The Invisible Condition Podcast

Send us Fan Mail"I kept getting the question, ‘How can we show up better for the disability community?’ And depending on who you are, the answer is different. That’s why I wrote a book about it. I hope this book can contribute to the conversation, not just about policy change but shifting hearts and minds, perspectives, and attitudes around disability." - Tiffany Yu, Founder & AuthorSummaryWhat if the way we think about disability is holding us back from true inclusion?It’s not just about policies or accommodations—it’s about the quiet assumptions, the words we use, and the culture we create. How do we move from seeing disability as a problem to solve to recognizing it as a valuable part of the human experience?That’s exactly what I explore with Tiffany Yu, author of The Anti-Ableist Manifesto and a disability advocate who’s redefining inclusion.Tiffany shares why she wrote her book, how ableism shows up in our everyday lives, and what we can do right now to challenge it.This isn’t just a conversation; it’s a call to action. Tiffany offers simple yet powerful shifts we can all make—from rethinking the words we use to advocating for accommodations and creating spaces where everyone feels valued. Whether you’re navigating your own journey or looking for ways to support others, this episode is packed with inspiration and practical tools to help you take that first step.And don’t miss Tiffany’s reflections on storytelling, self-worth, and why inclusion isn’t about lowering expectations—it’s about breaking barriers.If you’ve ever wondered how to show up for the disability community truly, this episode will give you the clarity and confidence to make a meaningful impact.TakeawaysRethink the Words You UseAdvocate Effectively with Simple Phrases Challenge Assumptions About DisabilityInclusive Design and Accommodations Break Barriers, Not ExpectationsShare Your Story Start Small, Think Big Tiffany Yu - BioTiffany is the CEO & Founder of Diversability, a 3x TEDx speaker, and the author of The Anti-Ableist Manifesto: Smashing Stereotypes, Forging Change, and Building a Disability-Inclusive World. She started her career at Goldman Sachs before becoming a speaker and writer on disability. At the age of 9, Tiffany became disabled as a result of a car accident that also took the life of her father.TikTok: @imtiffanyyuInstagram: @imtiffanyyuLinkedIn: Tiffany YuTiffany Yu Website: https://www.tiffanyyu.com/Diversability Website: https://mydiversability.com/Buy the Book: https://www.tiffanyyu.comSupport the showThanks for listening, I appreciate you!  Support the Show: https://www.buymeacoffee.com/timreitsmaWebsite: invisiblecondition.comSubscribe: invisiblecondition.com/subscribeSpotify: https://open.spotify.com/show/4kDTQ9eTFpWFDID9vsXFxWApple Podcasts: https://podcasts.apple.com/us/podcast/the-invisible-condition-podcast/id1703432562Social MediaInstagram: https://www.instagram.com/invisible_condition/YouTube: https://www.youtube.com/@Invisible_Condition

Send us Fan MailWhat does it take to keep going when your health impacts everything, from work to hobbies to simply getting through the day? Kait shares her journey with Miserable Malalignment Syndrome, a rare condition that’s led to years of chronic pain, countless surgeries, and tough conversations with doctors who didn’t always listen.We talk about how she found ways to adapt her life, the mental toll of giving up the things she loves, and the determination it took to advocate for herself and finally get a diagnosis. Kait’s story is honest and relatable—she shares how she’s learned to find meaning in small daily activities, show herself compassion, and push back against stigma by telling her story.If you’ve ever struggled with something invisible or want to better understand what it’s like, this conversation will leave you with a lot to think about and maybe even inspire you to share your own story.Listen because:Self-Advocacy is Essential: Clearly communicating how your condition impacts daily life helps doctors take you seriously.Finding Meaning Amid Challenges: Engaging in meaningful activities, even in new ways, sustains joy and mental well-being.Balance is Fluid: Perfect balance doesn’t exist—adjust priorities and energy as circumstances change.Self-Compassion Matters: Give yourself grace when things don’t go as planned. Flexibility is key.Adaptation is Power: Adapting activities or exploring new passions keeps your sense of identity alive.Living by Your Values: Aligning daily life with your values creates true fulfillment.Track Your Energy and Activities: Understanding what drains or restores your energy helps you plan your day and prioritize what truly matters.About Kait:Kait, an occupational therapist from Monterey, California, lives with Miserable Malalignment Syndrome (MMS) and Ulnar Impaction Syndrome, likely linked to Ehlers-Danlos Syndrome (EDS). These conditions have led to chronic pain and mobility challenges, requiring numerous surgeries, including femoral and tibial osteotomies, labral reconstruction, and upcoming procedures on her arms.Despite these challenges, Kait continues to pursue her passions, including running, hiking, playing soccer and tennis, learning languages, writing poetry, and traveling. She is currently writing a memoir about her physical and emotional journey.Kait’s career as an occupational therapist has taken on new meaning as she uses her expertise to navigate her own health challenges. Her experiences have fueled her desire to raise awareness, advocate for those living with rare conditions, and inspire others to persevere in the face of adversity.Contact Links and Previous Podcast/Blogs:Instagram: @alignedk8Miles4Hips: Support the showThanks for listening, I appreciate you!  Support the Show: https://www.buymeacoffee.com/timreitsmaWebsite: invisiblecondition.comSubscribe: invisiblecondition.com/subscribeSpotify: https://open.spotify.com/show/4kDTQ9eTFpWFDID9vsXFxWApple Podcasts: https://podcasts.apple.com/us/podcast/the-invisible-condition-podcast/id1703432562Social MediaInstagram: https://www.instagram.com/invisible_condition/YouTube: https://www.youtube.com/@Invisible_Condition

Send us Fan Mail“Being a caregiver isn’t easy. Please give yourself grace, be patient with yourself, and reach out for support. You don’t have to do it alone.”SummaryIn this heartfelt journal entry, Tim Reitsma (me), founder of InvisibleCondition.com, shares a vulnerable reflection on the challenges of caregiving, balancing work, family, and advocacy. As a caregiver for his partner living with chronic conditions, Tim highlights the importance of community, grace, and asking for support. He calls attention to the often-overlooked struggles caregivers face, both at home and in the workplace, and encourages listeners to extend compassion and help to those in caregiving roles. This entry is a reminder that no one has to navigate these challenges alone.Takeaways Caregiving is a heavy, often invisible load – It requires juggling personal, professional, and emotional responsibilities, which can lead to exhaustion and burnout.Support systems make a difference – Whether it's a helping hand from your community or workplace flexibility, caregivers thrive when they have the space to focus on their loved ones.Grace and connection are essential – Caregivers should give themselves grace, seek support, and remember that they don’t have to navigate these challenges alone. Reaching out can unlock the true power of community.For caregivers:Give yourself grace and patience; it's okay to feel overwhelmed.Reach out for support from your community, family, or workplace.Don’t hesitate to ask for help—you don’t have to do it all alone.For others supporting caregivers:Ask caregivers how you can help or support them.Offer tangible assistance, like providing meals, running errands, or giving them a break.Create a supportive workplace culture where caregivers feel comfortable asking for accommodations or flexibility.For workplaces:Understand the unique challenges caregivers face, and create policies that support them (e.g., flexible schedules, paid leave).Listen to caregivers’ needs and ensure they feel heard and supported.Support the showThanks for listening, I appreciate you!  Support the Show: https://www.buymeacoffee.com/timreitsmaWebsite: invisiblecondition.comSubscribe: invisiblecondition.com/subscribeSpotify: https://open.spotify.com/show/4kDTQ9eTFpWFDID9vsXFxWApple Podcasts: https://podcasts.apple.com/us/podcast/the-invisible-condition-podcast/id1703432562Social MediaInstagram: https://www.instagram.com/invisible_condition/YouTube: https://www.youtube.com/@Invisible_Condition

Send us Fan MailWhat if the challenges of living with autoimmune conditions could actually lead to personal growth and strength? That’s the journey Deanna deBara shares in this conversation. Living with Hashimoto’s thyroiditis and rheumatoid arthritis, Deanna has transformed her experiences with chronic pain and fatigue into sources of resilience and inspiration.She opens up about managing her health while running a business, finding acceptance, and learning to advocate for herself. Deanna shares the powerful tools she uses to get ‘unstuck,’ such as rewriting negative stories, practicing vulnerability, and setting boundaries to honour her needs.Her story resonates with anyone who has felt stuck or overwhelmed by life’s challenges. Through methods like releasing emotions and reframing difficult situations, Deanna shows how embracing acceptance and openness can lead to true freedom and resilience. Tune in to discover how she’s breaking barriers and learn lessons you can apply in your own journey.Takeaways:Stuckness as a Shared Experience Impact of Invisible Conditions Acceptance and Reframing Vulnerability as Connection Practical Tools for Self-Care Creating Compassionate Spaces “When you let the right people in, like the people that love you, they're going to be there to support you. And that vulnerability isn't going to create distance; it's going to bring people closer.” - Deanna deBaraAbout Deanna:Deanna deBara is a writer whose work has appeared in Glamour, Cosmopolitan, Men's Health and more. She is also a podcast host; her podcast, Season of Stuck, explores the all-too-human experience of feeling stuck: how and why we get stuck, what stuckness feels like, how to learn and grow from it, and ultimately, how to get unstuck and step into the next version of ourselves and our lives. Contact Links:Season of Stuck website: https://www.seasonofstuck.com/ Subscribe to newsletter: https://www.seasonofstuck.com/subscribe  Season of Stuck Instagram: https://instagram.com/seasonofstuckSeason of Stuck on Apple Podcasts: https://podcasts.apple.com/us/podcast/season-of-stuck/id1751171964Season of Stuck on Spotify: https://open.spotify.com/show/6AgTNPhjXlawdmtxvN5X8vSeason of Stuck on Buzzsprout: https://www.buzzsprout.com/2373423Support the showThanks for listening, I appreciate you!  Support the Show: https://www.buymeacoffee.com/timreitsmaWebsite: invisiblecondition.comSubscribe: invisiblecondition.com/subscribeSpotify: https://open.spotify.com/show/4kDTQ9eTFpWFDID9vsXFxWApple Podcasts: https://podcasts.apple.com/us/podcast/the-invisible-condition-podcast/id1703432562Social MediaInstagram: https://www.instagram.com/invisible_condition/YouTube: https://www.youtube.com/@Invisible_Condition

Send us Fan MailSummaryI don't write things in a journal, I record them and sometimes I publish them... They are random thoughts, often unedited and sometimes make sense (to me).In this journal entry, I (Tim) explore the concept of 'what ifs' and how they can lead to negative thinking, particularly in the context of mental health and personal challenges. I share my experiences with self-sabotage and the importance of reframing negative thoughts into positive possibilities. I encourage listeners to embrace their feelings, seek support, and focus on the potential outcomes of their actions rather than the fears that hold them back.TakeawaysReframe the "What Ifs" - Negative "what if" thoughts can be reframed into positive ones. Instead of “What if I fail?” try asking, “What if I succeed?” Embrace possibilities rather than dwelling on potential setbacks.Embrace Supportive Feedback - Feedback is a tool, not a verdict. Hearing others' perspectives—especially those from trusted friends—can help reinterpret situations with optimism.Value-Based Resilience - Grounding oneself in core values, like faith or purpose, provides strength during difficult times. Even when outcomes are uncertain, values can anchor resilience.Leverage Connections - When self-doubt arises, reaching out to a supportive network can offer guidance and a sense of solidarity. Tim encourages listeners to connect for mutual support.LinksSelf-Advocacy Interview SeriesSubscribe - www.invisiblecondition/subscribeResource Hub - www.invisiblecondition.com/resource-hubTags: mental health, what ifs, positivity, self-sabotage, resilience, Crohn's disease, disability inclusion, personal growth, workshops, supportSupport the showThanks for listening, I appreciate you!  Support the Show: https://www.buymeacoffee.com/timreitsmaWebsite: invisiblecondition.comSubscribe: invisiblecondition.com/subscribeSpotify: https://open.spotify.com/show/4kDTQ9eTFpWFDID9vsXFxWApple Podcasts: https://podcasts.apple.com/us/podcast/the-invisible-condition-podcast/id1703432562Social MediaInstagram: https://www.instagram.com/invisible_condition/YouTube: https://www.youtube.com/@Invisible_Condition

Send us Fan MailImagine being diagnosed with a chronic condition that changes your entire life—and instead of letting it hold you back, you use it as fuel to build a successful company. That’s exactly what Ted Fleming did. As the founder of Partake Brewing, Ted turned his experience with Crohn’s disease into a driving force behind a non-alcoholic beer brand that’s redefining the industry.Ted shares his journey of entrepreneurship, balancing his health with the pressures of leading a fast-growing business, and the lessons he’s learned about vulnerability, resilience, and self-awareness. He opens up about how he embraced his condition, used it to create a community around his brand, and turned his challenges into opportunities.Ted’s story isn’t just for entrepreneurs—anyone living with a chronic illness will find inspiration in how he managed stress, found support, and built a business that empowers others facing similar battles. For workplaces, Ted offers valuable insights about creating inclusion for employees with invisible conditions, highlighting the importance of creating open, supportive environments where people can thrive.If you’ve ever wondered how to turn adversity into success, or how to create a more inclusive workplace, this episode is for you. Ted Fleming’s story is a powerful reminder that vulnerability is a strength, and that true success comes from leading with authenticity and compassion. Tune in to learn how Ted has broken the stigma around invisible conditions, built a thriving business, and what lessons you can take into your own life or workplace.TakeawaysVulnerability as Strength: Ted shows that being open about Crohn’s disease fosters empathy and connections with others facing similar challenges.Self-Awareness and Boundaries: Recognizing health limits is key to managing stress and avoiding burnout, even in leadership.Authenticity in Business: Ted’s health journey shaped Partake Brewing, with authenticity setting the brand apart in the non-alcoholic beer market.Community and Support: A strong community through sports and work is crucial for managing an invisible condition.Creating Inclusive Workspaces: Ted stresses the importance of supportive environments where employees can share health challenges.Impact of Sharing Your Story: Sharing personal health stories can break stigma, inspire others, and foster understanding.Ted Fleming BioTed Fleming didn’t just create Partake Brewing—he shattered expectations and carved out a new frontier in the non-alcoholic beer world. In 2017, while the naysayers were busy doubting, Ted was busy redefining the game with a revolutionary, low-calorie, great-tasting brew that quickly ascended to the top of North America’s non-alcoholic beer scene. Confronted with a Crohn’s disease diagnosis, Ted didn’t just face adversity—he transformed it into an unstoppable force, making Partake theSupport the showThanks for listening, I appreciate you!  Support the Show: https://www.buymeacoffee.com/timreitsmaWebsite: invisiblecondition.comSubscribe: invisiblecondition.com/subscribeSpotify: https://open.spotify.com/show/4kDTQ9eTFpWFDID9vsXFxWApple Podcasts: https://podcasts.apple.com/us/podcast/the-invisible-condition-podcast/id1703432562Social MediaInstagram: https://www.instagram.com/invisible_condition/YouTube: https://www.youtube.com/@Invisible_Condition

