PODCAST · health
Heart2Heart Talk with Mary Burrell
by Mary Burrell
Heart2Heart Talk is a place for honest conversations about living with heart valve disease. Hosted by hospice survivor and patient Mary Burrell, we bridge the gap between clinical data and the human experience.Join patients, caregivers, and experts for raw conversations on symptoms, clinical trials, and the fears no one whispers out loud. From navigating doctors to finding your voice, we share the stories behind the diagnosis.Where we speak from the heart, for the heart.
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The Ghost of Treatments Past
Episode: #1Guest: LESLIE MOORETopic: Mantle Radiation & Hodgkin LymphomaThis episode explores the long-term heart effects of mantle radiation, Hodgkin lymphoma treatment, and radiation-related heart valve disease in cancer survivors.For many cancer survivors, ringing the bell at the end of treatment feels like the finish line. But for some people, the story doesn’t end there.In this opening episode of Season 4 of Heart2Heart Talk, host Mary Burrell speaks with survivor Leslie Moore about a health story that can surface years — sometimes decades — after cancer treatment.In the 1970s, 80s, and 90s, thousands of young people were treated for Hodgkin lymphoma with a form of radiation called mantle radiation. It saved lives. But years later, some survivors are learning that radiation to the chest can affect the heart.Leslie shares her journey from childhood cancer survivor to facing heart valve disease later in life. Together, we talk about the long-term connection between cancer treatment and heart health, why heart screening after chest radiation matters, and how the growing field of cardio-oncology is helping protect survivors today.If you or someone you love had radiation therapy to the chest, this episode will help you understand symptoms to watch for, questions to ask your doctor, and when heart screening may be important.Topics covered in this episode:• Hodgkin lymphoma survivorship• Mantle radiation and long-term heart damage• Radiation-related heart valve disease• Cardio-oncology and survivor heart care• When cancer survivors should consider heart screeningHeart2Heart Talk — where we speak from the heart, for the heart. ❤️🩹📚 Educational ResourcesIf you had radiation to the chest for Hodgkin lymphoma, these resources explain how treatment can affect the heart years later and why heart screening may matter.Radiation-related heart disease (Cleveland Clinic)https://my.clevelandclinic.org/health/diseases/17409-radiation-heart-disease-overviewOncoLink – Late Effects After Radiation Treatment for Hodgkin Lymphomahttps://www.oncolink.org/support/survivorship/health-concerns-after-cancer-treatment-late-effects/survivorship-late-effects-after-radiation-treatment-for-hodgkin-lymphoma
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Why Clear Words Change the Patient Experience
Welcome to Season 3 of Heart to Heart Talk — where we speak from the heart, for the heart.This episode dives into something every patient faces at some point: the words we hear in healthcare.Language can build trust… or break it.Mary shares the moment she was handed a long consent form she couldn’t understand — sick, scared, and overwhelmed. That moment changed how she sees communication in medicine.She’s joined by Alissa Hanna, Director of Patient Engagement at Edwards Lifesciences, for an honest conversation about why plain, patient-friendly language matters so much in both care and research.Together, they talk about:• Why real consent requires real understanding• How confusing medical terms push patients away• What “plain language” actually means• Tools that help patients feel confident before signing• How good communication builds trust• Why support matters long after the trial tableIf you’ve ever felt confused, rushed, or unsure how to ask for clearer answers — this episode is for you.You deserve to understand your care. You deserve language that meets you where you are.🧠 About Our GuestAlissa Hanna, MPH, is the Director of Patient Engagement at Edwards Lifesciences, where she works to make research and care more human, clear, and supportive for patients and caregivers. Her work focuses on:✔ Plain-language communication✔ Improving informed-consent experiences✔ Co-creating materials with patients✔ Strengthening trust through clear, simple information🔗 Edwards LifesciencesAbout HeartBridge CollectiveHeartBridge Collective is a patient-led community changing the way heart valve patients and caregivers connect, learn, and feel supported. We bridge real stories, lived experience, and expert insight so patients never have to walk this road alone. Through peer support, honest conversations, and advocacy that pushes the system forward, we’re building a space where every voice matters — and every heart has a place to land.Bridging hearts, minds, and innovation — one lived experience at a time.HeartBridge Collective#Heart2HeartTalk #ClinicalTrials #InclusiveResearch#PatientCenteredResearch #HeartBridgeCollective#LivedExperience #HealthLiteracy #HospiceSurvivor #TricuspidValveMiracle #PatientExperience
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Patients: The Table We Never Had
