PODCAST · business
Parkinson's Policy Podcast
by Power Over Parkinson's and Together for Sharon
From Washington, DC, at the U.S. Capitol and beyond, we bring together Senators, Representatives, researchers, and advocates to amplify the voices of people living with Parkinson’s disease. The Parkinson’s Policy Podcast brings two Parkinson’s advocates together, George Ackerman (TogetherForSharon) and Margaret Preston (Power Over Parkinson’s) to create a higher level of awareness about Parkinson’s Disease, the fastest rising neurological disorder. Both touched by the disease, George and Margaret are passionate about advocating for those with the disease, and for all those caring for someone with the disease by hosting lawmakers who can help form policies that aide this growing community.
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Parkinson’s Policy Podcast Episode 7: Deborah Swerdlow & Ken Chason (Parkinson's Foundation)
In this episode of the Parkinson’s Policy Podcast, we sit down with Deborah Swerdlow, Head of Policy at the Parkinson’s Foundation, and Ken Chason, a dedicated patient advocate and member of the Foundation’s Patient Policy Advisory Council (PPAC), for a timely and insightful conversation on the future of Parkinson’s policy.Together, we explore the most pressing policy challenges impacting the Parkinson’s community today, from access to care and affordability of treatments to the need for increased research funding and stronger support systems for patients and caregivers. Deborah shares an inside look at how policy priorities are shaped at the Foundation, while Ken brings a powerful, lived-experience perspective on why patient voices must remain central to policymaking.We also dive into what needs to happen next at both the state and federal levels to drive meaningful change, highlighting opportunities for advocacy and ways listeners can get involved.Whether you’re living with Parkinson’s, caring for someone who is, or working in healthcare, policy, or advocacy, this episode offers valuable insights into how policy decisions shape real-world outcomes, and how you can be part of the solution.More information for on the Parkinson’s Foundation’s policy work can be found here: https://www.parkinson.org/how-to-help/policy-advocacy-priorities
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ABOUT THIS SHOW
From Washington, DC, at the U.S. Capitol and beyond, we bring together Senators, Representatives, researchers, and advocates to amplify the voices of people living with Parkinson’s disease. The Parkinson’s Policy Podcast brings two Parkinson’s advocates together, George Ackerman (TogetherForSharon) and Margaret Preston (Power Over Parkinson’s) to create a higher level of awareness about Parkinson’s Disease, the fastest rising neurological disorder. Both touched by the disease, George and Margaret are passionate about advocating for those with the disease, and for all those caring for someone with the disease by hosting lawmakers who can help form policies that aide this growing community.
HOSTED BY
Power Over Parkinson's and Together for Sharon
CATEGORIES
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