey.The conversation explores themes of love, loss, and spiritual connection.Betsy and Kimber discuss the impact of spiritual guidance.Betsy's story highlights the power of unexpected connections.The narrative emphasizes healing and moving forward.Betsy honors her past while embracing new beginnings.The discussion reflects on the importance of love and support.

Betsy Hicks-Russ and Diana Pastora Carson explore the profound impact of sibling relationships in the context of autism. Diana shares her journey growing up with her brother Joaquin, discussing the challenges and triumphs of advocating for his inclusion and well-being. They delve into the importance of presuming competence, the evolving understanding of ableism, and the need for systemic changes in education and support systems. The discussion emphasizes the role of siblings as advocates and the spiritual journey of caregiving, highlighting the importance of community awareness and the future of disability advocacy.Diana Pastor-Carsonhttps://www.dianapastoracarson.comBetsy Hicks-Russhttps://Betsyonthego.comTakeaways*Diana emphasizes the importance of sibling perspectives in autism advocacy.*The relationship between Diana and her brother Joaquin has shaped her advocacy work.*Presuming competence is crucial for empowering individuals with disabilities.*Advocacy requires a community effort and systemic change.*Diana's journey reflects the challenges of navigating responsibilities as a sibling.*The importance of mental health support for caregivers is highlighted.*Diana believes in the spiritual journey of caregiving and learning from those with disabilities.*Awareness of ableism is essential for creating inclusive environments.*The conversation stresses the need for better housing and support systems for individuals with disabilities.*Diana's work aims to redefine disability awareness in educational settings.

Betsy Hicks-Russ and Mackenzie Frost discuss the intricacies of finding and hiring caregivers, particularly for individuals with autism. They explore the challenges and qualities that make a great caregiver, the importance of matching caregivers with clients based on personal interests, and the role of state support in caregiving. The conversation also touches on the significance of understanding and accommodating the unique needs of both caregivers and those they care for.McKenzie Frost - Serengeti Care in Bellinghamhttps://serengeticare.comBetsy Hicks-Russhttps://betsyonthego.comhttps://autismodyssey.orgTakeawaysCaregivers should be matched with clients based on shared interests.State support can be crucial in caregiving arrangements.Understanding personal interests enhances caregiver-client relationships.Caregivers with diverse backgrounds can offer unique strengths.Training programs are essential for new caregivers.Care plans should be personalized and detailed.Communication is key in managing caregiver expectations.Caregivers need to be adaptable to different situations.Hiring caregivers with lived experiences can be beneficial.Providing incentives can help retain good caregivers.

Betsy Hicks-Russ and Sarah Intonato explore the multifaceted challenges and strategies in supporting individuals with autism. They discuss the importance of self-care for parents, the role of movement and nutrition in managing behavior, and the significance of co-regulation during meltdowns. Sarah emphasizes the need for parents to take care of themselves to effectively support their children, and they both highlight the importance of building a supportive community for families navigating autism. The discussion also touches on the journey of change and growth for both parents and children, encouraging a proactive approach to parenting in the autism world.Sara Intonatohttps://www.skool.com/autismchangemakers/about?ref=91091eabcbb74826b4cb2581d181dc47Sara.Intonato Betsy Hicks-Russhttps://BetsyOnTheGo.comhttps://AutismOdyssey.orgPodcast on YouTube, Spotify, and AppleBetsyonthego - Instagram, Facebook, TikTokTakeawaysSelf-care is essential for parents to support their children effectively.Movement should be viewed as a non-negotiable part of daily life.Nutrition plays a critical role in managing behaviors in children with autism.Co-regulation is vital during meltdowns; parents must regulate themselves first.Building a supportive community can alleviate feelings of isolation among parents.Parents often need to be reminded that they are the change makers for their children.Small, consistent changes in diet can lead to significant improvements in behavior.It's important to address the emotional needs of both parents and children during challenging times.Parents should model healthy habits to encourage their children to adopt them.Communication during meltdowns should focus on reassurance and presence rather than intervention.

