The Charles Bonnet Syndrome Podcast

Host Shaimond welcomes board-certified neuro-ophthalmologist Dr. Leonid Skorin Jr., returning guest and medical director/board member of Mary Carmel’s Light, to discuss his new book, "Charles Bonnet Syndrome and other Visual Hallucinations: Clinical Diagnosis and Management." Skorin explains he wrote it to broaden clinician awareness beyond neurology-focused literature and to help patients and caregivers, recruiting contributors including retina specialists, optometrists (including low-vision), an occupational therapist, and a psychologist, and involving trainees to encourage future research. The book covers negative vs. positive visual phenomena, illusions, hallucinations, entoptic phenomena, low-vision approaches, and 12 narrative case reports; he reads a case of a 100-year-old woman with CBS after severe vision loss. He also shares CBS history from Charles Bonnet’s 1760 account, discusses stigma, counseling, vision optimization, and provides publisher/discount details and online bonus materials.Book Title: Charles Bonnet Syndrome and other Visual Hallucinations: Clinical Diagnosis and Management.Book’s ISBN Number: 9781041059868Publishers Website to Purchase Book:https://www.routledge.com/Charles-Bonnet-Syndrome-and-Other-Visual-Hallucinations-Clinical-Diagnosis-and-Management/Skorin-Cusick/p/book/9781041059868 Discount Code: 20% Discount with Code 26AFLY1 Code expires on June 30, 2026Contact me at [email protected] For help with CBS, call 1-704-389-0160For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group, email Dr. Cusick at [email protected] support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email [email protected] support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email [email protected] For support or resources for CBS in Australia, please visit https://www.charlesbonnetsyndrome.org or email [email protected] The Charles Bonnet Syndrome Podcast Merchandisehttps://cbsyndromepodcast.com/merchandiseDonate: https://ko-fi.com/cbsyndromepodcast Chapters:00:00 Welcome and Guest Intro02:09 Why Write This Book03:10 Building a Multidisciplinary Team06:04 Teaching Story Behind the Book08:54 What Readers Should Gain13:44 History of Charles Bonnet18:19 Defining CBS Key Features24:33 Pseudo Hallucinations Explained25:20 Ancient Cataract Surgery28:20 Why Hallucinations Get Complex30:58 How Common Is CBS in Clinic32:35 Student Finds Hidden Cases33:23 Explaining Phantom Vision35:26 Counseling And Resources36:53 Treatments That Can Help38:16 Idea For CBS Clinics39:32 Why Some Get CBS41:00 How The Book Helps46:10 Case Report Read Aloud51:05 Autoscopy And Community Insights53:21 Where To Buy The Book56:36 Bonus Online Materials57:52 Final Thanks And Wrap

In this episode of the Charles Bonnet Syndrome podcast, host Shaimond Foye welcomes back Duchess Antoinette McDonald-Ellis, a performance artist and creator. Antoinette shares a powerful poem that encapsulates her experiences living with Charles Bonnet Syndrome, illustrating the complexities of her relationship with the condition. The conversation delves into the daily struggles faced by individuals with CBS, including moments of confusion and fear, and how creative expression serves as a coping mechanism. Antoinette recounts a unique experience during a choir performance where she encountered a giant dancing Eskimo, highlighting the unpredictable nature of CBS. The episode concludes with a discussion on the importance of open conversations about CBS and the support within the community.00:00 Introduction to The Charles Bonnet Syndrome Podcast02:21 Antoinette's Poem: A Love Note to Charlie B09:08 Understanding Charles Bonnet Syndrome Through Art14:39 Experiencing Charles Bonnet Syndrome During Performance20:09 Navigating Conversations About CBSContact me at [email protected] help with CBS, call 1-704-389-0160For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group, email Dr. Cusick at [email protected] support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email [email protected] support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email [email protected] support or resources for CBS in Australia, please visit https://www.charlesbonnetsyndrome.org or email [email protected] Charles Bonnet Syndrome Podcast Merchandisehttps://cbsyndromepodcast.com/merchandiseDonate: https://ko-fi.com/cbsyndromepodcast

In this episode of the Charles Bonnet Syndrome podcast, host Shaimond welcomes guest Nancie Parker, a retired nurse who has firsthand experience with CBS. Nancie shares her journey of sudden vision loss due to aggressive glaucoma and her subsequent struggle with CBS. She discusses the challenges of coping with visual hallucinations, the importance of community support, and the role of advocacy in raising awareness about CBS. Nancie highlights her work with the CNIB in providing resources and support for individuals experiencing vision loss and CBS. This insightful conversation underscores the importance of acceptance, humor, and resilience in dealing with this condition.Contact me at [email protected] help with CBS call 1-704-389-0160For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick atFor support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email [email protected] support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email [email protected] support or resources for CBS in Australia, please visit https://www.charlesbonnetsyndrome.org or email [email protected] Charles Bonnet Syndrome Podcast Merchandisehttps://cbsyndromepodcast.com/merchandiseDonate: https://ko-fi.com/cbsyndromepodcast

In this episode of the Charles Bonnet Syndrome podcast, host Shaimond welcomes Evelyn Lewis, who shares her inspiring story of living with Charles Bonnet Syndrome (CBS). Evelyn details her lifelong struggle with visual impairments, beginning with her congenital condition Aniridia and subsequent battles with cataracts, glaucoma, retinal detachment, and cornea transplants. Despite significant visual loss and hallucinations associated with CBS, Evelyn speaks about her proactive approach to mental health, seeking therapy, and finding comfort in her faith and community activities. She also discusses the importance of acknowledging and sharing one's experiences, seeking medical and emotional support, and staying engaged in life. Evelyn's narrative is a testament to resilience in the face of ongoing challenges.Contact Evelyn at [email protected] me at [email protected] help with CBS call 1-704-389-0160For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email [email protected] support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email [email protected] support or resources for CBS in Australia, please visit https://www.charlesbonnetsyndrome.org or email [email protected] Charles Bonnet Syndrome Podcast Merchandisehttps://cbsyndromepodcast.com/merchandiseDonate

