Let's Talk About The POTS life

PODCAST · health

Let's Talk About The POTS life

POTS, or Postural Orthostatic Tachycardia Syndrome, is a form of dysautonomia disorder. The hallmark of POTS is a rapid heart rate that occurs upon standing, leading to symptoms like dizziness, lightheadedness, and fatigue. Learn about the POTS life program developed by Physical Therapist Kelsey Botti, who is thriving with POTS. Hear about Kelsey's story, her patients, and her team. (The information provided in this podcast are for educational purposes only and does not substitute for professional medical advice

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    What to Do After a POTS Diagnosis (Electrolytes, Exercise, and Common Mistakes)

    If you’ve recently been diagnosed with POTS (Postural Orthostatic Tachycardia Syndrome), it can feel overwhelming figuring out what actually helps.In this episode, we break down what to focus on early and what to avoid.We talk through common mistakes after a POTS diagnosis, including over-relying on water without enough sodium, falling for “electrolyte” products that don’t contain meaningful salt, and making drastic diet changes too quickly. We explain how to approach hydration and electrolytes more effectively, including why sodium matters and how to start building tolerance.We also cover nutrition myths, why cutting multiple foods at once can backfire, and how to use simple tracking to identify real triggers. On the movement side, we walk through why exercise is still important with POTS and how to approach it in a low, slow, and sustainable way to avoid worsening symptoms.If you’re feeling stuck, overwhelmed, or unsure where to start, this episode will help you take your next step with more clarity.Timestamps:00:00 What to do after a POTS diagnosis01:20 Common mistakes early on02:45 Electrolytes vs water (what actually helps)04:50 How much sodium you need07:10 Choosing the right electrolyte options09:20 Why cutting foods too quickly backfires10:20 How to track food triggers12:00 MCAS + food sensitivities14:20 Salt myths explained15:30 Why movement matters with POTS17:00 How to start exercise safely19:00 Support, structure, and community21:30 Final thoughts + next stepsConnect with Us:⁠⁠⁠⁠⁠⁠⁠⁠Our Website⁠⁠⁠⁠⁠⁠⁠⁠Facebook: The POTS LifeInstagram: @thepotslife_Tik Tok: thepotslife

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    Pelvic Floor Dysfunction and POTS

    GI symptoms, pain clues, and why a consult mattersIn this episode of Let’s Talk About the POTS Life, we break down the connection between POTS and pelvic floor dysfunction and why it’s often overlooked.We cover common “beige flags” like GI issues (IBS, bloating, constipation/diarrhea cycles, gastroparesis), bladder symptoms (chronic UTIs, straining to pee), and unexplained pelvic or low back pain. We also touch on tension patterns (like teeth grinding) and conditions like endometriosis and hypermobility.This episode highlights how pelvic floor therapy can fit into a bigger picture approach alongside POTS care, GI support, and mental health.If you feel like your symptoms aren’t fully adding up, this might be a missing piece.Episode breakdown:00:00 Pelvic Floor Meets POTS00:40 Why They Overlap02:09 GI Red Flags Explained03:59 Tension and Constipation Cycle05:13 Movement and Digestion Tips06:45 UTIs and Peeing Strain09:03 Pain, Endo, and Hypermobility11:06 Consults and Team Approach13:02 Finding the Right PT14:10 Program Modifications Together14:50 Wrap Up

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    From Surviving to Living Again: A POTS Life Graduate’s Journey

    In this episode of Let’s Talk About the POTS Life, we sit down with Veronica, a POTS Life graduate now in our graduate program, to talk about her journey from simply surviving to truly living again.Veronica shares what life looked like when her symptoms were at their worst, navigating frequent episodes, overstimulation, and the day-to-day challenges that made even simple things feel overwhelming.After trying multiple approaches without lasting success, things began to shift with a more structured, individualized approach: including guided exercise, heart rate-based progression, nutrition support, and ongoing adjustments.Over time, she began to notice real changes not just in stamina, but in her ability to tolerate more, feel more confident, and engage in her life again.She now describes her life in one word: freeing.This episode is for anyone who feels stuck, overwhelmed, or unsure of what’s next offering both validation and a reminder that progress is possible.00:00 Welcome and Guest Intro01:02 Emotional Turning Point01:47 Finding Hope Online03:38 Early Symptoms and Triggers05:20 Diagnosis and Early Care07:25 PT Gaps and Testing09:18 Stimulation and Vestibular Work11:15 Work Limits and Boundaries14:01 Why This Program Worked16:35 Blood Sugar Breakthrough17:36 Whole Body POTS Care18:08 Lowering Adrenaline Sensitivity19:34 Work Life Confidence Returns21:07 Setbacks and Program Adjustments22:11 Trips and Life Milestones24:37 Mindset After Lost Time27:32 Graduate Program Support29:10 Advice to New Diagnoses32:17 Community Without Doomscrolling33:22 One Word Freeing34:30 Final Thanks and Next StepsConnect with Us:⁠⁠⁠⁠⁠⁠⁠Our Website⁠⁠⁠⁠⁠⁠⁠Facebook: The POTS LifeInstagram: @thepotslife_Tik Tok: thepotslife

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    What Makes The POTS Life Treatment Program Different

    In this episode of Let’s Talk About The POTS Life, we walk through the philosophy behind the POTS Life treatment program and why it’s structured the way it is.We talk about the importance of a lower-and-slower approach when building exercise tolerance with POTS, how strengthening evolves over time, and why structure and progression matter when navigating dysautonomia.We also discuss how the program adapts to real life. Symptoms can change, medications shift, illness happens, and life events come up — so having a plan that allows for adjustments along the way can make a big difference.Finally, we share more about the support systems within The POTS Life, including guidance, community connection, and additional resources designed to help people navigate life with POTS.Episode Breakdown00:00 Why This Program Exists00:42 Lower and Slower Progression01:55 Strength Training That Evolves02:46 Real-Time Guidance03:33 Why Structure Matters05:21 Meeting You Where You Are07:06 Human Support and Lifestyle Fit08:31 Nutrition and Extra Resources09:05 Community and Buddy System10:20 Handling Setbacks and Restarts16:40 How to Get Started17:22 Wrap-UpConnect with Us:⁠⁠⁠⁠⁠⁠Our Website⁠⁠⁠⁠⁠⁠Facebook: The POTS LifeInstagram: @thepotslife_Tik Tok: thepotslife

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    Is The POTS Life Program Safe for CFS, EDS & Severe Fatigue?

