PODCAST · health
The Waiting Room Revolution
by Hsien Seow and Samantha Winemaker
This podcast can help anyone dealing with serious illness. Over the years, we have cared for and interviewed thousands of patients and families who tell us they felt overwhelmed and ‘in the dark’ during their illness journey. Yet we sometimes heard stories where individuals felt prepared, in control and ‘in the know.’ What was the difference between these experiences? The answer is the 7 keys. Join your hosts Dr. Samantha Winemaker, palliative care doctor, and Dr. Hsien Seow, health care researcher, as they share real-life stories to explain the 7 keys to being hopeful and prepared when facing serious illness.For more information visit: waitingroomrevolution.comOur theme song is Maypole by Ketsa.
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S12: Episode 130: Pierre and Sherrie Marchand
In this episode Pierre and Sherrie Marchand share how a rare, terminal uveal melanoma upended their retirement and reshaped their lives. They reflect on vision loss, caregiving, family impact, and how The Waiting Room Revolution helped them find clarity, voice, and a way to balance hope with planning ahead. Visit our website to learn more about our work, check out the book and workbook, view our resources and to join our newsletter: https://www.waitingroomrevolution.com/ Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
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S12: Episode 129: Christine Aiken & Myrna Norman
In this episode, Hsien speaks with Canadian dementia advocates Christine Aiken and Myrna Norman, who share how they moved from isolation and fear after diagnosis to lives filled with purpose, community, and hope. They debunk common myths about dementia, describe simple but powerful person-centered practices families and communities can adopt right away, and show how support groups, creativity, and inclusion help people with dementia continue to live well and thrive. Visit our website to learn more about our work, check out the book and workbook, view our resources and to join our newsletter: https://www.waitingroomrevolution.com/ Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
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S12: Episode 128: Chetna Malhotra
In this Hsien talks with Dr. Chetna Malhotra, a leading palliative care and health services researcher in Singapore. They explore the gap between what people say they want at the end of life and the care they actually receive, especially in hospital-heavy systems. Together, they unpack how culture, family, and religion shape decisions, and why advanced care planning should focus less on fixed choices and more on preparing families for real-time decisions. Dr. Malhotra also shares how digital tools and caregiver support innovations like the Care Buddy app are helping patients and families navigate serious illness. To learn more about Chetnas work visit: https://www.duke-nus.edu.sg/directory/detail/chetna-malhotra Visit our website to learn more about our work, check out the book and workbook, view our resources and to join our newsletter: https://www.waitingroomrevolution.com/ Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
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S12: Episode 127: Sarah Sunnucks
In this episode, Hsien chats with Ontario Funeral Director Sarah Sunnucks about what really happens after someone dies and why funeral pre‑planning is one of the greatest gifts you can give your family. Sarah shares the hidden legal and administrative burdens families face, powerful stories of when planning was (and wasn’t) done, and emerging options like green burial. Visit our website to learn more about our work, check out the book and workbook, view our resources and to join our newsletter: https://www.waitingroomrevolution.com/ Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
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S12: Episode 126: Andrea Warnick
In this episode, we chat with grief therapist and thanatologist Andrea Warnick. We discuss the importance of including children in conversations about serious illness and death. Andrea shares her experiences and strategies for helping children cope with loss and shares some free and low-barrier resources you can use. Resources to help children with grief: https://kidsgrief.ca/ https://youthgrief.ca/ https://www.virtualhospice.ca/en_US/Main+Site+Navigation/Home/Topics/Topics/Final+Days/Children+at+the+Bedside+of+a+Dying+Family+Member+or+Friend.aspx Visit Andreas website for more information: https://awcgrief.com/ Visit our website to learn more about our work, check out the book and workbook, view our resources and to join our newsletter: https://www.waitingroomrevolution.com/ Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
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S12: Episode 125: Donna Thomson
Donna Thomson, longtime caregiver, advocate, and author, returns to share a very different story: her own diagnosis of high‑grade bladder cancer. In this episode, she talks about the shock of shifting from caregiver to patient, how she advocated for herself to get answers, and the anxiety of living with a high risk of recurrence. Donna describes how the 7 Keys workbook became her “cognitive lifeboat,” helping her and her husband clarify their priorities, plan for aging, and navigate conversations about fear, privacy, and support. She also shares how her yoga community, her caregiving work, and projects like the Caregiving Essentials course and The Courage to Care book continue to sustain her through treatment and beyond. Visit Donnas website here: https://www.donnathomson.com/ Visit our website to learn more about our work, check out the book and workbook, view our resources and to join our newsletter: https://www.waitingroomrevolution.com/ Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