In this episode of the Charles Bonnet Syndrome Podcast, host Shaimond is joined by Dr. Marta Wnuczko, an experimental psychologist and professor at Humber Polytechnic. They discuss Dr. Wnuczko's research on how both sighted and blind individuals perceive and navigate their environments, and delve into the topic of hallucinations, including those experienced in Charles Bonnet Syndrome (CBS). Dr. Wnuczko shares her personal experiences with her great-grandmother, who exhibited symptoms of CBS, and provides insights into the nature of hallucinations, the importance of awareness, and coping strategies. The conversation also touches on her research methodologies, the balance between teaching and research, and the need to cultivate a curiosity-driven, positive approach to perception and human behavior.Contact Dr. Marta at [email protected] me at [email protected] For help with CBS call 1-704-389-0160 For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at [email protected] For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email [email protected] support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email [email protected] support or resources for CBS in Australia, please visit https://www.charlesbonnetsyndrome.org or email [email protected] The Charles Bonnet Syndrome Podcast Merchandisehttps://cbsyndromepodcast.com/merchandise Donate

In this episode of the Charles Bonnet Syndrome podcast, host Shaimond welcomes Shannon Glasgow, author of 'What They See, What We Know: Navigating Charles Bonnet Syndrome, Caregiving Without Losing Your Mind or Your Finances.' Shannon shares his profound journey as the caregiver for his mother, who suffers from Charles Bonnet Syndrome (CBS. He speaks about his transition from working overseas to dedicating his life to caregiving, the challenges he faced, and the emotional and financial impacts of his situation. Shannon also discusses the importance of awareness, support groups, and finding a balance between caregiving responsibilities and personal well-being. Tune in to learn more about Shannon's insightful experiences and his efforts to raise CBS awareness through his books and social media presence.Contact Shannon at [email protected] Shannon's book https://www.amazon.com/What-They-See-Know-Navigating-ebook/dp/B0F1NP58YK/ref=sr_1_2?crid=1OUYSYPGSX4C6&dib=eyJ2IjoiMSJ9.RH-n5yh47EugAKKZm9AH6wb2ACITfOoH8spEDY_hlWYOno0yVyjDDVykY_NaA3um-o6_N5mmhoVyUmo7_7SGew.60wyjbNP6Yl_42NxMyj5sSJhb1IrNTFjjhgpoBbFurI&dibContact me at [email protected] For help with CBS call 1-704-389-0160 For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at [email protected] For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email [email protected] support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email [email protected] support or resources for CBS in Australia, please visit https://www.charlesbonnetsyndrome.org or email [email protected] The Charles Bonnet Syndrome Podcast Merchandisehttps://cbsyndromepodcast.com/merchandise Donate

In this special 50th episode of the Charles Bonnet Syndrome podcast, host Shaimond celebrates the milestone with a panel of distinguished guests: Eva Potts from Mary Carmel's Light, Scott Muirden from the Charles Bonnet Syndrome Foundation in Australia, Duchess Antoinette McDonald-Ellis and her husband Ken Ellis. The discussion covers various updates and personal experiences related to Charles Bonnet Syndrome (CBS). Scott Muirden shares groundbreaking research from Australia, particularly the work of Vicki Hamilton at Griffith University focused on artistic representations of CBS experiences. Antoinette and Ken Ellis discuss their personal encounters with CBS and how art, music, and environment play roles in the manifestations of CBS. Eva Potts highlights the importance of awareness and the work being done by Mary Carmel's Light to support people with CBS. Additionally, Judith Potts from Esme's Umbrella in the UK provides a recorded message on new research findings, her ongoing projects, and the importance of educating the medical community about CBS, and Lucia Ricardo from Canada shares a congratulatory message regarding this podcast's 50th episode milestone. This episode underscores the global effort to raise awareness, the importance of combining art and science, and the crucial role of support groups in improving the quality of life for those living with CBS.Mary Carmel's Light https://marycarmelslight.com/ Charles Bonnet Syndrome Foundation https://www.charlesbonnetsyndrome.org/Contact me at [email protected] For help with CBS call 1-704-389-0160 For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at [email protected] For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email [email protected] support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email [email protected] support or resources for CBS in Australia, please visit https://www.charlesbonnetsyndrome.org or email [email protected] The Charles Bonnet Syndrome Podcast Merchandisehttps://cbsyndromepodcast.com/merchandise Donate

In this episode of the 'Charles Bonnet Syndrome Podcast,' host Shaimond invites Karen Tan-Sy to share her experiences living with Charles Bonnet Syndrome (CBS) while caring for her mother with Dementia. Karen discusses the fluctuating nature of her eye condition, dealing with multiple diagnoses including Sjogren’s Syndrome, and the mental and physical challenges she faces daily. The conversation delves into how she initially mistook her hallucinations for supernatural occurrences, leading to her CBS diagnosis. Karen also speaks about the delicate balance of managing her own treatments, medications, and doctor's visits while being a 24/7 caregiver. Additionally, the episode highlights the importance of support groups like Dr. Gary Cusick's weekly CBS group, coping strategies for CBS, and the value of external support systems. Karen's story is one of resilience, highlighting the importance of taking life 'one moment at a time' amidst life's complexities.Contact Karen at [email protected] me at [email protected] For help with CBS call 1-704-389-0160 For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at [email protected] For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email [email protected] support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email [email protected] support or resources for CBS in Australia, please visit https://www.charlesbonnetsyndrome.org or email [email protected] The Charles Bonnet Syndrome Podcast Merchandisehttps://cbsyndromepodcast.com/merchandise Donate

