Life's a Polyp

PODCAST · society

Life's a Polyp

Jenny is a Rare Disease Advocate for Familial Adenomatous Polyposis (FAP) and Short Bowel Syndrome (SBS) and uses her platform of Life's a Polyp (blog, vlog, and shop) focused on raising awareness about FAP, SBS, and patient empowerment. She started the NORD FAP Research Fund in 2015 and donates profits from Life's a Polyp Shop and her FAP Children's Book - Life's a Polyp with Zeke and Katie. Her FAP related surgeries (8 total) started at age 9. She's experienced life-threatening complications resulting in medical PTSD and lived with an ileostomy for 6 years before having it reversed. Support this podcast: https://podcasters.spotify.com/pod/show/lifesapolyp/support

  1. 11

    Cognitive Behavioral Therapy for Chronic Pain

    Jenny shares what she learned in a CBT-CP Seminar for improving quality of life with chronic pain.

  2. 10

    Caregiving for Mom - The Last Years

    Jenny shares how her understanding of her mom changes when she became a caregiver to her mother and what the last years were like.

  3. 9

    Post Concussion Syndrome

    Jenny shares about her experience developing and living with Post Concussion Syndrome

  4. 8

    How We Can Use Hardship to Build Our Resiliency

    Jenny shares an in-depth view of how we can use our hardships to build our resiliency from our own inner strength.

  5. 7

    Comfytemp Weighted Heated Vest: AD - A Sponsored Review

    Jenny shares her sponsored review and her family's reviews of the Comyftemp Weighted Heated Vest. Disclaimer: I have been given Comfytemp Heating Pad for Neck and Shoulder Pain Relief as part of a product review. Although the product was a gift, all opinions in this review remain my own and I was in no way influenced by the company.

  6. 6

    3 Self-Care Habits That Can Be Started Today

    Jenny shares 3 self-care habits that one can start today to for beginning a self-care routine for the betterment of physical and mental well-being.

  7. 5

    Changing Our Perspectives to Better Our Well-Being

    Jenny discusses ways of changing perspective for well-being betterment.

  8. 4

    La Mémoire Noire: Part 1

    La Mémoire Noire or The Dark Memory is a letter series written to Jenny's first surgeon. The man who caused everything ultimately in my life to reach this point today. I was to have 2 surgeries beginning at the age of 9 and his surgical errors altered the course of my life. Ultimately, I instead would require 7 surgeries and experience repeated life-threatening complications resulting in medical PTSD, suicidal and homicidal ideation. This is trauma I am still trying to heal from nearly 30 years later that has touched every aspect of my life and how I react, view, and process the world. As part of my therapeutic efforts to heal, I am writing this series to him. It is my raw, unedited thoughts and feelings towards this man and all that transpired following my first surgery that he performed. It will be a series that is periodically updated as I process each letter, my trauma, and continue inching towards healing embodying full love and forgiveness for myself and others.

  9. 3

    Living My Best Life

    Jenny shares in her latest blog post what the last two years have been like for her and through it all, why she says she’s living her best life

  10. 2

    When You're Eager for Medical Testing

    Jenny shares how unexplained vomiting for 10 months has left her eager to undergo medical testing, in spite of medical PTSD

  11. 1

    Learning Balance

    Jenny shares her struggle to balance life, how it affects her physical and mental health and how she's finding balance now

  12. 0

    Chronic Pain and Physical Therapy

    How physical therapy has become an integral part of my chronic pain management. Written format available on Life's a Polyp Blog

  13. -1

    What is Familial Adenomatous Polyposis and Life's a Polyp?

    A brief overview of the rare disease, Familial Adenomatous Polyposis, and Life's a Polyp. This Episode was originally published to Life's a Polyp's Youtube in 2017.

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ABOUT THIS SHOW

Jenny is a Rare Disease Advocate for Familial Adenomatous Polyposis (FAP) and Short Bowel Syndrome (SBS) and uses her platform of Life's a Polyp (blog, vlog, and shop) focused on raising awareness about FAP, SBS, and patient empowerment. She started the NORD FAP Research Fund in 2015 and donates profits from Life's a Polyp Shop and her FAP Children's Book - Life's a Polyp with Zeke and Katie. Her FAP related surgeries (8 total) started at age 9. She's experienced life-threatening complications resulting in medical PTSD and lived with an ileostomy for 6 years before having it reversed. Support this podcast: https://podcasters.spotify.com/pod/show/lifesapolyp/support

HOSTED BY

Jenny Jones

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