S3 E5 — Patients: The Table We Never HadWelcome to Season 3 of Heart to Heart Talk — where we speak from the heart, for the heart.This episode digs into a truth patients have felt for decades:Most of the decisions in healthcare and research happen without us — even though they’re about us.For too long, patients haven’t had a real seat at the table.Mary reflects on her own journey from two years in hospice to a life-saving valve trial, and the moments when she realized just how far patients stand from the rooms where decisions are made.She’s joined by Christina Schumann,Christina’s lived experience in the Cordella CHF trial gives this conversation a depth you can’t get from textbooks. As a heart failure patient using the Cordella Pulmonary Pressure System every day, she knows what it’s like to manage symptoms, track pressures, respond to alerts, and put real trust in a device designed to keep her safer at home. Through the trial, Christina found a new sense of control over her heart failure — and a powerful purpose in helping future patients benefit from technology that makes care more proactive, more personal, and more human.Together they explore:• Why patients have been historically left out of decision-making• How lived experience strengthens research and improves outcomes• What it feels like to navigate trials without clear communication• The emotional toll of not knowing, not being updated, or not being heard• How true “patient partnership” shifts trust, equity, and access• What needs to change so patients shape the process — not just comply with itIf you’ve ever felt dismissed, rushed, or like your voice didn’t carry enough weight in your own care… this episode will hit home.Patients deserve a seat at the table — and it’s time to build one that fits us.About Our GuestChristina Schumann is a remarkable patient advocate for women’s heart health and a true inspiration to many. At 50 years old, she brings the unique perspective of not only being a dedicated mother, wife, and grandmother, but also a seasoned Medical Assistant and EMT. As a heart failure patient and proud recipient of the Cordella Pulmonary Pressure System, she has firsthand experience navigating the challenges of advanced heart conditions. Her involvement as a clinical trial participant reflects her commitment to advancing cardiac care and empowering others in their health journeys. On the podcast, she shares her story to raise awareness and support women facing similar health challenges, embodying strength, compassion, and resilience in everything she does.About HeartBridge CollectiveHeartBridge Collective was created from Mary’s own journey — from hospice to healing through a life-saving valve trial — and the promise that no patient should ever feel alone or unheard. HBC is a patient-led community that bridges real stories, lived experience, and expert insight so patients and caregivers have support that meets them right where they are.Through peer support, honest conversations, and advocacy that pushes the system forward, we’re building a space where every voice matters — and every heart has a place to land.Bridging hearts, minds, and innovation — one lived experience at a time.HeartBridge Collective#Heart2HeartTalk #ClinicalTrials #InclusiveResearch #PatientCenteredResearch #HealthEquity#HeartBridgeCollective #LivedExperience #PatientEngagement #HospiceSurvivor #TricuspidValveMiracle
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Bringing Research to the Bedside: A Conversation with Dr. Sameer Gafoor
Welcome back to Heart2Heart Talk, where we speak from the heart, for the heart.This season, we’ve been pulling back the curtain on clinical trials — what works, what needs fixing, and what it feels like to walk this road as a patient or caregiver.In this episode, we’re talking about what happens when research finally crosses into real life:👉 How does innovation move from a lab… to an actual bedside?👉 What helps patients feel safe saying “yes” to something new?👉 And what does real shared decision-making look like when the stakes are high?Mary is joined by Dr. Sameer Gafoor, an interventional cardiologist at Swedish Medical Center known for blending innovation with heart-centered care. He’s one of those rare physicians who listens deeply, explains clearly, and guides patients through every step — especially when research becomes part of their treatment options.Together, they explore:• What “bringing research to the bedside” really looks like• Why trust and clear communication matter more than anything• The emotional side of trial enrollment — for patients and providers• Barriers teams face with paperwork, logistics, and timing• How shared decision-making builds confidence and connection• What needs to shift so trials become more open, diverse, and patient-friendly• Why the future of research depends on listening to lived experienceIf you’ve ever wondered what happens behind the scenes before a patient gets access to something new, this episode brings you right into the room.🧠 About Our Guest – Dr. Sameer GafoorDr. Gafoor is an interventional cardiologist and a national leader in structural-heart innovation at Swedish Medical Center. He’s known for:✔ Bringing complex research into real patient care✔ Leading teams that blend innovation with compassion✔ Explaining options in clear, plain language✔ Championing shared decision-making as the heart of good medicineHis work sits right where science, humanity, and trust meet — which is exactly why he’s the perfect voice for this conversation.