Chronically Will Podcast - Type One Diabetes

In this episode, we hear from Eva, a dedicated advocate for the type 1 diabetes community. Eva shares her journey from working at a diabetes camp to pursuing a career in endocrinology. When we recorded in October 2025, Eva was pursuing her NP in Endocrinology. As of this past week, she has graduated with a DNP (Doctor of Nursing Practice) and is a Board-Certified Family Nurse, highlighting her commitment to making a difference in the lives of those affected by diabetes. This episode underscores the power of advocacy and the impact of compassionate care.Follow Eva and her journey to continue lessening the burden of T1D, Instagram @evakat

Living with diabetes isn’t just a medical condition — it’s a journey of resilience, understanding, and unfiltered strength. Mo Milli’s story will shatter misconceptions and reveal what it truly means to navigate life with type 1 diabetes from childhood to adulthood. If you think it’s all about sugar levels and insulin, think again. This episode dives into the raw, real experiences only those living it can tell — trauma, triumph, and everything in between. Mo Milli, a passionate artist and advocate, shares her powerful journey from being diagnosed at age five with a sugar level of 1200, to becoming a voice for countless others misunderstood by society and even healthcare professionals. She reflects on the trauma of her early diagnosis, the mental and emotional toll of managing her condition, and the unrelenting resilience that keeps her thriving despite the odds. Her story isn’t just about diabetes — it’s about purpose, faith, and turning adversity into advocacy.Follow Mo Mill on instagram @m.ocahontas

Unlock the resilience of Dalyce and discover how advocacy, art, and community can revolutionize living with chronic illness. Dalyce was diagnosed with Type One Diabetes at the age of 7. Dalyce’s story isn’t just about surviving; it's about reclaiming agency in a society built on systemic oppression and medical injustice. From childhood fears to decades of pushing her body to prove societal assumptions wrong, Dalyce shares an unfiltered look at what it truly means to live with a disability in America. She vividly recounts her diagnoses, the mental and physical toll of managing health in a system that often neglects or dismisses POC, and how her journey abroad in Ireland and Thailand offered a glimpse of freedom that she fights to reclaim every day. Dalyce reveals the trauma of medical neglect, the heartbreak of food and insulin insecurity, and the emotional weight of isolating systemic barriers, all while embodying fierce creativity and advocacy.Follow Dalyce on instagram @black_bird_photo

Rachael Celine @thechronicallyillest has been living with Type 1 Diabetes since she was 12 years young. Rachael launched thechronicallyillest with the intent to fight diabetes and chronic illness stigma, foster REAL community an,d create unapologetic products for those who are sicker than the average!From the age of 12, Rachael has been the captain of her diabetes ship, and 20 years later, she continues to keep little Ray Ray afloat while giving hope to other young people and their caregivers that living with diabetes today can be better than anything of the past.

Bebe⁠ is a resilient woman who has lived with type 1 diabetes since her diagnosis at age six in 1982. Despite early warnings of severe complications, she took charge of her condition, managing her insulin independently. Her family, especially her grandmother, supported her understanding of diabetes. Against medical advice, Bebe became a mother, raising her children while managing her health. She faced complications like retinopathy, requiring retina surgery, but remained proactive and hopeful. Bebe's story is one of perseverance, highlighting self-advocacy and community support in living with a chronic illness.Follow Bebe on instagram ⁠@iamimanistarcor

Bebe is a resilient woman who has lived with type 1 diabetes since her diagnosis at age six in 1982. Despite early warnings of severe complications, she took charge of her condition, managing her insulin independently. Her family, especially her grandmother, supported her understanding of diabetes. Against medical advice, Bebe became a mother, raising her children while managing her health. She faced complications like retinopathy, requiring retina surgery, but remained proactive and hopeful. Bebe's story is one of perseverance, highlighting self-advocacy and community support in living with a chronic illness.Follow Bebe on instagram @iamimanistarcor

Dr. Paidamoyo Katsande joins us from the UK by way of Zimbabwe. Since Paida was a small girl she had dreams of helping Zimbabwe. Zimbabwe is her heart. Dr. Paidamoyo is a research scientist and dedicated a great part of her career in T1D research for a cure to help those impacted at home. Growing up in Zimbabwe, she moved to the UK at eight years old, carrying with her a childhood dream of becoming a doctor. She wanted to contribute to improving people’s quality of life.Coming from a community with limited healthcare resources, Paidamoyo saw how reduced access to diagnostics and education could leave people undiagnosed or struggling to manage their conditions. Those observations sparked a lifelong desire to raise awareness and pursue science that makes a tangible difference.Paida has PhD in molecular biology and Immunology. While I’m not a medical doctor, her work focuses on the science that can lead to groundbreaking treatments for type 1 diabetes and prostate cancer.Beyond the lab: A researcher’s journey to tackling type 1 diabetes | Breakthrough T1D UKFollow Dr. Katsande on instagram @dr.paidayourfavscientist

On this episode, we hear from Ricky. He hails from Brooklyn, New York, and was diagnosed with Type One Diabetes in 1992 at the age of 3 and spent the next year in a coma while hospitalized. Ricky spent his 4th birthday in the hospital.Early on, he would hear medical professionals say things, such as that he wouldn't make it. Ricky struggled a lot as a kid with mean adultsRicky has become a prominent figure in the diabetic community. He is not only a survivor but also an advocate, martial artist, and father, using his experiences to inspire others. Ricky has endured many complications with diabetes, including losing full vision at one point, but even that couldn't stop him!Get to know Ricky t1dknight

In this episode we get to meet Cam @cam_simply and engage in a heartfelt conversation, where we discuss the importance of community and representation within the diabetes online community (DOC), particularly for people of color. Cam shares his personal journey with type 1 diabetes, highlighting the challenges and triumphs he has faced since his diagnosis at age nine. The conversation touches on themes of advocacy, the evolution of diabetes management, and the significance of finding a supportive community. Cam and Will reflect on their shared experiences and the impact of their work in fostering a more inclusive and informed space for those living with diabetes.