    In this Q&A episode of Let’s Talk About The POTS Life, we’re answering one of the biggest questions we get:Is The POTS Life Program safe if I have chronic fatigue syndrome, fibromyalgia, EDS, or severe fatigue?We talk through what happens if you’re mostly bedbound, how we modify when symptoms flare, and why starting “low and slow” isn’t just a phrase — it’s the foundation.We also cover:How we customize progressions for different fatigue levelsWhether electrolytes have a “right number” (and why the answer isn’t simple)Why EDS-safe, joint-friendly strength training actually mattersHow appropriate weight-bearing supports long-term stability and pain managementIf you’ve been wondering whether you’re “too sick” or “too complex” to start, this episode is for you. Connect with Us:⁠⁠⁠⁠⁠Our Website⁠⁠⁠⁠⁠Facebook: The POTS LifeInstagram: @thepotslife_Tik Tok: thepotslife

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    Living with POTS: What It’s Like for a Spouse | Dysautonomia & Chronic Illness Support

    What is it really like to love someone living with POTS and dysautonomia?In this episode of Let’s Talk About The POTS Life, my husband Cale shares what it was like watching me navigate years of undiagnosed Postural Orthostatic Tachycardia Syndrome (POTS) — the ER visits, the “normal” test results, the adrenaline dumps at night, and the slow decline that didn’t make sense.We talk openly about what dysautonomia and autonomic nervous system dysfunction looked like from his perspective — the tachycardia, tremors, chronic fatigue, insomnia, and living in constant fight-or-flight. From the outside, POTS can look like “just dizziness.” But inside, it affects every part of life — including marriage and family.In this episode, we discuss:Supporting a spouse with POTSUnderstanding invisible illness and dysautonomiaNighttime adrenaline surges and anxietyThe emotional impact of chronic illness on relationshipsHow to validate someone with autonomic dysfunctionPractical advice for partners, caregivers, and family membersIf you are newly diagnosed with POTS, living with dysautonomia, or trying to help your spouse or loved ones understand what this condition really feels like, this conversation will resonate deeply.POTS affects the autonomic nervous system, but it also affects relationships. And understanding changes everything.Connect with Us:⁠⁠⁠⁠Our Website⁠⁠⁠⁠Facebook: The POTS LifeInstagram: @thepotslife_Tik Tok: thepotslife

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    Cate’s POTS Journey: Chiari Surgery, CSF Leaks, EDS & Rebuilding Life

    In this episode of Let’s Talk About The POTS Life, Cate shares her experience navigating POTS alongside Chiari malformation, CSF leaks, EDS, and multiple complex complications.What began as headaches and athletic injuries evolved into years of surgeries, overlapping diagnoses, and periods of profound disability. Cate walks us through how her symptoms were missed early on, how deconditioning worsened her condition, and how finding the right care team changed the trajectory of her health.Today, she lives independently, works full-time, and is training for her second marathon. Her story is a powerful reminder that progress with POTS isn’t linear, but with individualized care, movement, and the right support, meaningful improvement is possible.Connect with Us:⁠⁠⁠Our Website⁠⁠⁠Facebook: The POTS LifeInstagram: @thepotslife_Tik Tok: thepotslife

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    Navigating Medical Challenges: A Conversation with Dr. Poorvi Desai

    In this episode of 'Let's Talk About The POTS Life,' hosts welcome Dr. Poorvi Desai, a hematologist oncologist with a unique perspective on both practicing medicine and being a patient with chronic illnesses. Dr. Desai shares her journey through medical school while managing symptoms of Postural Orthostatic Tachycardia Syndrome (POTS), Ehlers-Danlos Syndrome (EDS), and other related conditions. She delves into her background, her accelerated medical training, and the personal and professional challenges she faced. Dr. Desai also discusses her diagnosis and treatment journey, including her experience with the complex syndrome MALS (Median Arcuate Ligament Syndrome), the emotional and physical toll of her conditions, and the importance of advocating for oneself in the medical system. The episode emphasizes the importance of lifestyle changes, emotional support, and reducing stress to manage chronic conditions effectively.00:00 Introduction and Guest Welcome01:13 Dr. Desai's Medical Journey02:44 Living with POTS and EDS04:46 Challenges in Medical Training07:03 Diagnosis and Misdiagnosis10:59 Physical Therapy and Coping Strategies21:02 Impact of COVID-19 and Career Struggles27:49 Struggling with Saying No and Emotional Stress29:00 Facing Emotional Abuse and Therapy29:27 Cultural Expectations and Self-Care30:50 Learning Boundaries and Self-Advocacy31:44 Positive Reinforcement in Physical Therapy32:58 Navigating Medical Training and Hierarchies34:15 Seeking Diagnosis and Community Support35:35 Understanding and Diagnosing MALS42:30 Surgical Interventions and Recovery52:38 Advice for the Newly Diagnosed55:42 Concluding Thoughts and Future PlansConnect with Us:⁠⁠Our Website⁠⁠Facebook: The POTS LifeInstagram: @thepotslife_Tik Tok: thepotslife

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    A POTS Life Graduate: Arielle's Inspiring Journey

