Narcolepsy Navigators Podcast

Leave a review!Episode Summary:What happens when a brand strategist — someone who's built campaigns for Aerosmith, Lenny Kravitz, Samsung, and Levi's — suddenly finds himself standing in front of a wall of machines keeping his newborn daughter alive? For Steve Lewis, it became the beginning of the most important work of his life.In this episode of the Narcolepsy Navigators Advocacy Series, hosts Kerly and Iris sit down with Steve Lewis, founder of Nabu AI and director of Emotions.org, to talk about how a single sentence from his daughter Bowie — "Dad, I want to go to my own appointments" — sparked a mission to put patients back in control of their own health story.What We Cover:How Steve's career in entertainment and brand strategy came to a screeching halt when his daughter Bowie was born with complex, lifelong health challengesThe painful reality of transitioning from pediatric to adult care — and why retelling your medical story over and over is a form of traumaWhat Nabu AI actually is (hint: it's not a tracker — it's an advocate) and how it works as a single source of truth for your entire health journeyThe "Three Columns" framework Steve uses to understand human, social, and cultural needs in healthcareWhy Steve believes the patient is the biggest unsolved problem in health — and how to fix it with the right information at the right timeThe safety, encryption, and compliance features built into Nabu AI, including background checks for support workersWhat the UAE's "Al Nor Center" gets right that most of us don't — referring to disabled people as "determined people"Why invisible and rare conditions are superpowers — and how society loses when it excludes difference from the conversationWhat gives Steve hope: the passionate frontline workers he keeps meeting all over the worldAbout Steve Lewis: Steve Lewis is a seasoned brand strategist and product designer with 30+ years across music, film, fashion, and food. In 2007, the birth of his daughter Bowie changed everything. Now the founder of Nabu AI and Director of Emotions.org, Steve is on a mission to ensure patients are better informed, better supported, and achieve better outcomes. Find out more at [nabu.ai] (coming soon to iOS & Android).Resources & Links Mentioned:🌐 Narcolepsy Navigators Hub: www.napsforlife.com💌 Share your story: [email protected]❤️ Support the podcast: www.napsforlifSupport the showSubscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.Follow and support Narcolepsy Navigators:www.napsforlife.comInstagram: https://www.instagram.com/narcolepsynavigatorspodcast/Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcastTikTok: https://www.tiktok.com/@narcolepsynavigatorsYoutube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast ***If you find these symptoms relatable, please seek medical advice.***

Leave a review!Narcolepsy Navigators launches its Medical Series focused on the medical side of narcolepsy and common comorbidities. Host Fred (currently undiagnosed sleep disorder) and co-host Bernadette (narcolepsy type 1) interview Dr. Caitlin Chasser, a family doctor turned sleep and menopause specialist, who describes her own insomnia linked to premature menopause and the lack of sleep education in medical training. The discussion covers how menopause and perimenopause commonly disrupt sleep (estimated 60–80% experience sleep disturbance), and how sleep affects appetite, hormones, weight, repair, memory, mood, and daily functioning. Dr. Caitlin explains the role of stress and the sympathetic nervous system in blocking sleep, and emphasizes holistic and behavioral approaches including wind-down routines, meditation alternatives (coloring, knitting), breathwork, and body-scan techniques. She outlines practical sleep strategies for menopause-related insomnia: optimizing the sleep environment (darkness, quiet/white noise), regular exercise (with resistance training noted as beneficial with age), reducing alcohol, limiting naps (with a note that narcolepsy may require naps), and going to bed only when truly sleepy to build sleep pressure. Melatonin use is discussed as not a simple solution; it may help for jet lag, shift work, some children with ADHD/autism, and older adults, but should follow sleep basics and professional guidance, with caution about unregulated supplement dosing. Physical sleep disruptors are addressed, including hot flushes/night sweats, restless leg syndrome (often linked to iron deficiency from heavy periods), and obstructive sleep apnea (more common and underdiagnosed after menopause); she advises formal evaluation and targeted treatments, including iron supplementation when low. The episode also addresses libido changes during menopause, vaginal dryness and pain, topical estrogen or lubricants, the impact of poor sleep on desire and mood, and options such as HRT or testosterone therapy when appropriate, alongside emotional connection. Dr. Caitlin highlights cognitive behavioral therapy for insomnia (CBTI) as the gold-standard treatment, describes hyperarousal and normal sleep cycles, and notes significant improvements can be achieved. She introduces The Sleep Project, a group of clinicians formed after COVID to address rising sleep problems, offering online resources, consultations, and CBTI programs at www.thesleepproject.life. The episode closes with Narcolepsy Navigators announcements about Patreon, merch, Discord access, a shout-out to first patron Jane Powell, and information about Naps for Life CIC, ways to donate, and how to share stories via [email protected] the showSubscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.Follow and support Narcolepsy Navigators:www.napsforlife.comInstagram: https://www.instagram.com/narcolepsynavigatorspodcast/Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcastTikTok: https://www.tiktok.com/@narcolepsynavigatorsYoutube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast ***If you find these symptoms relatable, please seek medical advice.***

Leave a review!In this powerful episode of Narcolepsy Navigators Season 4, we sit down with Amelia, a 28-year-old from London who discovered she had narcolepsy while playing cards on a skiing holiday. What started as uncontrollable laughter turned into a life-changing realization when her hands and neck kept dropping—classic cataplexy symptoms.Amelia shares her raw and honest journey from being dismissed by doctors who told her "you exercise and eat meat, so nothing will show up" to finally receiving her diagnosis on New Year's Eve 2020. Her story takes us through the struggles of sixth form, the relief of university's flexible schedule, and the grueling challenge of completing a PhD while battling extreme fatigue.What You'll Learn:How narcolepsy symptoms can be dismissed as "normal tiredness" for yearsThe relief and validation that comes with a diagnosisWhy spoon theory and battery theory help loved ones understand your limitsThe hidden symptoms beyond the "big four"—brain fog, concentration issues, and memory problemsHow work environments can make or break narcolepsy managementThe complicated relationship between family skepticism and chronic illnessWhy self-compassion is a work in progress, even after diagnosisStandout Moments:Amelia's creative napping solutions—from under-desk nests to prison classroom floorsThe unexpected benefit of working in high-energy environmentsHow moving from PhD research to prison rehabilitation work improved her symptomsThe bittersweet reality of avoiding conversations about narcolepsy with family membersWhy she'd press the red button (and why that answer deserves grace)Amelia's candid discussion about the mental health impact, the ongoing medication trials, and learning to advocate for herself in work environments makes this episode essential listening for anyone navigating life with narcolepsy or supporting someone who is.Episode Highlights:00:00 - Welcome and Introductions 00:55 - Amelia's Weekend and Choir 06:11 - Early Symptoms and Medical Dismissal 09:25 - Coping Through School and University 12:46 - Would Early Diagnosis Have Changed Choices? 13:55 - Relief and Accommodations After Diagnosis 17:05 - Naps and Medication Journey 19:42 - Managing Symptoms Without Strong Medication 22:04 - Self-Compassion: A Work in Progress 23:32 - Friends, Family, and Hidden Pressure 25:15 - Speaking Up and Setting Boundaries 27:44 - Advocating at Work 29:32 - Dating and Cataplexy31:02 - Family Skepticism and Hurt 33:08 - Coping with Unsupportive Family 36:38 - Beyond the Main Symptoms 39:22 - Mental Health and Low Support the showSubscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.Follow and support Narcolepsy Navigators:www.napsforlife.comInstagram: https://www.instagram.com/narcolepsynavigatorspodcast/Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcastTikTok: https://www.tiktok.com/@narcolepsynavigatorsYoutube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast ***If you find these symptoms relatable, please seek medical advice.***

Leave a review!Meet Vincent Arthur - a 21-year-old race car driver from Charlotte, North Carolina, who's proving that narcolepsy type 2 doesn't have to slow you down.In this inspiring episode of Narcolepsy Navigators, Vincent shares his powerful journey from struggling with undiagnosed brain fog and excessive daytime sleepiness in 2019 to becoming the first race car driver sponsored by Wake Up Narcolepsy in 2023.Discover how Vincent turned his diagnosis into a platform for advocacy, why he feels MORE comfortable behind the wheel than most people, and how he's using motorsports to shatter stereotypes about sleep disorders. From sim racing victories to real-world tracks, Vincent's story will challenge everything you think you know about living with narcolepsy.Key Topics Discussed:Vincent's 4-year journey to diagnosis and the relief of finally understanding his symptomsManaging brain fog, excessive daytime sleepiness, and ADHD-like symptoms during collegeWhy driving actually helps some people with narcolepsy stay alert (and the science behind it)Partnering with Wake Up Narcolepsy as the first sponsored race car driverBreaking barriers and proving that narcolepsy isn't a limiting factorPractical advice for anyone who thinks their condition will hold them backGuest Bio: Vincent Arthur is a 21-year-old professional race car driver and narcolepsy advocate based in Charlotte, North Carolina. Diagnosed with narcolepsy type 2 in early 2023, Vincent quickly became a voice for the sleep disorder community by partnering with Wake Up Narcolepsy as their first-ever sponsored race car driver. When he's not on the track, Vincent studies mechanical engineering and competes in sim racing, where he's achieved multiple victories. Follow his journey at @VincentA55 on all social platforms.Episode Highlights:[00:03:42] - Vincent's diagnosis journey from 2019 to 2023[00:13:00] - Navigating college with undiagnosed narcolepsy[00:23:00] - Why driving helps Vincent stay alert (the alertness factor)[00:25:32] - Partnership with Wake Up Narcolepsy and raising awareness[00:28:41] - Vincent's powerful message: "Narcolepsy is not a limiting factor"Connect with Vincent: Instagram/Twitter: @VincentA55Resources Mentioned:Wake Up NarcolepsyCharlotte Motor Speedway areaSupport the Show: Support Narcolepsy Navigators on Patreon for bonus content, Discord access, and exclusive merch! Visit www.napsforlife.comSupport the showSubscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.Follow and support Narcolepsy Navigators:www.napsforlife.comInstagram: https://www.instagram.com/narcolepsynavigatorspodcast/Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcastTikTok: https://www.tiktok.com/@narcolepsynavigatorsYoutube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast ***If you find these symptoms relatable, please seek medical advice.***

Leave a review!Can you have a successful pregnancy and thrive as a parent while living with Narcolepsy? This week on Narcolepsy Navigators, Kerly and Liz sit down with Ashley from North Carolina to answer this very question. Diagnosed in 2019 after over a decade of symptoms, Ashley shares her incredible journey through pregnancy and the first 20 months of motherhood. She opens up about the surprising relief from symptoms she experienced while pregnant, the difficult decision to come off life-changing medication, and the reality of navigating the "fourth trimester" with a chronic illness. From the importance of a supportive partner to managing postpartum anxiety and the chaos of a toddler, this episode is a must-listen for anyone in the Narcolepsy community considering parenthood. Tune in for an honest, hopeful, and inspiring conversation about building the family you want, even when your body has other plans.Key Topics Discussed:Ashley's journey to a Narcolepsy Type 1 diagnosis in 2019.The difficult decision to stop medication while trying to conceive and during pregnancy.The surprising improvement of Narcolepsy symptoms during pregnancy.The reality of labor, delivery, and the immediate postpartum period with a sleep disorder.The difference between "normal" sleep deprivation and Narcolepsy fatigue.Strategies for managing a toddler, a career, and a chronic condition.The vital role of a supportive partner and a "village."Navigating postpartum anxiety and finding tools for mental health.Advice for anyone with Narcolepsy who is considering parenthood.Support the showSubscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.Follow and support Narcolepsy Navigators:www.napsforlife.comInstagram: https://www.instagram.com/narcolepsynavigatorspodcast/Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcastTikTok: https://www.tiktok.com/@narcolepsynavigatorsYoutube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast ***If you find these symptoms relatable, please seek medical advice.***

