Finding Common Ground

If foster care is supposed to make children feel safe, why do so many still feel unseen, unheard, as they’re shuffled from home to home?Beth LaFontaine knows that answer, not from theory, but from lived experience. She moved through 19 foster placements, carried her belongings in garbage bags, and learned early that survival often meant staying quiet, guarded, and unseen. But her story doesn’t stay there.In this conversation, Beth shares what it actually feels like inside the foster care system, the grief that follows you, the moments that shape you, and the people who can change everything simply by choosing to see you.“I wasn’t just a behavior. I was a child who needed to be understood.”“We don’t need better suitcases. We need better systems.”“There is so much grief, and not enough space to name it.”You’ll hear about the quiet power of one teacher who saw beyond the chaos, the long shadow of broken trust, and why so many well-intended systems miss what matters most. But this isn’t just a story about what’s broken. It’s about what’s possible.From high school dropout to licensed clinical social worker, from surviving the system to working to change it, Beth is now helping bring voices together, foster youth, caregivers, and professionals, to build something better.There’s honesty here. There’s hard truth. And there’s hope. Because being seen can change everything.Please visit https://FCGadvocacy.org to learn more about the solutions we are working on! The Foster Care Collective is one of areas of focus and information will be updated on our homepage as we continue this important initiative. Also check out our stories of success and some of the ways we can help you move the needle on what matters most to you.Become a supporter of this podcast: https://www.spreaker.com/podcast/finding-common-ground--6199849/support.Recorded at ROC Vox Recording & Production Studios in Rochester, NY. Learn more at rocvox.com.

In this episode of Finding Common Ground, we take a deep dive into foster care with Genevieve Rose Traversy, a Foster Care Recruiter with Lutheran Services Carolinas.A third-generation foster child and teen mom, Genevieve could have repeated the cycle. She didn’t.We often celebrate when a child is removed from a dangerous home. But our attention can’t stop there, as if the solution is complete. As Genevieve shared,“We talk a lot about saving kids. We don’t always talk about what happens after.”For Genevieve, this isn’t theory. She lived it.“When you grow up in the system, you see the gaps differently, and you carry them with you.”Now she’s working inside the system that didn’t always meet her needs, using that perspective to create better outcomes for children today. Because“Lived experience doesn’t just give you a voice. It gives you a responsibility.”📖 Read her story:Focus on the Family – Faces of Foster Carehttps://www.focusonthefamily.com/pro-life/faces-of-foster-care/🔗 Connect with Genevieve:TikTok: https://www.tiktok.com/@genevieverosetraversyInstagram: https://www.instagram.com/genevieverosetraversyLinkedIn: https://www.linkedin.com/in/genevieve-traversy/#FindingCommonGround, #PodcastWithPurpose, #ChangingTheWayAdvocacysDone, #EmpowermentAdvocacy, #UnfilteredConversations, #FocusedOnSolutions, #InviteTheElephantToDinner, #FosterCare, #FosterCareAwareness, #FosterCareSystem, #ChildWelfare, #ChildAdvocacy, #TraumaInformed, #TraumaInformedCare, #LivedExperience, #BreakTheCycle, #CycleBreaker, #VoicesThatMatter, #YouthInCare, #FormerFosterYouth, #FosterCareJourney, #SocialImpact, #AdvocateForChildren, #SupportFosterYouthBecome a supporter of this podcast: https://www.spreaker.com/podcast/finding-common-ground--6199849/support.Recorded at ROC Vox Recording & Production Studios in Rochester, NY. Learn more at rocvox.com.

What happens when exhaustion turns into something darker than burnout, when a parent begins having thoughts they never imagined they’d think?In this raw, unflinching conversation with Jillian Eisloeffel, the mom behind Bobby’s World, we go beyond surface-level stories of resilience and into the reality most people never say out loud. Jillian shares what it’s like to raise a child with profound needs inside a system that was supposed to help, but instead leaves families isolated, misunderstood, and fighting to stay afloat.This episode strips away the platitudes and faces the truth of parenting in survival mode:The moments you feel yourself disappearing inside your own lifeThe kind of exhaustion no amount of sleep fixesThe silence that surrounds families when the system gets it wrongEven when you understand that behavior is information, someone still has to decode it. And more often than not, that someone is the parent, carrying it 24/7 while the system struggles to keep up.Through connection, honesty, and one mother’s refusal to keep pretending, Jillian found a path back, first to herself, then to others walking the same invisible line. Today, she’s helping lead the National Council on Severe Autism in New York State, giving voice to families who have been living this reality in the dark for far too long.This isn’t an episode about hope that glosses over pain. It’s about finding language for what you’ve been feeling, and realizing you are not alone. If you’ve ever sat in the quiet and wondered how much more you can carry, this conversation is where you’ll finally hear someone say it out loud.Become a supporter of this podcast: https://www.spreaker.com/podcast/finding-common-ground--6199849/support.Recorded at ROC Vox Recording & Production Studios in Rochester, NY. Learn more at rocvox.com.

What happens when your child needs lifelong support, but the “options” ahead are mostly waitlists, dead ends, and ideas that don’t really exist?In this episode of Finding Common Ground, we sit down with Wendy Ernzen, a Michigan mom, advocate, fundraiser, and fellow podcaster, for a conversation that so many families will feel in their bones.Wendy shares what it looked like when her family hit a breaking point, and how a system that should help too often only responds once families are already in crisis.One line from this episode says it all:“There should be real options that are presented to parents… not ideas, not options.”We talk about:- What families are actually told when school ends- Why housing and support often only open up after crisis- The invisible emotional load of planning for “after we’re gone”- How siblings, family homes, and creative support networks fit into the bigger picture- Why so many families are being forced to build the future themselvesThis episode is honest, validating, and uncomfortably real, especially for anyone quietly carrying the question:What will happen to my loved one if I can’t do this forever?There are no easy answers here, but there is truth, perspective, and the kind of conversation more families need to hear. If this fear has ever lived in the back of your mind, this episode is for you.Become a supporter of this podcast: https://www.spreaker.com/podcast/finding-common-ground--6199849/support.Recorded at ROC Vox Recording & Production Studios in Rochester, NY. Learn more at rocvox.com.

When you know your child needs help, but every phone call leads to more confusion, where do you turn?In this DadAbility episode of Finding Common Ground, Steve sits down with Flor Ramirez, Supervising Attorney of New York’s Intellectual and Developmental Disabilities Ombuds Program (IDDO), to talk about a resource many families still do not know exists, and why it matters more than ever.Flor pulls back the curtain on what an ombudsman actually does: helping families navigate complicated disability systems, ask the right questions, and get unstuck when nothing seems to move forward.“We help you navigate a system that is meant to help you… even when it doesn’t feel that way.”As both a leader and a mom of a child with autism, Flor brings something rare to the table, professional expertise and lived experience. She shares how her team listens first, connects the dots, and is not afraid to push when something isn’t working.“We’re not afraid to knock on doors and say, ‘This isn’t right… can we fix it?’”Steve and Flor also dig into what families are really experiencing right now, the confusion, the delays, the missed connections, and why so much of it comes down to a system that is complex, not always clear. Together, they explore how better education, stronger collaboration, and honest feedback can start to shift that experience.This conversation is real, practical, and quietly powerful. It is for parents who are tired of hitting walls, tired of being told “no” without explanation, and ready to understand where help may actually begin.Become a supporter of this podcast: https://www.spreaker.com/podcast/finding-common-ground--6199849/support.Recorded at ROC Vox Recording & Production Studios in Rochester, NY. Learn more at rocvox.com.

They told Loretta Claiborne’s mother there were places for children like her.Her mother said no.Instead, she raised Loretta with grit, dignity, and sky-high expectations. Even when Loretta struggled with motor skills and had to crawl to the table and pull herself up, her mother insisted on good manners.No elbows on the table.Why? Because someday, she said, Loretta might be eating with the president.She ended up meeting six of them.In this unforgettable episode of Finding Common Ground, Loretta shares the kind of story that makes people rethink what is possible. From the moment her mother refused institutionalization to the breakthrough that changed everything, when little Loretta called out her mother’s name for the first time, this conversation is filled with the moments that prove what can happen when someone believes in you before the world does.Loretta takes us through the tough love that shaped her, the counselor who pushed her toward Special Olympics, and the path that eventually led her to become a globally respected athlete, advocate, and speaker.Today she has met six U.S. presidents, and in this episode she even tells us which one she enjoyed spending time with the most.But what makes Loretta remarkable is not just what she achieved. It is how she lives. Helping neighbors shovel snow, pushing cars out of icy streets, knitting for babies and women she will likely never meet. Still showing us what persistence, dignity, and community look like in action.As Loretta reminds us:“Never let nobody underestimate the power of you.”And one lesson her mother made sure she learned early:“If you quit today, you’ll always be quitting.”This is an episode about refusing to accept limits, setting the bar high, and the life-changing power of expecting more.Become a supporter of this podcast: https://www.spreaker.com/podcast/finding-common-ground--6199849/support.Recorded at ROC Vox Recording & Production Studios in Rochester, NY. Learn more at rocvox.com.

Families are often expected to hold everything together, yet too often they are treated like outsiders instead of experts. In this episode of Finding Common Ground, Steve sits down with OPWDD Commissioner Willow Baer for an honest conversation about what happens when families are carrying modern challenges inside a service system still shaped by outdated rules.One of the most powerful moments in the conversation comes when Willow reflects on the role families have always played in driving change:“Families are the largest unpaid workforce in the disability service system.”Steve presses on the urgency many parents feel every day, asking the question that sits in the back of so many families’ minds:“What happens to our kids when we’re not around anymore?”Together they explore the tension families face every day. Housing uncertainty, healthcare access, dual diagnoses, and the challenge of building flexible supports in a system that was never designed for today’s level of need.At the center of the conversation is a bigger truth. Families are already doing the work. The real question is whether systems can evolve quickly enough to meet them where they are.If you have ever felt like families are carrying the system while waiting for it to evolve, this episode will resonate.Become a supporter of this podcast: https://www.spreaker.com/podcast/finding-common-ground--6199849/support.Recorded at ROC Vox Recording & Production Studios in Rochester, NY. Learn more at rocvox.com.

If you suspect abuse, what do you do first, and how do you prove it?Part 2 shifts from systems analysis to step-by-step strategy. This is a must-listen for any family navigating OPWDD services, residential care, or crisis supports.Anil breaks down the practical actions parents can take immediately:• How to document concerns so they hold up legally• Why organization, timelines, and written notice matter• When to speak publicly and when to wait• How criminal cases and civil cases intersect• What “zealous advocacy” actually looks like in practiceWe discuss New York’s one-party consent law, evidence collection, and how to avoid unintentionally damaging your own case while trying to protect your child.We also explore:• The role of the IDDO Ombuds program and other state resources• How to support good DSPs while removing harmful ones• Burnout, staffing realities, and why calling is not enough without support• Parent-led housing models, economies of scale, and the funding inequities between self-direction and certified settings• The vision for Safe Care homes and a Foundation for Hope to close funding gaps for families without financial meansThis episode brings us back to the question every family carries:What happens to our children when we are no longer here?The answer isn’t waiting for the system to fix itself. It’s building structures, communities, and safeguards now.We close with a reminder that defines this entire series:No one is coming to save us. We are the cavalry.Become a supporter of this podcast: https://www.spreaker.com/podcast/finding-common-ground--6199849/support.Recorded at ROC Vox Recording & Production Studios in Rochester, NY. Learn more at rocvox.com.