    In this episode of 'Let's Talk About the POTS Life,' Arielle shares her compelling journey with Postural Orthostatic Tachycardia Syndrome (POTS). Diagnosed at 12, Arielle recounts her initial symptoms, the challenges of finding the right medical support, and the invaluable role her parents played in her recovery. She discusses her experiences with various treatments, medications, and the importance of staying motivated. Arielle's story emphasizes the significance of a robust support system and sheds light on her growth, both physically and emotionally, as she navigates college life and looks towards the future.00:00 Introduction to the POTS Life Podcast01:14 Arielle's Early Diagnosis Journey03:29 Challenges and Support from Family06:21 High School Struggles and Finding Dr. Abdullah07:14 Navigating High School with POTS11:01 Transition to College and Beyond18:14 Recognizing Improvement in Health18:58 Balancing Activities and Health19:50 Medication Management23:14 Transitioning to Physical Activities25:11 Living with POTS: Challenges and Progress29:44 Advice for the Newly Diagnosed32:42 Support Systems and Final ThoughtsConnect with Us:⁠Our Website⁠Facebook: The POTS LifeInstagram: @thepotslife_Tik Tok: thepotslife

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    Mental Health and Chronic Illness: Insights from Ashley Schuetz, CRNP

    In this episode of 'Let's Talk about the POTS Life,' the hosts welcome Ashley Schuetz, a dual-certified Family and Psychiatric Mental Health Nurse Practitioner. Ashley shares her journey from cosmetology to the medical field and her extensive experience working in the Pittsburgh Public Schools. The discussion dives into the intersections of mental health and chronic illness, particularly POTS, emphasizing the importance of validating symptoms, the struggles of navigating multiple diagnoses, and the crucial role of community and support. The conversation also highlights the increase in diagnoses of ADHD, OCD, and anxiety, especially post-COVID, and provides advice for parents on advocating for their children's health. Tune in for valuable insights on managing chronic illnesses and mental health holistically.00:00 Introduction to the POTS Life Podcast00:23 Meet Our Guest: Ashley Schuetz, CRNP00:59 Ashley's Journey into Nursing02:55 Mental Health and COVID-1904:45 Challenges in Diagnosing Chronic Illnesses06:53 Supporting Children with Chronic Illnesses08:09 The Importance of Validation and Advocacy10:54 Navigating the Medical System16:39 The Role of Community and Support19:30 Post-COVID Mental Health Trends21:41 Understanding OCD and ADHD Symptoms22:21 The Importance of Treating Symptoms, Not Diagnoses22:44 The Impact of Mental Health on Daily Life23:36 The Role of Therapy and Medication25:24 Breaking the Stigma Around Mental Health26:30 The Necessity of Mental Health Professionals28:07 The Benefits of Comprehensive Care31:08 Specialized Care for Students33:47 Raising Awareness About POTS35:19 Final Thoughts and Contact InformationConnect with Ashley:Ashley Schuetz, CRNP | Fine Tune Psychiatry Psychiatric Care for Children, Teens & Adults | Fine Tune Psychiatry Connect with Us:Our WebsiteFacebook: The POTS LifeInstagram: @thepotslife_Tik Tok: thepotslife

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    Understanding the Tilt Table Test for POTS Diagnosis

    In this episode of 'Let's Talk About the POTS Life,' the hosts delve into the frequently asked questions surrounding the Tilt Table Test, a crucial diagnostic procedure for POTS (Postural Orthostatic Tachycardia Syndrome). They explain what the test involves, who typically orders it, and its importance in diagnosing POTS. The discussion also covers personal experiences with the test, how to prepare for it, and tips for managing the aftereffects. Listeners are advised on how to navigate the healthcare system to get a proper diagnosis and the importance of finding the right medical team for ongoing support.00:00 Introduction to the POTS Life Podcast00:34 Understanding the Tilt Table Test01:01 Preparing for the Tilt Table Test05:23 Experiencing the Tilt Table Test10:57 Post-Test Reactions and Advice15:09 Alternative Diagnosis Methods18:44 Living with POTS: Next Steps21:56 Conclusion and SupportConnect with us!⁠The POTS Life⁠Facebook: The POTS LifeInstagram: @thepotslife_Tik Tok: thepotslife

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    Surviving Holiday Stress with POTS: Tips and Tricks

    Welcome to a special holiday edition of 'Let's Talk About the POTS Life.' In this episode, we share essential tips and tricks to navigate the holiday season while managing Postural Orthostatic Tachycardia Syndrome (POTS). We discuss the importance of maintaining routines, prioritizing exercise, staying hydrated, and eating consistent small meals. Additionally, we emphasize the significance of self-care and flexibility during this festive yet chaotic time. Join us for practical advice to keep your POTS symptoms at bay and learn about our supportive POTS Life Program to start the new year strong.00:00 Welcome to the POTS Life Holiday Edition00:35 Managing Holiday Stress with POTS01:08 Maintaining Routines and Exercise02:21 Importance of Hydration and Nutrition05:07 Grace and Flexibility During the Holidays05:41 Join the POTS Life Program in the New Year06:45 Conclusion and Holiday WishesConnect with us!The POTS LifeFacebook: The POTS LifeInstagram: @thepotslife_Tik Tok: thepotslife

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    Overcoming POTS: Lindsey's Journey and Recovery with the POTS Life Program

    In this episode of 'Let's Talk About the POTS Life,' Lindsey, a graduate of the POTS Life program, shares her journey from a sudden onset of symptoms to diagnosis and eventual recovery. Diagnosed post-Thanksgiving 2023, Lindsey recounts her struggles with various symptoms, misdiagnoses, and numerous doctor visits before finding the POTS Life program. Lindsey discusses her initial skepticism, the challenges, and the support she found within the community. She emphasizes the importance of consistency, even when feeling unwell, and shares the progress she made through the program. Offering hope and encouragement, Lindsey's story highlights the potential for improvement and a changed perspective on life after managing POTS.00:00 Introduction and Welcome00:23 Meet Lindsey: A POTS Life Graduate01:41 Lindsey's Journey to Diagnosis04:09 Life Before and After POTS Diagnosis08:26 The POTS Life Program Experience12:52 Overcoming Setbacks and Finding Support18:56 Advice for Newcomers and Final Thoughts23:20 Conclusion and FarewellConnect with us: thepotslife.comFacebook: The POTS LifeInstagram: @thepotslife_Tik Tok: thepotslife

