DSACO: Up for Discussion

In this episode, we sit down with Grace Simpson from Special Olympics to talk about the power of inclusion, advocacy, and community.We dive into what Down syndrome really means, break down common misconceptions, and highlight how programs like Special Olympics are creating meaningful opportunities for individuals with intellectual disabilities to thrive.What You’ll LearnWhat Special Olympics is and why it mattersA simple, real-life understanding of Down syndromeCommon myths vs. realityThe impact of sports on confidence, connection, and growthAdvice for families navigating a Down syndrome diagnosisWays you can support and advocate in your communityGet Involved: Down Syndrome Festival & 5KJoin us for one of the most impactful events of the year — a day of celebration, awareness, and community.Register, donate, or learn more here: https://dsfestivaland5k.comWays to participate:Run the 5KJoin the Awareness WalkCreate a team with friends, family, or coworkersStay for the festival full of music, food, and activitiesWhy This MattersInclusion is essential. This episode is a reminder that every individual deserves to be seen, valued, and given opportunities to succeed. Follow along, share this episode, and continue supporting the Down syndrome community through awareness, education, and action.

Get an exclusive behind-the-scenes look at how DSACO: Up for Discussion comes to life. In this special episode, Executive Director Sarah Soell sits down with the podcast’s producer, Adie, to talk about everything that goes into creating each episode—from brainstorming ideas to hitting publish.Listeners will learn what a podcast producer actually does, how episodes are planned and recorded, and what it takes to keep each conversation aligned with DSACO’s mission. Adie also shares favorite moments, challenges, and what makes this podcast so meaningful to be a part of.This episode is perfect for anyone curious about podcast production, storytelling, and the work that happens behind the mic.In This Episode:What a podcast producer does behind the scenesThe step-by-step process of creating an episodeHow topics and guests are selectedWhat recording days really look likeChallenges and favorite moments from producingHow the podcast supports DSACO’s missionSpecial Feature:Learn how you or your business can support the podcast through sponsorship opportunities. Email us at [email protected] Involved:Join us for the DSACO Cup Golf Tournament on May 4, 2026, at Rose Creek Golf Club! Register or become a sponsor: dsaco.org/golfKeep advocating, keep empowering, and keep educating!

In this episode, we explore the powerful role AmeriCorps plays in supporting nonprofits and strengthening communities. Sarah is joined by representatives from AmeriCorps to break down how national service programs operate, what “capacity building” really means, and how organizations like DSACO benefit from these partnerships.We discuss how AmeriCorps differs from traditional volunteer programs, the types of service opportunities available, and how individuals can get involved. The conversation also highlights the real impact AmeriCorps members have on nonprofits, from expanding programs to building long-term sustainability.Listeners will gain insight into how AmeriCorps selects partner organizations, why supporting disability-focused nonprofits is so important, and what makes DSACO a meaningful service site. We also dive into the personal growth and leadership development AmeriCorps members experience through their service.This episode is a great listen for anyone interested in nonprofit work, advocacy, community impact, or getting involved in service programs.If you’re passionate about making a difference, this conversation will leave you inspired by the power of service and partnership.To learn more about AmeriCorps or how to get involved, visit their website or connect with local service opportunities.Links: https://www.rrccok.org

n this special episode of DSACO: Up for Discussion, we sit down with an incredible panel of parents who share their experiences raising a loved one with Down syndrome. Each story is unique, filled with moments of growth, joy, and powerful perspective.Our panel opens up about what it was like when they first received their child’s diagnosis, the milestones that have meant the most, and the many ways their children continue to inspire and shape their families. They also share honest insights into common misconceptions about Down syndrome and what they wish others better understood.This conversation highlights the importance of community, support systems, and the beauty of celebrating every individual’s abilities. For parents who may be at the beginning of their journey, this episode offers encouragement, reassurance, and meaningful advice.In honor of World Down Syndrome Day (March 21), we also encourage everyone to join us in raising awareness by wearing silly or crazy socks and helping spread the message of inclusion.Whether you are a parent, family member, educator, or community supporter, this episode is a reminder of the impact of advocacy, acceptance, and celebrating every story.💛 In This Episode:Real experiences from parents of children with Down syndromeHonest conversations about diagnosis, growth, and milestonesCommon misconceptions and how to challenge themThe importance of community and supportAdvice for new and expecting parentsHopes and dreams for the future🧦 Get Involved:Celebrate World Down Syndrome Day by rocking your crazy socks and helping spread awareness! Learn more or get involved at: dsaco.org/wdsd