Send us Fan MailSummary:Imagine struggling with your health for over a decade, visiting doctor after doctor, only to be dismissed as dramatic or told that it’s all in your head. That was Kenzie Vath’s reality before she finally received a diagnosis of Lyme disease at the age of 18—after suffering for 10 years. In today’s episode, Kenzie shares her powerful story of navigating chronic illness, enduring years of misdiagnosis, and how she found her voice through the struggle.As an advocate for those living with Lyme disease, Kenzie has turned her pain into purpose. She talks about the importance of self-advocacy in the face of medical roadblocks and why trusting yourself—even when experts don’t—is key to survival. Through her journey, she learned that finding purpose, connecting with others, and sharing her story was essential not only to her healing but to supporting others.We also dive into her book, The Ignored Pandemic: Real Stories of Lyme Disease, where she highlights the real-life struggles of people across the globe who are fighting the same battle. Through storytelling and vulnerability, Kenzie is on a mission to raise awareness and end the stigma surrounding Lyme disease and other invisible conditions.If you’ve ever felt dismissed, ignored, or alone in your health journey, this episode is a must-listen. Kenzie’s story is a powerful reminder that your voice matters and that resilience, compassion, and community are at the heart of healing. Tune in to hear how Kenzie turned her diagnosis into a force for change and how you can, too.Takeaways:The Importance of Self-AdvocacyFinding Purpose Through SufferingThe Role of Community in HealingResilience in the Face of Medical ChallengesThe Power of Vulnerability and StorytellingHolistic Health and Lifestyle ChoicesContact Links:Website - Holistic UmbrellaBook - The Ignored PandemicInstagram - Holistic UmbrellaLinkedInKenzie Vath is the Vice President of Strategic Innovation at Pacific Hospitality Group, where she leads growth-driven strategies for the hospitality industry. She is also the President of Impact 100 OC, supporting collective philanthropy, and serves on the board of the Global Lyme Alliance, advocating for Lyme disease awareness. As the owner of Holistic Umbrella, she promotes holistic health, and she is the author of The Ignored Pandemic, highlighting the struggles of those affected by Lyme disease."You are the expert in yourself, and sometimes the hardest step in self-advocacy is trusting your instincts and pushing for the answers you know you need."Support the showThanks for listening, I appreciate you!  Support the Show: https://www.buymeacoffee.com/timreitsmaWebsite: invisiblecondition.comSubscribe: invisiblecondition.com/subscribeSpotify: https://open.spotify.com/show/4kDTQ9eTFpWFDID9vsXFxWApple Podcasts: https://podcasts.apple.com/us/podcast/the-invisible-condition-podcast/id1703432562Social MediaInstagram: https://www.instagram.com/invisible_condition/YouTube: https://www.youtube.com/@Invisible_Condition

Send us Fan MailIn this episode of the Invisible Condition podcast, I share my personal journey of balancing life with a chronic illness, managing stress, and pursuing education. Reflecting on the challenges of health and academic demands, I emphasize the importance of finding moments of joy even during difficult times. I encourage listeners to reflect on their personal growth and prioritize self-care while reminding them that it's okay to say no to commitments that don't align with their values.TakeawaysFinding moments of joy – Even in the midst of stress and challenges, it's important to pause and reflect on moments of joy, no matter how small they may be.It's okay to say no – Saying no doesn't mean no forever, it might just be no for this particular season, and that's perfectly okay.Reflect on growth – Take time to reflect on how you are growing in this season of life, especially when things feel overwhelming. Reframing challenges from a negative to a more neutral or positive perspective can help you grow.Filtering decisions through your values – It's important to align decisions with your personal vision and values, especially when you're overwhelmed and tempted to say yes to everything. This helps maintain focus and prevents burnout.You don't have to struggle alone – Whether you're living with a chronic condition or just feeling overwhelmed, reaching out for support is essential. There are people and resources available to help, and it's okay to lean on them when you need it.LinksSelf-Advocacy Interview SeriesBriana PastorResource HubSupport the showThanks for listening, I appreciate you!  Support the Show: https://www.buymeacoffee.com/timreitsmaWebsite: invisiblecondition.comSubscribe: invisiblecondition.com/subscribeSpotify: https://open.spotify.com/show/4kDTQ9eTFpWFDID9vsXFxWApple Podcasts: https://podcasts.apple.com/us/podcast/the-invisible-condition-podcast/id1703432562Social MediaInstagram: https://www.instagram.com/invisible_condition/YouTube: https://www.youtube.com/@Invisible_Condition

Send us Fan MailSummary:In this episode of The Invisible Condition Podcast, Nate Toves from Neil Squire discusses the critical role of workplace inclusivity for individuals with disabilities. He emphasizes the importance of disclosing barriers, rather than diagnoses, and highlights how employers have to provide accommodations. Nate explains the value of assessments and assistive technology in tailoring solutions that meet individual needs and encourages employees to research available programs and funding to support these accommodations.Throughout the conversation, Nate shares positive experiences from employers who have embraced inclusivity, and he offers strategies for creating a safe environment where employees feel comfortable disclosing their needs. He stresses the importance of an inclusive interview process, helping employers attract and support talent with disabilities. Additionally, Nate underlines the unique value that employees with disabilities bring to the workforce, including problem-solving skills, resilience, and loyalty.The episode ultimately advocates for both employers and employees to take action—employers to foster inclusive environments and employees to come prepared with solutions and self-advocacy strategies. Ending the stigma around invisible conditions, Nate argues, begins with awareness, education, and a focus on empowering individuals to speak up for the tools and support they need.Takeaways:For Individuals:Communicate Your Needs: Don’t be afraid to ask for accommodations, but focus on describing the barriers you face rather than disclosing your diagnosis. Bring potential solutions if possible.Leverage Available Resources: Research programs and funding available for accommodations, such as government assistance, assistive technology, or workplace policies, to support your needs.Build a Support Network: Reach out to colleagues, HR, or other employees who have gone through similar situations for advice and emotional support.For Workplaces:Create a Safe Disclosure Environment: Encourage a culture where employees feel comfortable asking for accommodations by being open about the process and educating your leadership team on inclusion.Offer Flexible Accommodations: Be proactive in offering accommodations during hiring and onboarding, like ergonomic assessments or flexible work arrangements, to make employees feel supported from the start.Provide Inclusive Job Descriptions: Write job ads that focus on essential skills rather than unrealistic qualifications, and clearly state your willingness to accommodate from the interview stage onward.Nate Toves - BioNate is the Marketing Manager at Neil Squire, a non-profit organization that has been revolutionizing the lives of Canadians with disabilities since 1984 through accessible technology. NateSupport the showThanks for listening, I appreciate you!  Support the Show: https://www.buymeacoffee.com/timreitsmaWebsite: invisiblecondition.comSubscribe: invisiblecondition.com/subscribeSpotify: https://open.spotify.com/show/4kDTQ9eTFpWFDID9vsXFxWApple Podcasts: https://podcasts.apple.com/us/podcast/the-invisible-condition-podcast/id1703432562Social MediaInstagram: https://www.instagram.com/invisible_condition/YouTube: https://www.youtube.com/@Invisible_Condition

Send us Fan MailImagine going through life without the ability to burp. You might think it’s no big deal but did you know, on average, we burp 10-20 times a day to release the air we take in?In this episode, Henry shares his life with no-burp syndrome, also known as R-CPD. Henry talks about the physical and social challenges he faced, including countless doctor visits and misdiagnoses, until he finally found relief through an online community that led him to the right treatment.If you struggle with self-advocacy, this is for you! Henry talks about the importance of standing up for yourself in healthcare. He explains how his persistent research and determination helped him find a doctor who understood his condition and provided the procedure that changed his life. He talks about the balance between trusting medical professionals and doing your research to ensure you get the care you need.We also touch on the bigger picture of healthcare advocacy and the stigma surrounding invisible conditions. Henry shares his thoughts on when to seek treatment and the need for society to better understand and support those with invisible disabilities. By sharing stories like Henry’s, we aim to reduce stigma and encourage open and supportive conversations. This episode is not just informative—it’s an inspiring reminder of the power of perseverance and the importance of being your own advocate.Takeaways:Advocate for Yourself: Take an active role in your healthcare by doing your own research and speaking up about your condition. Your persistence can lead to better outcomes.Seek Second Opinions: Don’t hesitate to get another perspective if you feel your concerns aren’t being fully addressed. Questioning a diagnosis is a vital part of ensuring you receive the right care.Educate and Support: Help end the stigma around invisible conditions by educating yourself and offering support to others who live with them. Awareness is key to building a more understanding society.Informed Discussions: When discussing your condition with doctors, bring facts and research to ensure a thorough and informed conversation. This helps in making collaborative decisions about your health.Quality of Life Matters: Improving the quality of life for those with invisible conditions has significant positive effects on overall well-being, emphasizing the need for proper treatment and support.No-Burp Syndrome (Retrograde Cricopharyngeus Dysfunction, RCPD) - Defined:A rare condition where the muscle responsible for allowing air to be released from the stomach does not relax, making it impossible to burp. This can lead to significant discomfort, social embarrassment, and digestive issues due to the accumulation of air in the digestive tract.Bio: Henry L is a father and husband with two sons, and he is also the owner of a Golden Doodle. In his spare time,Support the showThanks for listening, I appreciate you!  Support the Show: https://www.buymeacoffee.com/timreitsmaWebsite: invisiblecondition.comSubscribe: invisiblecondition.com/subscribeSpotify: https://open.spotify.com/show/4kDTQ9eTFpWFDID9vsXFxWApple Podcasts: https://podcasts.apple.com/us/podcast/the-invisible-condition-podcast/id1703432562Social MediaInstagram: https://www.instagram.com/invisible_condition/YouTube: https://www.youtube.com/@Invisible_Condition

Send us Fan MailImagine travelling halfway across the globe to learn about a treatment that would benefit your child. Endless research, countless unanswered questions, and the frustration of feeling like you're the only one fighting for solutions. How do you keep going when the healthcare system falls short?In this episode, Jess Dove London, founder of Turnto.ai, shares her journey in seeking effective treatments for her child with cerebral palsy. Jess discusses the challenges of navigating the healthcare system, the importance of accessing reliable health information, and how her app helps individuals find daily health breakthroughs. She emphasizes the need for community support, vulnerability, and curiosity in advocating for oneself, and explores how AI tools can assist in uncovering answers to health-related questions. Takeaways:Health Information Access: Comprehensive health information is crucial for individuals with disabilities to make informed decisions about treatments.Community Support: Sharing knowledge within a community is vital for navigating the healthcare system and fostering advocacy.Turnto: Turnto.ai offers daily health breakthroughs, using technology to empower those with invisible conditions.Vulnerability in Advocacy: Vulnerability and curiosity are essential in advocating for oneself in the healthcare system.AI in Healthcare: AI tools provide valuable insights, simplifying healthcare navigation for individuals with disabilities.Ending Stigma: Ending stigma around invisible conditions requires belief, empathy, and strong community support.For her son’s condition, cerebral palsy, Turnto.ai has already discovered more treatments than anywhere else, including a handful that have truly changed his life. The platform is now expanding its reach to include conditions like Long COVID, ME/CFS, Parkinson’s and more.As we end every episode, we talk about how we can end the stigma surrounding invisible conditions through belief, empathy, and curiosity.Jess Dove London - BioJess founded Turnto after she was told countless times that there were “no treatment options” for her two sons with serious chronic medical conditions.However, after years of research, travel and investigating, Jess found a handful of treatments that helped her family tremendously.Most of these treatments were hidden in medical literature, some even low-cost and easy to apply.She knew many families, just like hers, were going through the same experience, unaware of the life-changing opportunities available to them.So she set on building Turnto, bringing together the latest technology, consumers and experts to solve this problem with the aim of bringing thousands to their next medical breakthrough quicker.https://www.turnto.ai/Turnto App: Daily breakthroughs for all health conditioSupport the showThanks for listening, I appreciate you!  Support the Show: https://www.buymeacoffee.com/timreitsmaWebsite: invisiblecondition.comSubscribe: invisiblecondition.com/subscribeSpotify: https://open.spotify.com/show/4kDTQ9eTFpWFDID9vsXFxWApple Podcasts: https://podcasts.apple.com/us/podcast/the-invisible-condition-podcast/id1703432562Social MediaInstagram: https://www.instagram.com/invisible_condition/YouTube: https://www.youtube.com/@Invisible_Condition