In this episode of the Charles Bonnet Syndrome Podcast, host Shaimond explores the concept of syndromes in medicine. The episode delves into the definition of a syndrome, its history, and how it differs from diseases and disorders. Key characteristics of syndromes are discussed, along with examples like Down Syndrome and Charles Bonnet Syndrome. The importance of pattern recognition in diagnosing syndromes, the evolution of their study, and their impact on patient care are also covered. This comprehensive overview aims to enhance understanding of syndromes for patients, caregivers, and curious listeners.Contact me at [email protected] For help with CBS call 1-704-389-0160 For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at [email protected] For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email [email protected] support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email [email protected] support or resources for CBS in Australia, please visit https://www.charlesbonnetsyndrome.org or email [email protected] The Charles Bonnet Syndrome Podcast Merchandisehttps://cbsyndromepodcast.com/merchandise Donate

In this episode of the Charles Bonnet Syndrome podcast, host Shaimond speaks with Jo Hill, who shares her experiences as a caregiver for her husband, Frankie. Frankie has been dealing with glaucoma for over 20 years and started experiencing CBS symptoms in December 2018. Jo discusses the challenges they faced, the path to discovering CBS through resources like Esme's Umbrella, and how they found support from Dr. Gary Cusick. She highlights the importance of patience, support groups, and finding activities that help manage symptoms. Additionally, Jo reflects on the role of family support and shares tips for other caregivers dealing with CBS.Contact Jo at [email protected] Contact me at [email protected] For help with CBS call 1-704-389-0160 For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at [email protected] For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email [email protected] support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email [email protected] support or resources for CBS in Australia, please visit https://www.charlesbonnetsyndrome.org or email [email protected] The Charles Bonnet Syndrome Podcast Merchandisehttps://cbsyndromepodcast.com/merchandise Donate

In this episode of the Charles Bonnet Syndrome podcast, host Shaimond interviews Dr. Phil Troyk, a professor and leading research innovator in the field of biomedical engineering at the Illinois Institute of Technology. Dr. Troyk discusses the FDA-approved Intracortical Visual Prosthesis (ICVP) project, which aims to help blind individuals perceive artificial vision by bypassing the eyes and optic nerve, directly stimulating the brain's vision centers through wireless implants. The conversation covers the history of the project, its technological advancements, participant recruitment, and the future potential of this groundbreaking research.Dr. Troyk and his team are actively recruiting participants for this Intracortical Visual Prosthesis (ICVP) project. If you or someone you know are interested in participating, email [email protected] more information about the study, listen to this podcast episode or visit https://chicagolighthouse.org/icvp/Contact me at [email protected] For help with CBS call 1-704-389-0160 For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at [email protected] For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email [email protected] support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email [email protected] support or resources for CBS in Australia, please visit https://www.charlesbonnetsyndrome.org or email [email protected] The Charles Bonnet Syndrome Podcast Merchandisehttps://cbsyndromepodcast.com/merchandise Donate

In this episode of The Charles Bonnet Syndrome Podcast, host Shaimond interviews Dr. Nader Pouratian, a professor and chair of neurological surgery at UT Southwestern Medical Center in Dallas. Dr. Pouratian discusses his work on experimental treatments aimed at restoring vision for individuals who have lost it, specifically through the use of neural devices and deep brain stimulation. The conversation delves into the intricacies of the Orion Visual Cortical Prosthesis Trial, touching upon the experimental process, patient outcomes, and future prospects in the field. Dr. Pouratian also emphasizes the importance of integrating technology and patient engagement to enhance research and therapeutic solutions. Whether you're interested in cutting-edge medical research or curious about innovative treatments for vision loss, this episode provides valuable insights directly from an expert in the field.For more on Dr. Pouratian https://www.utsouthwestern.edu/education/medical-school/departments/neurological-surgery/ Contact me at [email protected] For help with CBS call 1-704-389-0160 For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at [email protected] For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email [email protected] support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email [email protected] support or resources for CBS in Australia, please visit https://www.charlesbonnetsyndrome.org or email [email protected] The Charles Bonnet Syndrome Podcast Merchandisehttps://cbsyndromepodcast.com/merchandise Donate

In this episode of the Charles Bonnet Syndrome podcast, host Shaimond speaks with Frank Hill Sr., who has experienced visual hallucinations caused by CBS for six years due to glaucoma. Frank shares his initial confusion about the condition and describes the vivid and intrusive visions he encounters daily seeing animals, unclear human figures and more. He credits his faith in God for helping him cope. Throughout the discussion, Frank discusses the persistence of these hallucinations, the methods he uses to manage them, and his belief that understanding and unwavering faith are key to dealing with CBS. The conversation also highlights the general lack of medical understanding and effective treatment for CBS, emphasizing the importance of education and support for those affected.Contact me at [email protected] For help with CBS call 1-704-389-0160 For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at [email protected] For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email [email protected] support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email [email protected] support or resources for CBS in Australia, please visit https://www.charlesbonnetsyndrome.org or email [email protected] The Charles Bonnet Syndrome Podcast Merchandisehttps://cbsyndromepodcast.com/merchandise Donate

In this episode of The Charles Bonnet Syndrome Podcast, Shaimond interviews Bettie Stanger-Black, who shares her journey as a caregiver for her mother who has CBS. Bettie recounts the initial signs of hallucinations, the diagnostic process, and her challenges as a caregiver. They discuss the importance of proper diagnosis, the emotional toll of caregiving, and various coping strategies. Bettie emphasizes the need for awareness, understanding, and support from medical professionals and the community. This episode provides valuable insights and practical advice for caregivers and those affected by CBS.Contact Bettie at [email protected] me at [email protected] For help with CBS call 1-704-389-0160 For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at [email protected] For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email [email protected] support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email [email protected] support or resources for CBS in Australia, please visit https://www.charlesbonnetsyndrome.org or email [email protected] The Charles Bonnet Syndrome Podcast Merchandisehttps://cbsyndromepodcast.com/merchandise Donate