Leave a review!In this powerful and emotional episode of Narcolepsy Navigators, we travel to South America for the very first time to share the story of Javiera Santamaría, a 28-year-old nurse from Santiago, Chile, living with Idiopathic Hypersomnia (IH).Javiera opens up about her early symptoms, dangerous sleep attacks while driving, years of self-doubt, and the life-changing moment she finally received a diagnosis. Through laughter, tears, grief, and growth, she reveals how IH reshaped her relationships, her career, and her self-perception — and why she now feels proud of the person she has become.This episode shines a light on the challenges of living with IH in a country with no formal narcolepsy or IH organization, the high costs of medication, and the stigma that often follows invisible illnesses.Her story is raw, relatable, deeply human — and a reminder that you’re never alone in your journey.What You’ll Hear in This EpisodeJaviera’s earliest symptoms and why she blamed herself for yearsTwo alarming car accidents that finally pushed her toward medical answersMisunderstandings from family vs the strong support she received from friendsBrain fog, irritability, emotional exhaustion, and the unseen sides of IHNavigating grief after the loss of her fatherMedication struggles and the financial burden of treatment in ChileHow exercise unexpectedly became one of her biggest toolsWhat she wishes the world understood about IHWhy she wouldn’t press the “red button” to remove her conditionA heartfelt conversation about resilience, identity, and hopeWhy This Episode MattersMillions live with undiagnosed sleep disorders — especially in regions without awareness or support. Javiera’s story may be the sign someone else desperately needs.Support the showSubscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.Follow and support Narcolepsy Navigators:www.napsforlife.comInstagram: https://www.instagram.com/narcolepsynavigatorspodcast/Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcastTikTok: https://www.tiktok.com/@narcolepsynavigatorsYoutube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast ***If you find these symptoms relatable, please seek medical advice.***

Leave a review!In this episode of Narcolepsy Navigators, we sit down with Cloud, a narcolepsy advocate from San Diego living with Narcolepsy Type 1 with cataplexy.After years of struggling with unexplained exhaustion and symptoms that began in adolescence, Cloud was finally diagnosed at age 30. But diagnosis wasn’t the end of the journey — it was just the beginning.For nearly a decade, Cloud intentionally stepped away from traditional schedules to learn how their body actually functions with narcolepsy. That meant building a life around energy levels, sleep cycles, and personal boundaries rather than society’s expectations.Now, ten years later, Cloud has reentered the workforce and is navigating what it means to balance work, health, relationships, and identity with a neurological sleep disorder.This conversation is honest, thoughtful, and deeply relatable for anyone learning how to build a life around chronic illness rather than fighting against it.Topics Covered• Recognizing narcolepsy symptoms as a teenager • Receiving a diagnosis at age 30 • Why Cloud stepped away from traditional work for years • Learning to live on your body’s schedule • Reentering the workforce after a decade • Balancing friendships, family, and fatigue • The mental load of narcolepsy • Adjusting medication and nap schedules • Why understanding your body is essentialWhy This Episode MattersNarcolepsy isn’t just about sleep attacks. It affects careers, identity, relationships, and how people move through the world.Cloud’s story highlights the importance of self-awareness, boundaries, and designing a life that works with your condition instead of against it.About the GuestCloud lives in San Diego and was diagnosed with narcolepsy with cataplexy at age 30 after experiencing symptoms since adolescence. Over the past decade, they have focused on understanding how to live well with narcolepsy and are now exploring new ways to reconnect with work, community, and purpose.Support the showSubscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.Follow and support Narcolepsy Navigators:www.napsforlife.comInstagram: https://www.instagram.com/narcolepsynavigatorspodcast/Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcastTikTok: https://www.tiktok.com/@narcolepsynavigatorsYoutube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast ***If you find these symptoms relatable, please seek medical advice.***

Leave a review!Hot Flashes, Anxiety, Insomnia:The Menopause Sleep Crisis: Insights with Dr. Caitlin Chasser Narcolepsy Navigators launches its Medical Series on narcolepsy and overlooked comorbidities, with host Fred (undiagnosed sleep disorder), co-host Bernadette (narcolepsy type 1), and guest Dr. Caitlin Chasser, a family doctor specializing in sleep and menopause. Dr. Caitlin shares how her own insomnia and premature menopause led her to focus on sleep, emphasizing holistic tools (meditation, breath work, body scans), exercise (especially resistance training), and personalized sleep environments to reduce hyperarousal. She discusses common menopause-related sleep problems (poor sleep quality, insomnia, obstructive sleep apnea, restless leg syndrome linked to iron deficiency), the impact of alcohol, naps, and bedtime routines, and notes CBT-I as the gold-standard insomnia treatment. The episode also covers melatonin’s limited indications, hot flushes and temperature regulation, libido changes, and resources from The Sleep Project, plus podcast Patreon/merch announcements.About The Guest Dr Caitlin Chasser is a GP and Sleep Consultant with a special interest in women’s health, particularly how sleep is affected by menopause.She is a co-founder of The Sleep Project, a doctor-led organisation helping people of all ages improve their sleep through practical, science-backed programmes. Caitlin has over 20 years of experience supporting women to feel better, sleep better and take back control of their health.She specialises in Cognitive Behavioural Therapy for Insomnia (CBT-I), the most effective treatment for long-term sleep difficulties, and takes a holistic, compassionate approach to sleep and wellbeing. Caitlin is passionate about making good sleep accessible to all — especially during life stages like menopause when sleep can often suffer. 00:00 Medical Series Kickoff01:18 Meet the Hosts and Guest02:43 Dr Caitlin Origin Story04:26 Holistic Sleep Foundations06:54 Exercise and Sleep Quality09:05 Menopause Sleep Changes10:28 Melatonin Myths and Uses14:54 Menopause Sleep Changes15:56 Menopause Insomnia Playbook21:28 Sleep Safety and Hyperarousal25:28 Wind Down and Mind Quieting27:49 Breathwork Sleep Hack28:45 Tools for 2AM Wakeups29:52 Sports Body Scan Story31:35 Military Body Scan Explained32:28 Menopause Sleep Disruptors34:24 Hot Flashes and Temperature36:52 Libido Sleep Connection38:32 Comfort and Hormone Options40:51 Menopause Surprise and Support44:25 CBTI Works and Next Steps46:58 Why the Sleep Project Started49:15 Wrap Up and Resources50:21 PatreSupport the showSubscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.Follow and support Narcolepsy Navigators:www.napsforlife.comInstagram: https://www.instagram.com/narcolepsynavigatorspodcast/Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcastTikTok: https://www.tiktok.com/@narcolepsynavigatorsYoutube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast ***If you find these symptoms relatable, please seek medical advice.***

Leave a review!This Bonus Episode is now available to everyone in celebration of Black History Month!!In our latest episode of Narcolepsy Navigators’ Medical Series, we sit down with Dr. Chris Allen, board-certified pediatric neurologist and sleep medicine specialist, founder of Quality Sleep and Neurology PC in Michigan.Dr. Allen brings both medical expertise and lived experience to the conversation, sharing his own 21-year journey living with obstructive sleep apnea while breaking down why sleep disorders are among the most misunderstood and underdiagnosed medical conditions today.We cover everything from narcolepsy misdiagnosis and pediatric sleep disorders to the dangerous myth that snoring is “normal,” the real connection between sleep and heart health, and why CPAP is not the only treatment option for sleep apnea.This episode is a must-listen for patients, parents, clinicians, and anyone who has ever been told, “You’re just tired.”Topics CoveredWhy sleep medicine is still under-taught in medical schoolsDr. Allen’s personal experience with sleep apneaWhy snoring is a medical red flag, not a jokeNarcolepsy vs depression vs hypersomniaPediatric sleep disorders and missed diagnosesADHD-like symptoms caused by poor sleep in childrenRestless legs, ferritin levels, and iron deficiencyThe link between sleep, heart disease, and blood pressureCPAP alternatives and emerging treatmentsHustle culture and why sleep deprivation hurts productivityRepresentation and trust in healthcareWhy This Episode MattersSleep disorders don’t just affect energy — they affect memory, mood, heart health, development, and lifespan. Dr. Allen explains why untreated sleep conditions quietly damage the body over time and why awareness can literally save lives.About the GuestDr. Christopher J. Allen, MD is a board-certified pediatric neurologist and sleep medicine specialist, founder of Quality Sleep and Neurology PC. Known online as Sleep Dr. Chris, he is a leading voice in accessible sleep education and a strong advocate for patient-centered care. Above all, Dr. Allen is a devoted family man, proud husband, and father of two—bringing the same passion he holds for his patients to his home and loved ones.Every child deserves a good night's sleep... Purchase Your Copy of Sweet Dreams Today:  https://www.sleepdrchris.com/Support the showSubscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.Follow and support Narcolepsy Navigators:www.napsforlife.comInstagram: https://www.instagram.com/narcolepsynavigatorspodcast/Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcastTikTok: https://www.tiktok.com/@narcolepsynavigatorsYoutube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast ***If you find these symptoms relatable, please seek medical advice.***

Leave a review!Narcolepsy is often misunderstood, dismissed, and dangerously underdiagnosed — especially in women. In this powerful Advocacy Series episode, we sit down with Dr. Anne-Marie Morse, a neurologist with specialized training in child neurology and sleep medicine, to talk about what real advocacy looks like, why diagnosis delays can stretch nearly two decades, and how patients can reclaim power in the healthcare system.Dr. Morse breaks down one of the most important truths in sleep medicine: language matters. Words like tired, fatigue, and sleepiness are not interchangeable — and using the wrong one can lead to missed diagnosis and years of suffering.We also discuss the emotional reality of narcolepsy: grief, identity, guilt, family dynamics, and why peer support and global community are essential. From workplace wellness myths to school system failures, this conversation is both validating and activating.If you’ve ever felt unheard, minimized, or reduced to a score on a scale — this episode is for you.In This Episode, We Cover:Why narcolepsy impacts an entire ecosystem (family, friends, school, work)The average delay to diagnosis — and why women face longer delaysThe difference between sleepiness vs tiredness vs fatigueWhy you are NOT your Epworth Sleepiness Scale scoreThe best question a doctor can ask: “What can’t you do?”The grief that comes with diagnosis — for patients AND familiesWhy mental health support should be standard in chronic illness careHow peer support can prevent isolation and long-term disabilityWhy sleep should be treated like water — essential, non-negotiableHow advocacy needs to become global to create real changeKey Takeaway“We need to create treatment regimens that fit people’s lives — not lives that fit treatment regimens.” Dr Ann Marie MorseResources MentionedProject SleepHypersomnia FoundationWake Up NarcolepsyFaces of NarcolepsyJulie Flygare’s book: Wide Awake and DreamingListen + Subscribe🎧 Listen now and share this episode with someone who needs to hear it.Support the showSubscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.Follow and support Narcolepsy Navigators:www.napsforlife.comInstagram: https://www.instagram.com/narcolepsynavigatorspodcast/Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcastTikTok: https://www.tiktok.com/@narcolepsynavigatorsYoutube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast ***If you find these symptoms relatable, please seek medical advice.***