Brooke Wagner interviews Betsy Hicks-Russ to share her journey with her son Joey, who is non-speaking and has profound autism. Betsy discusses the transformative power of spelling as a means of communication, the challenges of apraxia, and the concept of telepathy among non-speaking individuals. She emphasizes the importance of mindfulness for parents and the need for a supportive environment to foster communication. Betsy also highlights the significance of nutrition in the well-being of autistic individuals and the evolving understanding of autism in society.Brooke Wagner - Finding Hope on the Spectrum PodcastBetsy Hicks Russ - BetsyontheGohttps://betsyonthego.comhttps://autismodyssey.orgtakeawaysBetsy Hicks-Russ is the director of Autism Odyssey, focusing on empowering autistic individuals.Joey, Betsy's son, is a non-speaking individual with profound autism, who has shown remarkable intelligence through spelling.The journey of discovering Joey's ability to communicate through spelling was filled with challenges and surprises.Apraxia is a significant barrier for many non-speaking individuals, affecting their ability to express themselves.Telepathy is a concept that many parents of non-speaking individuals are exploring, as it relates to their children's communication.The Hill is a term used by non-speaking individuals to describe a place of connection and communication beyond words.Mindfulness practices are essential for parents to create a calm environment for their children.Nutrition plays a crucial role in the well-being of autistic individuals, impacting their behavior and communication.The future of autism advocacy is shifting towards recognizing the capabilities of non-speaking individuals as leaders in communication.Betsy encourages families to explore spelling as a communication method and to seek proper guidance from practitioners.

Betsy Hicks-Russ and April Katz discuss the importance of movement and outdoor activities for individuals of all abilities, particularly those with autism. They explore creative approaches to engaging children in sports like cycling, pickleball and hiking, emphasizing the significance of midline crossing and the benefits of weighted vests during physical activities. April shares insights from her work with the Airow Project, a nonprofit focused on adaptive recreation, and encourages parents to seek community support and resources for their children. The discussion highlights the joy of movement, the need for inclusive opportunities, and the power of friendship in advocacy.Coach April Katzhttps://www.theairowproject.orgInstagram/Tiktok/Facebook - coach_aprilkatzInstagram - the_airow_projectBetsy Hicks Russhttps://betsyonthego.comhttps://AutismOdyssey.orgInstagram/Tiktok/Facebook - BetsyonthegoSpotify/Apple - Autism Odyssey TakeawaysMidline crossing is crucial for physical coordination.Pickleball can be adapted for individuals with disabilities.Movement is essential for learning and development.Outdoor activities provide sensory feedback and engagement.Weighted vests can enhance hiking experiences.Community support is vital for adaptive recreation.Parents should not apologize for their child's behavior.The Arrow Project aims to create inclusive opportunities.Adventure caregivers can make a significant impact.Every child has unique challenges that require understanding.

Betsy Hicks-Russ and Regan Larson discuss the importance of radical inclusion and presumed competence in the context of autism advocacy. They explore the journey into spelling therapy, the challenges faced by parents and children, and the role of schools in supporting spellers. The discussion also delves into ableism, the significance of communication, and the contrast between grievance parenting and gratitude advocacy. Additionally, they highlight the benefits of the Autistic Be Kind vest and the concept of motor coaching to aid in purposeful movement for children with autism.Regan Larson - Instagram and Tiktok - ReganAdvocates and WatchGigiSpellBetsy Hicks-Russ - https://BetsyOnTheGo.comtakeawaysRadical inclusion is essential for effective communication.Presuming competence means believing in a child's abilities.Spelling therapy can be a transformative journey for families.Ableism is a pervasive issue that needs addressing.Grievance parenting can hinder positive advocacy.The Autistic Be Kind vest promotes understanding in public spaces.Motor coaching helps children with autism navigate tasks more effectively.Listening is a powerful tool for spellers to learn and grow.Parents must lead by example in advocating for their children.Community support is vital for navigating the challenges of autism.

Lauren Flack shares her journey of creating the Channing's Joy Foundation after her son Channing's autism diagnosis. She discusses the emotional challenges she faced and how she transformed her grief into action by supporting families. The conversation delves into the importance of communication, understanding apraxia, and the various therapies that have helped Channing. Lauren also highlights the significance of community support and shares personal anecdotes about daily life with autism, including the joy found in simple activities and indulgent snacks.Lauren Flackhttps://www.channingsjoy.com/Instagram and Tiktok - LaurensFlackPodcast - Our First RodeoBetsy Hicks-Russhttps://betsyonthego.comInstagram, Facebook & Tiktok - BetsyonthegoPodcast also on Spotify and AppletakeawaysChanning's Joy Foundation was born from personal grief.Transforming challenges into positive actions is empowering.Supporting families through therapy is crucial.Communication with autistic children can take many forms.Understanding apraxia is essential for effective support.Therapies like OT and speech are vital for development.Purposeful movement aids in communication skills.Daily life with autism involves unique challenges and joys.Community support can make a significant difference.Indulgent snacks can bring joy and connection.

