Voices of Inclusive Research

In this episode of Voices of Inclusive Research, Dr. Ren speaks with Mary McGowan, President and CEO of the Foundation for Sarcoidosis Research, about the importance of awareness, policy change, and patient-centered solutions in advancing health equity.Mary shares insights on sarcoidosis, a complex and often misunderstood inflammatory disease that disproportionately impacts communities of color, especially Black women. As they dive deep into conversation, they explore the importance of initiatives like Champions for Change, which encourage organizations to provide paid time off for clinical trial participation, and emphasize the need for collaboration across community groups, researchers, and industry leaders.This episode is a reminder that meaningful change happens when we listen to communities, take action on what we hear, and keep patients at the center of every decision.Must-Hear Insights and Key MomentsRaising Awareness: Understanding sarcoidosis and why awareness is critical, especially in underserved communitiesBeyond Trust: Recognizing that lack of awareness and not being asked are major barriers to clinical trial participationPolicy in Action: How community feedback led to FMLA protections for clinical trial participantsBreaking Barriers: Addressing real-life challenges like job security, finances, and accessPower of Patient Voice: How listening to communities can drive nationwide changeCollaboration Matters: Why partnerships between organizations, communities, and industry are essentialSustainable Change: The importance of ongoing education, advocacy, and awarenessAbout MaryMary McGowan is the President and CEO of the Foundation for Sarcoidosis Research, the leading international organization dedicated to improving the lives of those living with sarcoidosis. She leads efforts to improve clinical trial access, advance shared decision-making, and accelerate drug development.Through initiatives like the Ignore No More Campaign, the Coalition to Advance Clinical Trial Engagement, and the FSR Global Sarcoidosis Clinic Alliance, Ms. McGowan is recognized for her strategic and collaborative leadership in advancing impactful, scalable solutions for rare disease patients.Follow Mary  McGowan:LinkedInFollow Dr. Ren:WebsiteInstagramLinkedInWe Want to Hear Your Voice!Your insights on how inclusive research impacts your life and community are invaluable. Share your experiences and thoughts on how we can bridge the gap between research and real-world needs. Your stories drive our mission and inspire the future of inclusive research!

Access to healthcare, awareness, and trust in medical research remain ongoing challenges for many underserved communities.In this episode of Voices of Inclusive Research, Dr. Renarda speaks with Nicholas Jackson, founder of iHealth Network, about how culturally tailored media can bridge communication gaps and improve clinical research participation.Nick shares how the loss of his mother and grandmother shaped his mission to advance health equity, emphasizing the importance of early detection, education, and access to resources. The conversation also highlights a critical shift in perspective: the gap is not only about trust but also about awareness and access. Together, they discuss how researchers and sponsors must engage communities with intention, show up consistently, and build relationships that go beyond short term projects.Must-Hear Insights and Key MomentsPersonal Inspiration: How Nicholas Jackson’s personal loss fueled his mission to improve health outcomes and close life expectancy gapsAwareness vs Trust: Understanding that lack of awareness and access can be just as significant as trust in limiting clinical trial participationTailored Media Matters: Why culturally relevant messaging and representation are essential for building connection and engagementCommunity Engagement: The importance of showing up consistently and building relationships before making an askRethinking Outreach: Moving beyond one size fits all strategies to intentional, community centered communicationSustainable Impact: Why ongoing presence, even beyond funded projects, is key to maintaining trustFollow Dr. Ren:WebsiteInstagramLinkedInWe Want to Hear Your Voice!Your insights on how inclusive research impacts your life and community are invaluable. Share your experiences and thoughts on how we can bridge the gap between research and real-world needs. Your stories drive our mission and inspire the future of inclusive research!