In this powerful and inspiring episode, we sit down with an incredible panel of self advocates who are currently in college.They share their experiences navigating campus life, building independence, overcoming challenges, and pursuing their dreams. From first-day nerves to favorite classes, this conversation highlights what inclusion truly looks like in action.College is about growth, confidence, and opportunity — and our panel reminds us that students with Down syndrome belong in every space where dreams are built.💙 In This Episode, We Discuss:Why they chose to attend college What independence means to them The importance of campus inclusion Challenges they’ve faced and how they overcame them Their career goals and dreams for the future What World Down Syndrome Day means to them🧦 World Down Syndrome Day – March 21Don’t forget to celebrate World Down Syndrome Day by wearing your silly socks!Silly socks help spark conversations about inclusion and raise awareness that individuals with Down syndrome have three copies of the 21st chromosome.📸 Take a photo in your silly socks and tag DSACO!! Learn more and get involved at: dsaco.org/wdsd🌟 About DSACOThe Down Syndrome Association of Central Oklahoma exists to support, educate, and advocate alongside individuals with Down syndrome and their families — empowering them to live full and meaningful lives.

In this episode of DSACO: Up for Discussion, we continue our employment series with a real-life success story.Last episode, we introduced Megan Wilson, DSACO’s Employment Services Specialist, and discussed how employment services work through DRS contracts and individualized support.This week, we move from explanation to experience.Megan is joined by Courtney — her very first client working under contract — to share what employment looks like in action. Courtney opens up about starting her job, building confidence, learning new skills, and what earning her own paycheck means to her.Together, they talk about:What “working under contract” really means The preparation and coaching that happens behind the scenes Overcoming nerves and building confidence The importance of meaningful, competitive employment How inclusive hiring benefits businesses and the community Why employment is about more than just a paycheckThis episode highlights something powerful: when individuals are given the right support and opportunity, they thrive.Employment builds independence. Employment builds dignity. Employment builds confidence.If you are a family interested in learning more about DSACO’s Employment Services, or if you are a business looking to partner with us, visit dsaco.org to get connected.Be sure to listen to Season 2, Episode 1 for a full overview of how employment services work.Thank you for listening, and don’t forget to subscribe, leave a review, and share this episode to help us continue building a more inclusive workforce.

We’re officially kicking off Season 2 of DSACO: Up for Discussion, and we’re starting with a topic that matters deeply to individuals with Down syndrome, their families, and our community: employment.In this episode, we sit down with Megan Wilson, DSACO’s new Employment Services Specialist, to talk all things employment services, skill-building, and creating meaningful, competitive job opportunities for individuals with Down syndrome.Megan works under DRS employment contracts and plays a key role in helping individuals gain confidence, build workplace skills, and find jobs that align with their strengths and goals. She breaks down what employment services look like at DSACO, who can benefit, and how families can get started.✨ In this episode, we discuss:Megan’s background and what led her to DSACOWhat an Employment Services Specialist does day-to-dayWhat DRS employment contracts mean (in simple terms)Who is eligible for DSACO’s employment servicesThe types of jobs and career paths individuals are exploringSkills needed before and during employmentWhy meaningful, competitive employment mattersAdvice for families feeling unsure about employmentHow local businesses and community members can get involvedWhat’s ahead for employment services at DSACO👕 World Down Syndrome Day T-Shirt PreordersBefore you go — World Down Syndrome Day is coming up! DSACO’s World Down Syndrome Day t-shirt preorders are now open, and this is a fun way to celebrate inclusion while supporting individuals with Down syndrome in our community.🗓 Preorders close February 7 🔗 Preorder link: https://www.dsaco.org/fundraisers/wdsdIf you enjoyed this episode, don’t forget to subscribe, leave a review, and share with someone who wants to learn more about employment, inclusion, and advocacy.Thanks for listening — and welcome to Season 2! 💙💛