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    Understanding Rest and Activity Balance for POTS Management

    In this episode of 'Let's Talk about the POTS Life,' the hosts discuss the importance of balancing rest and activity for those living with Postural Orthostatic Tachycardia Syndrome (POTS). The episode highlights why excessive rest can be detrimental and provides practical tips for gradually increasing activity levels. They share real-life examples of patients who have improved their conditions by incorporating small, structured movements and making lifestyle adjustments. Emphasizing the need for personalized approaches, the hosts offer advice on how to rest effectively, manage fatigue, and integrate gradual physical activity to improve overall well-being.00:00 Introduction to the POTS Life Podcast00:24 The Importance of Rest01:58 Understanding Fatigue in POTS03:16 Personal Stories and Progress04:41 Tips for Managing POTS07:14 The Role of Sleep and Napping14:40 Small Steps to Improvement19:39 Final Thoughts and Encouragement20:00 Closing RemarksFollow us:Facebook & Tik Tok: The POTS LifeInstagram: @thepotslife_www.thepotslife.com

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    Navigating Disney with POTS: Tips for a Successful Trip

    In this episode of 'Let's Talk About the POTS Life,' we dive into the intersection of living with POTS and planning a Disney vacation. The hosts share personal experiences and practical advice for preparing, traveling, and enjoying Disney while managing POTS symptoms. Topics include packing essentials, hydration strategies, handling stress and adrenaline, and ensuring you stay on track with your health routines. Whether you're a first-time traveler or a Disney regular, these tips aim to help you make the most of your trip without sacrificing your wellbeing.00:00 Introduction to the POTS Life Podcast00:32 Preparing for a Disney Trip with POTS02:36 Managing Symptoms and Enjoying Disney03:28 Travel Tips and Personal Experiences04:48 Packing and Hydration Strategies09:12 Navigating Disney with POTS13:15 Rides and Sensory Experiences15:20 Discussing Ride Preferences and Disney Experiences16:31 Tips for Staying Hydrated at Disney17:14 Importance of Regular Meals and Snacks18:15 Managing Exercise and Activity Levels19:43 The Value of a Buffer Day After Vacation24:30 Encouragement to Travel Despite Health Concerns26:51 Final Thoughts and Encouragement

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    Navigating Thanksgiving with POTS: Tips and Advice

    In this Thanksgiving episode of 'Let's Talk About the POTS Life,' the hosts share practical tips for managing the holiday season while living with POTS. They discuss the importance of eating small, balanced meals throughout the day, staying hydrated, and maintaining a manageable routine. They also highlight the need for moderation, especially when it comes to alcohol, and the value of communicating your needs with family. The episode emphasizes enjoying the moment, not striving for perfection, and giving yourself grace if things don't go as planned.00:00 Introduction and Welcome00:27 Navigating Holiday Stress01:27 Thanksgiving Tips and Tricks01:46 Moderation and Nutrition05:02 Hydration and Sensory Overload05:56 Alcohol and Socializing08:29 Exercise and Routine10:04 Final Thoughts and Encouragement11:09 Conclusion and FarewellConnect with us: The POTS LifeInstagram: @thepotslife_Facebook & Tik Tok: The POTS Life | thepotslife

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    The Importance of Recumbent Exercise in POTS Management

    In this episode of 'Let's Talk About the POTS Life,' the hosts discuss why recumbent exercise is a fundamental part of the POTS Life program. They explain the scientific reasoning and practical benefits behind starting with recumbent biking instead of more traditional forms of exercise. They also discuss how the program can be customized to meet various needs, answer common questions about modifications, and emphasize the importance of adapting the plan to individual circumstances. Whether you're a seasoned athlete or just beginning your journey with POTS, this episode provides valuable insights and encouragement for managing the condition effectively.00:00 Introduction to the POTS Life Podcast00:25 Understanding the Importance of Recumbent Exercise01:11 Challenges and Misconceptions in POTS Treatment05:49 The Role of Biking in POTS Recovery10:44 Customizing Your POTS Life Program16:39 Conclusion and How to Get StartedConnect with The POTS LifeWebsite: www.thepotslife.comInstagram: @thepotslife_Facebook & TikTok: The POTS Life

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    Understanding POTS and Misdiagnosis with Dr. Erin Nance | Let’s Talk About the POTS Life

    In this episode of Let’s Talk About The POTS Life, host Dr. Kelsey Botti and Britney sit down with Dr. Erin Nance, an orthopedic hand surgeon based in New York City, better known to her close to 1M followers as @littlemissdiagnosed.Dr. Nance shares how her personal journey with chronic illness inspired her to raise awareness about commonly misunderstood and misdiagnosed conditions—including POTS (Postural Orthostatic Tachycardia Syndrome). Together, they unpack what it’s like to navigate the medical system as both a physician and a patient, the emotional stages of misdiagnosis, and how empowering patients with credible information can change the future of chronic illness care.They also explore FeelBetr, Dr. Nance’s new digital platform connecting patients with reliable, physician-approved health information and community support.Tune in for an honest, uplifting, and informative conversation about the intersection of patient advocacy, medical education, and the power of social media in reshaping chronic illness awareness.00:00 Introduction and Welcome00:24 Meet Dr. Erin Nance01:02 The Power of Social Media in Diagnosis02:28 The Importance of Patient Experience03:53 Challenges in Diagnosing POTS06:32 Understanding Perimenopause and Menopause08:34 The Role of Health Literacy14:05 The Emotional Journey of Misdiagnosis18:20 The Need for Credible Health Information20:49 Introducing the Feel Better App24:03 The Power of Short-Form Content24:33 Creating a Space for Conversation25:38 The Role of Social Media in Medical Information26:20 Going Viral with Engaging Content28:41 Combating Medical Misinformation31:13 The Importance of Patient Stories34:39 Challenges in Diagnosing Complex Conditions41:33 Conclusion and Final ThoughtsConnect with Dr. Erin NanceInstagram & TikTok: @littlemissdiagnosedWebsite: https://www.nancemd.comApp: FeelBetr -- https://www.feelbetr.health/Connect with The POTS LifeWebsite: www.thepotslife.comInstagram: @thepotslife_Facebook & TikTok: The POTS Life