Betsy Hicks-Russ and Becky Robbins explore the profound impact of parental mood on children, particularly those with autism. They discuss the importance of prioritizing serenity over happiness, the tools for achieving inner peace, and the significance of creating a personal document for self-growth. The dialogue also delves into the challenges of maintaining identity beyond motherhood, breaking free from the victim-villain cycle, and the necessity of grounding practices. Ultimately, they emphasize the importance of participating in one's own rescue and sustaining joy amidst life's inevitable contrasts.Betsy Hicks-Russ and Becky Robbins explore the profound impact of parental mood on children, particularly those with autism. They discuss the importance of prioritizing serenity over happiness, the tools for achieving inner peace, and the significance of creating a personal document for self-growth. The dialogue also delves into the challenges of maintaining identity beyond motherhood, breaking free from the victim-villain cycle, and the necessity of grounding practices. Ultimately, they emphasize the importance of participating in one's own rescue and sustaining joy amidst life's inevitable contrasts.https://beckyrobbins.com/  @everythingbecky  YouTube, Facebook and Instagramhttps://BetsyOnTheGohttps://autismodyssey.org/@Betsyonthego YouTube, Instagram, Facebook, TiktoktakeawaysParents' mood significantly affects their children's well-being.Serenity is a more attainable goal than constant happiness.Practices like heart math can help achieve inner peace.Creating a personal document can clarify one's identity and goals.Mothers often lose their sense of self in parenting.Breaking the victim-villain cycle is essential for personal growth.Grounding practices can stabilize emotional well-being.Self-care should not feel like an added burden.Drama in life can distract from personal happiness.Embracing hard work leads to personal satisfaction and growth.

Betsy Hicks-Russ and Tara Reynolds explore the themes of autism advocacy, the importance of language and messaging, and the concept of presumed competence. They discuss the challenges of parenting children on the autism spectrum, the significance of community support, and the impact of social media on sharing experiences. The conversation also touches on lighthearted moments, travel aspirations, and humorous parenting stories, all while emphasizing the need for understanding and compassion in the autism community.Tara Reynoldshttps://www.peaceloveautism.comBetsy Hicks-Rushttps://stan.store/BetsyOnTheGoTakeawaysThe importance of language in autism advocacy.Messages on clothing can silently advocate for autism awareness.Presumed competence is a crucial concept in understanding autism.Energy and connection play a significant role in communication.Parenting children with autism comes with unique challenges.Community support is vital for parents of autistic children.Sharing stories helps expand knowledge and understanding.Social media can be a powerful tool for connection and learning.Humor can be found in the challenges of parenting.Traveling with children on the spectrum requires careful planning.

Betsy Hicks-Russ and Libby Ingram, from The Telepathy Tapes, explore the profound connection between telepathy and spelling methods for individuals with autism. They discuss various spelling programs, the journey of Libby's son John Paul, and the impact of telepathy on communication and parenting. The conversation delves into the controversies surrounding telepathy, the importance of community support, and the need for collaboration in advocating for these methods. Ultimately, they emphasize the significance of understanding and embracing the unique abilities of individuals with autism.Libby Ralston IngramLoveLikeJohnPaul on Instagram/Facebookhttp://www.LoveJohnPaul.orgBetsy Hicks-RussBetsyOntheGo.comAutism Odyssey.orgTiktok/Instagram/Facebook - BetsyOntheGoTakeawaysTelepathy plays a crucial role in communication for individuals with autism.Different spelling methods have unique benefits and challenges.John Paul's journey highlights the importance of finding the right communication method.Parents must trust their instincts and support their children's unique needs.Telepathy can enhance the understanding of children's thoughts and feelings.Community support is essential for advocating for effective communication methods.The controversy surrounding telepathy often stems from a lack of understanding.Energy and vibration significantly impact communication and relationships.Collaboration among parents and practitioners can lead to better outcomes for children.It's important to embrace the unique abilities of individuals with autism.

