PODCAST · health
Challenge Accepted
by The Challenging Behaviour Foundation
Welcome to our new podcast series from the Challenging Behaviour Foundation, for all parents, carers and professionals who support people with severe learning disabilities. At CBF we know first hand how isolating and exhausting supporting someone with complex needs can be. In this series of podcasts we hope to offer support, advice and encouragement to help navigate the pressures of caring and , most importantly we’ll be speaking to other carers and families about how they manage everyday, and we hope hearing their stories will give you a little boost Hosted on Acast. See acast.com/privacy for more information.
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6
Bodies, boundaries and big changes
We welcome Claire Lightly from Bodysense Education for an open, honest and practical conversation about puberty and sexual expression.We discuss real questions from the CBF Family Carer Email Network and explore some of the issues you might feel least able to talk about.Content note: This episode discusses adult themes such as masturbation in an educational and supportive context.Resources mentioned in this episode:Addressing sexualised behaviours in schools and collegesAddressing Sexualised Behaviour in SEND Schools and Colleges: A DignifBodysense Education - where Claire works!Home - Bodysense EducationDeluxe Condom Training modelDeluxe Condom Training Model, Beige | Health Edco ResourcesEjaculating dildos - this link takes you to an online sex shop Ejaculating Dildos | Ultimate Sensual Experience | Lovehoney UKEasy on the IImage Bank - Learning Disability ServiceLearn and thriveLearn and Thrive | Charity | Educational Resources for Down's SyndromeNSPCC Navigating puberty - lots of free widget symbolsNavigating puberty and sexual development | NSPCC LearningDowns Syndrome AssociationRelationships & Sex Education - Downs Syndrome AssociationSupported Loving ToolkitChoice Support | Supported Loving toolkitThings Tom/Ellie likesThings Tom Likes | Jessica Kingsley Publishers - UKThings Ellie Likes | Jessica Kingsley Publishers - UK Hosted on Acast. See acast.com/privacy for more information.
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5
CHC: Well met needs, two PALS complaints and the Ombudsman....
Our chat with Luke Clements, Cerebra Professor of Law continues, looking at transition when your young person is funded by NHS Continuing Healthcare and what to do if you suspect some iffy decision making is taking place.Tell us what you think and suggest ideas for future episodes hereLinks to the documents mentioned in the episode:Mental Capacity Act Code of Practice Disabled Children: a legal handbookCerebra Accessing Public Services ToolkitLuke Clements ‘resources’ pageTemplate letters CerebraNational framework for NHS continuing healthcare and NHS-funded nursing care (2022) Hosted on Acast. See acast.com/privacy for more information.
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4
One of the Good Guys
Our much anticipated episode featuring Luke Clements, Cerebra Professor of Law at Leeds University. Hugely knowledgeable, a member of the Challenging Behaviour Foundation's Legal Panel and champion for family carers everywhere. We discuss the law; how it should work, how it sometimes doesn't work and how it changes as your young person transitions to adulthood.Tell us what you think and suggest ideas for future episodes hereLinks to the documents mentioned in the episode:Mental Capacity Act Code of Practice Disabled Children: a legal handbookCerebra Accessing Public Services ToolkitLuke Clements ‘resources’ pageTemplate letters CerebraNational framework for NHS continuing healthcare and NHS-funded nursing care (2022) Hosted on Acast. See acast.com/privacy for more information.
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3
Nobody has the trump card
Our family carers continue their discussions diving deep into the complexities of navigating the system: deputyship, best interests, annual health checks, and the emotional realities of lifelong caring. If you've been wondering how to ensure your young person's rights are upheld, this episode is for you - jargon free explanations from those who are already living it.Episode linksPlanning for Adulthood Planning for Adulthood - Challenging Behaviour FoundationDeputyship Deputyship - Challenging Behaviour FoundationHealth Health - Challenging Behaviour FoundationTransition: Transition to Adulthood - Challenging Behaviour FoundationFamily Carer Advocacy Resource: Family Carer Advocacy Resource - Challenging Behaviour FoundationChallenging Behaviour Foundation Homepage for the Challenging Behaviour FoundationFamily Support Service Family Support Service - Challenging Behaviour FoundationPeer Support Peer support - Challenging Behaviour Foundation Hosted on Acast. See acast.com/privacy for more information.
