PODCAST · education
Redefining Dementia
by Person Centred Universe
Just as Person Centred Universe’s educational and consultation work, the aim of the Redefining Dementia Podcast is to strive toward a better world for those affected by dementia. When consuming resources or media about dementia, the focus is often on the challenges, stigma and fear that may accompany a diagnosis of dementia. This podcast seeks to shift that narrative to focus on and celebrate living well with dementia and what that means for caregivers as well. Through the sharing of stories,resources and helpful life experiences, the podcast will look to connect with the audience to provide helpful and meaningful takeaways.
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22
Michael Booth: Choosing Empathy Over Apathy in Young Onset Dementia
When Michael Booth was diagnosed with young onset Alzheimer’s at 46, his world changed almost instantly—he lost his job, his driver’s license, and a sense of stability. But instead of letting the diagnosis define him, Michael chose to reshape it into purpose.Drawing from his unique experience as both a former caregiver and someone now living with Alzheimer’s, Michael speaks candidly about identity, grief, and the power of acceptance. This episode is both grounding and uplifting, offering practical wisdom for anyone navigating dementia—personally or professionally.We talk about:Giving yourself time to process before making life decisionsLiving in the present rather than fearing the futureThe specific challenges of young onset Alzheimer’sFinding joy and purpose through new interests and advocacyHis book Dementia: You Are Not Alone and why he wrote itMichael’s message is clear: behind every diagnosis is a whole person—and we owe it to each other to meet dementia with empathy, not apathy.Resources & Links:🔹 Michael Booth – Connect & Learn MoreLinkedIn: Michael Booth on LinkedInYoung Dementia Network Profile: Michael Booth – Steering Group Member📖 BookDementia: You Are Not Alone by Michael Booth A practical and personal guide offering support, understanding, and insights from someone living with young onset Alzheimer’s. 🛒 Available here:Amazon📰 Featured ArticlesBBC News – “Man diagnosed with dementia aged 46 after watching TV show”Yahoo UK – “Memory loss made me feel lonely and isolated”Journal of Dementia Care – Book FeatureAbout our Hosts:https://www.personcentreduniverse.com/about/
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21
Donna Schoenherr: The Power of Dance in Dementia Care
When words fail, movement speaks. This powerful idea lies at the heart of our conversation with Donna Schoenherr, award-winning dancer, choreographer, and founder of Ballet4Life® and Move into Wellbeing®, two London-based organizations bringing the joy of dance to people of all ages and abilities. Inspired by her father’s 30-year journey with Parkinson’s, Donna has spent decades creating inclusive spaces where movement becomes a bridge to connection, confidence, and joy. In this episode, she shares moving stories—from a former principal dancer rediscovering her spark despite early dementia, to a once non-verbal gentleman gradually engaging in class after months of silence.What sets Donna’s approach apart is its openness. She enters each class without assumptions, watching for the smallest cues that might open the door to engagement. Her work invites us to reimagine what’s possible—not through complex techniques, but through creativity, presence, and play.We discuss:How Donna’s personal journey led to founding two pioneering dance organizationsWhy improvisation, mirroring, and sensory cues can be more powerful than structured routinesHow touch, music, and storytelling help restore connection for people with cognitive challengesPractical ways to bring movement and creative expression into everyday dementia careThe growing momentum in dementia-inclusive arts programs across the UKDonna’s story is a beautiful reminder that care doesn’t always begin with words—it can begin with rhythm, gesture, or a shared moment of movement.Subscribe and join us every other Thursday as we continue redefining dementia, one conversation at a time.Donna's Organizations:Move into WellbeingBallet4LifeDonna's LinkedInAbout our Hosts:https://www.personcentreduniverse.com/about/
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Dr. William Randall: Aging as Adventure - Reframing Life's Later Chapters
