Parenting Children with Limb Differences

Listeners, please note that this episode is marked E for Explicit content due to the graphic material and descriptions discussed to give listeners the full picture and understanding of these parents' (and their kiddo's) experience. Most parents don’t expect their child's diagnosis to turn their world upside down. Johanna and Peter Hartley share their raw journey navigating a severe hypospadias diagnosis and the life-changing surgeries their son Silas faced before age two. From shocking moments in the hospital to the importance of second opinions, they reveal how informed choices, holistic health, and relentless advocacy transformed their experience—and their son’s future.You’ll discover the power of asking tough questions and seeking out specialized, high-volume surgeons to avoid unnecessary surgeries and complications. We break down the critical role of community support, how to communicate difficult topics with your child, and why tracking long-term outcomes is essential for these complex conditions. Their story underscores how parental intuition, education, and personalized care can defy the expectations many medical systems set, offering hope for families facing similar diagnoses.Johanna and Peter, holistic-minded chiropractors, dedicated parents, advocates, and powerful podcast hosts, show how they turned trauma into empowerment and why sharing these stories can change the whole conversation around rare birth differences. Perfect for parents, health advocates, or anyone seeking insight into navigating medical challenges with confidence and compassion—this episode might just reshape how you approach your child's health.Join us in amplifying awareness about hypospadias, second opinions, and holistic support—because every story matters, and every child deserves a path to health that aligns with their family’s values. Also: be sure to check out Johanna and Peter's awesome podcast: Born For This Stories, on Spotify: https://open.spotify.com/show/7fjwayJIABZXTWOdQxhEfN?si=7ca38f95469e4906Thanks for tuning into the Parenting Children with Limb Differences Podcast an initiative of the Limb Difference Collective Foundation. Follow us, leave a review, and share this episode with your friends and family. Connect with Ali & Kari: Website: limbdifferencecollective.orgFacebook: Parenting Children with Limb Differences Podcast and Limb Difference Collective Instagram: @pcwldpodcast @limbdifferencecollective Email: [email protected]

Most families don’t realize how powerful psychological and recreational therapy can be in transforming a child’s confidence and resilience after limb loss. In this episode, we welcome two dedicated professionals from Shriners Children’s Hospital: Dr. Kathy Zebracki, Chief Psychologist of Shriners Children's Hospital, and Amanda Hogle, a recreational therapist.Dr. Zebracki and Amanda reveal how personalized support — from emotional adjustment to adaptive sports — helps children not just cope, but thrive. Discover evidence-based strategies for addressing common emotional hurdles, such as dealing with curiosity, teasing, or medical fears, and learn how building a positive narrative fosters self-esteem and peer acceptance. We break down practical guidance on how families can recognize signs that their child might benefit from psychosocial support, including changes in behavior or sleep patterns. Dr. Zebracki shares her insights on navigating complex emotions like grief, identity, and peer interactions, emphasizing the importance of strength-based storytelling. Amanda Hogle, recreational therapist, explains how tailored activities and peer connections help kids discover their abilities and enjoy a full, active life — both in and out of hospital settings. This episode underscores why a holistic, family-centered approach is critical in childhood medical journeys. If you’re a parent, caregiver, or healthcare provider looking for actionable tools to support emotional well-being and foster lasting confidence, this conversation is essential listening. You’ll hear real stories, practical scripts, and innovative ideas to empower kids with limb differences to navigate social situations, participate in sports, and build their own stories of strength and joy. Whether you’re starting this journey or seeking to deepen your understanding of holistic care, tune in to discover how patience, humor, and personalized support can change everything. Nothing is too small or too big when it comes to creating a thriving, inclusive environment for children to flourish.Kathy Zebracki is the chief of psychology at Shriners Chicago, with 17 years of experience in pediatric psychosocial care. Amanda Hogle has served as a recreational therapist for 16 years, focusing on making hospital stays fun and empowering.Learn more about Shriners Children's Hospital:https://www.shrinerschildrens.org/enThanks for tuning into the Parenting Children with Limb Differences Podcast an initiative of the Limb Difference Collective Foundation. Follow us, leave a review, and share this episode with your friends and family. Connect with Ali & Kari: Website: limbdifferencecollective.orgFacebook: Parenting Children with Limb Differences Podcast and Limb Difference Collective Instagram: @pcwldpodcast @limbdifferencecollective Email: [email protected]

Sometimes children with limb differences are underestimated — but at Shriners Children's Hospital, dedicated teams are transforming lives through pioneering orthopedic care, prosthetics, and personalized therapy. In this eye-opening episode, Dr. Jeffrey Ackman, with over 37 years of experience, and certified prosthetist India Jacobson, share insider insights from four decades of shaping resilience in children facing limb differences.You’ll discover how a collaborative, team-based approach helps kids thrive—covering everything from congenital limb deficiencies to traumatic injuries. They break down innovative surgical procedures like limb lengthening and joint fused prosthetics that improve function and confidence. Learn about the latest advances in adaptable, prosthetics tailored for active kids and how insurance and charitable support make these life-changing devices accessible. We also explore the emotional journey for families: addressing guilt, managing expectations, and fostering confidence. You'll hear inspiring success stories of children running, swimming, and even playing sports or musical instruments—all once thought impossible. Plus, get expert advice on how to navigate care logistics, growth adjustments, and social integration for kids of all ages.Why does this matter? Because access to expert care, personalized prosthetics, and emotional support isn’t just about limbs—it’s about unlocking a child's potential and helping them live fully. This episode is essential listening for parents, caregivers, educators, and anyone committed to empowering children to overcome challenges and embrace their bright futures.If you believe every child deserves a chance to thrive with dignity and joy, tune in now. Because at Shriners, children are not just treated—they’re transformed. For more information regarding Shriner's Children's Hospital Pediatric Orthopedic program, click this link: https://www.shrinerschildrens.org/en/locations/chicago Thanks for tuning into the Parenting Children with Limb Differences Podcast an initiative of the Limb Difference Collective Foundation. Follow us, leave a review, and share this episode with your friends and family. Connect with Ali & Kari: Website: limbdifferencecollective.orgFacebook: Parenting Children with Limb Differences Podcast and Limb Difference Collective Instagram: @pcwldpodcast @limbdifferencecollective Email: [email protected]