Send us Fan MailWhat advice would you offer someone who is struggling to advocate for themself?What does it truly mean to advocate for yourself, and why is it often such a challenging journey? Living with Crohn's and arthritis has taught me the critical importance of self-advocacy, and through this journey, I've come to understand that demanding what you need is essential for personal well-being. In today's journal entry, I share my personal struggles and observations, offering a candid look into how self-advocacy has shaped my life. Listen as past interviewees like Leah Seth, Deborah King, Matthew Sebastiani, Laura Lee McPherson, Julie Stamm, and Alicia share their insights on self-awareness, courage, privacy, education, and communication. I also discuss strategies such as understanding your core values, assuming positive intent, doing thorough research, and building emotional resilience.Building a supportive self-advocacy community is crucial. Inspired by Leah's quote, “Most people around you want you to be successful, and advocating for yourself is just letting them know what you need to make that happen," we'll explore how most people around us genuinely want to see us succeed, and that effective self-advocacy is all about communicating our needs to achieve that success. For listeners struggling with self-advocacy, I encourage you to reach out through my contact form at invisiblecondition.com, leave a comment, or connect with me on social media. If I can't assist directly, I'll guide you to exceptional invisible disability coaches who can. Tune in for empowering encouragement and actionable advice to navigate your challenges successfully.Support the showThanks for listening, I appreciate you!  Support the Show: https://www.buymeacoffee.com/timreitsmaWebsite: invisiblecondition.comSubscribe: invisiblecondition.com/subscribeSpotify: https://open.spotify.com/show/4kDTQ9eTFpWFDID9vsXFxWApple Podcasts: https://podcasts.apple.com/us/podcast/the-invisible-condition-podcast/id1703432562Social MediaInstagram: https://www.instagram.com/invisible_condition/YouTube: https://www.youtube.com/@Invisible_Condition

Send us Fan MailHave you ever wondered how to successfully navigate the workplace with an invisible disability? Join us as we chat with Debbie Pearmain, an HR expert and leadership development coach, who shares her invaluable insights on self-advocacy and building trust with your manager.Learn practical strategies to communicate your challenges and propose solutions, ensuring that individuals with invisible conditions can excel professionally. Debbie also discusses the broader context of disability inclusion, stressing the importance of equitable treatment and the elimination of biases in workplace culture.Debbie highlights the critical role of compassionate leadership and reflects on the importance of psychological safety and open communication in addressing performance issues. Gain insights into how companies can create engaging and inclusive work environments by showing genuine care and flexibility, which are essential for retaining and attracting top talent.Overcoming the fear to self-advocate is a journey worth undertaking. Debbie provides practical steps to build confidence in sharing personal challenges, starting with safe, trusting workplace relationships. Explore tools and resources such as the adapted Situation-Behavior-Impact (SBI) feedback model and websites like askjan.org and disclo.com to support your journey.This episode includes strategies and insights for employees and leaders alike, empowering you to create a more compassionate and inclusive workplace.Takeaways:Inclusive Environment: Disability inclusion requires a diverse and welcoming workplace.Psychological Safety: Trust is crucial for employees to disclose invisible conditions.Leadership Role: Leaders must create compassionate and supportive environments.Fear of Disclosure: Fear impacts well-being, necessitating understanding from leaders.Collaborative Performance: Performance management should remove barriers and support employees.Self-Acceptance: Self-acceptance and compassion are key to personal growth.Building Confidence: Overcoming fear involves starting with safe, gradual conversations.Ending Stigma: Ending stigma needs empathy, diversity, and inclusion.Difficult Conversations: Navigating tough talks requires self-reflection and open communication.Debbie Pearmain - Bio:Debbie has over 25 years of experience working with CEOs and leadership teams, facilitating organizational transformation for companies like Accenture, Telus Health, and One Stop HR. As a Flourishing Life and Workplace Coach with extensive training in Leadership Development and Emotional Intelligence, she excels in helping clients turn challenges into opportunities for growth and performance improvement.Contact Links:http://www.onestophr.caSupport the showThanks for listening, I appreciate you!  Support the Show: https://www.buymeacoffee.com/timreitsmaWebsite: invisiblecondition.comSubscribe: invisiblecondition.com/subscribeSpotify: https://open.spotify.com/show/4kDTQ9eTFpWFDID9vsXFxWApple Podcasts: https://podcasts.apple.com/us/podcast/the-invisible-condition-podcast/id1703432562Social MediaInstagram: https://www.instagram.com/invisible_condition/YouTube: https://www.youtube.com/@Invisible_Condition

Send us Fan MailWhat happens when the medical system fails to acknowledge your pain, and how do you find the strength to keep advocating for yourself? This episode promises an intimate and powerful conversation with Katie, founder of Revive and Thrive Coaching and host of "My Chronic Illness and Me" podcast. Katie takes us through her journey with endometriosis, where relentless self-advocacy became her lifeline amidst repeated dismissals by healthcare professionals. She shares the crucial role of finding a supportive community and how it transformed her experience from isolation to empowerment.Katie's story is not just about personal struggle but also about redefining what success means when living with a chronic illness. We unpack the emotional and psychological challenges of stepping away from a successful career to prioritize health and well-being. Katie's candid reflections on the societal pressures to remain productive and the profound relief of taking time to heal offer valuable insights for anyone dealing with similar issues. Whether finding the right specialist, enduring inconclusive surgeries, or celebrating small victories, Katie's experience underscores the necessity of persistence and self-care.Join us as we challenge the societal stigma surrounding chronic illnesses, particularly those predominantly affecting women. Katie opens up about the emotional toll of living with an invisible condition and the importance of honest communication in fostering understanding and support. We discuss strategies for balancing self-care with other life responsibilities and the power of storytelling in breaking down barriers. Tune in to be inspired by Katie’s resilience and learn how open conversations can cultivate a more compassionate and informed society.Katie Donlevie - BioEmpowering individuals facing chronic illness and pain challenges to reclaim their identity and thrive beyond survival mode.I work with individuals facing chronic illness and pain challenges to reclaim their identity and thrive beyond survival mode.Specializing in guiding people through transformative journeys, I help you rediscover yourself and re-engage in life outside of your condition. I am dedicated to helping you redefine success, bring your chronic illness back into harmony with the rest of your life, and stop fighting against your body every day.Through my podcast, “My Chronic Illness and Me,” I also hold space for insightful conversations with people dealing with chronic illness and pain to offer support and foster a sense of community amidst what is often an incredibly isolating experience.Ready to stop just surviving and start thriving? Let’s connect!https://www.reviveandthrivecoach.com/https://www.instagram.com/reviveandthrivecoaching/https://calendly.com/katie-donlevie/complimentary-coaching-interview?month=2024-06Support the showThanks for listening, I appreciate you!  Support the Show: https://www.buymeacoffee.com/timreitsmaWebsite: invisiblecondition.comSubscribe: invisiblecondition.com/subscribeSpotify: https://open.spotify.com/show/4kDTQ9eTFpWFDID9vsXFxWApple Podcasts: https://podcasts.apple.com/us/podcast/the-invisible-condition-podcast/id1703432562Social MediaInstagram: https://www.instagram.com/invisible_condition/YouTube: https://www.youtube.com/@Invisible_Condition

Send us Fan MailHey, it's Tim! Just wanted to share a bit about my recent adventures with Crohn's disease. So, I had a scope done recently and, surprise! Mild inflammation in multiple spots. Yeah, it's a bit frustrating, but I'm choosing to stay hopeful. After all, it’s not severe, and that's a win!In this short episode, I talk about hope, scopes, advocacy, and developing a muffin recipe while on prednisone. Let me tell you about my “manic muffins” story. When I was on a high dose of steroids, I couldn’t sleep. So, I started baking at 3 AM. My family eventually begged me to stop!Advocating for myself has been a huge part of this journey. After a massive bleed, I called my doctor and said, “Hey, I think I need an iron infusion.” Turns out, my levels were low enough to get it done quickly. Then, I pushed for a scope to understand what was going on. Living with chronic illness can be tough, but I choose hope and gratitude over frustration. It's better for my mental health, and it keeps me going. And remember, if your doctor isn’t giving you what you need, don't hesitate to get a second opinion. Your health matters!Hope this little update brings some encouragement your way. Keep advocating for yourself and stay hopeful!Link to muffin recipe: www.invisiblecondition.com/blog/tims-manic-berry-muffiis Support the showThanks for listening, I appreciate you!  Support the Show: https://www.buymeacoffee.com/timreitsmaWebsite: invisiblecondition.comSubscribe: invisiblecondition.com/subscribeSpotify: https://open.spotify.com/show/4kDTQ9eTFpWFDID9vsXFxWApple Podcasts: https://podcasts.apple.com/us/podcast/the-invisible-condition-podcast/id1703432562Social MediaInstagram: https://www.instagram.com/invisible_condition/YouTube: https://www.youtube.com/@Invisible_Condition

Send us Fan MailCan chronic migraines and concussions be as debilitating as severe strokes or daily dialysis? In this episode, I sit down with Dr. Briar Sexton, a dedicated physician from British Columbia, to dive into the profound impact these invisible conditions have on quality of life. We explore the tough realities of diagnosing and managing chronic migraines, often overlooked due to their daily occurrence. Dr. Sexton shares her expertise on potential triggers, the value of keeping a headache diary, and the crucial need for self-advocacy to get the right diagnosis and treatment.We also tackle the issue of misdiagnosis, which can lead to unnecessary anxiety. By delving into the psychological effects like anxiety and depression that come with chronic pain, we emphasize the importance of accurate diagnosis, especially with the new criteria introduced in May 2023. The episode highlights the complex challenges faced by concussion patients, especially those who were once very active, showing how these injuries can lead to broader physical and mental health issues.From practical management tips to medication options, this episode contains actionable advice. Discover the benefits of basic vitamin and mineral supplements, the surprising effectiveness of powdered ginger for acute headaches, and the importance of pinpointing and managing your triggers. We also discuss the critical role of patient advocacy, the barriers to accessing treatment, and the ongoing efforts to reduce the stigma surrounding invisible conditions. Takeaways:Chronic migraines involve severe, debilitating headaches that can occur daily.Keeping a headache diary helps identify and manage triggers.Many doctors may lack detailed knowledge about chronic migraines, so self-advocacy and seeking a second opinion from a specialist is crucial.Concussions are often overdiagnosed and misdiagnosed, leading to confusion and invalidation. The new diagnostic criteria for concussions aim to provide clearer guidelines.Sensitive and empathetic communication is essential when discussing diagnoses and changes with patients. Active rehabilitation and lifestyle changes are important for managing both concussions and migraines.Ending the stigma surrounding invisible conditions requires education and advocacy.Dr. Briar Sexton - Bio“I am grateful every day for the opportunity to work as an ophthalmologist. Vision is a precious commodity, and it is a pleasure to work with my patients to protect and care for their eyes. Staying on top of new treatments and maintaining state-of-the-art equipment is another source of pride for me at the clinic. I am active both in attending and teaching at Continuing Education events. Since 2010, I have been actively fundraising for the Foundation Fighting Blindness. The research projects they fund bring hope for a cure for many retinal diseases.”Dr. Briar Sexton is a liSupport the showThanks for listening, I appreciate you!  Support the Show: https://www.buymeacoffee.com/timreitsmaWebsite: invisiblecondition.comSubscribe: invisiblecondition.com/subscribeSpotify: https://open.spotify.com/show/4kDTQ9eTFpWFDID9vsXFxWApple Podcasts: https://podcasts.apple.com/us/podcast/the-invisible-condition-podcast/id1703432562Social MediaInstagram: https://www.instagram.com/invisible_condition/YouTube: https://www.youtube.com/@Invisible_Condition

Send us Fan MailYou have your first few seizures and people tell you not to share your diagnosis of epilepsy because they are afraid for you. Afraid of the potential shame and discrimination you will face. While this is well-intentioned, you do the opposite.In this podcast episode, we hear from Jon Tuteur, who shares his experiences of living with epilepsy after being diagnosed at 30. Jon talks about enduring over 500 seizures and undergoing three brain surgeries. Despite these challenges, he focuses on the positives that have emerged from his condition and emphasizes the importance of staying optimistic.Jon discusses how his journey has taught him about resilience, the real timeline of recovery, and the value of being open about one's condition. He highlights how being honest and vocal about his struggles has helped to build connections and foster support from others.The episode isn't just for those who have epilepsy. Jon's insights are universal, offering lessons on overcoming obstacles and the power of community support. His story is a testament to the strength found in vulnerability and the impact of sharing one's experiences to educate and reduce stigma around invisible conditions.Takeaways:Maintaining a Positive Mindset: Jon Tuteur emphasizes the importance of staying positive, despite the severe challenges posed by epilepsy. This positive outlook has helped him navigate through numerous medical procedures and life changes, highlighting that a positive mindset can be a powerful tool in dealing with any invisible condition.Open Conversations and Reducing Stigma: By sharing his personal experiences openly, Jon illustrates how such discussions can educate others and dismantle the stigma often associated with invisible conditions. He encourages everyone to be vocal and honest about their struggles to foster a more understanding environment.Curiosity and Understanding: Jon stresses the importance of curiosity and striving to understand what life is like for those with invisible conditions. He advocates for asking questions and learning from individuals' experiences to gain a deeper comprehension, rather than making assumptions based on limited or inaccurate information.Self-Advocacy: Jon’s journey shows the necessity of self-advocacy in managing our conditions, securing necessary medical care, and ensuring accommodations in the workplace. His proactive approach in both his personal and professional life serves as a model for others on how to advocate effectively for oneself.Asking Questions Over Making Assumptions: Consistent with his call for curiosity, Jon points out that making assumptions about someone’s condition can lead to misunderstandings and misrepresentations. He advises that asking questions to understand a person’s experience directly is far more supportive and informative.Jon is an Executive Coach, Facilitator, Speaker, Support the showThanks for listening, I appreciate you!  Support the Show: https://www.buymeacoffee.com/timreitsmaWebsite: invisiblecondition.comSubscribe: invisiblecondition.com/subscribeSpotify: https://open.spotify.com/show/4kDTQ9eTFpWFDID9vsXFxWApple Podcasts: https://podcasts.apple.com/us/podcast/the-invisible-condition-podcast/id1703432562Social MediaInstagram: https://www.instagram.com/invisible_condition/YouTube: https://www.youtube.com/@Invisible_Condition