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    Navigating Life with POTS: Megan’s Journey from Diagnosis to Empowerment

    In this episode of Let’s Talk About The POTS Life, we sit down with Megan, a nurse and recent POTS Life graduate, to trace her path from years of confusing symptoms and misdiagnoses to clarity, structure, and sustainable progress. Megan shares what it was like to “look fine” on the outside while battling debilitating episodes after routine workouts, how she rebuilt with a low-and-slow plan, and the mindset shifts that helped her reclaim daily life. If you’re newly diagnosed or feel stuck, this one’s for you.Timestamps00:00 Introduction to the POTS Life Podcast00:24 Meet Megan: A New POTS Life Graduate01:17 Megan’s Journey: From Symptoms to Diagnosis04:18 The Struggles of Living with POTS09:15 Adjusting to a New Normal14:54 Small Wins and Progress19:11 The Slow Transition to Real Exercises20:08 Balancing Activity Levels21:06 The Importance of Consistency22:04 Managing Health Challenges23:19 Adapting to Lifestyle Changes24:11 Overcoming Setbacks27:13 Advice for the Newly Diagnosed30:27 Small Business Shoutout32:58 The Value of Personal Experience33:42 Conclusion and FarewellResources & ConnectVisit: www.thepotslife.comIG: @thepotslife_ Facebook & TikTok: The POTS LifeGuest: @412fertility

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    POTS Life Graduate Nicole: Her Journey and Breakthroughs

    In this episode of 'Let's Talk about the POTS Life,' we welcome Nicole, a POTS Life graduate nearing her one-year post-grad anniversary. Nicole shares her journey, from her initial misdiagnosis and struggles through visits to multiple specialists to her eventual POTS diagnosis. She highlights the role of her mom in finding the right treatment and her gradual improvement through physical therapy. The discussion delves into the impact of long COVID, the challenges of managing POTS, and the significance of consistent treatments like biking and electrolytes. Nicole's story is an inspiring testament to perseverance and the effectiveness of the POTS Life program, offering hope and guidance for others on similar paths.00:00 Introduction and Welcome00:29 Nicole's Journey with POTS01:09 Diagnosis and Initial Struggles01:44 Finding the Right Treatment03:37 Living with POTS: Challenges and Progress03:59 The Impact of COVID-1904:29 Family History and Early Symptoms07:06 Treatment Experiences and Adjustments09:23 Signs of Improvement12:15 Ongoing Challenges and Mental Resilience15:23 Seasonal Triggers and Symptom Management15:58 Joining the POTS Life Graduate Program16:15 Maintaining Accountability and Exercise Routine17:10 Transitioning to the Treadmill18:56 Hydration and Electrolyte Intake20:32 Living with POTS: Social Life and Challenges23:44 Advice for New POTS Life Members25:05 Reflecting on the Journey and Future Outlook26:45 Conclusion and Podcast Sign-OffVisit: ⁠www.thepotslife.com⁠Follow us on Instagram @thepotslife_  | Facebook & TikTok @ The POTS Life

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    Navigating the October Slide (Season 2 Premiere)

    Welcome to Season 2 of Let's Talk About The POTS Life! In this episode, Kelsey and Brit unpack the “October Slide” — that seasonal dip so many POTS patients feel as temperatures shift. They share personal experiences and practical tools to help you manage symptoms during this time, from hydration and gentle exercise to self-compassion and realistic expectations.Tune in to hear how they navigate one of the toughest months of the year for POTS patients, plus simple ways to stay consistent through weather changes and the busy fall season.Mentioned in this episode:Trioral Electrolytes – @trioralelectrolytesLMNT Electrolytes – @drinklmnt | drinklmnt.comORO Heated Gear – Amazon | @oroheatedapparelVisit: www.thepotslife.comFollow us on Instagram @thepotslife_  | Facebook & TikTok @ The POTS Life

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    Wrapping up the First Year!

    In this episode, the hosts of 'Let's Talk about the POTS Life' celebrate their podcast's first anniversary. They reflect on their journey, highlighting technical lessons learned, the variety of guests they've had including professional athletes, healthcare providers, and POTS graduates + the feedback from their global audience. They share inspiring stories of resilience and achievements from their guests, discuss the sense of community fostered by the podcast, and provide a glimpse into what listeners can expect in the upcoming season. The episode ends with an invitation for listeners to subscribe and join them for more inspiring content in season two.00:00 Welcome to Let's Talk About the POTS Life00:23 Reflecting on Our First Year00:51 Unexpected Growth and Global Reach01:17 Highlighting Our Special Guests02:26 Inspiring Stories of Overcoming POTS04:52 Community Support and Connections06:29 Looking Forward to Season Two06:50 Upgrades and Future Plans07:12 Join Us for Season TwoVisit: www.thepotslife.comFollow us on social media: Instagram — @thepotslife_Facebook — The POTS LifeTikTok — thepotslife

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    Living with POTS: Nicole's Journey of Passion, Resilience, and Advocacy

    In this episode of 'Let's Talk about the POTS Life,' the podcast dedicated to navigating life with Postural Orthostatic Tachycardia Syndrome (POTS), the hosts welcome special guest Nicole, a professional dancer and childcare director from the Bay Area. Nicole shares her story of being diagnosed with POTS in 2021, describing her symptoms, the process of getting diagnosed, and the impact of the condition on her active lifestyle. She discusses her experiences as a professional dancer with a local football team and as a childcare center director, emphasizing the challenges and strategies she employs to manage her condition. Nicole opens up about her decision to use social media platforms like TikTok to raise awareness about POTS, the importance of being one's own advocate, and the value of creating a supportive community. The conversation highlights Nicole's resilience and determination to continue pursuing her passions despite the hurdles posed by POTS

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    Conquering POTS as a Professional Athlete with Sophie Hilliard

    In this episode of "Let's Talk About the POTS Life", professional footballer Sophie Hillyerd shares her journey of living and playing with Postural Orthostatic Tachycardia Syndrome (POTS). Sophie, who plays with the London City Lionesses, discusses the challenges she faced following her diagnosis in 2021 after experiencing symptoms post-COVID. She describes her path from recognizing something was wrong, undergoing extensive medical tests, and finding a management plan with the help of specialists. Sophie talks about the impact of POTS on her football career, the adaptations she made, and her determination to continue playing. The conversation encapsulates her resilience and the support she received, offering hope and practical advice to others navigating similar experiences. Sophie’s story is a remarkable testament to overcoming physical and mental hurdles to achieve one's dreams.