In this special holiday episode of Parenting Children with Limb Differences, Kari and Ali wrap up an unforgettable 2025 and share a sneak peek of what’s coming in 2026. They kick things off with a candid, funny, and very real conversation about navigating the holiday season with young kids — the magic, the chaos, and the constant quest to find that elusive “just enough.The episode then shifts into a heartfelt reflection on one of the year’s biggest highlights: the 2nd Annual LLLDAM meetup at Brookfield Zoo. With more than 230 attendees, the event brought together new friends, longtime friends, and families from across the community. Kari and Ali share the emotional moment they looked at each other — eyes full of tears — realizing just how powerful and connected this community has become. They give a huge shout‑out to Rachel Walsh for sparking the zoo meetup tradition, along with Tarah, Sarah, Krystal, Rose, and Katie M., whose behind‑the‑scenes work made the day unforgettable. They also celebrate the many new friendships formed this year and the organizations who supported the event, including Brookfield Zoo, Moxie Adaptive, Shriners Children’s Hospital, and a mysteriously unnamed partner. Plus, gratitude to those who contributed to the goodie bags: GLASA, EazyHold, Hanger Clinic, Shirley Ryan Ability Lab, and Amputee Coalition.And then — one of the biggest milestones of 2025. Kari and Ali share the exciting news that Parenting Children with Limb Differences officially became part of a larger movement with the founding of the Limb Difference Collective Foundation (LDCF) this summer. LDCF is now a 501(c)(3) nonprofit dedicated to supporting parents and children with limb differences by fostering meaningful connections, promoting community‑driven initiatives, and providing accessible, empowering resources. You can even find LDCF listed in the IRS tax‑exempt organization database.The hosts highlight several major initiatives already underway, including LDCF’s commitment to organizing and funding local meetups — starting with support for the 3rd Annual LLLDAM Brookfield Zoo Meetup on April 25, 2026. They share details about sponsorship needs, from pavilion rental to food costs, and invite potential partners to reach out at 630‑403‑8076 or [email protected] also get the inside scoop on LDCF’s newest project: the Hugs‑in‑a‑Box campaign, launching December 22. These thoughtfully curated care packages are designed to feel like a warm embrace for new parents and caregivers of children with limb differences across the U.S., offering comfort, confidence, and connection. Packages will be assembled on demand, with the first deliveries expected in January.Kari and Ali also discuss LDCF’s growing efforts to collaborate with hospitals, obstetricians, and maternal‑fetal medicine specialists — first locally, then nationally — to ensure families receive supportive, accurate, and empowering resources from the very beginning of their journey. The goal is simple and powerful: make limb difference resources easy to find, both online and in every doctor’s office.From there, the episode moves into a celebration of Season 3’s incredible guests and some jaw‑dropping Spotify Wrapped stats: massive audience growth, listeners tuning in from 15 countries, and a community that comments, shares, and shows up more than most podcasts out there. And yes — the dads episode made a very strong showing.With laughter, warmth, and plenty of tangents (because that’s who they are), this episode is a joyful thank‑you to the listeners who make this podcast what it is. Tune in for the celebration, stay for the sneak peeks, and get excited for new episodes coming in February.

In this episode, we’re honored to welcome Aisha Bell Robinson—a dance movement therapist, counselor, artist, and parent whose work beautifully weaves embodiment, inclusion, and systemic change. Her advocacy for her daughter Naima and for families navigating school systems is both personal and powerful. Aisha discusses the importance of showing up for our kids and in situations as regulated parents, and also attuning to our kids and letting them lead when some challenges arise. During this episode, she also shares ways in which parents can learn about their rights and their children's rights going into educational settings. Aisha further shares that having the tools and resources to know what to ask for during IEP/504 meetings is crucial to advocate effectively for our kids. To help parents navigate this, Aisha offers parents a one-page handout and also holds an open parents forum a few times per year. For more information regarding Aisha's work and to obtain the one-page handout discussed during this episode, please go to: https://bellacosolutions.com/ Thanks for tuning into the Parenting Children with Limb Differences Podcast an initiative of the Limb Difference Collective Foundation. Follow us, leave a review, and share this episode with your friends and family. Connect with Ali & Kari: Website: limbdifferencecollective.orgFacebook: Parenting Children with Limb Differences Podcast and Limb Difference Collective Instagram: @pcwldpodcast @limbdifferencecollective Email: [email protected]

In this episode, Kari and Ali chat with Anna-Maria Mountfort, creator of MimiTENs and Some of the Parts. MimiTENs is a mittens company that was originally created for children and adults who needed to keep their hands and arms warm in cold weather. Now, it has expanded to serve the upper limb difference community with a variety of warm, waterproof, high quality mittens (that can be customized) to keep our loved ones' upper limbs protected from the cold and wet weather. Anna-Maria inspires us with a conversation about countering cruelty with goodness, hope, joy, and the passion we have for helping others. Learn more about MimiTENs and order your mittens at http://bit.ly/489ueZu. Thanks for tuning into the Parenting Children with Limb Differences Podcast an initiative of the Limb Difference Collective Foundation. Follow us, leave a review, and share this episode with your friends and family. Connect with Ali & Kari: Website: limbdifferencecollective.orgFacebook: Parenting Children with Limb Differences Podcast and Limb Difference Collective Instagram: @pcwldpodcast @limbdifferencecollective Email: [email protected]