Dr. William Randall returns to Redefining Dementia with a perspective that turns conventional wisdom on its head: what if aging – and by extension, dementia – isn't a narrative of decline but an adventure?With his background in gerontology, theology, and psychology, Dr. Randall guides us through a thoughtful exploration of adventure as a framework for understanding later life. He defines adventure as "any venture that takes us outside our comfort zones," involving elements of uncertainty and unpredictability – qualities certainly present in the dementia journey.The conversation unfolds around four distinct directions of adventure that aging invites us to experience. There's the adventure outward through new experiences and activities; the adventure backward through life review and reflection; the adventure inward through deeper spiritual questioning; and perhaps most profound, the adventure forward as we approach life's final transition.For caregivers and loved ones supporting someone with dementia, this framework offers a refreshing perspective. Rather than focusing exclusively on loss, Dr. Randall suggests viewing dementia as part of a natural process of letting go – of possessions, of illusions about ourselves, and even of our stories. This doesn't minimize the challenges but provides a different lens through which to understand them.Throughout our discussion, Dr. Randall emphasizes that people living with dementia maintain their "narrative citizenship" even when unable to tell their stories conventionally. He encourages caregivers to become "story companions" who honor each person's unique reality rather than trying to force them back to ours.This conversation will leave you questioning assumptions about aging, memory, and consciousness itself. As you listen, consider how shifting from a mindset of decline to one of adventure might transform your approach to aging or caregiving. How might we honor the wisdom that each person brings – however it's expressed – as we journey together through life's greatest adventure?Dr. William Randall's WebsiteAlive Inside VideoAbout our Hosts:https://www.personcentreduniverse.com/about/
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Anne-Marie Stoneburgh: Making a Good Day Great
What does it really mean to make a good day great for someone living with dementia?In this thoughtful and inspiring episode, Anne-Marie Stoneburgh brings over 35 years of experience in geriatric care to the conversation. As an educator, consultant, and advocate for person-centred care, she shares practical strategies that honour the unique identity, preferences, and strengths of each person.Through real-life stories and gentle wisdom, Anne-Marie shows how small, intentional choices — from the language we use to the way we adapt daily routines — can create moments of dignity, connection, and joy. Whether it’s supporting someone to continue a familiar hobby or adjusting an activity to reflect changing abilities, her approach is rooted in respect and responsiveness.We explore topics like communication, environment setup, and the delicate balance between supporting someone and encouraging their independence. Anne-Marie’s mantra, “The more you do for me, the more you steal from me,” offers a powerful reminder about the importance of autonomy in care.Whether you’re a care partner at home, a professional in a care setting, or simply someone who wants to show up more meaningfully for a loved one, this episode offers valuable insight into how thoughtful adjustments can truly transform the caregiving experience — one moment at a time.Anne-Marie's LinkedInAbout our Hosts:https://www.personcentreduniverse.com/about/
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18
Dr. Patricia Morris: Rethinking Dementia as Neurodivergence & Care Through Connection
Dr. Patricia Morris from the University of New Brunswick joins us to challenge traditional narratives about dementia. What if dementia isn’t just a disease but a unique form of neurodivergence that calls for a fresh, more compassionate perspective? In this thought-provoking episode, we explore how shifting our understanding can transform dementia care from symptom management to a journey rooted in connection, dignity, and belonging.Dr. Morris is an Assistant Professor in the Faculty of Nursing at the University of New Brunswick (UNB). She earned her Bachelor of Nursing (BN) in 2015 and Master of Nursing (MN) in 2021 from UNB. In 2021, she was awarded the prestigious Vanier Canada Graduate Scholarship, valued at $50,000 per year for three years, to support her doctoral research in gerontological nursing. Her research focuses on the experiences of residents with dementia who decline personal hygiene care in long-term care facilities, exploring the complexities of autonomy, power, and vulnerability in these interactions. Dr. Morris’s work aims to enhance person-centered care practices and improve the quality of life for older adults living with cognitive impairments.Together, we discuss the power of language in shaping perceptions, the importance of truly knowing a person’s history and preferences, and how safety extends beyond the physical to include emotional well-being. Dr. Morris shares practical strategies for fostering trust, co-regulation, and meaningful relationships—reminding us that caregiving is not just about support, but about honouring the rich narratives of those living with dementia.In This Episode, We Explore:• Dementia as a syndrome rather than a singular disease• The significance of viewing dementia through the lens of neurodivergence• How language influences perceptions and experiences• The role of social connection in combating isolation• Prioritizing felt safety in care partnerships• Practical strategies for co-regulation in caregiving• Maintaining relationships and trust in dementia care• A vision for a future where individuals feel safe, valued, and seenAbout our Hosts:https://www.personcentreduniverse.com/about/
