Life With a Difference

In this episode, I go through some of the key takeaways from this season.I cover what I have learned from different conversations, practical advice that came up, and a few things I have been noticing through my advocacy work.This includes navigating care in a crisis, dealing with the realities of chronic conditions, and some thoughts for patients, carers, and healthcare professionals.⸻00:00 Why I am doing this02:30 Emergency care and specialist centres05:30 Medication, pressure and misinformation08:40 NHS challenges and patient burden10:45 Current treatment and therapies12:15 Podcast direction and future plans15:40 Practical advice and therapy17:15 Supporting carers18:35 Advice for parents21:30 Mental health resources23:55 Advocacy and working with healthcare professionals25:45 Getting involved in advocacySocial media:Instagram https://www.instagram.com/lifewithadifferencepodcast/TikTok https://www.tiktok.com/@lifewithadifferenceLinkedin https://www.linkedin.com/in/andrew-collinson/Please get in touch if I can help in any wayBlog:https://www.lifewithadifference.info/buymeacoffee.com/lifewithadifference

In this episode of Life With a Difference, I’m joined by Professor Carsten Flohr, Professor of Dermatology at St John’s Institute of Dermatology, King’s College London, and Consultant Dermatologist at Guy’s and St Thomas’ NHS Foundation Trust.Through my work as a patient advocate, I regularly encounter myths and misconceptions about clinical trials, from fears about being a “guinea pig” to concerns about safety, placebo, and being locked in once you start. This conversation is intended to help address those concerns and explain, in plain language, how clinical trials actually work.We also explore why trial participation is so vitally important. Without people choosing to take part, new medicines cannot be developed, tested, or approved. Clinical trials are the foundation of progress in medicine, and they are how safer, more effective treatments reach patients who desperately need them.What we cover00:00 Intro00:31 Who Professor Flohr is and why clinical trials matter02:20 How medicines are developed, from discovery to post-marketing monitoring03:50 Phase 1, 2, 3 and 4 explained04:20 MHRA, NICE and NHS commissioning in the UK06:05 QALYs and how NICE assesses value for money08:10 What a clinical trial actually is09:05 Common myths and misconceptions about trial participation10:00 Trial design, washout periods and independent oversight13:10 What a trial visit looks like in real life16:30 Endpoints, placebo and open-label extensions18:20 Your right to withdraw at any time19:05 What happens when a trial ends21:50 Why diversity in trials matters and who is under-represented24:40 Reimbursement, remote trials and patient involvement30:15 How to find clinical trials and trusted resources38:05 Final advice for patients considering researchResources mentionedUK Clinical Trials GatewayClinicalTrials.govUK Dermatology Clinical Trials NetworkBritish Skin FoundationNational Eczema SocietyPsoriasis AssociationNIHRSponsorship and transparencyThis episode was sponsored by Novartis. Novartis had no editorial control over the content. This episode is non-promotional, for educational purposes only, and does not provide medical advice. No medicines are discussed or endorsed. Always speak to your clinician or research team for personal medical guidance.

In this episode of Life With a Difference, I’m joined by Holly Lloyd, who has lived with eczema since infancy and, over the last year, experienced a level of severity that most people simply don’t understand.Holly’s story is hard, but it’s also incredibly practical, because she shares an emergency pathway that helped her access specialist dermatology care when things became unsafe.00:00 Intro, why Holly’s story matters00:09 Meet Holly, lifelong eczema and how 2025 escalated01:03 Childhood eczema, bandages, then “growing out of it”02:05 Eczema returns in her 20s, spread, and moving beyond topicals03:22 The last 6 months, full body decline, rapid overnight flares04:38 No sleep, severe inflammation, repeated infections05:14 Why “eczema” gets minimised, the extreme end people don’t see08:03 When Holly knew it wasn’t normal anymore09:27 Complex case clinic, advocating hard, still no proper escalation11:17 Moving back with her mum, surviving becomes “normal”13:14 Private vs NHS routes, and how to push for specialist care14:23 Holly researches Guy’s and St Thomas’, planning to self refer15:56 The difference at Guy’s and St Thomas’, “human” and thorough16:14 The emergency pathway, walking into A and E16:33 Local hospital admissions, why it felt unsafe and insufficient17:48 What went wrong in general hospital care20:39 Discharged because blood markers looked “okay”21:33 Why severe skin needs a real emergency pathway23:19 Holly’s decision, taxi to St Thomas’ A and E25:07 Rapid decline in the waiting room, admitted by 3am27:04 The scary part, tick box medicine and missed urgency29:31 Guy’s vs St Thomas’, how the hospitals work together31:49 What happened after admission, being properly supported32:17 Consultants travel over, “show us more”, thorough investigations33:44 Patient lodge + dermatology day care clinic35:24 The key takeaway, if you’re severe, this pathway exists36:43 Being a mum, weighing risks, needing a break to survive39:01 The mental health reality, severe eczema can be life threatening40:32 Treatments tried and what’s next46:10 Ongoing weekly follow ups, proper monitoring47:24 Why care and practical support changes everything49:42 If Holly ran the NHS, what needs to change54:18 Sharing pathways, reach out, community support55:08 Where to find Holly, and her offer to help others56:47 Message to carers and supporters57:17 Closing thoughtsWe talk about:• What severe, full body eczema can actually look and feel like• Repeated infections, loss of mobility, and the mental toll of living in constant fear of the next flare• Why “eczema” is often minimised, even when someone is genuinely in crisis• The difference between standard hospital care and specialist dermatology teams• The emergency route Holly used to access Guy’s and St Thomas’ care• The value of dermatology day care and what real support looks like when you are too unwell to care for yourself• Treatment decision making when you have tried everything and you are just trying to get your life backIf you are living with severe eczema and feel stuck, please know you are not alone, and you deserve proper care.Holly on Instagram: @HollyLloydskinSocial media:Instagram https://www.instagram.com/lifewithadifferencepodcast/TikTok https://www.tiktok.com/@lifewithadifferenceLinkedin https://www.linkedin.com/in/andrew-collinson/Please get in touch if I can help in any wayBlog:https://www.lifewithadifference.info/buymeacoffee.com/lifewithadifference