In this episode, Kari and Ali chat with Jen Reeves, author of Born Just Right, and fierce advocate for her daughter Jordan Reeves. Jen shares about the challenges of early motherhood given the very few resources available for her child with an upper limb difference. She expresses gratitude and fondness of the journey of motherhood and life lessons she's experienced with Jordan, and the memories she and Jordan have created through research, adventures, presentations, interviews, and consultations with many organizations and businesses. Thanks for tuning into the Parenting Children with Limb Differences Podcast an initiative of the Limb Difference Collective Foundation. Follow us, leave a review, and share this episode with your friends and family. Connect with Ali & Kari: Website: limbdifferencecollective.orgFacebook: Parenting Children with Limb Differences Podcast and Limb Difference Collective Instagram: @pcwldpodcast @limbdifferencecollective Email: [email protected]

In this episode, Ali and Kari are joined by Luis Schwab of Island Lake, IL. Luis brings a new perspective to our podcast in this episode where he talks with us about his identity development related to his lived experience as an individual and a parent with upper limb differences. Luis walks us through his childhood and adolescence, sharing that while he experienced some adversity growing up, he also built a strong sense of identity, strong bonds and a solid sense of belonging within his own welcoming, home community. He goes on to share how he felt that the push from organizations towards prosthetics was unhelpful for him. Luis also expresses how he does not identify as a person with a disability and embraces that his body is fully capable of doing everything he needs it to.Thanks for tuning into the Parenting Children with Limb Differences Podcast an initiative of the Limb Difference Collective Foundation. Follow us, leave a review, and share this episode with your friends and family. Connect with Ali & Kari: Website: limbdifferencecollective.orgFacebook: Parenting Children with Limb Differences Podcast and Limb Difference Collective Instagram: @pcwldpodcast @limbdifferencecollective Email: [email protected]

Kari and Ali are joined by David Harrell, actor, author, Camp No Limits leader, and an all around amazing human with an upper limb difference. David takes us all on a journey of finding his identity, through the awkward childhood/adolescent years and into adulthood: where acting, writing and finding his community led him to his authentic self. Thanks for tuning into the Parenting Children with Limb Differences Podcast an initiative of the Limb Difference Collective Foundation. Follow us, leave a review, and share this episode with your friends and family. Connect with Ali & Kari: Website: limbdifferencecollective.orgFacebook: Parenting Children with Limb Differences Podcast and Limb Difference Collective Instagram: @pcwldpodcast @limbdifferencecollective Email: [email protected]

Join Kari and Ali as they dive into the real-world rollercoaster of potty training. From surprise puddles to breakthrough “I did it!” moments, they share adaptive tools, emotional highs and lows, and practical hacks that turned each setback into a celebration of independence. Tune in for candid laughs, heartfelt reflections, and tips you can start using today.Thanks for tuning into the Parenting Children with Limb Differences Podcast an initiative of the Limb Difference Collective Foundation. Follow us, leave a review, and share this episode with your friends and family. Connect with Ali & Kari: Website: limbdifferencecollective.orgFacebook: Parenting Children with Limb Differences Podcast and Limb Difference Collective Instagram: @pcwldpodcast @limbdifferencecollective Email: [email protected]

In this powerful episode, we spotlight EazyHold—a simple yet revolutionary adaptive tool that’s transforming lives by increasing accessibility to everyday activities. From holding utensils to gripping sports equipment, EazyHold empowers individuals with limb differences, limited mobility, or neurological challenges to reclaim independence and joy in movement.Join us as Kerry Mellen (the founder) and Cierra Sterling share how this silicone strap is more than just a product—it’s a catalyst for inclusion, dignity, and creativity. You’ll hear inspiring stories from users, insights from occupational therapists, and reflections on how small innovations can make a big impact. Whether you're a caregiver, clinician, or advocate, this episode will leave you energized to champion tools that truly change lives.Tune in and discover how accessibility starts with empathy—and how EazyHold is leading the way. For more information, check out: https://eazyhold.com/Thanks for tuning into the Parenting Children with Limb Differences Podcast an initiative of the Limb Difference Collective Foundation. Follow us, leave a review, and share this episode with your friends and family. Connect with Ali & Kari: Website: limbdifferencecollective.orgFacebook: Parenting Children with Limb Differences Podcast and Limb Difference Collective Instagram: @pcwldpodcast @limbdifferencecollective Email: [email protected]

Join us for Season 3’s kickoff as we bring our husbands, Sean and Brian, back into the hot seat where we'll dive into the day-to-day of parenting children with limb differences. They share how they cheer their kids on at their various activities, navigate the triumphs and tribulations life, and dream big for the road ahead. Expect candid laughs, heartfelt reflections, and practical tips from two dads who lead with love, resilience, and partnership.Thanks for tuning into the Parenting Children with Limb Differences Podcast an initiative of the Limb Difference Collective Foundation. Follow us, leave a review, and share this episode with your friends and family. Connect with Ali & Kari: Website: limbdifferencecollective.orgFacebook: Parenting Children with Limb Differences Podcast and Limb Difference Collective Instagram: @pcwldpodcast @limbdifferencecollective Email: [email protected]