Leave a review!In this episode of Narcolepsy Navigators, hosts Kerly and Sakhara, both living with narcolepsy type one, are joined by Dr. Jill McGarry, a clinical psychologist with 28 years of NHS experience. They delve into the importance of holistic health and mental health for managing narcolepsy. Dr. McGarry discusses strategies like energy level management, routines anchored by consistent wake times, and mindfulness. The conversation highlights the profound effects of psychological support, the importance of timing and sleep hygiene, and the benefits of a balanced diet. The episode underscores the need for a multidisciplinary approach in supporting individuals with narcolepsy and the potential benefits of community support.Support the showSubscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.Follow and support Narcolepsy Navigators:www.napsforlife.comInstagram: https://www.instagram.com/narcolepsynavigatorspodcast/Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcastTikTok: https://www.tiktok.com/@narcolepsynavigatorsYoutube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast ***If you find these symptoms relatable, please seek medical advice.***

Leave a review!In this episode of the Narcolepsy Navigators Podcast, hosts Kerly and Iris introduce their new Advocacy Series aimed at spotlighting changemakers, advocates, and everyday heroes in the field of narcolepsy. They welcome Matt Hornsnell, a sleep advocate diagnosed with narcolepsy type one and obstructive sleep apnea, who shares his extensive experiences in advocacy, public speaking, and research. Matt discusses the importance of community support, the challenges of male representation in advocacy, and the delicate balance between personal life and advocacy work. The conversation delves into topics like the impact of narcolepsy on relationships and mental health, and the necessity of setting boundaries. This episode is an inspiring exploration of how personal stories and lived experiences can drive awareness and change.Bio:Matt Horsnell is a husband, father of three, and sleep advocate living with NT1 (narcolepsy with cataplexy) and obstructive sleep apnea. As an author-advocate, he has published research on lived experience with sleep disorders. Matt also works as a consultant for the pharmaceutical industry and on behavioral sleep projects.Matt has presented in national conferences at SLEEP and the Society of Behavioral Sleep Medicine (SBSM). Additionally, Matt is the Co-Host of Hypersomnia Foundation’s UNIGHT.Matt was recognized as Project Sleep’s Inaugural Sleep Advocacy Champion in 2023. In 2025, he was recognized with Hypersomnia Foundation’s Patient Advocate Award. Matt presented on Sleep Health Equity to The White House (2023) and was featured in a CNN article about life with narcolepsy (2024).Highlights:[03:09] The Importance of Social Support[07:13] Challenges and Rewards of Advocacy[14:03] Male Representation in Narcolepsy Advocacy[22:02] Parenthood and Advocacy Balance[23:02] Setting Boundaries in AdvocacyOFFICIAL WEBSITEwww.napsforlife.com Support the showSubscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.Follow and support Narcolepsy Navigators:www.napsforlife.comInstagram: https://www.instagram.com/narcolepsynavigatorspodcast/Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcastTikTok: https://www.tiktok.com/@narcolepsynavigatorsYoutube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast ***If you find these symptoms relatable, please seek medical advice.***

Leave a review!In this powerful international episode of Narcolepsy Navigators, we sit down with Jayson, a PE teacher, endurance runner, and advocate living with Narcolepsy Type 1 with cataplexy in Taiwan.Diagnosed as a teenager after repeatedly falling asleep in class, Jayson grew up navigating stigma, academic pressure, and deep misunderstandings — especially within a culture where performance and discipline are highly valued. Despite this, he has built a life centered around movement, self-awareness, and intentional boundaries, even running half marathons while managing narcolepsy.Jayson shares how suppressing emotions to avoid cataplexy affected his identity, why journaling and therapy changed his life, and how he re-designed his career to protect his health. He also gives rare insight into Taiwan’s healthcare system, cultural nap norms, military service exemptions, and what true balance looks like when energy is limited.This episode is honest, reflective, and deeply human — especially for anyone who has ever been told they “don’t look sick.”What You’ll Learn in This EpisodeWhat it’s like being diagnosed with narcolepsy as a teen in TaiwanHow teachers misread symptoms as laziness or lack of motivationThe emotional cost of suppressing joy to avoid cataplexyWhy Jayson chose flexible work over traditional career pathsHow exercise dramatically improves his sleep qualityThe role of journaling and therapy in emotional survivalCultural differences around naps and productivityHow plant-based eating helps him manage daytime sleepinessWhy narcolepsy is still not classified as a disability in TaiwanHis honest answer to the “red button” questionWhy This Episode MattersNarcolepsy doesn’t look the same in every country — and Jayson’s story highlights how culture, healthcare systems, and expectations shape the lived experience of sleep disorders. This conversation challenges stereotypes and proves that strength doesn’t always look like pushing harder — sometimes it looks like resting smarter.New Episode Out Now: https://www.napsforlife.com/podcast/episode/7f587a5c/s4e5-running-half-marathons-with-narcolepsy-jaysons-story-from-taiwanAbout the GuestJayson is a PE teacher, endurance runner, and advocate from Taipei, Taiwan, living with Narcolepsy Type 1 with cataplexy. He uses movement, structure, and self-reflection to manage his condition and raise awareness across cultures.Support the showSubscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.Follow and support Narcolepsy Navigators:www.napsforlife.comInstagram: https://www.instagram.com/narcolepsynavigatorspodcast/Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcastTikTok: https://www.tiktok.com/@narcolepsynavigatorsYoutube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast ***If you find these symptoms relatable, please seek medical advice.***

Leave a review!In this powerful episode of the Narcolepsy Navigators Podcast, hosts Kerly and Liz kick off a new advocacy-focused series spotlighting changemakers in the sleep disorder community.They’re joined by Claire Wylds Wright, a UK-based advocate whose journey into advocacy began when her daughter was diagnosed with narcolepsy at a young age. What started as a search for answers quickly evolved into a mission to create change—leading Claire to become an author, mentor, and co-founder of the Sleep Consortium.Claire shares what it really takes to advocate within healthcare systems, why listening is one of the most powerful tools in medicine, and how collaboration is shaping the future of sleep disorder research and treatment. The conversation also tackles misconceptions, healthcare disparities, and what upcoming treatments could mean for families worldwide.This episode is a must-listen for advocates, caregivers, clinicians, and anyone passionate about better sleep health outcomes.What You’ll Learn in This Episode:How advocacy often begins at the diagnosis stageWhy patient voices matter in healthcare decision-makingThe mission behind the Sleep ConsortiumDifferences between UK and US healthcare systemsRacial disparities in sleep disorder diagnosis and careThe future of narcolepsy and hypersomnia treatmentsAdvice for new advocates entering the space🎧 Listen now and join the movement shaping the future of sleep health.Bio: Claire is an award-winning author and patient advocate for people living with sleep disorders. After her daughter Mathilda developed Type1 Narcolepsy in 2010, her family moved from England to California to secure treatment and expert care for Mathilda under Professor Emmanuel Mignot at Stanford. Her book Waking Mathilda—A Memoir of Childhood Narcolepsy was published in 2017 and tells the story of parenting a young child with Narcolepsy and the impact of Mathilda’s diagnosis on her life and her family. She lives in Los Angeles with her son, daughter, and cat Mochi.Support the showSubscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.Follow and support Narcolepsy Navigators:www.napsforlife.comInstagram: https://www.instagram.com/narcolepsynavigatorspodcast/Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcastTikTok: https://www.tiktok.com/@narcolepsynavigatorsYoutube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast ***If you find these symptoms relatable, please seek medical advice.***

Leave a review!In this powerful and eye-opening conversation, 18-year-old Wendy shares what life is really like growing up with narcolepsy type 1 with cataplexy. Diagnosed at just 13 years old, Wendy opens up about sleep attacks in class, cataplexy triggered by laughter, hallucinations vivid enough to call the police, and the emotional toll of being a teenager who never gets to “just be a teenager.”Through humor, honesty, and incredible resilience, Wendy talks about friendships, family, school accommodations, dating with narcolepsy, and what it means to walk into adulthood with a chronic sleep disorder — completely unmedicated.Her story will break your heart, make you laugh, and leave you inspired.In This Episode, We Discuss:Early symptoms and Wendy’s shockingly fast drop into REM (1.5 minutes!)Managing 10+ cataplexy episodes a dayBeing a teen with a hidden disability that classmates don’t understandThe fear and reality of hallucinationsMicrosleeps, automatic behavior & writing dreams in school notesWhy Wendy chose to stay unmedicatedAccommodations in school and the struggle to be believedNavigating friendship, dating & self-worthHer dream of creating films that portray chronic illness accuratelyAdvice for teens with narcolepsy who feel aloneNew Episode Out Now Link: https://www.napsforlife.com/podcast/episode/7e049ba0/s4e4-microsleeps-hallucinations-and-homework-wendys-daily-fight Wendy is a passionate teen advocate and the creator of the narcolepsy awareness page @undyingnoir, where she designs educational infographics and shares her journey. She is beginning her college path in Film Production and hopes to create media that reflects real, misunderstood conditions like narcolepsy.Follow Wendy:Instagram: @undyingnoirSupport the PodcastJoin our Patreon for bonus episodes, behind-the-scenes content, Discord access, and exclusive merch. Visit: napsforlife.comSupport the showSubscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.Follow and support Narcolepsy Navigators:www.napsforlife.comInstagram: https://www.instagram.com/narcolepsynavigatorspodcast/Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcastTikTok: https://www.tiktok.com/@narcolepsynavigatorsYoutube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast ***If you find these symptoms relatable, please seek medical advice.***

Leave a review!Trigger Content Notice: This episode discusses psychedelics, substance use, religious/spiritual themes, and past trauma. Listener discretion advised.Leave a review!In this powerful and vulnerable episode of Narcolepsy Navigators, we sit down with Alexander, a 28-year-old from Pennsylvania who shares one of the most unique and spiritually profound narcolepsy journeys we’ve heard yet. Diagnosed at 17, his story moves through misdiagnosis, heavy stimulants, sleep paralysis, terrifying hallucinations, dopamine-seeking behaviors, pre-workout amphetamines, and how he rebuilt his life by shifting his mindset — spiritually, psychologically, and physically.TOPICS COVERED:Narcolepsy diagnosis experienceSleep paralysis + hallucinationsDopamine regulation & reward cyclesPre-workout supplements & hidden stimulantsTrauma + head injuriesSpiritual awakeningsMushrooms as spiritual toolsSelf-healing mindsetCataplexy experiencesRedefining narcolepsy as “adaptation” instead of “disease.CONNECT WITH ALEXANDER IG: @sleepy.b.wokeNew Episode Out Now: https://www.napsforlife.com/podcast/episode/7efd5676/s4-e3-beyond-narcolepsy-a-journey-of-consciousness-and-healingSupport the PodcastJoin our Patreon for bonus episodes, behind-the-scenes content, Discord access, and exclusive merch. Visit: napsforlife.comSupport the showSubscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.Follow and support Narcolepsy Navigators:www.napsforlife.comInstagram: https://www.instagram.com/narcolepsynavigatorspodcast/Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcastTikTok: https://www.tiktok.com/@narcolepsynavigatorsYoutube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast***If you find these symptoms relataSupport the showSubscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.Follow and support Narcolepsy Navigators:www.napsforlife.comInstagram: https://www.instagram.com/narcolepsynavigatorspodcast/Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcastTikTok: https://www.tiktok.com/@narcolepsynavigatorsYoutube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast ***If you find these symptoms relatable, please seek medical advice.***