Join Betsy Hicks-Russ and Dr. Lindy Woodard as they explore holistic approaches to pediatric care, emphasizing natural remedies and the importance of nutrient-dense diets. Discover how to support children's health without relying solely on medication, and learn about the benefits of homeopathy, essential oils, and the power of nature.Dr. Lindy Woodard - Pediatric Alternatives, Mill Valley, CAWeston A Price - WestonAPrice.orgBetsy Hicks-RussBetsyOntheGo.comInstagram, Facebook, Tiktok, YouTube and Apple Podcast

Betsy Hicks-Russ and Lucy Biggers explore the challenges of navigating differing opinions while advocating for understanding and compassion in conversations. They talk about the importance of community and dialogue in the autism advocacy space, discussing the polarization that has emerged in recent years. They emphasize the need for open-mindedness, the impact of social media algorithms on beliefs, and the significance of personal experiences in shaping perspectives.Lucy Biggers - Tiktok and Instagram - LucyBiggersThe Free Press - http://theFP.comBetsy Hicks Russ - http://Betsyonthego.comTakeawaysThe autism community has become increasingly divided over differing opinions.It's essential to recognize that differing opinions do not make someone a bad person.Dialogue is crucial for overcoming polarization and fostering understanding.Group loyalty can hinder open discussions, especially in political contexts.Personal experiences shape our beliefs and can lead to growth and change.Algorithms can create echo chambers that reinforce our beliefs.Engaging in real-world conversations can help bridge divides.Modeling humility and openness can inspire others to do the same.Activism should be balanced with personal well-being and self-care.It's okay to not have an opinion on every issue; focus on what matters to you.

Betsy Hicks-Russ and Natalie discuss the impact of diet on autism, particularly focusing on picky eating and the journey of making dietary changes. They explore the mindset needed to overcome challenges, the importance of ingredients in cooking, and strategies for incorporating healthier options into meals. The discussion emphasizes the significance of gut health, the balance between snacking and meals, and the empowerment of children in meal planning. They also highlight the role of community support through initiatives like Beyond the Label, which aims to create inclusion for families with disabilities.Natalie Luna Beyond the LabelInstagram/Facebook - Beyondthelabel_napaBetsy Hicks-Russhttps://betsyonthego.comBetsyontheGo - Instagram/Tiktok/FacebookTakeaways*Autism and diet are interconnected, with dietary changes showing potential benefits.*The journey of changing a child's diet can begin with small, manageable steps.*Mindset plays a crucial role in overcoming challenges related to picky eating.*Ingredients matter; quality ingredients lead to better meals.*Involving children in meal planning can empower them and make them more open to trying new foods.*Gut health influences cravings and dietary choices, impacting overall health.*Snacking habits can affect meal times and hunger levels; balance is key.*Creative cooking can help disguise vegetables and make meals more appealing.*Community support is vital for families navigating dietary changes and autism.*Progress in dietary changes is often gradual and requires patience.

Betsy Hicks-Russ and Eileen Himel explore the profound impact of non-speaking autistic individuals on human consciousness and collective awareness. They discuss the importance of understanding that many of the non-speakers are "Un-Conditionable" and the strong role they play in the expansion of human kind. The dialogue emphasizes the significance of intentional communication, authenticity, and the challenges of societal conditioning, ultimately leading to a deeper understanding of trust and personal expansion.Eileen Himel Autism.Get.In.Tune on Tiktok and InstagramBetsy Hicks-RussBetsyOneTheGo.comTakeawaysThis is an incredible time to be alive as non-speaking individuals have a voice.Autistic individuals are raising human consciousness to a new level.Understanding autism requires a shift in perception and approach.The journey of autism is filled with beauty and purpose.Vibrations of truth are held by non-speaking individuals.Unconditional love is a key aspect of their existence.We must stop comparing suffering and focus on individual growth.Raising our vibration helps connect with our children.Perception shapes our reality and experiences.Authenticity is crucial in overcoming societal conditioning.