Thank you to everyone who has listened to the Parenting Children with Limb Differences podcast the last two seasons! We are so grateful to see this community growing and to be a platform where we can bring you real, lived experiences through personal stories. Special thanks this season to Katie and Tommy Dengel, Ryan Haack, Allie Redshaw, Allison Sweet Grant, Katie Mick, Gigi Verrey, Cindy Housner, Mary Leighton, Megan Craft, Lisa DeWeert, Megan Crummert, Maggie Baumer and Carrie Davis. And of course, a big thanks to our husbands, who have shown us vulnerability in sharing their own perspectives, as well as their unwavering support.  We are also thankful to have connected with more organizations this Season, such as, the LimbBo Foundation, Camp No Limits, GLASA, Arm Dynamics, Mission: Inclusion, Moxie Adaptive, and the Hanger Foundation that are all providing invaluable resources to the community.We are taking a break for the summer to spend quality time with our families. However, we’ve got a running list of people and organizations on the docket for season 3 and expect to return with the same energy for the podcast in the late summer/early fall. Don’t worry, we’re not going anywhere! Get in touch and we’ll get you on the list! We’ve always said that if we were able to reach just one person with these stories, that would be incredibly meaningful for us.  But what if we were to do even more for our community and our children’s future….? We are thrilled to share something so close to our hearts—a new endeavor we’ve been working on, inspired by all of our incredible kids, and the connections we’ve made since their birth.We want to highlight that light and positivity, and make it just a little bit easier for families navigating this journey to find connection, support, and resources. With these goals in mind, we have an EXCITING announcement: We’re thrilled to introduce the Limb Difference Collective! Over the last few years, we have formed meaningful relationships with a collective of other families. We wanted to create a place to highlight those resources that we’re sending in our group chats and share it with the greater community. Our website, limbdifferencecollective.org is expected to be a lifelong labor of our love. A “hub” designed to help families who are first learning about their child’s limb difference, as well as those looking for ways to connect their kids with activities, events, and more.Our hope is to get these resources in front of medical professionals who support pregnant women, parents, and caregivers, allowing families access to information from the very beginning. We also plan to offer what we call a “hug in a box”, a support bundle filled with resources, stories that celebrate living with limb differences, and maybe some swag (because kids love that!). We want families to know that while there may be challenges, there’s so much light, happiness, and joy ahead.We’re in the process of obtaining our 501c3 non-profit status to accept charitable donations which will be tax-deductible. In the meantime, we welcome any contribution through the links on our website. We’re looking for investors of impact to be a part of this journey with us. Whether it be $5 or $500, your contributions make a difference and show us our cause matters. We believe in the power of community. Imagine if a few parents became a few hundred or even thousands, all ready to tell the next family, “You’re going to be okay. Your child is going to be okay. There’s so much light ahead.”If you're interested in being a part of this journey, please visit limbdifferencecollective.org. Connect with Ali & Kari: Website: pcwldpodcast.com; Facebook: Parenting Children with Limb Differences Podcast Instagram: @pcwldpodcast Email: [email protected]

In the final guest episode of season two, Carrie Davis, VP of Employee and Patient Experience with Hanger Clinic, boldly shares her journey from childhood to adulthood growing up with one hand. She shares with us the story of the evolution of her identity and how she became a two-time national paratriathalon champion. Carrie also shares with us how she became involved with Hanger and the amazing work they are doing there, along with other organizations that are championing movements and challenging legislation for the greater good of amputees and those born with limb difference. Learn more about Hanger and their mission at: https://hangerclinic.com/ Thanks for tuning into the Parenting Children with Limb Differences Podcast. Follow us, leave a review, and share this episode with your friends and family.Connect with Ali & Kari: Website: pcwldpodcast.com; Facebook: Parenting Children with Limb Differences Podcast Instagram: @pcwldpodcast Email: [email protected]

In this episode, Maggie Baumer, Leader of Enterprise Patient Advocacy with Hanger Clinic, takes us through her experience as an adult with losing her arm below the elbow after a scary and painful accident. Maggie graciously shares with us the ways in which she navigated her recovery and how her identity evolved to embrace herself as a person with a disability and a disability advocate. Maggie also shares with us how she became involved with Hanger and the amazing work they are doing there, along with other organizations that are championing movements and challenging legislation for the greater good of amputees and those born with limb difference. Learn more about Hanger and their mission at: https://hangerclinic.com/ Thanks for tuning into the Parenting Children with Limb Differences Podcast. Follow us, leave a review, and share this episode with your friends and family.Connect with Ali & Kari: Website: pcwldpodcast.com; Facebook: Parenting Children with Limb Differences Podcast Instagram: @pcwldpodcast Email: [email protected]

This episode features Moxie Adaptive, an organization focused on creating spaces to connect and empower those with limb differences. We had the pleasure of speaking with two of the founders, Lisa DeWeert and Megan Crummet, who share their own stories about finding their identity and their inspiration for creating Moxie. Learn more about Moxie Adaptive and their mission at: https://moxieadaptive.org/ Thanks for tuning into the Parenting Children with Limb Differences Podcast. Follow us, leave a review, and share this episode with your friends and family.Connect with Ali & Kari: Website: pcwldpodcast.com; Facebook: Parenting Children with Limb Differences Podcast Instagram: @pcwldpodcast Email: [email protected]

In this episode, we meet with Megan Craft, Speech Language Pathologist and creator of the children's disability book series: Mission Inclusion. Megan shares what inspired her to write this book series, and why mindfulness, kindness, and inclusion are important. She also talks with us about the importance of teaching our kids when they're young about differences and inclusion, so they can carry those lessons through their lifetime. Educating parents and the community is paramount to gain insight and understanding that disability connects us all. Learn more about Megan Craft and Mission Inclusion here: https://mission-inclusion.com/ Thanks for tuning into the Parenting Children with Limb Differences Podcast. Follow us, leave a review, and share this episode with your friends and family.Connect with Ali & Kari: Website: pcwldpodcast.com; Facebook: Parenting Children with Limb Differences Podcast Instagram: @pcwldpodcast Email: [email protected]

