Bruised But Not Broken: Living with ITP

In recognition of Lupus Awareness Month, this episode explores the important connection between lupus and immune thrombocytopenia (ITP), two autoimmune conditions that can sometimes overlap. Host Barbara Pruitt is joined by guests Cathy Aldama and Beth Siegelbaum, who share their personal journeys to diagnosis, the challenges of managing both conditions, and how their experiences have evolved over time. From unexpected symptoms and second opinions to treatment decisions and day-to-day realities, their stories highlight just how different each path can look. You’ll also hear powerful insights on self-advocacy, working with the right doctors, and why education is key to living well. Whether you’re newly diagnosed or have been navigating ITP or lupus for years, this conversation offers reassurance, perspective, and practical takeaways you won’t want to miss.

If treating pediatric ITP can sometimes feel like trial and error, this episode helps explain why—and what’s being done to change that. Host Barbara Pruitt talks with Dr. Kristin Shimano about the growing role of collaboration in advancing research, improving treatment decisions, and focusing not just on platelet counts, but on quality of life for patients. You’ll get an inside look at how specialists are working together across North America to better understand this rare disease and what that means for families searching for answers and hope.

When a small shaving cut wouldn’t stop bleeding, Michael Barden had no idea it would lead to a life-changing diagnosis of immune thrombocytopenia (ITP) and later, Evans syndrome. In this powerful episode, Michael shares the shocking moment police were sent to his home because his platelet count had dropped to 3,000, multiple extended hospital stays, ICU admissions, transfusions, and the emotional toll of living between unpredictable lab numbers. But this is more than a medical story. It’s about resilience, becoming your own advocate, educating doctors, supporting the rare disease community, and finding purpose through PDSA and volunteer work. Michael’s honesty about fear, frustration, and hope makes this an episode you won’t want to miss.

In this episode of Bruised but Not Broken: Living with ITP, host Barbara Pruitt is joined by PDSA leaders Peter Pruitt and Derek Zimmerman for a behind-the-scenes look at how the organization is run and why strong leadership matters to patients. The conversation explores what a nonprofit board of directors actually does, how PDSA has grown into a trusted advocate for the ITP community, and how lived patient experience helps guide advocacy, research, and long-term impact—offering listeners insight, reassurance, and a deeper understanding of the work happening on their behalf.

This episode dives into one of the most common—and most confusing—questions people with ITP ask: Why do I have it, and could it be inherited? Dr. Michele Lambert, a leading pediatric hematologist and expert in platelet disorders, breaks down the difference between inherited thrombocytopenia and immune-mediated ITP in clear, relatable terms. She explains how genetics, immune system “confusion,” family history, and targeted testing all play a role in getting the right diagnosis—and why that matters for choosing the most effective treatment. Whether you’re newly diagnosed or have lived with ITP for years, this conversation offers eye-opening insights, practical takeaways, and real hope for more personalized care in the future.

In this episode, Barbara Pruitt sits down with pediatric hematologist Dr. Rachael Grace to take the mystery out of clinical trials for ITP. Dr. Grace explains what clinical trials are, how they differ from standard treatment, and why both research studies and clinical trials play a crucial role in improving care. They discuss when a clinical trial might be a good option; common concerns patients have, what participation actually looks like, and how research has already shaped major advancements in ITP treatment. Whether you’re curious about future options, want to help move ITP research forward, or simply want to better understand what your hematologist might be recommending, this episode offers clarity, reassurance, and insight straight from an expert.

In this inspiring episode of Bruised but Not Broken: Living with ITP, meet Wyatt Critchfield, a ninth-grade ITP warrior, and his mom, Brittany, as they share how a love for cars turned into a powerful fundraiser for the Platelet Disorder Support Association. From organizing their first car show and raising $1,000, to spreading awareness in their community and connecting with others living with blood disorders, Wyatt and Brittany open up about the challenges and triumphs of life with ITP. You’ll hear Wyatt's perspective on living with weekly treatments, Brittany's pride in seeing her son lead with courage, and their advice for families who want to start their own fundraisers. This heartfelt conversation shows how passion, creativity, and community can turn obstacles into opportunities.