🔗 Swedish Heart and Vascular Institute About HeartBridge CollectiveHeartBridge Collective is a patient-led community changing the way heart valve patients and caregivers connect, learn, and feel supported. We bridge real stories, lived experience, and expert insight so patients never have to walk this road alone. Through peer support, honest conversations, and advocacy that pushes the system forward, we’re building a space where every voice matters — and every heart has a place to land.https://www.maryburrell.com/heartbridgecollectiveBridging hearts, minds, and innovation — one lived experience at a time.#Heart2HeartTalk #ClinicalTrials #InclusiveResearch#PatientCenteredResearch #HeartBridgeCollective#LivedExperience #HealthLiteracy #HospiceSurvivor #TricuspidValveMiracle #PatientExperience
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From Lab to Life: Why Clinical Trials Move Slowly — and How We Fix It
Welcome to Season 3 of Heart to Heart Talk — where we speak from the heart, for the heart.This season, we’re digging into the real challenges inside clinical research: trust, access, delays, and what it actually feels like to wait for new treatments as a patient.In this episode, we’re opening the curtain on something everyone wonders:👉 Why does it take so long for new treatments to reach real people?👉 And how do we make the process faster, fairer, and more patient-friendly?Mary is joined by Keith Berelowitz, founder of pRxEngage, a company focused on helping research teams and patients stay connected through technology that actually works for everyday life. His work centers on building systems that move with purpose — systems that save time, build trust, and make research more accessible to everyone.Together, they dig into:• Why clinical trials move slowly behind the scenes• What really happens inside research sites and hospitals• How technology can speed things up or create more barriers• Why access is uneven — and how to fix it• What helps patients feel informed, respected, and safe• Small innovations that make a big difference in the patient experience• The true cost of delays — for patients and for science• How co-designing with patients leads to faster, better careIf you’ve ever been stuck waiting — for an appointment, a follow-up, or a therapy that could change your life — this episode will help you understand what’s happening behind the scenes, and where patient voices fit in.🧠 About Our GuestKeith Berelowitz — pRxEngageKeith is the founder of pRxEngage, a company dedicated to making clinical research easier to navigate for both patients and research teams. His work focuses on building digital tools and communication systems that improve connection, reduce delays, and make trials more accessible for people everywhere.His expertise includes:✔ Patient-friendly technology✔ Improving trial communication✔ Reducing barriers to access✔ Designing systems with patients in mind✔ Helping research teams move faster and stay connectedpRxEngage: 🔗 About Us 🔗 Find Trials Near You About HeartBridge CollectiveHeartBridge Collective is a patient-led community changing the way heart valve patients and caregivers connect, learn, and feel supported. We bridge real stories, lived experience, and expert insight so patients never have to walk this road alone. Through peer support, honest conversations, and advocacy that pushes the system forward, we’re building a space where every voice matters — and every heart has a place to land.https://www.maryburrell.com/heartbridgecollectiveBridging hearts, minds, and innovation — one lived experience at a time.#Heart2HeartTalk #ClinicalTrials #InclusiveResearch#PatientCenteredResearch #HeartBridgeCollective#LivedExperience #HealthLiteracy #HospiceSurvivor #TricuspidValveMiracle #PatientExperience
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Trust, Community, and Co-Creation in Clinical Trials
Welcome to Season 3 of Heart to Heart Talk — where we speak from the heart, for the heart.This season, we’ve been talking about some of the toughest parts of clinical research: trust, ethics, access, and what it actually feels like to go through all of this as a patient. In this episode, we’re pulling everything together and looking ahead:👉 What does real patient-centered research look like?👉 And how do we actually get there?Mary is joined by two powerful voices doing this work every day:Behtash Bahador, Senior Director of Community Engagement & Partnerships at CISCRP, a nonprofit focused on trust, transparency, and helping the public understand clinical research.DeAnna DuBose, Senior Director of Corporate Patient Engagement at Edwards Lifesciences, who helps connect patients, engineers, and researchers so care is built with patients, not just for them.Together, they dig into:• What patient-centered research looks like in real life• Why trust starts in the community, not the clinic• How diversity and inclusion make science stronger• Small but powerful examples of co-creation• How language, design, and partnership change research outcomes• What the next 10 years of patient-centered research could hold• Simple ways anyone can get involvedIf you’ve ever wondered where your voice fits in research, this episode will give you a clear roadmap.