In this episode, we hear from Elijah (@elyja_), who has been living with Type 1 Diabetes for 21 years since being diagnosed at age 11. We explore his T1D journey, reflecting on the challenges and growth that have come with managing the condition over the years. The discussion touches on the emotional and psychological impacts of diabetes, the value of community support, and the advancements in diabetes management technology. Elijah shares personal stories about his experiences, the support he’s received from his family, and his hopes for a future cure. This episode highlights resilience, adaptability, and the power of sharing one’s story to inspire and educate others. Elijah is truly someone worth knowing in the Diabetic Online Community and beyond. Follow him on Instagram @elyja_

CWP host Willie Streets shares his life with T1D plus everything else.

Deanelle was diagnosed with Type One Diabetes at the age of 6, 23 years ago. His diagnosis was caught by his parent's keen eye on his growth at such a young age. Today, he is a Certified Health Coach to help others like him get a better understanding of their own bodies and the data behind it to help them achieve their health goals.His family is of Caribbean background, from St Kitts and Nevis. After his diagnosis, his mom had to get serious with their family's health. His parents were the original champions for his diagnosis and for how he would be moving forward. While in college, he studied abroad in Spain and didn't tell his mom until right before! One thing that opened his eyes while studying abroad was that he didn't have to pay for his insulin. Deanelle has no recollection of life without diabetes, but wants to continue doing everything that he can to make sure that others too can live a full life while managing it.

Quinton, diagnosed with T1D at 10 in 1998. From day 1, he has been in full control of his diabetes. But to know that his daughter's too have this diagnosis literally changed the ball game! His youngest daughter was diagnosed at 20 months, and then 3 years later, his oldest daughter was diagnosed at 5.Through these diagnoses, Quinton questioned, "Did I give this to my girls?"Although his daughters know that he's had T1D for nearly 3 decades, they do not see his diabetes as their diabetes.Today, they are 15 and 16, with the world beyond diabetes at their feet that most of us do not have. "DadCom" has all of the tricks and tips to guide them along the next chapter in their lives. About 6 years ago, he lost complete vision in his left eye (complete detachment of the retina). 2 years ago, he lost vision in his right eye, and for 5 months, he was without complete vision as a sole provider, single father. Thankfully, surgery was an option, and he regained vision in his right eye. With his mom by his side, he wasable to get back to the old Q! Before gaining the control, he has today, he used to plan his entire day around naps, not correlating it with diabetes.Follow this amazing single dad and his story of hope, love, and perseverance. Follow on instagram @ayquincy

On this episode, we get to sit down with Angel @angelverses. Angel is a hip hop artist from Ohio who expresses and voices his emotions about living with diabetes through his music and skits. People may not relate to what he goes through with diabetes, but they will relate to the music and the messages.Angel was diagnosed with T1D almost 18 years ago at 14 years young. He is the youngest of 3. Angel was diagnosed while on vacation with his aunt. His Auntie noticed his changes.In this episode, we recognize and give flowers to Angel's family of love and support.

On this episode we speak with Leah. Leah is a research assistant at Trialnet.org. but is also an MPH candidate in Epidemiology. Her drive comes from her family and friends.  She's seen T1D up close and is passionate about early detection and making research feel human, accessible, and community powered. Her allyship speaks volumes! At Trialnet they test family members of people living with T1D for risks of being diagnosed. They start testing as young as the age of 2 for T1D autoantibodies, all the way up to theage of 40 if you have direct family members with T1D. Trial Net contributed greatly to the treatment of Teplizomab, Tzield® (teplizumab) which is s a CD3-directed monoclonal antibody approved for delaying the onset of stage 3 type 1 diabetes in adults and children aged 8 years and older who have Stage 2 type 1 diabetes. It works by attaching to proteins on immune cells, helping to protect the insulin-producing cells in the pancreas from being attacked. Tzield was approved in the US in November 2022 and is the first disease-modifying therapy for autoimmune type 1 diabetes. For more detailed information, you can refer to the official Tzield website or the FDA labelDuring our conversation we speak about the misdiagnosis of adults with diabetes and the challenges in care because of the proper education and tools not being given to them. At Trial Net, instead of continuously monitoring a finger pricks, that we know the child hates, and parents hate as well, if you live with T1Dyou can just have this simple lab drawn to determine their future risks. It's a win-win for everyone! It's a simple blood withdrawal; it's not a lot. It's no more than a typical blood withdrawal from a lab. If they can get this done, you will have immediate direct knowledge of what to look for moving forward. Is my child going to have it or if they're not? Right. Visit Trialnet.org to get screened. It's 100% Free.

On this episode we get to hear from Marlaina Goedel. 14 months ago, Marlaina was fully, functionally cured of living with Type 1 diabetes. The procedure was the first of it's kind in the world, performed by Dr. Pior Witkowski at UC Med. With this process they inserted donor islet cells into Marlaina's liver and used the new monoclonal antibody Tegoprubart as the main antirejection infusion. After 25 years of living with Type 1 and having dealt with too many hospitals stays to recall and far too many times having to be rescued by her loved ones, including her daughter she no longer lives with T1D.During this episode Marlaina shares answers to every question that you could think of answering. And as Marlaina mentioned, "We did it!" She took this step for us all, not because only her own experience with diabetes.Marlaina was a pure gem to record with and her story is story of hope for everyone. To-date there have been 12 people in the clinical trial after Marlaina's successful transplant. So far, everyone is on schedule to be insulin independent like Marlaina (6 in total during the second phase already are).You can follow Marlaina on Instagram @ilovemiley94Find her on Facebook at Marlaina GoedelDonate to support Marlaina continue this new life

On this episode, we hear from Jisel. Jisel has been living with Type 1 Diabetes for 22 years, having been diagnosed near the end of her sophomore year of high school at 15 in 2003. Jisel is a wife, mom of two, and a self-proclaimed Serial Volunteer! Whether it's school events, work-related, or with her people, in the T1D community, you can find Jisel always lending a hand, foot, time, and dedication to the communities she serves. In this episode, Jisel shares everything else, plus diabetes, including how challenging it was for a 15-year-old young girl learning to advocate for herself as a newly diagnosed Type 1, and as an adult throughout her pregnancies.Jisel is not only someone you should get to know but she's someone that is making things happen in the diabetes space!Follow Jisel @jisel.p_andt1d