Leave a review!In this episode of NAR Lipsey Navigators, hosted by Kerly and Liz, the spotlight is on Tara, a 27-year-old woman from Maine who has been living with narcolepsy type 1. Tara shares her story, from being misdiagnosed with ADHD and ODD as a child to finally receiving the correct diagnosis at 22. She discusses her struggles with maintaining jobs, her journey through various treatments, and the significant lifestyle changes she implemented after her diagnosis. Tara's advocacy work, including her role as a patient ambassador for WSG and her social media presence, underscores her commitment to raising awareness about narcolepsy. The episode also delves into the challenges and triumphs of living with a chronic sleep disorder, offering a poignant look at resilience and self-advocacy.Episode Out Now! Link: https://www.napsforlife.com/podcast/episode/81863df7/s4e2-firefighter-emt-advocate-tara-oconnor-redefines-whats-possible-with-narcolepsySupport the showSubscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.Follow and support Narcolepsy Navigators:www.napsforlife.comInstagram: https://www.instagram.com/narcolepsynavigatorspodcast/Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcastTikTok: https://www.tiktok.com/@narcolepsynavigatorsYoutube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast ***If you find these symptoms relatable, please seek medical advice.***

Leave a review!In this heartfelt episode of Narcolepsy Navigators, Gabrielle and Paul share their family’s journey of raising a child with Kleine Levin Syndrome (KLS), also known as “Sleeping Beauty Syndrome.” Speaking openly about the uncertainty, the emotional toll, and the small victories, they offer listeners an inside look at how KLS impacts their son’s daily life — from sleeping 16–20 hours a day during episodes to rediscovering joy when awake.The conversation touches on:The challenges of finding a diagnosis in rural Maine.Navigating school, healthcare, and family life with a rare sleep disorder.What support systems truly mean for children and parents.Why raising awareness of KLS is critical to changing perceptions.This episode is not only a story of resilience and advocacy, but also a reminder of the importance of community for families facing rare conditions.Listen in and be inspired by their courage, honesty, and determination to give their son the best life possible.Episode Out NowLink: https://www.napsforlife.com/podcast/episode/80bdf6b0/s4e1-klein-levin-syndrome-parenting-through-the-challenges #KleineLevinSyndrome #KLSAwareness #RareSleepDisorder #NarcolepsyPodcast #ParentingRareDisease #SleepHealthAdvocacy #ChildhoodSleepDisorder #InvisibleIllness #RareDiseasePodcast #KLSParentsPerspective #RareNeurologicalDisorder #IdiopathicHypersomnia #LivingWithKLS #RareDiseaseAwareness #SleepDisordersCommunitySupport the showSubscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.Follow and support Narcolepsy Navigators:www.napsforlife.comInstagram: https://www.instagram.com/narcolepsynavigatorspodcast/Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcastTikTok: https://www.tiktok.com/@narcolepsynavigatorsYoutube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast ***If you find these symptoms relatable, please seek medical advice.***

Leave a review!In this episode of Narcolepsy Navigators, hosted by Kerry Bwoga, the founder of Naps for Life, CIC, we sit down with 11-year-old Lucas and his mother Kathy from Toronto, Canada. Lucas shares his experiences living with Type 1 narcolepsy, detailing his daily struggles with sleepiness, cataplexy, and how he manages to stay active. Kathy provides insights into the challenges of navigating the Canadian healthcare system, advocating for better support and understanding for pediatric narcolepsy. The episode also highlights the importance of community support and awareness in managing sleep disorders. Additionally, Kerry announces the launch of their new Patreon and merch store to help support their advocacy efforts.Highlights:02:45 Lucas's Narcolepsy Journey09:06 Sleep Tests and Diagnosis12:04 Support Systems and Coping Strategies19:37 Parental Perspective on Narcolepsy29:01 Challenges with Medical Support32:15 Iron Deficiency and Its Impact48:30 Raising Awareness and Seeking SupportSupport the showSubscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.Follow and support Narcolepsy Navigators:www.napsforlife.comInstagram: https://www.instagram.com/narcolepsynavigatorspodcast/Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcastTikTok: https://www.tiktok.com/@narcolepsynavigatorsYoutube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast ***If you find these symptoms relatable, please seek medical advice.***

Leave a review!In this episode of Narcolepsy Navigators, hosts Kerly Bwoga and Liz are joined by Josephine Niipinge from Namibia, who shares her experience of living with narcolepsy with cataplexy. Diagnosed at the young age of 13, Josephine discusses the challenges she faced due to perceptions of witchcraft and lack of awareness about her condition in her community. She talks about her struggle to get appropriate medical treatment and how it impacted her education and social life. Josephine recounts her journey from being misdiagnosed and taken off medication to eventually finding effective treatment and resuming her studies. She highlights the need for increased awareness about narcolepsy in Namibia and reflects on how her condition has made her more resilient.Episode Highlights03:51 Josephine's Diagnosis Journey04:47 Challenges and Misunderstandings07:12 Life with Narcolepsy: School and University21:27 Teaching Career and Managing Narcolepsy28:01 Living with Narcolepsy29:43 Challenges in Social Life and Teaching34:31 Raising Awareness in NamibiaSupport the showSubscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.Follow and support Narcolepsy Navigators:www.napsforlife.comInstagram: https://www.instagram.com/narcolepsynavigatorspodcast/Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcastTikTok: https://www.tiktok.com/@narcolepsynavigatorsYoutube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast ***If you find these symptoms relatable, please seek medical advice.***

Leave a review!This week on Narcolepsy Navigators, Kerly sits down with Fred to explore what it truly means to live with narcolepsy while navigating identity, stigma, and self-acceptance. Fred opens up about the diagnosis journey, the challenges of being misunderstood, and how to balance vulnerability with strength.From redefining what “disabled” means to them personally, to highlighting the importance of visibility and representation, Fred’s story is a powerful reminder that life with narcolepsy is not defined by limitations—but by resilience, courage, and the choice to live authentically.This episode is about breaking silence, reclaiming identity, and inspiring others in the sleep disorder community to embrace their truth. Whether you live with narcolepsy, support someone who does, or simply want to learn more, Fred’s voice will move you.Chapters00:00 Introduction & Meet Fred05:20 Early Experiences with Narcolepsy14:45 The Emotional Weight of Diagnosis23:10 Identity, Stigma, and Representation34:00 Finding Hope and ResilienceSupport the showSubscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.Follow and support Narcolepsy Navigators:www.napsforlife.comInstagram: https://www.instagram.com/narcolepsynavigatorspodcast/Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcastTikTok: https://www.tiktok.com/@narcolepsynavigatorsYoutube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast ***If you find these symptoms relatable, please seek medical advice.***

Leave a review!In this inspiring episode of Narcolepsy Navigators, we sit down with Soheila, a 22-year-old from the north of France, to explore what it’s like growing up with narcolepsy. Diagnosed after years of symptoms and medical misunderstandings, Soheila shares her journey from confusion and isolation to self-acceptance and advocacy.She opens up about navigating school, work, and friendships while managing sleep attacks, memory issues, and the stigma surrounding narcolepsy in France. From unsupportive managers to incredibly understanding friends, Soheila’s story is a powerful example of resilience, self-advocacy, and finding community.We discuss cultural attitudes toward chronic illness, the importance of supportive healthcare providers, and how Soheila is now using her voice to raise awareness through her new French podcast on sleep disorders. In one of the most moving moments, she shares why she wouldn’t press the “red button” to cure her narcolepsy—and how it has shaped her into the strong, determined person she is today.Episode Highlights: 00:00 – Introduction 05:00 – Navigating Work with Narcolepsy 09:15 – The Long Road to Diagnosis 14:00 – Finding Acceptance Through Support 17:00 – Family Reactions and Challenges 23:00 – Friends, Loss, and True Support 27:20 – Misconceptions About Narcolepsy in France 31:10 – What Needs to Change in Society 35:20 – Managing Symptoms and Daily Life 39:30 – Social Life, Dating, and Boundaries 44:14 – Advocacy and Launching Her Podcast 48:58 – Why She Wouldn’t Cure Her NarcolepsySupport the showSubscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.Follow and support Narcolepsy Navigators:www.napsforlife.comInstagram: https://www.instagram.com/narcolepsynavigatorspodcast/Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcastTikTok: https://www.tiktok.com/@narcolepsynavigatorsYoutube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast ***If you find these symptoms relatable, please seek medical advice.***

Leave a review!When Gina’s six-year-old son began showing unusual sleepiness, tantrums, and sudden collapses, she never imagined it would lead to a diagnosis of narcolepsy with cataplexy. In this heartfelt and insightful conversation, Gina shares the highs and lows of navigating a rare sleep disorder as a parent and caregiver.From the emotional rollercoaster of seeking answers to the relief of finally having a diagnosis, Gina offers an unfiltered look at the realities of raising a child with narcolepsy—balancing treatment trials, advocating in the school system, managing emotional well-being, and holding the family together through it all.She discusses the transformative moments that shifted her perspective, the importance of trusting maternal instincts, and why building the right medical team is vital. Gina’s story is more than a caregiver’s account—it’s a testament to resilience, advocacy, and love.Whether you’re a parent, a person living with narcolepsy, or simply curious about the human side of chronic illness, this episode offers both practical wisdom and heartfelt inspiration.Key moments:03:13 – First symptoms and the long road to diagnosis06:03 – Receiving the narcolepsy diagnosis12:02 – Learning to trust maternal instincts15:14 – Puberty’s impact on symptoms22:15 – Caregiver grief and acceptance36:46 – Navigating school accommodations39:35 – Final reflections and words of encouragementSupport the showSubscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.Follow and support Narcolepsy Navigators:www.napsforlife.comInstagram: https://www.instagram.com/narcolepsynavigatorspodcast/Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcastTikTok: https://www.tiktok.com/@narcolepsynavigatorsYoutube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast ***If you find these symptoms relatable, please seek medical advice.***

Leave a review!What if managing a condition could open new doors and redefine your career path? Meet Hugh, a talented video technologist from Plymouth, UK who has navigated the unpredictable waters of narcolepsy while making waves in the live entertainment industry. From working on big rock concerts to contributing to cutting-edge virtual productions like “The Mandalorian,” Hugh shares his unique insights into balancing a demanding career with the challenges of a condition that began during his university years. Join us as we explore how his journey has led him to embrace self-employment, offering the flexibility he needs to manage his symptoms while pursuing his passion for entertainment and technology.You'll learn how community support plays a vital role in living with narcolepsy, and the hurdles one might face due to medication restrictions across different regions. With candid discussions around symptoms like sleep paralysis and vivid hypnagogic hallucinations, Hugh opens up about the emotional and practical realities of living with this condition. Discover how he has adjusted his life and career, the importance of accommodating work environments, and the ways in which cultural perceptions of narcolepsy can influence opportunities in unexpected ways.Throughout this episode, we also touch upon the significance of managing narcolepsy symptoms without medication, the impact of new treatments like Wackix, and the role of naps in maintaining productivity. Hugh's reflections extend to gender-specific challenges and the need for more research on hormonal changes affecting those with narcolepsy. This conversation is not just about living with a condition; it's a testament to resilience, adaptability, and the power of advocacy, offering invaluable insights for anyone affected by or interested in narcolepsy.Chapters(00:13) Narcolepsy Navigators Intro(11:12) Living With Narcolepsy(24:10) Navigating Life With Narcolepsy(28:26) Empowering Narcolepsy Advocacy Through Self-Employment(35:59) Managing Narcolepsy Symptoms Without Medication(40:38) Navigating Narcolepsy and Gender RolesSupport the showSubscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.Follow and support Narcolepsy Navigators:www.napsforlife.comInstagram: https://www.instagram.com/narcolepsynavigatorspodcast/Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcastTikTok: https://www.tiktok.com/@narcolepsynavigatorsYoutube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast ***If you find these symptoms relatable, please seek medical advice.***