In this inspiring episode of Bruised but Not Broken: Living with ITP, Dr. Kristin Hunt shares her journey from being diagnosed with ITP at just 12 years old to becoming a pediatric immunologist. She reflects on the challenges of growing up with a rare bleeding disorder, the role of PDSA in shaping her outlook, and how her experiences as a patient continue to influence the way she cares for children and families today. Listeners will hear about the turning points that led her to pursue medicine, what red flags patients and parents should watch for, and why community and advocacy matter so much. Whether you’re newly diagnosed, a long-time patient, or supporting a loved one, Kristin’s story offers both guidance and encouragement you won’t want to miss.

In this special episode of Bruised but Not Broken: Living with ITP, we celebrate ITP Awareness Month with PDSA President & CEO Caroline Kruse and Director of Outreach and Community Engagement Melissa Hilsabeck. They share why September is such an important time for the ITP community, from lighting monuments purple around the world to uniting patients and families through events, stories, and support. You’ll hear how awareness campaigns began, what’s planned globally this year, and simple ways anyone can get involved—from wearing purple to hosting creative fundraisers. This uplifting conversation highlights the power of awareness, community, and connection in turning a rare disease into a recognized cause.

In this episode of Bruised But Not Broken: Living with ITP, host Barbara Pruitt sits down with Dr. Craig Kessler, a leading hematology expert, to discuss how immune thrombocytopenia (ITP) affects patients as they age. From the unique challenges of diagnosing and treating older adults, to managing fatigue, preventing falls, maintaining cognitive health, and staying up to date on vaccines, Dr. Kessler offers practical advice for both patients and caregivers. Whether you’ve lived with ITP for decades or were diagnosed later in life, this conversation is filled with insights to help you navigate the physical, emotional, and medical realities of aging with ITP. 

In this episode of Bruised but Not Broken: Living with ITP, Dr. James  Bussel, Professor Emeritus at Cornell and a leading expert in immune  thrombocytopenia (ITP), joins host Barbara Pruitt for a timely and  thoughtful conversation about vaccines and their relationship to ITP.  From breaking down how vaccines can affect platelet counts to addressing  concerns about relapses and immune response, Dr. Bussel offers  science-backed guidance and reassurance for patients navigating vaccine  decisions. Whether you're newly diagnosed or have lived with ITP for  decades, this episode is packed with clarity, compassion, and practical  advice.

U.S. insurance coverage can be just as challenging as the diagnosis itself. In this episode of Bruised but Not Broken: Living with ITP, we sit down with Becky Burns, Chief Operating Officer of the Bleeding and Clotting Disorders Institute, to unpack the complicated world of U.S. insurance and access to care. Becky shares real-life scenarios, breaks down confusing terms like prior authorizations and copay accumulators, and offers practical advice for navigating financial barriers to treatment. Whether you've struggled with high copays, coverage denials, or just understanding your plan, this episode offers clarity and hope.

What does it mean to grow older with ITP and how do you adapt when your body no longer bounces back like it used to? In this episode of Bruised but Not Broken: Living with ITP, host Barbara Pruitt is joined by fellow seniors Lib Elder and Rand Walker for an honest, insightful, and often humorous conversation about aging with immune thrombocytopenia. From treatment changes and brain bleeds to fall risks and advance planning, the trio shares real-life experiences, hard-earned wisdom, and practical advice for navigating ITP later in life. Whether you’ve lived with ITP for decades or are newly diagnosed in your senior years, this episode will leave you feeling informed, seen, and inspired.

Pregnancy with ITP can feel overwhelming—but it doesn’t have to be. In this episode of Bruised but Not Broken: Living with ITP, two leading experts—Dr. Terry Gernsheimer and Dr. Edith Cheng—share what women with ITP need to know before, during, and after pregnancy. From coordinating care between hematologists and obstetricians to understanding delivery options and postpartum concerns, this conversation is packed with reassurance, real-world examples, and actionable guidance. Whether you're planning a pregnancy or already expecting, this episode offers clarity, confidence, and hope.PDSA Resources:https://pdsa.org/pregnancyhttps://pdsa.org/images/stories/pdf/Women&GirlsWithITP.pdf

If you're parenting a toddler or preschooler with immune thrombocytopenia (ITP), this episode is for you. Pediatric hematologist Dr. Michael Tarantino joins us to share practical advice on keeping young children with low platelets safe without taking away their childhood. From babyproofing tips and daycare questions to navigating sports, tantrums, and emotional support, Dr. Tarantino offers expert insight grounded in compassion and experience. Whether you're new to ITP or deep in the trenches, you'll walk away with strategies, reassurance, and resources to help your family thrive.

