Healing Space

In one of the most impactful episodes of Healing Space yet, Cara speaks directly to the quiet fears and crushing self-blame so many people with HS carry alone. With honesty, clarity, and tenderness, she walks listeners through the harmful stories we absorb — that HS is caused by poor hygiene, weight, food choices, lack of discipline, or even moral failure — and systematically replaces them with truth and compassion.Cara breaks down why these beliefs feel so convincing, how society reinforces them, and why none of them are rooted in science or reality. She names the shame, the comparison, the guilt, and the “maybe this is my fault” questions that live inside so many chronically ill people. And for each one, she offers a new narrative: You did not cause this. You are not dirty. You are not lazy. You are not being punished. You deserve care simply because you are human.This episode is a grounding reminder that HS is a chronic autoinflammatory condition — not a consequence of choices or character — and that releasing blame is a radical act of healing.A companion worksheet is available to help listeners unpack and rewrite the stories they’ve been carrying.Explore more episodes, tools, and guided emotional support at hsconnect.org/healingspace.This podcast was made possible by UCB.

Living with hidradenitis suppurativa often means carrying more than physical pain — it means carrying it quietly. In this episode of Healing Space, we talk about the part of HS that rarely gets named: secrecy.Why so many of us hide our diagnosis. The difference between healthy privacy and punishing silence. Why your story can feel fragile — like an egg — after diagnosis. How to recognize who is actually safe to tell. And what gentle disclosure can look like in real life.If you’ve ever felt pressure to explain yourself, guilt for staying quiet, or shame for protecting your story, this conversation is for you. You are not weak for keeping HS private — you were surviving.This episode is paired with a reflective worksheet available at hsconnect.org, designed to help you process secrecy without shame and take one small step toward connection, on your own terms.Sponsored by UCB, with gratitude for supporting patient-centered conversations and the HS community.This podcast was made possible by UCB.

If you’ve just heard the words hidradenitis suppurativa, this episode is for you.A new diagnosis can feel overwhelming, confusing, and frightening — sometimes all at once. In this Healing Space episode, we slow everything down and focus on what actually matters in the very beginning.We talk about:Why your emotions feel big and contradictoryWhat a diagnosis really means — and what it doesn’tWhat you don’t need to figure out yetHow to take your first next step without urgency or panicHow to protect your mental health from information overloadYou are not broken. You are not failing. And you do not need to become an HS expert overnight.This episode is paired with a gentle “Start Here” worksheet available at hsconnect.org, created to help newly diagnosed patients process, breathe, and find their footing — without pressure.Sponsored by UCB, thank you for supporting Healing Space and helping ensure newly diagnosed patients don’t have to navigate this moment alone.This podcast was made possible by UCB.

Special Episode with Brindley Brooks, MD Experts, & UCBIn this special Healing Space episode, Healing Space Host, Cara Nethery, is joined by HS Connect Founder & CEO Brindley Brooks and leading experts. for a powerful conversation on the silent struggles of living with hidradenitis suppurativa (HS) — and why mental health support is just as critical as physical treatment.Joined by Dr. Ginette Okoye, Professor and Chair of Dermatology at Howard University, along with Kajal Bhika from the UCB team, this episode explores the emotional toll of HS, including depression, anxiety, shame, isolation, and the impact on relationships, intimacy, and daily life.Together, the panel discusses:Why mental health is often overlooked in HS careThe hidden emotional burden of living with a chronic skin conditionHow HS affects relationships, self-esteem, and identityBarriers to accessing mental health supportThe importance of community, validation, and patient-centered careHow Healing Space was created to fill critical gaps in emotional and mental health resources for people living with HSThis episode also highlights how Healing Space — supported by UCB — was built to provide accessible, judgment-free mental health tools, alternative therapies, and community-driven support so patients never have to navigate HS alone.Whether you’re a patient, caregiver, or healthcare provider, this conversation offers insight, validation, and hope — and reinforces that HS is more than a skin condition. It’s a whole-person experience that deserves whole-person care.Learn more and access Healing Space resources at hsconnect.org.This podcast was made possible by UCB.

In this powerful episode of Healing Space, host Cara opens up a conversation many people living with chronic illness have never been given language for: the difference between capability and capacity. Drawing from real-life experiences shared across the HS community, Cara explains how chronic illness can shrink your daily capacity long before you ever sit down at your desk — and why this has nothing to do with laziness, weakness, or lack of motivation.Through relatable examples, gentle reframing, and compassionate storytelling, Cara guides listeners toward a new way of measuring their day: one that honors what their body has already carried, not what they feel they “should” be doing. If you’ve ever felt shame for slowing down, struggled with unpredictability, or wondered why simple tasks feel impossible on flare days, this episode will help you breathe easier.She also introduces a practical worksheet designed to help you explore your own capacity, reframe daily expectations, and create more emotional space for yourself — even on the hardest days.Listen now and explore more tools, worksheets, and community conversation at hsconnect.org/healingspace.This podcast was made possible by UCB.