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S11: Episode 125: Renee Moor
In this episode, Renee Moor, psychotherapist, death doula, and founder of Journey Home Support, shares her personal journey through grief, the lessons learned from profound loss, and her mission to bring compassionate community support to end-of-life care. We discuss how embracing death and mourning can offer meaning, connection, and empowerment for individuals and families. To learn more about Renee's work visit: https://www.journeyhomesupport.com/ Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0 Visit our website to learn more about our work, check out the book and workbook, view our resources and to join our newsletter: https://www.waitingroomrevolution.com/
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S11: Episode 124: Lucy Hone
This episode features our conversation with resilience expert Dr. Lucy Hone. We discuss grief, living with loss, and practical tools for navigating tough times. Lucy shares personal stories and research-backed insights offering hope and empowering advice for anyone facing adversity. Learn more about Lucys work here: https://www.drlucyhone.com/ Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0 Visit our website to learn more about our work, check out the book and workbook, view our resources and to join our newsletter: https://www.waitingroomrevolution.com/
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S11: Episode 123: Ashwin Kaniah
This episode features our conversation with Dr. Ashwin Kaniah, an Australian general practitioner and palliative care consultant. Ashwin shares his journey from family medicine to palliative care, highlighting the importance of early, holistic, and individualized approaches for patients and families. We discuss the challenges and opportunities in making healthcare more inclusive, especially for LGBTQI+ communities, and discuss Ashwins award-winning research . Learn more about his work here: https://www.australianageingagenda.com.au/education-training/providing-inclusive-palliative-care/ Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0 Visit our website to learn more about our work, check out the book and workbook, view our resources and to join our newsletter: https://www.waitingroomrevolution.com/
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S11: Episode 122: Emma Clare
This episode features our conversation with Dr. Emma Clare, end-of-life doula and CEO of End of Life Doula UK. Emma shares her journey, the evolving role of doulas, and the importance of compassion, communication, and community in end-of-life care. We explore how empowering patients and families, breaking down taboos around death, and building a more supportive culture can change life’s final chapter. Learn more about Emma's work and End of Life Doulas UK: https://eol-doula.uk Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0 Visit our website to learn more about our work, check out the book and workbook, view our resources and to join our newsletter: https://www.waitingroomrevolution.com/
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S11: Episode 121: Stephanie Muskat
This episode we welcome Stephanie Muskat, a registered Social Worker, therapist, and founder of Compassion in Caregiving. Stephanie shares her moving journey caring for her mother and grandmother. We discuss the emotional and logistical challenges families face, the importance of advocacy, and how her personal experience inspired her to support other caregivers. Find more of Stephanie's work here: https://compassionincaregiving.com/ Visit our website to learn more about our work, check out the book and workbook, view our resources and to join our newsletter: https://www.waitingroomrevolution.com/ Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
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S11: Episode 120: Heike Fabig and Richard Boele
In this heartfelt episode, Heike and Richard share their family’s journey through the end-of-life care of their two sons. Through stories of loss, advocacy, and resilience, they reveal hard-won lessons about love, hope, and what truly matters in life and healthcare. Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0 Visit our website to learn more about our work, check out the book and workbook, view our resources and to join our newsletter: https://www.waitingroomrevolution.com/
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S11: Episode 119: Dr. Tammy Pegg & Jane Goodwin
This episode features Dr. Tammy Pegg, a cardiologist, and Jane Goodwin, National Program Manager for advanced care planning in New Zealand. We discuss the evolution of CPR understanding, the importance of advanced care planning, and the challenges of aligning medical care with patient values. The episode delves into New Zealand’s national efforts to promote shared goals of care, empower patients and families, and support clinicians in having compassionate, person-centered discussions. Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0 Visit our website to learn more about our work, check out the book and workbook, view our resources and to join our newsletter: https://www.waitingroomrevolution.com/