As we wrap up Season 1 of DSACO: Up for Discussion, we’re taking a moment to reflect on the conversations that shaped this season and the community that made it possible.This season covered the full journey of life with Down syndrome — from early childhood intervention and IEPs, to middle school and high school transitions, to adulthood, employment, health, relationships, and self-advocacy. Each episode centered on real experiences, practical resources, and the reminder that support and inclusion truly change lives.In this finale, Sarah and Kathy reflect on the themes that kept coming up throughout the season: advocacy, independence, connection, and believing in what’s possible for individuals with Down syndrome at every stage of life.We’re also celebrating one of DSACO’s most meaningful events — the Uniqu3ly 21 Fashion Show, happening January 30, 2026 at The Criterion in Oklahoma City. This incredible night celebrates confidence, inclusion, and individuality, while supporting DSACO programs that serve individuals with Down syndrome and their families all year long.🎟️ Tickets are on sale now: dsaco.org/fashionshowAnd the conversation doesn’t stop here — Season 2 of DSACO: Up for Discussion launches February 3 with brand new topics, voices, and stories from across our community.Thank you to everyone who listened, shared, supported, and showed up this season. We can’t wait to continue the conversation with you.In This Episode, We Talk About:Reflecting on Season 1 and the conversations that mattered mostSupporting individuals with Down syndrome across the lifespanAdvocacy, independence, and inclusion in everyday lifeHow DSACO programs create real impact for familiesA look ahead to Season 2 (launching February 3!)Why the Uniqu3ly 21 Fashion Show is such a powerful celebration of inclusion📩 Have a topic you’d love us to cover next season? Email us at [email protected]

In this episode of DSACO: Up for Discussion, Sarah sits down with Robin Kohn to talk all about one of DSACO’s most empowering programs — the Self-Advocacy Center (SAC).Robin shares what SAC is, who it’s designed for, and why self-advocacy is such an important skill for individuals with Down syndrome. From building confidence and communication skills to learning how to speak up for yourself, SAC helps self-advocates grow both personally and socially in a supportive, encouraging environment.Listeners will hear what a typical SAC session looks like, the kinds of skills participants work on, and the incredible growth Robin has seen in self-advocates over time. Robin also shares meaningful moments and success stories that highlight just how impactful the Self-Advocacy Center can be.✨ Big news! Applications for the Self-Advocacy Center are officially open. Robin walks through who should apply, what the application process looks like, and offers encouragement for anyone who might feel nervous or unsure about taking that first step.🎟️ Plus, Sarah reminds listeners about the Uniqu3ly 21 Fashion Show happening January 30, 2026 — a night celebrating confidence, inclusion, and self-expression, with proceeds supporting DSACO programs like SAC.👉 Apply for the Self-Advocacy Center: https://www.dsaco.org/programs/self-advocacy-center👉 Get tickets for the Uniqu3ly 21 Fashion Show: dsaco.org/fashionshow

As we wrap up another incredible year at the Down Syndrome Association of Central Oklahoma, Kathy and Sarah sit down to reflect on all that 2025 has brought to our DSACO community.In this episode, we talk about:Highlights from the past year and programs that made a big impactGrowth within our community of self advocates, families, volunteers, and supportersWhat we’ve learned, what we’re proud of, and what’s ahead for DSACOExciting opportunities coming up in the new year and how YOU can get involvedWe’re also sharing a few important updates and ways to stay connected with DSACO:👗 Uniqu3ly 21 Fashion Show Tickets are on sale now! Join us for a night of inclusion, confidence, and celebration. 👉 Fashion Show Link: https://www.dsaco.org/fundraisers/uniqu3ly-21-fashion-show🧡 DSACO Board Applications Interested in serving on the DSACO Board and helping guide our mission forward? Applications are open. 👉 Board Application Link: https://www.dsaco.org/news/board-of-directors-application📅 Bountiful Blessings Calendar A meaningful way to support DSACO while celebrating our community all year long. 👉 Bountiful Blessings Calendar Link: https://www.dsaco.org/bountiful-blessings-calendarThank you to everyone who supported DSACO this year. Whether you volunteered, donated, participated in programs, or simply followed along—we couldn’t do this without you.✨ Here’s to another year of impact, growth, and advocacy.As always— Keep advocating, keep empowering, and keep educating.