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17
Jim Kinsey: Navigating Grief and Embracing Joy Through the Dementia Journey
In this deeply moving episode of Redefining Dementia, we welcome back the insightful and compassionate Jim Kinsey. With over 20 years of experience in healthcare consulting and a passion for person-centered care, Jim brings a wealth of knowledge and heartfelt reflections on the complexities of grief in the dementia journey.Together, we explore how anticipatory grief—the unique type of grief experienced when caring for someone with dementia—differs from other forms of loss. Jim offers invaluable perspectives on recognizing grief not only in care partners but also in those living with dementia, emphasizing the power of empathy, support, and connection.Key Topics Discussed:Understanding the concept of anticipatory griefDifferences between traditional grief and dementia-related griefRecognizing grief in those living with dementiaPractical coping strategies and support for care partnersFinding joy amidst the challenges of caregivingEmbracing vulnerability and sharing emotions during griefThe importance of presence and compassion in the dementia journeyJim’s thoughtful insights will leave you feeling comforted and empowered, whether you’re a care partner, healthcare professional, or someone navigating the dementia experience.Take time for yourself, embrace the moments of joy, and know that your journey matters.Tune in to this impactful conversation with Jim Kinsey—an episode that’s sure to resonate deeply with anyone touched by dementia.Jim's LinkedInAbout our Hosts:https://www.personcentreduniverse.com/about/
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Kari McBride: A Daughter's Perspective on Caregiving and Dementia
Kari McBride shares her heartfelt journey as a daughter caring for her mother with dementia, offering an honest and compassionate perspective on the challenges and silver linings of caregiving. In this episode, Kari reflects on the early signs of her mother’s dementia, the emotional complexities of transitioning to long-term care, and the enduring importance of connection. She also highlights the role of advocacy in fostering dignity and compassionate care for individuals living with dementia and their families.Key Topics Covered:Kari McBride’s personal caregiving storyRecognizing early dementia symptoms and navigating challengesThe emotional realities of transitioning to long-term careMaintaining connection and cherishing meaningful momentsAdvocating for compassionate dementia care and supportKari’s hopes for better resources and open conversations about dementiaKari's LinkedInAbout our Hosts:https://www.personcentreduniverse.com/about/
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15
Dr. Mike Studer: The Brain That Chooses Itself
Join us for an enlightening episode with Dr. Mike Studer, a renowned physical therapist and pioneer in neurologic and geriatric rehabilitation. Drawing on decades of expertise, Dr. Studer shares cutting-edge strategies for fostering cognitive resilience, enhancing brain health, and maintaining mobility.We explore insights from his book, The Brain That Chooses Itself, delving into the profound impact of intentional activity on both mental and physical well-being. Whether you're navigating neurological conditions like dementia and Parkinson's or simply seeking to optimize your brain health, Dr. Studer offers actionable advice tailored for everyone.Discover how to integrate exercise into your daily life with methods like habit stacking, while understanding the critical role of physical and mental stimulation in preventing cognitive decline. Dr. Studer also sheds light on how outdated care practices and inactivity can hinder progress, encouraging us to rethink how we engage with our bodies and minds.Learn about the importance of a balanced lifestyle—one that includes diverse activities, such as boxing or community gardening, alongside adequate rest. Dr. Studer explains the synergy of proper sleep, nutrition, and exercise, including the remarkable benefits of high-intensity interval training, in maintaining brain health and vitality.Tune in to gain practical tools and inspiration to create a fulfilling, vibrant life at any stage—because a resilient mind starts with the power of choice.Dr. Mike's LinkedInDr. Mike's Instagram ProfileDr. Mike's TED TalkDr. Mike's latest publication: The Brain That Chooses ItselfAbout our Hosts:https://www.personcentreduniverse.com/about/
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Rahzeb Choudhury: Volunteering, Narrative Care, and Connection in Dementia Care