In this episode of the Charles Bonnet Syndrome podcast, host Shaimond interviews Eva and Kevin Potts, co-founders of Mary Carmel's Light. The organization, named in honor of their mother, was recently designated a 501(c)(3) nonprofit. They share their deeply personal and challenging journey of identifying and coping with Mary Carmel's Charles Bonnet Syndrome (CBS), including medical misdiagnoses and the lack of available resources. They discuss the importance of believing and validating the experiences of those with CBS and their caregivers, as well as the urgent need for better awareness and diagnosis procedures within the medical community. The episode also highlights Mary Carmel's Light's efforts to support people with CBS and their families, advocate for a designated billing code for CBS, and educate through support groups, helplines, and community outreach.For more information about Mary Carmel's Light or help with CBS visit https://marycarmelslight.com/ or call 704-389-0160Contact me at [email protected] For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at [email protected] For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email [email protected] support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email [email protected] support or resources for CBS in Australia, please visit https://www.charlesbonnetsyndrome.org or email [email protected] The Charles Bonnet Syndrome Podcast Merchandisehttps://cbsyndromepodcast.com/merchandise Donate

In this episode of the Charles Bonnet Syndrome podcast, host Shaimond interviews Selene Carboni, an art educator from Italy who specializes in teaching visually impaired individuals how to create and appreciate art. Selene discusses her journey from an art historian to advocating for the artistic capabilities of blind individuals. She shares her experiences working at the Francesco Cavazza Institute for the Blind and her research on drawings made by blind individuals at the University of Toronto. The conversation explores how visually impaired people can engage in artistic activities, the stages of drawing development, and the importance of tactile art resources. Selene also highlights the inspirational stories of her students and the importance of raising awareness and educating others about the artistic potential of the visually impaired.Contact Selene at [email protected] Contact me at [email protected] For help with CBS call 1-704-389-0160 For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at [email protected] For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email [email protected] support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email [email protected] support or resources for CBS in Australia, please visit https://www.charlesbonnetsyndrome.org or email [email protected] The Charles Bonnet Syndrome Podcast Merchandisehttps://cbsyndromepodcast.com/merchandise Donate We have been recognized as one of the Top 100 Visually Impaired Podcasts on the web by Feedspot. See the full list here:https://podcast.feedspot.com/visually_impaired_podcasts/

In this episode of the Charles Bonnet Syndrome podcast, host Shaimond interviews Melissa Carney, Community Outreach and Graduate Support Manager at Guiding Eyes for the Blind. Melissa shares insights into her role, the criteria for obtaining a guide dog, the training process for guide dogs, and her personal experiences as a guide dog handler. She discusses the application process, the importance of teamwork between the handler and the dog, and the benefits and challenges of using a guide dog. Melissa also touches on the use of AI in mobility aids, the personalized support Guiding Eyes provides to their graduates, and how interested individuals can take the first steps toward getting a guide dog.Guiding Eyes for the Blind Contact info:[email protected] a Guide Dog Right for Me? https://www.guidingeyes.org/is-a-guide-dog-right-for-me/ Contact Melissa at [email protected] Contact me at [email protected] For help with CBS call 1-704-389-0160 For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at [email protected] For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email [email protected] support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email [email protected] support or resources for CBS in Australia, please visit https://www.charlesbonnetsyndrome.org or email [email protected] The Charles Bonnet Syndrome Podcast Merchandisehttps://cbsyndromepodcast.com/merchandise Donate

In this episode of the Charles Bonnet Syndrome podcast, host Shaimond welcomes Phyllis Stanger, who discusses her experiences living with CBS. Phyllis describes her journey from being diagnosed with macular degeneration to later developing CBS symptoms, which include visual hallucinations. She shares the challenges she faces, such as giving up driving and coping with daily hallucinations, and offers insight into how she manages her condition. Phyllis also speaks about the role of support groups and family and emphasizes the importance of changing environments and staying involved in activities. Her story offers hope and practical advice for others living with CBS.For help with CBS call 1-704-389-0160 Contact me at [email protected] For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at [email protected] For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email [email protected] support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email [email protected] support or resources for CBS in Australia, please visit https://www.charlesbonnetsyndrome.org or email [email protected] The Charles Bonnet Syndrome Podcast Merchandisehttps://cbsyndromepodcast.com/merchandise Donate

In this episode of the Charles Bonnet Syndrome podcast, host Shaimond talks with Eriko Watanabe, a blind artist from Augsburg, Germany. Eriko, originally from Japan, shares her compelling journey from losing her sight due to pediatric cancer to becoming an artist specializing in tactile line drawings. Despite her blindness, Eriko creates detailed artworks using raised line drawing kits and other methods, translating her sensory experiences such as touch, sound, and smell into visual art. They discuss the unique processes behind Eriko's creations, her inspirations from traveling, and the challenges and joys of being a blind artist. Eriko emphasizes the importance of staying connected to the world and being curious, offering encouragement to listeners with visual impairments to explore their own artistic capabilities.For help with CBS call 1-704-389-0160 Contact me at [email protected] For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at [email protected] For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email [email protected] support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email [email protected] support or resources for CBS in Australia, please visit https://www.charlesbonnetsyndrome.org or email [email protected] Donate

In this episode of the Charles Bonnet Syndrome podcast, host Shaimond interviews Dr. John Kennedy, a psychologist and senior investigator from the University of Toronto. Dr. Kennedy shares his extensive research on imagery, perception, and the fascinating abilities of blind individuals in creating art. He discusses his encounters with various visually impaired artists, elaborating on their experiences and his findings on Charles Bonnet Syndrome. The episode delves into the nature of visual and mental imagery, and the potential therapeutic role of art and drawing for those with visual impairments. Dr. Kennedy also highlights the importance of curiosity, passion, and continuous learning in professional and personal growth.Contact Dr. Kennedy at [email protected] help with CBS call 1-704-389-0160 Contact me at [email protected] For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at [email protected] For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email [email protected] support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email [email protected]

