PODCAST · health
Diabetics Doing Things Podcast
by Diabetics Doing Things
Hosted by T1D Rob Howe, Diabetics Doing Things tells amazing stories of people with diabetes from across the globe, digging deep into everything it takes to Live Well with Diabetes and sharing exciting adventures along the way.
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Episode 353 - The Hidden Mental Load: A T1D Pshycotherapist on Burnout, Grief, and Letting Go
What happens in the room when a therapist with Type 1 diabetes hears the same fear over and over, that everyone else has their numbers under control, and you’re the only one who doesn’t? Rob sits down with Christine Keown, a registered psychotherapist and T1D since age four, to have the conversation that doesn’t get nearly enough airtime. Recorded right in the middle of the Diabetes and Mental Health Conference, this one covers a lot of ground and goes places most diabetes content never does. Christine shares what she calls her “meta-analysis” of her clients: the common threads she sees across every person with diabetes who walks through her door. The fear of judgment around numbers. A fractured sense of identity after diagnosis. The compounding spiral of healthcare avoidance. And high-functioning burnout, the kind that looks completely fine at work and only shows up at home. Rob opens up, sharing what a recent diabetes meditation retreat revealed to him about conditional joy, self-compassion, and why he’s been sitting with the uncomfortable truth that he’s not nearly as in control as he’d like to be. One of the standout moments is Christine’s live demonstration of an ACT (Acceptance and Commitment Therapy) exercise using a literal piece of paper. The idea: we exhaust ourselves pushing our fears away. What if we just put them down instead? Rob couldn’t stop laughing, and neither could we. This episode is for anyone who has ever felt like they’re failing at diabetes, quietly avoided the endocrinologist, or thought everyone else has it figured out except them. You’re not alone. Not even a little bit. As Christine and Rob both land on: we’re all just doing our best, every single day. Chapters: 00:00: Rob introduces Christine Keown, registered psychotherapist 01:46: Recording live at the Diabetes and Mental Health Conference 02:26: Why people seek out a therapist who also has diabetes 04:01: Fear of judgment keeps people away from community 05:45: When the endocrinologist becomes the threat 06:44: Diabetes distress and physician-related avoidance 07:58: The compounding loop: wanting care, avoiding it anyway 08:58: The therapist’s privilege: normalizing what everyone feels 10:27: The meta-analysis: what every T1D client shares 11:11: Fear of comparison and the myth of perfect control 12:36: Conditional joy: happiness gated behind blood sugar 13:37: Christine’s pre-podcast low and the reality of T1D 15:13: The messenger matters more than the message 16:23: A joy shared is a joy multiplied 17:42: Identity shifts after a chronic illness diagnosis 18:15: Christine’s story: leg muscles, mountains, and Costco 21:07: Rob on learning to ‘be’ instead of always ‘do’ 21:31: Grief, anxiety, and diabetes pulling us from the present 23:51: ACT therapy: the paper exercise for carrying fear 28:03: Naming the fear instead of making it the main character 30:18: Chronic illness and the desperate need for control 31:08: High-functioning burnout: invisible to everyone around you 32:43: Signs at home no one at work will ever see 34:49: Distraction through overwork and the “next thing” trap 35:30: A call to curiosity, self-compassion, and getting help Resources: * Christine Keown on Instagram: @your_health_therapist * Diabetes & Mental Health Conference: Session recordings still available at dmhconference.com
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Episode 352 - Health Insurance 101: What Every Diabetic Needs to Know Before Open Enrollment
Health insurance is one of those things that's genuinely important and genuinely confusing. When you're managing diabetes or any chronic illness, the stakes are a lot higher than for most people. One wrong plan choice can mean insulin coverage disappears, specialist visits become out-of-pocket, or you get hit with a bill you didn't see coming. Rob sits down with Dakota Myers, known online as The Benefits Boss, for a no-nonsense breakdown of health insurance fundamentals through the lens of chronic illness. Dakota walks through the terminology that trips most people up (premiums, deductibles, co-insurance, out-of-pocket maximums), explains the real difference between PPO, HMO, and HSA plans, and makes a compelling case for why working with a broker costs you nothing and can save you thousands. The conversation covers some genuinely useful stuff that most people don't know, like the Medicaid Decline Hack for getting back onto the marketplace outside of open enrollment, the COBRA backdating loophole for gap coverage, and how income and health status together should drive your marketplace vs. private plan decision. If you've ever stared at an open enrollment portal feeling completely overwhelmed, this one is for you. Dakota and his team at The Benefits Boss shop every plan in all 50 states, and as he puts it, the goal is always to build the best package for each individual situation, not to sell a product. By the end of this episode, you'll have a much cleaner framework for evaluating your options and asking the right questions. Chapters: 00:00 Rob's intro: why this episode exists 02:43 Introducing Dakota Myers, The Benefits Boss 04:33 Starting with the basics: premiums defined 04:51 The three-step cost breakdown explained 06:25 Short-term and long-term disability coverage 07:07 High premium vs. high deductible: how to choose 09:30 What employers actually pay — a business owner's view 10:54 PPO, HMO, and network basics demystified 13:56 The doctor network hack: verify your coverage 14:44 What a good broker actually does for you 17:07 Should you use a broker? Here's the case for yes 17:40 HSAs: who they're actually useful for 19:10 Evaluating employer plans: three things that matter 22:26 Navigating the ACA marketplace and open enrollment 22:57 The Medicaid Decline Hack for qualifying events 27:02 COBRA explained — and the backdating loophole Resources: The Benefits Boss IRS HSA Contribution Limits & Eligibility Healthcare.gov
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Episode 351 - What Your Doctor Was Never Taught About Diabetes with Dr. Hannah Parr, D.O.
Ten years ago, Hannah Hamlin came on the pod (Episode 8!) as a medical school student with type 1 diabetes trying to figure out how to manage blood sugar while surviving boards. She's back now as Dr. Hannah Parr, D.O., a physician with additional training in integrative medicine and diabetes education, and the conversation is a completely different one. This episode is about what happens after you get the diagnosis under control, the emotional, philosophical, and practical work of actually living well with a chronic illness. Hannah walks through why she felt angry at her doctors in her early 20s (and why that anger wasn't entirely fair), what medical school actually teaches versus what it leaves out, and how she eventually built education specifically designed to fill the gap between a 15-minute endocrinology appointment and real, whole-person health. One of the most honest moments in the episode comes when Hannah describes a phase of her life where she had nearly perfect blood sugars on a low-carb diet and her cholesterol was climbing, her hormones were off, and she was gaining weight. Her A1C looked great. The rest of her health didn't. It's a good reminder that optimizing one number in isolation isn't the same as taking care of yourself. What she landed on instead is something much simpler: treat yourself like a human first. The diabetes management follows. Dr. Parr also shares details about her free monthly support group for people living with diabetes and her six-week Living Well with Diabetes course built for the emotional and psychological side of chronic illness that most diabetes education never touches. Chapters: 00:00 Rob introduces Dr. Hannah Parr, 10 years later 01:04 Reconnecting after a decade on the podcast 02:23 The diagnosis story: DVD in Spanish, sent home 03:53 Going from frustrated patient to med school 06:41 What medical training actually covers (and skips) 09:56 Why endocrinologists aren't failing you 12:50 How to prepare for your next diabetes appointment 17:36 Taking ownership when the system can't do it for you 20:30 Why A1C alone doesn't equal quality of life 24:42 The balance between control and actually living your life 28:27 Resilience, heart health, and the unexpected gifts of T1D 30:42 How Hannah found her way through six months of illness 36:28 Letting go of limiting beliefs about what's possible 38:49 The Living Well with Diabetes course and free support group 41:00 What Hannah has changed her mind about in 10 years Resources: Dr. Hannah Parr's website Dr. Hannah Parr on YouTube Dr. Hannah Parr Instagram Free Support Group Sign Up
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Episode 350 - Why You Hold Your Breath Every Time You Check Your Blood Sugar with Sam Tullman
Most of us know diabetes affects the body. Fewer of us talk honestly about what it does to the mind and what the mind does right back. In this episode, Rob sits down with Sam Tullman, co-founder and facilitator of Diabetes Sangha and a dedicated student of Rinzai Zen, for a wide-ranging conversation on mental health, mindfulness, and what it actually means to live well with diabetes. Not managing it perfectly. Live well with it. They get into the neuroscience of why checking your CGM makes you hold your breath, why rage bolusing is as much an emotional event as it is a physical one, and how the concept of interoception, your brain's ability to read signals from inside your body, turns out to be both a burden and a hidden advantage of life with type 1. Sam introduces a question that quietly reframes everything: what is your actual goal in living with diabetes? His answer might surprise you. The conversation winds through predictive processing theory, Zen master stories dating back to 17th-century Japan, the research behind mindfulness-based stress reduction, and Rob's own discovery of what he calls "rage gratitude", a practice that started with 35 lines scribbled on a page and changed how he moves through his days. If you've ever wondered whether mindfulness is actually practical for someone who's already managing a chronic illness on top of everything else, this episode makes the case. Sam is also a fellow podcaster and one of the most thoughtful voices in the T1D mental health space. By the time this episode is published, Rob will be sitting with Sam and the rest of Diabetes Sangha at their spring retreat. Which, honestly, feels like the right note to publish on. Chapters: 00:00 Introduction: Sam Tullman and Diabetes Sangha 01:14 Welcome back: catching up since last time 02:03 Mental health as part of the whole body 03:29 How the mind directly impacts blood sugar 04:42 Rage bolusing: a behavioral health problem 07:16 Rob's real-time low and what he noticed 08:58 Predictive processing theory and Dr. Lisa Feldman Barrett 10:12 How the brain makes its best guess 13:03 Interoception: the hidden strength of living with T1D 15:02 Awareness as both burden and advantage 18:33 Holding it in both hands: grief and gratitude together 24:09 Mindfulness as a muscle: how to start building it 25:22 The question that reframes everything: what is your goal? 29:00 Two kinds of meditation practice: relief and long-term growth 31:51 Growth is uncomfortable — and that's okay 36:18 The Zen master Hakuin story 40:34 After ecstasy, the laundry — and changing your CGM 44:44 Rage gratitude: Rob's discovery of a simple practice 47:17 Many paths to the same place: finding what works for you 48:13 Diabetes Sangha: community, retreats, and resources Resources: Diabetes Sangha — weekly meditations, newsletters, events, and retreats for people living with diabetes How Emotions Are Made by Dr. Lisa Feldman Barrett — referenced by Sam on predictive processing theory and interoception Dr. Brad Liechtenstein — retreat facilitator and breath expert mentioned by Sam, works with people with chronic conditions: search "Dr. Brad Liechtenstein" or find him through naturopathic health directories