Gary Parsons (as seen on Channel 4’s Love My Face) talks candidly about Bell’s palsy, facial paralysis, mental health, and what it really takes to live uninhibited. We dig into the show’s mission, representation in the media, the gaps in NHS support (especially psychological care), practical roadmaps for patients and carers, and how advocacy and community can lighten the mental load of a long-term condition.Chapters00:00 Intro00:50 Gary’s story & Bell’s palsy03:20 Inside Love My Face (Channel 4)08:05 The show’s mission & impact14:20 Causes, bilateral paralysis & anxiety of recurrence19:15 Treatments, surgery, physio & Botox24:10 Self-acceptance vs. the search for a “cure”31:00 Advocacy, mental health & speaking from the “scar”40:30 NHS experiences & the case for psychological support48:20 A practical roadmap for patients & carers52:05 Living uninhibited & owning your identity1:05:00 Gary’s projects, Changing Faces, and where to find himResources mentioned • Changing Faces UK (support & representation) • Facial Palsy UK (guidance, clinics, rehab tips)Connect with GaryWebsite: garyparsons.ukSocial: @GaryParsonsUKIf this helped you, please like 👍, subscribe, and share with anyone navigating visible difference, facial palsy, or long-term skin conditions. Your support helps more people find these conversations.#BellsPalsy #FacialParalysis #VisibleDifference #LoveMyFace #ChangingFaces #MentalHealth #SelfAcceptance #Dermatology #Advocacy #Channel4 #PatientVoice #ChronicIllness #UKNHSSocial media:Instagram https://www.instagram.com/lifewithadifferencepodcast/TikTok https://www.tiktok.com/@lifewithadifferenceLinkedin https://www.linkedin.com/in/andrew-collinson/Please get in touch if I can help in any wayBlog:https://www.lifewithadifference.info/buymeacoffee.com/lifewithadifference

I am a huge believer in A Life in a Day's ability to create a world with more empathy, understanding and ultimately concession for patients. Our missions completely align and I very much look forward to supporting Mark and the team in any way I can.In this sponsored episode of Life With a Difference, I’m joined by Mark Doyle, founder of A Life in a Day, an immersive learning experience designed to help people working in healthcare walk in the shoes of someone living with a health condition for 24 hours.We talk about how the concept began, how the experience is built using a combination of an interactive app, live phone calls with actors, and a physical kit, and why it can create a level of empathy and understanding that is hard to achieve through conversation alone.Mark also shares how A Life in a Day developed its first therapy areas, from Crohn’s disease to heart failure and oncology, and what the team has learned about doing this work ethically by starting with patient stories first. We discuss the balance between realism and sensitivity, how they validate experiences with lived experience and medical professionals, and what meaningful outcomes can look like, from shifts in mindset to practical changes in trial design, communication, and patient support.If you work in healthcare, pharma, medical education, research delivery or simply want your team to have a higher level of empathy and you’re curious about building deeper patient understanding that leads to better outcomes, this conversation is for you.Sponsor disclosureThis episode is sponsored by A Life in a Day. Sponsorship supports the production of Life With a Difference, but does not influence editorial content or guest perspectives.Learn more about A Life in a DayWebsite: https://alifeinaday.co.ukYou can also find Mark and the team on LinkedIn. A Life in a Day run regular virtual taster sessions to give a short interactive introduction to how the experience works.00:00 Intro00:09 Mark Doyle introduces himself and A Life in a Day00:48 How Andy and Mark connected at Patients as Partners01:37 What A Life in a Day is, mission and purpose02:25 Andy’s experience, why it isn’t gimmicky, emotional impact03:33 Where the idea came from, how it started (2016)04:56 First conditions, Crohn’s disease, then heart failure and oncology06:30 Capturing the real grit, ethics, starting with patient stories09:18 How the experience works, app, calls, kit, wearables, sensations13:40 Why 24 hours matters, challenges across work, home, relationships14:08 Challenges growing a unique product, access and funding for HCPs16:21 Measuring success, learning, actions, and ROI for organisations18:13 What changes after the experience, workshops and implementation20:28 If funding was unlimited, reaching clinicians and students globally32:53 Conditions that surprise people most, asthma, obesity, diabetes35:09 Severity spectrum and why names can mislead public understanding36:23 Empathy as a driver for action and change37:32 Why patients often don’t have space to tell the full story39:01 Why living it beats hearing it, the next step in advocacy40:31 Five-year vision, making it part of healthcare education42:14 How to get involved, taster sessions, website and LinkedIn43:12 Closing thanksSocial media:Instagram https://www.instagram.com/lifewithadifferencepodcast/TikTok https://www.tiktok.com/@lifewithadifferenceLinkedin https://www.linkedin.com/in/andrew-collinson/Please get in touch if I can help in any wayBlog:https://www.lifewithadifference.info/buymeacoffee.com/lifewithadifference