Needle sticks are a frustrating reality for people living with ITP—but what if there were ways to make the experience less painful and more successful the first time around? In this episode of Bruised but Not Broken, host Barbara Pruitt speaks with vascular access RN Jeremy Johnson, who shares expert tips on how to make blood draws and IVs easier, from using ultrasound guidance to knowing your best veins. You’ll also learn what patients can do before and after a poke to reduce bruising, ease anxiety, and advocate for themselves. Whether you’re new to ITP or a veteran of the lab chair, this episode offers practical advice that can change your next needle experience.

Being a teenager isn't easy. And being diagnosed with ITP can make it even more overwhelming. In this episode of Bruised But Not Broken: Living with ITP, Dr. Michael Tarantino, a leading expert in bleeding disorders, shares what families need to know about diagnosing and managing ITP in teens. From early warning signs to navigating sports, treatment options, school support, and the emotional side of living with a chronic condition, Dr. Tarantino offers expert advice with compassion and clarity. Whether you're a teen, a parent, or a caregiver, this conversation is full of important insights, real-world tips, and hope for the journey ahead.

In this inspiring episode of Bruised But Not Broken: Living with ITP, Tracey Parker shares her deeply personal journey from diagnosis to empowerment. After facing multiple treatment challenges and a rollercoaster of platelet counts, Tracey found strength in community, advocacy, and becoming her own best health advocate. Hear how support from friends, persistence in the face of setbacks, and discovering PDSA changed her path—and how she’s now giving back through one of the organization’s most successful fundraising walks. Whether you’re newly diagnosed or years into your ITP journey, Tracey’s story is one of resilience, hope, and the power of connection.

In this heartfelt episode of Bruised but Not Broken: Living with ITP, host Barbara Pruitt talks with two inspiring guests—Josh Kelly, a teenager currently living with ITP, and Melissa Hilsabeck, who was diagnosed with ITP as a teen and now works with the PDSA. Together, they share their personal journeys through diagnosis, treatment, school, sports, and the emotional ups and downs of managing a rare blood disorder during adolescence. From overcoming challenges to finding community through PDSA and its teen track, their stories are honest, uplifting, and full of practical insight for anyone navigating life with ITP. Whether you're a teen, a parent, or just curious about the real-life impact of ITP, this episode is one you won’t want to miss.

Living with ITP comes with unique challenges, from managing unexpected nosebleeds to staying prepared for emergencies. In this episode of Bruised but not Broken: Living with ITP, host and longtime ITP patient Barbara Pruitt shares her personal experiences and practical strategies for handling everyday situations with confidence. In recognition of Bleeding Disorders Awareness Month, she breaks down the must-have items for an ITP emergency kit, explains how to manage and prevent nosebleeds, and offers travel tips to ensure you're always prepared. Whether you’re newly diagnosed or have been living with ITP for years, this episode is packed with valuable insights to help you navigate life with a bleeding disorder. Tune in to learn how a few simple preparations can make a big difference in your daily routine.

In this episode of PDSA’s podcast, Bruised but not Broken: Living with ITP, Caroline Kruse, President and CEO of the Platelet Disorder Support Association, interviews Pam Gavin, CEO of the National Organization for Rare Disorders (NORD). They discuss the challenges and triumphs of living with rare diseases, focusing on immune thrombocytopenia (ITP). Pam shares her personal connection to the rare disease community and highlights NORD's mission to support patients through advocacy, research, and policy initiatives.Listeners will gain insights into the importance of patient registries, the impact of the Orphan Drug Act, and the role of patient-focused drug development. The episode also covers the significance of Rare Disease Day, the need for comprehensive care through Centers of Excellence, and the financial assistance programs available for rare disease patients. With empowering stories, practical tips, and a deep dive into the world of rare disease advocacy, this episode is a must-listen for anyone interested in the rare disease community and discovering how they can make a difference in the lives of those affected by rare conditions.