In Pt 2, we dive more into Krislin's new life without T1D and CKD as of June 29, 2025.Diagnosed with Type 1 Diabetes at just 9 years old, ⁠Krislin⁠’s life was forever changed. By age 22, she faced diabetic retinopathy. At 26, Chronic Kidney Disease entered the picture. And yet, on the 20th anniversary of her diagnosis, something extraordinary happened. By age 29, ⁠Krislin⁠ was gifted the chance at a new life.Her story is one of resilience, heartbreak, and hope. So, grab your tissues and walk with Krislin. Love with Krislin. Live with Krislin. Cry with Krislin. Heal with Krislin.Her mother always told her, “You have diabetes. Diabetes doesn’t have you.” And today, that truth has never been more real, because diabetes no longer has her.In 5th grade, Krislin’s diagnosis took a heavy toll on her young body. The innocent question, “Why me?” evolved into painful self-blame. “What did I do to deserve this? What did I do that was bad?” Even at 9, classmates asked cruel questions like, “When are you gonna die?”—questions that haunted her for years and silenced her voice about her condition.She carried guilt. She felt alone. Her childhood was marked by hospital stays and isolation. For years, she didn’t speak about her diabetes, not out of denial, but out of pain.But three months ago, Krislin woke up freer than she had ever felt. And today, her heart is with the community she leaves behind—the warriors who continue the fight against diabetes every single day.You’ll laugh. You’ll cry. I know I did. Because this isn’t just Krislin’s story. It's a love letter to every person living with diabetes. To every parent, every friend, every fighter. This is for you.Follow Krislin's Journey on Instagram ⁠@krislinwins⁠

Diagnosed with Type 1 Diabetes at just 9 years old, Krislin’s life was forever changed. By age 22, she faced diabetic retinopathy. At 26, Chronic Kidney Disease entered the picture. And yet, on the 20th anniversary of her diagnosis, something extraordinary happened. By age 29, Krislin was gifted the chance at a new life.Her story is one of resilience, heartbreak, and hope. So, grab your tissues and walk with Krislin. Love with Krislin. Live with Krislin. Cry with Krislin. Heal with Krislin.Her mother always told her, “You have diabetes. Diabetes doesn’t have you.” And today, that truth has never been more real, because diabetes no longer has her.In 5th grade, Krislin’s diagnosis took a heavy toll on her young body. The innocent question, “Why me?” evolved into painful self-blame. “What did I do to deserve this? What did I do that was bad?” Even at 9, classmates asked cruel questions like, “When are you gonna die?”—questions that haunted her for years and silenced her voice about her condition.She carried guilt. She felt alone. Her childhood was marked by hospital stays and isolation. For years, she didn’t speak about her diabetes, not out of denial, but out of pain.But three months ago, Krislin woke up freer than she had ever felt. And today, her heart is with the community she leaves behind—the warriors who continue the fight against diabetes every single day.You’ll laugh. You’ll cry. I know I did. Because this isn’t just Krislin’s story. It’s a love letter to every person living with diabetes. To every parent, every friend, every fighter. This is for you.

On this episode, we travel to Aruba to meet with Nurianne. Nurianne was diagnosed with T1D at 19. She is a graduate of the University of Aruba. Nuri worked as a full-time lecturer at the University of Aruba and was a researcher for the local Foundation of diabetes in Aruba concerning diabetes management on the island. Nurianne is passionate about helping others, as she started volunteering at the age of 12 and has been active in many social projects and programs since then. Nurianne has a special interest in children and their development.Since her diabetes diagnosis, she has dedicated herself to researching diabetes and health conditions. Nurianne aims at motivating and coaching people living with diabetes. In 2018 Nurianne participated as the representative of Aruba in the Miss World pageant and her advocacy focused on health for children and youngsters. In 2019 Nurianne joined the YLD program by the International Diabetes Federation to gain more knowledge in the field of diabetes so she can develop the appropriate skills to support others and do research. Nurianne has been a Ph.D. student in the field of Public Administration since September 2023. Her Ph.D. research is an extension of her passion for advocating for health and specifically invisible disabilities. Nurianne plans on conducting research on how communities of experience (support systems) can enhance health outcomes of people with hidden disabilities such as diabetes, ADHD, and endometriosis in Aruba.

On this episode we get to hear from Anchal . Anchal visits the Podcast from India. Anchal is 16 years young and was diagnosed with Type 1 Diabetes 7 years ago at the age of 9. Anchal, in most ways, is your typical teenager. She enjoys dancing, doing her makeup, and dressing up. These things are what bring her peace of mind when everything gets too much.Anchal aspires to be someone who can encourage and motivate more people like her. She wants to make life a little easier for them in any way possible. Anchal also hopes to become a clinical psychologist! She remembers how traumatic her diagnosis was and continues to be for her and her family, specifically her parents, who are also her superheroes, and how much therapy can help newly diagnosed families.During this conversation Anchal opens up about being a teen and how misinformed others are about her living with diabetes and how it does anger her at times.Anchal is someone we should all get to know because she will take on and over the world!!

Sarah was diagnosed with type 1 at the age of 7, 17 years ago, and also lives with multi drug-resistant epilepsy. She was diagnosed during a visit to the pediatrician.After diagnosis, Sarah spent her summers at camp Nejeda, later becoming a counselor, which helped foster a good relationship with my diabetes as well as instill confidence. While in college, pursuing her BS in nursing, she began modeling and wanted her diabetes to be a focal point. This is when she started advocating more for type 1. Eventually, Sarah got to take part in amazing opportunities, such as opening the NASDAQ on World Diabetes Day as part of a Dexcom campaign.Currently, Sarah is a nurse on a neuro/stroke step-down unit and loves the conversations that her diabetes tech starts. This year, Sarah will be working towards becoming a certified diabetes care and education specialist.Sarah shares how it's essential for young people to see someone openly share the good, the bad, and the ugly of diabetes.Sarah knows that she would be nowhere if not gifted her amazing family. Her parents came together with their strengths to keep little Sarah well. Sarah celebrates that she's able to wake up daily and do the things she does.The Diabetes community means a great deal to Sarah. The comfort others have with reaching out and sharing with her is amazing. The DOC has been there for her through the ups, downs, and through grief.During this recording, flowers are gifted to the Guarino family for their forever support during her diagnosis and continuing. Sarah's mother recently transitioned. She was and continues to be the answer to all of Sarah's "Whys."Get to know Sara @runawaywithsara