In this episode of Life With a Difference, I speak with Amy (@Journey_of_Amy), who lives with severe eczema and is currently going through Topical Steroid Withdrawal (TSW).Amy shares openly about the physical pain, the mental health struggles, and the stigma of living with a visible difference. From being compared to a burns victim at her worst flare, to teaching children that “different is normal,” Amy’s honesty shines a light on what it’s really like to live with eczema on the extreme side of the spectrum.We discuss: • What TSW (Topical Steroid Withdrawal) actually is • The devastating physical symptoms: swelling, redness, bone-deep itch, flaking & peeling • The mental toll of eczema and suicidal thoughts that many never talk about • Her journey through treatments: methotrexate, dupilumab, Rinvoq, cyclosporine & more • Why self-advocacy at dermatology appointments is essential • How children and students respond to visible difference in the classroom • The role of community and connection in coping with chronic illness • Hope for the future with new treatments like lebrikizumab and nemolizumabAmy also talks about her work as a teacher, her growing advocacy on Instagram, and why she feels it’s her mission to raise awareness and help others feel less alone.💬 Have you experienced eczema or TSW? Share your story in the comments — your voice matters.👉 Subscribe to Life With a Difference for more honest conversations with patients, carers, and advocates.#Eczema #TopicalSteroidWithdrawal #VisibleDifference #TSW #LifeWithADifference #SkinConditionsSocial media:Instagram https://www.instagram.com/lifewithadifferencepodcast/TikTok https://www.tiktok.com/@lifewithadifferenceLinkedin https://www.linkedin.com/in/andrew-collinson/Please get in touch if I can help in any wayBlog:https://www.lifewithadifference.info/buymeacoffee.com/lifewithadifference

In this very special episode of Life With a Difference, I sit down with my wife, Donna Collinson, to talk openly about what it means to love and care for someone living with a chronic skin condition and visible difference.Donna shares her perspective as both my partner and my carer, the moments of joy, the exhaustion, the unseen emotional weight, and the resilience it takes to navigate life together when atopic dermatitis (AD) dominates so much of our daily reality.We cover: • How we first met and when Donna noticed my skin condition • The hardest flare-ups and their impact on both of us • The balance between “cracking on” vs giving in to bad days • The hidden mental health toll of atopic dermatitis • What carers and partners of people with chronic illness need too • The lack of support for carers in the NHS • Why open communication and empathy matter in relationships • The importance of celebrating the good days💬 Have you supported a loved one through chronic illness or visible difference? Share your story in the comments.👉 Subscribe to Life With a Difference for more conversations with patients, carers, and advocates.#LifeWithADifference #VisibleDifference #AtopicDermatitis #ChronicIllness #Carers #SkinConditionsSocial media:Instagram https://www.instagram.com/lifewithadifferencepodcast/TikTok https://www.tiktok.com/@lifewithadifferenceLinkedin https://www.linkedin.com/in/andrew-collinson/Please get in touch if I can help in any wayBlog:https://www.lifewithadifference.info/buymeacoffee.com/lifewithadifference

n this episode of Life With a Difference, I sit down with Lisa Bickerstaffe, Head of Communications at the British Skin Foundation (BSF). Lisa has been with BSF for over a decade, leading campaigns that raise awareness of skin health, skin disease, and skin cancer while supporting vital dermatology research.We cover: • The mission of the British Skin Foundation and why skin research matters • How skin health campaigns have evolved with social media & TikTok trends • The impact of sun safety and the award-winning “Burnable Billboard” campaign • Psychological effects of living with a skin condition • Stigma and discrimination faced by people with visible differences • The importance of diverse skin images in healthcare and inclusive dermatology • How the public can support BSF’s work and get involved⸻Show links:https://www.britishskinfoundation.org.uk/https://www.britishskinfoundation.org.uk/which-sunscreen-is-right-for-me🕒 Timestamps / Chapters00:00 – Introduction00:11 – Who is Lisa Bickerstaffe?01:00 – How communications at BSF has evolved02:20 – TikTok skin trends and social media challenges03:43 – The British Skin Foundation’s mission06:12 – Covering 2,000+ skin conditions with a small team07:16 – Working as a team of eight at BSF08:44 – Collaboration with other skin charities10:17 – Psychological effects of skin conditions12:01 – Sun safety & the importance of SPF from childhood13:33 – Misconceptions about skin cancer14:37 – Why skin conditions aren’t taken seriously enough16:21 – Mineral vs chemical sunscreens explained20:11 – The Burnable Billboard campaign24:26 – Stigma and discrimination around skin conditions27:16 – Teaching children about visible difference & kindness30:52 – Reframe Project: inclusive medical images across skin tones33:27 – The challenge of diagnosing conditions on darker skin35:20 – Advocacy and the importance of pushing for referrals36:28 – How patients can support BSF’s work37:58 – Services BSF offers to patients & the A–Z of skin40:26 – Educating children about equality and skin health in schools43:40 – Upcoming BSF 30th anniversary projects (2026)44:58 – Building community with patients & advocates46:08 – Final thoughts: “We’re all united by skin”⸻👉 Subscribe to Life With a Difference for more conversations with patients, clinicians, and advocates.#BritishSkinFoundation #Dermatology #SkinHealth #Eczema #SkinCancer #VisibleDifferenceSocial media:Instagram https://www.instagram.com/lifewithadifferencepodcast/TikTok https://www.tiktok.com/@lifewithadifferenceLinkedin https://www.linkedin.com/in/andrew-collinson/Please get in touch if I can help in any wayBlog:https://www.lifewithadifference.info/buymeacoffee.com/lifewithadifference