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Episode 348 - Claude vs. T1D - I asked Claude 10 Questions about Type 1 Diabetes
Rob Howe has lived with type 1 diabetes for 21 years. So when he sat down to interview Claude as a newly diagnosed patient, he expected a pop quiz. What he did not expect: Claude passing the test on the first try by answering as Rob himself. Because Claude thought it been hosting this show all along. This is Diabetics Doing Things Episode 348: Claude vs T1D — an experiment in AI health literacy, a genuinely funny accident, and a real question about what AI-powered diabetes care means for everyone. Guest Bio Claude is Anthropic’s large language model and this episode’s unusual guest. Rob runs the interview twice: first with his regular Claude (which has absorbed 21 years of his diabetes story and all DDT content), then in an incognito window with a clean slate. The contrast is the episode. Key Topics and Timestamps 1:43 — Why Rob is interviewing AI: the Bernie Sanders moment and the AI zeitgeist of early 2026 2:53 — Round 1 begins: Rob plays newly diagnosed patient, Claude plays diabetes educator 7:07 — The plot twist: Claude reveals it has had T1D for 21 years and started Diabetics Doing Things 8:56 — Rob catches it: Thats my LLM. Resets to incognito mode. 9:30 — Round 2: Fresh Claude, no prior context, same 10 questions 10:37 — Claude covers patient assistance programs, 340B pharmacies, free insulin for the uninsured 13:40 — What you actually cannot do with T1D (shorter list than most people think) 17:22 — The reveal: I have had T1D for 21 years. I think you passed. 18:30 — Robs closing question: Is AI advancing faster than humans on diabetes care? Notable Quotes Okay, I have got to stop Claude there — because clearly that Claude is me. — Rob Howe I started Diabetics Doing Things because I realized there was not enough honest conversation about living with type one — the medical stuff, but the real life stuff, the mental load, the wins, all of it. — Claude (Round 1, in Robs voice) Is the future of diabetes care, no matter who you are or where you are, made better by AI? Really something to think about. — Rob Howe, closing From there, the conversation gets tactical and evidence-driven: why breathing is uniquely powerful because it’s both autonomic and voluntary, how airflow through the nose can influence brain activity and calm states, and how slow breathing can improve markers tied to autonomic function (like heart rate variability and baroreflex sensitivity) that are often reduced in people with diabetes. Rob connects this to modern diabetes stress—constant data, alerts, and decision fatigue—and why breath is a fast, accessible tool for resilience. Nick addresses the “woo vs. science” tension by grounding claims in research and meta-analyses while staying open to whatever “gateway” gets someone to practice safely. They close with simple starting protocols (using an app, 4-in/6-out pacing, diaphragmatic breathing), and emphasize nasal breathing and mouth taping at night as high-leverage habits—“passive income of health”—with a reminder to keep it safe and consistent over perfection. Chapters: 00:15 Insulin Sensitivity Playbook + Meet “The Breathing Diabetic” 01:27 Diagnosis Story: Age 11, DKA, and the “Diet Coke” Moment 02:48 The “Second Diagnosis”: Mid-20s Wake-Up and Lifestyle Control 03:58 From Air Quality Scientist to Breath Nerd: Discovering Wim Hof 04:51 The Oxygen Advantage: Nasal Breathing, CO₂, and a Breakthrough 08:52 Breath Goes Mainstream: James Nestor Validation + Confidence to Share 11:50 Why Breath Is a Superpower: Autonomic + Voluntary = A Lever 15:11 The Brain Angle: Nasal Airflow, Brainwaves, and Calm States 18:06 Diabetes Physiology: HRV, Baroreflex, and Slow Breathing Benefits 35:52 Practical Protocols: 5-Min Minimum Dose, Apps, Ratios, Mouth Tape Resources: The Breathing Diabetic Instagram The Breathing Diabetic Website
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Episode 346 - The Insulin Sensitivity Playbook: Vinegar and Glucose with Dr. Carol Johnston
Dr. Carol Johnston—Arizona State University nutrition professor and registered dietitian known online as “The Vinegar Lady”—joins Rob to break down what decades of research actually say about vinegar, blood glucose, and metabolic health. Johnston explains how her work began with an obscure 1988 rat study and led to a landmark 2004 Diabetes Care paper showing vinegar could blunt post-meal blood glucose spikes in people without diabetes, those with pre-diabetes, and those with type 2 diabetes. They dig into why vinegar still gets treated like “fringe” advice despite strong replication across countries—and why the mechanism overlaps with a major target of metformin. The conversation gets highly practical: why liquid vinegar matters (pills don’t), how timing at the start of a meal changes outcomes, and the two core mechanisms—reduced starch digestion plus increased glucose uptake into muscle via GLUT4, similar to the effect of post-meal walking. Johnston also connects vinegar to the gut microbiome and acetate’s growing role in brain and energy metabolism, sharing her own routine (on vegetables) and emerging findings on cognitive/depression measures supported by metabolomics. You’ll also hear real-world implementations like homemade vinaigrettes (flip the ratio to 2:1 vinegar to oil), mustard as a stealth vinegar vehicle, and even “pickle sickles,” plus safety notes around dilution, enamel, and gastroparesis risk. Chapters: 00:01 Intro: “The Vinegar Lady” + why vinegar is on the table for diabetes 01:35 Johnston’s background + why she studies simple, sustainable nutrition strategies 03:03 The 1988 rat study discovery → the first human trials with bagels + vinegar 04:32 Publishing in Diabetes Care (2004) + replication across the world 05:53 Why clinicians resist vinegar (“we have drugs for this”) + metformin overlap 10:28 Acetic acid, fermentation, and the gut microbiome connection (why it matters) 14:04 The two key mechanisms: starch digestion interference + faster muscle glucose uptake 22:46 Practical + safety: pills don’t work, dilution, enamel/aspiration risk, timing with meals 25:53 Johnston’s personal protocol + brain/cognition/depression angle + metabolomics support 46:47 Athletic applications: pickle juice, “pickle sickles,” mustard hack + where research goes next
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Episode 343 - Doing Well with Diabetes: Jyotsana Rangeen
On episode 3 of Doing Well with Diabetes Season 2, Rob and Jyotsana Rangeen discuss the journey of living with type 1 diabetes, focusing on the challenges of stigma, the importance of community support, and the transformative power of advocacy. Jyotsana shares her personal experiences from diagnosis to becoming a prominent advocate, emphasizing the need for positive language and self-acceptance in managing diabetes. The discussion highlights cultural perspectives on diabetes, the role of community in empowerment, and the significance of turning personal challenges into a purpose-driven life. Chapters 00:00 Introduction to the Diabetes Journey 01:07 Facing Diagnosis and Stigma 04:59 The Power of Language in Diabetes 08:52 Finding Motivation and Confidence 12:06 Embracing Public Advocacy 16:59 Cultural Perspectives on Diabetes 21:28 Transformative Advocacy Journey 25:19 The Importance of Community and Support 28:20 Reflections on Growth and Purpose Resources: Jyotsana’s Instagram https://idf.org/what-we-do/advocacy/advocacy-networks/blue-circle-voices/bcv-stories/jyotsana-rangeen-india/ https://www.instagram.com/diabetes_india_youth_in_action/
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Episode 345 - Leading with T1D featuring University Presidents Dr. Sally Kornbluth (MIT) and Ron Daniels (Johns Hopkins)
Summary In this episode, two university presidents, Dr. Sally Kornbluth (MIT) and Ron Daniels (Johns Hopkins) join Rob to talk about adult-onset Type 1 (LADA), leading in high-performance environments, and the single most “practical” diabetes upgrade: making a friend with diabetes. What stands out isn’t prestige—it’s how candidly they describe the everyday realities: managing highs and lows during major speeches, checking pumps in meetings, and staying open about diabetes to normalize it for everyone around them. The conversation also connects diabetes progress to the university research engine—past (insulin’s discovery era) and future (stem cell/islet replacement, closed-loop algorithms, and emerging trials). Chapters * 00:26: Diagnosis stories through high-performance leadership lens + “patients first” approach * 01:02: Sally Kornbluth’s adult-onset Type 1 (LADA) diagnosis * 02:55: Ron Daniels’ adult-onset Type 1 diagnosis * 06:08: Adult-onset Type 1, LADA, and misdiagnosis risk * 08:29: Carbs, discipline, and the real lifestyle tradeoffs * 10:19: The biggest adjustment: mental load + fear of lows * 13:30: How they found each other + why “a friend with diabetes” changes everything * 21:41: Universities power diabetes progress (and what’s next) * 42:45: Closing lessons: openness, resilience, and gratitude Resources Dr. Sally Kornbluth Ron Daniels
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Episode 344 - Doing Well with Diabetes: Kerry Murphy