In this episode, Alexandra (Allie) Redshaw shares her experience of living her life to the fullest, despite losing her hand in a kitchen accident while pregnant with her second child. Allie takes us through the harrowing story of her injury and amputation. She emphatically shares how she believes in inclusion and accessibility for everyone: that every human being, regardless of how they show up or how they are shaped, deserves to be seen, felt and have their needs met. Now, an avid paraclimber and disability advocate, Allie is traveling the world, creating powerful change and impact in third world countries. It was an absolutely honor to hear her story filled with hope, resiliency, and rediscovering herself and her purpose. Learn more about her journey: @allie_redshaw Thanks for tuning into the Parenting Children with Limb Differences Podcast. Follow us, leave a review, and share this episode with your friends and family.Connect with Ali & Kari: Website: pcwldpodcast.com; Facebook: Parenting Children with Limb Differences Podcast Instagram: @pcwldpodcast Email: [email protected]

<!--td {border: 1px solid #cccccc;}br {mso-data-placement:same-cell;}-->In this episode, we welcome Cindy Housner, Founder of Great Lakes Adaptive Sports Association (GLASA) into the studio. Learn about the impact this Illinois-based organization is making to support athletes training and competing locally, nationally and internationally, with 20 different sports. We discuss the programs, camps and events they offer as well as the important role families and volunteers play in helping programs like these. Thanks for tuning into the Parenting Children with Limb Differences Podcast. Follow us, leave a review, and share this episode with your friends and family. To learn more about GLASA, click here: https://glasa.org/.Connect with Ali & Kari: Website: pcwldpodcast.com; Facebook: Parenting Children with Limb Differences Podcast Instagram: @pcwldpodcast Email: [email protected]

In this episode, Kari shares her experiences and insights as she explores the world of paraswimming. From learning about athlete classification to incorporating athletes with disabilities into events, she dives into the details of adaptive sports and the opportunities they create.Discover valuable resources like usparaswimming.org, moveunitedsport.org, and swimangelfish.com to get started with adaptive swimming, and support athletes and families on their journey.Thanks for tuning into the Parenting Children with Limb Differences Podcast. Follow us, leave a review, and share this episode with your friends and family. For questions regarding swimming, contact Kari at [email protected] with Ali & Kari: Website: pcwldpodcast.com; Facebook: Parenting Children with Limb Differences Podcast Instagram: @pcwldpodcast Email: [email protected]

In this episode, we delve into the world of upper limb prosthetics with Mac Lang and Jamison Carroll from Arm Dynamics. We explore their unique approach to patient care, focusing on maximizing function and independence. Learn about the latest advancements in prosthetic technology, the rehabilitation process, and how Arm Dynamics is helping individuals with limb differences live fulfilling lives. Discover how they are truly "Redefining Possibility" for their patients.Thanks for tuning into the Parenting Children with Limb Differences Podcast. Follow us, leave a review, and share this episode with your friends and family. Learn more about Arm Dynamics and how you can get involved by visiting https://www.armdynamics.com/Connect with Ali & Kari: Website: pcwldpodcast.com;Facebook: Parenting Children With Limb Differences;Instagram: PCWLD Podcast; Email: [email protected]

In this episode, we're joined by Mary Leighton, Founder and Executive Director of Camp No Limits and the No Limits Foundation. We explore the inspiring mission of Camp No Limits, which is dedicated to empowering individuals with limb loss and limb differences. Learn about their diverse programs, from summer camps and adaptive opportunities to educational resources and advocacy initiatives. Discover how Camp No Limits is breaking down barriers and creating a more inclusive world for people with limb loss or limb differences.Thanks for tuning into the Parenting Children with Limb Differences Podcast. Follow us, leave a review, and share this episode with your friends and family.Learn more about Camp No Limits and how you can get involved by visiting https://nolimitsfoundation.org/. Connect with Ali & Kari:Website: pcwldpodcast.comFacebook: Parenting Children With Limb DifferencesInstagram: PCWLD PodcastEmail: [email protected]

Join us for our conversation with Katie Dengel and her son, Tommy, the driving force behind the creation of the LimbBo Foundation which operates out of the UK, but has a global reach. Hear how Tommy's arrival into her family's world inspired Katie and her husband, Adam, to create a supportive community for children with limb differences and their families. Discover how LimbBo provides vital support, from 3D-printed tools and welcoming parent packs to social events and a strong sense of belonging. This episode offers a heartwarming glimpse into the power of community and as Tommy says, "Just Keep Going, You Can Do It."Thanks for tuning into the Parenting Children with Limb Differences Podcast. Follow us, leave a review, and share this episode with your friends and family. Learn more about Katie Dengel and the LimbBo Foundation and how you can get involved by visiting https://limbbofoundation.co.uk/Connect with Ali & Kari:Website: pcwldpodcast.comFacebook: Parenting Children With Limb DifferencesInstagram: PCWLD PodcastEmail: [email protected]

Today's interview features Allison Sweet Grant! Allison is a writer published in the New York Times and The Atlantic; she holds dual master’s degrees from the University of Michigan. She is the author of I am the Cage, which was February 18th, 2025. I Am The Cage is a beautiful coming-of-age story that draws from the author's own adolescent experiences in the medical system undergoing a limb lengthening procedure. This is an episode you don't want to miss!Thanks for tuning into the Parenting Children with Limb Differences Podcast. Follow us, leave a review, and share this episode with your friends and family. Learn more about Allison Sweet Grant and how you can support her book by visiting @allisonsweetgrant on Instagram!Connect with Ali & Kari:Website: pcwldpodcast.comFacebook: Parenting Children With Limb DifferencesInstagram: PCWLD PodcastEmail: [email protected]