In this episode of Life With a Difference, I sit down with Jade Arthur to talk about her life growing up with a facial hemangioma which shaped her childhood, confidence, and the way the world saw her.Jade shares what it was like navigating school, friendships, and those awkward stares from strangers. We talk about the moments that knocked her confidence, the people who lifted her up, and how she’s learned to own her difference as an adult.#LifeWithADifference #VisibleDifference #Hemangioma #Birthmark #Inspiration #PodcastSocial media:Instagram https://www.instagram.com/lifewithadifferencepodcast/TikTok https://www.tiktok.com/@lifewithadifferenceLinkedin https://www.linkedin.com/in/andrew-collinson/Please get in touch if I can help in any wayBlog:https://www.lifewithadifference.info/buymeacoffee.com/lifewithadifference

In this episode of Life With a Difference, I speak with Professor Sara Brown, Grant Chair of Dermatology at the University of Edinburgh and Honorary Consultant Dermatologist with NHS Lothian. Professor Brown is one of the UK’s leading voices in dermatology research, specialising in eczema, skin genetics, and visible difference.We discuss: • Why skin conditions like eczema are so complex • The challenges dermatologists face in treatment • New biologics and JAK inhibitors for eczema care • The role of genetics, including the filaggrin (FLG) gene • The stigma patients experience around visible difference • How dermatology research is changing patient care💬 What’s your experience with eczema or visible difference? Share in the comments, I’d love to hear your story.👉 Subscribe to Life With a Difference for more conversations with patients, clinicians, and advocates.#Dermatology #Eczema #VisibleDifference #SkinHealth #LifeWithADifferenceSocial media:Instagram https://www.instagram.com/lifewithadifferencepodcast/TikTok https://www.tiktok.com/@lifewithadifferenceLinkedin https://www.linkedin.com/in/andrew-collinson/Please get in touch if I can help in any wayBlog:https://www.lifewithadifference.info/buymeacoffee.com/lifewithadifference00:00 – Introduction  02:05 – Who is Professor Sara Brown?  04:59 – Why dermatology matters  07:46 – Is dermatology taken seriously enough?  10:44 – Why is eczema so difficult to treat?  15:19 – The FLG gene and skin barrier research  20:11 – New eczema treatments: biologics & JAK inhibitors  26:30 – The future of eczema treatment  33:17 – How doctors and patients make decisions together  43:01 – Topical Steroid Withdrawal (TSW) explained  50:19 – GP referrals and long waiting times  53:32 – Final thoughts & closing

🎙️ That’s a wrap on Season 1!Huge thank you to all my incredible guests and everyone who’s supported the podcast so far.Following great advice from Suzi at The Scars, I’ll now be working in shorter, intentional seasons allowing space to reflect, improve, and balance other advocacy projects.This season opened my eyes even more to the discrimination people with visible differences face, and how damaging comparative suffering can be. I’m proud to be part of a space where empathy and support come first.Got feedback? I’d love to hear it. See you in Season 2 💛#VisibleDifference #PatientAdvocacy #PodcastUK #DisabilityAwareness #SeasonFinale #FacialDifferenceSocial media:Instagram https://www.instagram.com/lifewithadifferencepodcast/TikTok https://www.tiktok.com/@lifewithadifferenceLinkedin https://www.linkedin.com/in/andrew-collinson/Please get in touch if I can help in any wayBlog:https://www.lifewithadifference.info/buymeacoffee.com/lifewithadifference

Molly Patch discusses her journey with Alopecia Universalis. Molly shares her candid experiences of losing her hair at 18, navigating societal perceptions, and building confidence. From personal struggles to finding humour and support, this conversation offers an inspiring look at living with a visible difference. Learn how Molly transformed her challenges into strength and became an advocate for self-acceptance.Key topics:- Living with alopecia- Mental health and visible differences- Building confidence- Overcoming societal expectations#VisibleDifference #Alopecia #SelfAcceptance #MentalHealthEpisode links:https://www.changingfaces.org.uk/https://www.instagram.com/mollypatch/https://www.zbdtalent.com/uk/Social media:Instagram https://www.instagram.com/lifewithadifferencepodcast/TikTok https://www.tiktok.com/@lifewithadifferenceLinkedin https://www.linkedin.com/in/andrew-collinson/Please get in touch if I can help in any wayBlog:https://www.lifewithadifference.info/buymeacoffee.com/lifewithadifference