In this episode of the Charles Bonnet Syndrome podcast, host Shaimond interviews Kim Kimberley who shares her personal experiences of living with CBS after sustaining a head injury from being assaulted. She discusses the nature of her hallucinations, interactions with medical professionals, and the coping mechanisms she has developed, including the use of LED lights and support from online communities. The conversation sheds light on the challenges of diagnosing and managing CBS, as well as the importance of support and self-advocacy.Contact Kim at [email protected] help with CBS call 1-704-389-0160 Contact me at [email protected] For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at [email protected] For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email [email protected] support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email [email protected]

In this episode of the Charles Bonnet Syndrome podcast, host Shaimond interviews Dr. Andrew G. Lee, a neuro-ophthalmologist and the Herb and Jene Lyman Centennial Chair of Ophthalmology at Blanton Eye Institute, Houston Methodist Hospital. They discuss Charles Bonnet Syndrome, a condition involving visual hallucinations due to vision loss, and explore why it is often misunderstood and stigmatized. Dr. Lee shares insights on the importance of awareness, patient support, and available treatments while emphasizing the need for holistic approaches and ongoing research. The conversation also touches on the role of neuro-ophthalmologists and the complexities of diagnosing and managing this condition.Dr. Lee’s YouTube Channel https://www.youtube.com/@Neuro-OphthalmologywithDrAndre Dr. Lee’s web pageshttps://scholars.houstonmethodist.org/en/persons/andrew-g-leehttps://www.houstonmethodist.org/doctor/andrewg-lee/ For help with CBS call 1-704-389-0160 Contact me at [email protected] For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at [email protected] For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email [email protected] support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email [email protected]

In this episode of The Charles Bonnet Syndrome Podcast Shaimond interviews doctoral candidate Aysha Kinakool from York University, the discussion covers various aspects of CBS. Topics include the complexity of studying CBS, patient experiences, and the necessity of raising awareness and education among healthcare providers. The conversation highlights the role of advanced neuroimaging techniques, such as fMRI, in understanding brain connectivity in CBS and the need for collaborative efforts in research. Diagnostic challenges and the scarcity of research in Eastern countries are also discussed. The episode emphasizes the urgent need for effective treatments and policy changes, advocating for a holistic and interdisciplinary approach to manage CBS and improve patient care globally.Contact Aysha at [email protected] For help with CBS call 1-704-389-0160 Contact me at [email protected] For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at [email protected] For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email [email protected] support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email [email protected]

In this episode of the Charles Bonnet Syndrome podcast, Shaimond interviews Ruth Bieber, a retired social worker and artist living with Charles Bonnet Syndrome (CBS). Bieber, who was diagnosed with legal blindness at age 6, shares her journey of losing central vision and later experiencing CBS. At 67, she reflects on her 25-year experience with CBS, during which she began seeing vivid, colorful hallucinations in her 40s. Embracing her CBS, Bieber relates her experiences to the energy fields known as chakras, influencing her art, theater work, and travels. She discusses how the syndrome's visual phenomena varied depending on her environment—from the rich colors in Calgary to the light-infused geometries of New York, and her art journey that evolved through these places. Bieber talks about her involvement in the arts, how she fosters creativity despite her vision loss, and the therapeutic power of art in giving voice to people with disabilities, as chronicled in her book 'Disability Theater from the Inside Out.' Through her narrative, she highlights how the arts can be a conduit for expressing the rich tapestry of experiences shaped by CBS and encourages listeners to connect with others in the artistic community.Contact Ruth at [email protected] Ruth's Book https://www.amazon.com/Disability-Theatre-Insideout-Ruth-Bieber/dp/184991947X Check out some articles that Ruth Wrote in the Sage-ing Magazine:Issue 40: Spring 2022, Page 22. BEYOND THE HORIZON - Ruth Bieber https://www.sageing.ca/sageing40.html Issue 30: Fall 2019, Page 29. TO SEE OR NOT TO SEE: THE HEALING POWER OF THEATRE - Ruth Bieber https://www.sageing.ca/sageing30.html Issue 15: Spring 2015, Page 39. UNDER THE ARGENTINE MOON: 'BLIND SPOT' RIDING IN PATAGONIA - Ruth Bieber https://www.sageing.ca/sageing15.htmlIssue 8: Summer 2013, Page 38. The Right to Perform - Ruth Bieber https://www.sageing.ca/sageing8.htmlFor help with CBS call 1-704-389-0160 Contact me at [email protected] For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at [email protected] For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email [email protected] support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email [email protected]

In this episode of The Charles Bonnet Syndrome Podcast, host Shaimond welcomes Professor Robin Walker, a cognitive neuroscientist from Royal Holloway, University of London. They discuss Dr. Walker's extensive research on visual perception and macular degeneration, and his current focus on Charles Bonnet Syndrome. The conversation delves into a reading app he developed to aid people with macular degeneration, ongoing studies on Charles Bonnet Syndrome, the effects of the COVID-19 lockdown on hallucinations, and the importance of technology and awareness in supporting those with visual impairments. Listeners are encouraged to participate in Dr. Walker's latest study to help advance understanding and treatment of this condition. The study is open to participants worldwide and can be completed virtually.To participate in Dr. Walker’s Charles Bonnet Syndrome Research Study send an email to [email protected] Dr. Walker at [email protected] Try Dr. Walker's EV Platform Reading Web App https://ev-platform.org/ For help with CBS call 1-704-389-0160 Contact me at [email protected] For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at [email protected] For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email [email protected] support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email [email protected]