In part two of this two-part interview, Ryan Haack, author ofDifferent is Awesome!, discusses his role models, the advocacy organizations he is passionate about, and the connections he has formed across the U.S. Part two is especially raw as Ryan shares about the loss of his father. Disclaimer: we are inserting a trigger warning here, as a family member's death by suicide is briefly discussed.Thanks for tuning into the Parenting Children with Limb Differences Podcast. Follow us, leave a review, and share this episode with your friends and family. Learn more about Ryan Haack by visiting ⁠http://www.livingonehanded.com/⁠Connect with Ali & Kari:Website: ⁠pcwldpodcast.com⁠Facebook: ⁠Parenting Children With Limb Differences⁠Instagram: ⁠PCWLD Podcast⁠Email: ⁠[email protected]⁠

In part one of this two-part interview, Ryan Haack, author of Different is Awesome!, shares the strength he's found in family, community, activities, and most of all, through self-reflection and sharing his emotions! Ryan is a motivational speaker, limb difference advocate, parent, and humanitarian. He is also an adult who was born with an upper limb difference! Don't forget to check out Part 2!Thanks for tuning into the Parenting Children with Limb Differences Podcast. Follow us, leave a review, and share this episode with your friends and family. Learn more about Ryan Haack by visiting http://www.livingonehanded.com/Connect with Ali & Kari:Website: pcwldpodcast.comFacebook: Parenting Children With Limb DifferencesInstagram: PCWLD PodcastEmail: [email protected]

Today’s Interview is with Gigi Verrey, Vice President of a local wealth management company here in Illinois and is the Creator and she is the creator of Very Smart Ideas, LLC. Gigi is also an adult who was born with an upper limb difference - and she is an inspiration! We want to share her story with you, including the challenges she has faced, her successes, and the ways in which she has overcome adversity. We enjoyed Gigi's warm personality, sense of humor, and advice for parents and children in the limb difference community and we think you will too! And check out Very Smart Ideas, on Instagram!Thanks for tuning into the Parenting Children with Limb Differences Podcast. Follow us, leave a review, and share this episode with your friends and family. Learn more about Gigi Verrey and Very Smart Ideas by visiting https://verysmartideas.com/Connect with Ali & Kari:Website: pcwldpodcast.comFacebook: Parenting Children With Limb DifferencesInstagram: PCWLD PodcastEmail: [email protected]

Katie Mick shares her journey from pregnancy, birth and beyond. Katie dives into how she has learned to help support her son, Conor by tapping into her own personal and professional knowledge, training and experiences. She also explains what resources have been most helpful for her as she has navigated this unexpected pathway.Thanks for tuning into the Parenting Children with Limb Differences Podcast. Follow us, leave a review, and share this episode with your friends and family. Connect with Ali & Kari:Website: pcwldpodcast.comFacebook: Parenting Children With Limb DifferencesInstagram: PCWLD PodcastEmail: [email protected]

Our season 2 kicks off with our interview with Sean and Brian, our partners, who are raising children with limb differences alongside us. In this episode, we hear their perspectives on finding out about our child's limb difference, emotional processing, research, partnership and parenting. Thanks for tuning into the Parenting Children with Limb Differences Podcast. Follow us, leave a review, and share this episode with your friends and family.Connect with Ali & Kari:Website: ⁠pcwldpodcast.com⁠Facebook: ⁠Parenting Children With Limb Differences⁠Instagram: ⁠PCWLD Podcast⁠Email: ⁠[email protected]⁠

This mini episode offers a sneak peak into Season 2 of Parenting Children with Limb Differences. It highlights special guests, upcoming events in the community, and other resources we are excited about for this season. Get ready for more inspiring stories, laughter (and maybe a few tears), and support, as we challenge the world’s perception of limb difference limitations by offering a perspective that focuses on limb difference ability and resiliency. Stay tuned!Thanks for tuning into the Parenting Children with Limb Differences Podcast. Follow us, leave a review, and share this episode with your friends and family.Connect with Ali & Kari:Website: pcwldpodcast.comFacebook: Parenting Children With Limb DifferencesInstagram: PCWLD PodcastEmail: [email protected]

In part 2, Emma discusses the importance of having open dialogue with our children about their limb difference and working with them to develop the language to effectively and confidently manage questions about their limb difference (or for our typical children, to discuss their sibling’s limb difference). She also shares her aspirations in connecting every family who finds out that they will have a child with a limb difference (whether at scan or at birth) with resources, including home visits. Emma also acknowledges and addresses the grief associated with finding out she would have a different baby then expected (that no one talks about but many feel), along with how reframing, and moving toward acceptance and excitement of the new vision, has helped her; especially, looking forward to what she imagined her child would teach her.  More conversations around adaptive equipment, challenges and successes around managing activities of daily living are also addressed in part two of this episode.Thanks for tuning into the Parenting Children with Limb Differences Podcast. Follow us, leave a review, and share this episode with your friends and family.Connect with Ali & Kari:Website: pcwldpodcast.comFacebook: Parenting Children With Limb DifferencesInstagram: PCWLD PodcastEmail: [email protected]   

Wrapping up season 1 of PCLWD, this is a two-part, heartfelt interview with Emma Gilpin.  Emma is a Pediatric Nurse and mom of two, located in the U.K.  Her eldest child, Miles, was born with an upper limb difference.  Emma is also a major limb difference advocate who is involved with both Reach and LimbBo, two fantastic organizations in the UK. In part one, we learn more about Emma and Miles. Emma shares how learning of Miles’ limb difference and researching led her to connect with Reach and LimbBo. She also shares how her journey with motherhood and her experiences have informed and inspired her professional work, and igniting her passion for supporting the limb difference community. Thanks for tuning into the Parenting Children with Limb Differences Podcast. Follow us, leave a review, and share this episode with your friends and family. Connect with Ali & Kari:Website: pcwldpodcast.comFacebook: Parenting Children With Limb DifferencesInstagram: PCWLD PodcastEmail: [email protected]