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S11: Episode 118: Stéphane Alexis, Terrance Ho & Rosie Paulyk
This episode features our conversation with young caregivers Rosie Paulyk, Terrance Ho, and Stéphane Alexis. They share personal stories about caring for loved ones at a young age, how caregiving shaped their identities, careers, and relationships, and share their advice for supporting youth in similar roles. We also chat about the power of community, resilience, and the importance of recognizing young caregivers everywhere. Learn more about their work here: Terrance's website: https://terrence-ho-i3c7da.mailerpage.io/family Rosie's website: https://chronicoasis.com/our-mission Stéphane's website: https://www.stephanealexis.com/ Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0 Visit our website to learn more about our work, check out the book and workbook, view our resources and to join our newsletter: https://www.waitingroomrevolution.com/
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S11: Episode 117: Bec Lyons
This episode features our conversation with Funeral Director and End-of-Life Doula Bec Lyons, from Tasmania, Australia. We chat about her unique approach to death care, emphasizing home funeral service and natural burial methods. We also chat death literacy and reimagining funerals to be more personal and community focused. Learn more about Becs work HERE. Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0 Visit our website to learn more about our work, check out the book and workbook, view our resources and to join our newsletter: https://www.waitingroomrevolution.com/
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S11: Episode 116: James Norris
In this episode, we welcome James Norris, founder of the Digital Legacy Association and pioneer in end-of-life technology, to explore the vital topic of digital legacy. James shares the personal story that inspired his mission, explains why planning for our digital lives is more important than ever, and offers practical advice for safeguarding memories, messages, and digital assets. To learn more about James' work visit: https://www.jamesnorris.me Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0 Visit our website to learn more about our work, check out the book and workbook, view our resources and to join our newsletter: https://www.waitingroomrevolution.com/
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S11: Episode 115: Shameem Kizar & Kerry Adams
In this episode, we chat with Shameem and Kerry, a dynamic Dietitian and Speech-Language Pathologist duo who have spent nearly two decades working together in a multidisciplinary ALS clinic. In this episode, they share how humor, empathy, and proactive planning shape their approach to patient care. We also explore common misconceptions about their professions and how the “hope for the best, plan for the rest” philosophy guides their work. Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0 Visit our website to learn more about our work, check out the book and workbook, view our resources and to join our newsletter: https://www.waitingroomrevolution.com/
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S11: Episode 114: Hospice Nurse Penny
This episode features our conversation with influencer and author Hospice Nurse Penny aka Penny Smith. We chat about how she uses her platforms to advocate for normalizing death and addressing death anxiety. Learn more about her work here: https://www.hospicenursepenny.com/ Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0 Visit our website to learn more about our work, check out the book and workbook, view our resources and to join our newsletter: https://www.waitingroomrevolution.com/
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S10: Episode 113: The Future of the Revolution
In the final episode of Season 10, we reflect on the journey and the success of the Waiting Room Revolution. We discuss the global resonance, the importance of self-advocacy, and the creation of our community. We also introduce the Applying the 7 Keys Workbook designed to help individuals navigate the healthcare system. We also introduce the "Workshop in a Box" for community educators to facilitate workshops and spread the message, aiming to empower patients and families worldwide. Our Workbook: Applying the 7 Keys for Navigating a Life-Changing Diagnosis is available at select retailers now! Visit our website for more information: https://www.waitingroomrevolution.com/ For more details about our Workshop In a Box visit our website or sign up for our newsletter: https://www.waitingroomrevolution.com/joinus Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
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S10: Episode 112: Invite Yourself
In this episode we explore the final key, “Invite Yourself,” which encourages patients and families to become respectfully assertive in their healthcare journey. Rather than waiting to be asked, individuals are empowered to speak up, ask questions, and take an active role in their care. We discuss how this mindset shift can lead to better communication, improved understanding, and more meaningful experiences, especially for those who feel marginalized or overwhelmed. Through real stories and practical tips, we emphasize that inviting yourself isn’t about being demanding; it’s about recognizing your right to be heard and informed. Our Workbook: Applying the 7 Keys for Navigating a Life-Changing Diagnosis is available at select retailers now! Visit our website for more information: https://www.waitingroomrevolution.com/ Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