Send us Fan MailWhen was the last time you had a conversation with your colleagues, friends or family about suicide awareness and prevention?  Today’s episode has a content warning as my guest and I talk about a complex and serious topic - Suicide awareness and prevention. CONTENT WARNING: This episode contains some sensitive content as we talk about suicide.Years ago, someone close to me came to me and said they wanted to end their life. I wasn’t prepared for the conversation. Years later, the conversion plays in my mind. They are still with us and I am grateful for that.Tara Adams, founder of Abridge Consulting, focusing on improving mental health and preventing suicide in the workplace, shares her approach to creating safe spaces to discuss how to talk sensitively about suicide with children, friends, and family, emphasizing the need for safe spaces for such conversations. She also highlights how common the thoughts of suicide are and how crucial the language we use plays in ending stigma. Our conversation will equip you with knowledge and strategies to support those around you and to apply what you learn to honour lived experiences.Takeaways:Talking about suicide is important to reduce stigma and provide support.Building a suicide-safer workplace involves reducing stigma and understanding individual roles.Creating a safe space for conversations about suicide is crucial, especially when talking to children.Language plays a significant role in ending stigma and promoting understanding.Honouring lived experiences and applying what you learn can make a difference in suicide prevention.Tara Adams - Bio:Tara Adams is the founder of Abridge Consulting, focusing on improving mental health and preventing suicide in the workplace. She helps organizations that want to invest in their employees' well-being and company culture. Tara started Abridge Consulting with the goal of connecting people experiencing mental health issues with the support they need faster. With extensive experience in training and employee wellness, Tara previously led mental health initiatives for 6,000 employees, enhancing their mental, physical, emotional, and financial well-being. Outside of work, Tara is a dedicated mother of two, an enthusiastic tennis player, and hopes to excel in senior tennis competitions in the future.Contact Links:LinkedIn - http://www.linkedin.com/in/taraabridgeconsultingLinkedIn - http://www.linkedin.com/company/abridge-consultingFacebook - https://www.facebook.com/tara.adams.abridgeconsultingTwitter - https://twitter.com/TaraAdamsCgySupport the showThanks for listening, I appreciate you!  Support the Show: https://www.buymeacoffee.com/timreitsmaWebsite: invisiblecondition.comSubscribe: invisiblecondition.com/subscribeSpotify: https://open.spotify.com/show/4kDTQ9eTFpWFDID9vsXFxWApple Podcasts: https://podcasts.apple.com/us/podcast/the-invisible-condition-podcast/id1703432562Social MediaInstagram: https://www.instagram.com/invisible_condition/YouTube: https://www.youtube.com/@Invisible_Condition

Send us Fan MailIn this episode, I'm joined by Ally, who shares her firsthand experience with long COVID. Since her diagnosis, Ally has faced numerous challenges, from persistent symptoms that just won’t go away to major life changes that have reshaped her daily routine and long-term plans. We talk about the impact of long COVID on her life, including using a wheelchair and the ways she's had to adapt her environment and expectations.Despite these hardships, Ally brings an incredible amount of positivity to our conversation. She talks about finding hope and acceptance in her new reality, and how these feelings have guided her through her toughest moments. It’s a straightforward and impactful discussion about living with a condition that's still largely misunderstood.Takeaways:Understand Long COVID: Gain a deeper understanding of long COVID from someone who lives with it every day.Learn about Resilience: Hear how Ally copes with significant life changes and what keeps her moving forward.Discover the Power of Positivity: Ally’s approach to maintaining a positive outlook despite her challenges can inspire anyone facing adversity.Explore Acceptance: Learn how acceptance can play a crucial role in managing chronic health conditions.Get Motivated by Community Support: Find out how connecting with others has helped Ally manage her symptoms and feel less alone.Tune in to gain insight into the real impacts of long COVID and how individuals like Ally navigate the complexities of their diagnosis with courage and determination."Ally's Bio:Ally is a young adult who has been living with Long Covid and subsequent diagnoses of POTS and ME/CFS since her one Covid infection during college in 2021. Her background in clinical research, passion for helping others, and newfound experience with invisible illness have led her to the health startup Turnto, where she's helping to build an app for the Long Covid community and eventually other health conditions.Support the showThanks for listening, I appreciate you!  Support the Show: https://www.buymeacoffee.com/timreitsmaWebsite: invisiblecondition.comSubscribe: invisiblecondition.com/subscribeSpotify: https://open.spotify.com/show/4kDTQ9eTFpWFDID9vsXFxWApple Podcasts: https://podcasts.apple.com/us/podcast/the-invisible-condition-podcast/id1703432562Social MediaInstagram: https://www.instagram.com/invisible_condition/YouTube: https://www.youtube.com/@Invisible_Condition

Send us Fan MailHave you ever felt like the world just doesn't see you for who you truly are? In this episode, Lindsay shares her experience living with autism. Lindsay explains how she navigated the challenges of being misunderstood and misdiagnosed until she found acceptance and began advocating for herself and others with autism. Her story is a powerful reminder that our differences should be celebrated, not just accepted.During our conversation, Lindsay talked about how music plays a role in her life, especially on difficult days. She finds that music helps manage her mood swings and anxiety, offering comfort when needed. Her determination and resilience shine as she discusses her efforts to educate and empower others about the daily challenges faced by people with invisible conditions like autism.Lindsay's journey is a reminder of the strength found in facing life's challenges and using personal experiences to inspire and educate others.Takeaways:Share Your Story: Embrace your experiences with autism or similar conditions and share them to foster understanding and support from others.Become an Advocate: Support autism awareness initiatives and engage in advocacy to enhance education and empowerment for those on the spectrum.Use Music for Wellness: Employ music as a therapeutic tool to manage stress and improve your emotional health.Develop Resilience: Focus on resilience by overcoming challenges learning from setbacks, and celebrating your achievements.Support Awareness Initiatives: Participate in platforms and events that raise awareness and promote inclusion for invisible conditions.Challenge Stigma: Work to change societal views on invisible conditions by advocating for respect and understanding, and fostering open discussions to reduce stigma.Lindsay Malkinson- BioI was diagnosed with autism at 11 years old, though I started feeling different when I was 9. Alongside my role as an advocate for others on the autism spectrum, I work with Amare as a brand builder, focusing on gut health, mental health, and overall wellness.A bit more about me: I’m a dog mom and love bringing positivity and light into the lives of others. I’m also grateful for every day, finding the good in each one, no matter the challenges. I truly enjoy my work, especially helping people feel their best from the inside out.I work at a daycare because I love spending time with kids. I’ve also written a chapter in a best-selling book titled "Absolute Vision." My academic achievements include recently earning a 4.0 GPA in my Early Childhood Education Assistant Certification. I’ve got big dreams, including speaking on stages about autism to educate and empower others.Life hasn’t been easy—I couldn’t walk for over a year and a half once, but giving up was never an option for me. I believe in resilience and always Support the showThanks for listening, I appreciate you!  Support the Show: https://www.buymeacoffee.com/timreitsmaWebsite: invisiblecondition.comSubscribe: invisiblecondition.com/subscribeSpotify: https://open.spotify.com/show/4kDTQ9eTFpWFDID9vsXFxWApple Podcasts: https://podcasts.apple.com/us/podcast/the-invisible-condition-podcast/id1703432562Social MediaInstagram: https://www.instagram.com/invisible_condition/YouTube: https://www.youtube.com/@Invisible_Condition

Send us Fan MailAre you someone who turns your toughest challenges into a force for positive change, not just for yourself but for others too? How do you find the strength to advocate for yourself and a more inclusive world, even when facing your invisible struggles?Manpreet lives with multiple concussions, Lyme disease and other invisible conditions. At a young age, she became focused on making an impact in this world and is doing just that. The founder of Veza Global, a Diversity, Equity, Accessibility, & Belonging consultancy, working with the UN, Manpreet is focused on impact.This episode explores how facing and sharing our struggles with invisible health issues can empower us and inspire change. It's about finding strength in vulnerability and the importance of advocating for a more understanding and inclusive world. Have a listen.Takeaways:Embrace Open Dialogue: Understand the value of discussing tough topics openly to increase understanding and empathy in all areas of life.Value Vulnerability and Honesty: See the strength in admitting when you're unsure and the power of honesty in building stronger connections.Recognize the Power of Early Experiences: Early challenges can shape resilience and determination for a fulfilling life.Appreciate Caregiver Support: Caregivers are crucial in overcoming health challenges and offering emotional support and confidence.Understand the Impact of Conditions: Recognize how conditions like concussions and Lyme disease can impact life and work, stressing the need for understanding and accommodations.Prioritize Self-Advocacy: Learn the importance of advocating for yourself and the role of medical help in managing conditions.Manpreet Dhillon- BioWith over 20 years of experience in leadership, coaching, human resources, and change management, Manpreet focuses on creating systemic change to address institutionalized inequalities through representation from the communities being served. As a settler, born in Canada with parents from India, and someone living with invisible disease, Manpreet is a powerful advocate for others who live with it too.Manpreet is a certified Personal and Executive Coach, Human Resources Professional, and Internal Auditor who uses her skills and expertise to create strong organizational cultures and provide economic empowerment to equity-deserving groups. Her experience in community development, knowledge transfer, project management, and gender mainstreaming sets her apart as an expert in the field. Manpreet ranked #15 globally on the 2020 EmPower Ethnic Minority Future Leaders list and is a contributing author to Chicken Soup for the Soul, Forbes, Thrive Global, and CHRP People Talk. She also serves as an Ambassador with the Women's Enterprise Center and was a Business Coach for the Entrepreneurs with Disabilities program. In Support the showThanks for listening, I appreciate you!  Support the Show: https://www.buymeacoffee.com/timreitsmaWebsite: invisiblecondition.comSubscribe: invisiblecondition.com/subscribeSpotify: https://open.spotify.com/show/4kDTQ9eTFpWFDID9vsXFxWApple Podcasts: https://podcasts.apple.com/us/podcast/the-invisible-condition-podcast/id1703432562Social MediaInstagram: https://www.instagram.com/invisible_condition/YouTube: https://www.youtube.com/@Invisible_Condition

Send us Fan MailNick Koschnik, a physicist and business founder didn't let dyslexia hold him back. Instead, he turned it into his strength, creating StoriedWork.com to help others communicate their thoughts and ideas.  We discuss how important it is to get help early on for dyslexia, and how great it is when people understand and accept everyone's unique way of thinking. Talking about why it's good to let people know you have dyslexia, how special reading programs can help, and how much difference a supportive friend, teacher, or leader can make.Nick shares his thoughts on staying positive and using what makes you different to deal with life's ups and downs. We also discuss some tools that can turn what you say into written words, making it easier to share your ideas. Listen as we support those with dyslexia and celebrate the strength found in sharing stories and coming together.Takeaways: Embrace Neurodiversity: Recognize and value the unique perspectives and strengths that come from different ways of thinking, including dyslexia. Encourage environments, both professional and personal, that appreciate neurodiversity as a source of innovation.Leverage Technology for Communication: Explore and integrate AI tools like StoriedWork.com to facilitate clearer communication and idea sharing, especially for those who may struggle with traditional writing methods. These tools can help articulate complex ideas and enhance creative expression.Resilience through Challenges: View obstacles not as insurmountable barriers but as opportunities for growth and learning. Nick's story shows that overcoming difficulties can lead to developing resilience, perseverance, and unique problem-solving skills.Advocate for Early Detection and Support: Awareness and early diagnosis of dyslexia can significantly impact individuals' lives, offering them the support and strategies they need to succeed. Advocate for screening and educational programs that accommodate diverse learning styles.Promoting an Inclusive Environment: Creating supportive and inclusive settings that recognize and cater to neurodiversity is important. Take proactive steps to implement accommodations and foster an understanding culture.Highlight and Celebrate Successes: Share and celebrate stories of individuals with dyslexia and other neurodiverse conditions. These narratives can inspire others and help reduce stigma, encouraging a more inclusive and supportive society.Nick Koshnick - Bio:I am a dyslexic entrepreneur.I have a PhD in Applied Physics from Stanford. When I was in my thirties, I started a new venture, raised money from Andreesen, Khosla Ventures, and Google, and sold it to a Fortune 200 company. Now I'm building a new company called "Storied" that helps people communicate their ideas.Communicating ideaSupport the showThanks for listening, I appreciate you!  Support the Show: https://www.buymeacoffee.com/timreitsmaWebsite: invisiblecondition.comSubscribe: invisiblecondition.com/subscribeSpotify: https://open.spotify.com/show/4kDTQ9eTFpWFDID9vsXFxWApple Podcasts: https://podcasts.apple.com/us/podcast/the-invisible-condition-podcast/id1703432562Social MediaInstagram: https://www.instagram.com/invisible_condition/YouTube: https://www.youtube.com/@Invisible_Condition

Send us Fan MailWhen Sydney Elaine Butler speaks, you can't help but be drawn into the raw and transformative power of their voice. As the founder of Accessible Creates, Sydney lives with autism, CPTSD, and fibromyalgia. Their conditions are not just a backdrop but a driving force behind their commitment to fostering disability-inclusive spaces. Their experiences bring hope, showcasing the balance between setting boundaries and leaning into self-care, all while pushing for change in professional settings that have for too long misunderstood and underserved those with invisible conditions.Our conversation takes us through navigating multiple health conditions, the nuances of Complex PTSD, and the impact of early intervention and accommodations for autism. Sydney's open-hearted sharing of the strategies that help manage their health—be it through self-care routines or setting firm personal boundaries—offers listeners a firsthand look at the strength required to choose oneself daily. But it's not just about surviving; it's about thriving and using one's voice to pave the way for inclusive work environments and societal recognition of individual normalcy.Sydney's story isn't just an individual triumph—it's a call for everyone who has ever felt marginalized or misunderstood. We wrap up with a powerful discussion on the necessity of self-advocacy and the creation of a compassionate support system.Sydney's journey is a testament to the resilience of the human spirit and the transformative power of community. Join us as we embrace the lessons and insights from someone who's reshaping the conversation on living with invisible conditions and changing the world, one inclusive step at a time.Takeaways:Self-Advocacy and Choosing YourselfThe Impact of Language and WordsEnding the Stigma Through Conversation and UnderstandingReflection and Personal GrowthCreating Inclusive EnvironmentsSupport and Understanding in Ending StigmaSydney Elaine Butler - BioIt is Sydney’s understanding that their professional purpose must be to ensure that everyone has the opportunity to be successful regardless of barriers in their way and that they must as professionals remove these barriers. Sydney conducts training and consulting for other companies on how to be more Accessible and Inclusive from a Human approach and how to recruit and retain more diverse individuals through the lens of Intersectionality/Human Resources as well as other areas of Diversity, Equity, and Inclusion in an authentic manner at the company they founded called Accessible Creates due to understanding the barriers that exist within the workplace for diverse individuals. Sydney is also a Founding Member of InHeartSight (IHS) which is a diverse community of professionals from across Canada filling the gap in existing services for recent women immigrants. Where they are on a mission to ensuSupport the showThanks for listening, I appreciate you!  Support the Show: https://www.buymeacoffee.com/timreitsmaWebsite: invisiblecondition.comSubscribe: invisiblecondition.com/subscribeSpotify: https://open.spotify.com/show/4kDTQ9eTFpWFDID9vsXFxWApple Podcasts: https://podcasts.apple.com/us/podcast/the-invisible-condition-podcast/id1703432562Social MediaInstagram: https://www.instagram.com/invisible_condition/YouTube: https://www.youtube.com/@Invisible_Condition