Research isn’t just happening in labs. It’s happening in your everyday life.In this solo episode of Voices of Inclusive Research, I break down how research quietly shapes the products we use, the health choices we make, and the options available to our communities every day.From health and beauty to food, fitness, and mental health, research has evolved to better reflect real people and real needs, especially in Black and Brown communities that have historically been excluded from these conversations.This episode is about recognizing research as a tool, understanding how it already supports us, and staying curious enough to ask better questions.If you’ve ever felt intimidated by research or unsure how it applies to your life, this episode will shift the way you see it.Must-Hear Insights and Key MomentsResearch Beyond the Lab: From skincare and haircare to fitness tools and nutrition guidance.Representation Is Progress: More inclusive research has led to better options for textured hair, melanin-rich skin, and diverse bodies.Knowledge Creates Choice: Research gives us language to ask better questions and make informed decisions about our health.Mental Health Matters: Open conversations, tools, and resources around mental health are the result of research meeting real-life needs.Curiosity Over Perfection: Staying curious leads to better questions, better choices, and healthier communities.Follow Dr. Ren:WebsiteInstagramLinkedInWe Want to Hear Your Voice!Your insights on how inclusive research impacts your life and community are invaluable. Share your experiences and thoughts on how we can bridge the gap between research and real-world needs. Your stories drive our mission and inspire the future of inclusive research!

History shapes the present and the future of research in Black communities.In this episode of Voices of Inclusive Research, host Dr. Ren speaks with Dr. Crystal Glover, applied social psychologist and associate professor at UC Irvine, about conducting research with dignity, relevance, and respect for historically underserved communities.Dr. Glover discusses the resilience of Black communities, the importance of mentorship, and how inclusive research empowers communities, increases participation in clinical studies, and strengthens networks of Black scientists and healthcare providers.This episode encourages listeners to stay curious, uplift the next generation, and ensure research reflects the full richness of lived experiences.Must-Hear Insights and Key MomentsReflecting on History: Understanding past injustices and their impact on trust in researchResilience and Thriving: Celebrating the strength and diversity of Black communitiesMentorship Matters: The role of mentorship in shaping future scientists and healthcare providersResearch With Dignity: Designing studies that honor community experiences and ensure cultural relevanceFuture Vision: Inspiring more Black scientists, healthcare providers, and participants to engage and create solutions through scienceAbout Dr. Glover:Dr. Crystal M. Glover is an applied social psychologist, mixed methodologist, and Associate Professor with tenure in the Department of Neurology at the University of California, Irvine (UCI) School of Medicine.She has designed and built a program of research focused on addressing challenges related to brain health and facilitating optimal outcomes in aging for all. She also serves as the inaugural Editor-in-Chief of Alzheimer’s & Dementia: Behavior & Socioeconomics of Aging (BSEA), the newest member in the Alzheimer’s Association family of scientific journals, and a board member of the Orange County Chapter of the Alzheimer's Association.Follow Dr. Crystal Glover:FacebookInstagramLinkedInFollow Dr. Ren:WebsiteInstagramLinkedInWe Want to Hear Your Voice!Your insights on how inclusive research impacts your life and community are invaluable. Share your experiences and thoughts on how we can bridge the gap between research and real-world needs. Your stories drive our mission and inspire the future of inclusive research!

Trust and equity in research begin with acknowledging the lived experiences of communities.In this solo episode of Voices of Inclusive Research, I speak honestly about fear, unrest, and lived experience and how they shape health equity and clinical research participation. I reflect on the current realities impacting Black and Brown communities and why research cannot be separated from what people are living through in real time.I share why trust is built in moments like these, why silence is not neutral, and why ethical research must always center humanity. This episode is an invitation to reflect on responsibility, hope, and how we can move research forward in ways that are inclusive, equitable, and deeply human.Tune in to hear why centering humanity is essential to health equity and ethical research.Must-Hear Insights and Key MomentsFear as a Barrier: Fear in communities is a real social determinant of health that directly impacts healthcare access, research participation, and trust in systems.Trust Cannot Be Conditional: Trust is built when communities are seen, heard, and treated with dignity, and it is broken when efficiency or control outweighs humanity.Responsibility in Research: Silence or inaction during moments of community unrest communicates priorities; ethical leadership requires acknowledging and responding to these realities.Centering Humanity: Health equity cannot exist in a climate of fear. Research and healthcare must prioritize the safety, dignity, and well-being of the people they serve.Hope Through Action: Real change begins with individuals and communities acting intentionally, not just relying on policy or institutional shifts.Follow Dr. Ren:WebsiteInstagramLinkedInWe Want to Hear Your Voice!Your insights on how inclusive research impacts your life and community are invaluable. Share your experiences and thoughts on how we can bridge the gap between research and real-world needs. Your stories drive our mission and inspire the future of inclusive research!