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S10: Episode 111: Connect the Dots
In this episode we talk about the key "Connect the Dots" - a crucial strategy for patients and families navigating complex healthcare systems. We explore how being the "illness manager" can transform healthcare experiences, the importance of having someone who can coordinate care, track medical information, and serve as the "glue" between different healthcare providers. Our Workbook: Applying the 7 Keys for Navigating a Life-Changing Diagnosis is available at select retailers now! Visit our website for more information: https://www.waitingroomrevolution.com/ Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
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S10: Episode 110: Anticipate Ripple Effects
In this episode, we dive deep into the fifth key: Anticipate Ripple Effects. We discuss how serious illness impacts not just patients, but their entire support network. We share personal stories and insights about building strong support systems, caring for caregivers, and understanding the emotional journey of those surrounding a patient. We also give some tips to providers. Our Workbook: Applying the 7 Keys for Navigating a Life-Changing Diagnosis is available at select retailers now! Visit our website for more information: https://www.waitingroomrevolution.com/ Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
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S10: Episode 109: Customize Your Order
In this episode we discuss the fourth key: Customize Your Order. We chat about how you can transform your illness experience from a one-size-fits-all approach to a personalized journey that truly reflects your values, preferences and unique self. We also talk about communicating what matters most to you, and why being treated as an individual-not just a diagnosis- is crucial to maintaining you sense of identity and dignity. Our Workbook: Applying the 7 Keys for Navigating a Life-Changing Diagnosis is available at select retailers now! Visit our website for more information: https://www.waitingroomrevolution.com/ Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
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S10: Episode 108: Know Your Style
In this episode of the Waiting Room Revolution, we explore the powerful third key: "Know Your Style." We discuss how understanding your unique personality can transform your healthcare experience, how learning practical strategies for navigating illness can reduce family conflict, and how knowing your style gives insight on approaching challenges. We also chat about how important this can be for Health Care Providers and provide some strategies on how to ask these questions. Our Workbook: Applying the 7 Keys for Navigating a Life-Changing Diagnosis is available at select retailers now! Visit our website for more information: https://www.waitingroomrevolution.com/ Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
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S10: Episode 107: Zoom Out
In this episode we discuss the second key: Zoom Out. We discuss how information is a superpower, ways to get it, how to use it and how it can maintain hope all throughout an illness journey. We also discuss how everyone - patients, families, and healthcare providers - has a role in creating a more transparent, supportive healthcare experience. Our Workbook: Applying the 7 Keys for Navigating a Life-Changing Diagnosis is available at select retailers now! Visit our website for more information: https://www.waitingroomrevolution.com/ Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
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S10: Episode 106: Walk Two Roads
In this episode, we discuss the first of seven keys to navigating serious illness: Walk Two Roads. We chat about breaking through toxic positivity, communicating openly about illness, reducing uncertainty and maintaining personal agency during challenging times. We share stories and experiences that people have shared with us about why constant positivity can be harmful, how patients can find strength in embracing both hope and preparation and much more! Our Workbook: Applying the 7 Keys for Navigating a Life-Changing Diagnosis is available at select retailers now! Visit our website for more information: https://www.waitingroomrevolution.com/ Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
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S10: Episode 105: When Time is Running Out
This episode we are talking about When Time is Running Out. We chat about demystifying dying, challenging healthcare norms, misconceptions about hospice and medical assistance in dying (MAID), how patients and families can reclaim power in their healthcare experience & much more. Our Workbook: Applying the 7 Keys for Navigating a Life-Changing Diagnosis is available at select retailers now! Visit our website for more information: https://www.waitingroomrevolution.com/ Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
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S10: Episode 104: Recap of the Waiting Room Revolution