I speak with Crystal Marshall , an actor, advocate and cancer survivor who lives with a facial difference. Crystal shares her journey of being diagnosed with cancer just days after her 18th birthday, navigating the trauma of facial surgery, and reclaiming her place in the arts industry despite the barriers society tried to place around her.From being told she’d never act again, to seeing herself represented on a wall she never imagined she’d be on, Crystal’s story is one of strength, self-advocacy, and defying expectations.We talk about: • Her harrowing experience with early surgical consultations • The emotional impact of a facial difference • Feeling dismissed in healthcare settings • The importance of seeing surgeons’ previous work • How she found pride, visibility, and purpose through storytelling and representationThis conversation is about more than survival, it’s about ownership, identity, and becoming the role model you once needed.💬 Let us know what part of Crystal’s story resonated with you most in the comments.👇 Subscribe and follow for more conversations about living with a visible difference.#LifeWithADifference #FacialDifference #CancerSurvivor #RepresentationMatters #ChangingFaces #CrystalMarshall #DisabilityAdvocate #FaceEquality #VisibleDifference #PodcastInterviewSocial media:Instagram https://www.instagram.com/lifewithadifferencepodcast/TikTok https://www.tiktok.com/@lifewithadifferenceLinkedin https://www.linkedin.com/in/andrew-collinson/Please get in touch if I can help in any wayBlog:https://www.lifewithadifference.info/buymeacoffee.com/lifewithadifference

"I will slash your face", "You look like a thug", "you're the ugliest person I've ever seen".I challenge you to listen to this podcast to understand the reality of blatant discrimination that people with visible differences face in "polite society". Discrimination that involves regular threats of physical violence, denial of access to job roles and a dismissive/uncaring attitude by those in a position of power.Introducing my good friend Dan Elston from @amanandhisface, someone still coming to terms with the trauma of a life of stigmatisation and unjust treatment. Who is now using his lived experience to affect positive change for the visible difference community. Do you really care about people facing inequality or do you just jump on the bandwagon?Be one of the people who did what was right BEFORE it becomes trendy. Episode links: @AManAndHisFace  https://www.changingfaces.org.uk/https://www.myface.org/#FacialDifference #DanElston #AManAndHisFace #LifeWithADifference #VisibleDifferencePodcast #DisfigurementAwareness #ScarStories #ChallengingStigma #ResilienceInAdversitySocial media:Instagram https://www.instagram.com/lifewithadifferencepodcast/TikTok https://www.tiktok.com/@lifewithadifferenceLinkedin https://www.linkedin.com/in/andrew-collinson/Please get in touch if I can help in any wayBlog:https://www.lifewithadifference.info/buymeacoffee.com/lifewithadifference

Joti Gata-Aura: Vitiligo, Identity, and Advocacy | Life With a Difference PodcastIn this deeply personal and powerful episode, Joti Gata-Aura shares her journey of living with vitiligo a visible skin difference that changed not only how others saw her, but how she saw herself. From navigating shame, secrecy, and cultural stigma to finding her voice as an advocate and educator, Joti’s story is one of resilience, acceptance, and empowerment.Joti opens up about her early years of hiding her skin with long sleeves and makeup, including on her wedding day, and the emotional toll of not feeling seen even by her own community. She speaks candidly about losing her sense of identity as a South Asian woman and mother, the painful assumptions from strangers, and the challenges of teaching with a visible difference. But through it all, she discovered the power of being honest, visible, and vulnerable — not just for herself, but for her students and anyone feeling isolated by their difference.We also explore treatments for vitiligo, the importance of setting boundaries in advocacy, and how Joti’s role as a teacher has become a platform for positive change.This conversation is a must-listen for anyone living with a visible difference, caring for someone who is, or wanting to understand the deeper impact of how skin and identity are intertwined.🎧 Listen, reflect, and share — because stories like Joti’s help shape a more understanding world.⸻Topics covered: • Living with vitiligo and South Asian identity • Hiding visible difference in the workplace and at her wedding • Raising children when you no longer resemble them physically • Experiences of stigma, stares, and assumptions • Why Joti chose advocacy, and how it changed her life • The role of teachers in creating inclusive classrooms • Vitiligo treatments and the emotional impact of seeking a “cure” • Setting boundaries in public storytelling⸻🔗 Connect with Joti:Instagram: @positivelydiverseWebsite: positivelydiverse.co.ukVitiligo Society: https://vitiligosociety.org/⸻#VitiligoAwareness #VisibleDifference #LifeWithADifference #JotiGataAura #SouthAsianVoices #SkinPositivity #BodyImage #TeacherAdvocate #DisabilityInclusion #FaceEquality #ChangingFaces #ChronicIllness #DiversityAndInclusion #VitiligoSupport #SkinConditionsSocial media:Instagram https://www.instagram.com/lifewithadifferencepodcast/TikTok https://www.tiktok.com/@lifewithadifferenceLinkedin https://www.linkedin.com/in/andrew-collinson/Please get in touch if I can help in any wayBlog:https://www.lifewithadifference.info/buymeacoffee.com/lifewithadifferenceChapters00:00 Introduction and Personal Background03:28 Understanding Vitiligo and Its Impact05:37 Cultural Perspectives on Skin Differences08:34 Navigating Identity and Belonging11:28 Challenges in the South Asian Community14:36 Experiences of Stigma and Advocacy17:17 Confronting Prejudice and Personal Growth28:59 Navigating Social Perceptions and Sensitivities30:57 Current Treatments for Vitiligo33:11 The Journey of Seeking Treatment36:54 The Emotional Toll of Treatment Failures39:55 Anxiety and Self-Image on Special Occasions45:21 Teaching with a Visible Difference48:40 Advocacy and Representation in Media52:55 Setting Boundaries in Advocacy54:40 Support and Community for Visible Differences55:51 A Vision for Equality and Acceptance