In this gentle and grounding New Year episode, Cara invites listeners to rethink the pressure of “New Year, New You” when you’re living with a chronic condition like HS. While social media fills our feeds with highlight reels, transformations, and “best year yet” posts, Cara reminds us that every year looks different for every person — and that comparison is a natural, human response, not a failure.Drawing from real experiences shared across the HS community, she explores what to do when comparison hits, not how to pretend it doesn’t. With warmth and honesty, Cara walks through practical steps for naming your feelings without judgment, anchoring your goals in your own reality, recognizing the strength in your quiet wins, and understanding what your jealousy might actually be trying to tell you.She also reframes healing through the lens of seasons — reminding listeners that droughts, storms, and harvests each have their place, and no one’s timeline looks the same. This episode is a compassionate companion for anyone stepping into 2026 with fear, hope, exhaustion, or all three at once.If you need a soft place to land this season, this episode is for you. Explore more tools, episodes, and support at hsconnect.org/healingspace.This podcast was made possible by UCB.

Grief doesn’t only come after loss—it can begin the moment you receive a diagnosis that changes the future you imagined for yourself.In this deeply compassionate episode of Healing Space, host Cara explores what it means to grieve after a chronic illness diagnosis. From dismantling the myth that grief only applies to death, to walking through the emotional stages many experience after life-altering health news, Cara creates space for listeners to feel seen, validated, and understood.Using the well-known framework of the five stages of grief, Cara gently explains how denial, anger, bargaining, depression, and acceptance may show up—not as a checklist, but as a fluid, personal experience. Through a powerful real-life scenario and her own story, she illustrates how grief can look like mourning the body you once had, the career or dreams you envisioned, or the version of life you expected.This episode also covers:Different forms of grief, including anticipatory and delayed griefThe emotional and physical symptoms that often accompany griefWhy timelines don’t define strength or resiliencePractical, compassionate coping tools for moving through grief with careAbove all, this episode is a reminder that grief is not failure—it’s change. And even in the midst of loss, it’s possible to find meaning, support, and a life that is still full and beautiful.A companion worksheet is available to help listeners process and reflect alongside the episode. Find it and other resources at hsconnect.org/healingspace. This podcast was made possible by UCB.

In this episode, host Cara speaks directly to those who have lived with Hidradenitis Suppurativa (HS) for years — even decades. The ones who have weathered endless doctor visits, dismissive diagnoses, and a healthcare system that once didn’t understand their pain.If you’ve ever felt forgotten, hopeless, or too tired to try again, this episode is for you. Kara honors the strength, endurance, and resilience of long-time HS warriors and reminds listeners that the world has changed — new treatments, new research, and a new generation of providers are here because of you.Tune in for encouragement, validation, and practical tools to help you re-engage with care on your own terms, including:How to approach healthcare again after years of frustrationTools and documentation that can empower your next appointmentNew HS resources that didn’t exist before — from dermatologist finders to flare care kitsGentle reminders that hope isn’t naïve — it’s earnedYou survived the hardest years. You made the road smoother for everyone who came after. Now, you deserve access to the care and compassion you helped create.✨ Listen now, and explore resources, support, and community at hsconnect.org or hsconnect.org/healingspaceThis podcast was made possible by UCB.

In this heartfelt episode of Healing Space, host Cara opens up an honest, compassionate discussion about depression — what it really is, how it affects those living with Hidradenitis Suppurativa (HS), and most importantly, how to begin finding light again even on the hardest days Cara explains how depression goes far beyond sadness — it touches how you think, act, and feel. With HS, that emotional weight can grow heavier, as flares, pain, and isolation all feed into one another She explores the connection between inflammation and mental health, sharing research showing that HS patients are nearly twice as likely to experience depression compared to the general population. But this episode isn’t just about awareness — it’s about action. Cara gently walks listeners through four practical tools for managing low moods and breaking the “domino effect” of pain, loneliness, and self-criticism:🌿 Behavioral Activation: small, intentional activities that lift your mood — even when you can’t do everything you planned.💭 Thought Reframing: catching and challenging harsh self-talk (“I’m ugly because of my scars”) with self-compassion (“These scars show I’m strong”).🎶 Mood-Boosting Playlist: using music to shift your energy and emotions — from High Hopes to Shake It Off.🤝 Connection and Support: reaching out to friends, family, or online support groups — especially those who genuinely understand living with HS Cara reminds listeners that depression doesn’t mean weakness — it’s a signal your mind and body need care. Through awareness, connection, and small daily steps, healing becomes possible.✨ “You are not alone in this. Your scars tell a story of resilience, not defeat.”For more mental health resources visit hsconnect.org/healingspaceThank you to UCB for making the Healing Space possible. This podcast was made possible by UCB.

In this episode of Healing Space with Cara, we explore one of the most powerful and compassionate frameworks in chronic illness and mental-health life: Spoon Theory.Originally created by Christine Miserandino, Spoon Theory is a way to describe the limited energy many people living with chronic illness, disability, pain, or mental-health challenges experience each day. It helps us understand why even simple tasks — getting dressed, cooking, answering messages — can use up precious “spoons,” and why pacing, boundaries, rest, and self-compassion aren’t just helpful — they’re essential.For more resources check out hsconnect.org/healingspaceThis podcast was made possible by UCB.