Send us Fan MailWhen the world demands high-speed living, can taking a moment to slow down help us speed up? Is there a root cause of anxiety and if so, what does that look like? Dr. Natasha Ghosh, a clinical counsellor, shares how the pressures of society can amplify our stress and how recognizing what's in our control can ultimately support our mental state.Anxiety isn't just an individual struggle; it ripples through our families, affecting even the smallest members. As Dr. Ghosh and I share stories, we discuss how our coping mechanisms, from the foods we crave to the devices we can't seem to put down, can inadvertently influence those around us. We also consider the power of sharing our anxieties, whether with a friend, a therapist, or the quiet confidant of nature and how these vulnerable exchanges can lead to healing. Breaking through the noise of today emphasizes the vitality of presentness and the potential locked within our breath.From the simple act of switching off notifications to the practice of breathwork, we highlight tools that invite calmness into our bodies and minds. Recognizing Anxiety's Signals: Understand that anxiety is a signal from our body urging us to adjust when things aren't right. Pay attention to these signals as a first step toward management.The Impact of Slowing Down: Actively create moments of stillness in your daily routine to significantly lower anxiety levels. This includes practices like turning off notifications and prioritizing self-care.Breathwork for Calmness: Learn and apply proper breathing techniques to calm the fight or flight response, a key strategy in reducing anxiety and building distress tolerance.Building Self-Trust: Develop a deep trust in oneself through practices that enhance your ability to cope with anxiety, such as recognizing and releasing tension in the body.The Role of Support: Never underestimate the importance of seeking professional help or supportive networks when anxiety becomes overwhelming.Mindful Practices and Self-Care: Embrace practical methods such as prioritizing moments of relaxation, practicing deep breathing, and consciously slowing down to manage anxiety effectively.Dr Natasha Ghosh is not your ordinary counsellor. With 20+ years of experience in psychology, a TEDx speaker and a dedicated educator, she is on a mission to empower others to live authentically, find clarity and make lasting change. Blending conventional and complementary therapies, Natasha's approach offers clients a unique path to deep healing and transformation.Natasha brings with her a wealth of knowledge, inspiring audiences to live with purpose in a way that suits them. Her methods have helped countless people find emotional grounding, peace and a renewed sense of self.Natasha is a mom of 2 girls who often wishes that not everything was a learning momeSupport the showThanks for listening, I appreciate you!  Support the Show: https://www.buymeacoffee.com/timreitsmaWebsite: invisiblecondition.comSubscribe: invisiblecondition.com/subscribeSpotify: https://open.spotify.com/show/4kDTQ9eTFpWFDID9vsXFxWApple Podcasts: https://podcasts.apple.com/us/podcast/the-invisible-condition-podcast/id1703432562Social MediaInstagram: https://www.instagram.com/invisible_condition/YouTube: https://www.youtube.com/@Invisible_Condition

Send us Fan MailGrief is a journey that many of us face, making us feel alone even though it's a common experience. This week, Deanne shares her deeply personal story of dealing with major losses: the death of her aunt, a miscarriage, her child's hospital stay, and changing jobs, all happening in just 45 days. She opens up about the unique way she found comfort through her podcast, "F'ing Up."This episode dives into the personal nature of grief and loss, highlighting that everyone handles it differently. We talk about the moments grief catches us off guard, challenging the idea that time heals all wounds. We discuss the importance of letting those around us know how they can support us best, whether we need a good cry or someone to just be there quietly with us.We acknowledge the deep emotions often kept hidden, the struggle to appear okay for the sake of our kids or socially, and how sharing our stories, while risky, can be freeing.Takeaways:Grief is a Personal Journey: Everyone feels and deals with grief differently. It's a part of life that doesn't just disappear over time.Society Struggles with Grief: People often try to offer quick fixes or might avoid talking about grief. It's hard to discuss, but sharing personal stories can help.Listening is Key: Being there for someone, just listening, is much more helpful than trying to solve their grief for them.Owning Your Grief: It's okay to not be okay. Taking action, like starting a project or asking for help, can be a step towards coping.The Importance of Support and Boundaries: While support from friends and family is crucial, it's also necessary to communicate what you need from them.Deanne Rhynard - BioDeanne Rhynard is a seasoned HR executive and startup advisor. She has an appreciation for understanding the human psyche and how that intersects with the career journey. Deanne hosts F'ing Up, a podcast dedicated to sharing the realities of the career journey through interviews with successful individuals, focusing on their tripping hazards along the way.Most recently, Deanne was Chief People Officer at Performio, a fast-growing sales compensation software platform. Previously, Deanne held the role of Chief People Officer at Olo, Inc. Under her leadership, Olo grew its employee base by over 30x, and executed a successful IPO and two acquisitions. Prior to COVID, Deanne operationalized a workforce that was 65% remote, creating a unique value proposition in the tech market.Deanne holds a Bachelor of Arts in Business from Walla Walla University. She lives in Washington State with her husband and three boys.https://www.linkedin.com/in/deannerhynard/https://www.finguppodcast.com/Support the showThanks for listening, I appreciate you!  Support the Show: https://www.buymeacoffee.com/timreitsmaWebsite: invisiblecondition.comSubscribe: invisiblecondition.com/subscribeSpotify: https://open.spotify.com/show/4kDTQ9eTFpWFDID9vsXFxWApple Podcasts: https://podcasts.apple.com/us/podcast/the-invisible-condition-podcast/id1703432562Social MediaInstagram: https://www.instagram.com/invisible_condition/YouTube: https://www.youtube.com/@Invisible_Condition

Send us Fan MailWhen Martin opened up about his late-recognized inattentive ADHD, it wasn't just a personal revelation—it was a story that resonated with many of us flying under the radar with our struggles. Our latest episode takes you through the ups and downs of his journey, from the draining work project to his diagnosis at 38, and the impact it has had on his life. Discover how Martin's candid conversation sheds light on the challenges of living with an invisible condition, the importance of community, and even the lighter moments like mixing up flight details that remind us we're all human.Navigating the waters of personal health in the workplace can be like walking a tightrope, balancing the need for transparency with the risks that may come. Martin and I unpack this delicate conversation, reflecting on my own experiences with vulnerability and the instrumental role of self-advocacy. Weaving in the complexities of ADHD with personal anecdotes, including those that involve family and the humorous nuances of daily life, this episode emphasizes the profound strength we summon when choosing to share our stories.Martin's role extends beyond his challenges to include nurturing an environment of openness with his children. Our conversation takes a turn towards the dynamics of relationships affected by ADHD and the critical importance of clear communication, even with the youngest in the family. This episode not only examines the convergence of fatherhood and personal growth but also invites you into a world where a candid, hearty exchange can be the very catalyst for embracing life's unpredictability with a spirited chuckle.TakeawaysThe Power of Community and SharingDisclosing an invisible condition to employers is a personal decisionSelf-Advocacy and Personal GrowthImpact on Family DynamicsThe Dual Nature of DiagnosisMartin Hauck - BIOMartin's coach recently helped him identify his purpose and although it's not finished, the current draft looks and sounds like this:Build cool things, with cool people and help people believe in themselves or find what they're looking for.For the first decade of his career, he helped contractors and manufacturers find the parts they needed to keep their businesses running smoothly.For the last decade of his career, he's helped tech companies like Rangle, Stackadapt, Coinsquare and Caseware find the people they need to grow and scale.And now, (as of March 2023) he's re-joined the world of entrepreneurship by continuing to grow The People People Group (a 5,000 HR/Recruitment Slack community) and launching Purple Umbrella (a fractional People Ops consultancy) with his business partner Monica Sarkar.In between all that, he's a geeky dad and ever-improving husband who runs on espresso and is always exploring something new who can talk your ear off about crypto, aliens, VRSupport the showThanks for listening, I appreciate you!  Support the Show: https://www.buymeacoffee.com/timreitsmaWebsite: invisiblecondition.comSubscribe: invisiblecondition.com/subscribeSpotify: https://open.spotify.com/show/4kDTQ9eTFpWFDID9vsXFxWApple Podcasts: https://podcasts.apple.com/us/podcast/the-invisible-condition-podcast/id1703432562Social MediaInstagram: https://www.instagram.com/invisible_condition/YouTube: https://www.youtube.com/@Invisible_Condition

Send us Fan MailConsider donating today: https://www.buymeacoffee.com/timreitsmaSummary:In this episode, Tim Reitsma talks with Joshua Peterson about the realities of living with Crohn's disease, spotlighting the crucial role of advocacy and the need for tailored workplace accommodations. They share personal stories that underscore the strength found in building community and the transformative power of speaking out. Joshua emphasizes the significance of embracing one's story and advocating for oneself. He also highlights the role of employers in creating inclusive and supportive environments for employees with disabilities. From navigating the challenges of invisible conditions to empowering others to advocate for their needs, this conversation sheds light on the intersection of personal experience and collective action. Join us as we explore how embracing our stories can lead to meaningful change and support for everyone living with chronic illness, disabilities, and diseases, both apparent and non-apparent.Takeaways:Shared Experiences Connect: Tim and Joshua's shared experiences with Crohn's disease form the foundation for a deeply relatable and insightful discussion, emphasizing the importance of connection and support among those with invisible conditions.Advocacy and Workplace Accommodations: Joshua's work in HR and his advocacy for workplace accommodations highlight the critical need for understanding and support for employees with disabilities, showcasing how technology like Disclo can bridge gaps between employees' needs and employers' capabilities.The Role of Faith: Both speakers touch on the role of faith in their lives, illustrating how personal beliefs can offer strength and a sense of community, especially when facing life's challenges.Impact of Invisible Conditions on Life and Work: The conversation sheds light on the profound impact invisible conditions like Crohn's disease can have on every aspect of life, including career development, family dynamics, and personal well-being.Importance of Self-Advocacy: Joshua's story underscores the importance of self-advocacy, especially in seeking accommodations and understanding rights within the workplace. It serves as a powerful reminder of the individual's role in managing their condition and advocating for their needs.Empowerment Through Sharing Stories: Both Tim and Joshua advocate for sharing personal stories to empower others, reduce stigma, and foster a supportive community for those living with invisible conditions. Their discussion highlights how storytelling can be a powerful tool for change and connection.This episode not only provides valuable insights into living and working with Crohn's disease but also offers inspiration and practical advice for those navigatingSupport the showThanks for listening, I appreciate you!  Support the Show: https://www.buymeacoffee.com/timreitsmaWebsite: invisiblecondition.comSubscribe: invisiblecondition.com/subscribeSpotify: https://open.spotify.com/show/4kDTQ9eTFpWFDID9vsXFxWApple Podcasts: https://podcasts.apple.com/us/podcast/the-invisible-condition-podcast/id1703432562Social MediaInstagram: https://www.instagram.com/invisible_condition/YouTube: https://www.youtube.com/@Invisible_Condition

Send us Fan MailConsider donating today: https://www.buymeacoffee.com/timreitsmaSummary:In this episode of the "Invisible Condition" podcast, host Tim Reitsma talks with Angel, a registered nurse from British Columbia, who courageously shares her journey through recurrent pregnancy loss. Angel opens up about the emotional rollercoaster and physical toll these experiences have taken on her and her family. Her story transitions into a broader discussion on the invisible nature of miscarriage, highlighting the stigma and silence that often surrounds this painful subject. Angel's insights reveal the hurtful and insensitive comments that exacerbate the suffering of those grieving, underscoring a significant societal understanding and compassion gap.Moving from personal narrative to advocacy, Angel discusses how her experiences fueled a transition in her career towards providing specialized support for women enduring miscarriage, pregnancy after loss, and the postpartum period. She emphasizes the importance of open conversations, education, and awareness to dismantle the stigmas associated with pregnancy loss. Angel also touches on loss's profound impact on both parents, advocating for the need to check in on families as a whole. Angels shares her vision for a future where pregnancy loss is normalized, and individuals feel safe to share their experiences, fostering a community of support and understanding that acknowledges and honours the complexity of navigating pregnancy loss.This episode serves as a powerful reminder of the impact of miscarriage and the importance of open conversations, compassionate support, and collective action toward healing and awareness.Takeaways:Recurrent Pregnancy Loss is a Shared Journey: Angel's story highlights that the journey of miscarriage and pregnancy loss is not only a physical and emotional challenge for the individual but also deeply affects partners and families, underscoring the need for collective support and understanding.Breaking the Silence: The conversation emphasizes the importance of talking openly about miscarriage to combat the stigma and discomfort that often accompanies this experience. Sharing stories can create a more compassionate and informed society.Compassionate Support is Crucial: Angel discusses the significance of receiving and offering compassionate support during times of loss, including simple gestures like checking in, listening, and acknowledging the pain and loss experienced by individuals and families.Awareness and Education Can Change Perceptions: By educating ourselves and others about the realities of pregnancy loss, we can shift societal perceptions, reduce stigma, and foster a more supportive environment for those affected.Naming and Remembering Lost Babies: Angel shares how naming her angel babies was an integralSupport the showThanks for listening, I appreciate you!  Support the Show: https://www.buymeacoffee.com/timreitsmaWebsite: invisiblecondition.comSubscribe: invisiblecondition.com/subscribeSpotify: https://open.spotify.com/show/4kDTQ9eTFpWFDID9vsXFxWApple Podcasts: https://podcasts.apple.com/us/podcast/the-invisible-condition-podcast/id1703432562Social MediaInstagram: https://www.instagram.com/invisible_condition/YouTube: https://www.youtube.com/@Invisible_Condition