Leave a review!In this eye-opening episode, we meet Rebecca from North Carolina, who shares her deeply personal and powerful experience living with narcolepsy type 1, cataplexy, ADHD, and a rare condition called gluten ataxia.From the moment she describes sleep attacks hitting like an unstoppable sneeze to navigating misunderstood conditions while holding down jobs, attending interviews, and trying to maintain a “normal” social life—Rebecca paints a raw and relatable picture of life with multiple overlapping diagnoses.She also opens up about:Why she quit her stressful job to protect her healthThe physical and emotional toll of food sensitivitiesHow her boyfriend and even her dog can spot sleep attacks before she canThe struggle between being social and simply surviving an outingUsing Luvox, an anti-anxiety medication, to manage cataplexyWhy she wouldn’t trade her narcolepsy for her ADHDFrom hilarious analogies (sugar cravings as “fake diabetes attacks”) to heartbreaking amnesia moments, this episode is a masterclass in self-awareness, boundaries, and advocacy.🔗 Plus: learn about her Facebook community for navigating gluten and dairy-free living with autoimmune disorders.Support the showSubscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.Follow and support Narcolepsy Navigators:www.napsforlife.comInstagram: https://www.instagram.com/narcolepsynavigatorspodcast/Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcastTikTok: https://www.tiktok.com/@narcolepsynavigatorsYoutube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast ***If you find these symptoms relatable, please seek medical advice.***

Leave a review!In this heartfelt episode of Narcolepsy Navigators, Kerly sits down with Lisa Isaac, an inspiring woman living with narcolepsy type 1 and cataplexy in New Zealand. From her days as a sporty teenager needing frequent naps, to being misdiagnosed with epilepsy, Lisa shares her winding journey to an accurate diagnosis — and how she finally found community and support.Lisa opens up about:Her move from the UK to New ZealandBeing dismissed by doctors and labeled "lazy"Her struggle with cataplexy triggered by laughterThe challenges of living in a country with few specialistsHow creativity became her unexpected lifelineLisa’s story is a testament to resilience, advocacy, and the power of finding community. Her laughter is infectious, her honesty is refreshing, and her advice for others is invaluable.Support the showSubscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.Follow and support Narcolepsy Navigators:www.napsforlife.comInstagram: https://www.instagram.com/narcolepsynavigatorspodcast/Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcastTikTok: https://www.tiktok.com/@narcolepsynavigatorsYoutube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast ***If you find these symptoms relatable, please seek medical advice.***

Leave a review!In this episode of Narcolepsy Navigators, we meet the radiant and resilient Taya Austin, a federal employee, nonprofit leader, and auntie-turned-parent, living with Idiopathic Hypersomnia (IH).After years of being dismissed, misdiagnosed, and told to “just sleep better,” Taya finally received her diagnosis two years ago. From childhood naps and overwhelming exhaustion in college, to hiding her symptoms while earning her master's and serving her community, her story is one of silent suffering turned self-advocacy.Taya talks candidly about:[06:12] How doctors ignored her fatigue for years[13:17] The moment she refused to be dismissed again[18:03] Learning boundaries and unlearning hustle culture[21:02] How IH impacts dating, friendships, and self-worth[30:01] Her experience with medication, including Xywav[34:19] Why she'd hit the red button to erase IH💡 Taya’s voice is powerful, full of laughter and light—and rooted in the truth that rest isn’t a luxury, it’s survival.🎧 Listen now for a deeply relatable episode about learning to slow down, speak up, and take your life back—nap by nap.Support the showSubscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.Follow and support Narcolepsy Navigators:www.napsforlife.comInstagram: https://www.instagram.com/narcolepsynavigatorspodcast/Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcastTikTok: https://www.tiktok.com/@narcolepsynavigatorsYoutube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast ***If you find these symptoms relatable, please seek medical advice.***

Leave a review!In this raw and deeply moving episode of Narcolepsy Navigators, we meet Meg—a 36-year-old adoptee, student, and mental health advocate navigating life with narcolepsy type 1, CBID, Behçet’s syndrome, and bipolar disorder. Meg shares the emotional rollercoaster that led to her diagnosis after a devastating car crash, including the haunting vivid dreams, overwhelming fatigue, and misunderstood cataplexy that shaped her early adulthood.From managing multiple chronic conditions to challenging cultural expectations as a Korean-American adoptee raised in a "tiger mom" household, Meg reflects on identity, resilience, and finding connection through vulnerability. Her candid reflections on depression, dating with chronic illness, and the harsh realities of invisible disabilities will resonate with anyone who’s ever felt like their body betrayed them.🔹 Chapters:00:00 – Introduction & Background04:00 – The Car Crash That Changed Everything08:00 – Diagnosis: Relief Meets Devastation12:00 – Comorbidities: Bipolar, CBID, Behçet’s21:00 – Sleep Struggles, Advocacy & Academic Life37:00 – Parenting, Future Plans, and Honest Reflections53:00 – “Would You Press the Red Button?”This is a powerful reminder that even when life reroutes us, it doesn’t have to end the journeySupport the showSubscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.Follow and support Narcolepsy Navigators:www.napsforlife.comInstagram: https://www.instagram.com/narcolepsynavigatorspodcast/Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcastTikTok: https://www.tiktok.com/@narcolepsynavigatorsYoutube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast ***If you find these symptoms relatable, please seek medical advice.***

Leave a review!🎙️ Ever dropped mid-conversation and had to explain it wasn’t drugs?In this deeply personal and unexpectedly hilarious episode of Narcolepsy Navigators, we sit down with Cristina, the creator of Gourmet Recovery, to explore how she navigates life with Narcolepsy Type 1, cataplexy, and a solid sense of humor.Cristina opens up about the frustrating path to diagnosis, being dismissed with chronic fatigue and fibromyalgia, and how her sleep attacks affected school, work, relationships—and even public spaces. From falling asleep in church to hallucinating on public transport, Cristina shares it all: the scary, the silly, and the soul-shifting.We also talk:[05:44] Misdiagnosis and finding the right doctor[08:51] The emotional impact of being finally diagnosed[11:05] Medication side effects, sleepwalking, and the helmet joke[17:44] Her healing journey through intuitive eating & cooking[23:00] How humor helps her reclaim control[27:44] Why she wears a bracelet in public[34:32] The truth about naps and real-life memory struggles[45:48] Would she press the button to remove narcolepsy?Cristina reminds us that there’s no right way to live with narcolepsy—only your way.📲 Follow her at @GourmetRecovery on IG & FB.Support the showSubscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.Follow and support Narcolepsy Navigators:www.napsforlife.comInstagram: https://www.instagram.com/narcolepsynavigatorspodcast/Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcastTikTok: https://www.tiktok.com/@narcolepsynavigatorsYoutube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast ***If you find these symptoms relatable, please seek medical advice.***

Leave a review!What happens when exhaustion is brushed off as “just stress” or “just pregnancy”?In this moving episode of Narcolepsy Navigators, Emma Cooksey—host, author, and now Sleep Apnea Program Manager at Project Sleep—shares her long, harrowing journey with undiagnosed obstructive sleep apnea (OSA). After years of misdiagnosis, Emma’s wake-up call came behind the wheel—when she fell asleep while driving pregnant.Emma dives into her diagnosis story, the daily challenges of adapting to CPAP therapy, and her mission to reshape how sleep apnea is seen and treated—especially for women, younger adults, and people who don’t fit the “classic” profile.Now leading the Sleep Apnea Squad, Emma is on a mission to raise awareness with Project Sleep’s bold campaign, “Sleep Apnea: Let’s Face It”—a movement designed to highlight real people living with sleep apnea and crush outdated stereotypes.Highlights:[08:52] Falling asleep while driving: Emma’s turning point[16:20] What CPAP therapy doesn’t tell you[24:50] “Let’s Face It” and sleep apnea stereotypes[35:47] The deadly risks of going untreatedBio:Emma Cooksey is an award-winning patient advocate. She was diagnosed with obstructive sleep apnea at the age of 30, after more than a decade of unexplained health issues. In 2020, Emma launched a weekly podcast, “Sleep Apnea Stories”  to break down stereotypes of sleep apnea while also raising awareness of symptoms and treatment options.In her current role, as Sleep Apnea Program Manager, Emma runs Project Sleep’s Sleep Apnea Education and Awareness Program. Through this program, she develops new awareness and educational initiatives, to empower people with sleep apnea to seek diagnosis, support, and care. Emma was born and raised in Scotland, holds a Law degree from Aberdeen University, and now lives in Florida with her husband Jason and their two girls.Tune in for a conversation that’s educational, emotional—and necessary.Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.Follow and support Emma:Sleep Apnea Squadhttps://project-sleep.com/sleep-apnea-squad/ Sleep Apnea: Let's Face It!https://project-sleep.com/sleep-apnea-lets-face-it/ Sleep Apnea Stories PodcastSupport the showSubscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.Follow and support Narcolepsy Navigators:www.napsforlife.comInstagram: https://www.instagram.com/narcolepsynavigatorspodcast/Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcastTikTok: https://www.tiktok.com/@narcolepsynavigatorsYoutube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast ***If you find these symptoms relatable, please seek medical advice.***

Leave a review! In this unmissable Season 3 premiere of Narcolepsy Navigators, we curl up for a heartfelt and hilarious deep dive with comedian and podcaster Sarah Albritton, who opens up about living with narcolepsy type 1 and cataplexy—plus a rare twist: sexsomnia.From being misdiagnosed as a teenager in Kentucky to becoming an advocate on stage and behind the mic, Sarah’s journey is one of resilience, radical acceptance, and redefining what thriving looks like. She breaks down everything from navigating sleep paralysis and medication barriers to the emotional weight of invisible illnesses—and how comedy helped her heal.You’ll hear about her solo show Awake: A Narcoleptic, her podcast Sleeping With Sarah, and why she says, “I wouldn’t push a red button to remove narcolepsy. It made me who I am.”Episode Highlights:[02:24] Daily life with narcolepsy and cataplexy[05:36] Living with sexsomnia and the power of communication[14:19] Sarah’s diagnosis journey and hidden seizures[33:51] Creating the solo show and raising awareness[53:04] Cataplexy at Disneyland and emotional triggers[57:28] How comedy changed her relationship with narcolepsy Join us for a raw, hilarious, and powerful episode that normalizes sleep disorders and champions authenticity.Subscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.Follow and support Sarah:Linktree: https://linktr.ee/sarahalbritton?utm_source=linktree_profile_share&ltsid=724d9c5f-787e-4d16-abbd-19cc2b1a7751 Instagram: https://www.instagram.com/sarahalbritton/ Website: https://sarahalbritton.com/Follow and support Narcolepsy Navigators:Website: www.napsforlife.com Support the showSubscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.Follow and support Narcolepsy Navigators:www.napsforlife.comInstagram: https://www.instagram.com/narcolepsynavigatorspodcast/Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcastTikTok: https://www.tiktok.com/@narcolepsynavigatorsYoutube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast ***If you find these symptoms relatable, please seek medical advice.***

Leave a review! Summary️ What if it took a decade to get answers?In this episode of Narcolepsy Navigators, we sit down with Jacquie, a 25-year-old scientist from Texas, to discuss her journey with Idiopathic Hypersomnia (IH)—a sleep disorder that took 10 years to diagnose. From struggling through high school exhaustion to navigating university, lab work, and daily life, Jacquie shares how she advocates for herself and others while juggling a demanding scientific career.Key Takeaways: ✔️ The challenges of getting diagnosed with a rare sleep disorder ✔️ What it’s like managing IH in a high-pressure work environment ✔️ The mental toll of constantly feeling exhausted ✔️ Why raising awareness is crucial for funding future researchFor Jacquie, science and advocacy go hand in hand. She refuses to let her condition define her future and is using her voice to create change.Listen now!Chapters(00:00) Navigating Life With Sleep Disorders(12:58) Navigating Life With Invisible Disabilities(19:41) Accidental Journey Into Science(22:43) Navigating Career Aspirations With IH(26:26) Advocating for Research on Sleep Disorders(31:41) Navigating and Advocating for Invisible Disabilities(39:45) Navigating Hope in AdversitySupport the showSubscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.Follow and support Narcolepsy Navigators:www.napsforlife.comInstagram: https://www.instagram.com/narcolepsynavigatorspodcast/Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcastTikTok: https://www.tiktok.com/@narcolepsynavigatorsYoutube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast ***If you find these symptoms relatable, please seek medical advice.***