Episode 4 of Doing Well with Diabetes Season 2 features Kerry Murphy, wife and mother to multiple people with type 1 diabetes and founder of Follow T1Ds, who explains how her long, layered exposure to T1D—from her sister-in-law and husband to her niece and daughter—pushed her from terrified observer to frontline advocate. She describes the collision between modern diabetes tech (CGMs, pumps, data-driven care) and school systems still operating on 1990s protocols, culminating in nurses refusing to follow CGM data during the school day. After discovering Department of Justice rulings that treating CGM follow as a reasonable ADA accommodation applies nationwide, she built Follow T1Ds around three demands: follow T1D CGMs, follow parent input, and follow federal law. The conversation covers how parents can move from raw fear and frustration to strategic advocacy, why labeling kids “non-compliant” ignores context and equity, and why school nurses are often the only line of real safety for some students. Kerry’s long-term aim is systems change so that parents don’t have to become de facto lawyers and policy experts just to keep their kids safe at school. Chapters 00:40 – Kerry Murphy and Follow T1Ds 01:47 – Kerry’s Deep Family History With Type 1 Diabetes 04:58 – Screening Her Sons, Avoiding DKA, and Early Symptom Hindsight 08:32 – Watching From the Sidelines, Then Becoming a Caregiver Herself 09:38 – Kindergarten Clash: Modern Tech vs 1990s School Protocols 14:27 – DOJ/ADA Rulings and the Three Pillars of Follow T1Ds 23:22 – How Parents Navigate Fear, Gaslighting, and Hard Conversations With Schools 30:32 – “Non-Compliant” Kids, Equity, and Why School Nurses Must Step Up 38:21 – Long-Term Vision: Systems Change So Parents Don’t Have to Be Lawyers Resources: https://followt1ds.org/ Kerry’s Instagram
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Episode 342 - Doing Well with Diabetes: Overcoming Stigma in Sports
Episode 2 of Doing Well with Diabetes Season 2 focuses on “Overcoming Stigma in Sports,” highlighting two elite athletes living with type 1 diabetes outside the traditional Western spotlight. In part one, Rebeca Jara, a Costa Rican pole vaulter, shares her diagnosis at age seven, the transformational impact of attending diabetes camp as a teenager, and the long process of learning how stress, food, and insulin affect performance. She describes major competitions where high blood sugars, lack of fast-acting insulin, and broken vials wrecked her meets—and how she initially leaned on diabetes as an explanation for poor results. The turning point comes when a coach tries to keep her off a Central American team “because she has diabetes,” and she not only makes the squad but wins gold. That moment flips her internal narrative from “I can’t because of diabetes” to “I’m capable, and I won’t let others use diabetes as a reason to exclude me.” In part two, Ousman Ceesay from Gambia recounts being discriminated against and effectively cut from a football team because of his diabetes. Instead of quitting, he helps form a new team of players with diabetes, is named captain, and scores a decisive header in their first official match—against the very coach who rejected him. From there he becomes a leading advocate in Gambia, attacking myths about diabetes (like “it’s only caused by sugar”) through social media, TV, and radio, while mentoring younger people with type 1 who are afraid to be seen. His motto, “All Is Well Like Never Before,” comes from a night of severe hypoglycemia, a morning spike, and the realization that despite diabetes, he can walk, see, and live independently—privileges many hospitalized people don’t have. Together, Rebeca and Ousman show how stigma in sport can be confronted with preparation, persistence, and visibility, turning diabetes from a reason to be excluded into the engine for leadership and change. Chapters 01:36 – Meet Rebeca: Costa Rican Track & Field Athlete with T1D 02:53 – Diagnosis, Early Years, and Finding Diabetes Camp 06:31 – First Track Competitions and Stress-High Blood Sugars 09:21 – Central American Championship: Broken Insulin Vial and DNS-Level Highs 15:05 – Overcoming Lows and Highs in Competition 18:28 – Coach Tries to Exclude Rebeca Because of Diabetes 20:01 – Winning Gold and Changing the Narrative 22:19 – Advice to Her Younger Self and Enjoying Sport 23:22 – Rebeca’s Online Presence: “Rebebetes” 24:12 – Meet Ousman: Gambian Footballer with T1D 24:49 – Being Cut for Having Diabetes and Forming a New Team 26:06 – First Game, Captain’s Armband, and the Winning Header 28:58 – Beating the Coach Who Discriminated Against Him 29:32 – Misconceptions About Diabetes in Gambia 31:56 – Building a Public Advocate: Social Media, TV, and Radio 33:54 – Mentoring Young People and Normalizing Visibility 36:58 – Origin Story of “All Is Well Like Never Before” 40:31 – Turning Hypo/Hyper Swings into Gratitude and a Clothing Brand 42:31 – Health, Perspective, and Redefining “Well” 43:24 – Closing Reflections and Future Vision Resources: Rebeca’ Instagram Young Leaders in Diabetes Young Leaders in Diabetes Instagram Ousman Ceesay Linkedin Ousman Ceesay Instagram
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Episode 341 - Doing Well with Diabetes: Global Nutritionist Panel
On episode 1 of Doing Well with Diabetes Season 2 Rob opens with a global nutritionist panel featuring three voices from three continents—Ravi Subramanian (India/Australia), Sally Anne Shirto (Zimbabwe/South Africa), and Marina Cavalin (Brazil). Each shares how diabetes shaped their lives, their careers, and the way they support others in their communities. The episode tracks the realities of type 1 and type 2 diabetes across vastly different health systems, highlighting gaps in education, access to insulin and supplies, food insecurity, misinformation, cultural nutrition challenges, and the emotional and physical toll of the condition worldwide. Through personal stories—from childhood polo matches with royalty to managing a teen’s diabetes in an under-resourced setting—the conversation reinforces a central theme: education, movement, and community support remain the strongest levers for improving global health and wellbeing for people with diabetes. Chapters 01:23 – Meet Ravi: Pilot Dreams to Type 2 Diagnosis 02:05 – Two Decades of Uncontrolled Diabetes & Complications 06:11 – Going Back to School: Becoming a Nutritionist 08:49 – Carbs, Fats, and the Omega-6:3 Problem in Indian Diets 11:39 – Portion Control, Festivals, and Insulin as a Double-Edged Sword 16:15 – Walking, Sweat, and Safe Exercise for Blood Pressure 19:14 – Resistance Training as Medicine 20:35 – Polo with Prince Charles: Childhood, Horses, and Loss of Function 23:03 – Meet Sally Anne: Mom, Coach, and Advocate in Zimbabwe & South Africa 24:08 – Learning Diabetes From Zero as a Parent 27:02 – The Affordability Crisis: Insulin, Strips, and Food 31:11 – Education Gaps: Fixed Doses, Hypers vs Hypos, and No Corrections 33:09 – Doing the Most With Very Little: Education as the First Line of Care 39:19 – Tackling Stigma at School and on the Netball Court 39:55 – Glucobuddies: Building Community in Under-Resourced Settings 42:08 – The Missing Link: Diabetes Educators, Not Just Dietitians 47:11 – Fighting Misinformation About “Healthy” Foods 50:42 – Meet Marina: Insulin Girl from Brazil 54:38 – Living With Type 1 in Brazil: Access and Inequality 58:46 – Brazilian Food Culture and the Carb-Counting Gap 1:02:54 – Learning to Count Carbs and Choosing Nutrition as a Career 1:05:24 – Mental Health, Burnout, and the Role of Exercise 1:11:42 – Young Leaders in Diabetes and Impact at Human Scale 1:15:40 – Self-Acceptance, Complications, and Redefining “Doing Well” Resources: https://www.instagram.com/guriadainsulina/ [email protected] - Ravi Subramanian’s email Blue Circle Voices IDF Glucose Buddy Sally Anne Shirto LinkedIn
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Episode 340 - Jordan Keltner from Netlix' Love is Blind
Summary In this special episode of Diabetics Doing Things, Rob Howe interviews Jordan Keltner, a participant from Netflix's Love is Blind Season 9, who shares his journey as a caregiver for his son with Type 1 Diabetes (T1D). They discuss the challenges of misdiagnosis, the importance of advocacy, and the impact of public awareness. Jordan also talks about his children's book series, "Dear Luca," which aims to spread awareness and support for T1D, with proceeds benefiting the charity Life for a Child. Chapters * 00:00:00 Introduction and Welcome * 00:03:00 Jordan's T1D Caregiver Journey * 00:06:00 Luca’s Misdiagnosis and Challenges * 00:09:00 Public Awareness and Advocacy * 00:12:00 ‘Dear Luca’ Children's Book Series * 00:15:00 Supporting Life for a Child Resources Dear Luca - Children’s Book Series Life for a Child
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Episode 338 - DKA In Real Life: ‘It Can Happen to You’ with Danica Collins
Disclaimer: The views expressed in this video should not be used for medical diagnosis or treatment or as a substitute for professional medical advice. Individual symptoms, situations and circumstances may vary. Sponsored by Abbott Summary In this episode, Rob Howe interviews Danica Collins, a long-time type 1 diabetes advocate, about her personal journey with diabetes and a recent experience with diabetic ketoacidosis (DKA). Danica shares her story of living with diabetes for nearly 20 years, the importance of community support, and the challenges she faced during a severe DKA episode while traveling. The conversation emphasizes the need for self-advocacy, understanding DKA, and the emotional aftermath of such experiences. Danica's insights aim to educate and empower others in the diabetes community. Chapters 00:00 Introduction to the Journey of Diabetes Advocacy 02:53 Reflecting on 19 Years with Type 1 Diabetes 05:50 The Importance of Community in Diabetes Management 08:47 Experiencing DKA: A Personal Story 11:35 Navigating the Hospital Experience 14:57 The Role of Self-Advocacy in Healthcare 17:55 Understanding DKA and Its Implications 20:42 The Aftermath of DKA: Recovery and Reflection 23:32 Sharing Stories to Raise Awareness 26:37 The Emotional Impact of Diabetes and DKA 29:49 Final Thoughts on Living with Diabetes Resources https://www.instagram.com/danicathediabetic/?hl=en https://www.dia-log.co/
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Episode 337 - DKA In Real Life: a Caregiver’s Perspective with Leigh Fickling