How can the simple act of sharing a story or making a meaningful connection transform the dementia journey? In this deeply moving episode, we’re joined by Rahzeb Choudhury, co-founder of True Doors and a lifelong advocate for compassionate care. Rahzeb shares his journey from volunteering to becoming a leader in social enterprise, weaving together his passion for narrative care and the profound power of human connection.Through his reflections, Rahzeb reveals how understanding and celebrating individual stories can help create environments that foster belonging and joy for people living with dementia. His work with True Doors highlights the importance of personalizing care spaces to honor the identities of residents, bringing dignity and a sense of home to long-term care settings.Rahzeb’s heartfelt perspective reminds us that the essence of care lies in the connections we nurture. Inspired by Christine Bryden’s Dancing with Dementia, he discusses how rediscovering our core selves—unburdened by life’s distractions—can open pathways to meaningful relationships. From the role of volunteers in breaking down barriers to the healing power of kindness, Rahzeb illustrates how even small, intentional acts can have a transformative impact.We also explore his work with Lifelong Inspiration, where initiatives like the One Page Profile Masterclass and Tai Chi practices bring creativity and calm to care settings. Each of these projects is a testament to Rahzeb’s belief that care is about more than meeting physical needs—it’s about creating spaces where every person’s story is honored and celebrated.This episode is a heartfelt tribute to the importance of seeing the individual, fostering connection, and embracing the narratives that make us who we are.Links Mentioned in the Episode:Connect with Rahzeb Choudhury on LinkedIn.Learn more about True Doors.Explore Dancing with Dementia by Christine Bryden.About our Hosts:https://www.personcentreduniverse.com/about/
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Dr. Rob Winningham: Physical & Cognitive Health in Dementia
Join us as we delve into the fascinating world of cognitive health with Dr. Rob Winningham, a leading expert on memory and aging. With over 30 years dedicated to understanding memory processes and promoting healthy aging, Dr. Winningham shares powerful insights into how specific cognitive and physical exercises can boost memory and potentially slow down dementia progression.Holding a Ph.D. in neuroscience from Baylor University, Dr. Winningham has spent much of his career at Western Oregon University, where he was instrumental in creating the Gerontology Department and served in various leadership roles, including Dean of the College of Liberal Arts and Sciences and Provost and Vice President for Academic Affairs. His extensive research has been published widely, and he has trained thousands of professionals in cognitive rehabilitation and wellness programs, presenting over 1,500 talks on memory and aging.In this episode, Dr. Winningham explains how targeted cognitive stimulation, especially for those in the early stages of cognitive decline, can be as essential for brain health as physical workouts are for the body. He discusses activities that strengthen executive functions, revealing a "sweet spot" for therapeutic interventions that support ongoing cognitive improvement.We also explore the concept of dual tasking—a groundbreaking approach that combines cognitive and physical activities to enhance brain function, making everyday tasks more automatic. Through tools like SmartFit and Dividat, these exercises bring dual tasking to life, transforming lives by enhancing cognitive and motor skills simultaneously. By incorporating such dynamic exercises, Dr. Winningham demonstrates how delaying the onset of dementia can significantly reduce disease prevalence and improve quality of life.Alongside his expertise, Dr. Winningham’s books, Train Your Brain: How to Maximize Memory Ability in Older Adulthood and Cranium Crunches, offer further resources for those interested in boosting cognitive health. Available on Amazon, these works provide practical advice for memory enhancement at any age.With Dr. Winningham’s wisdom, we explore how fostering environments that promote dignity and autonomy can enrich lives affected by dementia, providing promising pathways to a healthier aging process.Links to additional resources:Dual Tasking MenuPersonal Advance Directive for Quality of LifeDr. Rob Winningham LinkedInAbout our Hosts:https://www.personcentreduniverse.com/about/
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12
Shelley Shillington: Empowering Dementia Care with Meaningful Engagement
