Beyond the Bleeds

Today on Beyond the Bleeds, Heather is joined by stand-in co-host Erica for a conversation with Angie Farrar, lead nurse coordinator from our Wausau clinic, about recognizing the early signs of a bleed and why acting early matters. From joint bleeds and muscle bleeds to injuries that may seem minor at first, Angie shares what patients and families should watch for, including pain, swelling, warmth, tingling sensations, and changes that just don’t feel normal. The conversation also explores why early treatment can help prevent complications and why calling your HTC sooner rather than later is always the best approach. Heather, Erica, and Angie also discuss how bleed symptoms may show up differently in young children, why some symptoms can be easy to overlook, and how patients can become more aware of changes in their bodies over time. This episode is a reminder that when something feels off, trust your instincts and reach out. Early detection can make all the difference. “If it doesn’t feel normal, call us. We’d rather talk through it together than have someone wait too long.” — Angie Farrar This episode of Beyond the Bleeds explores: Early signs and symptoms of a bleed How joint and muscle bleeds may feel different Why early bleed detection matters What parents should watch for in young children When to call your HTC and why “wait and see” can be risky How awareness and education support better outcomes Find an HTC Near You: If you are not connected to a Hemophilia Treatment Center, the CDC’s Hemophilia Treatment Center Directory can help you locate specialized bleeding disorders care near you. Search by state, city, or center name to find an HTC and care team in your area. <iframe width="600" height="338" src="https://www.youtube.com/embed/gZXrOyne9lI?si=H12t9xu4xVYZ8dWW" frameborder="0" allowfullscreen> Looking for practical tips, expert advice, and a sense of community while living with or supporting someone with a bleeding disorder? Subscribe to Beyond the Bleeds, the podcast that explores life with hemophilia, von Willebrand disease, and other rare conditions. Hosted by Heather Hansen and John Mazzariello, we share real stories and helpful conversations to support families at every stage. Apple | Spotify | iHeart | Amazon Music | Pandora | Deezer | YouTube The post Recognizing the Signs of a Bleed and Knowing When to Act with Angie Farrar appeared first on Hemophilia Outreach Center.

Today on Beyond the Bleeds, John and Heather welcome Jamison Buxton, CEO of the Hemophilia Outreach Center in Green Bay, Wisconsin, to discuss his journey from a parent of a child with hemophilia to leading an organization dedicated to supporting those with bleeding disorders. Jamison shares his personal experiences, the center's growth, and the importance of community and comprehensive care for individuals and families managing hemophilia. Jamison Buxton became deeply involved in the hemophilia community after his son was diagnosed with hemophilia B in 2003. His commitment led him to join the board of directors in 2012, and by 2016, he assumed the CEO role. Under his leadership, the center has expanded significantly, serving an even larger patient population and providing crucial support and resources to those affected by bleeding disorders. "I wanted to ensure that patients and families had the same care and services that I was offered in raising my son." ~ Jamison Buxton Today on Beyond the Bleeds: ·     Early involvement with a hemophilia treatment center can provide essential information and support for navigating the challenges of a bleeding disorder.·     It is important for parents to document everything to explain their child's condition and any bruises or injuries that may appear.·     Opening a new clinic in Wausau provides patients with local access to care, reducing the need for long-distance travel.·     The expansion of the Green Bay clinic was driven by a need to accommodate a growing patient population.·     Strategic planning with the board of directors ensures that the center meets future demands and continues providing high-quality care.·     Experiencing the challenges of having a child with a bleeding disorder gives Jameson a personal perspective that influences how he leads the organization.·     Having a mix of employees with and without personal connections to bleeding disorders enriches the team and enhances patient care.·     Finding a hemophilia treatment center near you is crucial for accessing specialized care and support. Guest Contact Information: Jamison Buxton: https://hemophiliaoutreach.org/contact-us Resources Mentioned: Hemophilia Outreach Center: https://hemophiliaoutreach.org CDC Hemophilia Treatment Center Directory: https://www.cdc.gov/ncbddd/hemophilia/HTC.html  Looking for practical tips, expert advice, and a sense of community while living with or supporting someone with a bleeding disorder? Subscribe to Beyond the Bleeds, the podcast that explores life with hemophilia, von Willebrand disease, and other rare conditions. Hosted by Heather Hansen and John Mazzariello, we bring you real stories, expert insights, and heartfelt conversations designed to help you navigate life Beyond the Bleeds. Apple | Spotify | iHeart | Amazon Music | Stitcher | Pandora | Deezer  Don’t miss out on the Hemophilia Outreach Center’s Winter Education Program on December 7th, 2024, at the Oneida Hotel in Green Bay! With inspiring presentations, fun activities for kids, and a special visit from Santa, it’s an event you won’t want to miss! Visit:  https://www.hemophiliaoutreach.org/events  to register today.

Welcome to Beyond the Bleeds! In this very first episode, John and I are excited to introduce ourselves and lay the foundation for a community centered around life with bleeding disorders. Whether you're managing hemophilia, von Willebrand disease, or any rare bleeding condition, this space is for you. We'll dive into personal stories, medical insights, and the latest in treatment advancements, fostering an environment where you feel heard and supported. Join us as we walk you through our mission to make life with bleeding disorders not just manageable, but powerful.  "Inspired Stories of resilience and hope can make a world of difference when living with a bleeding disorder." ~John Mazzariello “A community where you feel heard, understood, and empowered is a crucial part of managing bleeding disorders.” ~Heather Hansen  Today on Beyond the Bleeds: ·     Understanding that living with a bleeding disorder often means overcoming unique physical and emotional challenges.·     Connecting with others who share similar experiences can provide crucial support.·     Ongoing advancements in medical research are continually improving the quality of life for those with bleeding disorders.·     Access to updated treatment options and professional advice is key to effective management.·     Stories of resilience inspire hope and remind us that we can lead powerful lives.·     Managing a bleeding disorder involves navigating healthcare systems, which can be complex and daunting.·     Practical tips and resources can significantly aid in day-to-day management.·     Our primary goal is to cultivate a sense of community and empowerment for all listeners. About your hosts of Beyond the Bleeds: Heather HansenProgram/Communications CoordinatorHeather joined HOC as the Program/Communications Coordinator in July 2023. With a bachelor’s degree in social work from UW-Green Bay, she brings over 20 years of experience in social work, particularly in the HIV/AIDS community and foster care/adoption. Heather has extensive experience in program development and communications, including social media and newsletters.Heather lives near Lake Michigan with her children and two Boxer dogs, Gypsy and Boston. In her free time, Heather enjoys reading, traveling, and kayaking. As a cohost of "Beyond the Bleeds," she’s excited to bring new education and fun to the HOC community.John B. Mazzariello LPNResearch Coordinator A former International Certified Arborist, John moved to Wisconsin in 2005 from the Pacific Northwest and began his nursing career shortly thereafter. He has been a lab technician and Research Coordinator with The Hemophilia Outreach Center since 2016. Outside of the clinic, John plays guitar with several local music groups and hosts a YouTube channel focused on sports card and memorabilia collecting.  Resources Mentioned: Hemophilia Outreach: https://hemophiliaoutreach.org Stay tuned, subscribe, and join us as we explore the many facets of life with bleeding disorders, making sure that life beyond the bleeds is brighter and more empowered for all.