On this episode, we get to smile with Arianna @ariannaiannairaArianna was diagnosed with T1D at age 11, more than 15 years ago. She also lives with PCOS. Ari is mother to the amazingly amazing Finn, who is two years old now. During our conversation, Ari shares her gifts of life. This includes her sharing her new level of acceptance with newly diagnosed people by finding the diabetic online community. We also converse about grieving the life before, not only this diagnosis, but also of other obstacles we have endured. Ari is a published research scientist in cancer research and a biologist with her BS from Lehigh University. She is also a creative who loves to sew and act. As she says, she is a Jack of All Trades, not a perfectionist. In school, she also minored in theatre and apparel design.Recently, she enrolled in @Bluecirclehealth ,and this has helped her find the support team she needs.My friend Arianna is someone we should all get to know.Follow Ari on Instagram @ariannaiannaira⁠

On this episode we get to hear from Mary @t1dartistryMary is an ambassador for Eversense CGM and has been for 5 years! Mary was diagnosed with T1D at the age of 18, during her freshmen year of college.On this episode Mary invites us into her world and her truths. This includes discussions regarding the birth of her son. Although, her the duration of her pregnancy was pretty smooth and she had the best glucose results, during the last few weeks things changed drastically. Mary was given predisone at 37 weeks, which shot her blood sugar up! In turn, during her next stress test, she was told that her baby wasn't moving. Mary asked them to deliver her baby. She was denied, even though he weighed over 10lbs. The next day, she went back and they delivered her baby, and his heart rate was only 25 bpm. He had meconium aspiration, which hardened his lungs and heart, and led to him not being able to breathe. Mary also had fibroids. She lost 2 liters of blood and ended up with Sheehan syndrome (when you lose your blood and pituitary strengths) and needed transfusions. Now, all of her hormones are injured forever because of that. Throughout this conversation, Mary speaks to us! Everyone in the community needs to listen to the strength of this Queen!

On this episode, we head to the Midwest and visit Marcus in Cincinnati. Marcus was diagnosed with Type 1 Diabetes at the age of 15. This year marks Marcus' 25th year with Type 1 Diabetes (T1D).His diagnosis was a true traumatic experience for a young, fit athlete, and for the first few days after diagnosis, he did fall into a state of slumber depression. This was until his dad tapped him on his shoulder and said, "Just listen."25 years ago, Marcus' diagnosis was not what we see and know it to be today. He started with NPH and Regular insulin. There was no wiggle room back then. His parents were his greatest advocates during those early years.He remembers making sure every time he went out of the house to go through his checklist of everything needed. Marcus owned his diabetes from day 1. A lot of this is because of his anger with this diagnosis.25 years ago his mom was his CGM. She made sure that she understood what it looked like when his blood sugar would fluctuate.Marcus and his wife were on the Netflix series "I Do," which aired in 2020, where he and his wife were given a second chance at their dream wedding.Follow Marcus along his journey @marcouslacour

Step into the world of Jayla. Jayla is a 24-year-old Detroit native and recent graduate of Clark Atlanta University. With a career in radio and digital marketing, her aspiration is to become an influencer and advocate for individuals like her to thrive even with chronic illnesses such as Type 1 diabetes. Jayla was diagnosed with Type 1 Diabetes the summer before high school at the age of 14. With being diagnosed with Type 1 diabetes for 10 years, she’s navigated her health journey through community and advocacy throughout many of the rooms she’s stepped in. In the end she hopes to be able to teach others, reach out to others, and inspire others. Jayla is the Miss Atlanta Clark University 2024-2025 and in May graduated Magna Cum LaudeConnect with Jayla on Instagram @indigoyah

In this episode, we journey to India to meet Khushi Ahuja, a global advocate for T1International. Diagnosed with type 1 diabetes at age 11, Khushi shares her personal story of navigating the challenges of her diagnosis, including an extended honeymoon period. She discusses the stigmas surrounding diabetes and the critical role community support has played in her journey. Khushi reveals how connecting with others who understand her struggles has been a lifeline, offering hope and empowerment. Her family has been instrumental in keeping her at her best, providing unwavering support. Join us as we explore the transformative power of community and the importance of mental health support in managing chronic conditions. #CommunitySupport #DiabetesAwareness #MentalHealthMatters

On this episode, we sit down with Sa'Ra, a passionate advocate and inspiring individual who has lived with Type 1 Diabetes since the age of five, 25 years ago. Sa'Ra's journey is deeply personal, as her mother's older sister, Joy, also had Type 1 Diabetes and passed away from complications at the young age of 43. Five years after her diagnosis, her baby sister (3 years younger) was diagnosed. Tune in for an empowering conversation that highlights the importance of support, love, and choosing joy in the face of adversity. In 2019, Sa'Ra's advocacy continued when she spoke out publicly, which led to widespread media attention and connections to T1International. She was then invited to testify before the U.S. House Oversight and Reform Committee, where she passionately addressed the insulin pricing crisis.Join us as we explore her journey of resilience, from childhood challenges to becoming a mother, and her unwavering commitment to advocacy.Follow Sa'Ra via instagram @_SaRaJoycelyn @_SkipJoy

In this compelling episode of the Chronically Will podcast, we hear from Dee, a resilient Cuban-Jamaican born, Brooklyn-bred single mother, as she shares her journey of advocating for her daughter, Jayde Michele, who was diagnosed with type 1 diabetes at just two years old, only 6 years ago. Dee opens up about the challenges and triumphs of navigating the educational system, ensuring Jayde receives the support she needs to thrive. From managing blood sugar levels during school activities to fostering a community of understanding and support, Dee's story is a testament to the power of informed advocacy and unwavering love. Join us to explore how Dee's cultural roots and personal strength shape her approach to advocacy and learn how you can make a difference in your community.Follow Jayde Michele's journey Instagram @type1derfullyme

On this episode, you get to hear (seriously) one of the funnest conversations I've ever had with our sister Norma. Norma grew up in Puerto Rico, went to college in the US, and ended up in Canada, where she's been for the last 22 years. Norma is a mom of 2, a wife, and has been living with T1D for 43 years!! She doesn't remember life without T1D.For the past 15 years, she has been focused on raising her kids and, more recently, went back to school to get her MPH. Norma lived in Cleveland until she was 3 (Big BTNH fan). She was diagnosed with T1D during the transition of moving from Cleveland to Puerto Rico. As a toddler, when she got diagnosed, her parents were diagnosed. Her dad told her that it's one of the few times he cried. 95% of her diagnosis was theirs. Everyone came together as a community of family and friends to support them.Throughout our conversation, you can feel Norma's passion for helping others advocate and stand up for their rights! After 43 years of being a Type One Diabetic, she's ready for the next step in care and technology. Although Norma does not recall a life before diabetes, she does hope for a day when not only is insulin accessible to all, but on the day a cure is here, it reaches our most vulnerable communities first. Follow Norma @norma__amyShe's always willing to lend a hand in helping out her fellow diabetic!