“If the system only works when parents are silent, it was never built to protect our kids.”What happens after the headlines fade, but the fear doesn’t?Anil Babbar returns to FCG and we move beyond the shock and into what families are actually forced to do to keep their children safe. This is not about outrage. It is about strategy. We talk about why parents end up thinking like investigators, how documentation becomes protection, and why the words you choose in an email can matter more than the emotions you feel in the moment. Anger might be justified, but evidence wins cases.This episode is a roadmap:• What to do when something feels off• How to document without escalating risk• How to protect your child and your case at the same time• When to put people on notice and how to do it effectivelyThen we zoom out to the bigger question. What would real safety look like if families helped design the system? We dig into parent-led housing, funding structures, and the economics that keep better models out of reach. Anil shares the vision behind SafeCare, a framework built on transparency, accountability, and partnership with caregivers and DSPs who want to do this work the right way. We also name the tension that often gets ignored. Good DSPs are working inside broken structures. Real reform has to protect them too, not just the people they support.“We are not just fighting for services. We are fighting for proof that our children are safe when we are not in the room.”This is a conversation about courage, but also about the long game. Building systems that will still be standing when families are no longer there to oversee them. “This isn’t advocacy for today. This is survival planning for the day we’re gone.”Connect with Anil: SafeCare: www.safecarecs.comAdditional Media coverage:NY Times: https://www.nytimes.com/2026/01/21/nyregion/anderson-autism-center-suit.htmlFOX 5 investigation: https://www.fox5ny.com/news/autism-facility-faces-abuse-allegations-after-shocking-video-surfacesBecome a supporter of this podcast: https://www.spreaker.com/podcast/finding-common-ground--6199849/support.Recorded at ROC Vox Recording & Production Studios in Rochester, NY. Learn more at rocvox.com.

If you have ever walked into a CSE meeting and thought, I don’t even know what to ask for, this episode is for you.Heather and Steve are joined by Sara DeFazio, a Transition Specialist with New York State’s Central Region Partnership Center, and she keeps it real.This is a fast, practical conversation about what happens when transition plans look fine on paper but miss the mark in real life. Sara names the patterns families recognize immediately. People get underestimated. Teams default to familiar vocational paths. Parents sense something is off, but are unsure how to stop the momentum.We break down what transition planning is actually supposed to do, why it starts at age 12, and how to use the process as a tool instead of letting it become paperwork. We also talk about why so-called unrealistic goals are often clues, not problems, and how asking better questions can open real paths forward.This episode also includes a real-world scenario families and districts may be grappling with: What happens when a nonspeaking student who has begun spelling wants to use transition time to practice typing, so she can communicate in real time? What happens when the goal is to build age‑level academic skills and reach for something bigger, like earning a GED?Our conversation digs into what happens when teams feel unsure how to support goals like these, worry about what is allowed, or default to safer, more familiar vocational options instead. Sara helps unpack how schools can honor ambitious goals without breaking rules, and why uncertainty should never automatically lead to underestimation.This episode will help you walk into your next meeting clearer, more confident, and better prepared to advocate.Find your New York State Partnership Center and resource map: https://map.osepartnership.orgLearn more about NYS Regional Partnership Centers and Family and Community Engagement Centers: https://osepartnership.org/aboutLearn more about the Finding Common Ground (FCG) platform at https://www.fcgadvocacy.org.FCG is more than a podcast. We are changing the way advocacy is done by showing families, professionals, and policymakers how finding common ground is how we find what’s worth doing.Become a supporter of this podcast: https://www.spreaker.com/podcast/finding-common-ground--6199849/support.Recorded at ROC Vox Recording & Production Studios in Rochester, NY. Learn more at rocvox.com.

When school ends, the bus stops coming, and traditional transition options do not feel like the right fit, what comes next? In this episode of Finding Common Ground, Heather and Steve talk with Brad Herron-Valenzuela from First Place Phoenix about what it really takes to build independence without “sink or swim” thinking, and the importance of not underestimating people.Brad shares what has worked, what has changed, and why true independence is not an event but a process of teaching, practicing, and supporting growth over time. Marking the 10-year anniversary of the First Place Transition Academy program, he describes “how many firsts” their graduates experience, first paycheck, first time riding the bus or light rail, first time living away from home, even first time missing a stop or losing a backpack, and why those real-world mistakes are essential to learning.Brad also explains how a program that once required families to pay fully out of pocket began to shift when outcomes were measured and tracked over time. As data showed meaningful progress, including long-term gains in independence and quality of life, insurance coverage for clinical components became possible. It was not because of marketing, but because evidence changed the conversation.This episode is not about promoting a single program or suggesting there is one solution that fits every person. It is about noticing what works, understanding the underlying formula, and recognizing that some tools already exist. Learn4Independence®, a core component of the First Place Transition Academy, is a 32-course curriculum developed for adults with autism that focuses on independent living skills and career readiness. Unique curriculum elements accommodate various learning differences and incorporate universally designed instruction adaptable to community and cultural needs.We talk openly about the emotional weight families carry, the feeling of the clock ticking, and why simply placing someone in an apartment or program is not enough. Skills have to be taught, practiced, and reinforced in real life. Independence is not an event, it is a process.Learn4Independence is a certified, evidence-informed curriculum that states and school districts can explore, adapt, and implement. With that context, the episode asks a powerful question: Now that you know approaches like this exist, what might you advocate for in your own state, region, or community? Families should not have to invent the future from scratch. Sometimes the work is recognizing proven ideas, adapting them locally, and pushing systems to invest in what truly moves people forward.🔗 Links Referenced in This EpisodeFirst Place Transition Academy:https://firstplaceaz.org/transition-academy/Transition Academy Discover Day Guide:https://firstplaceaz.org/transition-academy/discover-day-guide/Learn4Independence Life Skills Curriculum:https://firstplaceglobal.org/employment/learn4independence/Become a supporter of this podcast: https://www.spreaker.com/podcast/finding-common-ground--6199849/support.Recorded at ROC Vox Recording & Production Studios in Rochester, NY. Learn more at rocvox.com.

This episode is the first one of our new FCG spin-off series called, The Mother Load and we started out with a bang! Heather sits with her co-host Steve’s daughter, Rachel, and digs into what it was really like growing up in a home where her parents fostered nearly 200 children. She speaks candidly about the chaos, the compassion, and the moments that tested everything, answering the question many people quietly wonder: How do parents open their home to nearly 200 children and still make sure their own kids feel seen, secure, and deeply loved?Rachel grew up sharing her parents, her space, and her childhood with hundreds of children who arrived carrying trauma, fear, and hope. Some stayed briefly. Others became family forever.In this conversation, Rachel reflects on what it meant to move from “the baby” to “the big sister,” the times generosity stretched a household thin, and how understanding trauma reshaped the way she saw anger, fairness, and belonging.This episode isn’t about foster care from the system’s point of view. It’s about life inside the home, and how intentional parenting, communication, and love make it possible to expand care without losing connection.The Mother Load is a Finding Common Ground spin-off for caregivers, daughters, and the people carrying the unseen emotional load.This is where those stories finally get airtime. Come Tired. Leave Empowered. Become a supporter of this podcast: https://www.spreaker.com/podcast/finding-common-ground--6199849/support.Recorded at ROC Vox Recording & Production Studios in Rochester, NY. Learn more at rocvox.com.

TAKEOVER EPISODE with Guest Host Jackie Bartell.Have you ever looked at someone and assumed they were just born strong, that they have “always done the hard thing,” and were simply made for advocacy?In this special takeover episode, retired special education teacher and longtime friend Jackie Bartell slides into the guest host chair and turns the mic on Heather, asking the questions most people never hear. Heather goes back to the years when she was painfully shy, stuck in “fix it” mode, and living in a home where hostility was breaking more than the furniture.You will hear the moment embarrassment became fuel, the night she changed the locks and chose her daughters over the life she thought she was supposed to fix, and how saying yes to help, and fundraising for Devyn’s 120-pound service dog Hannah, became the turning point. Along the way, Jackie and Heather revisit the little girl with the big dog, the preschool classroom where Devyn and Hannah became rock stars, and the shift from trying to “fix” problems to building relationships and changing systems.This episode also offers an early peek into the advocacy framework Heather and Steve are shaping in an upcoming book, the mindset shift that moves people from feeling frozen and inadequate to finding their voice, building unlikely coalitions, and holding systems accountable without losing their humanity.If you have ever wondered whether you “have what it takes” to speak up, let this conversation be your reminder. Strength is built, not assigned, and sometimes you become an advocate the day you decide you just cannot stay quiet anymore.Learn more and join the movement at www.FCGadvocacy.orgBecome a supporter of this podcast: https://www.spreaker.com/podcast/finding-common-ground--6199849/support.Recorded at ROC Vox Recording & Production Studios in Rochester, NY. Learn more at rocvox.com.

What if the hardest part of advocating for your child isn’t the system, but unlearning the way you’ve been taught to think about it?What if you keep doing the same things because they feel safe, even when they stopped working a long time ago?What if the mindset that got you through the early years is now the very thing holding you back?In this episode of Finding Common Ground, Heather and Steve sit down with Lynda Allen, career educator, advocate, and TEDx speaker, for a conversation that rewrites what most of us were taught about special education, labels, and empowerment. Lynda honors how exhausting and heartbreaking the day to day can be, while insisting on this truth, there is nothing broken about your child, and nothing defective about you as a parent.From that starting point, she invites parents to stop waiting for the system to get fixed and start seeing themselves as decision making partners in every service, support, and opportunity their child receives.“Being empowered means becoming a decision making partner in your child’s education and life, not doing it alone, and not giving your power away.” — Lynda Allen This isn’t about fighting harder. It is about thinking differently so you can build the education and the life your child deserves.We talk about:How labels can cloud the way we see our kids, and how to take that power backWhy dream first matters, especially when it feels impossibleLynda’s four step framework for moving from survival to leadership as an empowered parentBuilding a village so you are not doing this alone, and how empowered parents change systems from the ground upIf you’re tired of proving your child’s worth and ready to try a different way forward, this episode is for you. Come tired, leave empowered, and before the episode ends, write down your child’s dream role and one bold step you will take as their partner this week. Lynda’s book: https://a.co/d/h5h7CeR  Learn more and connect: https://makeyourmarkinlife.org/empoweredparentsbeeBecome a supporter of this podcast: https://www.spreaker.com/podcast/finding-common-ground--6199849/support.Recorded at ROC Vox Recording & Production Studios in Rochester, NY. Learn more at rocvox.com.