🧠 About Our GuestsBehtash Bahador — CISCRPBehtash is the Senior Director of Community Engagement & Partnerships at CISCRP. His work focuses on building trust, improving understanding, and making research clearer and more accessible for patients and the public. He leads efforts in:✔ Community education✔ Plain-language materials✔ Patient advisory boards✔ Ethical and transparent communication🔗 CISCRP: About Us 🔗 Easy To Understand Resources DeAnna DuBose — Edwards LifesciencesDeAnna is the Senior Director of Corporate Patient Engagement at Edwards Lifesciences. She brings patient voices into every stage of innovation, from engineering to clinical research. Her work centers on:✔ Trust and community connection✔ Clearer, more patient-friendly communication✔ Inclusive design and decision-making✔ Making healthcare truly human🔗 Edwards Lifesciences — Who We Are 🔗 Learn More HereAbout HeartBridge CollectiveHeartBridge Collective is a patient-led community changing the way heart valve patients and caregivers connect, learn, and feel supported. We bridge real stories, lived experience, and expert insight so patients never have to walk this road alone. Through peer support, honest conversations, and advocacy that pushes the system forward, we’re building a space where every voice matters — and every heart has a place to land.https://www.maryburrell.com/heartbridgecollectiveBridging hearts, minds, and innovation — one lived experience at a time.#Heart2HeartTalk #ClinicalTrials #InclusiveResearch#PatientCenteredResearch #HeartBridgeCollective#LivedExperience #HealthLiteracy #HospiceSurvivor #TricuspidValveMiracle #PatientExperience
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Why Patients Don’t Trust Clinical Trials — And How We Fix It
Welcome to Season 3 of Heart to Heart Talk — where we speak from the heart, for the heart.This season, we’re digging into clinical trials, trust, access, and the real human stories behind the science. And we’re kicking things off with a powerful conversation about why so many patients feel unsure about research — and what it actually takes to rebuild trust.Mary is joined by Dr. Marlyn Panchoo-Brookins, founder of Insightful Intellect. She works to make clinical trials more fair, inclusive, and easy to understand for real people in real communities. She breaks down barriers, teaches cultural competence, and brings patient voices into rooms where they’ve been missing for way too long.Together, they talk about:• Why mistrust is rooted in history and everyday life• How race, gender, and geography shape who gets included• Barriers like awareness, access, and education• Why cultural competence has to be real — not performative• What true listening looks like in patient care• How researchers and patients can meet in the middle• Simple ways to rebuild trust one step at a timeIf you’ve ever felt dismissed, unheard, or unsure where you fit in healthcare… this episode will meet you right where you are. These conversations can be tough, but they’re full of hope too. Every small step toward trust and respect matters.🧠 About Our Guest: Dr. Marlyn Panchoo-Brookins is the founder of Insightful Intellect and a leader in community engagement, cultural competence, and inclusive research practices. With over 15 years in life sciences and research, she helps teams understand the real barriers people face and teaches how to make research more equitable, ethical, and people-centered.Her work focuses on:✔ Breaking down mistrust through real, honest listening✔ Bringing research closer to the community✔ Improving awareness and education✔ Teaching cultural competence the right way✔ Centering patient voices in care and research🔗 LinkedIn: Dr. Brookins. 🔗 Insightful Intellect: About UsAbout HeartBridge CollectiveHeartBridge Collective is a patient-led community changing the way heart valve patients and caregivers connect, learn, and feel supported. We bridge real stories, lived experience, and expert insight so patients never have to walk this road alone. Through peer support, honest conversations, and advocacy that pushes the system forward, we’re building a space where every voice matters — and every heart has a place to land.https://www.maryburrell.com/heartbridgecollectiveBridging hearts, minds, and innovation — one lived experience at a time.#Heart2HeartTalk #ClinicalTrials #HealthEquity #HeartBridgeCollective #PatientVoice #LivedExperience #MedicalInnovation #TricuspidValveMiracle #HospiceSurvivor #PatientEmpowerment
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A Family Transformed by a Clinical Trial, Heart Disease & Healing
In the powerful season finale of Heart2Heart Talk, we return to Tori Lundgren and her family—months after she became one of the first patients at OHSU to undergo the CardioBand procedure for tricuspid valve disease. Joined by her adult children, Amanda and Elijah, this episode is raw, emotional, and full of wisdom. Together, they reflect on the aftermath: the victories, the setbacks, and the mental toll of caregiving and recovery.Tori opens up about what healing really looked like—beyond the hospital room. Amanda and Elijah share how this journey shaped their family, their mental health, and their understanding of clinical trials, caregiving, and resilience.This episode is about more than just heart health. It’s about family, second chances, and what happens when you finally feel seen, supported, and heard.
