PODCAST · health
Adventures in Neuropathy Land
by Howard Brayer
The podcast delves into my experience of living with neuropathy, starting with my background and life before neuropathy, then dealing with living with it.
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Episode 35: Physical Therapy
In this episode I talk about my most recent round of physical therapy.
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Episode 34: Pain Management
In this episode I discuss a visit to a pain management doctor and his proposed plan of action.
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Episode 33: All Rhodes Lead to Syracuse
In this episode I talk about my trip to Syracuse, Italy and Rhodes, Greece.
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Episode 32: Foundation for Peripheral Neuropathy Webinars
This episode is about the six webinar series being put on this summer by the Foundation for Peripheral Neuropathy.
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Episode 31: Interview with Mike
In this episode I interview Mike who is also dealing with neuropathy.
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Episode 30: What Should I Do?
Faced with a new treatment plan, I am unsure what to do.
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Episode 29: (Almost) the End of a Line
In this episode I talk about my latest medical developments and the next steps.
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Episode 28: Looking for Feedback
In this episode I ask my listeners to provide feedback related to the podcast. ( My email address is [email protected])
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27
I Got a Divorce From My Body
In this episode I provide a medical update and explain what I mean when I say I got divorced from my body.
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Episode 26: The Man Who Cried Wolf
In this episode I talk about sounding like a broken record and then some negative and positive thoughts about my current physical condition.
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Episode 25: Smile
In this episode I talk about smiling to strangers.
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Episode 24: Interview with James
In this episode I interview James who is also dealing with neuropathy.
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23
Walking Man
In this episode I talk about my current and future ability to walk.
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Episode 22: Interview with my husband Don
In this episode I interview my husband Don about how he is coping with my illness.
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21
Episode 21: A New Horizon?
In this episode I discuss my appointment in January 2024 with the neurologist at the University of Miami who I had seen in 2022 and early 2023.
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Episode 20: Two Avenues
In this episode I talk about what I did in response to my neurologist refusing to treat me with rituximab without getting a second opinion.
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Episode 19: Interview with Roy
In this episode I interview Roy who lives in Tennessee and also deals with having neuropathy.
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Episode 18: Frustration Sets In
In this episode I discuss my second round of IVIG treatment for neuropathy and my follow-up visit with my neurologist.
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Episode 17: A Treatment Failed
In this episode I discuss the aftermath of my IVIG treatment for neuropathy.
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Episode 16: A Treatment Tried
In this episode I talk about my hospital stay in early August of 2023 for IVIG treatment.
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Episode 15: To the Emergency Room We Go
Description: In this episode I tell about my hospital emergency room visit in order to begin treatment for anti-mag neuropathy.
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Episode 14: After Diagnosis the Next Steps
In this episode I describe the initial treatment after my diagnosis of anti-mag neuropathy.
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Episode 13: A Diagnosis
In this episode I get a diagnosis of my condition after two years of symptoms.
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Episode 12: Pain and Discomfort
In this episode I describe how my pain and discomfort greatly increased in the summer of 2023.
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Episode 11: A Trip to the Hospital or Another Bad Trip
In this episode I take a long trip to the hospital for an uninviting stay.
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Episode 10: Bad Trips
In this episode I recount bad trips to the doctor and to Mexico.
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Episode 9: A Good Night’s Sleep
In this episode I review the importance of sleep and my experience with lack of it.
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Episode 8: Mental Health and Well-Being
In this episode I look at my mental health and dealings with mental health professionals.
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Episode 7: Jumping Ahead
Episode 7: In this episode I describe how I am feeling at the time of the recording. I plan to go back and fill in details of what has happened the past few months in future episodes.
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Episode 6: A Summary of My Story to Date, in Rhyme
In the episode, with an assist from the artificial intelligence system chatGPT, I summarize the story to date, with a quick peak into future episodes. It’s mostly in rhyme.
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Episode 5: Changes are Beginning
This episode takes us through the second half of 2022 and into 2023, with new doctors and new symptoms.
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Episode 4: On to 2022, Still No Clue
We move on to a new year with no diagnosis and more doctors to see.
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3
Doctor Doctor Give Me the News - Part 2
This episode recaps my travails with neuropathy through the summer and fall of 2021, frustrated with no diagnosis but no real worsening of symptoms.
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Doctor Doctor Give Me the News - Part 1
This episode takes me through the Summer of 2021, from my first neuropathy symptoms to my first encounters with the medical system as a neuropathy patient.
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Moving to a New Land
In this episode, I talk about my background, including where I grew up, my family, career, and retirement. I conclude with the first signs of neuropathy.
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