PODCAST · health
Rare Kidney Source
by BloodStream Media
Your Podcast for Rare Kidney ConversationsLife with a rare kidney disease can be complex, isolating, and often misunderstood. Rare Kidney Source brings together voices from across the community to inform, inspire, and connect people living with rare kidney diseases such as C3 glomerulopathy (C3G) and primary immune-complex membranoproliferative glomerulonephritis (IC-MPGN). Through honest conversations and expert insights, we explore the realities of diagnosis, disease management, and everyday life to empower listeners with knowledge, perspective, and a sense of belonging to navigate their journey with greater confidence and support.This podcast is intended for informational and educational purposes only and is not intended as medical advice. Always talk to your healthcare provider about questions you may have about the disease, its symptoms, and treatment.
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The Road to Diagnosis
From unexplained childhood symptoms to a life-changing diagnosis, this episode traces one patient's long road to understanding C3G, a rare complement-mediated kidney disease. Michelle Farley shares how years of dismissal, misdiagnosis, and crisis ultimately led to answers, a transplant, and a new era of targeted treatment. Dr. Carla Nester breaks down the science behind the "overactive alarm system" driving these conditions and explains how recent advances are transforming what was once considered untreatable. It's a story about persistence, partnership, and the power of finally being heard. For more information, visit rarekidneyandyou.com Transparency Statement: The Rare Kidney Source Podcast is produced by Believe Limited and made possible by Apellis Pharmaceuticals. The following Apellis Pharmaceuticals-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.
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ABOUT THIS SHOW
Your Podcast for Rare Kidney ConversationsLife with a rare kidney disease can be complex, isolating, and often misunderstood. Rare Kidney Source brings together voices from across the community to inform, inspire, and connect people living with rare kidney diseases such as C3 glomerulopathy (C3G) and primary immune-complex membranoproliferative glomerulonephritis (IC-MPGN). Through honest conversations and expert insights, we explore the realities of diagnosis, disease management, and everyday life to empower listeners with knowledge, perspective, and a sense of belonging to navigate their journey with greater confidence and support.This podcast is intended for informational and educational purposes only and is not intended as medical advice. Always talk to your healthcare provider about questions you may have about the disease, its symptoms, and treatment.
HOSTED BY
BloodStream Media
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Frequently Asked Questions
How many episodes does Rare Kidney Source have?
Rare Kidney Source currently has 1 episodes available on PodParley. New episodes are automatically indexed when they're published to the podcast feed.
What is Rare Kidney Source about?
Your Podcast for Rare Kidney ConversationsLife with a rare kidney disease can be complex, isolating, and often misunderstood. Rare Kidney Source brings together voices from across the community to inform, inspire, and connect people living with rare kidney diseases such as C3 glomerulopathy (C3G)...
How often does Rare Kidney Source release new episodes?
Rare Kidney Source has 1 episodes. Check the episode list to see recent publication dates and frequency.
Where can I listen to Rare Kidney Source?
You can listen to Rare Kidney Source on PodParley by clicking any episode. We provide an embedded audio player for direct listening, and you can also subscribe via your preferred podcast app using the RSS feed.
Who hosts Rare Kidney Source?
Rare Kidney Source is created and hosted by BloodStream Media.
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