The Telepathy Tapes contributor, Katie Asher explores with Betsy Hicks-Russ, the profound connections between sensory perception, emotional intelligence, and the unique experiences of non-speaking individuals. They discuss the importance of advocacy for spellers, the flaws in traditional education systems, and the need to focus on individual strengths rather than deficits. The conversation also delves into the tools and techniques that can enhance communication and the power of love and forgiveness in overcoming adversity.Katie Asher - The Book of Heaven: A Story of Hope for the Outcasts, the Broken, and Those who lost [email protected] Hicks-Russ - BetsyOnTheGo.comKatie Asher emphasizes the interconnectedness of sensory perception and emotional experience.The importance of understanding individual strengths rather than focusing on deficits is highlighted.Advocacy for spellers is crucial in ensuring their communication rights are recognized.Traditional education systems often fail to accommodate diverse learning needs.Motor and sensory integration is essential for effective communication in spellers.Meditation can help quiet the mind for better communication with non-speaking individuals.Tools like vibration plates can aid in sensory awareness and integration.Unreliable speakers often struggle with anxiety due to their inability to control their speech.The spiritual experiences of individuals with disabilities can provide profound insights into their understanding of the world.Love and forgiveness are powerful forces that can help individuals overcome adversity.

Betsy Hicks-Russ and Austin Moore delve into the world of spelling as a means of communication for non-speaking individuals. They explore the shared experiences within the Spellers community, the journey of becoming a practitioner, and the importance of presuming competence in individuals with autism. The discussion highlights the power of open communication, the challenges of understanding the spectrum, and the spiritual aspects of connecting with individuals through spelling. They also touch on future aspirations for community growth and the need for more research and support in this field.@spellingmoore on Instagram, Tiktok, Xhttps://reclif.com/https://Betsyonthego.com There's a strong connection among practitioners and parents in the Spellers community.Becoming a practitioner requires letting go of preconceived notions about autism.Presuming competence is crucial for effective communication with non-speaking individuals.Open communication is a skill that develops over time and requires patience.Every individual's journey in spelling is unique and should not be compared to others.Mistakes in spelling are part of the learning process and should be embraced.Telepathy and energy play a significant role in communication with spellers.The spiritual aspect of communication can enhance the connection with individuals.Community support and education are vital for the growth of the Spellers movement.Future aspirations include expanding access to training and resources for practitioners.

Betsy Hicks-Russ welcomes back Meghann Parkinson to discuss Spelling to Communicate (S2C). They explore who is a candidate for S2C, the importance of presuming competence in non-speakers, and how dysregulation can affect communication. Meghann shares insights on the role of AAC devices, the significance of regulation in learning, and the journey of developing reading and spelling skills. They also discuss the importance of finding the right practitioner and the frequency of practice for optimal outcomes.I-asc.org to learn more about Spelling to Communicate or S2Cmega_does_s2c - to follow Meg on InstagramBetsy  ⁨@betsyonthego⁩  on Tiktok, Instagram and Facebookwebsite BetsyOnTheGo.com*Candidates for S2C are those who do not primarily use speech.Dysregulation does not preclude a child from being a candidate for S2C.*Listening does not have a specific look; engagement can vary.*Building a respectful relationship with spellers is crucial.*S2C allows for deeper communication beyond basic needs.*AAC devices serve a different purpose than S2C.*S2C can be effective for various disabilities, including Down syndrome.*Unreliable speech does not disqualify a child from S2C.*Reading skills can develop alongside spelling skills.*Practicing spelling regularly enhances communication skills.

Betsy Hicks-Russ and Iris Wong explore the concept of executive functioning, its importance in the context of autism, and how it relates to health and well-being. They discuss the significance of understanding individual differences in executive functioning, the role of diet, and the gut-brain connection. The conversation emphasizes the need for a supportive toolkit for caregivers and the importance of awareness in making dietary changes. Personal experiences and insights are shared, highlighting the journey of navigating executive functioning challenges.Host Info: Betsy [email protected] Info: Iris WongEFToolkit.com@EftoolkitTakeawaysExecutive functioning is crucial for caregivers to understand.Health and well-being are interconnected with executive functioning.Individual differences in executive functioning must be acknowledged.A supportive toolkit can help manage executive functioning challenges.Diet plays a significant role in behavior and executive functioning.The gut is often referred to as the second brain.Gentle detoxification methods are essential for health.Awareness of dietary impacts can motivate change.Rest is a vital component of managing executive functioning.The journey of learning and sharing experiences is important.