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Not Just a Support Role: Why Caregivers Need a Seat at the Table
In this powerful episode of Heart to Heart Talk, Mary Burrell sits down with Linda Coelho, devoted daughter and caregiver to heart valve disease survivor Barb Schneider. Together, they peel back the curtain on what it really means to be a caregiver navigating the medical system—through open-heart surgeries, clinical trials, and complications doctors didn’t always catch.Linda shares the emotional toll of caregiving, the importance of advocacy, and the reality of being left out of critical healthcare conversations. From missed symptoms to fighting for answers, this conversation highlights why caregivers deserve a seat at the table and why patient voices—especially those of Black women and their families—must be heard.This is a must-listen for:Heart disease survivorsFamily caregiversWomen advocating for their healthAnyone navigating complex healthcare journeys
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Clinical Trials, Second Chances & Grandbabies: Barb’s Story of Grace
In this inspiring episode of Heart to Heart Talk, Mary Burrell sits down with Barb Schneider, an 87-year-old heart valve patient whose story is equal parts courage, recovery, and purpose. Barb shares her powerful journey through two open-heart surgeries for mitral valve disease, a tricuspid valve replacement, and a brave step into a clinical trial that changed her life.Despite the complications, setbacks, and hard recoveries, Barb never lost her faith—or her will to keep moving forward. Now a great-grandmother and patient advocate, Barb opens up about aging with heart disease, the importance of listening to your body, and why women—especially caregivers—must make their health a priority.This episode is a reminder that resilience doesn’t have an age limit, and every heartbeat is a chance to begin again.#Heart2HeartTalk #PatientVoice #SelfAdvocacy #ListenToPatients #HeartWarrior #HospiceSurvivor #HeartBridgeCollective #HeartHealth #WomenWithHeart #CardiacCare
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Systemic Silence: Why Black Women Are Still Dying of Heart Disease
In this powerful roundtable episode of Heart to Heart Talk, host Mary Burrell is joined by Azure Burrell and Katherine Jones to shine a light on the heart health crisis facing Black women. With raw honesty and lived experience, they explore the medical bias, missed diagnoses, and systemic disparities that too often leave Black women unseen, unheard, and untreated.Together, they share personal stories of caregiving, loss, self-advocacy, and survival, unpacking the cultural silence around health in Black families and the emotional and physical toll it takes. From mental health and motherhood to trust in the healthcare system, this episode challenges the myths and calls for a future where Black women are not only heard—but believed.Because heart disease is the #1 killer of Black women—and silence is no longer an option.Katherine Waddell ~CEO and founder of This Needs to Be Said Media, Inc. and a seasoned podcaster, coach
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How Storytelling Turned My Fear into Purpose
In this deeply personal episode of Heart2Heart Talk, host Mary Burrell shares the origin story behind the podcast—and the woman who helped her believe it was possible. Joined by Katherine Waddell, podcaster, coach and founder of This Needs to Be Said Media, the two reflect on mentorship, trust, healing after illness, and what happens when someone sees your potential before you can.Mary opens up about moving from fear and hesitation to launching a platform that gives voice to stories that often go unheard. Katherine shares what it means to coach without leading, how to hold space for someone’s purpose, and why every woman’s voice matters, especially after trauma.This episode is a celebration of the seeds planted by encouragement, the beauty of creative imperfection, and the power of trusting your voice—even when it’s still finding its way.Katherine Waddell ~CEO and founder of This Needs to Be Said Media, Inc., a seasoned podcaster and coachhttps://tntbsmedia.com/
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Turning Pain into Purpose: The Voices Changing Healthcare
In this compelling episode, we dive into the heart of patient advocacy—the real work, the emotional weight, and the ripple effect it creates across healthcare. Our conversation explores the challenges patient advocates face, the courage it takes to share personal health stories, and how these stories have the power to reshape healthcare policies, systems, and clinical culture.We discuss why patient voices must be heard from the beginning—not after the decisions have already been made. Whether you're new to advocacy or a seasoned storyteller, this episode is a reminder that lived experience is not just valid—it’s vital. Because when patients speak, healthcare listens.DeAnna DuBose ~Senior Director, Corporate Patient Engagement Edwards Lifesciences https://www.edwards.com/patients-care-partners/patient-resources
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Storytelling Saved Me: A Conversation with Beryt Nisenson
In this powerful Season 2 episode of Heart to Heart Talk, host Mary Burrell opens up about the moment that changed everything: when Emmy Award–winning filmmaker Beryt Nisenson saw the power in her story—and helped bring it to life. Together, they reflect on the making of Mary’s patient documentary, the emotional healing that came from telling her story, and the deep connection between storytelling and patient advocacy.Mary shares how being placed in hospice, saying yes to a clinical trial, and sharing her experience helped ignite her second chance—not just at life, but at purpose. They dive into how stories can build bridges between patients, engineers, clinicians, and communities, and why Black women’s heart health must no longer be overlooked or unheard.This episode is a love letter to patients who’ve felt dismissed, caregivers who’ve gone unseen, and anyone who’s wondered whether their story really matters. (Spoiler: it does.)Beryt Nisenson Emmy Award-winning producer, director, and writer with Authentica Media.Authentica Media ~https://authenticamedia.com/
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Planted for Purpose: The People Who Help Us Grow
In this inspiring episode of Heart to Heart, host Mary Burrell shares her own journey of self-discovery, healing, and growth—and the people who made it possible. She reflects on the powerful impact of having the right support at the right time: the planters who speak life into our potential, the nurturers who walk with us during hard seasons, and the harvesters who help us step into our purpose. Through her story, Mary encourages listeners to recognize these roles in their own lives and to become those people for others. It’s a soulful conversation about purpose, connection, and the courage to grow.