Disclaimer: The views expressed in this video should not be used for medical diagnosis or treatment or as a substitute for professional medical advice. Individual symptoms, situations and circumstances may vary. Sponsored by Abbott Summary In this conversation, Leigh Fickling shares her journey as a diabetes mom after her daughter Ava was diagnosed with type 1 diabetes at the age of three. She reflects on the signs and symptoms of diabetes and DKA that were overlooked initially, the importance of education and awareness in managing diabetes, and her role as a caregiver and advocate for others with diabetes. Leigh discusses the challenges of navigating workplace accommodations for diabetes and emphasizes the need for community support and preparedness in managing diabetes effectively. Chapters 00:00 The Diagnosis Journey Begins 08:02 Understanding DKA and Its Symptoms 17:03 Navigating Diabetes Management as a Caregiver 22:06 Workplace Accommodations for Diabetes 33:56 Empowering Others Through Shared Experiences Resources: https://childrenwithdiabetes.com/ https://www.linkedin.com/in/leighfickling
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Episode 335 - Euglycemic DKA & Other Hidden Dangers with Dr. Eden Miller
Disclaimer: The views expressed in this video should not be used for medical diagnosis or treatment or as a substitute for professional medical advice. Individual symptoms, situations and circumstances may vary. Sponsored by Abbott Summary In this episode, Dr. Eden Miller discusses the concept of Euglycemic DKA, a condition that can occur even when blood sugar levels are normal. The conversation covers the importance of understanding the symptoms, the role of medications like SGLT2 and GLP1 in increasing the risk of DKA, and the necessity of regular ketone checks. Dr. Miller emphasizes the need for education and empowerment in managing diabetes, especially in unique situations like pregnancy and prolonged fasting. The episode concludes with strategies for preventing Euglycemic DKA. Chapters 00:00 Introduction to Euglycemic DKA 02:00 Understanding Euglycemic DKA 04:08 Impact of Medications on DKA 07:10 Symptoms and Confirmation of DKA 09:20 The Importance of Regular Ketone Checks 11:07 Exploring GLP-1 Medications 12:30 Other Causes of DKA 16:22 Preventing Euglycemic DKA Resources: https://diabetesandobesity-care.com/ https://www.linkedin.com/in/eden-miller-b02a5a178
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Episode 336 - Strategies to Treat and Help Prevent DKA with Dr. Eden Miller
Disclaimer: The views expressed in this video should not be used for medical diagnosis or treatment or as a substitute for professional medical advice. Individual symptoms, situations and circumstances may vary. Sponsored by Abbott Summary In this episode of Diabetics Doing Things, Dr. Eden Miller discusses the prevention and treatment of diabetic ketoacidosis (DKA). The conversation emphasizes the importance of knowledge and awareness in managing diabetes, particularly in understanding one's own ketone levels. Dr. Miller uses analogies to make the topic more accessible and encourages patients to develop a personalized action plan for monitoring ketones. The discussion also highlights the significance of communication with healthcare providers and the role of support systems in managing diabetes effectively. Chapters 00:00 Introduction to DKA Awareness Series 01:13 Knowledge is Power: Understanding DKA 05:24 Communicating DKA Risks Effectively 08:08 Using Analogies to Understand DKA 10:02 Developing a Personal Ketone Action Plan 12:54 Monitoring and Troubleshooting Ketones 16:01 Empowering Yourself and Your Support System Resources: https://diabetesandobesity-care.com/ https://www.linkedin.com/in/eden-miller-b02a5a178
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Episode 334 - What is DKA? Breaking down the basics with Dr. Eden Miller
Disclaimer: The views expressed in this video should not be used for medical diagnosis or treatment or as a substitute for professional medical advice. Individual symptoms, situations and circumstances may vary. Sponsored by Abbott Summary In this episode, Dr. Eden Miller discusses diabetic ketoacidosis (DKA), a serious complication of diabetes. She explains the basics of DKA, its signs and symptoms, and the importance of monitoring ketones. The conversation also covers the causes of DKA, personalizing awareness and management strategies, and the significance of de-emotionalizing diabetes management. Dr. Miller emphasizes the need for proactive measures and open communication with healthcare providers to prevent and manage DKA effectively. Chapters 00:00 Introduction to Diabetic Ketoacidosis (DKA) 02:00 Understanding DKA: The Basics 05:07 Signs and Symptoms of DKA 10:02 Monitoring Ketones: Tools and Techniques 14:45 Causes of DKA: Understanding Triggers 19:57 Personalizing DKA Awareness and Management 24:45 De-emotionalizing Diabetes Management 30:11 Conclusion and Next Steps Resources: https://diabetesandobesity-care.com/ https://www.linkedin.com/in/eden-miller-b02a5a178
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Episode 333 - Playing College Golf with T1D - Nancy Cox
In this episode, Nancy Cox shares her inspiring journey as a collegiate golfer living with type 1 diabetes. From her diagnosis to her recent tournament win, Nancy discusses the challenges and triumphs of managing diabetes while competing at a high level. She emphasizes the importance of preparation, mental resilience, and community support, particularly from fellow athletes like JJ Spaun. Nancy offers valuable advice for young girls with diabetes, encouraging them to embrace their dreams and navigate the unique challenges they face in sports. Chapters 00:00 Introduction to Nancy Cox and Her Journey 02:55 Diagnosis and Early Experiences with Diabetes 05:59 Preparing for Competitive Golf as a Diabetic 08:49 Winning the First Coast Women Amateur Championship 11:40 Inspiration from JJ Spaun and the Diabetic Community 14:55 Advice for Young Girls with Diabetes 17:46 Daily Life and Diabetes Management in Golf 20:46 Conclusion and Future Aspirations Resources: Follow Nancy Cox on Instagram
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Episode 332 - Playing College Basketball with T1D - Cooper Farrall the T1D Hooper
In this episode, Rob Howe interviews Cooper Farrall, a college basketball player living with Type 1 Diabetes (T1D). They discuss Cooper's journey from diagnosis at age 11, the challenges he faced growing up with diabetes in a small town, and his decision to share his story publicly to inspire others. The conversation delves into the complexities of managing diabetes while playing elite sports, the importance of community support, and Cooper's initiative to give back through a basketball camp for kids with diabetes. Chapters 00:00 Introduction to the Journey of T1D Hoopers 01:41 Cooper's Diagnosis and Early Challenges 04:43 The Decision to Share His Story 09:18 Growing Up with T1D in a Small Town 12:24 Navigating the Recruiting Process with T1D 19:19 Managing Blood Sugar During College Sports 25:20 Overcoming Mental Battles in Sports 32:23 Embracing Diabetes as Part of the Journey 38:21 Giving Back Through Basketball Camps Follow The T1D Hooper on Instagram
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Episode 331 - Why Mental Health Matters in Diabetes Care with Cassadie Farnsworth
In this episode, Rob interviews Cassadie Farnsworth, a creator and advocate for those living with diabetes. Cassadie shares her personal journey of being misdiagnosed with type 2 diabetes before receiving the correct type 1 diagnosis. The conversation delves into the importance of mental health in diabetes management, the role of humor in coping with challenges, and the significance of building a supportive community. Cassadie discusses her transition from a career in cancer research to pursuing a path in healthcare, emphasizing the need for self-love and grace in managing diabetes. The episode also highlights the importance of partners in diabetes care and creating safe spaces for open conversations about the condition. Chapters 00:00 Introduction to Cassadie Farnsworth 00:44 Cassadie's Diagnosis Journey 03:43 Transitioning from Research to Clinical Practice 05:43 The Importance of Mental Health in Diabetes Management 10:30 Complications and Self-Love 16:26 Celebrating Small Wins in Diabetes Management 19:22 Influence of Psychology on Diabetes Care 21:10 Navigating Mental Health and Diabetes 21:47 The Importance of Daily Work for Mental Health 22:41 Finding Humor in Diabetes 23:40 Building Community Through Shared Experiences 26:28 The Role of Partners in Diabetes Management 27:17 Asking for Help: A Personal Journey 30:57 Creating a Supportive Environment 32:16 Navigating Relationships with Diabetes 37:30 Mental Health Strategies for Living with Diabetes Resources: Cassidy’s Instagram (@the_pa.tient)
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Episode 330 - Zan Fleming - Founder and Executive Chairman of Kinexum
In this episode of the Diabetes Innovators Series, the conversation explores the evolution of diabetes treatment, the challenges faced in managing diabetes today, and the future of diabetes research. Zan, an endocrinologist and former FDA executive and Founder and executive chairman of Kinexum, shares insights from his career, including the historical context of diabetes management, the importance of A1C as a marker, and the potential of new treatments like GLP-1 agonists. The discussion also touches on the concept of meta-abesity, the shared root causes of chronic diseases, and the need for a focus on health span rather than just lifespan. Chapters 00:00 Introduction to Diabetes Innovation Series 03:06 Zan's Journey in Diabetes Research 06:05 Transforming Diabetes Treatment: A Historical Perspective 09:00 The Evolution of Diabetes Management Tools 11:42 Challenges in Diabetes Management Today 14:41 The Future of Diabetes Treatment: Aiming for a Cure 17:57 Understanding the Drug Approval Process 20:32 Meta-Abesity: A New Perspective on Chronic Diseases 23:48 Innovations in Longevity and Health Span 26:27 The Role of GLP-1 Agonists in Diabetes Management 29:29 Future Directions in Diabetes Research 32:29 Memorable Moments in Drug Proposals 35:37 Conclusion and Future Collaborations Resources: Kinexum Zan Fleming
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Episode 329 - Stacey Simms - Author & Host of Diabetes Connections & Diabetes Connections Presents Mom's Night Out
In this episode of the Diabetes Innovators Series, Rob interviews Stacey Simms, host of Diabetes Connections, author of World’s Worst Diabetes Mom Series, and host and creator of Diabetes Connections Presents Mom’s Night Out event. They discuss the innovative approaches to diabetes support, particularly through the Moms Night Out events. Stacey shares her journey from being a diabetes mom to creating a community for other mothers, emphasizing the importance of connection and support. They explore the evolution of diabetes care, the challenges faced by caregivers, and the significance of media literacy in diabetes advocacy. The discussion highlights memorable moments from the events and the impact they have on participants, as well as the future of diabetes innovations. Chapters 00:00 Introduction to Diabetes Connections and Innovators 03:03 The Evolution of Diabetes Support and Community 05:54 The Birth of Moms Night Out 08:51 The Impact of Moms Night Out Events 11:47 Navigating the Challenges of Diabetes Caregiving 14:50 Memorable Moments from Moms Night Out 17:56 The Journey of a Diabetes Creator 20:46 The Importance of Media Literacy in Diabetes Advocacy 23:45 Looking Ahead: Future of Diabetes Innovations Resources: Diabetes Connections Mom’s Night Out World’s Worst Diabetes Mom Series