Planning isn’t just paperwork. What happens when families do everything they can, but without guidance, the plan unravels at the exact moment it matters most?In this episode of Finding Common Ground, Heather and Steve are joined by Samantha Harrison, founder of Momentum Family Strategies and a disability support strategist who works with families navigating what she calls life after mom and dad.Samantha brings a rare, honest perspective from the front lines. She supports siblings and aging parents who suddenly find themselves responsible for everything—services, housing, staffing, paperwork—often at the exact moment they are grieving the loss or decline of a primary caregiver. She explains, “We tell families to plan ahead, but we don’t teach them how to plan for the day they’re not there.”Together, they explore why planning too often becomes reactive, why paperwork alone can’t carry a future, and how systems built around crisis leave families scrambling when stability matters most.In this conversation, you’ll hear:Why families are told they’ve “planned,” but still feel unprepared when the moment comesHow siblings become caregivers overnight, without training or a roadmapWhy self-direction is often misunderstood as a shortcut instead of a responsibilityWhat truly makes a plan hold when the primary caregiver is goneHow guidance, education, and vision—not just forms—change outcomes“Without guidance, families don’t fail to plan. They’re set up to plan in pieces.”Samantha also shares practical insight into letters of intent, future planning, workforce realities, and how families can begin identifying gaps before those gaps turn into crisis.“Planning has to start with the why—what kind of life do we want, and why does it matter?”This episode is for parents, siblings, advocates, professionals, and policymakers who have ever asked themselves what really happens when support systems are no longer held together by one person’s unpaid labor.This isn’t a conversation about fear.It’s a conversation about preparation, honesty, and building plans that can stand—even when we’re not there to hold them up.Recorded at ROC Vox Recording & Production in Pittsford, NY. Learn more at https://rocvox.com.#FindingCommonGround, #PodcastWithPurpose, #ChangingTheWayAdvocacysDone, #EmpowermentAdvocacy, #UnfilteredConversations, #FocusedOnSolutions, #InviteTheElephantToDinner, #DisabilityAdvocacy, #CaregiverSupport, #LifeAfterMomAndDad, #FuturePlanning, #FamilyCaregivers, #SelfDirection, #DisabilityRights, #CaregiverLife, #PlanningAhead, #CommunityLiving, #EndInstitutionalization, #AgingCaregivers, #SiblingSupport, #InclusionMatters, #SystemsChangeBecome a supporter of this podcast: https://www.spreaker.com/podcast/finding-common-ground--6199849/support.Recorded at ROC Vox Recording & Production Studios in Rochester, NY. Learn more at rocvox.com.

When school ends, support doesn’t just pause.For many families, it vanishes.“There are 25 skills students need to make an informed decision about what comes after 12th grade,” says college and career coach Phil Vetrano. “And we’re not teaching them. Not at school. Not at home. Not anywhere.”In this episode of Finding Common Ground, Phil joins us to talk about the hidden gaps families run into when the school bus stops coming, especially for kids with disabilities, learning differences, or nontraditional paths.“We weren’t taught decision-making models,” Phil explains.“ So we never learned how to teach our kids how to choose.”This conversation isn’t about picking the perfect career. It’s about exposure, preparation, and why so many young people are expected to make life-altering decisions without the tools to do so.“If you want to be the CEO of your career,” Phil says, “you hire experts. You don’t do it alone.”If you’ve ever looked at your child and thought, How are they supposed to figure this out? This episode will feel uncomfortably familiar. Listen now and learn more about Phil at: linkedin.com/in/phil-vetrano-mba and his website: planningandvision.comBecome a supporter of this podcast: https://www.spreaker.com/podcast/finding-common-ground--6199849/support.Recorded at ROC Vox Recording & Production Studios in Rochester, NY. Learn more at rocvox.com.

“Our brains process the sounds for emotion before we process the words for understanding.”In this episode, Heather and Steve sit down with Google technologist and autistic advocate Tim Goldstein, whose late-in-life diagnosis rewired how he sees communication, work, and autism itself. Tim shares how he went from being “the kid who kept getting fired” to someone who now coaches others on using voice, story, and language to actually get results in a neurotypical world—without selling themselves out.You’ll hear them dig into:Why how you say something often matters more than what you sayThe difference between “masking” and simply adapting to shared social normsWhy Tim hates the word “neurodivergent” and prefers “neurodistinct”How the words we use with managers can accidentally make them feel stupid… and sabotage our own accommodationsHeather’s daughter’s powerful mic-drop: “I’d rather you not define me by what I can’t do.”Eye contact, notifications, and the fine line between “the world should change” and “I want better outcomes, so what can I tweak?”Dating, loneliness, and why so many autistic adults miss subtle signals of interestIf you’re autistic, love someone who is, or work in education, healthcare, or HR, this conversation will change how you hear every interaction—and how you talk about autism from here on out.  Learn more about Tim: https://www.timgoldstein.com/Become a supporter of this podcast: https://www.spreaker.com/podcast/finding-common-ground--6199849/support.Recorded at ROC Vox Recording & Production Studios in Rochester, NY. Learn more at rocvox.com.

Only one in four adults has a will, and for families in the disability community, that gap can change everything. We may not know who will take over when we’re gone, but if we never start the plan, how will anyone know what mattered most about the people we love?In this DadAbility episode, Steve goes solo to talk straight with dads about stepping up at home and beyond. It’s real talk about juggling the day-to-day while keeping an eye on the future. Dads feel that pull to take care of things. Estate planning isn’t flashy, but it’s one of those jobs that feels good once it’s done. Getting it handled brings calm, confidence, and a sense that you’re truly showing up for your family.Steve is joined by attorneys Kevin Barone and Ted Perry, co-founders of VLAWsity, a do-it-yourself online platform that helps families create wills, powers of attorney, and special needs trusts from home. Their mission is to make the process affordable, accessible, and manageable on your own schedule.Together they unpack what a special needs trust really does, how it protects eligibility for programs such as SSI and Medicaid, and why families in the disability community need to act now rather than later.Steve shares candid reflections as a dad of an autistic adult son and foster/adoptive parent, while Kevin and Ted explain how taking time to plan ahead can prevent courts or the state from making decisions that should stay within the family.If you have ever thought, “I know I should do this, but I don’t know where to start,” this conversation is your roadmap and your reminder that estate planning is not about fear. It is about love, peace of mind, and the kind of steady leadership that helps dads protect the people who count on them most.👉 Learn more or start your will today at VLAWsity.com#FindingCommonGround, #PodcastWithPurpose, #ChangingTheWayAdvocacysDone, #EmpowermentAdvocacy, #UnfilteredConversations, #FocusedOnSolutions, #InviteTheElephantToDinner, #DadAbility, #DadsWhoCare, #ModernFatherhood, #DadAdvocate, #StrongDads, #FamilyFirst, #FatherhoodJourney, #ParentingWithPurpose, #LegacyPlanning, #EstatePlanning, #PlanForTheFuture, #ProtectYourFamily, #FinancialWellness, #FatherhoodMatters, #MenWhoLead, #RealTalkForDads, #DadLifeUnfiltered, #NextGenDads, #BuildingLegacy, #SecureTheFuture, #DadCommunity, #EmpoweredParenting, #FamilyAdvocacy, #DisabilityDads, #SpecialNeedsDads, #CaregiverDads, #DadsSupportingDads, #PlanningWithPurpose, #HonestConversations, #ProtectWhatMatters, #StrongerTogetherBecome a supporter of this podcast: https://www.spreaker.com/podcast/finding-common-ground--6199849/support.Recorded at ROC Vox Recording & Production Studios in Rochester, NY. Learn more at rocvox.com.

What happens when a former guest takes the mic and flips the script? In this hilarious and heartfelt episode, Kathy Caruso returns to Finding Common Ground — but this time, she’s running the show.Host Steve Gonyea finds himself in the hot seat as Kathy digs deep into his story, his “why,” and what drives his advocacy as a dad. With Heather chiming in from the sidelines (and occasionally fanning the flames), this takeover turns into one of the most revealing and entertaining episodes yet.Expect laughter, honesty, and a few moments that’ll make you think twice about what happens when we let go of control and truly open up. Tune in, share your favorite quote from the episode, and tag us with your thoughts — we love hearing how these conversations resonate with you!Become a supporter of this podcast: https://www.spreaker.com/podcast/finding-common-ground--6199849/support.Recorded at ROC Vox Recording & Production Studios in Rochester, NY. Learn more at rocvox.com.

How many times have you had to educate the people trying to help your child with autism?In this episode of Finding Common Ground, Steve talks with Matt Yelton, a paramedic, flight medic, and autism dad who lives and breathes this reality every day. When emergencies happen, Matt has been on both sides — the parent advocating for his child, and the first responder called to help.He shares how his personal experiences inspired him to train first responders across New York to recognize when behaviors are rooted in autism, not defiance and how families can prepare before a crisis ever happens.“The best thing you can do at the start of the school year is figure out who these kids are and talk to their educators, talk to their families, learn what makes them tick.”You’ll also hear:What to do before a crisis so first responders are ready to help your childWhy dads need to be part of the advocacy conversationHow real change happens when parents and professionals learn from each otherThis one will leave you better prepared and more hopeful about the helpers who show up when it matters most. Listen now on YouTube, Spotify, or your favorite podcast app, and join us in Finding Common Ground between families and first responders.Become a supporter of this podcast: https://www.spreaker.com/podcast/finding-common-ground--6199849/support.Recorded at ROC Vox Recording & Production Studios in Rochester, NY. Learn more at rocvox.com.

What happens when two advocates hit pause on the chaos and just talk it out?Heather and Steve take a breather from the headlines and just talk. In this unfiltered catch-up, they open up about juggling life, advocacy, and everything in between — from Heather’s upcoming trip to the First Place Global Symposium to Steve’s work with the National Council on Severe Autism.They trade stories, laughter, and strategy on how to keep showing up without burning out, diving into transition challenges, teasing their upcoming guest lineup, and showing how the right conversation can make all the difference. Listen now for a real, no-guest look behind the movement they’re building together.Become a supporter of this podcast: https://www.spreaker.com/podcast/finding-common-ground--6199849/support.Recorded at ROC Vox Recording & Production Studios in Rochester, NY. Learn more at rocvox.com.

What happens when we stop patting ourselves on the back for “special” inclusion—and start building communities where accommodations are normal, and leadership is shared?In this episode, Heather and Steve talk with Kurt Roskopf, disability ally and founder of the Everybody Skis program. When a skier who needed some accommodations was sent home dry, Kurt felt awful—and that moment reframed how he approached every day after that. It set in motion a movement that redefined inclusion across Wisconsin and beyond.Steve first met Kurt through the Helpipedia initiative—a national collaboration connecting families, educators, and professionals to disability resources. We discuss this as well as what real inclusion looks like. Moving from symbolic gestures to structural change. which gives you a blueprint for rethinking belonging in your own community.Blueprint for Barrier DemolitionKurt’s journey reveals lessons that can reshape how we approach everything—from the way we build teams and plan community events to how we design classrooms, businesses, or neighborhood spaces. The blueprint that emerges isn’t about following exact steps, but about rethinking how we show up and realizing that small shifts can spark big change.Listeners will leave asking themselves:What would true inclusion look like in my space?How might I remove one barrier this week?Who could I invite to lead beside me instead of waiting to be invited?Kurt’s reflections remind us that we’re not just making room for people—we’re rebooting the way our communities work. Real inclusion isn’t a one-time act of kindness; it’s a redesign of how we live, learn, and lead together.You’ll hear moments that stay with you:“When people with disabilities lead, they teach us how to move mountains.”“We’re not just opening doors—we’re rebooting the whole planet so everyone can walk through.” Learn More Helpipedia.org [email protected] Text or call: (262) 372-1754If you're ready to move beyond the feel-good photo-op and build true belonging in your own hometown, this episode is your invitation to start.Become a supporter of this podcast: https://www.spreaker.com/podcast/finding-common-ground--6199849/support.Recorded at ROC Vox Recording & Production Studios in Rochester, NY. Learn more at rocvox.com.

Steve and Guest Host Alexandra Fernandez speak with Oneida County Sheriff Robert Maciol, Parent Advocate and founder of Better Together Kathy Caruso and others about the Pathways for Success event which brought experts and advocates from across New York State to Utica. Check out the full video of the event on our YouTube Channel:https://youtu.be/pIiFhcaPYqsBecome a supporter of this podcast: https://www.spreaker.com/podcast/finding-common-ground--6199849/support.Recorded at ROC Vox Recording & Production Studios in Rochester, NY. Learn more at rocvox.com.