Welcome to Season 10 of the Waiting Room Revolultion Podcast where we will be looking back (and forward!) to the start of it all: the Seven Keys! This episode we will be recapping the journey so far. Some topics we cover in this episode are: how the podcast has spread the movement around the globe, how our book Hope for the Best, Plan for the Rest has connected to so many communities, what we've learned and so much more! Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0 Visit our website to learn more about our work, check out the Map Project, or to see our resources. https://www.waitingroomrevolution.com/
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S9: Episode 103: Ruth Richardson
In this episode we chat with Ruth Richardson, a seasoned hospice palliative care nurse educator who has dedicated her career to empowering patients, families, and healthcare providers through her compassionate and holistic approach. She shares her strategies for breaking down misconceptions about palliative care, equipping patients to advocate for themselves, and creating community-based learning experiences that foster resilience and connection. We also discuss her work educating the public, supporting grieving communities, and inspiring the next generation of nurses! To learn more about Ruth's work visit: https://champlainpalliative.ca/about-us/ Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0 Visit our website to learn more about our work, check out the Map Project, or to see our resources. https://www.waitingroomrevolution.com/
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S9: Episode 102: Tilly Stevens
This episode features our conversation with Tilly Stevens, a health and well-being coach from New Zealand. We chat about her work with Coping with Loss and her training as an end-of-life doula. She tells us about the challenges in New Zealand's palliative care system, including funding and variability in services, her experiences with resilient grieving and the importance of acknowledging and accepting loss and the importance of community educators. To learn more about her work visit: www.itallmatters.co.nz Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0 Visit our website to learn more about our work, check out the Map Project, or to see our resources. https://www.waitingroomrevolution.com/
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S9: Episode 101: Catherine Cummings
This episode features our conversation with Catherine Cummings, CEO of the International Alliance of ALS and Motor Neuron Disease Associations. We chat all about ALS- the challenges of diagnosis, the economic impact on patients and caregivers and the variability in care quality globally. Catherine shares her personal experience as a caregiver. To learn more about the International Alliance visit their website here: https://www.als-mnd.org/ Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0 Visit our website to learn more about our work, check out the Map Project, or to see our resources. https://www.waitingroomrevolution.com/
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S9: Episode 100: Bill Harder, Theresa Radwell & Penney Gaul
This episode features our conversation with Bill Harder, Theresa Radwell and Penney Gaul from the Palliative Care Society of the Bow Valley in Alberta. We discuss the society's mission to provide quality-of-life support through holistic care, emphasizing community partnerships and volunteer-driven initiatives. They highlight innovative programs like the dementia care team, which pairs volunteers with families to support both the person with dementia and their caregiver. The society's work has gained significant community support, evidenced by high attendance at their public talks and positive feedback from clients. To learn more about their work: https://pcsbv.ca/ Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0 Visit our website to learn more about our work, check out the Map Project, or to see our resources. https://www.waitingroomrevolution.com/
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S9: Episode 99: Dr. Barbara (Bunni) Bresver, Dr. Roz Doctorow & Peter Macaulay
This episode features our conversation with Dr. Barbara (Bunni) Bresver, Dr. Roz Doctorow & Peter Macaulay from Dying with Dignity Canada- Toronto Chapter. We chat about the mission and work of Dying with Dignity Canada, which focuses on protecting end-of-life rights, advocacy, support, and education for Canadians. We also chat about how the generational shift in provider-patient dynamics and the emotional impact education can have. To learn more about Dying with Dignity Canada visit: https://www.dyingwithdignity.ca/ Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0 Visit our website to learn more about our work, check out the Map Project, or to see our resources. https://www.waitingroomrevolution.com/
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S9: Episode 98: Laura Cleminson
This episode features our conversation with Laura Cleminson, a community organizer and founder of the Pre Dead Social Club. We discuss her journey from working in a medical device company to becoming a death doula, and the importance of preparing for death through community engagement and education by hosting events to foster open discussions. To learn more about her work visit: https://www.predeadsocialclub.com/ Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0 Visit our website to learn more about our work, check out the Map Project, or to see our resources. https://www.waitingroomrevolution.com/