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Episode 328 - Dr. Leonard D'Avolio & Dr. Monica Gomberg - Blue Circle Health
In this episode of the Diabetes Innovators Series, Rob interviews Dr. Monica Gomberg and Leonard D'Avolio from Blue Circle Health, discussing the innovative approaches they are taking to improve diabetes care, particularly for those with type 1 diabetes. They emphasize the importance of accessibility, community support, and a holistic approach to healthcare, aiming to bridge the gap between patients and the resources they need. The team shares insights on their personalized care model, collaboration with healthcare providers, and the positive outcomes they are achieving for their patients. Chapters 00:00 Introduction to Blue Circle Health 01:44 The Promise of Accessibility in Diabetes Care 04:55 Innovative Care Models for Type 1 Diabetes 10:21 Holistic Support and Community Connection 15:02 Building a Dedicated Team for Diabetes Care 19:54 Collaboration with Healthcare Providers 25:14 Measuring Outcomes and Patient Satisfaction 29:28 Expanding Access and Future Plans Resources: Blue Circle Health Dr. Monica Gomberg Leonard D'Avolio
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Episode 327 - Farhaneh Ahmadi - CEO & Co-Founder of Eddii
In this episode of the Diabetes Innovators Series, Rob interviews Farhaneh Ahmadi, CEO and co-founder of Eddii, a virtual care solution for diabetes management. They discuss the evolution of Eddie from a daily management app to a comprehensive virtual clinic, addressing barriers to endocrinology care, the importance of insurance coverage, and the integration of technology for better patient outcomes. Farhan shares his personal journey with diabetes and how it inspired the creation of Eddie, emphasizing the need for accessible and patient-centric care. The conversation also touches on future directions for Eddie, including expanding services and enhancing mental health support. Chapters 00:00 Embracing the Cringe: Personal Reflections on Self-Image 01:00 Introducing Eddie: A Comprehensive Virtual Care Solution 02:17 The Evolution of Eddie: From App to Virtual Clinic 03:25 Breaking Barriers: Access to Endocrinology Care 05:18 Insurance and Accessibility: Making Care Affordable 07:38 Empowering Providers: A New Model for Endocrinology 08:56 Patient-Centric Care: Customizing the Experience 10:19 The Inspiration Behind Eddie: A Personal Journey 12:34 Integrating Technology: Real-Time Data for Better Management 13:58 Unique Features: Glucose Alert Calls and Support 15:44 Future Directions: AI and Expanding Care Options 17:54 Raising Awareness: The Need for Accessible Endocrinology 20:13 Navigating Care: Understanding Options and Costs 21:35 Leadership Insights: Books and Personal Growth Resources: Eddie Farhaneh Ahmadi LinkedIn
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Episode 326 - Jonathan Rigby - CEO and Chairman of Sernova
In this episode of the Diabetes Innovators Series, Rob interviews Jonathan Rigby, CEO of Sernova Biotherapeutics, about the innovative approaches to treating type 1 diabetes, particularly through the development of a biohybrid organ known as the cell pouch. Jonathan shares his personal journey as a type 1 diabetic and discusses the clinical trials, patient selection, and the future of diabetes treatment, including the challenges of immunosuppression and the complexities of daily diabetes management. The conversation emphasizes the importance of innovation in diabetes care and the hope for a future where patients can achieve insulin independence. Chapters 00:00 Introduction to Diabetes and Innovation 02:51 The Cell Pouch Biohybrid Organ 05:53 Clinical Trials and Patient Selection 08:48 Living with Type 1 Diabetes 11:51 Future of Diabetes Treatment 14:47 Immunosuppressants and Cell Acceptance 17:48 The Complexity of Diabetes Management 20:44 Conclusion and Future Outlook Resources: Sernova Jonathan Rigby LinkedIn
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Episode 325 - Dr. Viral Shah, Professor of Medicine of Endocrinology Indiana University
In this episode of the Diabetes Innovators Series, Rob interviews Dr. Viral N Shah discussing the Adjust T1D trial, which investigates the effects of semaglutide, a GLP-1 agonist, on adults with type 1 diabetes. The trial aims to explore adjunctive treatment options beyond insulin, focusing on improving glycemic control, weight loss, and overall patient outcomes. Dr. Shah shares insights on the trial's design, results, safety profile, and implications for future diabetes management, emphasizing the need for continued research and community support. Chapters 00:00 Introduction to the Adjust T1D Trial 03:06 Understanding Type 1 Diabetes and Treatment Options 05:46 Results of the Adjust T1D Trial 08:54 Safety and Efficacy of Semaglutide 11:45 Implications for Type 1 Diabetes Management 14:52 Future Research and Community Impact Resources: Dr. Viral Shah
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Episode 324 - Dr. Anath Shalev - Founder and CSO - TIXiMED
In this episode of the Diabetes Innovators Series, Rob interviews Dr. Anath Shalev discussing the recent advancements in TIXiMed's TIX100, an oral therapy for type 1 diabetes. The conversation covers the successful completion of a phase one study, the implications of the results, and the potential impact of TIX100 on diabetes management. Dr. Shalev emphasizes the importance of addressing beta cell dysfunction and the exciting metabolic signals observed during the study. The discussion also touches on the future directions for TIX100 and its role in improving the lives of diabetes patients. Chapters Chapters 00:00 Introduction to TixiMed and TIX100 01:16 Phase One Study Results and Implications 05:22 Metabolic Signals and Future Studies 08:11 The Role of TIX100 in Diabetes Management 09:47 Future Directions and Patient Impact Resources: TIXiMED Dr. Anath Shalev
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Episode 323 - Dr. Mike C. Riddell - York University
In this episode of the Diabetes Innovators Series, Rob interviews Dr. Michael Riddell and discuss the latest innovations in diabetes management, particularly focusing on exercise, education, and emerging therapies. He emphasizes the importance of personalized approaches to diabetes care, the role of artificial intelligence in optimizing treatment, and the hope surrounding potential cures such as islet transplants. The discussion highlights the challenges faced by individuals with diabetes, the significance of education and support, and the exciting advancements in technology and medication that are shaping the future of diabetes management. Chapters 00:00 Intentionality in Diabetes Management 02:11 Innovations in Diabetes and Exercise 05:51 Education and Support for Exercise 09:35 Personalized Approaches to Diabetes Management 10:34 The Role of AI in Diabetes Care 12:50 Emerging Therapies and Medications 15:40 Hope for a Cure: Islet Transplants 17:20 The Impact of Technology on Diabetes Management 18:49 The Influence of Lifestyle Factors 20:52 Inhaled Insulin and Its Benefits Resources: Glucose Control During Physical Activity and Exercise Using Closed Loop Technology in Adults and Adolescents with Type 1 Diabetes by Dr. Riddell & Dr. Dessi Zaharieva Dr. Michael Riddell
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Episode 322 - Eric Benjamin - Chief Product and Customer Experience Officer at Insulet
In this episode of the Diabetes Innovators Series, Eric Benjamin, Chief Product and Customer Experience Officer at Insulet, discusses the latest innovations in diabetes management, particularly focusing on the integration of the Dexcom G7 with the Omnipod 5 system. He emphasizes the importance of usability, patient-centric design, and the company's commitment to making diabetes management easier and more effective for users. Eric shares insights into the future of closed-loop systems and the cultural ethos at Insulet that drives their innovation efforts. Chapters 00:00 Introduction to Insulet and Eric Benjamin 00:40 Integration of Dexcom G7 with Omnipod 5 02:22 Innovations in Diabetes Management 04:58 Patient-Centric Approach to Diabetes Technology 07:54 Cultural Ethos at Insulet 09:32 Quality and Reliability in Diabetes Solutions 11:29 Conclusion and Future Outlook Resources: Omnipod Insulet Eric Benjamin LinkedIn
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Episode 321 - Paul DiPerna - President and Chairman of Modular Medical
In this episode of the Diabetes Innovators Series, Paul DiPerna, President and Chairman of Modular Medical, discusses the innovative Pivot product designed for diabetes management. He emphasizes the need for simpler solutions for less engaged patients, reflecting on his journey in diabetes technology and the challenges of balancing innovation with user needs. The discussion also touches on the psychological aspects of diabetes care and the future of diabetes management, including the anticipated launch of the Pivot. Chapters 00:00 Introduction to Modular Medical and the Pivot 00:40 Understanding the Pivot: A New Approach to Diabetes Management 04:22 The Journey of Modular Medical: Lessons from Tandem Diabetes Care 08:06 Meeting Patients Where They Are: Simplifying Diabetes Care 10:53 Overcoming Resistance: Introducing the Pivot to Patients 12:59 The Balance of Innovation: Addressing Diverse Patient Needs 17:11 The Psychological Aspects of Diabetes Management 18:47 Future of Diabetes Management: Innovations on the Horizon 22:54 Launch Plans for the Pivot: A New Era in Diabetes Care Resources: Modular Medical
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Episode 320 - Scott Hebl - Vice President for Program Management at Medtronic
In this episode of the Diabetes Innovators Series, Scott Hebl, Vice President for Program Management at Medtronic, discusses the exciting innovations and future of the MiniMed brand following its separation from Medtronic. He highlights the importance of simplifying diabetes management through advanced technology, including artificial intelligence and user-friendly devices. Scott shares his personal journey with medical devices and his passion for improving patient care. Chapters 00:00 The Excitement of Innovation in Diabetes Care 02:05 Future Innovations and Technology in Diabetes Management 06:03 Insights from the Scientific Sessions 08:19 Personal Journey and Passion for Medical Devices Resources: Medtronic Scott Hebl LinkedIn