Ellie Wildbore: Living with CPTSD, Visible Difference and Breaking Stigma | Life With a Difference PodcastIn this powerful and deeply honest episode, Ellie Wildbore shares her lived experience of complex post-traumatic stress disorder (CPTSD), visible difference from self-inflicted burns, and the journey from shame and stigma to self-acceptance and advocacy.Ellie speaks openly about her struggles with mental health, the impact of internalised stigma, discrimination from healthcare professionals, and the long road to getting the support she needed. She also highlights the life-changing moment of being accepted by the burn survivor community and the vital role that peer support and charities like Dan’s Fund for Burns have played in her recovery.We also explore the realities of psychiatric wards, the barriers to trauma-informed care, the misdiagnosis of BPD, and how diagnosis can shape someone’s life for better or worse. Ellie also discusses the therapeutic role of physical activity and how roller skating, hooping, and lived experience work have helped her reconnect with herself and others.This is a must-listen for anyone interested in mental health, visible difference, trauma, and the power of peer-led advocacy.🎧 Listen, learn, and share together we reduce stigma by amplifying stories like Ellie’s.Episode links:https://balancingontheborderline.home.blog/author/elliewildbore87/https://dansfundforburns.org/https://www.changingfaces.org.uk/https://bigspd.org.uk/Social media:Instagram https://www.instagram.com/lifewithadifferencepodcast/TikTok https://www.tiktok.com/@lifewithadifferenceLinkedin https://www.linkedin.com/in/andrew-collinson/Please get in touch if I can help in any wayBlog:https://www.lifewithadifference.info/buymeacoffee.com/lifewithadifferenceChapters00:00 Introduction to Personal Stories and Visible Differences14:32 Exploring Mental Health and Self-Harm18:40 Understanding the Cycle of Self-Harm and Relief19:10 Experiencing Visible Differences24:51 Social Media and Self-Representation30:08 Life in Hospital and Mental Health Challenges32:08 Reality of Psychiatric Wards36:34 Understanding Compulsions vs. Impulsions40:33 Navigating Mental Health Diagnoses and Stigma52:05 Overcoming Stigma and Seeking Support55:11 Finding Community and Acceptance57:55 The Power of Sharing Stories01:00:54 The Role of Exercise in Mental Health01:03:51 Navigating Mental Health Services01:06:53 The Importance of Lived Experience in Research01:09:56 Practical Advice for Living with CPTSD01:13:06 Hope for the Future

Dylan Lombard on Living with MDP Syndrome, Advocacy and Photography In this episode of Life With a Difference, I speak with Dylan Lombard, one of only a handful of people in the world diagnosed with MDP syndrome. Dylan opens up about life with a rare condition, his journey to diagnosis, and how photography and social media helped him find purpose and community.We talk about everything from representation, visibility and advocacy, to living with autism, navigating school, and becoming a powerful voice online. Dylan also shares how a viral Lady Gaga TikTok changed everything and how his passion for photography helps him process isolation and tell his story in a powerful way.This is a heartfelt, eye-opening conversation you won’t want to miss.📸 Follow Dylan on social media: https://www.tiktok.com/@be_yourself_dylanhttps://www.instagram.com/be_yourself_dylanThis was recorded before I was aware of Tom Staniford's incredible fund raising project, please see the details below:https://www.justgiving.com/crowdfunding/goodbye-legs🎧 Subscribe for more conversations with people living with a visible difference#MDPSyndrome #RareDiseaseAwareness #VisibleDifference #LifeWithADifference #DisabilityAdvocate #DylanLombard #PhotographyAsTherapy #AutismAwareness #ChangingFaces #RepresentationMattersSocial media:Instagram https://www.instagram.com/lifewithadifferencepodcast/TikTok https://www.tiktok.com/@lifewithadifferenceLinkedin https://www.linkedin.com/in/andrew-collinson/buymeacoffee.com/lifewithadifferencePlease get in touch if I can help in any wayBlog:https://www.lifewithadifference.info/

Lexi Jenkinson: Living with Adult Acne, Going Viral, and the Power of Being RealIn this episode, I’m joined by someone who's been a huge inspiration to me in the advocate world, Lexi Jenkinson. An influencer, hairdresser and acne advocate whose viral videos have helped thousands feel seen and supported.Lexi opens up about the mental toll of living with adult acne, how it impacted her self-worth, and why she almost stopped looking in the mirror. We talk about the power of visibility, navigating harsh comments from strangers (and clients), and how that one viral video changed everything.💬 Topics we cover: • The mental impact of adult acne • How Lexi’s video hit 19 million views • Harsh comments, trolls, and building resilience • NHS delays, Aerolase laser, and alternative treatments • What it’s really like working in beauty with a visible difference • Creating safe spaces for people with skin conditions • The myth of the “easy” influencer lifeIf you’ve ever felt dismissed because of your skin or struggled with confidence, this one is for you.🧡 Follow Lexi on Instagram/TikTok: @lexiijenkinson#VisibleDifference #AcneAdvocate #LexiJenkinson #LifeWithADifferenceSocial media:Instagram https://www.instagram.com/lifewithadifferencepodcast/TikTok https://www.tiktok.com/@lifewithadifferenceLinkedin https://www.linkedin.com/in/andrew-collinson/buymeacoffee.com/lifewithadifferencePlease get in touch if I can help in any wayBlog:https://www.lifewithadifference.info/