Join us as we uncover the heart of meaningful engagement in dementia care with Shelley Shillington, Senior Consultant and Trainer at Person Centred Universe. With 35 years in long-term care, including senior management, Shelley has dedicated her career to person-centred approaches and sustainable transformation in dementia care. Hosts Jana Jones and Ashley King explore Shelley’s journey, from a Physical Education graduate with a passion for elder care to becoming a recognized leader who chairs the Alzheimer Society of New Brunswick and serves on the national board of the Alzheimer Society of Canada.In this insightful conversation, Shelley shares her expertise in creating authentic connections through personalized engagement, transforming everyday activities like sharing a cup of tea into moments that honor individuality and dignity. With practical advice for both professional and family care partners, Shelley also highlights strategies for combating caregiver burnout and integrating mindfulness and resilience into caregiving routines. Discover how small celebrations, reminiscence, and compassionate care foster a culture of choice and personhood in dementia care. This episode offers a compassionate, practical vision of what dementia care can and should be—a space for dignity, joy, and meaningful connection.About our Hosts:https://www.personcentreduniverse.com/about/
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Part 2: Meaningful Engagement in Dementia Care with Maurie Voisey-Barlin
In Part 2 of our conversation with Maurie Voisey-Barlin, we're reminded that every person has a story needing to be heard, especially those with dementia. On this episode, we discuss Maurie's person-centred approach, celebrating the power of connection and the art of relationship-centred care. This conversation unveils the layers of nuanced interaction essential to reach someone's core, even when memories fade. Maurie shares about mischief, finding joy in the playful and the routine, as well as how his 'satellite' technique demonstrates that circling around can lead to a heartfelt connection. Each story shared is a lesson in patience, respect, and the personal touch that turns caregiving into an art form.Maurie's tales illustrate the profound impact of tailored communication and genuine understanding. This episode is not just a discussion; it's an invitation to witness the transformation that occurs when we truly engage with the hearts and minds of people living with dementia.Maurie's Bio and LinkedInEden Alternative & Dr. Bill ThomasDr. Al Power - Seven Domains of Well-BeingJane VerityDan Cohen - Music & MemoryJudy CornishAbout our Hosts:https://www.personcentreduniverse.com/about/
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Part 1: Meaningful Engagement in Dementia Care with Maurie Voisey-Barlin
When Maurie Voisey-Barlin, an elder engagement specialist with a knack for mischief, joins the conversation, you know you're in for a treat. From sunny Australia, Maurie enlightens us with approaches to dementia care that break the mold, emphasizing the need to harvest history and foster genuine connections with those experiencing cognitive decline. His humourous, warm stories remind us that through curiosity, improvisation, and genuine human connection, we can significantly enrich the lives of our elders.This episode is a celebration of the art of collaboration in healthcare, where every team member plays a pivotal role in crafting a culture of person-centred care. Together, we discuss the immense value of preserving personal histories and extending empathy within dementia care, hoping to inspire and offer solace to those who navigate this challenging yet profoundly human journey.Maurie's Bio and LinkedInEden Alternative & Dr. Bill ThomasDr. Al Power - Seven Domains of Well-BeingJane VerityDan Cohen - Music & MemoryJudy CornishAbout our Hosts:https://www.personcentreduniverse.com/about/
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Jennifer Buchanan: Music Therapy in Dementia Care
On this episode, we welcome Jennifer Buchanan, Music Therapist and the founder of JB Music Therapy, who shares with us the art of harnessing this power to enrich the lives of those living with dementia. Throughout the episode, Jennifer shares impactful examples of how music therapy provides solace and sparks joy when words sometimes fail.Jennifer relays how offering music is not just entertainment but also a lifeline to memories and emotions. Her practical tips and insights aim to guide caregivers and families in creating musical experiences that are as impactful as they are meaningful, highlighting the importance of consistency and overcoming the hurdles that technology can present, ensuring that everyone, regardless of their abilities, can access the therapeutic benefits of music.Join us as we celebrate the resilience music therapy fosters across all walks of life, at all ages, and how music remains a sure friend in the journey through dementia.Links & Resources:Jennifer's LinkedInJB Music TherapyJennifer's WebsiteJennifer's Book PublicationsCanadian Association of Music TherapistsLink to the video Jennifer references in the episodeAbout our Hosts:https://www.personcentreduniverse.com/about/
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Suzanne Quiring: Creating Meaningful Dining Experiences in Dementia Care