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Episode 319 - Jake Leach - President and COO of Dexcom
In this episode of the Diabetes Innovators Series, Jake Leach, President and COO of Dexcom, discusses the evolution of Dexcom's continuous glucose monitoring (CGM) technology, its integration with other health technologies, and the impact on diabetes management. He highlights the importance of awareness and access to CGM for type 2 diabetes patients, the advancements in product reliability, and the future innovations that Dexcom is working on to enhance user experience and improve diabetes care. Chapters 00:00 Introduction to Dexcom and Jake Leach 01:23 The Evolution of Continuous Glucose Monitoring 05:15 Integration with Health Technologies 07:44 Advancements in Diabetes Management 10:27 Product Quality and User Experience 15:31 Looking Ahead: ADA Conference Insights Resources: Dexcom Jake Leach LinkedIn
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Episode 318 - Jennifer Stone - Hollywood, Healthcare and navigating change with T1D
In this episode, Rob interviews Jennifer Stone, a prominent public figure in the diabetes community, and Disney star on the Wizards of Waverly Place, discussing her journey with type 1 diabetes, her experiences in Hollywood, and her transition into nursing. They explore the challenges of living with diabetes, the importance of education and advocacy, and the emotional burden that comes with managing the condition. Jennifer shares her insights on the healthcare system, the need for better understanding among providers, and the significance of community support for those living with diabetes. The conversation highlights the realities of diabetes management, the impact of personal growth, and the importance of open discussions about the struggles and triumphs of living with a chronic illness. In this conversation, Jen and Rob explore the profound impact of trauma on identity, particularly in the context of healthcare workers during the pandemic. They discuss the importance of self-discovery and personal growth, especially as they navigate the complexities of living with diabetes. The dialogue emphasizes the need for community support, advocacy, and the significance of individual experiences in managing chronic illness. They also reflect on the power of perspective, self-belief, and the importance of taking up space in both personal and professional realms. Chapters 00:00 Introduction to Jennifer Stone 02:50 Navigating Life with Diabetes 05:49 Understanding Diabetes Diagnosis and Education 08:53 The Role of Healthcare Providers 12:00 Diabetes Advocacy in Professional Life 15:09 The Emotional Burden of Diabetes 17:52 Community and Shared Experiences 20:53 The Reality of Living with Diabetes 23:55 Personal Growth and Change 26:56 Conclusion and Reflections 35:53 Processing Trauma and Identity Transformation 39:30 Navigating Diabetes and Individuality 45:09 The Importance of Community and Advocacy 52:30 Embracing Change and Personal Growth 57:28 The Power of Perspective and Self-Belief Resources: Jennifer Stone Instagram
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Episode 317 - For the Love of the Game and T1D - Jordan Robinson
In this episode, Rob interviews Jordan Robinson, a passionate basketball player and advocate for diabetes awareness. Jordan shares her journey of being diagnosed with type 1 diabetes at 23, the challenges she faced in the healthcare system, and the vital support she received from her family. The conversation delves into the importance of trusting oneself, the role of basketball in Jordan's life, and her current work in promoting women's basketball through her show, The Women's Hoop Show. In this engaging conversation, Jordan Robinson and Rob Howe explore the evolution of women's basketball, personal growth, and the importance of self-compassion. They discuss the rise of women's sports, the significance of mentorship, and the challenges faced by aspiring creators in the industry. Jordan shares her pinch-me moments and emphasizes the need for grace in both personal and professional life, especially in the context of living with diabetes. The conversation concludes with a celebration of community and the joy of basketball. Chapters 00:00 Introduction to Jordan Robinson and Diabetes Legends 01:38 Jordan's Diagnosis Story and Early Life with Diabetes 05:16 Family Support and Advocacy in Healthcare 10:06 Trusting Yourself and Your Body 13:41 The Role of Basketball in Jordan's Life 20:02 Love the Game, It Will Love You Back 27:00 The Women's Hoop Show and Future of Women's Basketball 28:54 The Evolution of Women's Basketball 35:44 Personal Growth and Pinch-Me Moments 39:12 Advice for Aspiring Creators 47:23 Embracing Grace and Self-Compassion 51:11 The Joy of Basketball and Community
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Episode 316 - Professional Basketball and T1D - Jordy Kuiper
In this conversation, Rob and Jordy Kuiper discuss the intersection of living with type 1 diabetes and pursuing a career in basketball. They share personal experiences, the importance of community support, and the challenges faced in managing diabetes while competing at high levels. They emphasize the significance of positive reinforcement from healthcare professionals and the impact of language on young athletes' perceptions of their capabilities. They also touch on the realities of transitioning to professional sports and the ongoing battle of managing diabetes in high-pressure situations. Chapters 00:00 Introduction to Diabetes Legends 06:40 Jordy's Journey with Diabetes 08:28 The Impact of Diagnosis 14:01 The Role of Healthcare Professionals 17:33 Building Confidence Through Sports 23:05 Community and Support in the Netherlands 27:30 Transitioning to Spain and Independence 32:01 The Game-Changing Insulin Pump 33:20 The Journey to UNCG: A Unique Recruitment Story 35:45 Embracing Diabetes: A Coach's Perspective 37:22 Cultural Shock: Transitioning to College Basketball in the U.S. 39:09 Navigating Healthcare: The Reality of Diabetes in the U.S. 46:03 Managing Diabetes During a Professional Career 54:24 The Reality of Living with Diabetes: Beyond the Wins
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Episode 315 - Exercise & T1D Livestream w/ Dr. Dessi Zaharieva & Chris Bright
In this live stream event, Rob Howe hosts a panel discussion with experts Desi Zaharieva and Chris Bright, focusing on the intersection of exercise and type 1 diabetes. The conversation covers the importance of exercise for diabetes management, the differences between aerobic and anaerobic exercise, and the mental health benefits associated with physical activity. The panelists share their personal experiences and insights, emphasizing the need for a supportive community and the resilience required to navigate the challenges of living with diabetes while staying active. This conversation explores the intersection of diabetes management and sports, emphasizing the importance of vulnerability, mental health, and community support. The speakers discuss the challenges of managing blood glucose levels during athletic activities, the impact of exercise on mental well-being, and the need for greater awareness and advocacy within the sports community. They share personal experiences and insights on adapting to life changes as athletes and the significance of celebrating small victories in health management. Chapters 00:00 Introduction to the Live Stream Event 08:03 Meet the Experts: Desi and Chris 11:45 Understanding the Clinical Benefits of Exercise 21:42 Aerobic vs. Anaerobic Exercise: Impacts on Diabetes 28:02 Community and Team Dynamics in Diabetes Sports 33:32 The Power of Vulnerability in Sports 34:14 Understanding Diabetes Management in Sports 37:00 Factors Influencing Blood Glucose Levels 42:03 Mental Health and Exercise 45:32 Adapting to Life Changes as an Athlete 50:15 Navigating Diabetes in Competitive Sports
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Episode 314 - Help T1Ds in Myanmar with Jerry Gore Action 4 Diabetes
In this episode, Rob Howe speaks with Jerry Gore, co-founder of Action for Diabetes, about the dire situation for people with type 1 diabetes in Myanmar following a devastating earthquake. They discuss the challenges faced by diabetics in the region, the urgent need for insulin and medical supplies, and the efforts of Action for Diabetes to provide support. Jerry shares personal stories of resilience and hope, highlighting the importance of community and motivation in managing diabetes. The conversation emphasizes the need for donations and support to help those affected by the crisis. Donation links: https://www.justgiving.com/campaign/myanmar-earthquakefundraiser https://give.asia/campaign/a4d-myanmar-earthquakefundraiser#/donations Chapters 00:00 Introduction to Action for Diabetes and the Crisis in Myanmar 03:03 Understanding the Living Conditions in Myanmar 06:02 The Day-to-Day Life of a Type 1 Diabetic in Myanmar 09:04 Impact of the Earthquake on Diabetes Care 12:14 Current Situation and Urgent Needs 14:50 How to Help and Get Involved 17:57 Success Stories and Achievements of Action for Diabetes 21:08 The Importance of Sustainable Support 23:49 Reflections on the Diabetes Community and Global Disparities 27:13 Future Goals and Expansion of Action for Diabetes 33:14 Tipping Points in Diabetes Awareness 36:35 The Power of Community and Motivation 42:28 Connecting Through Shared Experiences 44:30 Advancements in Diabetes Management 46:32 Supporting Diabetes Initiatives Resources: www.action4diabetes.org
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Episode 313 - Karate Champion Alizée Agier’s Journey
Doing Well with Diabetes is a podcast series collaboration between the International Diabetes Federation and the Diabetics Doing Things podcast. During this series, host Rob Howe interviews athletes living with diabetes from around the globe to help inspire the next generation of athletes with diabetes to continue to work towards their dreams while doing well with diabetes. Doing Well with Diabetes is part of the Kids and Diabetes in Schools program. Diabetics Doing Things has donated all production and promotion in-kind. In this episode of ‘Doing Well with Diabetes,’ host Rob Howe interviews Alizée Agier, a karate champion from France, about her experiences as an athlete living with type 1 diabetes. Alizee shares her diabetes diagnosis journey being identified for the markers of T1D prior to developing it, the impact of diabetes on her athletic career, her strategies for managing glucose levels during intense training and competition, and the significance of carrying the Olympic torch through her hometown prior to the 2024 Paris Olympics. The conversation also touches on the importance of connecting with the diabetes community and maintaining a positive mindset.