In this episode, we engage in a heartfelt conversation with Esi, a long-time Type 1 Diabetes advocate. Esi was diagnosed with T1D in 1988 at the age of six.During our conversation, Esi discusses the challenges faced by black individuals living with diabetes, the importance of community support, and the need for cultural sensitivity in healthcare. Asi shares her journey of creating The Carb Cookout, a supportive community for black individuals with diabetes, emphasizing the significance of representation. The Carb Cookout: Black and Thriving with Type 1 Diabetes is a Facebook group that was created during the heart of the pandemic. The conversation highlights the emotional and social aspects of living with Type 1 Diabetes, the role of healthcare providers, and the hope for a future where diabetes is no longer a barrier to living fully.Everyone needs an Esi in their corner!Follow Esi on Instagram at @onyxempress

Diagnosed with T1D in the 90's, at 10 years young while in the 5th grade on Staten Island, NY. Simone?! is a Black trans non-binary artist. He is a New York City nomad who has lived in each borough at least twice. His 32nd diaversary is approaching, along with the 4th year living with kidney failure. Simone?! has lived with other complications and continues to learn that other conditions could also be comorbidities.Simone's?! paternal grandmother also lived with diabetes. During diagnosis Simone?! was met with a lot of scaretactics. Simone?! was spoken to as if they were supposed to know everything the doctors knew about diabetes.The start of this journey geared how diabetes was handled for a long time.Keywordsdiabetes, chronic illness, resilience, community, identity, mental health, kidney disease, self-advocacy, art, "We are alive, we're not always well.""Your story hasn't been told before.""I was diagnosed as a little one."

In this episode of the Chronically Will Podcast, Leah shares her journey living with type 1 diabetes and other chronic health conditions. The conversation explores the intersection of physical and mental health, the importance of advocacy, and the role of community support. Leah discusses her experiences with multiple diagnoses, the impact of chronic illness on mental health, and the misconceptions surrounding diabetes. The episode emphasizes the need for education, self-advocacy, and the hope for a future cure, while also finding humor in the challenges of living with chronic illness.Follow Leah on instagram @contentleah

On this episode of Chronically Will Podcast we get to hear from the amazing Keeratdeep. Keerat comes to us from Delhi, India and was diagnosed with Type One Diabetes 20 years ago at the young age of 10. Yes, she has been learning, living and thriving with diabetes for the last 2 decades. Diabetes sort of grew up with her.Through this conversation Keerat speaks fondly about her loved ones that have been there with her along this journey. When she was diagnosed, they too received a diagnosis. Her mom, dad and brother have been her everything!She tells us all how having a community of people living with diabetes that we can interact with helps validate us more than anything. As Keerat says, you must choose your tripe wise. This will benefit you along your life with chronic health conditions.Keerat has traveled and lived all around the world. She's lived in both Australia and America. Over the years she's learned so much about herself because of diabetes. It has 100% affected her in relationships, with people not seeing her in the amazing light that she is because society sees diabetes one way. Keerat is fun, strong and just an overall great spirit of light that deserves her shine.Get to know Keeratdeep!!Follow on Instagram instagram.com/lifewithkeerat

On this episode you will hear from Michelle @michelle_jako Michelle visits us from Johannesburg, South Africa.Michelle was diagnosed with Type One Diabetes in 2012 at 13 years young, while in the 7th grade. In this conversation Michelle tells us about how diabetes makes yougrow up fast and as a young teen when you're told to do certain things how you know as a youth that nothing can stop you.She recalls her mom not knowing if it was her blood sugar or her just being 13 that altered her emotions and made her irritable. Even as a child in school, teachers would provoke her about her diabetes, specifically when she was doing exams and couldn't focus at times. Once at a restaurant a patron told the waiter to tell her to take her insulin in a restroom. Michelle used this as a moment to advocate and educate this person on diabetes and the direct need for her to take her insulin.Michelle recalls at the age of 15 not wanting people to know about her diabetes so she hid it. No one knew that she was taking insulin 3x a day, in the morning, before lunch and in the evening. Her close friends knew she had diabetes, but they didn't know the details of it. When she would stay with friends their parents would make sure to keep the sweets from her.One of Michelle's greatest hopes is that her child never has to grow with this.When she met her significant other and she told him she had diabetes, he was okay with it. He was so exceptingof it and had no questions. He didn't know anyone with diabetes, but he told her, "Well, you'll teach me about it. I'm willing to learn. " While dating he once came to visit her and had to ask security to accompany him to her door, and there they found her unconscious. It was an eye-opening experience for her.In her career she helps educate people on diabetes and advocacy. Although her child is only 2 she wantsto also educate her so that she will know what to do incase an emergency does occur.Living with diabetes has made Michelle a more patient and understanding person. When she had her child, and although her pregnancy was hard for her, it was amazing! As Michelle passionately shares, "She is her gift from God!"Follow MichelleInstagram: Michelle_JakoTiktok: Michelle_jayy

On this episode we get to hear from Dr. Allison Ong, also known as Allie. Allie comes to us from southern California. Allie was diagnosed with T1D at 11 years young, almost 18 years ago. After falling ill and getting a glucose tolerance test, which she passed, six months later she was in full blown DKA with a blood sugar greater than 1,500 mg/dl. Soon to be heading to middle school she learned and began to care for her own diabetes shortly after. On this episode we get to experience the perspective from a person not only living with T1D but also that works in medicine. She see's patients of all ages, including kids that are type 1's as well as young adults. Her journey through T1D advocacy and medicine took her to grad school in the Sacramento/Bay area and to residency in Miami, FL where she trains in internal medicine & pediatrics (a field called Med Peds). She is passionate about urban health, adolescent medicine, and using writing and social media for education and change. When she isn’t pulling 80 hour workweeks as a resident, she enjoys indoor rock climbing, the arts, and writing a good yelp review. Some fun goals for this year include doing 5 solid pullups in a row (she’s almost at four), incorporating more art into her free time, and continuing to grow as a mentor for medical students and residents learning about diabetes!! Allie states how diabetes and medicine are not separated for her. They are both apart of her identity. Allie shares that while at the hospital taking care of patients, her blood sugar can be super high at times. She enjoys being able to talk with a lot of patients with chronic illnesses from a really empathetic and caring perspective. Allison appreciates honest and transparent content creators because it makes the process real and not sugarcoated.Get to know Allie! Follow her on Instagram @Allie_T1DTiktok @allie_t1d