On this episode, we are joined by Registered Dietitian and President of SuzyQ Menu Concepts, Suzanne Quiring. Suzanne shares her passion & experience on “how” meal service can be done as resident focused as possible, and the culture change that is needed to do so. Listeners will gain tips on providing a harmonious dining environment, and caregivers will learn to navigate the challenges of dietary care - turning a routine activity into a peaceful experience that supports both physical health and cognitive well-being.Suzanne's insights extend into the heart of healthcare communities, where her SuzyQ Cart System is revolutionizing the dining experiences for residents. She shares how this revolutionary movement is reshaping meal service through increased resident & staff interaction and the power of offering choice.Please see the following links to resources Suzanne shares in this episode:Pioneer NetworkThe Eden AlternativeButterfly Model of CarePineapple AcademyResearch Institute of Aging (RIA)RIA Choice+ ProgramDietitians of CanadaAcademy of Nutrition and Dietetics Suzanne's LinkedInAbout our Hosts:https://www.personcentreduniverse.com/about/
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Challenging the Narrative: A Conversation with Sonya Barsness on Aging, Dementia and the Power of Engagement
This episode promises an enlightening conversation with Sonya Barsnes, a revisionary gerontologist, advocating for a different perspective on aging and dementia. We'll explore the topics of social isolation, loneliness, and prescribed disengagement, and discuss the importance of meaningful engagement for those living with dementia.We talk about the concept of 'prescribed disengagement', which illustrates how societal stigma and lack of awareness often lead to a withdrawal from the world post-diagnosis. We argue against this mindset and stress the need for accessible environments, education, and understanding for individuals with dementia. We also explore how life can still offer growth experiences for people with dementia. Finally, we offer practical solutions for continued engagement in activities that spark joy. We emphasize the need for honest communication between patients and their loved ones and the importance of asking for and accepting help. We address the challenges of social isolation, and how with self-compassion and authenticity, individuals can find joy and purpose in their communities. Join us, as we redefine dementia together, advocating for a less stigmatized and more inclusive space for those affected. Resources from this episode:Flipping Stigma Tool KitPathways to Wellbeing with Dementia: Manual of Help, Hope, and InspirationPlease email Sonya at [email protected] so sign up to her newsletterSonya's LinkedInSonya's WebsiteAbout our Hosts:https://www.personcentreduniverse.com/about/
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Jim Kinsey: A Deep Dive into Advanced Care Planning
Prepare yourself for a rich and enlightening journey into the world of advanced care planning with our distinguished guest, Jim Kinsey. As the director of member services at Planetree International, Jim's knowledge of the field is both vast and profound. Together, we'll unravel the intricacies of advanced care planning and system navigation, highlighting the crucial role of personalized care, and the value of understanding individual needs. We unmask the stigmas that often shadow dementia, emphasizing the importance of listening to the voices of those directly affected. Advanced care planning, we'll discover, is a beacon of guidance for home caregivers, providing respite and decision-making confidence during challenging times. Jim shares personal experiences, and underscores the impact of a well-prepared advanced care plan and its role in easing the grieving process for everyone involved. We'll delve into the significance of safety, self-determination, and creating dementia-friendly environments that uphold these values. A humanized approach to care, we'll learn, can enhance autonomy and redefine the narrative around dementia. As we entertain thought-provoking questions and exchange enlightening ideas, our conversation will challenge listeners to shift their perspective and redefine the concept of dementia itself. So, join us on this remarkable journey as we reshape the way we think about dementia and advanced care planning.You can find Jim Kinsey on LinkedIn or by emailing [email protected] our Hosts:https://www.personcentreduniverse.com/about/
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Building Supportive Communities for Caregivers: A Discussion with Sheila Warnock