What if the fastest way to protect disability services this year isn’t a viral post—but scheduling a meeting now, before legislators head back to Albany? In this episode, AM Brian Miller gives straight answers and a playbook you can use now—from timing your outreach to crafting testimony that actually moves votes.Why listen: Unlike many politicians, Miller doesn’t dodge the tough stuff. He leans in. Listen as he dives into the 35th anniversary of the Americans with Disabilities Act (ADA), looming Medicaid reforms (including the CDPAP rollout), DSP wages, the red tape that blocks common-sense partnerships, and how to make your voice count before this legislative session begins.You’ll learn practical moves:Perfect timing: While summer is a great time to connect with legislators, fall works too—and it’s not too late. Now is the moment to book longer, substantive meetings that won’t be possible once session starts, so your stories can shape bills before legislators are back in Albany.How to advocate: Replace mass emails with personal letters/calls that get read and get returned.Testify like a pro: Use a 5-minute structure (personal story → crisp facts → clear ask) and always follow up with the panel afterward.Unstick the system: Pair innovative pilots with smarter funding routes (Veterans, Aging, Education, Medicaid) and identify one word or phrase that could be tweaked in law/reg so that solutions aren't blocked.Policy focus areas: ADA/Olmstead compliance, DSP wage action, pausing/assessing rushed reforms, and making oversight reports accessible to the public and legislators.Standout quotes:“Really get involved and understand how the different funding streams and different groups can work together to help our loved ones because this could be a difficult chapter coming up, but it’s not the end of our story.” — Heather M. Burroughs“Don’t rely on a form letter. Try to connect in person and be precise, but also personal.” — AM Brian MillerWhat Brian Miller models: Bridge-building, engineering-style problem solving (root-cause → corrective action), and a consistent record of showing up for disability families, on the record and in the room.Listen if you’re:Parents & caregivers, self-direction leaders, DSPs and providers, advocates preparing testimony, or anyone ready to trade outrage for outcomes. Hit play to grab the blueprint—and pass it to a friend who needs it.Become a supporter of this podcast: https://www.spreaker.com/podcast/finding-common-ground--6199849/support.Recorded at ROC Vox Recording & Production Studios in Rochester, NY. Learn more at rocvox.com.

In this episode, we sit down with three incredible women—Bethany Wendt, Kathy Caruso, and Kim Karcic—to talk about Pathways for Success: Together We Thrive, a powerful event happening in Utica, NY.Each guest shared why they felt called to be part of this initiative and how families of individuals with disabilities often feel lonely, overwhelmed, and unsure where to turn. Their stories highlight the importance of coming together, building community, and making sure no one walks this journey alone.GuestsBethany Wendt – Director of Community Relations at the Kelberman CenterWebsite: https://www.kelberman.org/family-connect/family-education-and-training/Kathy Caruso – Mom & Lead Facilitator for Better Together: Support and AdvocacyFacebook: https://www.facebook.com/p/Better-Together-Support-and-Advocacy-100057210018852/Kim Karcic – Family Member, Teacher, and AdvocateAbout the Event Saturday, Sept. 27 9:00 a.m. – 3:00 p.m. The Parish on Broadway, 730 Broadway, Utica, NY Parking available at City HallWho should attend?Parents & caregivers of individuals in the Intellectual and Developmental Disabilities (IDD) community.What to expect:Sessions on Early Intervention, School-Age Supports, Adult Services & Transition PlanningOPWDD Resources & Future PlanningQ&A Panel + Resource Tables featuring OPWDD, ARC, Life Plan, Kelberman & moreLight refreshments provided A full day of learning, connecting, and finding support—together. Register here: https://forms.office.com/r/KLFtaUPGG9 If this event isn’t happening near you, but you think your community could benefit from something like this—consider this your blueprint!Be inspired, and reach out to any of these women to learn how you can make it happen in your hometown.Visit us at www.fcgadvocacy.org, follow us on social media, and help us grow our audience and impact.Together, we can build stronger pathways for success everywhere.Become a supporter of this podcast: https://www.spreaker.com/podcast/finding-common-ground--6199849/support.Recorded at ROC Vox Recording & Production Studios in Rochester, NY. Learn more at rocvox.com.

What do families do when every call for help is desperate, every door seems to slam shut, and the only thing longer than the waitlist is the list of hoops to jump through—especially when their loved one with profound autism needs support now?In this episode of Finding Common Ground, we sit down with Kristina Cope—Michigan mom of three on the spectrum, RN, and founder of Flawless Farms. She’s on a mission to create an intentional community that welcomes families with profound needs instead of shutting them out.Together we explore housing deserts, “boarding” in hospitals, transportation gaps, and the growing crisis of catatonia. Kristina’s vision is clear: bring people together, secure land, build the first home, and create a model of community life where meaningful work, recreation, healthcare, and belonging are part of every day. If you’ve ever thought, “someone should build this,” this conversation will show you how to start—right where you are.Quotes that stay with youKristina captures the urgency of the housing crisis when she says, “We could have a Benjamin’s Hope in every county and every state—and it would not be enough.”Steve reminds us that solutions won’t come from waiting on the system: “The cavalry is coming—it’s us.”And Kristina doesn’t shy away from the hard truth how sometimes “the model of inclusion then excludes them.”This episode is raw, inspiring, and practical. If you need hope and a path forward, you won’t want to miss it. Support the show by subscribing on your favorite podcast app, leaving a review, sharing it with a friend, and subscribing on YouTube. Every click helps other families find the solutions they’ve been searching for. Learn more and connect with us at www.fcgadvocacy.org and explore Kristina’s work at www.flawlessfarmsmi.com.Become a supporter of this podcast: https://www.spreaker.com/podcast/finding-common-ground--6199849/support.Recorded at ROC Vox Recording & Production Studios in Rochester, NY. Learn more at rocvox.com.

“It’s not a job, it’s a way of life.” Kathleen Hayes didn’t just take a position at the Neighborhood Center—she found her purpose. In this powerful episode of Finding Common Ground, we explore how one small organization in Utica, NY is reimagining what mental health and family support can look like when systems get out of the way and people are met where they are.Kathleen shares her journey from frontline provider to program supervisor, opening up about the real-life impact of community-based treatment, in-home therapy, and 24/7 crisis response teams. You’ll learn about Kindred Connections, a trauma-informed support system for adoptive and guardian families that helps combat isolation and build resilience—with birthday parties, family fun days, and intentional peer connections at its heart.But this isn’t just a feel-good story about one organization doing good work—it’s a blueprint. As Steve puts it: “If I was an executive director anywhere else and I knew this service was needed, I’d be looking to replicate it.”If you’ve ever wondered what’s actually working in youth mental health, how to prevent crisis before it happens, or what real trauma-informed care looks like outside a hospital or institution, this conversation is a must-listen.Whether you’re a parent, policymaker, therapist, advocate, or just someone trying to make your corner of the world better, this episode will give you hope—and a few ideas worth stealing. Tune in now to learn:Why group therapy is giving providers new insight into kids’ needsHow mobile crisis teams are preventing hospitalizationsWhat makes adoptive family support stickWhy Kathleen says the work is hard—but worth itDon’t miss this glimpse into what’s possible when community leads the way and PLEASE check out our new website: https://www.fcgadvocacy.org/Become a supporter of this podcast: https://www.spreaker.com/podcast/finding-common-ground--6199849/support.Recorded at ROC Vox Recording & Production Studios in Rochester, NY. Learn more at rocvox.com.

What if an autism diagnosis wasn’t the end—but the spark that ignites a journey toward connection, advocacy, and growth?In this deeply moving episode of Finding Common Ground, Heather and Steve welcome LaShona Johnson, whose dual roles as a parent and disability community advocate uniquely inform her insights. Together, they explore how LaShona’s experience raising her son with autism evolved into a mission—and ultimately, a guidebook—for others navigating the path ahead.LaShona's journey is full of moments that feel too familiar—to be real, raw, and hopeful all at once:“I just kept feeling like…something is not quite right. Something is off.”— On trusting that gut when early signs emerged“It was relief and grief all at the same time.”— On the emotional paradox of finally receiving a diagnosis“If this door isn’t open, let’s call another person until we find somewhere for him to go.”— On the power of persistence and relentless advocacy“He can tell you all about model trains… that’s his special interests.”— On how a child’s passion can become a powerful bridge“This diagnosis isn’t the end. It’s just a shift in perspective … instead of focusing on fixing, let’s focus on connection, advocacy, and growing together.”— On reframing the narrative for familiesIn this episode, Heather, Steve, and LaShona cover:Early signs and the complicated road to right-fit diagnosis and interventionNavigating preschool, reading challenges, and the tough school-system pivotshow writing The Autism Roadmap: From Early Diagnosis to Academic Success became LaShona’s way of lighting the path for families just getting startedTips for building a vital support network—3 to 5 people who serve as your crewReimagining success: supporting fathers, blending professional knowledge with parental emotion, and moving toward adult services with creative strategiesIf you’ve ever searched for practical tools to move beyond overwhelm, this episode delivers—with warmth, transparency, and hope. LaShona’s experience isn’t just inspirational—it’s a blueprint you can test in your own backyard. LaShona’s book is available now: https://a.co/d/iPiEiwK Give it a listen for honest conversation, real wisdom, and a roadmap that reminds us: the journey continues, and it can feel like home.Become a supporter of this podcast: https://www.spreaker.com/podcast/finding-common-ground--6199849/support.Recorded at ROC Vox Recording & Production Studios in Rochester, NY. Learn more at rocvox.com.

What happens when families stop waiting for the system to fix itself—and start building what their loved ones need?In this episode of Finding Common Ground, Heather and Steve sit down with Dawn O’Hara, a mother of two adult children with disabilities, to explore what it really takes to support independence, dignity, and inclusion. From leaving behind one system in Pennsylvania to navigating New York’s evolving landscape, Dawn shares what she’s learned and why she refuses to sit on the sidelines.Early in the episode, Dawn shares a moment no parent forgets: watching her daughter work hard for a paycheck—only to lose her benefits because of it. It’s a gut‑punch that too many families know too well, and it raises critical questions about what we’re really incentivizing in our systems. Dawn reflects, “You are your children’s strongest advocate and their loudest voice.” Her honesty speaks directly to those who may feel defeated or unsure—reminding us that staying quiet doesn’t serve our kids.Steve adds his own challenge to the status quo: “If OPWDD didn’t exist, families would still find a solution. They’d fix it.” It’s a powerful reminder that waiting for change isn’t the same as creating it—and families have always led the way when the system came up short.Family Support Services (FSS) is a New York State program that provides limited but essential help—like respite, reimbursement, and recreational opportunities—for families caring for a loved one with a developmental disability at home. Learn more and explore how to get involved with a local FSS Advisory Council here: https://app.box.com/s/4rlpx9opnrwgm44ywo33064mw4t7wg5pWhether you’re just beginning your journey or facing the hard questions of what happens after you're gone, this episode will remind you: we are the cavalry we’ve been waiting for—because, as Heather says, “we can’t afford to wait for the people in boardrooms to save us.” There’s power in linking arms with others who get it. Tune in now to feel seen, supported, and recharged.Become a supporter of this podcast: https://www.spreaker.com/podcast/finding-common-ground--6199849/support.Recorded at ROC Vox Recording & Production Studios in Rochester, NY. Learn more at rocvox.com.