Leave a review! SummaryWhat does it mean to truly thrive with narcolepsy?In this powerful episode of Narcolepsy Navigators, we sit down with Dawn Super, a passionate advocate who has lived with Narcolepsy Type 1 for over 40 years. From childhood isolation to self-acceptance, Dawn takes us through the challenges of growing up misunderstood, learning to manage symptoms, and the mental health struggles that come with living with a chronic illness.Dawn shares hard-earned wisdom on resilience, self-love, and why finding community is crucial for people with narcolepsy. She also discusses how positivity isn’t about ignoring reality but embracing it with strength and grace.Whether you have narcolepsy, struggle with mental health, or are looking for inspiration, Dawn’s journey is one you won’t want to miss. Listen now!________________________________________________Chapters(00:10) Narcolepsy and Mental Health(07:53) Navigating Social Interactions and Self-Acceptance(22:04) Personal Growth and Self-Acceptance(33:15) Resilience and Self-Discovery in NarcolepsySubscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.Follow and support Dawn Super:Website: https://naturalhealing.coach/Instagram: https://www.instagram.com/healcoach/ LinkedIn: https://www.linkedin.com/in/healcoach/ YoutubSupport the showSubscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.Follow and support Narcolepsy Navigators:www.napsforlife.comInstagram: https://www.instagram.com/narcolepsynavigatorspodcast/Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcastTikTok: https://www.tiktok.com/@narcolepsynavigatorsYoutube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast ***If you find these symptoms relatable, please seek medical advice.***

Leave a review! Summary️ What if the world saw narcolepsy for what it truly is?Meet Tre Burge, an educator, designer, and fierce narcolepsy advocate, as he takes us through his journey of living with Narcolepsy Type 1. Diagnosed at 18, Tre quickly realized the lack of awareness, representation, and resources surrounding sleep disorders—especially in Black and Brown communities.In this episode, Tre shares how he turned his experience into a mission: from launching Wake Up Entertainment, a creative hub for sleep disorder advocacy, to using social media, fashion, and media storytelling to reshape public perceptions. His passion for authentic representation in film, TV, and online spaces is breaking barriers and sparking conversations worldwide.Join us for a raw, powerful conversation about creativity, resilience, and the urgent need for accurate narcolepsy awareness. Listen now!Chapters(00:10) Narcolepsy Advocacy Through Personal Journey(10:51) Creative Representation in Media for Narcolepsy(24:54) Narcolepsy Advocacy and Representation in Media(34:01) Building Awareness Through CreativitySubscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.Follow and support Tre Burges:Website: https://rb.gy/bq70mr Instagram: https://www.instagram.com/hefallsasleepshop/ TikTok: https://www.tiktok.com/@hefallsasleep?lang=en Follow and support Narcolepsy Navigators:OFFICIAL WEBSITE GUYS >>>>>>> www.napsforlife.com  Instagram:Support the showSubscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.Follow and support Narcolepsy Navigators:www.napsforlife.comInstagram: https://www.instagram.com/narcolepsynavigatorspodcast/Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcastTikTok: https://www.tiktok.com/@narcolepsynavigatorsYoutube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast ***If you find these symptoms relatable, please seek medical advice.***

Leave a review! In this inspiring episode of Narcolepsy Navigators, we meet Jamie Nicole, a certified Holistic Health Coach, Autoimmune Strategist, and unstoppable advocate. Diagnosed with narcolepsy type 2 at 39, Jamie shares her journey of battling years of exhaustion, misdiagnoses, and systemic barriers—all while juggling life as a student, mother, and professional.Jamie dives deep into her experience with autoimmune diseases, the emotional toll of undiagnosed narcolepsy, and how holistic health practices helped her regain control. From reversing Hashimoto's symptoms to managing narcolepsy through nutrition, movement, and mindset shifts, Jamie’s story is a masterclass in resilience.Join us as Jamie uncovers the power of self-advocacy, the importance of community support, and why living fully with chronic illness is not just possible—it’s revolutionary.Chapters(00:14) Living With Narcolepsy12:52) Autoimmune Diseases and Narcolepsy Relationships(22:40) The Struggle With Narcolepsy Diagnosis(27:59) Narcolepsy and Autoimmune Lifestyle Changes(41:24) Community Support for Chronic Illness(46:49) Autoimmune Protocol and Nutrition Strategies(53:06) Living Optimally With Chronic IllnessSubscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.Follow and support Jamie Nicole:Website: https://naturalhealing.coach/Instagram: https://www.instagram.com/healcoach/ LinkedIn: https://www.linkedin.com/in/healcoach/ Support the showSubscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.Follow and support Narcolepsy Navigators:www.napsforlife.comInstagram: https://www.instagram.com/narcolepsynavigatorspodcast/Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcastTikTok: https://www.tiktok.com/@narcolepsynavigatorsYoutube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast ***If you find these symptoms relatable, please seek medical advice.***

Leave a review! London’s rush never stops—but for Imaarl Duprey, time did.At 18, what should have been a typical New Year’s Eve turned into the beginning of a mystery illness that would steal weeks, even months, of her life at a time. Diagnosed with Kleine-Levin Syndrome (KLS), or Sleeping Beauty Syndrome, Imaarl found herself trapped in a cycle of disbelief, misdiagnosis, and isolation, waking up to a world that had moved on without her.In this episode of Narcolepsy Navigators, Imaarl shares what it’s like to lose time, battle stigma, and fight to be believed. She dives into the emotional toll on her family, the frustration of an untreatable condition, and the resilience it takes to rebuild a life interrupted by sleep. Now a mental health advocate and researcher, she’s turning her story into awareness, challenging misconceptions, and proving that rare disorders deserve recognition.Listen now for a powerful conversation on resilience, advocacy, and reclaiming time.Chapters(00:10) Living With Klein-Levin Syndrome(10:50) Uncontrollable Sleep Episodes and Diagnosis(14:41) Navigating Life With KLS Diagnosis(21:44) Impact of KLS Episodes on Life(27:53) Living With KLS(36:51) Navigating Stigma Around KLS(44:48) Navigating Uncertainty With KLS(50:29) Navigating Life With KLS ChallengesSubscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.Follow and support Narcolepsy Navigators:OFFICIAL WEBSITE GUYS >>>>>>> www.napsforlife.com  Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/ Facebook: htSupport the showSubscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.Follow and support Narcolepsy Navigators:www.napsforlife.comInstagram: https://www.instagram.com/narcolepsynavigatorspodcast/Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcastTikTok: https://www.tiktok.com/@narcolepsynavigatorsYoutube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast ***If you find these symptoms relatable, please seek medical advice.***

Leave a review! In this episode, we are joined by Chloe, who shares her compelling journey of balancing narcolepsy type 1 and obstructive sleep apnea while pursuing a career in optometry. From the thrill of quad biking to the challenges of everyday tasks like getting a haircut, this episode uncovers the rollercoaster ride of managing sleep disorders. From the comical to the challenging, we explore how everyday tasks like getting a haircut can become monumental experiences.Our conversation ventures into the nuanced aspects of narcolepsy, such as vivid dreams, hallucinations, and the comforting role pets can play during uncertain times. We share strategies for staying awake during important moments, like lectures, and the unique ways our pets help us navigate these challenges. Listen in as we tackle misconceptions head-on and reveal how narcolepsy has not only shaped our relationships and social interactions but has also become a significant part of who we are.Chapters(15:55) The Emotional Impact of Diagnosis(23:13) Managing Narcolepsy: Medication and Daily Life(28:22) Coping Mechanisms for Narcolepsy(30:23) Experiencing Hallucinations(36:11) The Impact of Trauma on Hallucinations(39:44) Auditory Hallucinations and Their Comfort(44:53) Navigating Relationships with Hallucinations(52:29) Social Challenges in University LifeSubscribe for more inspiring episodes, share to raise narcolepsy awareness, and join the conversation by sharing your experiences.Follow and support Narcolepsy Navigators:OFFICIAL WEBSITE GUYS >>>>>>> www.napsforlife.com  Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/ Facebook: Support the showSubscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.Follow and support Narcolepsy Navigators:www.napsforlife.comInstagram: https://www.instagram.com/narcolepsynavigatorspodcast/Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcastTikTok: https://www.tiktok.com/@narcolepsynavigatorsYoutube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast ***If you find these symptoms relatable, please seek medical advice.***

Leave a review! SummaryGlenn takes us through his remarkable journey to a proper diagnosis of narcolepsy type 2 after 20 long years, sharing how his life and career in local government have been influenced by his symptoms and the critical importance of workplace understanding and accommodation.The episode sheds light on many struggles faced by those with undiagnosed narcolepsy, like Glenn, whose excessive yawning and unintended naps were often misinterpreted. We talk about the broader challenges of receiving proper medical guidance, initial misdiagnosis, and how additional health issues like osteoporosis and vertigo complicate the path to understanding and managing narcolepsy. The social and professional hurdles are real, and Glenn recounts personal anecdotes about how these experiences shaped his life, emphasizing the need for awareness and correct support.Glenn's candid conversation about the underrepresentation of men in the narcolepsy community, along with the stigma of acknowledging such conditions, is a powerful reminder of the need for diverse voices. As we explore themes of acceptance, self-kindness, and the impact of community connections on mental health, Glenn and I underline the importance of normalizing narcolepsy. We also reflect on the strength gained through sharing stories within the community, leaving listeners with a message of resilience and the importance of self-care. Join us to explore the wisdom found in connection and the power of letting go of shame to embrace a full life despite narcolepsy.CHAPTERS(03:26) Living with Narcolepsy Type 2(05:37) Impact of Diagnosis on Career(09:08) Misdiagnosis and the Road to Narcolepsy(16:11) Challenges in Seeking Help(22:47) Support and Community in Australia(25:57) Advocacy and Representation in Narcolepsy(34:01) Social Life and Narcolepsy(37:24) Stress Management Strategies(44:29) The Importance of Self-Kindness(48:34) Community and Connection Subscribe for more inspiring episodes, share to raise narcolepsy awareness, and join the conversation by sharing your experiences.Follow and support Glenn:Support the showSubscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.Follow and support Narcolepsy Navigators:www.napsforlife.comInstagram: https://www.instagram.com/narcolepsynavigatorspodcast/Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcastTikTok: https://www.tiktok.com/@narcolepsynavigatorsYoutube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast ***If you find these symptoms relatable, please seek medical advice.***