We’re back! Host Cara kicks off Season 2 with an honest and vulnerable conversation featuring special guest Imani (@mottsworld_).Together, they open up about living with anxiety — from daily spirals to silent battles — and how it shows up in their bodies, relationships, and healing journeys. This episode is raw, relatable, and full of real coping tools that go beyond “just breathe.” ✨ Want to dig deeper? Download the free podcast companion worksheet to reflect, journal, and process alongside the episode: hsconnect.org/healingspace Whether you’re struggling quietly or learning to give your anxiety a voice — pull up a chair. You’re not alone here.This podcast was made possible by UCB.

On this week's episode, Dr. Barr, a dual-board certified dermatologist and pioneer in somatic psycho-dermatology, joins Dr. Kaitlyn and Cara to talk about what she does and how it helps HS patients. 🔗 HSConnect.org/healingspace: Free resources for HS warriorsThis podcast was made possible by UCB.

Navigating friendships, dating, and social spaces with Hidradenitis Suppurativa (HS) can feel isolating—but it doesn’t have to. 🌟 In this powerful episode, we sit down with SocialCydd (social media advocate and HS warrior) to unpack the real challenges—and triumphs—of building a vibrant social life while managing HS. This podcast was made possible by UCB.

You asked, and we’re answering! In this special part two of the Healing Space Podcast episode, we’ll discuss your burning questions about mental health, self-care, chronic illness resilience, and everything in between. From practical tips to heartfelt stories, this candid Q&A is packed with the wisdom, laughter, and support you’ve come to love from our community. Get comfy and enjoy this episode with Cara and Dr. Katelyn. This podcast was made possible by UCB.

You asked, we’re answering! In this special Healing Space Podcast episode, we’re diving into your burning questions about mental health, self-care, chronic illness resilience, and everything in between. From practical tips to heartfelt stories, this candid Q&A is packed with the wisdom, laughter, and support you’ve come to love from our community. Get comfy and enjoy this episode with Cara and Dr. Katelyn. This podcast was made possible by UCB.

Are you struggling with body image issues related to Hidradenitis Suppurativa? This episode is for you! 💪 Cara and Dr. Katelyn get real about the challenges and share actionable steps you can take to improve your relationship with your body. Learn how to:Challenge negative self-talkFocus on self-care and self-compassionCelebrate your body's strengths. Tune in and start your journey to body acceptance today!hsconnect.org/healingspaceThis podcast was made possible by UCB.

Welcome to The Healing Space Podcast, Episode 3! This week, Dr. Katelyn Baker and Cara welcome the amazing Cristina Curp to discuss nutrition and its role in living with Hidradenitis Suppurativa (HS). 👩‍⚕️🎙️ They will be sure to unpack topics of the body and nutrition. We understand that the journey with HS is multifaceted. As we discuss nutrition with Cristina, we will address questions like:What are some common nutritional challenges for HS patients?What is the emotional impact of dietary restrictions?How can HS patients find a balanced and healthy approach to nutrition? Tune in for practical tips, personal stories, and empowering advice. At The Healing Space Podcast, we aim to support everyone in many ways, meeting them where they are in their journey.This podcast was made possible by UCB.

Join Cara and Dr. Katelyn Baker on The Healing Space Podcast as they get deeply personal. This week, Dr. Katelyn opens up about her journey with Hidradenitis Suppurativa (HS), sharing the emotional and physical challenges she's faced, and how it fuels her passion for mental health advocacy within the HS community. Discover the power of shared experience, the importance of validating your feelings, and practical tips for navigating the emotional complexities of living with HS. Whether you're newly diagnosed or a long-time HS warrior, this episode offers connection, understanding, and a reminder that you're not alone. Plus, learn how Dr. Katelyn's personal journey inspired her to create invaluable resources within HS Connect's Healing Space!This podcast was made possible by UCB.

Join hosts Cara (@cara_online), an HS advocate, and Dr. Katelyn (@thatfatdoctor), for the very first episode of Healing Space—a podcast dedicated to smashing stigmas and building community for those navigating hidradenitis suppurativa (HS). In this raw, heartfelt premiere, Joey Torre (@joeytorre718)—co-founder of the HS Brotherhood Support Group—opens up about his journey with HS. Joey shares:🔹 Why “talking to someone” isn’t weak—it’s a radical act of survival for HS warriors.🔹 The unique challenges men face in seeking mental health support (and how the HS Brotherhood is changing the game). Perfect for anyone who’s ever felt “too broken” to ask for help—or wondered if they’re the only one struggling to balance HS with their identity. Follow Healing Space:🌐 Website: hsconnect.org/Healing-Space🎧 Subscribe wherever you get podcasts! #HSHealingSpace #HSWarrior #ChronicIllnessPodcast #HidradenitisSuppurativaThis podcast was made possible by UCB.