In this episode of the Charles Bonnet Syndrome podcast, host Shaimond interviews Richie Kahn, a public health professional, clinical researcher, and patient advocate. Richie shares his personal journey with optic atrophy and Charles Bonnet Syndrome. With a background in public health and a passion for patient advocacy, Richie talks about his career in clinical research, his efforts to reduce inefficiencies in drug development, and his work through Canary Advisors to incorporate the patient perspective into clinical trials. Richie also discusses his coping strategies for Charles Bonnet Syndrome, the importance of laughter, running, using a white cane, and the critical need for raising awareness and education about vision loss and associated conditions.Contact Info:[email protected] https://www.linkedin.com/in/richiekahn/ https://www.canaryadvisorsllc.com/ For help with CBS call 1-704-389-0160 Contact me at [email protected] For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at [email protected] For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email [email protected] support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email [email protected]

In this episode of the Charles Bonnet Syndrome podcast, host Shaimond delves into Cognitive Appraisal Theory, a psychological framework that explains how our interpretations of events shape our emotional responses. He explains the two stages of cognitive appraisal—primary and secondary—and provides therapeutic techniques such as cognitive restructuring, mindfulness, and several other therapies like CBT, ACT and DBT, which can help individuals, particularly those with CBS, reframe their thoughts and improve emotional wellbeing. For help with CBS call 1-704-389-0160 Contact me at [email protected] For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at [email protected] For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email [email protected] support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email [email protected]

In this episode, Shaimond interviews Dr. Kat Da Silva Morgan from Newcastle University's Translational and Clinical Research Institute. Dr. Morgan discusses her extensive research into Charles Bonnet Syndrome (CBS), explaining her journey from psychology to neuroscience and her focus on visual hallucinations. She elaborates on the unique aspects of CBS compared to other conditions that cause hallucinations, such as Lewy body dementia and psychosis. Dr. Morgan also covers her research findings on brain activity differences in CBS patients, the potential of transcranial direct current stimulation (TDCS) as a treatment, and the challenges of conducting large-scale trials. Finally, she shares insights into the general day-to-day life of a researcher, the importance of educating medical professionals about CBS, and calls for more support and understanding for those affected by the condition.Contact Dr. Kat da Silva Morgan at [email protected] For help with CBS call 1-704-389-0160 Contact me at [email protected] For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at [email protected] For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email [email protected] support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email [email protected]

In this episode, Shaimond and guest host Duchess Antoinette McDonald-Ellis welcome cognitive neuroscientist Dr. Jennifer K Steeves from York University. Dr. Steeves discusses visual and sensory processing, emphasizing her research on Charles Bonnet Syndrome (CBS). She recounts her discovery of CBS through collaborative research and shares insights into non-invasive brain stimulation techniques like Transcranial Magnetic Stimulation (TMS) that show promise in treating visual hallucinations. Dr. Steeves elaborates on the complexities of brain function, the importance of individualized medical treatments, and explores the role of other sensory systems in compensatory vision loss. The discussion deepens into emerging medical treatments, including possible natural and holistic therapies, raising awareness about CBS within medical communities and highlighting the ongoing research to improve the quality of life for those affected.Contact Dr. Steeves at [email protected] For help with CBS call 1-704-389-0160 Contact me at [email protected] For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at [email protected] For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email [email protected] support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email [email protected]

In this episode, Shaimond welcomes Dr. Anica Zeyen, a UK-based researcher who has CBS and cone-rod dystrophy. Dr. Zeyen shares her experiences with vision loss and the onset and development of her CBS symptoms. She offers insights into coping mechanisms and discusses how trust, relationships, and communication play a crucial role in managing the condition. The conversation also delves into Dr. Zeyen's extensive research on disability inclusion, her work in making public spaces more accessible, and her advocacy for disability rights across various countries. Despite dealing with nearly continuous hallucinations, Dr. Zeyen has made significant strides in academia and activism. She also discusses the challenges and benefits of using a white cane and a guide dog, her personal experiences living with a disability in different countries, and the importance of understanding individual needs in creating a more inclusive world. The episode wraps up with details about her blog, Disability Research Diary, where she shares her research and personal experiences.Read Dr Zeyen’s Blog https://drdiary.blog/ Contact Dr. Zeyen [email protected] For help with CBS call 1-704-389-0160 Contact me at [email protected] For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at [email protected] For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email [email protected] support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email [email protected]

In this episode, Shaimond and guest host Dr. Gary Cusick welcome Sam Seavey, an online health advocate for the blind community and owner of the popular YouTube channel 'The Blind Life.' Sam shares his journey with Stargardt's disease and how it took him decades to fully accept his visual impairment. He discusses his work at the Bluegrass Council of the Blind and his YouTube channel, The Blind Life, an invaluable resource where he shares assistive technology and tips for the visually impaired community with over 9 million views and counting. The conversation touches on the importance of accessibility, emotional support, and the transformative potential of AI and other technologies. Sam's work at the Bluegrass Council of the Blind and his contributions through his YouTube channel make him a beacon of inspiration and information in the visually impaired community.Sam’s YouTube channel https://www.youtube.com/@theblindlife Sam’s Website: www.theblindlife.netFor help with CBS call 1-704-389-0160 Contact me at [email protected] For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at [email protected] For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email [email protected] support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email [email protected]

In this episode, Shaimond welcomes Nina Chesworth, a volunteer with Esme's Umbrella, to share her personal journey and insights into living with Charles Bonnet Syndrome (CBS). Nina discusses the complexities of her vision loss stemming from a viral infection and subsequent accidents, leading to her current state of blindness. She candidly describes her CBS experiences, including persistent and sometimes frightening hallucinations, and offers coping strategies such as mindfulness, yoga, and acceptance. The episode delves into the importance of support systems, education, and awareness to better manage this condition. Nina also highlights the broader efforts to raise awareness about CBS and shares information about available resources, including support groups and upcoming initiatives.00:00 Introduction and Guest Introduction01:14 Nina's Eye Condition and Surgeries04:11 Experiencing Charles Bonnet Syndrome07:26 Coping with Charles Bonnet Syndrome11:46 Support and Awareness Efforts20:11 Living with Hallucinations31:27 Coping Mechanisms for Stress and Anxiety32:45 Mindfulness Techniques for Hallucinations33:33 Discussing the Film 'Aspectum'37:01 Advice for Those with Charles Bonnet Syndrome39:07 Personal Affirmations and Coping Strategies40:27 Using Assistive Devices with Pride43:32 The Importance of Support Groups46:54 Raising Awareness and Seeking Help51:57 Advice for CaregiversContact Nina at [email protected] or https://x.com/blind_but_sound For help with Charles Bonnet Syndrome Call 1-704-389-0160 Contact me at [email protected] For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at [email protected] For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email [email protected] support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email [email protected] to this podcast's sustainability Donate