This episode features Sheila Warnock, founder and CEO of Share the Caregiving Incorporated, who demonstrates the power of collective action in revolutionizing the caregiver landscape. She shares her journey from an advertising career to creating a solution for the global caregiver crisis. Sheila imparts valuable advice on forming a Share the Care group, underscoring the importance of shared understanding and responsibility. She also enlightens us on self-care for caregivers and how being a caregiver can be a life-changing experience.We delve into how a Share the Care group can be tailored to the specific needs of the person receiving care. Sheila shares effective strategies for managing a Share the Care group and the profound impact it can have on the caregiver's experience. She also emphasizes the benefits of virtual teams for those unable to be physically present, and the significance of community and nurturing each other. Whether you're a caregiver, someone wanting to lend a hand, or just interested in understanding caregiving better, this episode provides practical tools and resources to create a compassionate caregiving network. Join us and discover how you can make a difference in the lives of caregivers and those living with dementia.Share the Care: A Community that Cares, Share the Care for the LGBTQ Community, Who Cares for the Person AloneAbout our Hosts:https://www.personcentreduniverse.com/about/
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Living With Dementia: A Powerful Journey of Hope, Inspiration, and Resilience
Join us in warmly welcoming our cherished friend, Jim Mann, who bravely shares his poignant journey through living with dementia. His story is not only deeply personal but also an inspiration, as he continues to live his life fully and purposefully, despite his diagnosis. Through his firsthand experience as a caregiver, and later as someone living with the condition, Jim sheds light on the importance of understanding and encouragement for those who are in similar situations.Get ready to be inspired as Jim walks us through his life-changing journey, providing valuable insights on how to adapt to life with dementia. He weaves a compelling narrative about the power of purpose, the significance of staying connected, and how maintaining a sense of independence can make a significant difference. Jim’s story is a testament to the human spirit, highlighting the importance of understanding unique experiences with dementia and the power of choosing to live a full life, regardless of a dementia diagnosis.Rounding off our conversation, we delve into Jim’s advocacy work, which focuses on shifting the narrative around dementia. He emphasizes on acknowledging the capabilities of individuals, rather than just their limitations. Through his work, Jim strives to redefine the stigma around dementia, focusing on a future of hope and opportunities. His story serves as a reminder that life doesn’t stop after diagnosis; instead, it’s an invitation to adapt, focus on possibilities, and continue to live a fulfilling and meaningful life. So, join us in this enlightening and impactful conversation, there's much to learn and much to be inspired by.Jim's LinkedIn Jim's Bio and publication listAbout our Hosts:https://www.personcentreduniverse.com/about/
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Dr. Bill Randall: The Power of Narrative Care and Storytelling
Have you ever stopped to wonder about the power of the stories we tell ourselves? What if there was a way to redefine the narrative around dementia, not as a decline, but as a journey of discovery? That's what we're exploring today with our distinguished guest, Dr. Bill Randall, a retired professor of gerontology, author, and passionate advocate for narrative care. Together, we delve deep into the profound impact of stories on our identity, health, relationships, and ultimately, our wisdom as we age.There's much more to narrative care than meets the eye. It's not just about reminiscing; it's about keeping an individual's story alive, even when memory starts to fade. We'll discuss the role of narrative care in medical treatment, often serving as an alternative to medication, and the narrative challenges that might surface in later life. We also talk about tangible steps to support someone in care and how narrative can build resilience not only for individuals living with dementia but also for those caring for them.We'll also be exploring how narrative care can create more meaningful interactions with people living with dementia. We discuss the importance of creating a sense of understanding and comfort, focusing on the person, not their condition. So, join us as we redefine dementia through the power of stories and narratives. This is not just a conversation about dementia, but about life, memory, and the stories that make us who we are.About our Hosts:https://www.personcentreduniverse.com/about/
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Dr. Gary Irwin-Kenyon: Exploring the Transformative Power of Stillness in Dementia Care
