All Things Adrenal

Vanessa sits down with NADF's Pennsylvania Support Group leader AJ Connor to talk about how his teenage Addison's disease diagnosis played out, how it inspired his nursing career, and what advantages there are to being both a patient and a health care professional when it comes to advocacy for adrenal diseases. AJ offers helpful tips on using patient advocates in hospital settings and mindfulness in managing adrenal insufficiency symptoms.AJ Addison's Disease Journey - YouTubeWatch AJ's presentation from Navigating Adrenal Health 2025Support groups are for everyone! Learn more and sign up at NADF.us/support-groups'All Things Adrenal’ is sponsored by the National Adrenal Diseases Foundation and Neurocrine. NADF is non-profit organization for patients and caregivers, with a vision of a world without suffering or death from adrenal disease. NADF does not practice medicine and does not provide medical advice. NADF is not a medical authority and does not claim to have medical expertise. The information shared in this podcast is for educational purposes only and should not be considered medical advice.April is Adrenal Disease Awareness Month! Celebrate with us all month long. Click here for more details.Follow us on social media: Bluesky - Facebook - Instagram - Threads - TikTok - X

Vanessa sits down with Meg Zinky, NADF's interactive media designer, to talk about all the plans falling into place for Adrenal Disease Awareness Month. From online conferences to social media challenges to getting proclamations issued, find out how you can join in the activities online, on your couch, and in your community.Follow us on social media: Bluesky - Facebook - Instagram - Threads - TikTok - XNADF.us/AADAM for information on Light Up for Adrenal, proclamation template letters, conference registration, and more. NADF.us/April7 for information on international celebrations, the AAES webinar registration, and the IAC's incredible work.We are excited to raise awareness with you!'All Things Adrenal’ is sponsored by the National Adrenal Diseases Foundation and Neurocrine. NADF is non-profit organization for patients and caregivers, with a vision of a world without suffering or death from adrenal disease. NADF does not practice medicine and does not provide medical advice. NADF is not a medical authority and does not claim to have medical expertise. The information shared in this podcast is for educational purposes only and should not be considered medical advice.April is Adrenal Disease Awareness Month! Celebrate with us all month long. Click here for more details.Follow us on social media: Bluesky - Facebook - Instagram - Threads - TikTok - X

Vanessa and her friend (and NADF's newest employee) Lesley Myrvold get in deep with a discussion about grief and adrenal insufficiency. Along the way they chat about Lesley's teenage diagnosis with Addison's, the importance of true friendship, and how Lesley balances a full work life, weekend volunteer work, and her PAI diagnosis.A friendly reminder from Vanessa and Lesley: It's ok to stress dose when you feel like you need it! Click here for NADF's Stress Dosing Guidelines'All Things Adrenal’ is sponsored by the National Adrenal Diseases Foundation and Neurocrine. NADF is non-profit organization for patients and caregivers, with a vision of a world without suffering or death from adrenal disease. NADF does not practice medicine and does not provide medical advice. NADF is not a medical authority and does not claim to have medical expertise. The information shared in this podcast is for educational purposes only and should not be considered medical advice.April is Adrenal Disease Awareness Month! Celebrate with us all month long. Click here for more details.Follow us on social media: Bluesky - Facebook - Instagram - Threads - TikTok - X

Dr. Elizabeth Regan joins Vanessa to discuss how her skills as a researcher and her adrenal insufficiency diagnosis combined to motivate her to create the MyAI registry and be a medical detective in her own healthcare. They also lay out a vision for how the whole community can come together to further adrenal insufficiency research.Watch Dr. Regan's presentation on the MyAI registry >>Learn more about the MyAI registry >>'All Things Adrenal’ is sponsored by the National Adrenal Diseases Foundation and Neurocrine. NADF is non-profit organization for patients and caregivers, with a vision of a world without suffering or death from adrenal disease. NADF does not practice medicine and does not provide medical advice. NADF is not a medical authority and does not claim to have medical expertise. The information shared in this podcast is for educational purposes only and should not be considered medical advice.April is Adrenal Disease Awareness Month! Celebrate with us all month long. Click here for more details.Follow us on social media: Bluesky - Facebook - Instagram - Threads - TikTok - X