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    Overcoming Adversity: The Inspiring Journey of Adaptive Golfer Bailey Bish

    In this episode of 'Let's Talk About the POTS Life,' hosts Kelsey and Britney welcome adaptive golfer and US Adaptive Open Champion Bailey Bish. Bailey shares her journey from a high school basketball player to becoming an adaptive golf champion despite being diagnosed with multiple health conditions, including POTS and dystonia. Bailey discusses her transition to golf, the challenges she faced, her treatment regimen, and the supportive role of her family. Additionally, she highlights her victories and the upcoming Phoenix Cup, illustrating her determination and inspiring journey. The hosts also touch on the emotional and physical hurdles faced by those with chronic illness, emphasizing the importance of finding motivation and a supportive community.

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    Things I Wish I Knew When I Was Diagnosed with POTS

    In this episode of 'Let's Talk About the POTS Life,' the hosts delve into the personal experiences and valuable insights that Kelsey wishes she had known at the time of her Postural Orthostatic Tachycardia Syndrome (POTS) diagnosis. They discuss the long and often frustrating journey towards diagnosis, the importance of tracking symptoms, and the essential role of the right kind of exercise in recovery. The episode highlights the bumpy road of treatment, the potential need for medications, and the importance of having a supportive community. The discussion also covers the launch of new consultation visits designed to help individuals better understand and manage their symptoms.

  27. 27

    Navigating Life with POTS: Olivia's Journey

    In this episode of 'Let's Talk About the POTS Life,' we welcome Olivia, a POTS patient and social media influencer based in Chicago. Olivia shares her journey from the sudden onset of her symptoms, through her diagnosis, and her struggles with treatment and setbacks. She discusses the challenges of navigating daily life and her progress in managing POTS through personalized care and support. Olivia highlights the importance of staying hopeful, the impacts of maintaining a positive attitude, and the significance of having a supportive community. Tune in to hear Olivia's experiences, insights, and encouraging words for others battling POTS.Olivia's Instagram: @livwelleatwellBlog: https://livwelleatwell.com/Check out our website: https://thepotslife.com/

  28. 26

    Special Guest: Carson (Kelsey's Son) Shares His Perspective on his mom Living with POTS (Mini Episode)

    In this special episode of 'Let's Talk about the POTS Life,' host Kelsey Botti welcomes her 8-year-old son, Carson, as the youngest guest ever. Carson shares his thoughts on his mom's job treating POTS, talks about his favorite activities and sports, and offers advice for living well with POTS. The conversation highlights how Kelsey's treatment has improved her ability to engage in everyday activities and support her family, with Carson providing charming and insightful commentary throughout.

  29. 25

    Transforming Health Through Nutrition: A Conversation with Allianna Moximchalk

    In this episode of 'Let's Talk About the POTS Life', the hosts welcome special guest Allianna Moximchalk, Allianna’s Kitchen, a meal prep company in Pittsburgh. Allianna shares her journey of starting the business, rooted in her struggle with chronic health issues and learning about nutrition. She discusses her path to becoming a holistic health coach and her gradual transformation to creating nutritious meal options for herself, which eventually catered to her community. Ali details how her personal health issues motivated her to advocate for clean, whole-food diets as a cornerstone of well-being. She also highlights the importance of self-awareness and documenting dietary and lifestyle changes. The conversation touches on the challenges of sustaining healthy eating habits, the misconceptions about gluten-free diets, and the significance of avoiding processed foods. Allianna also mentions her offerings, including hundreds of free recipes on her blog, a membership providing meal plans and grocery lists, and meal delivery services. This insightful discussion underscores the importance of nutrition in managing health and provides practical advice for those managing autoimmune conditions like POTS.Connect with Allianna:Website: https://www.alliannaskitchen.comInstagram: @alliannaskitchenPodcast: The Allianna Moximchalk Podcast

  30. 24

    Not My Problem: A Candid Conversation with Author Caitlyn Ursillo

    In this episode of Let's Talk About the POTS Life, we welcome back Caitlyn, who recently launched her first book, 'Not My Problem,' on June 24th. Caitlyn shares her journey from being a teacher to becoming a full-time mom and a published author. She discusses the inspiration behind her book, which aims to provide support and understanding for those living with chronic illnesses like POTS. The discussion touches on themes such as the challenges of living with an invisible illness, the importance of community support, and the therapeutic process of writing. Caitlyn also talks about the book's impactful elements, like the reflection prompts and the visual representation of her diagnostic journey. Tune in to hear Caitlyn's heartfelt insights and find out how you can get a copy of 'Not My Problem. https://www.notmyproblembook.com/

  31. 23

    Eating Right with POTS: Small Frequent Meals & Nutrition Tips

    Welcome to another episode of 'Let's Talk about the POTS Life'. In today's episode, we focus on practical tips for managing POTS through nutrition and meal timing. Brit and Kelsey discuss the importance of small, frequent meals throughout the day, and how timing your meals can help manage symptoms. They share personal anecdotes and tips on what foods to eat for breakfast, mid-morning snacks, lunch, and dinner. Learn why hydration is crucial, how to maintain stable blood sugar levels, and what snacks can help you stay ahead of symptoms. Whether you're living with POTS or supporting someone who is, this episode is packed with essential information to help you live better.