In this episode, Shaimond shares a comprehensive guide to coping with Charles Bonnet Syndrome (CBS). He covers general tips, coping mechanisms, natural remedies, and innovative treatments gathered from people with CBS and experts in the medical and research field. Key topics include recognizing hallucinations, stress management, utilizing support groups, and various therapeutic techniques. Listeners are advised to consult healthcare professionals before trying any new remedies or treatments.For help with Charles Bonnet Syndrome call 1-704-389-0160 Contact me at [email protected] For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at [email protected] For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email [email protected] support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email [email protected] to this podcast's sustainability Donate

In this episode, Shaimond and Antoinette interview Lucia Ricardo, a program lead at the Canadian National Institute for the Blind (CNIB). They explore the condition's history, personal experiences, the importance of awareness among medical professionals, and the impact of peer support. Lucia shares insights into the CNIB's efforts in supporting individuals with CBS, including the creation of a support group called 'Seeing Things.' The episode also delves into the challenges caregivers face, coping mechanisms for those experiencing CBS, and the significance of spreading awareness through various platforms, including arts and academia.Contact Lucia at [email protected] For more information about the CNIB visit https://www.cnib.caFor help with Charles Bonnet Syndrome call 1-704-389-0160 Contact me at [email protected] For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at [email protected] For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email [email protected] support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email [email protected] to this podcast's sustainability Donate

In this episode, Shaimond interviews Vicky Hamilton, a PhD candidate performing research on Charles Bonnet Syndrome (CBS) at Griffith University, Queensland College of Art and Design in Brisbane, Australia. Hamilton shares her journey with CBS. Utilizing art and digital technology, Hamilton's research focuses on recreating the visions experienced by those with CBS, aiming for a broader understanding and awareness of the condition. The podcast explores the historical interpretation of hallucinations and the potential connections between personal experiences and hallucinations. Hamilton's research aims to create a digital and interactive exhibition to simulate CBS visions, fostering empathy and understanding among the general public and the medical community.Contact Vicky at [email protected] more about her work at www.cbsvisions.com For help with Charles Bonnet Syndrome call 1-704-389-0160 Contact me at [email protected] For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at [email protected] For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email [email protected] support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email [email protected] to this podcast's sustainability Donate

In this episode, Shaimond interviews Megan Chapman, an occupational therapist specializing in low vision, from Low Vision Works in Sarasota, Florida. They discuss the role of occupational therapy in helping individuals with low vision, including those suffering from Charles Bonnet Syndrome (CBS). Chapman explains the broad scope of occupational therapy. She also shares her journey into specializing in low vision, the impact of CBS on patients' lives, and ways to manage its symptoms. Key to her approach is educating patients about CBS to alleviate fear and isolation, advocating for greater awareness among healthcare professionals, and improving patients' quality of life through tailored therapy sessions.Contact Meagan at [email protected] Contact Low Vision Works http://lowvisionworks.com/ or 941-366-0011For help with Charles Bonnet Syndrome call 1-704-389-0160 Contact me at [email protected] For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at [email protected] For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email [email protected] support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email [email protected] to this podcast's sustainability Donate

In this episode, Shaimond and guest co-host Dr. Gary Cusick interview graphic novelist and researcher Gareth Brookes. Brookes discusses his graphic novel, “A Thousand Coloured Castles” which features a main character with Charles Bonnet syndrome (CBS). Inspired by his grandmother's experiences with the condition, Brookes aims to raise awareness and empathy by portraying the visual hallucinations associated with CBS. He describes the nuances of CBS and its impact on people living with the condition and their families. The conversation also covers Brookes' research into comics, his creative process, and the potential of graphic novels in educating about medical conditions.Learn more about Gareth at https://www.gbrookes.com/ Purchase A Thousand Coloured Castles here https://www.amazon.com/Thousand-Coloured-Castles-Graphic-Medicine/dp/0271079274For help with Charles Bonnet Syndrome call 1-704-389-0160 Contact me at [email protected] For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at [email protected] For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email [email protected] support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email [email protected] to this podcast's sustainability Donate

In this episode, Shaimond interviews Dr. Jasleen Jolly, Associate Professor in Vision and Eye Research at Anglia Ruskin University in Cambridge, England and Director of Jolly Vision Science. Dr. Jolly discusses her extensive work and research on Charles Bonnet Syndrome. She explains the misconceptions about the syndrome, its prevalence and highlights the importance of asking patients proactively about symptoms to overcome the stigma that might prevent them from coming forward. Additionally, she touches on her motivations for founding Jolly Vision Science and the need for greater inclusion and diversity in the medical field. Dr. Jolly offers practical advice for people with CBS and healthcare professionals aiming to raise awareness and improve patient care for this often misunderstood condition.Visit Dr. Jolly’s website at https://jollyvisionscience.com/ or follow her on X(Formerly Twitter) @JKJolly4For help with Charles Bonnet Syndrome call 1-704-389-0160 Contact me at [email protected] For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at [email protected] For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email [email protected] support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email [email protected] to this podcast's sustainability Donate