Come be a fly on the wall as Vanessa chats with her friend Heidi Engelhardt about living an active life with Addison's disease, what it's like to receive a diagnosis at a young age, and the importance of stress dosing for emotional stress and grief.Plus Heidi and Vanessa share their words of advice for teens and young adults living with adrenal disease.Heidi is the NADF Colorado Support Group leader. Are you part of our network of support groups? We want to connect you with people who understand what you're going through, whether as a patient or a caregiver. Check out our list of regional and specialized support groups and get signed up today.Reach out to NADF for support with your adrenal disease: [email protected]'All Things Adrenal’ is sponsored by the National Adrenal Diseases Foundation and Neurocrine. NADF is non-profit organization for patients and caregivers, with a vision of a world without suffering or death from adrenal disease. NADF does not practice medicine and does not provide medical advice. NADF is not a medical authority and does not claim to have medical expertise. The information shared in this podcast is for educational purposes only and should not be considered medical advice.April is Adrenal Disease Awareness Month! Celebrate with us all month long. Click here for more details.Follow us on social media: Bluesky - Facebook - Instagram - Threads - TikTok - X

Erin Foley-Moudry, MPH, the co-president of the NADF board, stops by to chat with Vanessa about her involvement with NADF since her adrenal insufficiency diagnosis at age 19. Erin talks about how the organization has grown and evolved, and how listeners can support NADF to grow further and continue its mission of finding a world without suffering and death from adrenal insufficiency.Learn more about NADF support groupsDonate to NADFConnect with Erin via emailRequest emergency injection and wallet ID cards'All Things Adrenal’ is sponsored by the National Adrenal Diseases Foundation and Neurocrine. NADF is non-profit organization for patients and caregivers, with a vision of a world without suffering or death from adrenal disease. NADF does not practice medicine and does not provide medical advice. NADF is not a medical authority and does not claim to have medical expertise. The information shared in this podcast is for educational purposes only and should not be considered medical advice.April is Adrenal Disease Awareness Month! Celebrate with us all month long. Click here for more details.Follow us on social media: Bluesky - Facebook - Instagram - Threads - TikTok - X

Julia Anthony, Founder of SOLUtion Medical, talks with Vanessa about working towards an adrenal insufficiency auto-injector, how having CAH paved the way for her life's work, and the importance of educating in all directions.Is your emergency kit ready to go? Check NADF's handy list to find out how ready you are.Learn how to give an emergency Solu-Cortef injection: For adults (video)For pediatric patients (video)Download PDF instructionsOrder your FREE emergency injection card to carry with your kitVisit the SOLUtion Med Co websiteFollow SOLUtion on Instagram, Facebook, and LinkedIn'All Things Adrenal’ is sponsored by the National Adrenal Diseases Foundation and Neurocrine. NADF is non-profit organization for patients and caregivers, with a vision of a world without suffering or death from adrenal disease. NADF does not practice medicine and does not provide medical advice. NADF is not a medical authority and does not claim to have medical expertise. The information shared in this podcast is for educational purposes only and should not be considered medical advice.April is Adrenal Disease Awareness Month! Celebrate with us all month long. Click here for more details.Follow us on social media: Bluesky - Facebook - Instagram - Threads - TikTok - X

Vanessa interviews Dr. Liza Lindenberg about Primary Aldosteronism, its effects on blood pressure, and the study Dr. Lindenberg is conducting around diagnosis.Visit Dr. Lindenberg's study, "Evaluating the Functional Status of the Adrenal Glands With [68Ga]Ga-PentixaFor in Hyperaldosteronism and Hypercortisolism"Contact the research nurse for the study, Yolanda McKinney.-------------------Looking for support and community? Join one of NADF's support groups today. Contact [email protected] to learn more.'All Things Adrenal’ is sponsored by the National Adrenal Diseases Foundation and Neurocrine. NADF is non-profit organization for patients and caregivers, with a vision of a world without suffering or death from adrenal disease. NADF does not practice medicine and does not provide medical advice. NADF is not a medical authority and does not claim to have medical expertise. The information shared in this podcast is for educational purposes only and should not be considered medical advice.April is Adrenal Disease Awareness Month! Celebrate with us all month long. Click here for more details.Follow us on social media: Bluesky - Facebook - Instagram - Threads - TikTok - X

Vanessa introduces listeners to the wide spectrum of experience that is Cushing's Syndrome before diving into a conversation with disability advocate and author Wendy Moses. Wendy generously shares her experience moving from Cushing's syndrome to Addison's disease, and the difference surgery has made in her life.---------------Find your people: NADF Support GroupsOrders Wendy's books off her website and use promo code ATA for free shipping!Follow Wendy's advocacy work with the following foundations:Make-A-Wish FoundationCushing's Support and Research FoundationDisability Book Week'All Things Adrenal’ is sponsored by the National Adrenal Diseases Foundation and Neurocrine. NADF is non-profit organization for patients and caregivers, with a vision of a world without suffering or death from adrenal disease. NADF does not practice medicine and does not provide medical advice. NADF is not a medical authority and does not claim to have medical expertise. The information shared in this podcast is for educational purposes only and should not be considered medical advice.April is Adrenal Disease Awareness Month! Celebrate with us all month long. Click here for more details.Follow us on social media: Bluesky - Facebook - Instagram - Threads - TikTok - X