Send us Fan MailSummary:Dr. Maureen Michele Petersen discusses her book 'Reclaiming Life, A Guide for Parents of Chronically Ill Children' and the motivation behind writing it. She shares her personal experiences as a mother advocating for her chronically ill child and the importance of effectively disagreeing with medical professionals. We talk about advocacy and how to get curious when a patient isn’t confident with what the doctor is saying.She also highlights the power of journaling, gratitude, and exercise in maintaining mental and emotional well-being. The conversation concludes with a discussion on ending the stigma surrounding invisible conditions.Takeaways:Emotional Healing Through Writing: Dr. Petersen discusses the therapeutic process of writing her book and how documenting her family's journey provided significant emotional healing for herself, and aims to assist others going through similar experiences.Advocating for a Chronically Ill Child: Dr. Petersen emphasizes the importance of advocacy in the healthcare setting, sharing her insights as both a physician and a parent. She offers valuable advice on how to communicate effectively with medical professionals without entering conversations as confrontations but rather as collaborative discussions. Disagreements with medical professionals can be approached as conversations rather than battles, fostering trust and partnership. Advocacy requires courage and curiosity, both for parents advocating for their children and patients advocating for themselves.The Power of Emotional Control: We discuss the significance of managing emotions when advocating for a loved one. Dr. Petersen reflects on her experiences and stresses the importance of approaching situations with curiosity and an open mind to facilitate constructive dialogue.Asking for and Accepting Help: A key theme is the challenge caregivers face in asking for help. Dr. Petersen discusses the importance of acknowledging when support is needed and how accepting help can be a strength, not a weakness. This also allows others the opportunity to contribute positively to your journey.Personal Growth and Resilience: Dr. Petersen shares her journey towards personal growth and resilience, learned through the challenges of her daughter's health issues. She talks about the importance of self-care, including maintaining a morning routine, journaling, and exercising, to manage stress and avoid feeling overwhelmed.This episode offers a profound look into the complexities of caring for someone with a chronic illness, providing practical advice, emotional support, and encouragement for caregivers to advocate effectively and take care of themselves in the process.Dr. Maureen Michele Petersen - BioMaureen Michele Petersen, MD is an award-winning leader, life coach, author, and physician. As a general pediatrician and allergisSupport the showThanks for listening, I appreciate you!  Support the Show: https://www.buymeacoffee.com/timreitsmaWebsite: invisiblecondition.comSubscribe: invisiblecondition.com/subscribeSpotify: https://open.spotify.com/show/4kDTQ9eTFpWFDID9vsXFxWApple Podcasts: https://podcasts.apple.com/us/podcast/the-invisible-condition-podcast/id1703432562Social MediaInstagram: https://www.instagram.com/invisible_condition/YouTube: https://www.youtube.com/@Invisible_Condition

Send us Fan MailSummary:Katherine McCord discusses the power of vulnerability and the impact of sharing your story. She emphasizes the importance of creating a safe space for vulnerability in the workplace and the need for accommodations to be standard options. Katherine also highlights the challenges of dealing with nosy questions and unsolicited advice. She shares her personal experiences with invisible conditions and the frustration of body changes. Finally, she discusses the unique perspective of individuals with chronic conditions in navigating the medical system. Katherine shares her experiences living with multiple chronic conditions, including Mast Cell Activation Syndrome (MCAS) and anaphylaxis. She emphasizes the importance of finding the right doctor and building a strong relationship with them. Katherine also discusses the challenges of living with MCAS and the unpredictable nature of triggers. The conversation concludes with a discussion on ending the stigma surrounding invisible conditions and embracing vulnerability and curiosity.Katherine lives with:Obsessive Compulsive Disorder (OCD)Bipolar Disorder Misophonia: A condition where certain sounds can trigger emotional or physiological responses.A Neurological Condition: a condition where her neurons don't function well, leading to drum solo heartbeats and seizure activities that are like mini-strokes or Transient Ischemic Attacks (TIAs).Mast Cell Activation Syndrome (MCAS): an anaphylactic response to various triggers.Bladder Disorder: limiting the size of the bladderCOPD (Chronic Obstructive Pulmonary Disease): developed COPD after having COVID-19 twice.Takeaways:Vulnerability can lead to personal growth, improved relationships, and psychological safety.Creating a safe space for vulnerability in the workplace can lead to better communication, understanding, and support.Respect boundaries and avoid asking nosy questions or giving unsolicited advice about someone's invisible condition.Living with invisible conditions can be challenging and may involve body changes and navigating the medical system.Accommodations for individuals with invisible conditions should be standard options to promote inclusivity and accessibility. Finding the right doctor is crucial for managing chronic conditions effectively.Living with MCAS can be challenging due to the unpredictable nature of triggers.Ending the stigma surrounding invisible conditions requires universal design, flexibility, and responding with curiosity instead of ego.Embracing vulnerability and sharing our stories can help break down barriers and create understanding.Kathrine McCord - BioFrom being the little girl who played HR (even firing her own mother!) to the travelling People Operations entrepreneur and international speaker that she is noSupport the showThanks for listening, I appreciate you!  Support the Show: https://www.buymeacoffee.com/timreitsmaWebsite: invisiblecondition.comSubscribe: invisiblecondition.com/subscribeSpotify: https://open.spotify.com/show/4kDTQ9eTFpWFDID9vsXFxWApple Podcasts: https://podcasts.apple.com/us/podcast/the-invisible-condition-podcast/id1703432562Social MediaInstagram: https://www.instagram.com/invisible_condition/YouTube: https://www.youtube.com/@Invisible_Condition

Send us Fan MailSummary:Tisha Foster shares her journey with Stiff Person Syndrome and how she has overcome the challenges it presents. She discusses her determination to live life to the fullest and not let her condition define her. Tisha emphasizes the importance of vulnerability and sharing one's story to raise awareness and end the stigma surrounding invisible conditions. In this conversation, Tim Reitsma and Tisha discuss Tisha's experience with Stiff Person Syndrome and her journey with God. They emphasize the importance of understanding and accommodating individuals with chronic conditions, challenging the notion of what is considered 'normal.' They also highlight the need for education to combat stigma and provide resources for learning about Stiff Person Syndrome. The conversation concludes with Tisha sharing her plans for future books and Tim expressing gratitude for the support and encouraging listeners to continue spreading awareness.Takeaways:Living with an invisible condition requires strength and determination.Sharing one's story and being vulnerable can help raise awareness and end the stigma surrounding invisible conditions.Support and understanding from others are crucial for individuals living with invisible conditions.Education and advocacy are key to improving the lives of those with invisible conditions. Normalcy is subjective and can vary from person to person, especially when living with a chronic condition.Education is crucial in combating stigma and promoting understanding of rare conditions like Stiff Person Syndrome.Advocacy and sharing personal stories can help raise awareness and support for individuals with chronic conditions.Continued support and engagement from listeners are essential in spreading awareness and ending the stigma surrounding chronic illnesses.Stiff Person Syndrome Defined:Stiff Person Syndrome (SPS) is a rare neurological disorder characterized by fluctuating muscle rigidity and spasms, predominantly affecting the trunk and limbs. This condition is marked by heightened sensitivity to stimuli such as noise, touch, and emotional distress, which can trigger muscle spasms. SPS is believed to be autoimmune in nature, involving an abnormal immune response that may target specific proteins in the brain and spinal cord. The syndrome often leads to significant impairment in movement and can be associated with debilitating pain and anxiety, profoundly impacting the quality of life. Diagnosis is complex, involving clinical evaluation, antibody testing, and response to treatment, as there is no definitive diagnostic test. Management of SPS typically includes a combination of medication, physical therapy, and stress-reduction techniques, tailored to the individual's symptoms and needs.Tisha Foster - BioTisha Foster AKA The Bullhorn in Stilettos is a mother, author, ex-model and avid speaker for Support the showThanks for listening, I appreciate you!  Support the Show: https://www.buymeacoffee.com/timreitsmaWebsite: invisiblecondition.comSubscribe: invisiblecondition.com/subscribeSpotify: https://open.spotify.com/show/4kDTQ9eTFpWFDID9vsXFxWApple Podcasts: https://podcasts.apple.com/us/podcast/the-invisible-condition-podcast/id1703432562Social MediaInstagram: https://www.instagram.com/invisible_condition/YouTube: https://www.youtube.com/@Invisible_Condition

Send us Fan MailHiring someone with a disability is a risk and a liability so we try not to go there. People with disabilities don’t perform as well so we avoid hiring someone with a disability.Guess what? You most likely have people in your organization who live with a disability, you just can’t see it. It’s invisible or non-apparent. So, today we dive into the often unexplored and undervalued world of employment for people with disabilities. Myles Wallace is a disability inclusion partner at Peak Performers and a passionate board game designer. Myles brings a unique blend of professional expertise and personal experience to our conversation, offering valuable insights into the intersection of disability and employment. His journey, marked by profound hearing loss since infancy, is a testament to overcoming barriers and finding fulfillment both in a career and personal passions. This episode is going to challenge perceptions and inspire as we explore the nuances of creating inclusive work environments and the transformative power of acknowledging and accommodating disabilities in the professional world. Whether you're an employer, a job seeker, or simply someone looking to understand more about this vital topic, this conversation with Myles is a must-listen.SummaryMyle and Tim’s conversation explores the topic of employment for people with disabilities. Our guest, Myles Wallace, shares his personal experience with disability and his work as a disability inclusion partner. The conversation covers bias and discrimination in the workplace and the benefits of hiring people with disabilities. It also provides advice for job seekers with disabilities and encourages businesses to create inclusive environments and hire people with disabilities.TakeawaysCreating an inclusive workplace environment benefits both employees and businesses.Bias and discrimination can be overcome through education, open communication, and a willingness to learn.Hiring people with disabilities can lead to increased profitability, productivity, and employee retention.Job seekers with disabilities should feel empowered to disclose their disability and ask for accommodations.Businesses should actively seek to hire people with disabilities and create inclusive hiring practices.Contact Links:Website - peakperformers.orgLinkedIn - Myles WallaceResources:Peak Performers - A nonprofit staffing agency where every job is an opportunity.NEARLY HALF OF ACCOMMODATIONS FOR DISABLED WORKERS HAVE NO COSTSupport the showThanks for listening, I appreciate you!  Support the Show: https://www.buymeacoffee.com/timreitsmaWebsite: invisiblecondition.comSubscribe: invisiblecondition.com/subscribeSpotify: https://open.spotify.com/show/4kDTQ9eTFpWFDID9vsXFxWApple Podcasts: https://podcasts.apple.com/us/podcast/the-invisible-condition-podcast/id1703432562Social MediaInstagram: https://www.instagram.com/invisible_condition/YouTube: https://www.youtube.com/@Invisible_Condition

Send us Fan MailI have a lot of thoughts swirling around my mind. While there are many ways to release these thoughts, I thought to myself, “Why not record them and share them publicly.” It already feels like someone is about to find my journal, and my private thoughts, and start reading. But I decided, that’s alright! These are my thoughts, and maybe, perhaps, they resonate with you. Maybe they drive you to action or perhaps they make you stop and think. Or, maybe you dismiss them because they are nonsense! My goal is to release a mini-podcast (and eventually a video) every Friday. These journal entries will be less than 10 minutes. I have to time-box things because I know I can ramble on!Let me know your feedback! And perhaps if you have random thoughts about invisible conditions, send me your audio and I can publish it!Donate today, please! https://www.buymeacoffee.com/timreitsmaSummaryIn this episode, I discuss the fear I’ve been experiencing while working on the Invisible Condition podcast. I acknowledge the fear of discrimination and rejection that many people with invisible conditions face when sharing their stories. Despite my fears, I am determined to bring more stories into the world and end the stigma surrounding invisible conditions. Reflecting on my past tendency to quit and run from difficult situations, I express hope for a future where it is okay to talk about the challenges of living with invisible conditions. Let’s overcome fear and reach out for support.TakeawaysFear of discrimination and rejection often prevents people with invisible conditions from sharing their stories.It is important to push through fear and continue to bring awareness to invisible conditions.Creating a future where it is okay to talk about the challenges of living with invisible conditions is crucial.Overcoming fear requires determination, hope, and support from others.Let me know your feedback! And perhaps if you have random thoughts about invisible conditions, send me your audio and I can publish it!Support the showThanks for listening, I appreciate you!  Support the Show: https://www.buymeacoffee.com/timreitsmaWebsite: invisiblecondition.comSubscribe: invisiblecondition.com/subscribeSpotify: https://open.spotify.com/show/4kDTQ9eTFpWFDID9vsXFxWApple Podcasts: https://podcasts.apple.com/us/podcast/the-invisible-condition-podcast/id1703432562Social MediaInstagram: https://www.instagram.com/invisible_condition/YouTube: https://www.youtube.com/@Invisible_Condition

Send us Fan Mail** Please consider donating to keep the show going** Head to https://www.buymeacoffee.com/timreitsma to learn more! Summary:In this episode, Alicia shares her journey of living with OCD and seeking a diagnosis. She discusses the lack of awareness and recognition of mental illness in the past, as well as the importance of sharing her story to break down stigmas. Alicia also addresses the misunderstanding of OCD and the misuse of the term 'OCD' in everyday language. She emphasizes the need for education and advocacy to end the stigma surrounding invisible conditions. Alicia encourages individuals who suspect they may have a mental illness to seek professional help and shares her hope for a more accepting and understanding society.Takeaways:Seek professional help if you suspect you may have a mental illness.Educate yourself and others about the realities of living with OCD and other invisible conditions.Challenge and correct language that perpetuates stigma and misunderstanding.Share your story to break down stigmas and create a more accepting and understanding society.   Thank you for listening to the Invisible Condition podcast, a show where we talk about unusually normal things to end the stigma and empower voices. The term invisible condition is inclusive of non-apparent disabilities, diseases, and illnesses. I’m Tim Reitsma.I wanted to say thank you to everyone who has donated to keep the invisible condition going. If you love what we are doing, and would like to support, please give the podcast a rating and comment, share with friends and family and if you have the means, please consider donating. Head to www.invisiblecondition.com to learn more.Alicia's Contact Links:Website - 38andkip.comLinkedIn - Alicia DisantisInstagram - @38andkipYouTube - 33 & KipResources:International OCD FederationLearn about OCDBeyondOCD.orgAlicia Disantis - BioAlicia Disantis is a traditional fine artist turned brand strategist, graphic designer, and writer. Her studio, 38th & Kip, helps companies who are doing good in the world connect with their customers throughpowerful words and memorable images.Alicia is inspired by retro design, Scandinavian minimalism, and bold colors. She is an active participant in the fine arts and exhibits her photos and illustrations in galleries across the United States. In addition, ASupport the showThanks for listening, I appreciate you!  Support the Show: https://www.buymeacoffee.com/timreitsmaWebsite: invisiblecondition.comSubscribe: invisiblecondition.com/subscribeSpotify: https://open.spotify.com/show/4kDTQ9eTFpWFDID9vsXFxWApple Podcasts: https://podcasts.apple.com/us/podcast/the-invisible-condition-podcast/id1703432562Social MediaInstagram: https://www.instagram.com/invisible_condition/YouTube: https://www.youtube.com/@Invisible_Condition