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S9: Episode 97: Dr. Zach White
This episode features our conversation with Dr. Zachary White, Professor of Communication in the Department of Communication Studies at Furman University in South Carolina. We discuss his journey into caregiving research and advocacy, challenges and insights into caregiving communication and how healthcare providers can navigate uncertainty to be present with patients and families. To learn more about his work visit: https://www.mastersincommunications.com/school-interviews/dr-zachary-white-queens-university-of-charlotte Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0 Visit our website to learn more about our work, check out the Map Project, or to see our resources. https://www.waitingroomrevolution.com/
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S9: Episode 96: Sheli O'Connor
This episode features our conversation with Sheli O'Connor, Director of Community Engagement and Partnership at Hospice Waterloo Region. We discuss her passion for community development, the importance of continuous community engagement in healthcare and in advance care planning to empower individuals in healthcare decisions, and innovative community engagement strategies. To learn more about her work visit: https://advancecareplanning.hospicewaterloo.ca/ Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0 Visit our website to learn more about our work, check out the Map Project, or to see our resources. https://www.waitingroomrevolution.com/
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S9: Episode 95: Clare Fuller & Dani Ayre
This episode features our conversation with Clare Fuller & Dani Ayre, Advance Care Planning Experts and advocates from the UK. We discuss how they organized a conference for Advance Care Planning in the UK earlier this year, public awareness and empowerment. Learn more about Clare's work on her website: https://speakforme.co.uk/ Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0 Visit our website to learn more about our work, check out the Map Project, or to see our resources. https://www.waitingroomrevolution.com/
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S9: Episode 94: Dr. Karen Wyatt
This episode features our conversation with Dr. Karen Wyatt, Medical Director, Author and Founder of End-Of-Life University. We chat about Karen's clinical practice and personal tragedy, her transition into hospice care and reflections on healing, writing and community building. Learn more about the EOL University here: https://www.eoluniversity.com/ Visit our website to learn more about our work, check out the Map Project, or to see our resources. www.waitingroomrevolution.com Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
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S8: Episode 93: Dr. Julian Abel
This episode we chat with Dr. Julien Abel, retired palliative care physician, Director of Compassionate Communities UK, author and podcaster. In this episode we talk about what compassionate communities are, what a public health palliative approach looks like and what community support of serious illness should look like. To learn more about Compassionate Communities UK visit: https://compassionate-communitiesuk.com/ For more information visit: www.waitingroomrevolution.com Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
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S8: Episode 92: Dr. Diah Martina
This episode we chat with Dr. Diah Martina, an internal medicine doctor in Indonesia. Diah also has per PhD focusing on culturally sensitive advance care planning in Asia. In this episode we talk about what culturally sensitive palliative care looks like in Indonesia, what her research has shown about adapting conversations about dying and planning in different cultures and religion, and the relevance of the WRR for the Indonesian and Asian communities. For more information visit: www.waitingroomrevolution.com Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
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S8: Episode 91: Dipti Purbhoo
This episode features Dipti Purbhoo, Executive Director of the Dorothy Ley Hospice, one of Ontarios oldest Hospices. We chat about the synergy between hospice services and the Waiting Room Revolution, innovative ways hospices partner with community agencies and how Dororthy Ley Hospice is working to be truly integrated upstream in an illness journey. To learn more about Dorothy Lea Hospice visit: https://dlhospice.org/ Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0 For more information visit: www.waitingroomrevolution.com
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S8: Episode 90: Lisa Levin
This episode features our conversation wtih Lisa Levin, CEO of Advantage Ontario. We chat about how Advantage advocates for seniors quality of life, housing policy that promotes aging in place and what other countries are doing to innovate aging. Learn more about Advantage Ontario here: https://www.advantageontario.ca/ For more information visit: www.waitingroomrevolution.com Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
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S8: Episode 89: Amy Coupal
Happy Caregivers Month! This episode features our conversation with Amy Coupal, the CEO of the Ontario Caregiver Organization. We chat about the services and resources OCO offers, Amy's own caregiving experience and the essential role caregivers have within the healthcare system. Learn more about the Ontario Caregiver Organization here: https://ontariocaregiver.ca Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0 For more information visit: www.waitingroomrevolution.com