 In this urgent and deeply personal episode of Finding Common Ground, Heather and Steve welcome Larissa Martin — a self-advocate who has relied on New York’s Consumer Directed Personal Assistance Program (CDPAP) for 17 years. Larissa’s voice is raw and real as she shares why this program has been her lifeline, how the rushed transition to Public Partnerships LLC (PPL) has shaken the system, and why now is the moment to speak up. Over 70,000 people have already been forced into more expensive agency-based care. Thousands more have lost their caregivers altogether — often because aides quit after wrong, delayed, or missing paychecks. This isn’t just inconvenient; it’s led to declining health, hospitalizations, forced institutionalization, and, tragically, preventable deaths. One of CDPAP’s greatest strengths is the ability to hire people we trust — not strangers an agency assigns. Larissa puts it simply: “Even if we don’t know a caregiver well at first, many become like family over time. That’s why it was so painful for consumers to see New York hire a company with a record of payroll violations. Like Senator Rivera has said, the harm is no longer hypothetical. PPL is repeating their pattern. They are driving down enrollment by forcing our caregivers to quit.” One of Larissa's own caregivers, already stretched thin with five kids, now worries every payday if she’ll be paid correctly. This constant stress is unnecessary, inhumane, and dangerous. In just 20 weeks, PPL has caused more chaos, potential fraud, and harm than our previous Fiscal Intermediaries did in the decades since CDPAP began — which is why CMS, the DOJ, and the FBI are now involved. But where is our own Department of Labor? Felony-level wage theft on this scale demands their attention, yet there has been no public acknowledgment that one of the largest workforces in our state is being exploited in plain sight. Every day they stay silent, more families lose the care they depend on, and more workers pay the price for a crisis they didn’t create. The DOH Commissioner promised the transition would make it easier for caregivers to get paid and save the state money. In reality, people are losing care, being pushed into costlier options, and facing devastating consequences. Anger is justified — but Larissa challenges all of us to go further: share our stories, put the harm on record, and be part of the solution. If you’ve been affected by the CDPAP transition, you have until Monday, August 18th to submit written testimony. It doesn’t have to be long or perfect — just honest. Your voice matters. Without it, change may never come.  How to Submit Testimony:Write about your personal experience with CDPAP and the impact of PPL’s takeover.Share specifics: payment delays, insurance issues, caregiver shortages, or disruptions.Keep it respectful but real — your lived experience is powerful.Email your testimony to [email protected]. If you choose to be anonymous, sign as “Jane Doe.”Whether you’re a CDPAP consumer, caregiver, family member, or concerned New Yorker, your testimony matters to the 700,000 people who were connected to CDPAP before PPL’s monopoly. When someone told Larissa she should move to another state that would treat her better, she replied: “I want to stay and fight not just for me, but for other people in the program that don’t have that option to leave.”  Listen now to hear Larissa’s powerful story — and learn how you can make yours heard before the deadline.Become a supporter of this podcast: https://www.spreaker.com/podcast/finding-common-ground--6199849/support.Recorded at ROC Vox Recording & Production Studios in Rochester, NY. Learn more at rocvox.com.

On this episode of Finding Common Ground with Heather and Steve, we talk with Craig and Sally Benoit, a remarkable couple who’ve fostered over 50 children and adopted 13—each with their own story, needs, and quirks. From the first few minutes, you’ll feel their blend of grit and humor. Whether it’s juggling allergy lists, remembering who hates peas this week, or managing bedtime with over a dozen different routines, they’ve seen it all. Craig joked that just loading the dishwasher feels like a military operation—because in their house, even the spoons have backstories. It’s funny, it’s chaotic, and it’s completely real. A peek into the kind of parenting that will make you laugh and nod in recognition, whether you’ve raised one kid or twenty.This episode is full of laugh-out-loud funny moments, balanced with some deeply moving ones too. The Benoits speak candidly about navigating the foster care and disability systems, and what it really takes to build a stable, loving home when the systems around you are broken. From setting boundaries to learning how to advocate for special education services and adult supports, their insights will hit home for anyone trying to raise children in complex circumstances.This episode isn't just about their extraordinary family—it’s about what happens when everyday people refuse to give up on kids society often overlooks. The Benoits didn’t wait for a perfect system. They did what they could with what they had, and they’re not done yet. One moment that cuts through the noise: When Craig and Sally agreed to meet a boy who had once lived with Steve, they expected the "usual pitch" that minimized the difficulties and were stunned and grateful when they received honesty instead. Steve placed a bag of torn, chewed-up shirts on the table. "He chews every collar," he said. Not dramatic. Just real. A behavior that others might’ve hidden to make the placement happen. But Steve didn’t hide anything and the Benoits didn’t run.“We aren’t afraid of hard things,” Sally said. She explained that knowing where the pain points are helps them figure out which children will thrive in their home and which may need a different path. They lovingly joke that their full house isn’t for everyone, but what makes this conversation unforgettable is that nothing was sugar coated. They let us backstage into the chaos, the love, and the realities most people never see.Fostering isn’t about perfection—it’s about showing up, even when it’s hard. This episode delivers honest insights, unexpected laughter, and maybe... the push you need to take that first step.Become a supporter of this podcast: https://www.spreaker.com/podcast/finding-common-ground--6199849/support.Recorded at ROC Vox Recording & Production Studios in Rochester, NY. Learn more at rocvox.com.

In this powerful episode of Finding Common Ground with Heather & Steve, we sit down with Alexandra Fernandez, a devoted mother of 10-year-old twins with profound autism. Alexandra bravely shares what it’s like to care for children with such intensive needs—and what happens when the right supports simply don’t exist.After speaking up at OPWDD’s first Listening Tour session in Central New York, Alexandra's heartfelt testimony caught the attention of Commissioner Willow Baer. The result? Real action—and real change. Her twins will soon be coming home! While it’s a dream come true, Alexandra knows that the challenges that existed before their hospital stay haven’t magically disappeared. More work is needed to ensure that this time is different—that the family is truly wrapped in the supports and safety nets they need to make this a lasting, sustainable solution.This conversation reminds us that advocacy works, that one voice can ripple outward, and that sometimes the win we desperately need is closer than we think. A few highlights:What makes profound autism different—and why the system isn’t built to support itAlexandra’s practical solutions: from in-home potty training programs to behavioral crisis linesA behind-the-scenes look at the Center for Discovery’s new specialty hospital"To have the opportunity to tell our story is rare—and when you’re caring for someone with profound autism, the isolation can be overwhelming. The level of care required, the services that are missing, the boundaries we’re not allowed to cross—these are things most people don’t see, but they define our everyday." – AlexandraIf you've ever wondered whether your voice matters, this episode proves it does. This podcast is a personal mission. We’re not funded by big sponsors—we grow through shares, likes, comments, and subscriptions. Help us spread stories that make a difference:Subscribe on your favorite podcast platformLike, comment, and follow us on YouTubeShare this episode with someone who needs a little hope todayBecome a supporter of this podcast: https://www.spreaker.com/podcast/finding-common-ground--6199849/support.Recorded at ROC Vox Recording & Production Studios in Rochester, NY. Learn more at rocvox.com.

What happens when someone who lives the challenges of the IDD system also leads efforts to change it? You get a conversation like this.In this powerful episode, Heather and Steve sit down with Nick Cappelletti, CEO of Life Plan and ACA—two organizations serving over 47,000 families across New York State.But Nick isn’t just an executive—he’s a dad who gets it. His personal connection to disability services brings a rare and refreshing blend of empathy, insight, and urgency to the table.Together, we explore the shift from Medicaid Service Coordination to Care Coordination Organizations (CCOs), the growing importance of integrated healthcare, and how the Whole Person Supports Coalition is reimagining what care could and should look like.Nick doesn’t shy away from the tough stuff—funding inequities, staffing struggles, and overly rigid regulations—but he also leaves us with a sense of possibility and purpose. Quote Worth Sharing:“If a child with autism can’t find a psychiatrist, a behavioralist, or even just basic health care—then no amount of IDD services will matter. That person won't fully benefit unless we treat the whole person.” — Nick CappellettiAnother Mic-Drop Moment:“We have to ask: Are we really spending our money wisely? Or is there a better way to allocate resources, assess need, and give people more options, more choices?”If you care about improving systems for people with disabilities—or if you just want to hear from a leader who actually listens—this episode is for you. Tune in for:The backstory of how care coordination evolved in NYHow pandemic-era disruptions still ripple through the systemWhy Nick believes regulation must balance risk with quality of lifeThe inside scoop on what the Whole Person Supports Coalition is working towardA heartfelt discussion on parenting, partnerships, and the path forwardThis one’s equal parts policy deep-dive and heart-centered advocacy. We left inspired—and you will too.Become a supporter of this podcast: https://www.spreaker.com/podcast/finding-common-ground--6199849/support.Recorded at ROC Vox Recording & Production Studios in Rochester, NY. Learn more at rocvox.com.

Guest: Karen Korotzer, CEO of ARC Oneida-LewisAt Finding Common Ground, CDPAP was a spark—but not the full story. That crisis reminded us how fragile our systems really are. What brought people to our platform wasn’t just one bad policy, it was the toxic mindset behind it, and the fear that mindset would spread. Families needed a safe space to process how it was affecting them. Together, we created that space—a community where people uplift one another, even if their views don’t always align, because we know how to find our common ground and honor where our values overlap.We are carrying that same energy, strategy, and determination into every system that touches our lives. In this episode, we pull back the curtain on Medicaid’s shifting foundation and what happens when the music stops for those who rely on it most.Special guest Karen Korotzer, CEO of ARC Oneida-Lewis, joins Heather and Steve for a candid, eye-opening conversation about how disability services have survived—not because of strong systems, but often in spite of them. With federal Medicaid reforms looming and New York’s long history of budget manipulation, this episode breaks down what’s really happening behind the scenes and why families should never be gaslit into silence.We asked families: “What keeps you up at night?” The answer echoed loudly: caregivers. Whether it’s a professional who chose this work or an unpaid family member doing it out of love, caregivers are undervalued, unsupported, and trapped in a system that labels them essential while treating them as expendable. It’s time we call caregiving what it is: a profession that deserves Department of Labor recognition, an occupational code, and real protections that reflect real respect for this honorable career.Karen doesn’t just describe the problem—she shares real examples of what’s working, what’s broken, and what comes next:Why Medicaid “reform” always sounds better on paperHow the disability sector survives on budget scraps and why that must changeWhat really keeps DSPs in the field (hint: it’s not just the paycheck)Why exhausted parents often make the most powerful advocatesWhat you can do right now to shape what happens nextIf you’ve ever found out about a major policy shift after it was already decided—without your input—this episode is for you.Become a supporter of this podcast: https://www.spreaker.com/podcast/finding-common-ground--6199849/support.Recorded at ROC Vox Recording & Production Studios in Rochester, NY. Learn more at rocvox.com.