Imagine if through the practice of stillness, we could unlock a deeper sense of calm and peace, not just for ourselves, but also for people living with dementia. Professor Dr. Gary Irwin-Kenyon, our special guest for today, shares his incredible journey finding tranquility through martial arts and Tai Chi, and how these methods can bring profound benefits to those with dementia and their care partners. We take a deep dive into the fascinating world of stillness and its immense potential in dementia care.Discover the importance of being fully present in each moment, a practice that is often overlooked in our fast-paced, do-it-all lifestyle. It's about striking a balance between doing and being, something Gary poignantly points out can be instrumental in turbulent times. We also discuss the refreshing concept of giving ourselves the green light to take a much-needed break, a vital component of self-care, especially for caregivers.We delve into narrative care, a mindful approach of using stories to communicate with people living with dementia. We part with a thought-provoking discourse by Gary on how stillness can be a haven from our chaotic world. Join us on this episode of Redefining Dementia as we explore the enchanting essence of stillness and its transformative power.About our GuestFor the website and full biography of Dr. Gary Irwin-Kenyon, please click HERE.Gary's Instagram can be found HERE.About our Hosts:https://www.personcentreduniverse.com/about/
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Redefining Dementia: A Journey Towards Person-Centered Care
Are you ready to go on a soulful journey and redefine dementia with us? We're joined by Rahzeb Choudhury, founder of Lifelong Inspiration and co-founder of TrueDoors, who helps us unravel the birth of Person Centered Universe and the significance of our mission. We aim to create transformative conversations around dementia care and reveal how the Person Centered Universe took shape. We promise you'll gain profound insights into our shared vision for a future where dementia care is human-centric, balanced with medical processes, and tailored to the individual's needs.Picture a world where dementia ceases to be an intimidating diagnosis, but instead, a new course of life that can be navigated with the right support and resources. That's our dream. In this episode, Rahzeb guides a discussion with Person Centred Universe co-founders, Ashley King and Daphne Noonan, who bring their wealth of experience to the table. From exploring the challenges faced by long-term care facilities to discussing the resources needed to support those living with dementia in the community, we strive to illuminate how we can help individuals maintain an inspired life post-diagnosis.But that's not all. We also introduce you to our amazing podcast guests, individuals who have made significant contributions in their fields. They share their unique perspectives on dementia care, from Sheila Warnock's 'Share the Care' program to Dr. Gary Irwin Kenyon's focus on stillness, to the storytelling and engagement practices of Dr. Bill Randall and Maury Voisey-Barlin, to Sonia Barness' emphasis on socialization, to the expertise of Suzanne Quiring and Jennifer Buchanan in nutrition and music therapy. This episode is all about redefining dementia care through inspiring conversations. Join us today!See below for more information about our hosts, Daphne Noon and Ashley King, our Guest Host, Rahzeb Choudhury, as well as more information about their work.About our Guest Host:Rahzeb ChoudhuryRahzeb is the founder of Lifelong Inspiration, where he and his team mentor for- profit and non-profit organizations as they seek to provide a person-centred approach to their clients. He is also the co-founder and Director of True Doors, which enhances nursing home settings by adding a touch of home with personalized doors, reminiscent of one’s own home.Rahzeb personally mentors Daphne and Ashley as co-founders of Person Centred Universe, and they are incredibly grateful for the benefit of his extensive knowledge and experience in business development, both as a fellow co-founder of Social Enterprise businesses and as a leader who has driven many organizations (small and large) forward throughout his career. Rahzeb has keen insight into our values and what we hope to achieve through our work. In this episode, Rahzeb guides us through a rich conversation about how Person Centred Universe was born, why the work of Person Centred Universe is so meaningful to us, and what this podcast has in store for you as listeners. About our Hosts:https://www.personcentreduniverse.com/about/
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ABOUT THIS SHOW
Just as Person Centred Universe’s educational and consultation work, the aim of the Redefining Dementia Podcast is to strive toward a better world for those affected by dementia. When consuming resources or media about dementia, the focus is often on the challenges, stigma and fear that may accompany a diagnosis of dementia. This podcast seeks to shift that narrative to focus on and celebrate living well with dementia and what that means for caregivers as well. Through the sharing of stories,resources and helpful life experiences, the podcast will look to connect with the audience to provide helpful and meaningful takeaways.
HOSTED BY
Person Centred Universe
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