In this episode, Rachel shares with us her personal journeyfrom the challenges of conception and Miles’ traumatic birth. She also shares with us how she learned about Miles' limb differences (with a diagnosis of amniotic band syndrome), and walks us through Miles’ development and surgeries. Rachel identifies the resources that have been helpful and offers advice for other parents, as well as her hopes for Miles' future. DISCLAIMER– there is some descriptive content involving Rachel's traumatic birth story that may be difficult for some listeners to hear. Thanks for tuning into the Parenting Children with Limb Differences Podcast. Follow us, leave a review, and share this episode with your friends and family. Connect with Ali & Kari:Website: pcwldpodcast.comFacebook: Parenting Children With Limb DifferencesInstagram: PCWLD PodcastEmail: [email protected]

In this episode, Kari and Ali share some updates on how school is going for Mack and Tyler. They share the challenges of adjusting to new routines, positive social-emotional experiences, 504 evaluation discussions, and more. Thanks for tuning into the Parenting Children with Limb Differences Podcast. Follow us, leave a review, and share this episode with your friends and family.  Connect with Ali & Kari:Website: pcwldpodcast.comFacebook: Parenting Children With Limb DifferencesInstagram: PCWLD PodcastEmail: [email protected]

In this episode, Kari and Ali dive in and discuss the adaptive tools they are currently using to support their children with upper limb differences. They share ideas around adaptive equipment, adaptive clothing, and advocate for the need for more businesses to create more adaptive tools in support of the limb difference community. Thanks for tuning into the Parenting Children with Limb Differences Podcast. Follow us, leave a review, and share this episode with your friends and family. Connect with Ali & Kari:Website: pcwldpodcast.comFacebook: Parenting Children With Limb DifferencesInstagram: PCWLD PodcastEmail: [email protected]

In this episode, Sarah takes us on a journey through her life, sharing her unique story as BOTH an adult with a limb difference and the parent of a child with a limb difference. Sarah describes some of the challenges of growing up with a limb difference and how her limb difference has shaped her into the (beautiful) human she is today. She talks about finding herself, falling in love, what inspired her to become a teacher, and the importance of community. Sarah also shares how her life experiences have helped her to show up and advocate in an intentional way for her son, Liam, who was born with an upper limb difference. Additionally, Sarah expresses her hopes for her son and what she envisions for all of their lives, going forward. Thanks for tuning into the Parenting Children with Limb Differences Podcast. Follow us, leave a review, and share this episode with your friends and family. Connect with Ali & Kari:Website: pcwldpodcast.comFacebook: Parenting Children With Limb DifferencesInstagram: PCWLD PodcastEmail: [email protected]

In this episode, Kari breaks down the Camp No Limits Lake Forest experience. From the breakout sessions, to the amazing vendors with adaptive equipment, Kari delves into why Camp No Limits is a must-attend event for the  Limb Difference/Limb Loss community!  The opportunity to connect with other families navigating similar journeys makes this entire experience invaluable! Worried about the cost of Camp No Limits? As Kari describes, there are scholarships and fundraising opportunities available to make Camp No Limits more accessible and affordable! Thanks for tuning into the Parenting Children with Limb Differences Podcast. Follow us, leave a review, and share this episode with your friends and family.Learn more about Camp No Limits and how you can get involved by visiting ⁠https://nolimitsfoundation.org/⁠. Connect with Ali & Kari:Website: ⁠pcwldpodcast.com⁠Facebook: ⁠Parenting Children With Limb Differences⁠Instagram: ⁠PCWLD Podcast⁠Email: ⁠[email protected]

This episode is the SECOND part of our two-part interview with Laura Clubok- Pediatric Occupational Therapist from Columbus Ohio. Part two is packed with tips on how parents can support their children with limb differences by helping them to build strong bodies and minds, including how to prevent overuse syndrome. Laura shares her enjoyment in collaborating with other professionals and actively participates with other organizations including, but not limited to Hands to Love and Lucky Fin, to educate the community on the best ways to support individuals with limb differences. Additionally, Laura expresses how healing it has been for her to find a community for herself as an adult with other like-minded (and similar bodied) individuals, while also fulfilling her passion of connecting the next generation of children with limb differences to services and resources to help them feel a sense of belonging, and lead happier, more fulfilling lives. Thanks for tuning into the Parenting Children with Limb Differences Podcast. Follow us, leave a review, and share this episode with your friends and family. Learn more about Laura Clubok and On the Other Hand Therapy by visiting https://ontheotherhand.org/therapy/ Connect with Ali & Kari:Website: pcwldpodcast.comFacebook: Parenting Children With Limb DifferencesInstagram: PCWLD PodcastEmail: [email protected]

In this two-part special, we interview Laura Clubok- Pediatric Occupational Therapist from Columbus Ohio. Laura is the creator of On the Other Hand Therapy (and On the Other Hand I Have a Thumb). She offers a unique perspective, as she is also an adult who was born with a hand difference.Part 1 dives into Laura’s childhood and growing up with a limb difference. It also explores her pursuit of her career as a Pediatric Occupational Therapist and her passion for helping children with limb differences grow up to be healthy, well-adjusted individuals. Laura offers her expert insight and advice as a Pediatric Occupational Therapist, an adult with lived experience as a member of the limb difference community, and a parent herself - on supporting children with limb differences.Don't forget to listen to part 2 of Laura's journey!Thanks for tuning into the Parenting Children with Limb Differences Podcast. Follow us, leave a review, and share this episode with your friends and family. Learn more about Laura Clubok and On the Other Hand Therapy by visiting https://ontheotherhand.org/therapy/Connect with Ali & Kari:Website: pcwldpodcast.comFacebook: Parenting Children With Limb DifferencesInstagram: PCWLD PodcastEmail: [email protected]