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2
Hang on, I didn't know about that!
As the title suggests we know that when your young person is going through transition from children to adult services so much is different - plus how do you know what is possible if nobody tells you?!In this episode real families discuss the importance of connecting with others locally and nationally. With some top tips on how to prepare your young person, their siblings and yourself for some potentially huge changes and how to bond with the people who may be caring for your teenager on a day to day basis if they are moving away from home for the first time.Episode linksPlanning for Adulthood Planning for Adulthood - Challenging Behaviour Foundation8 Ways to get a House 8 ways to get a House - Challenging Behaviour FoundationPlanning Your House Planning your house - Challenging Behaviour FoundationTransition: Transition to Adulthood - Challenging Behaviour FoundationFamily Carer Advocacy Resource: Family Carer Advocacy Resource - Challenging Behaviour FoundationChallenging Behaviour Foundation Homepage for the Challenging Behaviour FoundationFamily Support Service Family Support Service - Challenging Behaviour FoundationPeer Support Peer support - Challenging Behaviour Foundation Hosted on Acast. See acast.com/privacy for more information.
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1
So it IS possible...
Challenge Accepted Series 3 continues and we are talking about a biggie - housing! In this episode our family carers talk about how they secured a home for their relative and what they want you to know if you are on a similar journey. What's the HOLD scheme? How do you insist on the things you know are important, the non-negotiables? Whether you’re overwhelmed by choices or feel constrained by limited options listen in for real life, real people and real understanding.Episode linksPlanning for Adulthood Planning for Adulthood - Challenging Behaviour Foundation8 Ways to get a House 8 ways to get a House - Challenging Behaviour FoundationPlanning Your House Planning your house - Challenging Behaviour FoundationTransition: Transition to Adulthood - Challenging Behaviour FoundationFamily Carer Advocacy Resource: Family Carer Advocacy Resource - Challenging Behaviour FoundationChallenging Behaviour Foundation Homepage for the Challenging Behaviour FoundationFamily Support Service Family Support Service - Challenging Behaviour FoundationPeer Support Peer support - Challenging Behaviour Foundation Hosted on Acast. See acast.com/privacy for more information.
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0
Getting to where you want to be...
Join Challenge Accepted' s third series as we take a look at the transition from children's services to adult services for young people with severe learning disabilities who may display behaviours described as challenging. This episode is a taste of what's to come and we hear from family carers who've been through transition. Where are their relatives now? How did they decide what was best for them? Words of wisdom, witty observations and a whole lot of understanding from those who get it....Episode links Planning for Adulthood Planning for Adulthood - Challenging Behaviour Foundation8 Ways to get a House 8 ways to get a House - Challenging Behaviour FoundationChallenging Behaviour Foundation Homepage for the Challenging Behaviour FoundationFamily Support Service Family Support Service - Challenging Behaviour FoundationPeer Support Peer support - Challenging Behaviour Foundation Hosted on Acast. See acast.com/privacy for more information.