Send us Fan MailSummaryTim reflects on the purpose and vision of the Invisible Condition podcast, which aims to elevate voices and end the stigma surrounding invisible conditions. He shares his journey of overcoming health challenges and the birth of the podcast. The importance of reflection and the power of sharing stories are emphasized. The host envisions building Invisible Condition as a nonprofit and bringing conversations about inclusion and accommodations into workplaces and schools. The goal is to create a society where invisible conditions are embraced and met with empathy and compassion.TakeawaysReflection is a powerful tool for personal growth and envisioning the future.Sharing stories can create meaningful connections and drive social change.Building Invisible Condition as a nonprofit aims to bring conversations about inclusion and accommodations into workplaces and schools.The goal is to create a society where invisible conditions are embraced and met with empathy and compassion.AboutInvisible Condition is a non-profit digital media company empowering voices to remove the stigma attached to Invisible Conditions and drive social change.What is an “invisible condition”?An invisible condition is a non-apparent illness or health condition (physical or mental) that isn’t seen from the outside. This may include, but is not limited to autoimmune disorders, mental illness, neurodiverse conditions, chronic pain or fatigue, trauma, cancers, and brain injuries.Invisible condition is inclusive of invisible illness, invisible disability, and invisible disease.Yes, it really is! I bet you know someone who lives with an invisible condition. Or perhaps you do.Dealing with an invisible condition (or multiple ones) can often feel lonely and isolating.You might prefer to keep your problems hidden, especially if you have experienced discrimination or judgment in the past when you have tried to talk about the condition you live with.As a caregiver, you might experience anxiety, anger or exhaustion—but feel guilty about expressing that to the people around you.If you are a friend, co-worker, or relative of someone who lives with an invisible condition, you might feel uncomfortable about asking questions.When you listen to this podcast, you’ll see that the guests really do “get it”.They are everyday people who have overcome their fear of sharing, in order to help you feel seen, supported, and empowered. By sharing their stories, they hope to create a more compassionate and inclusive society.Each episode will leave you encouraged, hopeful, and inspired to step out of fear and embrace your normal.Support the showThanks for listening, I appreciate you!  Support the Show: https://www.buymeacoffee.com/timreitsmaWebsite: invisiblecondition.comSubscribe: invisiblecondition.com/subscribeSpotify: https://open.spotify.com/show/4kDTQ9eTFpWFDID9vsXFxWApple Podcasts: https://podcasts.apple.com/us/podcast/the-invisible-condition-podcast/id1703432562Social MediaInstagram: https://www.instagram.com/invisible_condition/YouTube: https://www.youtube.com/@Invisible_Condition

Send us Fan MailSummaryIn this episode, Felix Chan shares his journey of being diagnosed with chronic myeloid leukemia after a routine eye exam. He discusses the shock of the diagnosis, the challenges of living with the disease, and the importance of vulnerability and community support. Felix emphasizes the power of choice and encourages listeners to be proactive in their own lives. He also highlights the importance of empathy and understanding, as everyone is fighting a battle that others may not know about. Overall, Felix's story is a testament to the resilience and hope that can be found in the face of adversity.TakeawaysVulnerability unlocks vulnerability, and sharing our stories can lead to deeper connections and support.Living with an invisible condition requires being intentional with our choices and not just doing things because we feel we should.Everyone is fighting a battle that others may not know about, so it's important to approach others with empathy and compassion.Seeking counseling and support groups can be helpful in navigating the challenges of living with an invisible condition.Sharing our stories and experiences can inspire and provide hope to others who may be going through similar struggles.Felix Chan - BioFelix has spent over a decade in the non-profit sector with a specific focus on mentoring, leadership coaching and spiritual development for university students. He currently leads a team serving students at UBC and SFU with faith-based organization Power to Change. He is a cancer survivor, having been diagnosed with chronic myeloid leukemia at the age of 27. In remission since 2017, he is grateful to volunteer as a peer mentor with the Leukemia and Lymphoma Society by providing encouragement, care and coping strategies to fellow patients at all stages of their cancer journey. Felix’s leadership experience and health challenges have shown him the importance of empathy, pursuing faith in community, and the value of being led by a strong “why”. He is passionate about creating space for honest conversations, having seen countless times how leading with vulnerability unlocks vulnerability in others.  Felix is incredibly grateful for his wife Jessica who has been steadfast by his side through all his health challenges. He enjoys playing Lego and Pokemon with their sweet daughters Abby, Ellie and Naomi. Felix’s hobbies include training jiu-jitsu and all things Lord of the Rings. Links:Website - Felix and Jessica with Power to Change LinkedIn - Felix ChanInstagram -  Felix ChanResources:Leukemia and Lymphoma SocietySupport the showThanks for listening, I appreciate you!  Support the Show: https://www.buymeacoffee.com/timreitsmaWebsite: invisiblecondition.comSubscribe: invisiblecondition.com/subscribeSpotify: https://open.spotify.com/show/4kDTQ9eTFpWFDID9vsXFxWApple Podcasts: https://podcasts.apple.com/us/podcast/the-invisible-condition-podcast/id1703432562Social MediaInstagram: https://www.instagram.com/invisible_condition/YouTube: https://www.youtube.com/@Invisible_Condition

Send us Fan MailWhat does it mean to be a caregiver to someone who lives with an Invisible Condition? What happens when both you and your partner live with an invisible condition and are needed as each other's caregiver?Without support, it's incredibly hard to navigate life, both as a caregiver and as someone who lives with an invisible condition.In this episode, Tim and Tania Reitsma share personal stories of how they have cared for each other, how they see themselves as a caregiver, and how they have supported themselves when life is out of control.You will hear how Tania navigated three years of Tim's out-of-control Crohn's Disease, how prednisone affected not only Tim but Tania as well, and how she supported herself in this strenuous time.The advice Tania and Tim give is impactful! Make sure you have a network of people you can count onFind out what grounds you and lean into thatVent to people who listenFocus on today, tomorrow will worry about itselfPrednisone is no joke!Related articles:Resilience ArticleTania's contact info:Website - Steveston PeopleInstagram -  Steveston PeoplePodcast - Spotify & AppleEpisode TopicsTania’s diagnosis journey with ankylosing spondylitis.Tim found out he was too sick for surgeryHow Tania wasn’t surprised as Tim was so sickTania’s arthritis flared shortly after giving birth and that affected her physically and mentallyHow Tim cared for Tania and their newbornTim’s manic state and how Tania remained calmThe importance of having someone to vent to and not give adviceFinding a community of supportOpening up even when you don’t want to admit you need help and supportAs a caregiver, finding the support you need is equally or more importantSupport the showThanks for listening, I appreciate you!  Support the Show: https://www.buymeacoffee.com/timreitsmaWebsite: invisiblecondition.comSubscribe: invisiblecondition.com/subscribeSpotify: https://open.spotify.com/show/4kDTQ9eTFpWFDID9vsXFxWApple Podcasts: https://podcasts.apple.com/us/podcast/the-invisible-condition-podcast/id1703432562Social MediaInstagram: https://www.instagram.com/invisible_condition/YouTube: https://www.youtube.com/@Invisible_Condition

Send us Fan MailSelf-Compassion Defined: “Self-compassion is simply the process of turning compassion inward. We are kind and understanding rather than harshly self-critical when we fail, make mistakes or feel inadequate. We give ourselves support and encouragement rather than being cold and judgmental when challenges and difficulty arise in our lives”. - self-compassion.orgContact Links:Website - Find that PauseLinkedInInstagramResources:5-minute meditation journalThree R’s of ResilienceI am joined by the wonderful Miranda Lee, who teaches meditation techniques to busy people like myself so that we can find that much-needed pause in our lives. Now, when you hear that phrase pause, do you actually take a pause in your life? And if so, what do you do? Is it?Locking yourself in a room to escape your children. Maybe it's going to the gym. Maybe it's tuning out life and drowning yourself in Netflix or whatever streaming service you're using. But in today's episode, we talk about how self-compassion builds empathy. Now, self-compassion is simply defined as self-kindness rather than judgment.You know, we all have that inner critic, that voice that comes out that says, you're not doing good. You're not good enough. You're failing. Well, self-compassion is putting that voice to rest. And in this episode, we talk about the importance of how building that self-compassion leads us to empathy. Miranda also gives us a few little tools and techniques at the end of the episode to reallypractice that technique of building self-compassion. You know, empathy is putting yourself in someone else's shoes. I think we've all been there, we've all done that, but compassion is different. It's the element of wanting to help. However, it's not putting yourself in that other person's shoes. It's that understanding that you are human.And all humans suffer, and I want to do something to help. That's what compassion means. And we're gonna turn that inward to self-compassion. So stay tuned. I hope you enjoy this episode as much as I did with Miranda. And as always, what really helps the show and helps us grow is if you head to Instagram and check out Invisible Condition there. What we talk about:The difference between empathy and self-compassionResilienceThe importance of taking a pause, for ouSupport the showThanks for listening, I appreciate you!  Support the Show: https://www.buymeacoffee.com/timreitsmaWebsite: invisiblecondition.comSubscribe: invisiblecondition.com/subscribeSpotify: https://open.spotify.com/show/4kDTQ9eTFpWFDID9vsXFxWApple Podcasts: https://podcasts.apple.com/us/podcast/the-invisible-condition-podcast/id1703432562Social MediaInstagram: https://www.instagram.com/invisible_condition/YouTube: https://www.youtube.com/@Invisible_Condition

Send us Fan MailHow do you deal with Anxiety? I am really curious! For me, it manifests itself in a few ways. One of the biggest ways - I want to give up on things. Like this project, this week, I am overwhelmed, anxious and full of fear so I want to give up. But I won't let anxiety win!Support the showThanks for listening, I appreciate you!  Support the Show: https://www.buymeacoffee.com/timreitsmaWebsite: invisiblecondition.comSubscribe: invisiblecondition.com/subscribeSpotify: https://open.spotify.com/show/4kDTQ9eTFpWFDID9vsXFxWApple Podcasts: https://podcasts.apple.com/us/podcast/the-invisible-condition-podcast/id1703432562Social MediaInstagram: https://www.instagram.com/invisible_condition/YouTube: https://www.youtube.com/@Invisible_Condition

Send us Fan MailYou are taking a shower, wash yourself down there and notice a lump so you go to your doctor. The doctor isn't concerned but decides to send you for some tests. Next thing you realize, at 32, you have testicular cancer and are now in a battle for your life.Chris Ho has battled testicular cancer not once, but twice. In this episode, we talk about the importance of permission, sharing, healing, and community.We know that not everyone wants to hear our stories. And to us, that's something we cannot control. But, when someone invites us to share, Chris's take is to start small, be honest, and allow others to get curious.Chris Ho - BioChris Ho is a certified leadership coach and consultant with FranklinCovey along with his own practice at ConsciousStudio.ca focused on leadership, talent and culture development. Motivated by his 15 + years of leadership experience combined with his personal health challenges, Chris’s mission is to help inspire, connect and support people within organizations to achieve the results they are looking for. Chris's personal experiences as a 2-time testicular cancer survivor and past caregiver to his late father have shown him that perspective is everything, especially when it comes to realizing your potential while making the most of today. Within his community, Chris proudly volunteers with the BC Cancer Agency and Foundation whose goal is to improve cancer experience between patients, caregivers and care workers. Chris is also passionate about volunteering with NextGenMen, an organization focused on helping men have healthy conversations about masculinity and Movember and its awareness for men's mental and physical health. Chris can be found living in the moment with his wife Maggie, their two boys Caden and Liam and their fur babies Sam and Zoe in the River District in Vancouver BC.Show Themes:Embracing Vulnerability and Openness The Power of Support and Compassion Living in the Moment and Self-Care Encouragement for Sharing and Overcoming Challenges Contact Links:Website - The Conscious StudioLinkedIn - Chris HoResources:Next Gen MenBC Cancer FoundationTim's InfoInvisible condition - WebsiteLinkedInSupport the showThanks for listening, I appreciate you!  Support the Show: https://www.buymeacoffee.com/timreitsmaWebsite: invisiblecondition.comSubscribe: invisiblecondition.com/subscribeSpotify: https://open.spotify.com/show/4kDTQ9eTFpWFDID9vsXFxWApple Podcasts: https://podcasts.apple.com/us/podcast/the-invisible-condition-podcast/id1703432562Social MediaInstagram: https://www.instagram.com/invisible_condition/YouTube: https://www.youtube.com/@Invisible_Condition

Send us Fan MailResilience is the ability to work through a crisis and return to a pre-crisis state. That’s a simple definition, but what does resilience really mean in a world full of complexity?The American Psychological Association defines Resilience as "the process and outcome of successfully adapting to difficult or challenging life experiences, especially through mental, emotional, and behavioural flexibility and adjustment to external and internal demands".In this journal entry, I share a framework I use to bounce back to a pre-crisis state - Reframe, Reflect, and Reachout.Support the showThanks for listening, I appreciate you!  Support the Show: https://www.buymeacoffee.com/timreitsmaWebsite: invisiblecondition.comSubscribe: invisiblecondition.com/subscribeSpotify: https://open.spotify.com/show/4kDTQ9eTFpWFDID9vsXFxWApple Podcasts: https://podcasts.apple.com/us/podcast/the-invisible-condition-podcast/id1703432562Social MediaInstagram: https://www.instagram.com/invisible_condition/YouTube: https://www.youtube.com/@Invisible_Condition