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Episode 312 - 10-Time Olympic Medalist Gary Hall Jr.’s Journey with Diabetes
Editor’s note: This episode was recorded prior to the 2025 fires that ravaged Los Angeles, including Gary Hall Jr.’s home in the Pacific Palisades: you can donate to his go fund me at this link and support additional efforts to support those affected in Los Angeles here. Doing Well with Diabetes is a podcast series collaboration between the International Diabetes Federation and the Diabetics Doing Things podcast. During this series, host Rob Howe interviews athletes living with diabetes from around the globe to help inspire the next generation of athletes with diabetes to continue to work towards their dreams while doing well with diabetes. Doing Well with Diabetes is part of the Kids and Diabetes in Schools program. Diabetics Doing Things has donated all production and promotion in-kind. In this episode of ‘Doing Well with Diabetes,’ host Rob Howe interviews Gary Hall Jr., the most decorated Olympian with type 1 diabetes. Gary shares his experiences leading up to and following his diagnosis in 1999, discussing the challenges and triumphs of managing diabetes as a top-level athlete. They delve into the nuances of diabetes management, the importance of perseverance, and the critical support systems that aided Gary in his career. The conversation also addresses broader topics such as advocacy, the role of sports in diabetes management, and the future of diabetes care. Resources: Kids IDF
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Episode 311 - "I Don't Have Diabetes Anymore" with Sarah Camrie
Content Warning: Diabetes Complications, Diabulimia In this episode of Diabetics Doing Things, Rob interviews Sarah Camrie, a TikTok influencer who shares her unique journey of living with type 1 diabetes for 31 years and experiencing a cure through a Simultaneous Kidney and Pancreas (SPK) Transplant in October 2024. Sarah discusses her life with diabetes from a young age, her struggles with diabulimia, meeting her supportive husband, and the onset of chronic kidney disease triggered by her second pregnancy. She elaborates on the complex decision to undergo SPK, the benefits and challenges post-transplant, and her new life without diabetes. The conversation touches on the importance of sharing her story to educate and inspire others, tackling misconceptions about the procedure and the trade-offs she's faced. Sarah's openness and positive outlook provide a profound insight into living without type 1 diabetes and the realities of organ transplants.
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Episode 310 - Diabetics Doing Things 2024 Wrapped with Rob Howe
Diabetics Doing Things 2024 Wrapped: Achievements, Reflections, and Future Plans In this episode, Rob Howe reflects on the accomplishments of 'Diabetics Doing Things' in 2024. He highlights major milestones, including publishing 52 podcast episodes, hosting and speaking at numerous events, and achieving personal milestones like 20 years with diabetes and six months of sobriety. He also discusses the future plans for 2025, focusing on improving podcast content, securing bigger guests, and launching the Diabetes Legends Foundation for youth and adult events. Rob emphasizes the importance of community and looks forward to continued growth and success in the new year. 00:00 Introduction and 2024 Recap Overview 01:14 Reflecting on 20 Years with Diabetes 03:48 Achievements and Events of 2024 08:44 Podcast Highlights and Listener Stats 12:34 Looking Ahead to 2025 17:13 Diabetes Legends Nonprofit Announcement and Conclusion
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Episode 309 - Lara McSpadden on Balancing Professional Basketball and Diabetes Management
Doing Well with Diabetes is a podcast series collaboration between the International Diabetes Federation and the Diabetics Doing Things podcast. During this series, host Rob Howe interviews athletes living with diabetes from around the globe to help inspire the next generation of athletes with diabetes to continue to work towards their dreams while doing well with diabetes. Doing Well with Diabetes is part of the Kids and Diabetes in Schools program. Diabetics Doing Things has donated all production and promotion in-kind. In this episode of Doing Well with Diabetes, host Rob Howe interviews professional basketball player Lara McSpadden. Lara shares her experiences of living with diabetes for nearly 18 years and how it intersects with her career as an athlete. They discuss the challenges of managing diabetes while maintaining a rigorous training and playing schedule, the importance of a strong support system, and mental health. Lara also provides insights into her routines, favorite diabetes management tips, and advice for young athletes with diabetes. This inspiring conversation aims to encourage those living with diabetes to pursue their dreams while effectively managing their condition. Resources: Kids IDF
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Episode 308 - Perfection is a Myth, with guest Stephanie Ratcliffe (Doing Well with Diabetes)
Doing Well with Diabetes is a podcast series collaboration between the International Diabetes Federation and the Diabetics Doing Things podcast. During this series, host Rob Howe interviews athletes living with diabetes from around the globe to help inspire the next generation of athletes with diabetes to continue to work towards their dreams while doing well with diabetes. Doing Well with Diabetes is part of the Kids and Diabetes in Schools programme. Diabetics Doing Things has donated all production and promotion in-kind. In this episode of Doing Well with Diabetes, host Rob Howe interviews Stephanie Ratcliffe, an Olympic hammer thrower living with type 1 diabetes who was recently part of Australia’s 2024 Olympic Team. Stephanie shares her journey of managing diabetes while excelling in athletics and academics, including her experiences at the University of Georgia and Harvard University. Stephanie and Rob discuss the unrealistic expectation of maintaining perfect blood sugar levels for people with type 1 diabetes. They highlight the dangers of striving for perfection, likening it to general life pressures that can bring about stress and negativity. They emphasize the importance of managing diabetes to the best of one’s ability without demanding perfection. Stephanie also discusses the challenges and strategies for managing diabetes in high-pressure situations, the importance of a positive mindset, and her hopes of inspiring the next generation of athletes with diabetes. The episode highlights Stephanie growth in embracing her diabetes identity and connecting with the type 1 community. Resources: Kids IDF
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Episode 307 - Can you run an Iron Man with 90% time in range with T1D? with Matt Vande Vegte
While you’re listening to this episode, be sure to check out Matt’s new book "The Blood Sugar Freedom Formula" which just launched and is available on Amazon. It is currently listed as a best seller, so don't miss out on Matt's breakdowns of the complex management of insulin-dependent diabetes into a simple manner to make it not only manageable, but finally possible to master. In this episode of Diabetics Doing Things, Rob reconnects with Matt Vande Vegte, also known as FTF Warrior, who shares his incredible journey from training for triathlons to completing his first full Ironman. Matt discusses the lifestyle changes and mental resilience required to balance diabetes management with rigorous athletic training. He shares insights on proactive and reactive blood sugar management strategies, lessons learned from his experience, and the importance of community support. His story emphasizes the power of adaptability, the value of mental health, and the inspirational possibilities for those living with diabetes. 00:00 Introduction and Guest Reintroduction 00:41 Matt's Triathlon Journey Begins 02:41 Lifestyle Changes and Sacrifices 04:51 The Power of Hard Challenges 10:44 Diabetes Management Strategies 15:49 Lessons from Ironman Training 21:52 Faith and Learning from Blood Sugars 23:53 Connecting with Fellow Type 1 Diabetics 24:07 Challenges During the Swim 24:47 Managing Insulin on the Bike Ride 25:38 Unexpected Obstacles and Adaptations 32:45 The Marathon and Final Push 35:06 Reflecting on the Ironman Experience 37:26 Balancing Mental Health and Diabetes Management 43:55 Concluding Thoughts and Gratitude Resources: Matt’s Instagram FTF Warrior Youtube Channel
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Episode 306 - Entrepreneurship & Diabetes with Ethan Lewis, Founder of Transcend Foods