On this episode we celebrate Steven Cannady!Steven was diagnosed with Type One Diabetes at age 13, 21 years ago. Steven is a graduate of the North Carolina Central University!He has been married for 5 years, loves traveling with his wife (Nia) all athletics, hanging with his crew and ran the NYC Marathon in 2024 and is prepping to run the Chicago Marathon in 2025 and NYC Marathon again in 2025!When Steven got to college, he said that is when he truly became who he is. He's a true people connector andloves to conversate with everyone.During his diagnosis he lived with his mom, grandmom, older brother and two younger sisters in a 2-bedroom apartment off of Hardee Street in Durham. Before diagnosis he remembers laying out in the kitchen on the floor. During Christmas break he was home eating a family sized box of Froot Loops and began to get sick. Shortly after he was diagnosed with Type 1 Diabetes. Two years later his older brother was also diagnosed with T1D. His family came together for his well-being during this diagnosis. They made sure he did everything he could to be his best. Steve recalls back then catching the bus or walking to Hardees restaurant and him getting the low carb burger. This included a beef patty wrapped in lettuce. Steven shows great gratitude to his original medical team at Duke University because as he says, he probably wouldn't have made it without them. With him being the new kid at school, no one recognized him as the kid with diabetes. Other than the school staff, no one knew he had diabetes. Ahead of his brother's diagnosis Steven recognized his brothers' symptoms and told him that he might want to get checked out because it may be diabetes. In Highschool he ran cross country and track but ended up in DKA 3 times becausehe wouldn't take his insulin. During those days he knows he avoided taking care of his diabetes. He admits that he doesn't know how he made it. Steven's greatest advice to someone newly diagnosed or needing to press a reset on their diabetes is to TAKE INSULIN! NEVER SKIP YOUR INSULIN!Big shout outs to Steven's wife Nia and his homies from Durham for being there for him and always showing up for him even when he is unable to understand the situation when he's suffering from hypo's.Follow Steven on instagram @steven.cannadyDonate to his Chicago Marathon campaign for Breakthrough T1DDonate to his NYC Marathon campaign for Beyond Type One

Neo (Nayo) comes to us all the way from The Freestate, South Africa.Neo was diagnosed with T1D 6 years ago at 15. When she was diagnosed, it was the first time she had ever heard of Type One Diabetes. Now Neo is an advocate for T1D. During our conversation she speaks heavily about how difficult it is for people to understand what living with diabetes is because they can't resonate with it unless they are actually living with it. And when people say things such as, if they had to use insulin they would die. Neo tells them, you will need to learn how to survive!When she was first diagnosed it was near impossible to explain it to her peers because she didn't understand it. Many people said it was because of witchcraft or someone hating her family that she was diagnosed with diabetes. She had to constantly explain to people that believed in those things that it wasn't like that. Her peers thought she was making up stories because they had never heard of the intricacies of T1D and this made Neo hide it then. Some classmates thought she was taking drugs.Neo wishes that medical systems share that it is a norm and not taboo to be diagnosed with Type One Diabetes.Now that she is knowledgeable, she asks, "How did we miss this?" At the time of diagnosis, she was drinking a lot of water and staying inside when she hated water and would normally spend all her time outside with friends. Now that she owns her diagnosis and shares it some people complain about her talking about diabetes too much, even though she has already explained, it is something we cannot turn off. Neo says how for some people they have their own perceived understanding of what diabetes is and when we try to explain it, they still will be argumentized.For Neo it's almost like her diagnosis was her parents' diagnosis. She remembers how involved they were in her care and looking out for her well-being.Neo lives by the saying, "God doesn't give us hurdles that we cannot conquer and God chooses his best and greatest soldiers to fight his battles."Follow Neo on Instagram and learn more about living with T1D in Freestate, South Africa @pabii_moffat

In episode, we feature Dr. Nicole Videla, EdD. instagram.com/nikovid3la/Dr Nikki is a mother, wife, and an educator in higher education in the New York area for over 17 years. Recently, Dr. Nikki and family relocated from New York to Charlotte.Dr Nikki was diagnosed with Type Diabetes 10 years ago at the age of 33. Initially misdiagnosed, she was unaware of the signs of diabetes. Before her diagnosis, she held many stereotypes about diabetes, only to realize she lacked a true understanding of the condition and its implications.During this conversation, we explore various aspects of life, including how managing diabetes has become second nature while prioritizing her family remains essential. Even while nursing her children as infants, she found ways to multitask despite experiencing low blood sugar levels.At the start of her diagnosis, she took an isolated approach, considering it solely her health and her disease. Gradually she learned more about diabetes and began involving her family in her care. It was after the birth of her son that she started exploring advancements in technology.Being diagnosed with Type 1 Diabetes at the age of 33 was entirely unexpected and took significant effort for her to accept. Today, she not only lives with Type One Diabetes but thrives with.Follow Dr. Nicole Videla on Instagram at instagram.com/nikovid3la/

@chronicallywillpodcast Season 2, Episode 75, Bags of Fun w/ @ladadiabeticbBetsy lives with LADA (Latent Autoimmune Diabetes in Adults) Type 1.5 diabetes.Betsy was originally misdiagnosed at age 22 in 2008. Betsy has been conquering T1D (LADA) for 17 years!At the time of diagnosis, she was playing competitive soccer.Betsy admires young people that live with diabetes and their prowess with sharing their diabetes technology. Betsy loves sharing memes & just funny things about living with diabetes.Follow Betsy on instagram @ladadiabeticb

First thing first, there are barriers for everyone living with T1D to be their best. Imagine this, with modern technology and medicine you were able to view how people across the world managed T1D but you and the community you serve every single day are fighting, struggling, traveling afar on foot and by bike to not only get the insulin youneed but to also give insulin to other warriors in need. This is life with T1D in Uganda and these warriors are more than proud to be able to aid others in just living life. This is why Ivan smiles. "It is a badge of honor to livewith Type One Diabetes."--IvanIvan at 16 started feeling thirsty and losing weight and told his school nurse about the frequent urination, she told him to go drink more water. That lasted for 4 weeks and then he was in and out of the hospital. That Birthed a lawyer that is passionate about T1D!In this conversation Ivan talks about how in rural areas some people with T1D go missing because families can't affordto care for T1D. Families can't afford to care for children with T1D and it being a great burden. Get to know Ivan @moivanivanA great challenge is for people that were diagnosed as kids, the people that make the decisions in healthcare that haveseen you grow up as a child they still see you as a child and you aren't often given the opportunity to speak as anadvocate because you are still seen as a child. With Ivan being a lawyer and advocate he is able to speak up and sharehow young people with diabetes feel and their needs.