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From Fear to Focus: A Son’s Voice in Heart Care
In this episode of Heart to Heart, Mary Burrell sits down with Elijah, son of heart valve patient Tori Lundgren, for a candid conversation about the often-unseen role of young caregivers. Elijah shares his experiences supporting his mom through heart valve disease, upcoming CardioBand procedures, and the emotional intensity of showing up during medical appointments. Together, they explore the life-changing potential of clinical trials, the power of medical innovation, and what it means to be present in the room when it matters most. Elijah’s story is a reminder that caregiving isn't just emotional—it’s active advocacy.
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Faith, Fear & CardioBand —One Daughter’s Story of Love and Care)
Amanda—daughter of heart valve disease patient Tori Lundgren—shares her powerful story as a young caregiver navigating the challenges of her mother’s tricuspid valve regurgitation and upcoming CardioBand procedure. In this episode of Heart to Heart, Amanda opens up about the emotional toll of caregiving for a heart patient, the critical role of self-advocacy in healthcare, and the importance of self-care for caregivers. Her reflections offer insight into the resilience it takes to support a loved one through a serious heart valve condition, and the strength found in showing up—again and again—with love, faith, and vulnerability.
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Tori’s Tricuspid Valve Journey: Hope Before CardioBand
Tori Lundgren shares her powerful patient journey as she prepares for the innovative CardioBand procedure to treat tricuspid valve regurgitation—a serious form of tricuspid valve disease. In this intimate conversation, Tori reflects on multiple heart surgeries, the emotional impact of living with chronic heart disease, and the faith, courage, and hope that carry her forward. We explore the realities of valve repair, the fear of upcoming heart procedures, and the strength that comes from family support. Tori’s story offers inspiration to others facing similar diagnoses and shows the healing power of sharing your truth.
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Your Story Matters: Turning Patient Voices into Change
Patient engagement isn’t just about being heard — it’s about driving real change.In this episode of Heart 2 Heart Talk, I sit down with Robyn Peacock to talk about how organizations like Heart Valve Voice US are helping patients shape policy, fight for clinical trial access, and prove that patient voices don’t just belong in the room—they belong at the table.We unpack:🫀 How patient voices are opening doors that used to be closed🧠 Real steps to make decision-makers listen💬 Wins that happened because patients refused to stay silent💬 Robyn’s Segment: (6:54–24:22)If you’ve ever wondered if your story matters—this is proof that it does.Your voice has power. Let’s use it.🔔 Subscribe for weekly episodes💬 Share your story at maryburrell.com❤️ Speaking from the heart, for the heart.#Heart2HeartTalk #MicAndMission #HospiceSurvivor #PatientAdvocacy #FromHospiceToHopeMy Valve. My Voice. CommunityResources for Your JourneyShare Your StoryBecome an Advocate🔗 Resources (for your show notes or blog):
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Beyond the Miracle: Fighting for Change | Featuring Berkeley Barnett
What happens after survival?In this powerful episode of Heart 2 Heart Talk, I sit down with Berkeley Barnett, Director of Policy & Advocacy for Heart Valve Voice US, to explore how healing can open the door to purpose.We dive into questions like:🫀 How do you go from surviving to speaking up?🧠 What pushes someone to become an advocate?💬 What are the silent battles no one talks about?🛤️ And how do you find purpose after a second chance?💬 Berkeley’s Segment: (6:54–20:47)Whether you’re surviving, rebuilding, or figuring out your next step—this conversation will meet you right where you are.When I first shared my story, I was scared. I didn’t know if it mattered.But it did—and it connected me to people who said, “Me too.”That’s why I’m inviting you to share yours.🔔 Subscribe for weekly episodes💬 Share your story at maryburrell.com❤️ Speaking from the heart, for the heart.#Heart2HeartTalk #HospiceSurvivor #TricuspidValveMiracle #MicAndMission #FromHospiceToHope
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Miracle to Advocacy | A Second Chance Gave Me a Purpose to Fight For
They didn’t just save my life — they helped me find my voice.In Part 3 of my story, I open the door to what happens after survival—when the fight to stay alive becomes the fight to make it matter.This episode of Heart 2 Heart Talk is about more than healing. It’s about stepping into purpose, rising from the ashes, and discovering what your life was always meant to say.💬 Mary’s Story, Part 3: (5:38–14:22)It’s raw. It’s full-circle. It’s personal.If you’ve ever wondered how surviving the unthinkable can reveal your true calling—this one’s for you.🔔 Subscribe for weekly episodes💬 Share your story at maryburrell.com❤️ Speaking from the heart, for the heart.#Heart2HeartTalk #HospiceSurvivor #TricuspidValveMiracle #MicAndMission #FromHospiceToHope