Join hosts Heather and Steve as they take Finding Common Ground on the road to Utica, New York for the annual Autism Walk. Despite drizzly skies, the energy was electric—over 50 resource tables, $150,000 raised, and hundreds of families, self‑advocates, service providers, and local leaders coming together in solidarity.In this special on‑location episode you’ll hear:Personal Journeys: A conversation with an author who has turned his lived experience with autism into a series of children's books.Advocacy in Action: Diane Tanner of Healthy Minds, Healthy Kids on mental‑health funding and Assemblyman Miller’s vision for policy change.Community Impact: Dr. Kelberman reflects on 20 years of grassroots growth and future plans.Self‑Advocate Voices: Christian and Veronica share how they’re forging independence through employment and peer‑led initiatives.Local Innovation: Highlights from Books, Art & More and LifePlan/ACA on creative supports and care management.Whether you’re an ally, a family member, or simply curious, this episode captures the resilience and unity of the autism community—and shows why our work continues year‑round. Tune in to discover inspiring stories, practical resources, and how you can help keep the momentum going. Subscribe now and be part of the conversation!Become a supporter of this podcast: https://www.spreaker.com/podcast/finding-common-ground--6199849/support.Recorded at ROC Vox Recording & Production Studios in Rochester, NY. Learn more at rocvox.com.

Today, as the perpetrator (Garnet Collins) is sentenced for his crimes, we release this episode to stand in solidarity with Anil and Shalini Babbar’s family and amplify their fight for justice and protection. Their journey from heartbreak to hope explains the development of Guardian Watch AI and how technology—combined with community involvement—can not only hold perpetrators accountable but also prevent future abuse.Impactful Quotes from the ParentsShalini Babbar: "To get a call from a strange number and shortly thereafter receive a video of my son's physical and sexual abuse has been by far the most devastating thing I've ever experienced. My son screaming in pain, howling in agony, saying he wants to call his mommy. It echoes in my head all the time. A selfless whistleblower staff member could no longer tolerate the abuse he was witnessing and felt compelled to alert us. We will forever be grateful to him. This man took matters into his own hands and if not for his courage, my son would still be a victim."Anil Babbar:  Listen as we put to rest the tired argument that "privacy rights" are why cameras should not be permitted in group homes. The truth is, cameras are already in place in many settings to protect us. Those who cannot testify to the abuse they’ve endured deserve the same safeguards as everyone else, not less. "We need to create a grassroots campaign to ensure cameras are installed in these facilities. It's the only way to protect our most vulnerable."The Shocking Reality of AbuseThe prevalence of abuse in care facilities is staggering:The Justice Center investigates 90,000+ cases of potential abuse or neglect each year in the state of New York.80% of abuse goes unreported.Disabled children are 5 times more likely to be sexually assaulted.4 out of 5 disabled females have experienced sexual violence.Many vulnerable victims cannot testify, making convictions difficult without video evidence.Taxpayer money funds facilities where abuse goes unchecked for decades.The System Needs to Change: In other care sectors, like nursing homes, facilities are penalized for abuse—through fines and adjustments to reimbursement rates when patterns of abuse are identified. Why doesn’t this happen in residential facilities for people with disabilities? Medicaid dollars should not fund abuse. If facilities were required to repay Medicaid for timeframes when abuse occurred, it would create a powerful incentive to improve safety protocols and oversight.Learn how this wasn't the first time the Anderson Autism Center has faced scrutiny. Twenty years ago, at the same residential option for children under 21, unchecked abuse resulted in the death of Jonathan Carey. How are these tragedies still happening decades later? This podcast digs into why we need systemic change to protect our loved ones.A Call to Action: Be Part of the SolutionParents, caregivers, and advocates can actively participate in this mission. By submitting video footage of behaviors—like stimming or common reactions—families can help train Guardian Watch AI to distinguish between typical movements and potential signs of abuse. Your contributions will help protect countless vulnerable individuals from harm.This isn’t just about detecting abuse but proactively creating an ecosystem that prevents it. Imagine an AI system that detects elevated heart rates or distress signals, allowing for early intervention, alerting staff, and calling for backup. It’s not just a documentation tool—it’s a safety net that supports the staff as much as the disability community. In cases where staff are falsely accused, video footage can serve as a safeguard, providing context and proof of proper conduct.This platform has the potential to protect everyone involved. Many staff members feel undervalued and disrespected, which makes it harder for them to step forward when they witness travesties. Guardian Watch AI can help document events accurately, providing clarity in ambiguous situations and ensuring that the truth prevails. Law enforcement and The Justice Center have acknowledged that having video evidence would be extremely helpful in clarifying cases where witnesses have difficulty communicating and/or fear retaliation.Visit the official website to learn more and get involved:  https://app.guardianwatch.ai/Learn More: For more about the case and the family’s journey, watch the news coverage here:  https://www.fox5ny.com/news/autism-facility-faces-abuse-allegations-after-shocking-video-surfacesThis episode is more than just a story—it’s a call to action. Be part of a movement to create safer environments for our most vulnerable. Listen to this powerful episode, hear Anil and Shalini’s story, and find out how you can join the effort to protect those who cannot protect themselves. Together, we can ensure that our loved ones are safe, respected, and protected—even when we are no longer there to advocate for them.Become a supporter of this podcast: https://www.spreaker.com/podcast/finding-common-ground--6199849/support.Recorded at ROC Vox Recording & Production Studios in Rochester, NY. Learn more at rocvox.com.

Pull up a virtual backstage chair—this episode is just Heather & Steve, nearly one year in the making. No guests, no scripts, just two advocates who refuse to let the conversation end at “cut.” We revisit our most powerful moments, unpack the “quiet parts” that echo long after the camera stops rolling, and give you the inside scoop on what’s coming next.  A heartfelt thank you to everyone for rallying around CDPAP topics lately. We know this platform has been CDPAP-heavy—and we appreciate your understanding. Remember, every issue matters here: home care, federal funding, community innovations, and more.In this free-wheeling episode, you’ll:Relive Standout Moments: Revisit some of the debates that have shaped Finding Common Ground and hear why they still matter: “On his 21st birthday, every single program stops. There is no fallback, no transition to adulthood for these same kinds of programs that he still needs. It took quite an undertaking trying to get him somewhere. At the very last minute we got the miracle, and he moved in yesterday.” Explore the Camera Conundrum: Why aren’t group homes outfitted with the same camera technology we see in every other sector? “If you’re in a hospital, there are cameras. If you’re in a school, on a bus, if you’re in a store, if you’re in a nursing home, we even use cameras to keep our cars safe. Why not our most vulnerable?” We dismantle the tired privacy arguments and sketch out how we could make it work for everyone’s safety.  Meet Our Newest Allies: Learn how a horrifying abuse case at the Anderson Autism Center forged Heather’s bond with Shalini (the boy’s mother) and led to a collaboration with his Dad, Anil. Their pioneering AI platform will not only document and expose abuse, it aims to prevent it before it happens. Stay tuned for a deep-dive episode on how you can help train this technology, so it’s designed with your family’s needs in mind.Follow Steve’s Foster-to-Family Mission: After welcoming nearly 200 children into their home, Steve and his wife are finalizing their last adoptions—and you’ll be astonished by the stories they’ll share once their family is complete. Buckle up for an upcoming mini-series of eye-opening revelations and groundbreaking solutions they couldn't discuss until now.Why Listen to this Episode?Respectful Dialogue: We tackle the issues blowing up other platforms. Just last month, nearly 80,000 people engaged with our RFK Jr. autism post with only three comments that "crossed the line" with a disrespectful tone. Which shows us what’s possible when we welcome raw truths and diverse perspectives.Common Ground = Real Change: Every voice matters. By sharing honest stories from every side, we pave the way to solutions that last long after we are gone.Your Voice Matters: Tune in, then dive into the discussion. Tell us which topics you want us to explore next—home care, housing, policy, or something entirely new. Listen now on your favorite podcast app or watch on YouTube. The backstage door is open—come join the conversation that keeps going long after the cameras are off.Become a supporter of this podcast: https://www.spreaker.com/podcast/finding-common-ground--6199849/support.Recorded at ROC Vox Recording & Production Studios in Rochester, NY. Learn more at rocvox.com.

This is the episode where we say the quiet parts out loud.Heather and Steve sit down with powerhouse advocate Jackie Ceonzo, founder of SNACK and co-founder of Families for Disability Rights, for a raw, fearless conversation about the side of parenting and disability advocacy that rarely gets airtime—but absolutely needs to.Jackie has been featured on Good Morning America, built inclusive programs from scratch, and helped launch the Coalition for Self-Direction to protect families navigating complex needs, broken systems, and constant burnout. But she didn’t get there by playing it safe. Like so many of us, she started out overwhelmed, unseen, and determined to build what her child needed when no one else would.“If we’re these silent soldiers, no one’s going to help us. And we’re going to drop dead if we keep trying to do this by ourselves.” – Jackie CeonzoIn this episode, we cover the sh*t you’re not supposed to talk about—literally and figuratively. Topics too often filtered out of polite conversation or edited for public comfort, including:Embarrassing (but funny) moments in publicFecal smearing and lifelong toileting challengesAggression, broken doors, and the emotional toll of staying safePublic meltdowns and the joy of being judged by strangers in the frozen food aislePuberty, sexuality, and trying to explain hormones to someone who still presents as child-likeCaregiver isolation, burnout, and the “dark thoughts” no one says out loud (like Googling group homes at 3AM—or fantasizing about five minutes of silence in a locked bathroom)Jackie shares her journey raising a son with profound autism, creating SNACK so both of her sons could grow up side-by-side, and realizing that when systems fall short, parents have to build what’s missing. Her message is blunt, empowering, and refreshingly unapologetic:“Common sense has been out the window for way too long… So that’s why I said, you know what? I’m gonna do my own thing. No one is coming to save us. So we built it ourselves.”This episode will challenge you, move you, and make you feel seen. Whether you’re a caregiver, advocate, sibling, or policymaker, you’ll leave with a deeper understanding of what families are facing and why silence is no longer an option.We’re not here to sugarcoat. We’re here to speak the truth.Tune in. Share it. And remember: No one is coming to save us. So let's build the future we need, together.Become a supporter of this podcast: https://www.spreaker.com/podcast/finding-common-ground--6199849/support.Recorded at ROC Vox Recording & Production Studios in Rochester, NY. Learn more at rocvox.com.

Don’t expect transparency. That’s what you have to dig for.” – Eamonn Scanlon, The Children's AgendaWhat happens when over 140,000 students are suspended from school each year in New York? When families can’t get basic developmental services until it’s too late? When the people in power act like the system is working just fine? This week on Finding Common Ground, Heather and Steve are joined by Eamonn Scanlon from The Children’s Agenda to expose the cracks in the foundation of our education and care systems—and what we can do to fix them. 🎧 In this episode:Real Power: Learn how building coalitions and reshaping narratives are just as critical as passing legislation.Suspensions That Solve Nothing: Hear why blanket school suspensions don’t change behavior—and what does.A Broken Early Intervention System: NY is dead last in timely early intervention services. Eamonn breaks down how that failure starts before kids even enter the school system.From Foster Care to the Classroom: Steve shares his personal experience with therapeutic foster care—and how trauma-informed systems are still more buzzword than reality.No Support? No Success. Heather explains how gaps in services impact families like hers—where Early Intervention delays and suspension risks aren’t just stats—they’re real life.💬 Must-Hear Quotes: “Suspensions don’t work. We need discipline that actually changes behavior.” — Eamonn Scanlon [24:56]“The early intervention system? It’s disconnected. And that’s a massive problem.” — Eamonn Scanlon [32:37]“If we had 100,000 people in Albany tomorrow? All of this melts away.” — Eamonn Scanlon [43:09]“If they admit the problem, they have to fix the problem.” — Eamonn Scanlon [13:26] Why You Need to Listen: If you care about educational equity, disability rights, or just making systems actually work for kids and families, this episode is a rallying cry.We’re not here to complain—we’re here to organize, act, and make sure no family is left to navigate broken systems alone.👉 Tune in now and learn how you can become part of the movement: Kids Can’t Wait and Solutions Not SuspensionsBecome a supporter of this podcast: https://www.spreaker.com/podcast/finding-common-ground--6199849/support.Recorded at ROC Vox Recording & Production Studios in Rochester, NY. Learn more at rocvox.com.