In this episode of DSACO: Up for Discussion, we sit down with Dr. Annie Baghdayan, BCBA-D, Executive Director of the National Center for Disability Education & Training and Program Director of OU’s Pre-Employment Transition Services (PreETS) at the University of Oklahoma.Dr. Baghdayan shares her journey into Applied Behavior Analysis (ABA) and disability advocacy, explains what ABA looks like in real life, and clears up common misconceptions surrounding the therapy. We also discuss how person-centered, evidence-based ABA helps individuals build essential life and job-ready skills.You’ll hear how the OU PreETS program supports students with disabilities as they prepare for life after high school, employment, and greater independence. Dr. Baghdayan also shares current trends in ABA, leadership insights, and what gives her hope for the future of inclusive education and employment.🔗 Best Step Camp: https://oklahoma.gov/okdrs/students/transition/beststep.html✨ Uniqu3ly 21 Fashion Show | January 30, 2026 | 📍 The Criterion, OKC | Tickets: dsaco.org/fashionshowSubscribe, leave a review, and share this episode with parents, professionals, and advocates who believe in inclusion, access, and empowerment.

In this episode, we take listeners behind the scenes of one of DSACO’s most joyful and empowering annual events: the Uniqu3ly 21 Fashion Show. This isn’t just a runway – it’s a celebration of confidence, self-expression, and community. Our models, all self-advocates, step into the spotlight and show the world what inclusion truly looks like.To help us explore the heart of this event, we’re joined by Amy Douglas, a dedicated leader who has helped shape the fashion show into what it is today. Amy walks us through how the event first began, the inspiration behind it, and how it has grown into one of DSACO’s most beloved traditions. She shares her personal connection to the show, the powerful moments that keep her coming back, and the emotional impact it has on families, volunteers, and the broader community.What We DiscussWe talk with Amy about the origins of the Uniqu3ly 21 Fashion Show and how the idea came to life. She reflects on the early vision for the event and how it has evolved over the years as more participants, sponsors, and supporters have become involved. Amy also shares memories from past shows, including the unforgettable moments that highlight why this event matters so deeply.Listeners get an inside look at what it takes to plan a show of this size, from choosing themes and coordinating venues to working with models, volunteers, and families. Amy describes the teamwork, creativity, and problem-solving required to make the evening seamless and meaningful.We also look ahead. Amy talks about her hopes for the event’s future, how she wants it to grow, and why continuing to create spaces where individuals with Down syndrome can shine is essential for promoting inclusion and awareness throughout Oklahoma and beyond.Want to Attend?The Uniqu3ly 21 Fashion Show returns on January 30, 2026, and it’s a night filled with joy, confidence, and unforgettable moments. Get your tickets here: https://dsaco.org/fashionshow

The holidays are full of excitement — and sometimes overstimulation. In this episode of DSACO: Up for Discussion, host Sarah Soell chats with Jessica McLaughlin, an occupational therapy specialist who works with children of all ages, to explore how families can create calmer, more inclusive celebrations this season.Jessica shares practical sensory-friendly strategies, explains how play supports development for individuals with Down syndrome, and even gives her favorite “OT-approved” gift ideas that double as therapy tools. Whether you’re a parent, teacher, or grandparent, this conversation will help you make the holidays both fun and functional.🧩 In This Episode, You’ll Learn:What “sensory play” means and why it’s importantSimple ways to recognize sensory overload at homeHow to choose developmentally appropriate toys and giftsOT-approved ideas for fine and gross motor skill developmentWays to include all kids in family holiday traditions💡 Key TakeawayPlay isn’t just fun — it’s an essential part of learning, growth, and connection. With a few thoughtful choices, families can make the season brighter (and calmer) for everyone.🔗 Resources MentionedLearn more about DSACO’s programs and upcoming events: www.dsaco.orgEmail [email protected] for information or to connect with DSACO staffInterested in sponsoring a future episode? Visit our website or email us for details