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They Fought for Patients Like Me — The EVOQUE Story You Need to Hear
Before EVOQUE gave patients like me a second chance, it started with a team who refused to believe the tricuspid valve was too forgotten to save.In this roundtable episode of Heart 2 Heart Talk, I sit down with Sid, Katie, and Scott—three of the hearts behind the EVOQUE valve innovation.We talk about the moments no one saw: the doubts, the breakthroughs, the setbacks, and the quiet belief that patients like me were worth fighting for.💬 Roundtable Conversation: (6:42–24:38)This is what happens when science meets belief—and when people refuse to give up on those the system has overlooked.If you’ve ever felt like your story didn’t matter, this conversation is for you.🔔 Subscribe for new weekly episodes💬 Share your story at maryburrell.com❤️ Speaking from the heart, for the heart.#Heart2HeartTalk #TricuspidValveAwareness #HospiceSurvivor #MicAndMission #FromHospiceToHope
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Hopeless to Miraculous
In Part 1, I shared what it was like to be placed in hospice—the fear, the prayers, the not knowing if I’d ever walk out of that room.But Part 2? This is where everything changes.In this episode of Heart 2 Heart Talk, I open up about the turning point—the clinical trial that gave me a second chance, and the moment I realized I might actually live.It wasn’t instant. It wasn’t easy. But it was real.💬 Mary’s Story, Part 2: (5:27–19:23)This is the raw truth of what it took—physically, emotionally, and spiritually—to move from preparing to die to learning how to live again.This isn’t just my story. It’s a reminder that hope isn’t passive—it’s a fight. And sometimes, it leads to miracles.💛 If you’re in the in-between right now, this one’s for you.🔔 Subscribe for weekly episodes💬 Share your story at maryburrell.com❤️ Speaking from the heart, for the heart.#Heart2HeartTalk #TricuspidValveMiracle #HospiceSurvivor #FromHospiceToHope
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The Heart of a Son-in-Law and Caregiver
“Some of the strongest support doesn’t make a sound—it just shows up."In this episode of Heart 2 Heart Talk, I sit down with my son-in-love, Quinton. He was the quiet support I didn’t have to ask for—the one who stood strong in the background when my world was falling apart.Quinton doesn’t speak a lot, but his actions have always spoken volumes. Through hospice, hospital stays, and emotional exhaustion, he remained steady. Patient. Gentle. Graceful.Together, we talk about what it means to lead with quiet strength, how to support someone through crisis, and why love—in all its forms—can be the most powerful medicine of all.This one’s for the caregivers who don’t need a spotlight to make a difference.🔔 Subscribe for new weekly episodes💬 Share your story at maryburrell.com❤️ Speaking from the heart, for the heart.#Heart2HeartTalk #QuietStrength #SonInLove #CaregivingInLove #FromHospiceToHope
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8
Caregiving Through a Son’s Eyes
Being a caregiver is hard.Being a caregiver and a son? That’s a whole different kind of weight.In this episode of Heart 2 Heart Talk, I sit down with my son LB—one of the quiet constants in my journey through hospice, heart failure, and clinical trials.He opens up about what it meant to become a caregiver while still just trying to be a young man finding his way.💬 LB’s Story: (7:10–21:43)This isn’t just a story about a mother and son. It’s about showing up scared. About learning to love, advocate, and support without a guidebook. LB shares the raw truth of watching me slip away—and slowly come back.If you’ve ever been the “strong one” in your family, this episode is for you.🔔 Subscribe for new weekly episodes💬 Share your story at maryburrell.com❤️ Speaking from the heart, for the heart.#Heart2HeartTalk #SonAndCaregiver #CaregivingAsAFamily #FromHospiceToHope
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7
A Granddaughter’s View of Survival
She was only 10—but she knew.My granddaughter Nahla didn’t need anyone to explain how sick I was. She saw it. She felt it. And instead of pulling away, she leaned in—with love, patience, and a quiet strength that held me up.In this episode of Heart 2 Heart Talk, Nahla shares what it was like to watch her Meme go through hospice, to sit in hospital rooms, and to carry all of that at such a young age. She may not have had the words back then, but she had the heart. And she showed up with it in every hug, every visit, and every moment.💬 Nahla’s Story: (6:51–13:14)She was my personal cheer squad—and this is her story.🔔 Subscribe for weekly episodes💬 Share your story or thoughts at maryburrell.com❤️ Speaking from the heart, for the heart.#Heart2HeartTalk #GranddaughterLove #FamilyStrength #GenerationalHealing #FromHospiceToHope