In this episode, Shaimond interviews Scot Muirden, Director at Charles Bonnet Syndrome Foundation AU. He explains the mission of the Foundation, which includes providing direct services to those affected by CBS and raising awareness within the medical and healthcare sectors. The conversation covers the importance of a multidisciplinary approach to diagnosis and support, potential triggers of CBS, and strategies for managing symptoms. Additionally, Scot emphasizes the need for more research on CBS, including its causes and potential treatments. The episode also touches on the difficulties faced by caregivers and the importance of self-care and reaching out for support.Contact Scot at [email protected] Visit the Charles Bonnet Syndrome Foundation AU’s website https://www.charlesbonnetsyndrome.org/ For help with Charles Bonnet Syndrome call 1-704-389-0160 Contact me at [email protected] For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at [email protected] For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email [email protected] support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email [email protected] to this podcast's sustainability Donate

In this episode, Shaimond interviews Robin Davies who is totally blind and shares his journey with Best disease and Charles Bonnet Syndrome. The episode emphasizes resilience, the value of community and support, and how remaining engaged with life and passions can help navigate the challenges of visual impairment and Charles Bonnet syndrome.Contact Robin at [email protected] help with Charles Bonnet Syndrome call 1-704-389-0160 Contact me at [email protected] For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at [email protected] For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email [email protected] support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email [email protected] to this podcast's sustainability Donate

In this episode, Shaimond interviews Chris Wilsdon a representative from the Kent Association for the Blind, to discuss Charles Bonnet Syndrome (CBS) and how his organization supports the visually impaired in Kent and parts of London, UK. Wilsdon shares his personal journey from experiencing vision problems to dedicating over 15 years to aiding those with vision impairments. The episode highlights the collaborative efforts within the sight loss community, the significance of addressing CBS openly, and the impact of cognitive therapies and medication adjustments on managing CBS hallucinations.Contact Chris Wilsdon at [email protected] For help with Charles Bonnet Syndrome call 1-704-389-0160 Contact me at [email protected] For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at [email protected] For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email [email protected] support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email [email protected] to this podcast's sustainability Donate

In this episode, Shaimond interviews Tanya Straker, who shares her journey as a caregiver and discusses her book “6 Life Hacks For Family Caregivers,” her weekly caregiver support group, Coffee with Caregivers, and shares tips to help caregivers manage, among other things she does to support people on their journey to being their best self.For more information about Tanya and for a link to join her support group, Coffee with Caregivers visit https://tanyastraker.com Contact Tanya at [email protected] help with Charles Bonnet Syndrome call 1-704-389-0160 Contact me at [email protected] For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at [email protected] For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email [email protected] support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email [email protected] to this podcast's sustainability Donate

In this episode, Shaimond and Eva interview Susan Michel who shares her journey with Retinitis Pigmentosa, Macular Degeneration and Charles Bonnet Syndrome.For help with Charles Bonnet Syndrome call 1-704-389-0160 Contact us at [email protected] For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at [email protected] For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email [email protected] support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email [email protected] to this podcast's sustainability Donate

In this episode, Shaimond and Eva interview Dr. Leonid Skorin, an ophthalmologist at the Mayo Clinic. He gives an ophthalmic view of Charles Bonnet Syndrome.Contact Dr. Skorin at [email protected] For help with Charles Bonnet Syndrome call 1-704-389-0160 Contact us at [email protected] For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at [email protected] For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email [email protected] support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email [email protected] to this podcast's sustainability Donate

In this episode, Shaimond and Eva interview Irvine Harris who shares his journey with Macular Degeneration and Charles Bonnet Syndrome.Contact Irvine at [email protected] Irvine’s website https://savinghumanity.net/ For help with Charles Bonnet Syndrome call 1-704-389-0160 Contact us at [email protected] For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at [email protected] For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email [email protected] to this podcast's sustainability Donate For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email [email protected]

In this episode, Shaimond interviews Esme’s Umbrella founder, Judith Potts. She shared how she first became aware of Charles Bonnet Syndrome (CBS) when it affected her mother and how she founded Esme's Umbrella, her Charity that focuses on raising awareness, offering support and sourcing funding for research for CBS.Contact Judith Potts at [email protected]’s Umbrella’s website https://charlesbonnetsyndrome.ukCharles Bonnet Syndrome Medical Codes:ICD Code H53.16.8Billable Code R44.1For help with Charles Bonnet Syndrome in the UK call 0303 123 9999For help with Charles Bonnet Syndrome in the US call 1-704-389-0160 Contact me at [email protected] me at [email protected] For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at [email protected] For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email [email protected] support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email [email protected] to this podcast's sustainability Donate

In this episode, Shaimond and Eva interview Dave Hommel who shares his story as a caregiver for his mother who has journey Charles Bonnet Syndrome.Contact Dave at [email protected] For help with Charles Bonnet Syndrome call 1-704-389-0160 Contact us at [email protected] For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at [email protected] For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email [email protected] support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email [email protected] to this podcast's sustainability Donate

In this episode, Shaimond discusses who Charles Bonnet was.For help with Charles Bonnet Syndrome call 1-704-389-0160 Contact me at [email protected] For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at [email protected] For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email [email protected] support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email [email protected] to this podcast's sustainability Donate

In this episode, Shaimond and Eva interview Theo Blue who shares his journey with Glaucoma and Charles Bonnet Syndrome.Contact Theo at [email protected] For help with Charles Bonnet Syndrome call 1-704-389-0160 Contact us at [email protected] For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at [email protected] For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email [email protected] support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email [email protected] to this podcast's sustainability Donate

In this episode, Shaimond and Eva interview Janet Duke, who shares her story as a family member and caregiver for her mother who has Charles Bonnet Syndrome.Contact Janet at [email protected] For help with Charles Bonnet Syndrome call 1-704-389-0160 Contact us at [email protected] For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at [email protected] For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email [email protected] support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email [email protected] to this podcast's sustainability Donate