In this episode of DSACO: Up for Discussion, host Sarah Soell talks with Renee Sansom Briscoe, Transition Coordinator for the Oklahoma Department of Rehabilitation Services (DRS), about how DRS helps individuals with disabilities prepare for meaningful employment and independence.Renee explains how Pre-Employment Transition Services (Pre-ETS) provide a bridge from school to adulthood and shares how families can start the DRS application process. This episode offers clear, step-by-step insights into accessing vocational support and real success stories from across Oklahoma.In this episode, you’ll learn:Who DRS serves and its mission to promote employment and independenceHow Pre-ETS helps students prepare for life after high schoolWhat to expect when applying for DRS servicesHow DRS collaborates with schools, families, and community partners like DSACOReal-world outcomes that show the power of inclusion and preparationHelpful Resources Mentioned:Oklahoma Department of Rehabilitation Services (DRS): www.okdrs.govPre-Employment Transition Services (Pre-ETS): Explore student programs that build job and life skills – DRS Pre-ETS OverviewFind Your Local DRS Office: DRS Office LocatorPlan Your Way Oklahoma: www.PlanYourWayOK.comDown Syndrome Association of Central Oklahoma (DSACO): www.dsaco.orgContact Information for Renee:Renee Sansom Briscoe, Transition CoordinatorEmail: [email protected]: 405-212-7789Website: www.okdrs.gov

Sibling Panel What is it really like growing up with a sibling who has Down syndrome? In this special episode, we sit down with brothers and sisters who share their personal experiences—the joys, the challenges, and everything in between.Our sibling panel opens up about what they’ve learned, how their perspectives have grown, and the unique bond they share with their brother or sister with Down syndrome. From funny childhood memories to honest conversations about responsibility and advocacy, these stories shine a light on the sibling experience that often goes untold.In this episode, you’ll hear about:The ups and downs of growing up in a household with a sibling with Down syndromeLessons in patience, love, and resilience that siblings carry into adulthoodThe importance of support systems for the entire family—not just parentsHow siblings find their own role in advocacy and inclusionThis heartfelt conversation is perfect for parents, siblings, educators, and anyone wanting to better understand the family dynamics of Down syndrome.

Today we sit down with Dr. Mitchell West, a board-certified OB-GYN, to demystify women’s health across the lifespan—from the first well-woman visit to postpartum care and menopause. We cover what happens at an annual exam, common myths, how to prepare for appointments, and how caregivers can advocate for women with intellectual and developmental disabilities (IDD). Dr. West shares practical tips you can use today, plus red flags that deserve prompt attention.If you have questions after listening, please email us at [email protected] This Matters (Key Takeaways)What a preventive OB-GYN visit includes and how often to goSigns and symptoms you shouldn’t ignore (bleeding, pain, breast changes, mood shifts)Birth control basics and how to choose what’s right for your body and lifestylePeriod pain vs. endometriosis—what’s “normal” and what’s notCervical and breast cancer screening guidelines (what to expect at the appointment)Pregnancy planning 101, prenatal milestones, and postpartum recoveryInclusive care: adapting communication, sensory needs, and consent for women with IDDHow to prepare for your next visit (questions, meds list, cycle tracking, goals)

In this heartfelt episode, we sit down with Heather Hancock-Blackburn, a self-advocate and long-time member of the Down syndrome community, to talk about her experiences with dating, love, and marriage. Heather opens up about her journey to finding meaningful relationships, the importance of communication and trust, and what it means to navigate love as a self-advocate.Listeners will hear Heather share:Her perspective on what makes a strong relationship.The role of family, friends, and community in supporting love and marriage.Challenges she’s faced and how she’s overcome them with positivity and resilience.Advice for other self-advocates who may be curious about dating or marriage.This episode is full of warmth, wisdom, and encouragement—reminding us that everyone deserves the chance to love and be loved.Key TakeawaysRelationships thrive with patience, communication, and respect.Self-advocates can and do experience meaningful, lasting marriages.Support systems play a huge role, but independence and self-confidence matter just as much.Love stories in the self-advocate community are powerful reminders of inclusion and belonging.Be sure to follow DSACO to stay updated on future podcast episodes, upcoming events, and resources for self-advocates and families.. 👉 Learn more about DSACO at dsaco.org

Education opens doors—and at DSACO, tutoring is helping make sure every student has the chance to thrive. In this episode of Up for Discussion, we welcome Bettie, one of DSACO’s dedicated tutors, to share her passion for helping students with Down syndrome reach their fullest potential.Bettie walks us through what tutoring at the Enrichment Center looks like, from building strong foundational skills to encouraging confidence and independence in learning. She shares success stories of students who have grown academically and personally through one-on-one support, and highlights the importance of creating an inclusive, encouraging environment where each child can shine.We also talk about how families can get connected with the program, why individualized support matters, and the impact tutoring has not only on the students but also on parents and caregivers who see their child’s progress firsthand. Bettie’s warmth and dedication shine through as she reminds us that tutoring is about so much more than academics—it’s about empowering students, celebrating their strengths, and opening new possibilities for their future.Whether you’re a parent looking for resources, an educator interested in inclusion, or a community member who wants to learn more, this conversation is a heartwarming look at how DSACO is building brighter futures through tutoring.