Send us Fan MailWhen you are 17 and live with Type 1 Diabeties, what do you do? You aim to change the world and bring an end to the stigma that surrounds invisible disabilities, illnesses, diseases and conditions.Jenna Shares openly how her invisible condition doesn't define who she is. Sure there are limits to what she can do but that hasn't stopped her from becoming a fierce advocate and a volunteer  firefighter! Jenna shares her story of faith, trial, and how she is bringing awareness to invisible conditions.ResourcesWhat is type 1 diabetes? - Mayo ClinicBlue Balloon Project - VideoShow Notes and highlights:Diagnosed at three years old at the time being raised by a single mom of three.Living with diabeties hasn't defined who Jenna is.Being surrounded by people who have been curious has allowed Jenna to have the confidence to share.Jenna faced stigma and was told "It's not invisible" because I can see your site.Jenna's awareness allowed her to respond with grace and courage. Life is full of opportunity, don't let your condition slow you down.Look to GodWhat we talk about:Invisible ConditionInvisible disability, invisible illnessDisability awarenessType 1 diabetesThe power of telling your storyNot being defined by your disabilityWhere to find us:https://www.invisiblecondition.com/https://www.instagram.com/invisible_condition/https://www.linkedin.com/in/timreitsma/What is an “invisible condition”?An invisible condition is an illness or health condition (physical or mental) that isn’t seen from the outside. This may include, but is not limited to autoimmune disorders, mental illness, neurodiverse conditions, chronic pain or fatigue, trauma, cancers, and brain injuries.Invisible condition is an inclusive term that encompasses invisible illness, invisible disability, and invisible disease.Support the showThanks for listening, I appreciate you!  Support the Show: https://www.buymeacoffee.com/timreitsmaWebsite: invisiblecondition.comSubscribe: invisiblecondition.com/subscribeSpotify: https://open.spotify.com/show/4kDTQ9eTFpWFDID9vsXFxWApple Podcasts: https://podcasts.apple.com/us/podcast/the-invisible-condition-podcast/id1703432562Social MediaInstagram: https://www.instagram.com/invisible_condition/YouTube: https://www.youtube.com/@Invisible_Condition

Send us Fan MailEvery Wednesday, I release an episode with a guest. Someone who lives with an invisible condition, a caregiver, or a medical professional. We share stories, give insights, and create opportunities to get real, vulnerable, and make connections.On Fridays, I plan to release a short (10-minute) solo episode where I share some of the many thoughts swirling around in my mind. This week, I share vulnerably about my struggle with mental health as well as my son's. What if we create workplaces and schools where it is OK to not be OK? Imagine walking into the office and when someone asks you "how are you", you answer with truth. Maybe you are fantastic and maybe you aren't. In Canada, 75% of all suicides are men. This stat scared me and is driving me to action. So, let's stop hiding, let's start sharing!Definition:An invisible condition is an illness or health condition (physical or mental) that isn’t seen from the outside. This may include, but is not limited to autoimmune disorders, mental illness, neurodiverse conditions, chronic pain or fatigue, trauma, cancers, and brain injuries.Links:https://mentalhealthcommission.ca/https://ca.movember.com/https://www.wellnesstogether.ca/en-ca/https://www.nimh.nih.gov/health/find-helpSupport the showThanks for listening, I appreciate you!  Support the Show: https://www.buymeacoffee.com/timreitsmaWebsite: invisiblecondition.comSubscribe: invisiblecondition.com/subscribeSpotify: https://open.spotify.com/show/4kDTQ9eTFpWFDID9vsXFxWApple Podcasts: https://podcasts.apple.com/us/podcast/the-invisible-condition-podcast/id1703432562Social MediaInstagram: https://www.instagram.com/invisible_condition/YouTube: https://www.youtube.com/@Invisible_Condition

Send us Fan MailWhat do you do when you lose trust in your bowels? Jodi Ekk, diagnosed with Colitis talks about how her faith has allowed her to let go of one career and pursue something completely different. A change in identity, making an impact. And the freedom to say, “Excuse me, I need to run.”Resourceshttps://crohnsandcolitis.ca/https://www.webmd.com/ibd-crohns-disease/crohns-colitis-difference Show Notes and highlights:Colonoscopy pro tips - warm apple juice, cold prep, and bundle up!Advice for people who need accommodations - Don’t wait for a diagnosis before asking for accommodations.Jodi felt she waited too long for the doctors to tell her what to do versus going ahead and asking the workplace for what she needed.We need to also advocate for yourself and follow up with a medical team.Don’t focus on the outcome, focus on what we can do with what we haveBe confident in sharing our personal stories and educating peopleGet a sense of whether other people are interested or open to hearing about your conditionHope and encouragement - hope beyond what we see in front of usLook to GodWhat we talk about:Crohn's Disease and ColitisInvisible illness and invisible disabilitiesWorkplace AccommodationFaith, trust, identity, and hopeGratitudes instead of fearWhere to find us:https://www.invisiblecondition.com/ https://www.instagram.com/invisible_condition/ https://www.linkedin.com/in/timreitsma/Support the showThanks for listening, I appreciate you!  Support the Show: https://www.buymeacoffee.com/timreitsmaWebsite: invisiblecondition.comSubscribe: invisiblecondition.com/subscribeSpotify: https://open.spotify.com/show/4kDTQ9eTFpWFDID9vsXFxWApple Podcasts: https://podcasts.apple.com/us/podcast/the-invisible-condition-podcast/id1703432562Social MediaInstagram: https://www.instagram.com/invisible_condition/YouTube: https://www.youtube.com/@Invisible_Condition

Send us Fan MailHey everyone, Tim here, host of the Invisible Condition podcast, where we talk about unusually normal things. The thing we talk about today is strokes. Now you might associate strokes with middle-aged people, or older people, but do you associate strokes with younger people? My guest today was in university when he had a stroke. Healthy guy, active guy, who woke up one morning, and just wasn't feeling right. He asked his friends if...He seemed off if he seemed different. And they all said, no, probably just tired because we've been up late studying for exams, but he just knew something was wrong. Even the ambulance attendants thought he was just trying to get out of an exam. Nitai's life completely changed. He now lives with the lasting impact of having a stroke, but he hasn't let that slow him down. We talk about how he now manages his life.And that is a life full of gratitude. And we even get into some of the tools that he uses in his life. So in this episode, I know that you won't just be inspired, but there are actionable takeaways. For me, it's just remembering every day and every evening what I'm grateful for. So as always,If you listen to this episode and you have questions or comments, if you just want to share your story, but don't know how, please reach out to me at invisiblecondition.comLinkedInInstagramSupport the showThanks for listening, I appreciate you!  Support the Show: https://www.buymeacoffee.com/timreitsmaWebsite: invisiblecondition.comSubscribe: invisiblecondition.com/subscribeSpotify: https://open.spotify.com/show/4kDTQ9eTFpWFDID9vsXFxWApple Podcasts: https://podcasts.apple.com/us/podcast/the-invisible-condition-podcast/id1703432562Social MediaInstagram: https://www.instagram.com/invisible_condition/YouTube: https://www.youtube.com/@Invisible_Condition

Send us Fan MailLiving in a constant state of problem-solving. Silently living in crisis mode. But then something changed. Being diagnosed with ADHD changed Rosanna’s outlook on life and work. From living in a state of feeling imperfect to embracing her imperfectness. Getting curious about herself, and leaning into what makes her thrive has helped Rosanna Campbell build a thriving freelance career.In our conversation, Rosanna shares authentically and vulnerably about her struggles, her diagnosis and how she embraces what makes her so awesome! I think she is awesome! What’s great about Rosanna is that she is so willing to share and give back. We will spend time dreaming of the future. A future where there is no more stigma around bringing our whole selves to the workplace.Rosanna's contact information: LinkedInSupport the showThanks for listening, I appreciate you!  Support the Show: https://www.buymeacoffee.com/timreitsmaWebsite: invisiblecondition.comSubscribe: invisiblecondition.com/subscribeSpotify: https://open.spotify.com/show/4kDTQ9eTFpWFDID9vsXFxWApple Podcasts: https://podcasts.apple.com/us/podcast/the-invisible-condition-podcast/id1703432562Social MediaInstagram: https://www.instagram.com/invisible_condition/YouTube: https://www.youtube.com/@Invisible_Condition

Send us Fan MailThrough the power of sharing my story on LinkedIn, a ghost writer who use to write under my name reached out, said he use to be me and proceeded to share his story about living with hemophila. But the random encounter isn’t the theme of todays show. Imagine with me for a moment. You have a child who is born hemophiliac and you ask yourself, do you pad the world or pad your child? Shaun’s parents raised him to embrace the world, not fear it and this has shaped his entire outlook. He knows his limitations but he also knows his strengths. He was raised to embrace his condition and not fear what might be to come.So, do you pad the world or pad your child?  Stay tuned to hear Shaun’s amazing outlook on life and hear his encouragement to bring visibility to invisible conditions.Bio:Shaun Bernstein is a journalist turned lawyer turned content writer. He is the founder and Chief Storyteller of The Write Stuff Agency, where he's proven that when you found your own company you can make up your own job title. His work includes writing websites, blogs, articles, and other assorted publications for clients across a wide range of industries. A lifelong hemophiliac and former employment lawyer, Shaun has a passion for supporting those with invisible illnesses, whether through patient advocacy or policy change. When he's not busy writing or bleeding, he and his wife play an inordinate amount of trivia in and around Durham Region, Ontario. Shaun’s contact information: Website | LinkedInSupport the showThanks for listening, I appreciate you!  Support the Show: https://www.buymeacoffee.com/timreitsmaWebsite: invisiblecondition.comSubscribe: invisiblecondition.com/subscribeSpotify: https://open.spotify.com/show/4kDTQ9eTFpWFDID9vsXFxWApple Podcasts: https://podcasts.apple.com/us/podcast/the-invisible-condition-podcast/id1703432562Social MediaInstagram: https://www.instagram.com/invisible_condition/YouTube: https://www.youtube.com/@Invisible_Condition

Send us Fan MailHey Tim here, host of the Invisible Condition podcast, a show where we talk about unusually normal things. So before we get into all the episodes that are coming, I wanted to take a moment and share this space with my wife, Tania. We want to talk about the point and the purpose of the show. And well, what you're going to get out of this. You know, we want to do more than inspire. We want to change the world. And how are we going to do that? We're going to tell stories from people who live with an invisible condition and hear from caregivers, professionals, and those who have an idea about how we can kill the stigma that surrounds sharing about our normal. The past few years were a rollercoaster. In addition to being severely sick physically, I was sick and tired of holding it all in. All the fear of judgment by others who lack understanding or awareness about my condition. With all my appointments, I had to manage and endure, constantly having to get a camera up my, well, let's just call it a colonoscopy. Getting syringes in my bloated knee to drain the excess fluid, and being hooked up to IVs to get new medication, new blood, and new iron. With all that real stuff I had to deal with, I was done trying to come up with creative ways to avoid talking about my condition, and all my medical appointments in order to make other people feel more comfortable. So I started to be more open and candid with friends, coworkers, and relatives about what I was going through physically and mentally. I started posting on LinkedIn about what I was going through and my frustrations with society when it comes to invisible conditions. It was scary and, oh man, it was hard. Yes, I did face judgment and discrimination. But I also found connections with so many people who responded by telling me that they too have an invisible condition but are too afraid to share. Fearing that they'd lose their job, lose relationships, fear of judgment, or being treated differently. Last winter, I literally could have died if I didn't get the proper medical intervention in time. And now after surgery and being on a new medication, I have some quality of life back. And I don't want to waste it. There's no cure for Crohn's disease, but hey, I've got to at least make it count for something good in this world.Support the showThanks for listening, I appreciate you!  Support the Show: https://www.buymeacoffee.com/timreitsmaWebsite: invisiblecondition.comSubscribe: invisiblecondition.com/subscribeSpotify: https://open.spotify.com/show/4kDTQ9eTFpWFDID9vsXFxWApple Podcasts: https://podcasts.apple.com/us/podcast/the-invisible-condition-podcast/id1703432562Social MediaInstagram: https://www.instagram.com/invisible_condition/YouTube: https://www.youtube.com/@Invisible_Condition

Send us Fan MailSo, what does it mean to be a normal person? One definition I found says “A normal person has no serious physical or mental health problems”. So, I guess this means I am not normal!But here on the Invisible Condition podcast, we talk about unusually normal things. That’s right! Over 80% of our population lives with a physical or mental condition and a large proportion of us have something that is invisible. Soon after I shared about my health journey, many people, friends, and strangers reached out to thank me for stepping out so vulnerably. People started messaging me about their invisible condition journeys and a common theme started to emerge.Fear! Fear of sharing because of the stigma attached. They feared judgment, they feared losing their jobs, they feared rejection, they feared “making others feel uncomfortable"! People are suffering in silence. They are isolated.Our purpose is to invite people to tell their stories. Let’s start sharing our unusually normal experiences around invisible conditions so that we can break down barriers. Let’s stop hiding.My hope is that Invisible Condition will be a platform where people can feel seen, supported, and empowered. I also hope for change—to create a more EMPATHETIC, authentically curious, and inclusive society.Because EVERYONE DESERVES TO FEEL THEIR NORMALSupport the showThanks for listening, I appreciate you!  Support the Show: https://www.buymeacoffee.com/timreitsmaWebsite: invisiblecondition.comSubscribe: invisiblecondition.com/subscribeSpotify: https://open.spotify.com/show/4kDTQ9eTFpWFDID9vsXFxWApple Podcasts: https://podcasts.apple.com/us/podcast/the-invisible-condition-podcast/id1703432562Social MediaInstagram: https://www.instagram.com/invisible_condition/YouTube: https://www.youtube.com/@Invisible_Condition