In this episode of 'Diabetics Doing Things, Rob reflects on the 10-year anniversary of the podcast and welcomes guest Ethan Lewis, founder of Transcend Foods. They explore Ethan's journey, from his diagnosis of type 1 diabetes at age 12 to becoming an entrepreneur. Ethan talks about the challenges and stigmas people with diabetes face and how his company, Transcend Foods, aims to provide accessible, effective, and non-clinical solutions for helping navigate highs and lows. They discuss the importance of mental health, the role of innovation, and the evolving landscape of diabetes management. The conversation also touches on new product developments like hydration drink mixes and highlights the significance of normalizing life with diabetes. 00:00 Welcome and Introduction 00:40 Meeting Ethan Lewis from Transcend Foods 01:45 Ethan's Diagnosis and Early Life with Diabetes 05:45 Entrepreneurial Journey Begins 08:30 Founding Transcend Foods 12:53 Making Diabetes Management Easier 16:27 Challenges of Living with Diabetes 18:59 Embracing Vulnerability in Business 19:36 Normalizing Diabetes Management 21:28 Mental Health and Diabetes 22:14 Daily Routines for Managing Diabetes 24:24 The Importance of Hydration 25:33 Innovations in Diabetes Care 32:10 The Reality of Living with Diabetes 35:54 Inspiration and Gratitude 37:17 Conclusion and Final Thoughts Resources: Transcend Foods
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Episode 305 - Navigating the Future of Diabetes Advocacy with Shaina Kasper
In this episode of Diabetics Doing Things, Shaina Kasper, the newly appointed executive director of T1 International, joins the podcast to discuss the organization's ongoing and future initiatives. Shaina elaborates on key topics such as the transition of leadership, the global fight for affordable insulin, the role of policy in diabetes advocacy, and why T1 International refuses pharmaceutical funding. The conversation also touches on the impact of climate disasters, conflict zones, and political actions on insulin access. Additionally, Shaina emphasizes the importance of community and patient-led research and how listeners can contribute to the cause through surveys, petitions, and grassroots support. The episode calls for voters to be informed about the implications of policy changes and to participate actively in advocacy efforts for systemic change. 00:00 Introduction and Recap of Part One 00:16 Welcoming Shaina Kasper 01:48 Global Challenges and Human Rights 03:57 T1 International's Policy Focus 07:20 Personal Stories and Advocacy 09:36 Survey and Research Initiatives 10:58 Policy Priorities and Legislative Actions 14:22 Challenges in the Pharmaceutical Industry 30:07 The Importance of Independent Advocacy 35:41 Call to Action and Conclusion Resources: Public Citizen Report: Mapping the Phrma Grant Universe T1 International - How to Get Involved
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Episode 304 - Liz Pfiester Reflects on a Decade of Advocacy with T1 International
Transition in Leadership: Liz Pfeister Reflects on a Decade of Advocacy with T1 International In this episode of Diabetics Doing Things, host Rob Howe interviews Liz Pfeister, the founder and outgoing Executive Director of T1 International. They discuss Liz's journey from founding the organization to advocating for insulin access and addressing overwhelming challenges in conflict zones. Liz shares insights on the emotional and logistical difficulties of stepping down and the vital importance of community in advocacy work. They also explore the future of T1 International under the new leadership of Shaina Kasper and emphasize the enduring fight for global insulin access. 00:00 Welcome and Introduction 01:46 Meet Liz Pfeister: Founder of T1 International 02:59 The Journey of T1 International 07:01 The Highs and Lows of Advocacy 16:08 Future of T1 International 19:28 Global South and Conflict Zones 27:28 Reflections on Advocacy and Independence 32:54 Advice for Aspiring Advocates 38:10 Final Thoughts and Farewell
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Episode 303 - Breaking Stigmas & Building Confidence as a Diabaddie with Antoinette Watkins
Embecta disclaims any control over, relationship with, or endorsement of, or the accuracy, truthfulness or completeness of the content or view expressed in this Podcast, which are solely those of the speaker and not necessarily those of embecta. embecta does not guarantee the accuracy or reliability of the information provided therein. Any and all comments and post are from members of the public community and do not necessarily reflect the views of embecta. This episode of Diabeteics Doing Things features Antoinette Watkins, the founder of Diabaddie Org. She discusses her personal journey with Type 1 Diabetes (T1D), from being diagnosed at a young age to her extensive dance career and eventual pivot to healthcare to better support the T1D community. Antoinette highlights the importance of diabetes camps in normalizing the experience for young diabetics and her efforts to make these opportunities more accessible to minority communities. She also delves into the stigmas faced by minority diabetics and the need for representation and role models in the diabetes community. Sponsored by Embecta, this episode is a beacon of inspiration and empowerment for anyone affected by diabetes. 00:00 Introduction and Sponsor Message 00:35 Meet Antoinette Watkins 02:42 Antoinette's Diabetes Journey 06:52 Living with Diabetes: Challenges and Triumphs 13:55 Diabaddie Org and Community Impact 20:41 Starting Diabaddie: The Inspiration and Mission 22:07 The Importance of Diabetes Camp 23:16 Challenges and Triumphs of Diabetic Kids at Camp 25:20 Expanding Horizons: Chris Dudley Basketball Camp 32:57 Personal Journey and Stigma in Minority Communities 37:13 The Power of Representation and Role Models 42:51 Final Thoughts and Future Plans The Diabaddie Organization Diabaddie Instagram
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Episode 302 - Type 2 Stigmas & Managing Diabetes as a Sports Photographer with Keith Crear
In this episode, Rob interviews Keith Crear, who shares personal narratives and professional insights about managing type 2 diabetes. The featured guest, a photographer contributing to NFL and MLS, recounts his diagnosis in 2017 following an incident of heat exhaustion and his journey from confusion to effective management through self-research and specialized counseling. Emphasizing personalized care and community support, he discusses the benefits of diet and exercise over insulin and reflects on balancing his creative career with diabetes management. The episode explores significant milestones in his profession, covering major soccer events and aspirations for the 2028 Olympics and highlighting how diabetes has shaped his perspective and growth. Additionally, the conversation tackles the stigma and misinformation surrounding diabetes, particularly in cultural contexts, and underscores the need for individualized care, the role of a supportive medical team, and the importance of sharing personal stories to inspire and educate others. 00:00 Introduction and Sponsor Message 00:36 Welcome and Guest Introduction 01:27 Diagnosis Story and Initial Reactions 03:05 Navigating Life with Diabetes 06:01 Finding the Right Support 09:34 Life as a Sports Photographer with Diabetes 11:41 Creating Diabetes Awareness in the Community 17:02 Living with Diabetes: The Struggle and Perspective 17:50 Transformative Journey: Weight Loss and Self-Discovery 18:59 The Importance of Mental Health and Community Support 20:22 Debunking Myths and Building a Strong Medical Team 20:51 Sharing Personal Stories: Impact and Misconceptions 22:11 Navigating Life with Diabetes: Challenges and Stigmas 26:33 Breaking Barriers: Food, Culture, and Stigma 29:44 Type 1 vs. Type 2: Understanding the Differences 33:49 Connecting with the Diabetes Community 33:58 Final Thoughts and Staying Connected
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Episode 301 - Navigating Life with T1D through Advocacy with Renee Rayles
In this episode of Diabetics Doing Things, Rob speaks with Renee Rayles, the creator of Hey T1D, about her journey with Type 1 Diabetes. Renee shares how her diagnosis impacted her career in communications, acting, and broadcasting, underscoring the significance of preparation and informed decision-making. The discussion highlights the challenges of misdiagnosis and the importance of being proactive in healthcare. Renee also shares her advocacy work for affordable insulin and raising diabetes awareness through public events and social media. Emphasizing community support, the conversation covers overcoming stigma, misinformation, and the unique challenges faced by adults diagnosed with Type 1 Diabetes, particularly during the pandemic. Listeners are inspired by personal anecdotes and practical advice on managing diabetes, fostering community, and empowering both adults and children living with the condition. 00:00 Introduction and Sponsor Message 00:36 Meet Our Guest: Renee Rayles 00:55 Balancing a Career and Diabetes 0 2:59 Renee's Diagnosis Journey 03:55 Advocacy and Transparency 06:53 Misdiagnosis and Self-Advocacy 12:50 Jumping into Advocacy 18:06 The Early Days of Podcasting 18:23 The Power of Community Advocacy 18:59 Raising Diabetes Awareness 20:10 Personal Stories and Connections 25:15 Challenges and Misconceptions 27:52 Bullying and Body Image 30:36 Navigating Life with Diabetes 34:21 Resources and Support 35:18 Conclusion and Final Thoughts
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ABOUT THIS SHOW
Hosted by T1D Rob Howe, Diabetics Doing Things tells amazing stories of people with diabetes from across the globe, digging deep into everything it takes to Live Well with Diabetes and sharing exciting adventures along the way.
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Diabetics Doing Things
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