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6
Azure’s Side of the Story, Continued: A Daughter’s Voice, Part 2
Part 1 ended in tears—but the story didn’t end there.In this raw and emotional follow-up episode of Heart 2 Heart Talk, my daughter Azure opens up about what came after the miracle. When the machines are gone, the crisis is over, and everyone else moves on—the caregiver is still carrying the weight.💬 Azure’s Story, Part 2: (6:50–17:09)She speaks honestly about the fear of being “the strong one,” the pressure to hold it all together, and the emotional scars no one sees.If you’ve ever loved someone back to life, this one is for you.🎧 Tune in. Let her voice be heard.🔔 Subscribe for new weekly episodes💬 Share your story or thoughts at maryburrell.com❤️ Speaking from the heart, for the heart.#Heart2HeartTalk #CaregiverBurnout #AfterTheMiracle #DaughterStrong #FromHospiceToHope
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5
A Mother-Daughter Survival Story
They told me to get my affairs in order.But no one told my daughter how to prepare for that.In this emotional episode of Heart 2 Heart Talk, my daughter Azure shares what it was like to stand by as I was placed on hospice. She opens up about the silent moments, the fear behind her brave face, and how watching me slip away changed her forever.💬 Azure’s Story: (6:51–16:54)🎧 This episode is for every daughter who had to grow up too fast—and every caregiver who had to hold it together when their world was falling apart.🔔 Subscribe for weekly episodes💬 Share your story or thoughts at maryburrell.com❤️ Speaking from the heart, for the heart.#Heart2HeartTalk #HospiceSurvivor #CaregiverVoice #MotherDaughterJourney #FromHospiceToHope
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4
Hospice to Hope
They told me to get my affairs in order.Hospice was supposed to be the end… until it wasn’t.In this emotional first episode of Heart 2 Heart Talk, I open up about what survival really looked like—from the swelling, the breathlessness, the silence… to the moment hope found me through a clinical trial.🩺 Mary’s Story, Part 1: (5:29–15:54)🎧 If you’ve ever lived in the in-between—between life and death—press play.This is about truth, fighting to be heard, and the miracle that changed everything.🔔 Subscribe for new weekly episodes💬 Share your story or comment below🌐 maryburrell.com❤️ Speaking from the heart, for the heart.#Heart2HeartTalk #HospiceSurvivor #TricuspidValveMiracle #FromHospiceToHope
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3
Hope Starts Here: Four Voices, One Mission
🎙️ I wasn’t supposed to still be here—but I am.This second chance lit a fire in me to speak up, ask bold questions, and connect the dots between patients, caregivers, and the people creating life-saving innovations.In this pilot episode, I sit down with:🗣️ Karisssa, Heart Valve Voice US (9:00–16:52)🔬 Paul, R&D engineer, EVOQUE team (16:55–28:52)💑 Louis, my husband & caregiver (28:58–33:52)We talk about game-changing heart valve treatments, real-world advocacy, and the raw caregiving moments no one prepares you for.🔔 Subscribe for weekly episodes💬 Share your story at maryburrell.com❤️ Speaking from the heart, for the heart.#Heart2HeartTalk #TricuspidValveAwareness #HospiceSurvivor #FromHospiceToHope
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2
This Podcast Exists Because I Didn’t Die
This podcast was born from survival—mine.I’m Mary Burrell, a hospice survivor and one of the first patients to receive a transcatheter tricuspid valve through a clinical trial. After years of being unheard, misdiagnosed, and told to get my affairs in order, I got a second chance. And I’m using it to speak up for patients, caregivers, and anyone navigating the healthcare system without a clear roadmap.Heart 2 Heart Talk is where real conversations happen. We’re talking about the emotional, physical, and practical sides of survival. From clinical innovation to caregiver burnout, from broken systems to breakthrough solutions—this is a space for truth.I’ll be joined by other patients, caregivers, doctors, engineers, and advocates. Together, we’ll talk about what’s working, what’s not, and what we can do to change it.
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ABOUT THIS SHOW
Heart2Heart Talk is a place for honest conversations about living with heart valve disease. Hosted by hospice survivor and patient Mary Burrell, we bridge the gap between clinical data and the human experience.Join patients, caregivers, and experts for raw conversations on symptoms, clinical trials, and the fears no one whispers out loud. From navigating doctors to finding your voice, we share the stories behind the diagnosis.Where we speak from the heart, for the heart.
HOSTED BY
Mary Burrell
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