In this powerful episode, Heather and Steve sit down with Jackie Kancir, Executive Director of the National Council on Severe Autism (NCSA), and Tammy Snyder, New York State Chair for NCSA—two incredible women who live the reality of severe autism every single day and fight to make a difference far beyond their own families. “We didn’t choose this path—but we’re choosing to walk it with purpose, for every family who feels unseen.” – Tammy Snyder “There’s a whole population of individuals being left out of the conversation. We’re here to change that.” – Jackie KancirNCSA traveled to Washington, D.C. last week to bring these urgent concerns to national policymakers—and Steve was there, standing alongside them in solidarity. This conversation dives into why this kind of targeted approach matters and how you can be part of the growing advocacy network.Together, we cover:Why the voices of those with severe autism are drowned out in mainstream conversationsThe emotional cost of navigating broken systems How policy fails families—and what must changeWhat’s happening in New York State that most people aren’t talking aboutHow you can connect and take action through NCSA’s national and state-level networksThis episode doesn’t shy away from the uncomfortable. It’s a raw, honest, and necessary conversation that lays the groundwork for real advocacy. If you’ve ever felt like no one gets it, this one’s for you. These women do. And they’re not backing down.🎧 Listen now and join a growing movement of people finding strength in shared stories—and taking action that matters.🌐 Learn more and connect with NCSA: 👉 National Network Map – Find your state! 👉 New York State PageBecome a supporter of this podcast: https://www.spreaker.com/podcast/finding-common-ground--6199849/support.Recorded at ROC Vox Recording & Production Studios in Rochester, NY. Learn more at rocvox.com.

What does it really mean to belong? How can embracing radical self-honesty and internal security transform our relationships and the communities we live in?In this episode of Finding Common Ground, Heather and Steve sit down with Fayna Claire Pearlman, a community-building expert, to explore these profound questions.Fayna shares powerful insights into how authentic connections start from within. Reflecting on the buzzword "safety," she challenges us to shift our focus:"There's this concept of safety. We talk about that a lot. It's such a buzzword now—'I need to feel safe, I need to feel safe.' There's this idea of safety as an external form... like having a roof over your head or enough money for food. But security, to put a spin on all of this, is similar but comes from an internal space—where even if I don't have a roof over my head, I know I'll be okay."Here are 3 key takeaways from our conversation with Fayna:Radical Self-Honesty: Building genuine connections begins with acknowledging our needs and emotions—even when it’s uncomfortable.Internal Security vs. External Safety: Fayna’s approach encourages developing an inner foundation that shapes how we engage with the world.Community as a Bridge: Community is the essential link between who we are individually and how we find meaning, belonging, and growth.Whether you’re seeking deeper personal connections or ways to strengthen your community, this conversation will leave you with practical insights and a fresh perspective on what it means to truly belong. Don’t miss the full episode!Share your thoughts in the comments.Pass this on to someone who could benefit from these insights.Tune into Finding Common Ground for more inspiring conversations that spark change!Become a supporter of this podcast: https://www.spreaker.com/podcast/finding-common-ground--6199849/support.Recorded at ROC Vox Recording & Production Studios in Rochester, NY. Learn more at rocvox.com.

On this episode of Finding Common Ground with Heather and Steve, we sit down with Howard Nash—a filmmaker, actor, and father who has spent over 15 years fighting to reconnect with his son. With his industry connections and resources, you’d think he could overcome any legal challenge -But- when his son with profound autism turned 18, a legal loophole allowed his ex-wife to block him from any contact without justification. Howard has poured time, money, and relentless determination into this battle, yet the system continues to fail him. Instead of giving up, he is not focused on pushing for legislative change that will help many family members protect connect with loved ones who have documented disabilities or age-related decline. Karilyn’s Law (NYS Senate Bill 2649, Sponsored by Senator Anthony Palumbo) is a critical bill designed to close this loophole and protect families from unjust separation. How is this happening to parents, siblings, and elderly relatives across the country? Why does the burden of proof fall on loving family members instead of those keeping them apart? And most importantly—What can be done to fix it? This episode is raw, emotional, and urgent. Press play to learn about Howard’s fight, the lessons he’s learned, and how taking action is vitally important in situations like this. If this resonates with you, here’s how you can help: Mention Karilyn’s Law (S.2649) to your local legislators. If you have a different matter you want to explore, the links below help you locate you legislators, as well as legislation that has been introduced in the Senate and Assembly. Keep in mind that even if there is no bill written about your need right now, the legislative director at the different offices may be able to draft one! 🔹 FIND MY NY ASSEMBLY MEMBER: https://nyassembly.gov/mem/search/ + ASSEMBLY BILL FINDER: https://nyassembly.gov/leg/ 🔹 FIND MY NY SENATOR: https://www.nysenate.gov/find-my-senator + SENATE BILL FINDER: https://www.nysenate.gov/search/legislation Support Our Mission: By Families, For Families This podcast is 100% grassroots! No big-name sponsors dictating our content. We invest in Finding Common Ground because unfiltered conversations with changemakers like Howard move the needle on real issues. ✅ Like, comment, and share this episode on YouTube:https://youtube.com/@FindingCommonGroundPodca-hm2ku?si=gDaDpFqV-0U4S3II ✅ Subscribe to our YouTube channel (it's free!) and Follow us on all major podcast platforms:https://www.facebook.com/share/p/1AkvJc65Wa/ ✅ Join our Facebook group and be part of the conversation: https://www.facebook.com/share/g/18kAfVhZgG/ ✅ Check out our online merch shop: https://store.masteryourimage.com/fcgpc/shop/home?fbclid=IwY2xjawI1eKdleHRuA2FlbQIxMAABHV-KMiBavkClVzo3b6bETAeKP5yRlFOirihoPQzpUOxzqm11ejalwl1MqQ_aem_s1tWrsg-CFrBH4XU_DU9TA ✅ For just $2/month, join our Supporters Club to help cover studio costs and keep this podcast going.https://www.spreaker.com/podcast/finding-common-ground--6199849?fbclid=IwY2xjawEXO9JleHRuA2FlbQIxMAABHYKhhiRz9tP94K6mhc1hsVrP01bFkiNb4npne5s9CCpB9UNYO_rmtRuY-w_aem_tZyKsdnOU0vTA9kWcqO3zg Let’s build a community that fights for families, uncovers solutions, and refuses to stay silent. Your support means everything!Become a supporter of this podcast: https://www.spreaker.com/podcast/finding-common-ground--6199849/support.Recorded at ROC Vox Recording & Production Studios in Rochester, NY. Learn more at rocvox.com.

In this episode of  @FindingCommonGroundPodca-hm2ku   Heather and Steve dive into the vital role recreation centers play for adults with autism and developmental disabilities. Kathy Caruso, founder of the Better Together Recreation Center, shares her journey as a parent advocate and how she’s addressing the service gaps many families face.https://www.romesentinel.com/entertainment-life/utica-better-together-fundraiser-gala/article_36d4ade8-d808-11ef-ad08-830b27933125.html Learn how sensory-friendly spaces, adaptive programs, and inclusive communities are breaking barriers and transforming lives. Discover actionable tips for building support systems in your own area and hear how the Better Together Gala is fueling this life-changing mission.Tune in now for inspiring insights and practical ideas to create a more inclusive world!#FindingCommonGround #InclusiveCommunities #RecreationCenters #AutismSupport #DisabilityInclusion #BetterTogether #ParentAdvocacy #SpecialNeeds #DevelopmentalDisabilities #SensoryFriendly #DisabilityRights #CommunityCare #AutismServices #InclusionMattersBecome a supporter of this podcast: https://www.spreaker.com/podcast/finding-common-ground--6199849/support.Recorded at ROC Vox Recording & Production Studios in Rochester, NY. Learn more at rocvox.com.

In this episode of Finding Common Ground, Heather and Steve sit down with the powerhouse leadership team of the Kelberman Center: Maria Cappoletti (CEO), Kelly Carinci (Chief Development and Communications Officer), and Bethany Wendt (Director of Community Relations). Serving over 1,000 families in Central New York, Kelberman is a beacon of hope, offering a “true north” for families navigating their autism journey.From sensory-friendly events like tubing outings to innovative family navigation services, hear how Kelberman empowers families to embrace new experiences in supportive, inclusive environments. As Maria Cappoletti shares, “It’s always important to step back and remember why we are doing this—it’s to serve.”Curious how Dr. Michael Kelberman’s vision grew into a groundbreaking model for community support? This episode reveals how their approach can spark solutions in your own backyard, providing inspiration to create impactful change in other regions.Exciting News! Our online merch shop is nearly ready to launch! It’ll be your go-to spot for podcast updates, exclusive content, announcements, and must-have merch. Your support fuels our grassroots mission, and we’re thrilled by the positive feedback from our amazing listeners.Tune in now for unfiltered conversations, innovative ideas, and a celebration of the incredible work transforming Central New York—and beyond!#FindingCommonGround, #PodcastWithPurpose, #UnfilteredConversations, #Autism, #IDD, #PremierModel, #InnovativeApproach, #CentralNY, #KelbermanCenter, #FamilyNavigation, #InclusiveCommunity, #SpecialNeeds, #AutismAwareness, #NonprofitOrganization, #CommunityEvents, #SensoryFriendly, #DevelopmentalDisabilities, #FamilyEmpowerment, #AutismServices, #CommunityOutreach, #SpecialEducation, #DisabilityRights, #AutismResources, #InclusiveActivities, #SupportServices, #AutismJourney, #CommunityInclusionBecome a supporter of this podcast: https://www.spreaker.com/podcast/finding-common-ground--6199849/support.Recorded at ROC Vox Recording & Production Studios in Rochester, NY. Learn more at rocvox.com.

In this episode of Finding Common Ground, Heather and Steve sit down with Jennifer Everett, a seasoned first responder, to discuss the crucial role of emergency responders when supporting individuals with intellectual and developmental disabilities (IDD). Jennifer’s journey into the field began with a simple flyer in college—and the rest is history. She opens up about her early experiences supporting people with disabilities and the limited training available to first responders at the time.Jennifer candidly shares how the field has evolved, noting the challenges first responders face, particularly the surge in burnout rates, which have spiked since the pandemic. But it’s not all struggles—Jennifer also sheds light on innovative solutions that could be game-changers for families in crisis. You’ll want to check to see if these programs are available in your area!What should families know when they need to call 911 in an emergency? How can they provide the right information to ensure the best possible response? Jennifer’s insights into communication, training, and community engagement provide invaluable tips for families worried about navigating an emergency with loved ones who have special needs.Tune in for personal stories, expert advice, and a behind-the-scenes look at how first responders are adapting to better serve everyone in the community. This is an episode you won’t want to miss!This podcast is grassroots—no big-name sponsors shaping our content. We believe unfiltered conversations with changemakers like Jennifer can spark real change for families like ours.Support us by liking, commenting, and sharing this episode on YouTube or your favorite podcast platform. We'd also appreciate if you - Subscribe to our YouTube channel (it’s free!)Follow us on your favorite podcast platform  Join our Facebook groupFor just $2/month, join our Supporters’ ClubYour Supporters’ Club Membership goes directly to covering studio costs and helps keep this podcast going. In return, you’ll get exclusive content and discounts in our soon-to-launch merch store. We prefer to keep this “amongst friends,” creating a podcast with purpose—by families, for families. Your support means everything to us!Become a supporter of this podcast: https://www.spreaker.com/podcast/finding-common-ground--6199849/support.Recorded at ROC Vox Recording & Production Studios in Rochester, NY. Learn more at rocvox.com.