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Reconnaissance, research and risk assessments
Our family carers are back talking about the summer holidays. This episode acknowledges the challenges of accessing play schemes and respite including how one family carer who became the Chair of her local play scheme to ensure it was accessible to all! There’s also ideas for managing the change in routine, finding spaces to meet others and relaxed theatre performances. So whether you are staying home or getting away, there is something for everybody from others who ‘get it’.Episode linksChallenging Behaviour Foundation website: Homepage for the Challenging Behaviour FoundationCBF Family Carers’ Email Network: Family Carers’ Email Network - Challenging Behaviour FoundationCBF Private Facebook Group: (1) The CBF Family Forum | FacebookPeer Support from The CBF: Peer support - Challenging Behaviour FoundationQuick read guide to Challenging Behaviour: Quick read challenging behaviour guideActivities to do at home: Activities-for-Children-Young-People-or-Adults-with-Severe-Learning-Disabilities-to-do-at-Home-2022.pdf (challengingbehaviour.org.uk)Relaxed theatre performances: Upcoming Relaxed Performances – ATG Tickets - United KingdomRelaxed performance in Kent/Medway: Relaxed performance of Jack and the Beanstalk: December 2024 - Medway Tickets Live Hosted on Acast. See acast.com/privacy for more information.
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'Mission Impossible'
Our family carers are back talking about the summer holidays. This episode includes honest conversations about the challenges and creative ways to overcome these, keeping everyone including siblings happy and entertained, and the simple joy of a hose pipe in the garden! There’s also some top tips for places to go in Kent and how to manage flying further afield. So whether you are staying home or getting away, there is something for everybody from others who ‘get it’.Episode linksChallenging Behaviour Foundation website: Homepage for the Challenging Behaviour FoundationCBF Family Carers’ Email Network: Family Carers’ Email Network - Challenging Behaviour FoundationCBF Private Facebook Group: (1) The CBF Family Forum | FacebookPeer Support from The CBF: Peer support - Challenging Behaviour FoundationQuick read guide to Challenging Behaviour: Quick read challenging behaviour guideActivities to do at home: Activities-for-Children-Young-People-or-Adults-with-Severe-Learning-Disabilities-to-do-at-Home-2022.pdf (challengingbehaviour.org.uk)Port Lympne Wild Animal Park: Port Lympne Safari Park, Wild Animal Reserve & Hotel | The Aspinall Foundation Hosted on Acast. See acast.com/privacy for more information.
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“Another way of not meeting people”
Back in September on a very hot day we invited three Kent mums who, despite living within a few miles of each other, had never met, to join us for an afternoon. This episode is about the importance of connecting with others ‘get it’ in the way that only another family carer of someone with severe learning disabilities can Episode links: Challenging Behaviour Foundation website: Homepage for the Challenging Behaviour Foundation CBF Family Carer Email Network: Family Carers’ Email Network - Challenging Behaviour Foundation CBF Private Facebook Group: https://www.facebook.com/groups/360516732384717 Peer support from the CBF: Peer support - Challenging Behaviour Foundation Quick read guide to Challenging Behaviour: https://www.challengingbehaviour.org.uk/wp-content/uploads/2021/03/quickreadchallengingbehaviourguidev6.pdf Getting support with behaviour: Getting behaviour support - Challenging Behaviour Foundation Hosted on Acast. See acast.com/privacy for more information.
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“Wine is not the answer, earbuds help”
A chat with Maria, whose adult son lives at home with her, about her experience of having a carers assessment. Maria tells us of the support that she has received in the past, the types of questions she was asked and why everyone should request a carers assessment. Episode links: Challenging Behaviour Foundation website: Homepage for the Challenging Behaviour Foundation Carers assessments: Accessing Support with a Carers Assessment (challengingbehaviour.org.uk)CBF Family Carer Email Network: Family Carers’ Email Network - Challenging Behaviour Foundation CBF Private Facebook Group: https://www.facebook.com/groups/360516732384717 Quick read guide to Challenging Behaviour: https://www.challengingbehaviour.org.uk/wp-content/uploads/2021/03/quickreadchallengingbehaviourguidev6.pdf Getting support with behaviour: Getting behaviour support - Challenging Behaviour Foundation Hosted on Acast. See acast.com/privacy for more information.