Curious about CAH? Seeking community as a parent or caregiver of an adrenal insufficient child? Vanessa interviews Jenna W. Coura about parenting a child with Congenital Adrenal Hyperplasia, adjusting her vision of parenting futures on the fly, and finding her work in the world of adrenal disease information sharing as a person with fully functioning cortisol.Buy Jenna's book Welcome to Congenital Adrenal Hyperplasia: A Handbook for New CAH Families  >> Bookshop.org  Amazon.com (All proceeds benefit CAH-related non-profit groups)Watch Jenna's CAH videos on YouTube >>Join the MAGIC Foundation on Facebook >>'All Things Adrenal’ is sponsored by the National Adrenal Diseases Foundation and Neurocrine. NADF is non-profit organization for patients and caregivers, with a vision of a world without suffering or death from adrenal disease. NADF does not practice medicine and does not provide medical advice. NADF is not a medical authority and does not claim to have medical expertise. The information shared in this podcast is for educational purposes only and should not be considered medical advice.April is Adrenal Disease Awareness Month! Celebrate with us all month long. Click here for more details.Follow us on social media: Bluesky - Facebook - Instagram - Threads - TikTok - X

Vanessa interviews Hilary Hodge, author of the forthcoming book The Art of Parenting While Sick, about the additional life skills it takes to manage multiple chronic illnesses, and how foundations and individuals are filling in the gaps between what medical professionals can provide.Upcoming events with Hilary HodgeFollow Hilary on InstagramFollow Vanessa on Instagram and YouTubeNADF's Patient Resources available for download'All Things Adrenal’ is sponsored by the National Adrenal Diseases Foundation and Neurocrine. NADF is non-profit organization for patients and caregivers, with a vision of a world without suffering or death from adrenal disease. NADF does not practice medicine and does not provide medical advice. NADF is not a medical authority and does not claim to have medical expertise. The information shared in this podcast is for educational purposes only and should not be considered medical advice.April is Adrenal Disease Awareness Month! Celebrate with us all month long. Click here for more details.Follow us on social media: Bluesky - Facebook - Instagram - Threads - TikTok - X

Vanessa interviews Dr. Smita Abraham about the adrenal glands and how they function ... or don't.Learn more about adrenal diseases on the NADF website.'All Things Adrenal’ is sponsored by the National Adrenal Diseases Foundation and Neurocrine. NADF is non-profit organization for patients and caregivers, with a vision of a world without suffering or death from adrenal disease. NADF does not practice medicine and does not provide medical advice. NADF is not a medical authority and does not claim to have medical expertise. The information shared in this podcast is for educational purposes only and should not be considered medical advice.April is Adrenal Disease Awareness Month! Celebrate with us all month long. Click here for more details.Follow us on social media: Bluesky - Facebook - Instagram - Threads - TikTok - X

Host Vanessa O'Rourke shares her journey with Addison's disease, from crisis to diagnosis to managing her adrenal insufficiency today.Follow Vanessa on social media:InstagramYouTube'All Things Adrenal’ is sponsored by the National Adrenal Diseases Foundation and Neurocrine. NADF is non-profit organization for patients and caregivers, with a vision of a world without suffering or death from adrenal disease. NADF does not practice medicine and does not provide medical advice. NADF is not a medical authority and does not claim to have medical expertise. The information shared in this podcast is for educational purposes only and should not be considered medical advice.April is Adrenal Disease Awareness Month! Celebrate with us all month long. Click here for more details.Follow us on social media: Bluesky - Facebook - Instagram - Threads - TikTok - X

Welcome to ‘All Things Adrenal’, a monthly podcast dedicated to education, awareness, and stories from individuals living with adrenal disease.'All Things Adrenal’ is sponsored by the National Adrenal Diseases Foundation and Neurocrine. NADF is non-profit organization for patients and caregivers, with a vision of a world without suffering or death from adrenal disease. NADF does not practice medicine and does not provide medical advice. NADF is not a medical authority and does not claim to have medical expertise. The information shared in this podcast is for educational purposes only and should not be considered medical advice.April is Adrenal Disease Awareness Month! Celebrate with us all month long. Click here for more details.Follow us on social media: Bluesky - Facebook - Instagram - Threads - TikTok - X