In this episode, Krystal Pelletier shares with us her journey through fertility treatment, pregnancy, the shock of learning about Brooklynn's limb difference at birth, the emotional battle Krystal went through postpartum, and the supports she currently has in place for Brooklynn (and herself) today. Krystal shares her challenges and triumphs with warmth, humor, hope and love throughout this heartfelt episode. Thanks for tuning into the Parenting Children with Limb Differences Podcast. Follow us, leave a review, and share this episode with your friends and family. Connect with Ali & Kari:Website: pcwldpodcast.comFacebook: Parenting Children With Limb DifferencesInstagram: PCWLD PodcastEmail: [email protected]

In this episode, Rose Andrews shares with us how despite facing adversity throughout her life (including being surprised at her daughter's birth with her daughter's upper limb difference and entering postpartum during a worldwide pandemic), she has been able to reframe her life into a positive perspective, practice gratitude, and lean on resources to navigate challenges. Please note: we're a couple of moms who are recording remotely from our homes. Throughout this episode, you may hear children and other noises in the background. We've done our best to edit out these background noises but there may still be some tiny voices here and there. We thank you for your patience with us as you ignore these background interferences and listen to Rose's powerful messages around love, understanding, and providing a safe, inclusive space for her daughter. Thanks for tuning into the Parenting Children with Limb Differences Podcast. Follow us, leave a review, and share this episode with your friends and family. Connect with Ali & Kari:Website: pcwldpodcast.comFacebook: Parenting Children With Limb DifferencesInstagram: PCWLD PodcastEmail: [email protected]

In this educational episode, Tarah Behren returns and talks with Kari and Ali about experiences with the Early Intervention program, the transition to the Early Childhood program through the school district, IEPs and 504 plans. Tune in for helpful tips on navigating and advocating for your child!Thanks for tuning into the Parenting Children with Limb Differences Podcast. Follow us, leave a review, and share this episode with your friends and family. Connect with Ali & Kari:Website: pcwldpodcast.comFacebook: Parenting Children With Limb DifferencesInstagram: PCWLD PodcastEmail: [email protected]

In this episode, Kari and I discuss all things back to school. From handing out introduction flyers to teachers and staff, to making sure our littles have what they need to be prepared for the year ahead, Kari and Ali share their ideas and hopes for a great start to the new school year. They also discuss their admiration for the athletes competing in the upcoming Paralympics.Thanks for tuning into the Parenting Children with Limb Differences Podcast. Follow us, leave a review, and share this episode with your friends and family. Connect with Ali & Kari:Website: pcwldpodcast.comFacebook: Parenting Children With Limb DifferencesInstagram: PCWLD PodcastEmail: [email protected]

In this episode, Tarah Behren shares her strength, courage, and heart with us as she reflects on the last several years. Tarah explains the details of learning about her daughter Melanie’s limb difference at the 20-week anatomy scan, all of the emotions that came with that, and all of the unexpected and wonderful things being Mel’s (and Kelsey’s) mom has gifted her. Additionally, as a special education teacher, Tarah offers a unique perspective and provides us with her thoughts about resources, advocacy and inclusion. Thanks for tuning into the Parenting Children with Limb Differences Podcast. Follow us, leave a review, and share this episode with your friends and family. Connect with Ali & Kari:Website: pcwldpodcast.comFacebook: Parenting Children With Limb DifferencesInstagram: PCWLD PodcastEmail: [email protected]

In this episode, Kari shares her personal journey of parenting a child with a limb difference. From the unexpected moment of discovering Mackenzie’s limb difference leading to a chaotic birth experience to navigating the challenges and joys of the first five years, Kari offers raw and honest insights. Join us as we explore the emotional rollercoaster, the lessons learned, and the unwavering love that has shaped their family's story.Thanks for tuning into the Parenting Children with Limb Differences Podcast. Follow us, leave a review, and share this episode with your friends and family. Connect with Ali & Kari:Website: pcwldpodcast.comFacebook: Parenting Children With Limb DifferencesInstagram: PCWLD PodcastEmail: [email protected]

In this episode, we learn about Ali's personal journey before and after Tyler's arrival. Together, we explore the complexities of Ali's experiences; from fertility issues, to the excitement of pregnancy with Tyler, to the shocking news about Tyler's limb difference, and beyond. Ali offers a deep level of openness and compassion as she shares her thoughts and life with Tyler over the past few years. Join us, as we discuss the challenges and triumphs that have led to Ali's family's beautiful and unique life with Tyler.Thanks for tuning into the Parenting Children with Limb Differences Podcast. Follow us, leave a review, and share this episode with your friends and family. Connect with Ali & Kari:Website: pcwldpodcast.comFacebook: Parenting Children With Limb DifferencesInstagram: PCWLD PodcastEmail: [email protected]

This episode briefly explains our "why" for this podcast. Our primary reason for the Parenting Children with Limb Differences (PCWLD) podcast is to CONNECT with parents - especially moms - who have children with a limb difference. We hope that you can find some comfort, validation, empathy and community here. We want you to know - YOU ARE NOT ALONE!Thanks for tuning into the Parenting Children with Limb Differences Podcast. Follow us, leave a review, and share this episode with your friends and family. Connect with Ali & Kari:Website: pcwldpodcast.comFacebook: Parenting Children With Limb DifferencesInstagram: PCWLD PodcastEmail: [email protected]