In this episode of Bruised but Not Broken: Living with ITP, host Barbara Pruitt dives into the critical role of advocacy in making immune thrombocytopenia (ITP) a recognized priority in Washington. Joined by PDSA President and CEO Caroline Kruse and Government Relations Consultant Jim Romano, they discuss the ongoing fight for federal funding, the importance of patient voices in policy change, and how you can get involved—whether in person or virtually. Learn how sharing your ITP story can influence lawmakers, push for Centers of Excellence, and secure essential resources for the ITP community. Tune in to discover how you can be part of this powerful movement for change!

In this episode of Bruised but Not Broken: Living with ITP, host Barbara Pruitt is joined by PDSA President and CEO Caroline Kruse and Director of Research and Canadian Advocacy Jennifer DiRaimo to share exclusive insights from the American Society of Hematology (ASH) conference. They discuss the latest breakthroughs in ITP research, including promising new treatments, the role of the gut microbiome in autoimmune disease, and the impact of quality-of-life studies on patient care.Listeners will also get a behind-the-scenes look at PDSA’s presence at ASH, from engaging with clinicians at the nonprofit booth to presenting groundbreaking research from the ITP Patient Registry. Plus, hear about the prestigious McMillan Award recipient and why this year’s plenary session was a major milestone for the ITP community.Whether you’re an ITP patient, caregiver, or advocate, this episode is packed with valuable information and hope for the future.

In this episode of Bruised but Not Broken: Living with ITP, host Barbara Pruitt sits down with Meredith Prescott to discuss her incredible journey of navigating life with ITP while pursuing her dreams, building a career, and starting a family. Diagnosed as a college senior, Meredith shares how she overcame the challenges of living with ITP, from understanding her diagnosis to managing pregnancy and motherhood.Listeners will hear candid insights about balancing medical treatments with daily life, planning for childbirth with ITP, and finding strength through self-advocacy and support networks. Whether you’re living with ITP, considering pregnancy, or supporting someone with a bleeding disorder, this episode offers valuable advice, heartfelt stories, and a message of hope for thriving despite life’s challenges.Tune in to be inspired by Meredith’s resilience, and learn how you, too, can navigate life with ITP.

In this episode of Bruised but Not Broken: Living with ITP, we hear from Jill Vorst, a mother who shares her powerful journey of navigating life with her daughter Elizabeth’s chronic immune thrombocytopenia (ITP). From the scary initial diagnosis at age two to the challenges of managing Elizabeth’s relapses, side effects, and mental health, Jill offers an honest and heartfelt perspective on the toll ITP takes on families—and the hope and resilience they’ve found along the way. Jill’s story is a testament to the strength of families and the value of support networks in overcoming life’s most difficult challenges.Tune in to hear how Jill and her family discovered ways to embrace life’s possibilities despite the challenges of ITP—and how you can too.

Have you ever wondered if your ITP diagnosis could be connected to genetics? In this episode of Bruised but Not Broken: Living with ITP, host Barbara Pruitt sits down with Genetic Counselors Jennifer DiRaimo and Hannah Helber to discuss the intriguing intersection of ITP and genetic testing. Together, they explore how inherited conditions might mimic ITP, when genetic testing may be beneficial, and the potential impacts on medical management. With real-life examples, practical advice, and answers to listener questions, this episode sheds light on the power of genetic insights and their role in guiding treatment decisions. Whether you’re curious about your family history or simply want to understand the science behind genetic testing, this conversation offers valuable takeaways for anyone living with or caring for someone with ITP. Don’t miss this chance to learn, reflect, and feel empowered in your journey!