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Christmas time shredded paper and doughballs
Ahh it's holiday season and what could go wrong? Whatever you're celebrating at this time of year it can be a wonderful time to catch up with friends and family... or a challenging time with changes to routine, so many different sights and smells, and far far far too much excitement. In this special episode we talk to our family podcast guests about how they celebrate the festive season and their tips on what works for them to have the day they and their loved ones need.Episode links: Challenging Behaviour Foundation website: Homepage for the Challenging Behaviour Foundation CBF Family Carer Email Network: Family Carers’ Email Network - Challenging Behaviour Foundation CBF Private Facebook Group: https://www.facebook.com/groups/360516732384717 Quick read guide to Challenging Behaviour: https://www.challengingbehaviour.org.uk/wp-content/uploads/2021/03/quickreadchallengingbehaviourguidev6.pdf Getting support with behaviour: Getting behaviour support - Challenging Behaviour Foundation Crisis Support for urgent help or emotional support over the holiday period Crisis-support.pdf (challengingbehaviour.org.uk) Hosted on Acast. See acast.com/privacy for more information.
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“I give myself permission”
Eva contacted the CBF to tell us that she’d recently given herself permission to take time for herself and she shared a list of amazing activities that she’d been trying out – so of course we needed to speak to her about these interesting activities to hear how they had helped with her overall well being. Episode links: Challenging Behaviour Foundation website: Homepage for the Challenging Behaviour Foundation CBF Family Carer Email Network: Family Carers’ Email Network - Challenging Behaviour Foundation Carers Assessments: Accessing Support with a Carers Assessment (challengingbehaviour.org.uk)CBF Private Facebook Group: https://www.facebook.com/groups/360516732384717 Quick read guide to Challenging Behaviour: https://www.challengingbehaviour.org.uk/wp-content/uploads/2021/03/quickreadchallengingbehaviourguidev6.pdf Getting support with behaviour: Getting behaviour support - Challenging Behaviour Foundation Hosted on Acast. See acast.com/privacy for more information.
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“In boating ponds and ornamental pools”
This episode is for anyone who might be having a day where they think – I can’t face going out. Kate tells us about the challenges of navigating days out with her daughter’s obsessions and how over the years she’s become more upfront and honest with her family and friends about what to expect on a day out with them. Episode links: Challenging Behaviour Foundation website: Homepage for the Challenging Behaviour Foundation CBF Family Carer Email Network: Family Carers’ Email Network - Challenging Behaviour Foundation CBF Private Facebook Group: https://www.facebook.com/groups/360516732384717 Quick read guide to Challenging Behaviour: https://www.challengingbehaviour.org.uk/wp-content/uploads/2021/03/quickreadchallengingbehaviourguidev6.pdf Getting support with behaviour: Getting behaviour support - Challenging Behaviour Foundation Hosted on Acast. See acast.com/privacy for more information.
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-8
“So much of life is I’m terribly sorry, I’m so sorry”
Challenge Accepted kicks off! We speak with Shaun writerof the BBC series There She Goes and his wife Sarah , about the ups and downs of life with their daughter Joey and the impact of the show.Episode links: Challenging Behaviour Foundation website: Homepage for the Challenging Behaviour Foundation There She Goes on BBC iPlayer: BBC iPlayer - There She GoesPeer support from the CBF: Peer support - Challenging Behaviour Foundation Quick read guide to Challenging Behaviour: https://www.challengingbehaviour.org.uk/wp-content/uploads/2021/03/quickreadchallengingbehaviourguidev6.pdf Hosted on Acast. See acast.com/privacy for more information.
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ABOUT THIS SHOW
Welcome to our new podcast series from the Challenging Behaviour Foundation, for all parents, carers and professionals who support people with severe learning disabilities. At CBF we know first hand how isolating and exhausting supporting someone with complex needs can be. In this series of podcasts we hope to offer support, advice and encouragement to help navigate the pressures of caring and , most importantly we’ll be speaking to other carers and families about how they manage everyday, and we hope hearing their stories will give you a little boost Hosted on Acast. See acast.com/privacy for more information.
HOSTED BY
The Challenging Behaviour Foundation
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