Betsy Hicks-Russ interviews Martha Castillo, who shares her journey as a mother navigating the complexities of raising her son Matthew, who was diagnosed with autism and Phelan McDermid syndrome. Martha discusses the challenges of early diagnosis, the importance of community support, and the emotional toll of regression in communication. They explore the dynamics of friendships, the impact of public perception, and the significance of dietary changes in managing health. The conversation emphasizes the need for understanding and compassion within the special needs community.https://pmsf.org/phelan-lucky/ Find Martha on Instagram - TeamMatthewLuisMartha was given a diagnosis for her son Matthew at 20 months.She pursued further testing, leading to a diagnosis of Phelan McDermid syndrome.Community support has been crucial for Martha and her family.Regression in communication is a significant challenge for children with PMS.Support groups can be hit or miss for parents of special needs children.Friendship dynamics change when navigating special needs parenting.Public perception can be daunting, but most people are not judging.Dietary changes have led to significant health improvements for Matthew.Martha emphasizes the importance of presuming competence in nonverbal children.The Phelan Lucky campaign has raised over $1 million for the Phelan McDermid Syndrome Foundation.

Betsy Hicks-Russ and Pam Blanton discuss the complexities of housing for adults with disabilities, focusing on the steps families can take to navigate the system. They cover essential topics such as applying for Social Security, understanding state services, exploring various housing options, finding caregivers, and planning for the future. The discussion emphasizes the importance of affordability, the role of Partners for Housing, and the benefits available to families. They also highlight the significance of roommate matching and the emotional aspects of transitioning to independent living for individuals with disabilities.Partners 4 Housinghttps://partners4housing.com/Start the housing journey by applying for Supplemental Security Income (SSI).Medicaid services are automatically available with SSI approval.Each state has different programs for developmental disabilities services.Families can receive support even without state aid.Social Security application processes have become more challenging recently.Affordable housing options vary widely and should be customized to individual needs.Shared living arrangements can provide companionship and reduce costs.Finding and retaining caregivers is a significant challenge for families.Planning for the future is crucial for families of individuals with disabilities.Section 8 housing can provide long-term affordability for families.

Betsy Hicks-Russ and Julianne King discuss their journeys as mothers of children with autism, focusing on the transformative power of spelling as a means of communication. They share personal stories about their sons, Beau and Joey, exploring the challenges and triumphs they face in advocating for their children's voices. The discussion highlights the importance of community support, the dreams and aspirations of non-speakers, and the need for continued advocacy and resources in the autism community.https://hawaiiautismfoundation.orgThe journey of understanding non-verbal children begins with open communication.Spelling can be a powerful tool for non-speakers to express themselves.Every child’s journey with autism is unique and requires patience.Advocacy is crucial for non-speakers to have their voices heard.Parents play a vital role in supporting their children's communication efforts.Building a community of support can help families navigate challenges.Dreams and aspirations of non-speakers should be prioritized and encouraged.Criticism from outsiders can be a barrier to progress for families.Telepathy and connection among non-speakers can enhance understanding.Training and resources are essential for effective communication strategies.

Betsy Hicks-Russ and Andrea Arlotti discuss the challenges faced by caregivers of children with autism, emphasizing the need for community support and self-care. They introduce their upcoming Be Nourished Retreats aimed at providing healing, balance, and connection for mothers. The discussion covers the importance of nutrition, laughter, and movement in maintaining well-being, as well as the significance of understanding the nervous system and co-regulation. They also explore the potential for expanding their retreat offerings globally, inviting caregivers to join them in this transformative experience.Be Kind Retreat - BetsyOnTheGo.comhttps://infinitepossibilitieshealing.comInstagram/Facebook - AndreaArlottiHealingTakeaways:Caregivers often face overwhelming challenges when raising children with autism.Community support is essential for caregivers to thrive.Retreats can provide a much-needed break and healing for mothers.Nutrition plays a crucial role in overall well-being and energy levels.Laughter is a powerful tool for healing and connection.Understanding the nervous system is key to managing stress and anxiety.Movement and physical activity are vital for maintaining energy and health.The retreats aim to create a safe space for mothers to relax and recharge.Expanding the retreat experience globally can help more caregivers.Self-care is not selfish; it's necessary for effective caregiving.