In this episode of Life With a Difference, I speak with the brilliant Abigail Marin; a passionate advocate, photographer, and member of the visible difference community whose insights and self awareness are wise beyond her years.Abigail shares her powerful story of being diagnosed with a facial tumour at age six, undergoing over 100 surgeries, and navigating life with a visible difference. From selective mutism and school challenges to bejeweling her surgical scars with confidence, Abigail’s journey is a moving reminder of the strength it takes to show up as your true self.We talk about:💬 Living with a visible difference🎒 Navigating school with a facial condition📷 Finding healing through photography and art💎 Turning scars into art💡 The ups and downs of healing — and why it’s never linear🤝 The impact of charities like Changing Faces and Camp SimchaAbigail’s honesty, creativity, and humour make this a must-listen for anyone affected by visible differences, chronic conditions, or anyone who just wants to better understand what resilience really looks like.Episode links 🔗https://www.instagram.com/braveartist2005/https://www.campsimcha.org.uk/https://www.changingfaces.org.uk/story/abis-story-bedazzle-your-scars/Chapters00:00 Inspiring Stories and Personal Struggles02:54 The Journey of Healing and Self-Discovery05:57 Navigating Healthcare Experiences08:58 School Life and Visible Differences12:03 Friendship and Emotional Challenges15:07 Creative Expression and Confidence Building19:03 The Struggle for Control in Health22:27 Support Systems in Education26:23 The Non-Linear Journey of Healing30:04 The Power of Advocacy and Community33:04 Overcoming the Fear of Sharing Personal Struggles36:15 The Impact of Illness on Siblings37:47 Support Systems for Families39:00 Navigating Parental Responsibilities40:08 The Importance of Community Support41:36 Exploring the World of Analog Photography43:03 Art as a Form of Escapism44:49 Creative Talents and Family Influence46:09 Practical Advice for Living with Visible Differences48:21 OutroSocial media:Instagram https://www.instagram.com/lifewithadifferencepodcast/TikTok https://www.tiktok.com/@lifewithadifferenceLinkedin https://www.linkedin.com/in/andrew-collinson/Blog:https://www.lifewithadifference.info/buymeacoffee.com/lifewithadifferencePlease get in touch if I can help in any way.#LifeWithADifference #VisibleDifference #DisabilityAwareness #CraniofacialCondition #FacialDifference #AbigailMarin #PatientStories #ChronicIllness #DisabilityAdvocacy #ChangingFaces #ArtAsHealing #ScarsAndStories #PodcastEpisode

In this conversation, Stacey Bone shares her personal journey living with a unilateral cleft lip and palate, discussing the complexities of surgeries, the challenges faced during childhood, and the importance of mental health. She emphasises the need for advocacy and education to reduce bullying and promote understanding of visible differences. Stacey also highlights her work with charities and her personal photography project aimed at changing perceptions of individuals with clefts.Please consider following/subscribing to help me build a platform to better advocate for people with visible differences.Episode links:https://www.staceybonephotography.co.ukhttps://www.smiletrain.org.ukhttp://www.changingfaces.org.ukTimestamps:00:00 - Introduction and Background03:08 - Understanding Cleft Lip and Palate05:58 - Surgical Interventions and Their Complexities08:43 - Personal Experiences with Bullying and School Life11:59 - Mental Health and Coping Mechanisms17:19 - Advocacy and Raising Awareness18:51 - Overcoming Humiliation and Building Confidence19:29 - The Importance of Early Education on Differences22:19 - Legal Protections and Social Acceptance24:25 - Visible Differences in Media Representation28:12 - The Dark Reality of Clefts Worldwide33:07 - Changing Smiles: A Photography Project for Awareness37:38 - Hope for the Future: Changing PerceptionsSocial media:Instagram https://www.instagram.com/lifewithadifferencepodcast/TikTok https://www.tiktok.com/@lifewithadifferenceLinkedin https://www.linkedin.com/in/andrew-collinson/Blog: https://www.lifewithadifference.info/Please get in touch if I can help in any way

In this conversation, Oliver shares his journey living with Neurofibromatosis Type 1, detailing his experiences with surgeries, mental health, and the importance of acceptance. He recounts a distressing incident at a restaurant that led to widespread media attention, emphasizing the need for kindness and understanding towards those with visible differences. Oliver discusses the challenges of navigating the healthcare system, the significance of having a strong support network, and the role of advocacy in raising awareness. He concludes with a powerful message about the importance of being kind and the impact it can have on individuals facing unseen battles.Episode links:https://news.sky.com/video/facial-difference-man-turned-away-from-a-restaurant-due-to-his-facial-difference-speaks-to-sky-news-13226824https://www.changingfaces.org.ukChapters:00:00 Introduction and Technical Difficulties02:57 Personal Experiences with Neurofibromatosis05:54 Surgical Journey and Management of Symptoms08:48 Mental Health and Acceptance11:56 The Restaurant Incident and Public Response17:40 Choosing Reconciliation Over Revenge22:30 Microaggressions and Employment Challenges25:28 The Importance of Support Networks27:53 Mental Health and Visible Differences29:24 Navigating Healthcare Challenges32:43 Rules of Engagement in Conversations36:17 Advocacy and Media Experience43:01 Practical Advice for NF1 Sufferers44:55 A Message of KindnessSocial media:Instagram https://www.instagram.com/lifewithadifferencepodcast/TikTok https://www.tiktok.com/@lifewithadifferenceLinkedin https://www.linkedin.com/in/andrew-collinson/Blog: https://www.lifewithadifference.info/Please get in touch if I can help in any way