In this eye-opening episode, we sit down with Brad Hansen, Director of Public Policy at Families Together in New York State, to discuss the alarming crisis in youth mental health services and the game-changing solutions that could make all the difference.Brad pulls no punches as he reveals how systemic failures—such as endless waitlists, a critical shortage of mental health providers, and an overly complicated system—are leaving our kids without the care they desperately need. “The system has been slowly made to be anemic,” he warns, underscoring the devastating impact on vulnerable youth.But this isn’t just about the problems. Brad shares his vision for change through the Healthy Minds Healthy Kids campaign, calling for a $195 million funding boost to address workforce shortages and overhaul a broken system. He paints a powerful picture of what’s possible: accessible, compassionate mental health services for every child, no matter their background or insurance type. Learn more about this campaign online: https://healthymindshealthykids.org/Heather and Steve dive deeper into the real-life consequences of these systemic failures, sharing personal stories of families caught in the chaos, including the specific challenges faced by foster children. Together, they stress the importance of early intervention and why we can’t afford to wait until issues spiral out of control.Why You Need to Listen: This episode is a wake-up call. It’s filled with hope, actionable solutions, and a clear path forward for anyone who wants to be part of the change. Parents, advocates, and policymakers alike will walk away with the knowledge and tools needed to help make mental health care for kids a priority.Call to Action: Support the Healthy Minds Healthy Kids campaign and push for the systemic changes our kids deserve. Share this episode to help spread the message, and join us in advocating for the future of youth mental health care.  Listen now and be part of the movement to create better mental health outcomes for our kids!This podcast is completely grassroots—no big-name sponsors dictating our content. We’re investing in this because we believe that unfiltered conversations with change makers like Dr. Pham can move the needle on issues that matter to families like ours. Please support us by liking, commenting, and sharing this episode on YouTube or your favorite podcast platform. ️ Subscribe to our YouTube Channel (it's free)️ Follow us on your favorite Podcast Platforms ️ Join our Facebook group️ For just $2/month, join our Supporters Club and help cover studio costs and keep this podcast going! Those helping us get this off the ground will get access to exclusive content and discounts in our soon-to-launch merch store. We prefer to keep this “amongst friends” and create a podcast with purpose, by families, for families. Your support means everything!Become a supporter of this podcast: https://www.spreaker.com/podcast/finding-common-ground--6199849/support.Recorded at ROC Vox Recording & Production Studios in Rochester, NY. Learn more at rocvox.com.

On this episode of Finding Common Ground, our guest Vincent Scalise, a decorated Marine veteran, shares his inspiring journey from serving on the battlefield to transforming his community. After returning from Iraq, Vin made it his mission to help his fellow veterans and neighbors by turning local challenges into opportunities.As Executive Director of the Utica Center for Development, Vin embodies the philosophy he shared on the podcast: "Hesitation is the worst thing you do. Whether it’s business, life, or the battlefield—make a decision and stick to it." That decisive mindset explains why he and co-host Steve work so well together. Steve recalls suggesting that the Center purchase a bus to help transport individuals with IDD, and Vin didn’t hesitate—he bought it the next day! Today, veterans regularly drive that bus to ensure community members can attend events and access opportunities they might otherwise miss.In this episode, Vin also emphasizes the importance of sustainability in nonprofit work: "A nonprofit cannot just stand there with their hand out open, thinking the government's going to pay them." His innovative revenue streams, like recycling old clothing, helps fund projects that include repurposing vacant buildings into vibrant housing and community spaces, as well as supporting veterans and individuals with disabilities.Steve brings his personal connection to the conversation, sharing how, when an advocacy board he was on disbanded, He refused to let it sit empty. Partnering with Vin, they reimagined the space into a thriving housing and respite project that will serve as a cornerstone for the community.This episode is packed with actionable insights, including:How to turn obstacles into opportunities through decisive leadership.Creative ways to fund sustainable community programs.The power of collaboration in repurposing resources for maximum impact.This episode offers a fresh blueprint for advocacy equipped to move mountains. Tune in to hear some powerful stories, learn innovative strategies, and find inspiration to cut through red tape and bring real change to your own backyard!This podcast is completely grassroots—no big-name sponsors dictating our content. We’re investing in this because we believe that unfiltered conversations with changemakers like Vin can help move the needle on issues that matter to families like ours.Please support us by liking, commenting, and sharing this episode on YouTube or your favorite podcast platform. Other ways to help us grow our audience: Subscribe to our YouTube channel (it’s free!) Follow us on podcast platforms Join our Facebook groupFor just $2/month, join our Supporters’ Club and help us cover studio costs, which keeps this podcast going!As a thank you, those helping us get this off the ground will get access to exclusive content and discounts.  Become a supporter of this podcast: https://www.spreaker.com/podcast/finding-common-ground--6199849/support.Recorded at ROC Vox Recording & Production Studios in Rochester, NY. Learn more at rocvox.com.

Join hosts Heather and Steve on Finding Common Ground as they sit down with two powerful voices for the IDD community: dedicated social worker Carrie Corby and university expert Dr. John Keesler. Despite not having a personal connection to IDD, both have chosen to devote their careers to supporting those with autism and other developmental differences, bringing fresh perspectives on systemic gaps that often go unnoticed.This candid discussion takes surprising turns as they break down a real-life scenario one of our listeners is navigating right now—offering insights, strategies, and a framework you can apply when you face similar challenges.With a career spanning state services, nonprofits, and now private practice, Carrie brings unique insights into trauma-informed care and the transformative impact of giving neurodivergent individuals a platform: “When we give individuals a voice, we give them dignity—and that can transform lives.” Dr. Keesler, drawing on extensive research and a commitment to systemic reform, highlights the vital transition from school to adult services, emphasizing, “Trauma-informed care isn’t just a method; it’s a necessary mindset that acknowledges the whole person beyond their diagnosis.”In this episode, explore the real challenges families encounter in navigating complex service systems, discover practical advocacy insights, and gain a deeper understanding of the power of community-driven support. If you’ve ever felt like the systems meant to help might be holding us back, this episode is for you.This podcast is completely grassroots—no big-name sponsors dictating our content. We’re investing in this because we believe that unfiltered conversations with changemakers like Carrie and John can move the needle on issues that matter to families like ours.Please support us by liking, commenting, and sharing this episode on YouTube or your favorite podcast platform. Other ways to help us grow our audience:Subscribe to our YouTube channel (it’s free!)Follow us on podcast platformsJoin our Facebook groupFor just $2/month, join our Supporters’ ClubYour Supporters’ Club Membership goes directly to studio costs and helps keep this podcast going. Those helping us get this off the ground will get access to exclusive content and discounts in our soon-to-launch merch store. We prefer to keep this “amongst friends” and create a podcast with purpose, by families, for families. Your support means everything!Become a supporter of this podcast: https://www.spreaker.com/podcast/finding-common-ground--6199849/support.Recorded at ROC Vox Recording & Production Studios in Rochester, NY. Learn more at rocvox.com.

In this episode, we sit down with Dr. Mai Pham, CEO and President of IEC, as she shares her personal and professional journey in transforming a healthcare system that often leaves people with disabilities behind. Despite years of medical experience, it wasn’t until her own child was diagnosed that Dr. Pham faced the frustrations families experience navigating a broken system. If she struggled, what about those without her inside knowledge?Dr. Pham takes us behind the scenes of IEC's mission to reshape healthcare by leveraging lived experiences. From creating an affordable app that helps doctors better understand patients to encouraging systemic reforms like Delta Dental’s new billing codes and the Heads Up Act, which seeks to define the I/DD population as medically underserved, IEC's approach is groundbreaking.Dr. Pham believes real change starts locally—proving concepts in familiar systems before scaling them nationwide. And sometimes, as she puts it, “You don’t always want to announce the revolution; you want it to sneak up on the powers that be.” IEC focuses on trialing solutions, refining them with data to ensure they resonate with the medical field. Tune in to hear how this quiet revolution is reshaping healthcare, empowering families across the country, and giving self-advocates the power to lead change. An inspiring, practical conversation you won’t want to miss!Learn more about IEC: https://www.ie-care.org/our-approach/This podcast is completely grassroots with no big-name sponsors dictating our content. We’re investing in this because we believe that unfiltered conversations with change-makers like Dr. Pham can move the needle on issues that matter to families like ours. Please support us by liking, commenting, and sharing this episode on YouTube or your favorite podcast platform.  Subscribe to our YouTube Channel (it's free) Follow us on your favorite Podcast Platforms  Join our Facebook group For just $2/month, join our Supporters Club and help cover studio costs and keep this podcast going!Those helping us get this off the ground will get access to exclusive content and discounts in our soon-to-launch merch store. We prefer to keep this “amongst friends” and create a podcast with purpose, by families, for families. Your support means everything!Become a supporter of this podcast: https://www.spreaker.com/podcast/finding-common-ground--6199849/support.Recorded at ROC Vox Recording & Production Studios in Rochester, NY. Learn more at rocvox.com.

Have you ever watched someone you care about spiral down a dark path, struggling with addiction and searching for a way out? If so, you will want to tune into this episode of Finding Common Ground.In this compelling episode, we delve into a reality that is often hidden behind closed doors with our guest, Theresa Bolos. She courageously shares her journey of hitting rock bottom when her drinking escalated to a crisis, culminating in an arrest. Now, every fourth of the month marks a celebration of her recovery—a powerful reminder that even in our darkest moments, we can find the strength to change our lives.Theresa opens up about the emotional toll her addiction took on her family, revealing the painful truth that their love and support alone weren’t enough to save her. Her story is a testament to resilience, illustrating the challenging yet rewarding journey of rebuilding trust and relationships, even when some may never fully return.We’re also joined by Elizabeth Caton-Burm, a psychiatric nurse practitioner who leads the Tri-D Program at Catholic Charities Family & Community Services in Rochester, NY. This groundbreaking clinic specializes in helping individuals with intellectual and developmental disabilities (IDD), mental health challenges, and addiction—one of the few in the nation to do so. Beth sheds light on the complex intersections between these issues, providing insights into how integrated care can truly transform lives.While Theresa's story is deeply personal, it resonates with broader themes of coping with stress—especially relevant for families caring for loved ones with disabilities, who often face heightened stress levels. Beth's clinic is at the forefront of addressing these challenges, offering hope and tangible support to those at the intersection of IDD, mental health, and addiction.Join us for an enlightening conversation that reminds us that no matter the obstacles we encounter, there is always an opportunity for hope and a new path forward. Whether you’ve experienced addiction firsthand or are simply seeking to understand it better, this episode offers invaluable lessons on resilience, healing, and the light that can emerge from even the darkest places.Tune in and be inspired by stories of recovery and the groundbreaking work being done to support those with complex needs. You won’t want to miss it!Become a supporter of this podcast: https://www.spreaker.com/podcast/finding-common-ground--6199849/support.Recorded at ROC Vox Recording & Production Studios in Rochester, NY. Learn more at rocvox.com.