  32. 22

    Navigating Year One After POTS Diagnosis: Insights and Support

    Welcome to 'Let's Talk About the POTS Life,' your go-to podcast for everything related to Postural Orthostatic Tachycardia Syndrome (POTS). In this episode, Kelsey shares her first-year journey post-diagnosis, discussing the overwhelming feelings, exercising struggles, and the importance of having a supportive community. Along with co-host Brit, they emphasize the need for patience, setting realistic goals, and the invaluable support from the POTS Life program. Whether you're newly diagnosed or years in, this episode offers reassurance, practical advice, and the message that you're not alone. 

  33. 21

    Navigating POTS: A Mother's Journey of Advocacy and Hope

    Welcome to another episode of 'Let's Talk about the POTS Life.' In this episode, we hear from Christy as she shares the four-year journey of her son, Gannon, who has been dealing with POTS (Postural Orthostatic Tachycardia Syndrome). Christy describes the challenges, misdiagnoses, and the eventual diagnosis that shed light on Gannon's condition. We also learn about the supportive role of key individuals and how Gannon's mental and physical health is steadily improving. This compelling narrative highlights the importance of parental advocacy, early diagnosis, and the varying presentations of POTS.

  34. 20

    Living with POTS: Caitlyn Ursillo's Journey from Diagnosis to Author

    In this episode of 'Let's Talk About the POTS Life,' we welcome Caitlyn Ursillo, a mother, teacher, and new author living with Postural Orthostatic Tachycardia Syndrome (POTS). Caitlyn shares her journey from her initial symptoms and diagnosis, through the challenges of managing POTS while maintaining her career and family life, to becoming an advocate and author. Her new book, 'Not My Problem: Life with Chronic Illness, Being Dismissed, and How to Take Back Your Strength,' aims to empower others facing similar struggles. She discusses the emotional and mental toll of POTS, the importance of support systems, and the significance of staying hopeful and proactive. Tune in to hear Caitlyn's inspiring story and learn more about her book's mission to provide strength and understanding to those living with chronic illness.

  35. 19

    Living with POTS: Insights from Health Psychologist Dr. Lindsay Cirincione

    In this episode of 'Let's Talk About the POTS Life' podcast, we welcome Dr. Lindsay Cirincione a health psychologist in Maryland and an assistant professor at Johns Hopkins University School of Medicine. Dr. Cirincione shares her journey into working with Postural Orthostatic Tachycardia Syndrome (POTS) patients through her role at the Kennedy Krieger Institute. They discuss the challenges of managing POTS, including the importance of a multidisciplinary approach, the psychological impacts, common misdiagnoses, and the significance of instilling hope and providing adequate mental health support. Dr. Cirincione emphasizes the importance of understanding and treating all facets of POTS, from physiological symptoms to mental health. They also touch upon strategies for overcoming fear associated with POTS symptoms, the benefits of forming a supportive community, and the crucial role of self-compassion in coping with the condition.Website: https://align-health.com/Insta: www.Instagram.com/align_behavioral_healthFacebook: https://www.facebook.com/profile.php?id=61563146882509TikTok: https://www.tiktok.com/@dr_lindsay_

  36. 18

    Navigating Life with POTS: Addressing FAQs and Real-Life Stories

    In this episode of Let's Talk About the POTS Life, join Brit and Kelsey for an in-depth discussion on frequently asked questions from app users and patients about living with Postural Orthostatic Tachycardia Syndrome (POTS). They cover a range of topics including the impact of hormones, why symptoms fluctuate, and the emotional journey of receiving a POTS diagnosis. Gain insights from real-life experiences and discover how to navigate the complexities of POTS with practical advice and community support. Whether you're living with POTS or supporting someone who is, this episode offers valuable perspectives and support.

  37. 17

    Navigating POTS Postpartum: Lauren's Triumph Over Challenges

    Welcome to another episode of Let's Talk About the POTS Life! We are thrilled to bring you a unique perspective with our guest, Lauren. As a mom diagnosed with POTS (Postural Orthostatic Tachycardia Syndrome) during her pregnancy journey, Lauren shares her compelling story of symptoms, diagnosis, and the transformative impact of joining the POTS Life program. From her pregnancy complications to finding hope and recovery through personalized exercises, diet changes, and community support, Lauren's story is a beacon of hope for anyone navigating life with POTS. Tune in for an in-depth conversation about resilience, self-advocacy, and the importance of finding the right support system. Don't forget to like and subscribe for more inspiring stories!

  38. 16

    Living with POTS: Lauren's Journey of Perseverance and Positivity

    Welcome to another episode of 'Let's Talk About the POTS Life'! Join us as we sit down with Lauren, a long-time friend of hosts Brit and Kelsey, who shares her personal journey living with Postural Orthostatic Tachycardia Syndrome (POTS). Lauren dives into the challenges she faced, from misdiagnoses and symptoms like tachycardia and debilitating migraines to achieving significant wins such as enjoying a trip to Disney World symptom-free. Her story is one of perseverance, positivity, and overcoming adversity, demonstrating that with the right support and mindset, living a fulfilling life with POTS is possible. Don't forget to subscribe, like, and share this episode!

  39. 15

    Exploring Mast Cell Activation Syndrome (MCAS) and Its Link to POTS

    In this episode of 'Let's Talk About the POTS Life,' we delve into Mast Cell Activation Syndrome (MCAS) and its connection to Postural Orthostatic Tachycardia Syndrome (POTS). We discuss what MCAS is, how it manifests, and ways to manage it. The conversation covers varying symptoms, common triggers, and treatment approaches, including antihistamines and dietary adjustments. Tune in to learn more about managing MCAS alongside POTS and the importance of individualized care.***Remember, this podcast does not provide medical advice. Please consult with your physician for your specific needs.***

  40. 14

    Understanding Life with POTS: Diagnosis and Next Steps

    Welcome back to Let's Talk About the POTS Life! This week, we delve into the crucial question, 'I'm diagnosed with POTS. Now what?' We break down what POTS is, explain common symptoms like dizziness, heart palpitations, and fatigue, and discuss why certain treatments are recommended. We aim to provide practical advice and help you navigate through various POTS treatments, lifestyle changes, and symptom management techniques. Join us as we demystify POTS and offer support for living a better life with this condition forget to visit our website at thepotslife.com for more information and resources!