Leave a review! SummaryIn this episode of Narcolepsy Navigators, Rachel Nesmith, also known as Sleepy American, shares her personal journey with narcolepsy, the challenges of motherhood, and how she uses music as a platform for advocacy. Rachel discusses her diagnosis, the impact of narcolepsy on her life and family, and the importance of community support. She emphasizes the need to change public perceptions of narcolepsy through her music, aiming to raise awareness and provide relatable content for others facing similar challenges. In this conversation, the speakers discuss the critical importance of advocacy for narcolepsy awareness, the challenges faced in diagnosis and treatment, and the personal experiences of living with narcolepsy. They emphasize the need for better representation and understanding of the disorder, using transformative analogies to convey the realities of narcolepsy. The discussion also touches on identity, acceptance, and the significance of community support in navigating life with narcolepsy.Chapters (02:52) Understanding Narcolepsy and Its Impact(05:46) Family Dynamics and Support Systems(09:09) The Challenges of Motherhood with Narcolepsy(12:00) Music as a Medium for Advocacy(14:47) The Role of Music in Raising Awareness(20:46) Navigating Treatment and Support(23:59) The Importance of Community and Advocacy(36:30) Challenges in Diagnosis and Treatment(51:04) Identity and Acceptance of Narcolepsy(57:12) Community Support and ConnectionSubscribe for more inspiring episodes, share to raise narcolepsy awareness, and join the conversation by sharing your experiences.Follow and support Rachel:Linktree: https://tinyurl.com/dmvcxjda InstagramSupport the showSubscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.Follow and support Narcolepsy Navigators:www.napsforlife.comInstagram: https://www.instagram.com/narcolepsynavigatorspodcast/Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcastTikTok: https://www.tiktok.com/@narcolepsynavigatorsYoutube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast ***If you find these symptoms relatable, please seek medical advice.***

Leave a review! Years ago, Hayley Wall made the bold decision to transition from a demanding hospital role to a flexible occupational therapy position in pediatric home health. This change not only suited her professional skills but also provided the adaptability needed to manage her idiopathic hypersomnia (IH). In this episode, Hayley opens up about how this career shift has empowered her to effectively balance her health with her work and personal life. We also hear from our co-host Liz, who shares her anticipation of an upcoming family event and reflects on her own journey living with narcolepsy.Navigating the complexities of chronic illness is no easy feat, especially when conditions like type 1 diabetes, idiopathic hypersomnia, and even narcolepsy intersect. Our conversation traverses the landscape of symptoms, diagnostics, and the technological aids that assist in managing these conditions. Hayley and I exchange stories about how self-awareness has been vital in recognizing and addressing the symptoms of our respective illnesses. The dialogue offers insights into the diagnostic processes for IH and the differences from narcolepsy, painting a vivid picture of the day-to-day challenges faced by those living with these conditions.The power of community, advocacy, and transparency emerges as a central theme throughout our discussion. Hayley shares her passion for advocacy through her social media presence, the Sleepy_OT, and underscores the importance of being open about health challenges with employers to ensure the necessary accommodations are in place. As we explore the balance between professional duties and personal health, we highlight the significant role of supportive communities in making the journey less isolating. Wrapping up with a note of encouragement, we remind our listeners to engage in self-care and seek professional guidance for their health needs. Chapters Timestamps(02:44) Benefits of Pediatric Home Health(07:59) Parental Control and Support for Diabetes (16:37) Managing Productivity and Energy Levels (19:37) Using Yoga Balls for Sensory Input (24:28) Flexibility and Understanding in Home Health (29:36) Raising Awareness of Idiopathic Hypersomnia Support the showSubscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.Follow and support Narcolepsy Navigators:www.napsforlife.comInstagram: https://www.instagram.com/narcolepsynavigatorspodcast/Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcastTikTok: https://www.tiktok.com/@narcolepsynavigatorsYoutube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast ***If you find these symptoms relatable, please seek medical advice.***

Leave a review! Rahmat Farina's journey with narcolepsy began at the age of 20, and it has been marked by resilience and introspection. Imagine trying to maintain your education and daily life while being suddenly overtaken by sleep attacks and sleep paralysis—this was Rahmat's reality. His initial struggles were compounded by disbelief from his family, but understanding grew as his condition became more visible to those around him. With a background in psychology, Rahmat was well-equipped to seek the right medical guidance, shedding light on the perseverance required to navigate the unknown and find answers. His story is a powerful reminder of the importance of early diagnosis and the transformative impact of self-awareness.In our conversation, the complexities of living with both narcolepsy type 2 and autism are laid bare, revealing the necessity for personalized strategies. Rahmat shares how lifestyle changes, such as diet and exercise, have contributed to managing his symptoms. We also delve into the emotional intricacies of relationships, focusing on the support and understanding that are crucial for someone with chronic health challenges. Rahmat's insights reveal the profound strength found in community and connection, underscoring the hope for increased global awareness of narcolepsy, particularly in Indonesia. This episode is not just a narrative of personal growth but an invitation to foster understanding and support among those facing similar paths. Chapters Timestamps (04:33) Sharing About Sleep Paralysis Symptoms (08:53) Finding a Diagnosis (13:18) Impact of Undiagnosed Narcolepsy on Health (17:01) Evolving Friendships and Support System (22:36) Identifying Food Triggers for Sleepiness (34:02) Raising Awareness for Narcolepsy Support  Subscribe for more inspiring episodes, share to raise narcolepsy awareness, and join the conversation by sharing your experiences.Follow and support Narcolepsy Navigators:Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/ Facebook: https://wwSupport the showSubscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.Follow and support Narcolepsy Navigators:www.napsforlife.comInstagram: https://www.instagram.com/narcolepsynavigatorspodcast/Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcastTikTok: https://www.tiktok.com/@narcolepsynavigatorsYoutube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast ***If you find these symptoms relatable, please seek medical advice.***

Leave a review! Hello Everyone, We are so excited to be back for Season 2 of Narcolepsy Navigators Podcasts. Here is a brief announcement thanking all of our wonderful listeners from around the world.Welcome To Season 2. We look forward to hearing  your stories. Follow and support Narcolepsy Navigators:Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/ Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/ LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast TikTok: https://www.tiktok.com/@narcolepsynavigators Youtube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast NEW WEBSITE GUYS>>>>>>> https://napsforlife.wixsite.com/napsforlife  THANK YOU TO EVERY SINGLE PERSON WHO TAKES THE TIME TO LISTEN. WE APPRECIATE THE SUPPORT SO MUCH!  Support the showSubscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.Follow and support Narcolepsy Navigators:www.napsforlife.comInstagram: https://www.instagram.com/narcolepsynavigatorspodcast/Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcastTikTok: https://www.tiktok.com/@narcolepsynavigatorsYoutube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast ***If you find these symptoms relatable, please seek medical advice.***

Leave a review! In this compelling episode of Narcolepsy Navigators, we meet Angela, an inspiring artist living with narcolepsy and cataplexy. Through her candid storytelling, Angela reveals how creativity and support systems have become her sanctuary amidst the challenges of living with unpredictable sleep disorders.What You’ll Learn:How Angela uses bead art as a therapeutic escape from medical trauma and daily challenges.The role of emotional support animals, including Angela’s beloved rat, Didamus, in fostering mental well-being.The complexities of living with cataplexy, including sudden muscle weakness, public misconceptions, and the proactive steps Angela takes to educate others with resources like pamphlets for healthcare professionals.Why Angela turns to horror and sci-fi films as a coping strategy for managing cataplexy triggers and the fascinating intersection of lucid dreaming with her condition.Highlights:Angela’s resilience in turning challenges into triumphs, including gaining international recognition for her art and accolades from the drag community.The vital role of supportive caregivers and networks in helping those with narcolepsy navigate life’s hurdles.Insights into the need for greater empathy, awareness, and accurate representation of narcolepsy and cataplexy in society and media.Join us as Angela shares her journey of creativity, advocacy, and resilience, proving that even in the face of immense challenges, art and community can be transformative. Listen Now: Discover how Angela’s story sheds light on the realities of living with invisible disabilities and the profound impact of art and support on mental health.Chapter Timestamps(00:10) Navigating Life With Narcolepsy and Art(13:54) Living With Severe Cataplexy Challenges(24:07) Artistic Escape and Lucid Dreaming(33:44) Navigating Life Through Art and NarcolepsySubscribe for more inspiring episodes, share to raise narcolepsy awareness, and join the conversation by sharing your experiences.Follow and support Angela:Website: https://sleepyunicornpixelart.com Instagram: https://www.instagram.com/awesomeangela13/ TikTok: Support the showSubscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.Follow and support Narcolepsy Navigators:www.napsforlife.comInstagram: https://www.instagram.com/narcolepsynavigatorspodcast/Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcastTikTok: https://www.tiktok.com/@narcolepsynavigatorsYoutube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast ***If you find these symptoms relatable, please seek medical advice.***

Leave a review! Welcome back to Narcolepsy Navigators for an eye-opening Season Two episode that dives into Tamby's journey with narcolepsy. In this heartfelt conversation, Tamby shares the raw reality of living with a misunderstood condition, navigating cultural misconceptions, and dealing with a whirlwind of challenges, from hallucinations to unexpected cataplexy attacks. She recounts memorable moments, like when family members tried to ward off “evil spirits” by breaking eggs over her head, and reveals how even a Seventh-day Adventist boarding school, where she hoped for understanding, fell short.This episode goes deeper, uncovering the well-intentioned, if unconventional, interventions from teachers and family, and Tamby’s resilience through years of misdiagnoses and social stigma. Together, we explore why advocacy and accurate portrayals in media matter, and how support systems shape the lives of people with narcolepsy.Join us for Tamby’s incredible story and a closer look at the strength, humour, and humanity needed to live boldly with narcolepsy.Chapter Timestamps(00:10) Life With Narcolepsy(09:17) Struggles With Sleep and School(21:24) Navigating School and Misdiagnoses(27:36) Navigating Narcolepsy and Misunderstanding(40:38) Challenges of Living With Narcolepsy(51:28) Living With Narcolepsy and AdvocacySubscribe for more inspiring episodes, share to raise narcolepsy awareness, and join the conversation by sharing your experiences.Follow us on Social Media for updates:Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast***If you find these symptoms relatable, please seek medical advice.*** Support the showSubscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.Follow and support Narcolepsy Navigators:www.napsforlife.comInstagram: https://www.instagram.com/narcolepsynavigatorspodcast/Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcastTikTok: https://www.tiktok.com/@narcolepsynavigatorsYoutube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast ***If you find these symptoms relatable, please seek medical advice.***

Leave a review! Imagine being the youngest person ever diagnosed with narcolepsy at just three years old. Today, we're honoured to share the extraordinary journey of Mathilda, who has spent her life battling and thriving despite this complex condition. Joined by our Marketing Manager Iris, also living with narcolepsy type 1, we dive into Mathilda's world—from her early diagnosis to the release of her mother Claire's heartfelt memoir, "Waking Mathilda."In this deeply personal episode, Mathilda opens up about the emotional challenge of reading her own story through her mother's eyes and the resilience it takes to navigate life with narcolepsy and cataplexy. Hear firsthand how she has managed to maintain her sense of self and privacy amidst the attention brought by her unique medical journey. Whether you're familiar with narcolepsy or just learning, Mathilda's story is sure to inspire and enlighten.From her family dynamics to her personal thoughts on privacy and public attention, Mathilda shares her unique perspective for the first time. Join us for this inspiring episode that promises to educate, move, and resonate with anyone touched by narcolepsy.Chapter Timestamps(03:00) - Mathilda's Early Diagnosis(07:00) - Reading "Waking Mathilda"(17:00) - Maintaining Privacy and Self-Identity(21:00) - Family Dynamics(25:00) - Public Speaking and Sharing Her Story(30:00) - Final ThoughtsSubscribe for more inspiring episodes, share to raise narcolepsy awareness, and join the conversation by sharing your experiences.Follow us on Social Media for updates:Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast***If you find these symptoms relatable, please seek medical advice.***  Support the showSubscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.Follow and support Narcolepsy Navigators:www.napsforlife.comInstagram: https://www.instagram.com/narcolepsynavigatorspodcast/Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcastTikTok: https://www.tiktok.com/@narcolepsynavigatorsYoutube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast ***If you find these symptoms relatable, please seek medical advice.***