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S8: Episode 88: Kelly Clark & Eliza Munro
This episode features our conversation with Eliza Munro and Kelly Clark, who are palliative care educators and consultants on IPEPA. IPEPA stands for Indigenous Program of Experience in the Palliative Approach, which is a grass roots approach to breaking down barriers to palliative care for Aboriginal and Torres Strait Islander peoples across Australia. We chat about the important work they are doing with IPEPA, the barriers Indigenous people face accessing palliative care and what they are hopeful for in the future. To learn more visit: https://pepaeducation.com/about-ipepa/ For more information visit: www.waitingroomrevolution.com Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
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S8: Episode 87: Daniel Nowoselski
This episode features our conversation with Daniel Nowoselski, Advocacy Manager for Hospice Palliative Care at the Canadian Cancer Society. We discuss being a lobbyist for the palliative care community, policy issues and challenges in the health care system that the Canadian Cancer Society are trying to address, where his passion for palliative care stems from, MAID and what brings Daniel hope for the future. To learn more: https://cancer.ca/en/living-with-cancer/advanced-cancer Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0 For more information visit: www.waitingroomrevolution.com
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S8: Episode 86: Dr. Kerrie Noonan
This episode features our conversation with Dr. Kerrie Noonan, clinician psychologist, social researcher, founder and innovator. We talk about death and grief literacy in Australia and around the world, what it is and why it is important and how it really is a community endeavor. Learn more about Kerries work here: https://www.deathliteracy.institute/ Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0 For more information visit: www.waitingroomrevolution.com
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S8: Episode 85: Dr. Red Hoffman
This episode features Dr. Red Hoffman, a trauma surgeon who is board certified in hospice and palliative medicine from Asheville, North Carolina. We talk about her upcoming TEDTalk, her life experiences and how she got to where she is now and experiencing emotions as a surgeon alongside caring for your patients. Learn more about Reds work here: https://redhoffmanmd.com/ For more information visit: www.waitingroomrevolution.com Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
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94
S8: Episode 84: Hon. Lisa Raitt
This episode features the Hon. Lisa Raitt, former Cabinet Minister and Member of Parliament from 2008 to 2019 and caregiver to her husband Bruce. Bruce was diagnosed with young onset Alzheimer's disease during the pandemic. We talk about their experience with diagnosis, how the seven keys can be used for caregivers and what policies can help caregivers along an illness journey. For more information visit: www.waitingroomrevolution.com Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
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93
S7: Episode 83: Dr. Kimberly Acquaviva
This episode features our conversation with Dr. Kimberly Acquaviva, a professor at the University of Virginias School of Nursing. Kimberly is the author of The Handbook of LGBTQIA-Inclusive Hospice & Palliative Care. We discuss her very personal story of losing her wife Kathy to ovarian cancer and how that shaped her advocacy and how we can provide person centred, inclusive care. Learn more about Kims work and check out her books at: https://www.kimberly-acquaviva.com/ For more information visit: www.waitingroomrevolution.com Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
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92
S7: Episode 82: Laura Watts
In this episode, we chat with Laura Watts: Founder and CEO of CanAge, author, laywer and advocate. She is also an Assistant Professor at University of Toronto where she teaches Law and Aging. In this episode, we discuss CanAge, advocacy in senior patients and families at the policy and individual level, motivation behind her book and aging well around the world. For more information about Laura's work visit: www.canage.ca/ For more information visit: www.waitingroomrevolution.com Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0
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ABOUT THIS SHOW
This podcast can help anyone dealing with serious illness. Over the years, we have cared for and interviewed thousands of patients and families who tell us they felt overwhelmed and ‘in the dark’ during their illness journey. Yet we sometimes heard stories where individuals felt prepared, in control and ‘in the know.’ What was the difference between these experiences? The answer is the 7 keys. Join your hosts Dr. Samantha Winemaker, palliative care doctor, and Dr. Hsien Seow, health care researcher, as they share real-life stories to explain the 7 keys to being hopeful and prepared when facing serious illness.For more information visit: waitingroomrevolution.comOur theme song is Maypole by Ketsa.
HOSTED BY
Hsien Seow and Samantha Winemaker
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