In this episode of Bruised but Not Broken: Living with ITP, host Barbara Pruitt is joined by Jody Shy, Director of Programs and Events for PDSA, to explore the unique challenges faced by families of children diagnosed with immune thrombocytopenia (ITP). Together, they discuss how PDSA’s innovative programs, like the Poke-R Club, help ease needle anxiety for kids while empowering parents with resources and support. From school kits to illustrated booklets, Jody shares heartwarming stories of resilience and tips for navigating life with ITP. Whether you’re a parent, educator, or part of the ITP community, this episode is full of inspiration and actionable advice to help you and your loved ones thrive. Don’t miss the touching insights and practical tools for overcoming the fear and uncertainty that comes with an ITP diagnosis.

In this episode of Bruised but Not Broken: Living with ITP, we dive into the fascinating connection between immune thrombocytopenia (ITP) in humans and animals. Host Barbara Pruitt speaks with Dr. Dana LeVine, a veterinary medicine professor and leading researcher in immune-mediated blood disorders, to uncover surprising parallels between canine and human ITP. Dr. LeVine shares her journey from her love of animals to groundbreaking research that could advance treatments for ITP in both species. Listeners will learn about the challenges of treating ITP in dogs, the potential benefits of canine research for human medicine, and the power of cross-species collaboration in understanding autoimmune diseases. Whether you're an ITP patient, a pet lover, or curious about the future of medicine, this episode offers unique insights and inspiration on the path toward better care for all. Tune in to explore how research in animal health might help unlock new answers in the world of ITP.

Barbara Pruitt welcomes Jody Shy, the Director of Programs and Events for the Platelet Disorder Support Association (PDSA). Together, they discuss the invaluable support PDSA offers to children and families affected by immune thrombocytopenia (ITP). A highlight of their conversation is “Kids Kamp,” a life-changing program created for children with ITP to connect, have fun, and find a community of peers who truly understand what they’re going through. Jody shares heartfelt stories of how Kids Kamp has empowered children and their families, providing them with a sense of normalcy and lifelong friendships. The episode also touches on support for teenagers as they transition to young adulthood, and a virtual teleconference that connects families globally, giving them access to experts in pediatric ITP.This inspiring episode showcases the importance of community and the power of connection, leaving listeners with valuable insights on navigating life with ITP. Tune in to learn how PDSA is making a difference and how families can access resources to support their ITP journey.

Host Barbara Pruitt is joined by world-renowned hematologist Dr. Terry Gernsheimer to explore the basics of Immune Thrombocytopenia (ITP), a condition that affects the body’s platelet levels leading to easy bruising and internal bleeding. Dr. Gernsheimer shares her journey into hematology, how ITP is diagnosed, the different phases of the condition, and what treatment options are available. She also offers invaluable advice on building strong relationships with your hematologist, handling the emotional rollercoaster of living with ITP, and tips for newly diagnosed patients. Whether you're newly diagnosed, a caregiver, or just curious about this rare autoimmune disorder, this episode offers expert guidance and hope for managing ITP and leading a fulfilling life.

We explore the fascinating world of genetics and its potential connection to ITP (immune thrombocytopenia). Join Barbara Pruitt as she speaks with Certified Genetic Counselor Jennifer DiRaimo about the role genetics might play in your diagnosis and what your family history could reveal. Learn how to create a thorough family medical history, uncover possible genetic factors, and understand when to explore further testing. With personal stories, expert insights, and practical advice, this episode helps listeners navigate the complexities of genetics and ITP, empowering them with knowledge and tools to discuss with their healthcare team. Don’t miss out on this enlightening conversation that could unlock new perspectives on living with ITP.

In this first episode of Bruised But Not Broken: Living with ITP, host Barbara Pruitt is joined by the Platelet Disorder Support Association (PDSA) President and CEO, Caroline Kruse, for an insightful conversation about their personal journeys with ITP (Immune Thrombocytopenia). Caroline shares her experience of being diagnosed later in life, while Barbara reflects on living with ITP since childhood. Together, they discuss the emotional and physical challenges, the progress in treatment options, and how ITP has shaped their lives and the lives of their families. With personal anecdotes, advice, and plenty of hope for the future, this episode offers valuable insights for anyone living with ITP or supporting a loved one. Tune in to hear their stories of resilience and learn practical tips for navigating life with this rare blood disorder!