In this episode of Up for Discussion, Kathy and Sarah sit down to talk about the unique journey of navigating high school for students with Down syndrome. From IEP meetings and inclusive classrooms to social experiences and preparing for graduation, this episode dives into what these formative years really look like for families and self-advocates.Whether you're a parent entering the high school phase or an educator looking to support inclusive practices, this episode offers real stories, helpful insights, and practical tips for success during the teen years.Topics covered:Understanding and advocating through the IEP process in high schoolEncouraging independence and self-advocacy in teensTips for navigating friendships, extracurriculars, and social settingsPreparing for transition plans and life after high schoolCelebrating the growth and challenges that come with these yearsDon’t forget to check out our upcoming Down Syndrome Festival & 5K happening September 27 at the Myriad Botanical Gardens! Register today at dsfestivaland5k.comWant more resources or to connect with other families? Visit dsaco.org

Middle school can be a time of major transitions—socially, emotionally, and academically—for any student. For families of children with Down syndrome, this stage may come with new questions, challenges, and opportunities for advocacy.In this episode, Kathy Trout and Sarah Soell are back to talk all things middle school—from class changes and lockers to growing independence and shifting support needs. They share insights on how to best prepare for the middle school years, what to expect, and how DSACO is here to help every step of the way.Whether you're a parent, educator, or self-advocate, this conversation offers encouragement, practical advice, and resources to help you navigate this exciting chapter with confidence.In This Episode, We Cover:What to expect during the middle school transitionSupporting independence and building life skillsNavigating social dynamics and friendshipsAdjusting IEPs and advocating in a new environmentDSACO programs and resources for middle school families

In this episode of DSACO: Up for Discussion, we're talking all things Down Syndrome Festival & 5K! Whether you're a long-time supporter or brand new to the event, this episode will get you excited for the best day ever.We sit down with Leslee Boswell, DSACO's Executive Director, to talk about the heart, history, and impact behind this incredible day. From family teams and custom shirts to the inclusive energy that brings thousands together — it's more than just a run, it's a celebration of community, awareness, and advocacy.Why do we host a 5K?What’s the story behind the matching team shirts? How does this event support individuals with Down syndrome?All of that and more in today’s episode.Tune in, get inspired, and get ready to register!🔗 To learn more about the Down Syndrome Festival & 5K or to register your team, sign up for the race, or get involved, visit: dsfestivaland5k.com

In this episode, we sit down with Eilene Franks, a passionate mother and advocate, to explore the incredible impact of SoonerStart—Oklahoma’s early intervention program for infants and toddlers with developmental delays or disabilities. Eilene shares her personal journey with her son Hudson, who has Down syndrome, and how SoonerStart helped lay the foundation for his growth and success.We discuss how the program works, who qualifies, and the life-changing benefits it provides for families across the state. Whether you're a new parent, a caregiver, or simply want to learn more about the resources available in Oklahoma, this episode offers both practical information and heartfelt inspiration.Listen in to discover:What SoonerStart is and how it supports familiesEilene’s personal experience navigating early interventionHow to get started and what to expect from servicesWhy early support can make a lifelong differenceTo learn more about SoonerStart, visit https://oklahoma.gov/health/services/children-family-health/sooner-start.htmlTune in now and hear how early intervention can open doors and build brighter futures.