Earl steps up to the mic from Cape Town, South Africa!Earl is a self-taught musician (from keys, to strings etc.) and came of age during the greatest era of hip hop and at a time in South Africa there were many messages in music around oppression and apartheid and such. Earl is a hip-hop head.Earl was diagnosed with T1D in 2012 at the age of 26 while in the U.S. He is a husband, a cat-dad and the youngest of 3. Earl works in Public Health with a primary focus is infectious diseases, non-communicable diseases, violent injuries and HIV/AIDS.When Earl was diagnosed at 26 it changed the full trajectory of his life. Leading up to his diagnosis Earl recalls noticingthree months prior that he was getting low symptoms. He realized while working a few hours after breakfast he would get shaky and start to sweat until he would eat. After that stopped, he started getting all the signs of hyperglycemiasuch as the frequent urination, itchy skin, irritation etc. Four days before leaving for the US he was pulled overfor driving erratic. He just felt mad all the time before his formal diagnosis. The cop left him with a warning.On this episode Earl gifts us some light on how things are around the globe and healthcare programs. We also speak greatly about our ancestors and our heritage and culture. Earl's greatest advice about living with T1D is, "Don't live in isolation!"Follow Earl on Instagram @Earl952

On this episode we get to hear from Bernetta @bernettastyleBernetta is a wife of 21 years and the mother to 3 amazing children.Bernetta was diagnosed with Type One Diabetes 10 years ago at 38.She is a graduate of Alabama State with a degree in Marketing and is a content creator that has worked with Disney and Steve Harvey. Bernetta is also a published author and founder of a nonprofit. Her nonprofit, Knighten Project provides foster children with brand new suitcases filled with essentials as they transition into adulthood.Bernetta speaks candidly about going through depression after living 38 years without T1D, having a family and career and then how in one moment all of that changed. Bernetta also talks about the need for medical personnel to give newly diagnosed adults the opportunity to be their best from day one instead of us having to learn everything through trial and error. Everyone diagnosed deserves the same attention to their diagnosis.What motivates Bernetta most in her T1D journey is her children, being able to see them go to college, grow and just push her to be her best. Our conversation is full of love as we dive in to how our children are one thing that goes even ahead of our T1D care.Get to know Bernetta and follow her @bernettastyle

On this episode we continue our travels around the world and visit Delhi, India to have a chat with Anurati. Anurati was diagnosed with Type One Diabetes at the young age of 15, almost 12 years ago.Today you can follow Anurati as she journals her life living with T1D over Instagram. Anurati works as a counseling psychologist in the T1D community. She also manages multiple social media accounts. One of her greatest joys is her love for Art in all aspects.Her life truly changed at 15. She had no previous knowledge of T1D and in one day her life changed completely. Her maternal grandmother lived with T2D. She couldn't believe that she was sick now and forever. This new life was scary for her, and she would express herself by only crying because she had no idea about this condition.Anurati expresses how she is who she is today because of that diagnosis. Anurati also thanks the T1D community for coming through for her at times in need and because she has met some of her best friends because of her diagnosis of Type One Diabetes.Anurati wants people to know that living with T1D although it is difficult, it is not impossible.Anurati loves life!

Toni calls in from China. Toni has lived in China now for 6 years. She went to China for University.Originally from the Bahamas Toni was diagnosed T1D in 2013 at the age of 14. After high school she decided to move to China knowing how easily accessible insulin is, plus she was familiar with China. Her grandfather is from China. Toni has recently turned 26. In the Bahamas all diabetes care supplies are 100% covered until 18 and if you are in school you are covered until 26. In China she must see her endocrinologist every month.Toni speaks about seeing the relationships with China and the US (brother/sister) and how when Obama was in officehow great it was but today it is not.In December 2019, Toni left on the last flight out from China to the Bahamas. She did not know that it was the last flight out. There were no regulations at the time. Then she heard of the "China Flu" and Covid came, and it changed the world. When she arrived home to the Bahamas she had to quarantine for 8 days.The way Toni was diagnosed, for her is funny looking back on it. She was in food and nutrition class and got burned.She went to the nurse and her blood sugar was tested the nurse told her that she needed to call her mom, not wanting to concern Toni, she gave her a water bottle and asked her to walk around the school. Her mom came and rushed her to the hospital. Her blood sugar was over 600!The age of 14 is a great transitional time for all growing young girls, for Toni it was even that much greater after being diagnosed with T1D. The great thing is that Toni had then and still has today a family and support system that stays by her side, continues to love and support her, went through every diabetes education course with her and just remained her core from day one.Follow Toni on Instagram Type1Toni242

On this episode we travel to Miami by way of Argentina so you will hear from my good friend Evelyn. Evy was diagnosed T1D in 2003 at 9 years young. Evy has a dog walking business and is a recent college graduate in biology!! Evy got her first pump at 9 and truly had no clue what she was doing but had to self-manage. With her mom being an immigrant from Argentina, there were great barriers in understanding the language of diabetes. Today Evy has all the diabetes hacks! She trulyhas invested her time in understanding her management and learning her diabetes. Evy speaks greatly about how we should all know and have an understanding of the basics in diabetes care, even without technology. Evy recalls as a kid having to be the translator between her mom and the doctor. When her insulin pump would malfunction, even as young 9-year-old she would have to contact her diabetes care team all hours of the night trying to figure out what to do next.In this conversation Evy and I talk about healthcare workers and proper bedside manner. We also speak about how we're not listened to when we enter medical facilities and instead, we often are forced into conversations that we did not ask for nor warrant. As Evy says, "Just show empathy," and show that the patient/client has value because we are already flustered with living with a chronic health condition. We also speak about how culturally communities still don't understand that little 9-year-old Evy had nothing to dowith this diagnosis and how even 21 years later many still treat it as if it was and is her fault. Even as a kid shewas told that she needed to forgive to be cured of her diabetes. This put a heavy toll on Evy and her family.Since her diagnosis her mom and her grandmom were her biggest supporters. Her grandmom would make sure that during family events there was always drinks and food options for her little Evy. Knowing that someone has your back makes it a little bit easier.Evy is someone we should all get to know in the T1D space. Follow her on social mediaInstagram @senoritamusclesTiktok @senoritamuscles