In this conversation, Suzi Holland discusses the challenges faced by individuals with eczema, the importance of community support, and the role of Eczema Outreach Support in providing resources and advocacy for families. They explore the emotional and mental health impacts of living with a chronic skin condition, the need for better understanding and treatment options in healthcare, and the significance of self-advocacy. Suzi shares insights into the charity's mission, the importance of peer support, and the ongoing challenges of funding and awareness in the eczema community.Episode links:https://eos.org.ukhttps://eczema.orgChapters00:00 Navigating Blood Tests and Personal Experiences03:30 Introduction to Eczema Outreach Support06:29 The Challenges of Living with Eczema09:40 The Impact of Eczema on Mental Health12:23 The Journey into Charity Work15:31 The Role of Social Media in Body Image18:33 Empowering Young People with Eczema21:27 Services Offered by Eczema Outreach Support25:20 Creating Safe Spaces for Families31:15 The Importance of Community Support36:19 Advocating for Yourself and Your Child41:43 Understanding Treatment Options48:00 Getting involved with EOSSocial media:Instagram https://www.instagram.com/lifewithadifferencepodcast/TikTok https://www.tiktok.com/@lifewithadifferenceLinkedin https://www.linkedin.com/in/andrew-collinson/Blog: https://www.lifewithadifference.info/Please get in touch if I can help in any way

In this conversation, James Hardwick discusses the challenges of living with eczema, particularly focusing on James's personal journey with the condition and the transformative impact of Dupilumab. They explore the emotional and financial toll of managing eczema, the importance of support systems, and the need for greater understanding and advocacy within the healthcare system. The discussion also touches on practical tips for managing eczema and the significance of empathy in interactions with those who have visible differences.Episode links:https://eczema.orghttps://www.instagram.com/reel/DDJ9ofmtdO6/?igsh=MWowaGQ2dTJsNXg0bw==Chapters:00:00 Introduction and Personal Experiences with Eczema10:41 Treatment Journeys and Medication Insights23:32 The Emotional and Social Impact of Eczema24:26 Expanding the Conversation on Chronic Conditions25:42 The Balancing Act of Advocacy and Professionalism27:13 Building Community and Empathy28:59 Navigating Healthcare for Eczema32:42 The Journey of Advocacy for Future Generations34:34 Using Personal Experience to Shape Customer Experience37:33 Finding Strength in Vulnerability48:29 Practical Advice for Managing Eczema51:39 A Message to the WorldSocial media:Instagram https://www.instagram.com/lifewithadifferencepodcast/TikTok https://www.tiktok.com/@lifewithadifferenceLinkedin https://www.linkedin.com/in/andrew-collinson/Blog: https://www.lifewithadifference.info/Please get in touch if I can help in any way

In this conversation, Chelsey Peat discusses the challenges and experiences of living with a visible difference, including the impact on mental health, relationships, and advocacy. Chelsey shares her personal journey, from facing mortality at a young age to navigating school and workplace discrimination. They emphasise the importance of support systems, self-advocacy, and the need for greater awareness and acceptance of visible differences in society.Please consider following/subscribing to help me build a platform to better advocate for people with visible differences.Episode Links:Instagram https://www.instagram.com/chelseypeat/?hl=enhttps://faceequalityinternational.orghttps://www.amazon.co.uk/Two-Sides-Face-Journey-Syndrome/dp/0228831679https://chelseypeat.wordpress.com/blog/Chapters:00:00 Facing Mortality and Early Challenges02:48 The Journey of Self-Acceptance06:13 The Importance of Support Systems08:59 Navigating Childhood and School Life11:50 Health Struggles and Medical Interventions15:10 The Impact of Bullying and Social Isolation18:03 Reflections on Healthcare Experiences20:53 Teenage Years and the Cruelty of Peers36:24 Navigating Adolescence with a Visible Difference39:47 The Impact of Social Media on Self-Image44:47 Challenges in the Workplace48:37 The Journey of Self-Acceptance and Love53:54 Motherhood and Advocacy01:00:07 Workplace Bullying and Discrimination01:02:58 The Need for Inclusion in DEI Conversations01:09:03 Empathy and Understanding in SocietySocial media:Instagram https://www.instagram.com/lifewithadifferencepodcast/TikTok https://www.tiktok.com/@lifewithadifferenceLinkedin https://www.linkedin.com/in/andrew-collinson/Blog: https://www.lifewithadifference.info/Please get in touch if I can help in any way

A platform to amplify the voices of those living with a visible difference and provide relevant information from industry leaders and experts.