Leave a review! Join us on this heartwarming episode of Narcolepsy Navigators as we welcome our special guests Laura, an experienced animal foster parent from Illinois, and her narcoleptic dog, Toast. From being a breeder dump to becoming a beloved family member, Laura's journey is filled with challenges, adaptations, and the joy of raising a special needs pet. Laura recounts her initial struggles with understanding Toast's condition, the unique measures taken to manage his narcolepsy, and the joyous connections he's fostered within their community.Laura provides valuable insights into daily routines designed to manage Toast's cataplectic attacks, from utilizing white noise at bedtime to specialized feeding techniques. Gated stairs, supervised outdoor activities, and puzzle bowls are just a few of the adjustments that have helped Toast thrive. Laura emphasizes the importance of exposing Toast to various environments, despite criticism, to better manage his triggers. This discussion highlights the significance of allowing special needs pets to live fulfilling lives and the gradual training required for them to handle their triggers effectively. We also touch on the broader implications and common misconceptions surrounding narcoleptic pets, advocating for greater awareness and empathy.As we wrap up, we focus on the broader narcoleptic community and the quality of life for both humans and animals with narcolepsy and cataplexy. Laura shares her experiences and the profound joy that special needs pets bring into our lives, dispelling common misconceptions and advocating for awareness. We explore the supportive role of social media, the potential for Toast to become a therapy dog, and the critical importance of community support and shared experiences. Tune in for an inspiring conversation that champions understanding and compassion for all beings with special needs.Chapter Timestamps(00:10) - Narcolepsy Navigators(08:46) - Managing Narcolepsy in Dogs(17:00) - Exploring Narcolepsy in Dogs(23:40) - Quality of Life for Narcoleptic Dog(31:36) - Cataplexy and Narcolepsy in Humans(36:41) - Rescuing Special Needs Animals(49:22) - Expansion of Narcoleptic Dog Community(55:46) - Supporting Animals With Special NeedsSubscribe for more inspiring episodes, share to raise narcolepsy awareness, and join the conversation by sharing your experiences.Follow Toast on Social Media:Support the showSubscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.Follow and support Narcolepsy Navigators:www.napsforlife.comInstagram: https://www.instagram.com/narcolepsynavigatorspodcast/Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcastTikTok: https://www.tiktok.com/@narcolepsynavigatorsYoutube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast ***If you find these symptoms relatable, please seek medical advice.***

Leave a review! Experience the raw and transformative journey of Sara Duncan, a courageous 29-year-old from Oregon, as she navigates the complexities of life with narcolepsy. From her pre-med college days filled with relentless fatigue to the frustrating misdiagnoses that dismissed her symptoms as mere anxiety and depression, Sarah's story highlights the often-overlooked struggles of those living with this condition. This episode of Narcolepsy Navigators sheds light on the emotional and physical challenges Sarah faced, emphasizing the critical role of self-advocacy in the pursuit of proper medical recognition and treatment.Discover the profound impact of Sara’s narcolepsy diagnosis on her aspirations of becoming a doctor. Working in a beloved hospital, she encountered the harsh realities of America's medical system, often leaving patients to fend for themselves. Sara's narrative not only underscores the systemic barriers in medical education and practice but also explores the broader challenges disabled individuals face in both educational and professional settings. Learn about Sara's difficult decisions and the alternative paths she pursued to create a fulfilling life despite the limitations imposed by her condition.Explore the nuanced interplay between narcolepsy, ADHD, and the endocrine system as Sara details her journey towards managing her symptoms. From the significance of simple accommodations to the emotional liberation of embracing her identity, Sara's experience is a testament to resilience and self-discovery. This episode delves into the societal pressures and stigmatization around disabilities, emphasizing the importance of embracing one's identity and advocating for necessary resources.Join us for an eye-opening conversation that challenges societal norms and celebrates the strength found in vulnerability.CHAPTER TIMESTAMPS(00:10) Navigating Life With Narcolepsy(04:30) Misdiagnosis and Medication Pressure(11:23) Navigating Medical School With Narcolepsy(17:34) Navigating Accommodations in Medical School(20:18) Navigating Disability in Medical Education(31:31) Exploring Sleep-Inducing Aromatherapy Tea(36:04) Narcolepsy and Body Regulation(39:05) Exploring Asexuality and Disability in Relationships(43:39) Evolution of Disability Identity(51:22) Reevaluating Disability and Support(56:33) Understanding Disabling Labelling and AbleismSubscribe for more inspiring episodes, share to raise narcolepsy awareness, and join the conversation by sharing your experiences.Follow Sara on Social Media:Instagram: @duncanpnwSupport the showSubscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.Follow and support Narcolepsy Navigators:www.napsforlife.comInstagram: https://www.instagram.com/narcolepsynavigatorspodcast/Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcastTikTok: https://www.tiktok.com/@narcolepsynavigatorsYoutube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast ***If you find these symptoms relatable, please seek medical advice.***

Leave a review! Can navigating life with narcolepsy impact your mental health and career? Join us on Narcolepsy Navigators as we explore these pressing questions with our special guest, Christine from Northern Ireland. You'll hear firsthand about her journey with narcolepsy type 1 and cataplexy, and how symptoms manifest uniquely in her jaw. We share our personal struggles with exhaustion and anxiety, emphasizing the critical need for balance to avoid burnout. This episode sheds light on the emotional toll and personal growth that come from managing a misunderstood condition.We also address the often-overlooked challenge of obtaining a proper narcolepsy diagnosis, from adolescence through professional life. I recount my own experiences of debilitating fatigue and the misinterpretations by medical professionals. The episode includes practical tips for self-advocacy, such as using handwritten notes and journals to communicate symptoms effectively. Our conversation underscores the importance of persistence in securing a diagnosis and the vital role of organizational strategies in managing daily life with narcolepsy.Chapter Timestamps(00:10) Living With Narcolepsy and Mental Health(14:36) Navigating Narcolepsy Diagnosis Challenges(21:15) Managing Narcolepsy Challenges and Medications(35:35) Understanding and Supporting Narcolepsy Patients(42:21) Supporting Narcolepsy Patients Through Healthcare(54:00) Navigating Career Changes With Narcolepsy(57:22) Exploring Narcolepsy and ADHD ConnectionsSubscribe for more inspiring episodes, share to raise narcolepsy awareness, and join the conversation by sharing your experiences.Follow Christine on Social Media:https://www.instagram.com/thegirlwhoranawayinhersleep/ Follow us on Social Media for updates: Instagram: https://www.instagram.com/narcolepsynavigatorspodcast/~Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/ LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcast  ***If you find these symptoms relatable, please seek medical advice.***  Support the showSubscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.Follow and support Narcolepsy Navigators:www.napsforlife.comInstagram: https://www.instagram.com/narcolepsynavigatorspodcast/Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcastTikTok: https://www.tiktok.com/@narcolepsynavigatorsYoutube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast ***If you find these symptoms relatable, please seek medical advice.***

Leave a review! Can you imagine trying to balance parenting, a creative passion, and a chronic sleep disorder? Join us on Narcolepsy Navigators as we explore this challenging reality through the inspiring life of Katie, a 30-year-old mom from South Dakota. Diagnosed with idiopathic hypersomnia (IH) in early 2022, Katie shares her journey of self-discovery and the long path to understanding her incessant sleepiness. She opens up about how her daily interactions were impacted and the adjustments she made to manage her condition while raising a young child and nurturing her love for sewing and quilting.In our in-depth discussion, we tackle the complexities of medication approval, sleep inertia, and the role of energy drinks in staying functional. Katie reveals her practical strategies for managing day-to-day responsibilities, emphasizing the unique pressures parents face with these conditions. She also discusses the importance of diet and external support, particularly in meal preparation and maintaining a balanced lifestyle, underscoring how these elements can mitigate the symptoms of IH.Communication and support networks play a crucial role in living with a chronic condition. Katie candidly talks about how she and her husband navigate parenting their energetic four-year-old while managing her medication and safety concerns. We explore the emotional toll and the significance of self-care, highlighting the vital support from family and the online community. Finally, Katie reflects on balancing social connections, creative passions, and the necessity for empathy and understanding for those living with chronic sleep disorders. Tune in for a heartfelt conversation that sheds light on the nuanced life of a mother living with idiopathic hypersomnia.Chapter Timestamps(00:00) Living With Idiopathic Hypersomnia(08:15) Navigating Medication and Energy Drinks(18:42) Parenting With Idiopathic Hypersomnia Challenges(24:05) Navigating Communication and Support Networks(29:39) Balancing Work, Creativity, and Friendship(43:19) The Creative Struggles of Idiopathic Hypersomnia(50:07) Caring for Mother With HypersomniaSubscribe for more inspiring episodes, share to raise narcolepsy awareness, and join the conversation by sharing your experiences.Follow us on Social Media for updates: IG: https://www.instagram.com/narcolepsynavigatorspodcast/FB: https://www.facebook.com/profile.php?id=61558638497300&sk=about *If you find these sympSupport the showSubscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.Follow and support Narcolepsy Navigators:www.napsforlife.comInstagram: https://www.instagram.com/narcolepsynavigatorspodcast/Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcastTikTok: https://www.tiktok.com/@narcolepsynavigatorsYoutube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast ***If you find these symptoms relatable, please seek medical advice.***

Leave a review! What if a sleep study could be the key to unlocking a 13-year mystery? Join us as we sit down with Henry from Queens, New York, who shares his deeply personal journey from experiencing his first symptoms of narcolepsy type 2 in 1996 to finally receiving a diagnosis in 2009. In this episode, Henry opens up about his trial-and-error process with medications, to experiencing the highs and lows of finding the right combination, including his experiences with Xyrem. Learn how narcolepsy impacted his work life, requiring adaptable environments and a supportive network to help him maintain a sense of normalcy and identity. Tune in as Henry discusses practical coping mechanisms for dealing with symptoms like brain fog and hallucinations and highlights the invaluable support of community groups. This episode is a testament to the power of awareness, education, and unwavering support in overcoming the obstacles posed by narcolepsy.Chapters:(00:06) - Narcolepsy Awareness(07:21) - Managing Narcolepsy and Work Life(13:31) - Challenges of trying to adopt with Narcolepsy(19:04) - Managing NarcolepsyHighlights:(02:51 - 04:01) Journey to Narcolepsy Diagnosis (70 Seconds)(12:31 - 13:31) Narcolepsy and Self-Identity (60 Seconds)(16:32 - 17:38) Support and Understanding of Narcolepsy (66 Seconds)(21:57 - 24:08) Understanding and Managing Narcolepsy (131 Seconds)(29:16 - 30:58) The Red Button (102 Seconds) Subscribe for more inspiring episodes, share to raise narcolepsy and idiopathic hypersomnia awareness, and join the conversation by sharing your experiences.Follow us on our Social Media platforms for updates: https://www.instagram.com/narcolepsynavigatorspodcast/www.linkedin.com/company/narcolepsy-navigators-podcastSupport the showSubscribe for more inspiring episodes, share to raise awareness, and join the conversation by sharing your experiences.Follow and support Narcolepsy Navigators:www.napsforlife.comInstagram: https://www.instagram.com/narcolepsynavigatorspodcast/Facebook: https://www.facebook.com/people/Narcolepsy-Navigators/61558638497300/LinkedIn: https://www.linkedin.com/company/narcolepsy-navigators-podcastTikTok: https://www.tiktok.com/@narcolepsynavigatorsYoutube: https://www.youtube.com/@NarcolepsyNavigatorsPodcast ***If you find these symptoms relatable, please seek medical advice.***