  41. 13

    Meredith's Journey Navigating POTS as a Mom and Physician

    Welcome to another episode of Let's Talk About the POTS Life! This week, we're joined by Meredith, a mom and physician, who shares her journey with POTS. From her initial struggles to her eventual diagnosis at the Cleveland Clinic, Meredith provides a unique perspective on living with this chronic illness. Discover how she navigated her symptoms, found the right treatment plan, and achieved significant milestones in improving her quality of life. Meredith's inspiring story is a testament to the power of hope, support, and perseverance. 

  42. 12

    How to Talk About POTS: Strategies and Tips

    In this episode of 'Let's Talk About the POTS Life,' we discuss how to explain Postural Orthostatic Tachycardia Syndrome (POTS) to others. From dealing with the confusion around the term 'POTS' to offering strategies on effectively communicating symptoms, we cover it all. We also touch on the importance of creating awareness and building a supportive community for those with POTS, including personal anecdotes and experiences. Join us to learn how to navigate conversations about this often misunderstood condition and discover the benefits of joining the POTS Life program.

  43. 11

    Optimal Nutrition for POTS: Tips for Balanced Diets and Sustained Energy

    Welcome to another episode of 'Let's Talk About the POTS Life'! In this episode, we delve into the crucial topic of nutrition for POTS patients. Hosts Kelsey and Brit discuss the importance of glucose and blood sugar levels, provide advice on building a balanced diet, and share personal experiences with dietary changes. Learn about the benefits of whole grains, protein, and vegetables, and how these foods can help manage POTS symptoms. Additionally, discover how the POTS Life app can support your nutritional journey with tips, recipes, and personalized guidance from Brit. Whether you're living with POTS or supporting someone who is, this episode offers valuable insights into making better food choices for sustained energy and improved well-being.

  44. 10

    Meet Stephanie- A POTS life graduate

    In this episode of 'Let's Talk About the POTS Life,' we welcome Stephanie, a working mom of two who shares her inspiring journey with POTS. Diagnosed at 31, Stephanie details the sudden onset of her symptoms, the struggles to find a diagnosis, and how she eventually found solace and improvement through the POTS Life program. Her story highlights the importance of self-advocacy, support systems, and staying hopeful despite the challenges. Tune in to hear how Stephanie regained control over her life and achieved milestones like returning to her beloved bar classes and caring for her family.

  45. 9

    Understanding Hydration in POTS: Tips and Insights

    In our seventh episode, we delve deep into the importance of nutrition, hydration, and electrolytes in managing POTS (Postural Orthostatic Tachycardia Syndrome). Learn about balanced nutrition, hydration strategies, and the role of salt intake. Discover practical tips for staying hydrated and the impact of caffeine and alcohol on POTS symptoms. Join us as we share valuable insights and practical guidance from our experiences and the POTS Life app community. Tune in to make your journey with POTS more manageable and enjoyable!

  46. 8

    Starting Fresh: How The POTS life Can Transform Your 2025!

    Welcome back! In this episode, we discuss navigating life after the holiday season and setting positive intentions for better health in the new year. Discover the benefits of the POTS life program, a comprehensive 12-month plan designed by a physical therapist with POTS, Kelsey, who runs her own POTS Treatment Clinic in Pittsburgh, PA. Learn how this customized guide delivered straight to your smartphone can provide personalized support, accountability, exercise regimens, nutrition guidance, and a supportive community to help you manage POTS and achieve your health goals for 2025. Join us as we explore how to bridge the gap and foster hope for those living with POTS.

  47. 7

    Meet Rachel- A POTS life graduate

    In this special episode of 'Let's Talk About the POTS Life,' we celebrate Rachel, A POTS life graduate, as she shares her inspiring journey. Diagnosed with POTS in March 2023 following a severe bout of COVID-19, Rachel went from a highly active lifestyle to struggling with basic tasks. With the guidance and support of the POTS Life program, Rachel transformed her life. This episode offers hope and practical advice for anyone navigating life with POTS.

  48. 6

    Essential Tips for a Healthy & Enjoyable Thanksgiving with POTS

    In this episode of Let's Talk About The POTS life we share five crucial tips to help you navigate Thanksgiving with ease. From planning ahead and staying hydrated to mindful eating, managing temperature, and knowing your limits, these guidelines are designed to ensure you have a safe and enjoyable holiday experience. Join us as we guide you through practical strategies to make your Thanksgiving stress-free and enjoyable. Happy Thanksgiving from The POTS life team!

  49. 5

    Discover The POTS Life Program: Personalized Treatment for POTS

    In Episode 4, we dive into the POTS Life program, an innovative app-based treatment plan designed by a physical therapist who has POTS and owns a POTS Treatment Clinic in Pittsburgh, PA. The episode highlights the goals and features of the app, which includes customizable exercise protocols, hydration tracking, nutrition guidance, and real-time support. Learn how this app bridges the gap in traditional POTS treatment by providing a tailored, patient-focused approach accessible from anywhere.

  50. 4

    Kelsey's Journey with Treatment

    Join us for the second part of Kelsey's story- her journey with treatment.

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ABOUT THIS SHOW

POTS, or Postural Orthostatic Tachycardia Syndrome, is a form of dysautonomia disorder. The hallmark of POTS is a rapid heart rate that occurs upon standing, leading to symptoms like dizziness, lightheadedness, and fatigue. Learn about the POTS life program developed by Physical Therapist Kelsey Botti, who is thriving with POTS. Hear about Kelsey's story, her patients, and her team. (The information provided in this podcast are for educational purposes only and does not substitute for professional medical advice

HOSTED BY

The POTS Life

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