In this episode, hosts Sarah Soell and Kathy Trout take a closer look at medical diagnoses commonly associated with individuals with Down syndrome. This conversation isn’t meant to alarm but to empower families, caregivers, and advocates with knowledge about what to watch for and how to better support their loved ones throughout life.A special focus of this episode highlights the groundbreaking INCLUDE Project (Investigation of Co-occurring conditions across the Lifespan to Understand Down syndrome) — a national research effort that is transforming how we understand and address medical conditions impacting individuals with Down syndrome.Launched in 2018 at the direction of Congress, the INCLUDE Project supports vital research into conditions such as:Alzheimer's disease and dementiaAutismCataractsCeliac diseaseCongenital heart diseaseDiabetesThe project emphasizes the critical need to include individuals with Down syndrome in clinical trials, ensuring that research and treatments are informed by their unique needs.Key Takeaways: Common medical diagnoses associated with Down syndrome How families can be proactive in monitoring health The role and importance of the INCLUDE Project How clinical trials can drive better outcomes for the Down syndrome communityWhether you're a parent, educator, healthcare provider, or advocate, this episode provides valuable insights into the evolving landscape of medical care and research for individuals with Down syndrome.Links & Resources Mentioned:Learn more about the INCLUDE Project through the NIH INCLUDE Project websiteMore DSACO resources: www.dsaco.orgHave ideas for future podcast topics? Email us at [email protected]!

Episode Summary:In this episode of Up for Discussion, we're joined by Lucia to break down what it means to "start the clock" when it comes to IEPs (Individualized Education Plans). From initial evaluations to eligibility timelines, Lucia helps parents, caregivers, and educators understand the critical first steps in the special education process. This episode is especially helpful for anyone navigating the Oklahoma public school system and looking to advocate effectively for a student with disabilities.Key Topics Covered:What does “starting the clock” mean in special education?How and when schools must respond to a parent’s evaluation requestKey timelines for evaluations and IEP developmentWhat parents should know about their rights and responsibilitiesTips from Lucia on how to stay organized and informedResources Mentioned:Oklahoma Special Education Evaluation & Eligibility Handbook (2024) https://oklahoma.gov/content/dam/ok/en/osde/documents/services/special-education/Final%20Evaluation%20Eligibility%20Handbook%20v2.pdf → This guide explains how schools determine if a student qualifies for special education services.Oklahoma Special Education Policies & Procedures Manual (August 2024) https://oklahoma.gov/content/dam/ok/en/osde/documents/services/special-education/Final%20version%20Policies%20Procedures%20August%202024%20V2.pdf → This manual outlines the legal framework for special education in Oklahoma, including timelines and parental rights.

In this episode of Up for Discussion, we’re joined by Rylee, DSACO’s Program Coordinator, to explore the many ways DSACO supports individuals with Down syndrome and their families across Central Oklahoma. From educational workshops and new parent outreach to adult programs and inclusive community events, Rylee shares how DSACO empowers families through action, advocacy, and connection. Whether you’re new to DSACO or a longtime supporter, this conversation will give you a deeper look into the heart of our mission.

In this episode, Sarah and Kathy break down one of the most asked-about topics in the disability services world — the waiver.If you’ve ever felt overwhelmed trying to understand what the waiver is, who qualifies, or how to even begin the application process… you’re not alone! We’re here to simplify it and offer helpful insights for families just starting out or those waiting on services.We’ll cover:What the waiver actually is (and what it’s not)Who the waiver is designed to supportWhat kinds of services and supports it can offerHow the waiting list works in OklahomaWhere to start if you’re new to the processTips for staying organized while waitingReminder: This episode is just the beginning — we won’t overload you with too much information at once. Think of it as your intro into a bigger conversation we’ll continue in future episodes.

In this episode of Elementary Adventures, Sarah Soell and Kathy Trout open up about the real-life challenges and heartfelt moments of raising a child with Down syndrome through school. From navigating IEP meetings and social struggles to celebrating small victories, they share personal stories, helpful tips, and encouragement for families walking a similar path.

Welcome to the very first episode of DSACO: Up for Discussion! In this episode, hosts Sarah Soell, Executive Director of DSACO, and Kathy Trout, Office Assistant, take you on a personal journey, sharing their experiences as parents of a child with Down syndrome.From the moment they received the diagnosis to navigating emotions, challenges, and the incredible joy that followed, this episode is all about real stories, raw emotions, and the power of community. Whether you’re a new parent, a family member, or someone looking to learn more about Down syndrome, this episode is for you.What You’ll Hear in This Episode: Sarah and Kathy’s personal stories of learning their child has Down syndrome The emotions that come with a diagnosis—fear, uncertainty, and love The biggest lessons they’ve learned on this journey Why advocacy, education, and community support matter more than ever How DSACO is here to support families every step of the wayJoin the Conversation: Have questions or topics you’d love to hear on the podcast? We’d love to hear from you! Send us an email at [email protected] or visit dsaco.org to learn more about our programs and resources.