Betsy Hicks-Russ and Raj Khedun explore the significance of mindfulness and breathing techniques, particularly for parents of autistic children. Raj shares his personal journey and insights on how breath can enhance consciousness and well-being. They discuss practical techniques that can be easily integrated into daily life, emphasizing that mindfulness does not require a specific setting or extensive time commitment. The conversation highlights the interconnectedness of all beings and the importance of quieting the mind to foster better connections with oneself and others. In this conversation, Raj Khedun and Betsy Hicks-Russ explore the transformative power of breathwork and mindfulness techniques. They discuss the physiological and emotional benefits of breathwork, the challenges of managing the 'monkey mind', and the importance of teaching mindfulness to children. The conversation also delves into practical strategies for addressing insomnia and enhancing overall well-being through simple yet effective techniques. The episode concludes with resources for further learning and support.https://keepfitkingdom.comRoom 2 Breathe - MarleenBetsy Hicks-RussAutism Odyssey - AutismOdyssey.orgBetsyOnTheGo.comBetsyOnTheGo on Tiktok, Instagram, and FacebookAutism Odyssey Podcast also on Spotify and AppleTakeaways:Breathing techniques can help parents connect with their children.Mindfulness can be practiced in short, everyday moments.Breath is essential for life and consciousness.Understanding breath can enhance mental clarity and emotional stability.You don't need a special environment to practice mindfulness.Simple breathing exercises can be done anywhere, anytime.The breath can activate the body's relaxation response.Mindfulness practices can lead to better relationships.Quieting the mind can improve overall well-being. Breathwork can induce feelings of euphoria and calm.The 'monkey mind' can be quieted through mindfulness techniques.Listening to positive content can shape our experiences.Teaching children mindfulness can help manage emotional meltdowns.Breath work can be a powerful tool for relaxation and meditation.Insomnia can be addressed through breath work and lifestyle changes.Mindfulness practices can enhance connections with others.The vagus nerve plays a role in emotional regulation.Simple techniques can unlock mental clarity and focus.Creating a routine can help establish mindfulness practices.

Betsy Hicks-Russ and speech and language therapist, Megan Harcourt discuss the evolving landscape of speech therapy, particularly in relation to autism. They explore the role of ASHA, the importance of holistic approaches, and the impact of gut health on communication. Megan shares her personal journey and realizations in the field, emphasizing the need for a more integrated approach to therapy that considers the whole child and their environment. The discussion also touches on the significance of community support, the challenges parents face, and the importance of understanding behavioral impulses in children with autism.

Betsy Hicks-Russ and Rachel Winder of Auticulate, explore the complexities of autism from an autistic perspective. They discuss various topics including the importance of presuming competence, the challenges of sensory overload, and the nuances of meltdowns. Rachel shares her insights on ground-up thinking versus top-down thinking, the role of humor in managing stress, and the significance of understanding triggers. The conversation emphasizes the need for empathy and support for autistic individuals, particularly during challenging moments. In this conversation, Rachel Winder and Betsy Hicks-Russ delve into the complexities of neurodiversity, focusing on autism and ADHD. They explore the emotional and sensory experiences of individuals with these conditions, discussing coping mechanisms for meltdowns, the significance of breath in calming techniques, and the challenges of transitioning between activities. The discussion also highlights the concept of looping in thoughts and sounds, sensory processing, and the importance of routines for neurodivergent individuals. Rachel shares her personal experiences and insights, emphasizing the need for understanding and support in navigating daily life as a neurodivergent person.www.Auticulate.co.uk@Auticulate on Tiktok and Twitter

Betsy Hicks-Russ and Carrie Kane discuss the complexities of picky eating, its causes, and solutions. They explore the impact of the food industry on children's eating habits, the importance of understanding the parent-child dynamic in food choices, and the significance of allowing children to make their own food decisions. They emphasize the need for a balanced diet, the role of hunger, and the importance of empowering kids to make healthier choices.