@chronicallywillpodcast Season 2 Episode 68: Capital T (Trauma) & Align Your Wellness w/ @deeksha.dev_t1dOn this episode you will hear from Deeksha. Deeksha was diagnosed T1D on World Diabetes Day Nov 14, 2000, at age 4.She is a trained Psychologist that works with People living with Diabetes, especially caregivers.This year she started her own organization - Align Your Wellness Foundation that will focus on mental health & diabetes.Originally, she wanted to go to school for architecture, but her brother saw something else in her. She did not initially believe him.Eventually, she interned at the same hospital she was diagnosed in & ended up counseling a newly diagnosed T1D & his parents. Life came full circle for her.Being diagnosed so young, Deeksha acknowledges her great support system of caregivers & how they learned & took on diabetes just as she did. This includes her parents & her brother.In India, the most populated region in the world of people living with diabetes, there is simply not enough endocrinologists to cover the amount of people living with diabetes. Doctors are doing as much as they can in the limited time they have for each patient.In public clinics, one might spend an entire day waiting to be seen. The discrepancy in care does go hand in hand with affordability.Deeksha & her peer advocates are doing everything they can to get things affordable to all in India & insulin free for all.Currently, there is a 18% tax on CGM'S as if it is a luxury when it is a necessity.There is a current petition to remove the tax on CGM's, insulin or any consumable.Deeksha wants everyone to know that living with T1D will be a hell of a roller coaster ride, but it isn't a bad life with diabetes, learn diabetes & don't try toabsorb all of the information at once, Community will guide you through the little phases of darkness because there is light at the end of tunnel & there's this very big garden & family that you will find support in when it comes to T1D. Worry a little, learn more.Follow Deeksha on Instagram @deeksha.dev_t1d

On this episode we take a trip halfway around the world with Thando. Thando is from Johannesburg, South Africa. She is 27 years old and was diagnosed with Type One Diabetes on November 11, 2022. She is in her toddler stages of living with T1D.During her diagnosis she was in a coma for 2-3 days. Her grandmom knew something was wrong and was persistent that she gets checked out.After her diagnosis her parents did want her to move back home but she decided not to because they have a different opinion on how to deal with diabetes. Plus, Thando didn't want to rely on people and chose to take the time to learn about diabetes herself. Her parents still don't understand her diabetes, how she got it or why she has to take insulin.Being diagnosed 2 years ago has created issues in some of her relationships with loved ones. They still can't believe thatThando at age 27 her life changed forever. It's also an awakening for her because after 27 years, everyday she's learning something new that she can't do nothing about. Thando does mourn her first 25 years of life and not having to worry about or think about diabetes. This does cause her to isolate.Follow Thando on Instagram

On this episode we will hear from Dr Alisha Brown.Alisha was born and raised in NJ and has a passion for the arts. Initially she wanted to be a medical doctor but got to college and got burnt out from all the science classes.Today Alisha owns a small PR Firm, Alishamoniquepr.com where she works with women in small, owned businesses. She does this intentionally to help champion women. She is also currently an adjunct professor at her alma mater teaching marketing and communications classes.During the pandemic Alisha began her PR firm and was at the time dealing with a ton of stress but it wasn't until her mom repeatedly told her that she looked skinny and that she had lost a lot of weight and then made her hop on a scale. It was only then that she noticed she had loss 25lbs. Shortly after she was diagnosed with Type One Diabetes (LADA). This was smack in the middle of her doctoral program. After her diagnosis she did beat herself up for not recognizing her own need.During her first visit with an endo, even after keeping a manual log of all her blood sugar readings and notes of all the foods she ate the endo told her, "This is cute but it's not sustainable." She gave her no guidance on that. Insteadwhen her A1C went down to a 5.4 she was accused of skipping meals. The next endo visits after Alisha's A1C went up to an 8, she told her that her diabetes was completely out of control! The endo refused to keep her as a patient unless she used an insulin pump. In that moment Alisha knew that this was not the endo for her. She tolerated it for too long.After that Alisha phoned mom and mom came to the rescue and helped her find a new endocrinologist.Follow Alisha on Instagram @notyourtypicaldiabetic

On this episode we will hear from Evita. Evita was diagnosed with Type One Diabetes in 1995 at 14 years old and has been living with T1D for 29 years. She is a mother of 3 and is a RN for almost 20 years, and works with peoplewith chronic disease management and case management and is currently on a track towards her doctorate.At the age of 12 her father passed, and her family moved from Florida to Virginia. This was such a pivotal moment in young Evita's life. Experiencingthe events of trauma did lead up to her diagnosis.Being a teenager with Type One Diabetes was the worse for Evita. She didn't want to give herself insulin and was a bit rebellious. Her mom would give her injections. At the time she was on NPH and Regular insulin. Even in the hospital when they were training her on injecting an orange, she insisted her mom do it. Her mom broke all the needles she was given, hence Breaking Needles!She remembers coming home from the hospital and getting a lot of attention and her cousin saying to her he wishes he had diabetes because she was getting all the attention. All she could say was,you don't want this; you don't want this at all.Evita has been able to pilot some programs in her career as an RN including one that helped reduce a1c's by strictly engaging in community and peer support.Going into her junior year of high school Evita found out she was pregnant with her oldest daughter, now 26. She talks about those rebellious years, dealing with diabetes and how hard it was in labor.What keeps Evita motivated even on days of burnout or when she doesn't want to do diabetes, are a reminder to herself, if you want to keep living and feeling ok that you have to do it!On the day Evita is cured from Type One Diabetes she said the first thing she will do is run a mile and then go to Disney!! On that day we're going to Disney!!Thank you, Evita,Follow Evita on Instagram @_eeeevieee_