PODCAST · kids
The Roadmap to Rare
by CSNK2A1 Foundation Podcast
This is the Roadmap to Rare. Hosted by OCNDS parent Eric Finn, this podcast explores the reality of the rare-disease journey—sharing hope through real stories, real challenges, and research. This is our rare disease roadmap.Every rare disease journey is different, but no family should have to navigate it alone.On Roadmap to Rare, Eric sits down with parents, advocates, clinicians, researchers, and leaders in the rare disease community to talk about what the path really looks like—from diagnosis to advocacy, research breakthroughs, and everything in between.Together, these conversations shine a light on the experiences that unite the rare disease community: resilience, determination, and hope for the future.
-
1
Trailer: Roadmap to Rare
This is the Roadmap to Rare. Hosted by OCNDS parent Eric Finn, this podcast explores the reality of the rare-disease journey—sharing hope through real stories, real challenges, and research.On Roadmap to Rare, Eric sits down with parents, advocates, clinicians, researchers, and leaders in the rare disease community to talk about what the path really looks like—from diagnosis to advocacy, research breakthroughs, and everything in between.Subscribe so you can stay updated for new episodes!Your ideas help shape the conversations that matter most to the rare disease community. Feel free to submit us questions and topics of interest us at [email protected]. Or on our webpage https://www.csnk2a1foundation.org/roadmap-to-rare-podcast!Follow us on Instagram: @csnk2a1_foundationFollow us on Facebook: CSNK2A1 FoundationFollow us on LinkedIn: CSNK2A1 Foundation
No matches for "" in this podcast's transcripts.
No topics indexed yet for this podcast.
Loading reviews...
ABOUT THIS SHOW
This is the Roadmap to Rare. Hosted by OCNDS parent Eric Finn, this podcast explores the reality of the rare-disease journey—sharing hope through real stories, real challenges, and research. This is our rare disease roadmap.Every rare disease journey is different, but no family should have to navigate it alone.On Roadmap to Rare, Eric sits down with parents, advocates, clinicians, researchers, and leaders in the rare disease community to talk about what the path really looks like—from diagnosis to advocacy, research breakthroughs, and everything in between.Together, these conversations shine a light on the experiences that unite the rare disease community: resilience, determination, and hope for the future.
HOSTED BY
CSNK2A1 Foundation Podcast
Loading similar podcasts...
URL copied to clipboard!