Betsy speaks with Tara Reynolds, founder of Peace, Love, Autism, about her journey from a corporate career to creating a supportive community for families with autistic children. They discuss the challenges and joys of entrepreneurship, the importance of social media in building connections, and the creative inspirations behind Tara's fashion brand. The conversation highlights the need for community support, the significance of in-person connections, and the ongoing journey of personal growth and resilience in the face of challenges.PeaceLoveAutism.com@tarareynoldz - Instagram/Facebook@peaceloveautism - Tiktok

In this conversation, Betsy Hicks-Russ and Dr. Taylor Day delve into the evolving landscape of autism and mental health, discussing the importance of neurodiversity, the challenges of evidence-based practices, and the significance of lived experiences. They explore the role of social media in shaping perceptions, the complexities of diagnostic criteria, and the value of therapy for non-speaking individuals. The discussion emphasizes the need for a holistic understanding of autism, including co-occurring conditions and the impact of apraxia, while advocating for a more inclusive and affirming approach to [email protected]

Join Betsy as she speaks with Rev Meg Hammarsten about the fascinating intersection of consciousness and telepathy, exploring how everyone possesses this inherent ability and the practical steps to develop it. We delve into lucid dreaming as a gateway to telepathic experiences and discuss how these abilities may manifest uniquely in autistic individuals. Our conversation reveals how various spiritual traditions across cultures have referenced telepathic phenomena through different languages and frameworks, suggesting a universal human capacity waiting to be [email protected] on Instagram and TikTok Website ReverendMeg.com

Betsy engages with expert practitioners Hiraman and Clara to explore the therapeutic benefits of craniosacral therapy and its characteristic gentle, hands-on approach. The conversation delves into powerful techniques for calming the nervous system through subtle touch, breath work, and stillness that makes this modality so effective. Parents and caregivers will particularly benefit from the discussion on cultivating personal calm—a foundational skill that, alongside craniosacral's gentle techniques, positively impacts those in their care.

Join me as I explore the transformative world of spelling to communicate with my guest Meg Parkinson from Spelling 2 Communicate. Learn about presuming competence, session expectations, and the journey from letter boards to keyboards through real-life examples from my son Joey, an autistic open speller who now freely expresses his thoughts and opinions. This podcast offers practical insights for parents, educators, and anyone interested in alternative communication methods for non-speaking individuals.

Betsy Hicks-Russ and her guest, author, Michelle O'Neil explore the nuanced world of friendships among mothers of autistic children, highlighting the diverse types of connections that form through shared experiences. It offers insights into the various places these meaningful relationships begin—from support groups to school events—and provides practical advice for nurturing these vital connections.

Discover the comprehensive world of housing options available for adults with disabilities in this informative episode featuring housing experts Pam and Jamie from Partners 4 Housing. Learn how to navigate government assistance programs and maximize available benefits to create sustainable living situations for your loved ones. The episode explores the concept of family-driven housing models, with valuable insights from both industry professionals and real-world experience. Join us as we share a personal journey of creating a home for Joey, an autistic adult, and gain practical knowledge you can apply to your own family's housing search.

In this intimate and revealing episode, I sit down with my daughter to explore the often-overlooked perspective of siblings growing up alongside autism. Through our candid conversation, we uncover her complex emotions, challenges, and profound insights from childhood as the sister of an autistic brother.From her early memories of confusion and adjustment to her evolved understanding as an adult, my daughter's story illuminates the unique path siblings walk—balancing their own needs while growing up in a family deeply impacted by autism. Her reflections offer valuable insights into how this experience has influenced her worldview, relationships, and the adult she's become.This episode provides a thoughtful exploration of family dynamics, personal growth, and the lasting impact of growing up alongside autism, offering both validation for siblings on similar journeys and understanding for parents navigating these family dynamics.

In this intimate conversation, we sit down with Ron, who became Joey's stepfather at age 58, discovering an unexpected and profound connection that would transform both their lives. Through candid discussion, Ron and I share our parallel journeys of loving and supporting Joey, a 31 year old autistic man, whose presence has enriched our lives in countless ways. We explore the challenges we've weathered together and the unique ways we stay connected. This episode is a testament to the power of unconditional love, proving that meaningful connections can blossom at any age and that sometimes life's most beautiful chapters begin when we least expect them.

Created with the warmth of a fireside chat, this podcast offers a gentle, blame-free space for exploring autism awareness and understanding. Betsy candidly shares her personal evolution from previously held misconceptions about her son's capabilities to discovering his full awareness, intelligence, and personality. Rather than dwelling on past regrets, she focuses on present opportunities for growth and change, offering practical guidance and support to other caregivers of autistic individuals. Together with her guests, Betsy works to challenge outdated beliefs about autism while creating a compassionate space for learning and transformation.