Health equity starts with inclusive research.In this episode of Voices of Inclusive Research, Dr. Ren speaks with Dr. Camille Campbell, Biogen’s Lead for Health Equity and Clinical Innovation, about the critical work of making clinical research inclusive and representative. Dr. Campbell shares her experiences bridging the gap between pharmaceutical research and historically marginalized communities, emphasizing the importance of meeting people where they are and building trust.She also dives into practical strategies for increasing diversity in clinical trials, including leveraging technology and engaging community sites.Tune in for a compelling conversation on inclusion, trust, and the long-term work required to advance health equity in clinical research.Must-Hear Insights and Key MomentsAssumptions vs. Reality: Simply having a trial site in a city does not guarantee participation from the target population; community satellite sites and protocol flexibility are key.Technology with Intention: Digital tools can expand reach, but strategies must consider generational and cultural differences in technology use.Representation Builds Trust: Seeing people with shared backgrounds in research and pharma strengthens community engagement and participation.Patient Empowerment: Communities should feel confident asking questions, seeking expert guidance, and making informed healthcare decisions.Persistence is Key: Change in health equity and clinical research is incremental, requiring ongoing effort and resilience.About Dr. CampbellCamille Campbell, PharmD, RPh is a healthcare leader with 18+ years’ experience in biopharma, health-tech, community engagement, and clinical care. She is Lead for Health Equity & Clinical Innovation at Biogen, previously serving as Senior Director of Health Equity at Acclinate and holding Medical Affairs roles at AstraZeneca and Abbvie.Dr. Campbell champions workforce representation and inclusive research, creating programs for HBCU students and sharing expertise through presentations, publications, and podcasts. She earned her PharmD from Florida A&M University, completed a Post-Doctoral Medical Strategy Fellowship with Bristol-Myers Squibb/Rutgers, and holds a graduate certificate in Health Disparities Research from the University of Illinois Chicago. She is Principal Owner of Bella Peek Consulting, LLC.Follow Dr. Camille Campbell:LinkedInFollow Dr. Ren:WebsiteInstagramLinkedInWe Want to Hear Your Voice!Your insights on how inclusive research impacts your life and community are invaluable. Share your experiences and thoughts on how we can bridge the gap between research and real-world needs. Your stories drive our mission and inspire the future of inclusive research!

In this inspiring episode of Voices of Inclusive Research, Dr. Ren Jones is joined by Zachariah Martinez, the first young guest to ever appear on the podcast. Zachariah shares his personal experience participating in pediatric clinical studies and explains how getting involved not only benefited science but also improved his mood, routines, and overall well-being.Dr. Ren and Zachariah discuss what it’s really like for kids inside clinical studies: the procedures, the compensation, the support from research staff, and the importance of feeling safe and heard. They highlight why pediatric participation is essential for advancing science and ensuring treatments are safe and effective for younger populations.Zachariah also speaks directly to other kids who may be curious about research, offering encouragement, honesty about the process, and advice for researchers on how to better support young participants from all backgrounds.🎧 Tune in for a rare conversation that elevates youth voices in research and reminds us why representation, from childhood onward, matters for the future of science.Must-Hear Insights and Key MomentsWhy Pediatric Research Matters: Children help answer critical scientific questions that can’t be solved through adult studies alone.Real Benefits of Participation: From compensation to personal growth, Zach shares how being in a study improved his routine and happiness.Safety & Comfort: The importance of kind, attentive research staff—especially when procedures involve needles or overnight stays.Representation from a Young Voice: Zach highlights why kids need to feel respected, listened to, and supported throughout the research process.Advice for Future Studies: Simple, powerful suggestions from a participant’s perspective on improving pediatric research experiences.About Zachariah Zachariah Martinez is a 13-year-old from Southern California who loves science, health, and helping others. At just 11 years old, he participated in the NIH-funded MoTrPAC study at UC Irvine.Follow Dr. Ren:WebsiteInstagramLinkedInWe Want to Hear Your Voice!Your insights on how inclusive research impacts your life and community are invaluable. Share your experiences and thoughts on how we can bridge the gap between research and real-world needs. Your stories drive our mission and inspire the future of inclusive research!

In this episode of Voices of Inclusive Research, Dr. Renarda Jones speaks with Tony Wafford, founder of I Choose Life Health Foundation, about the importance of culturally grounded approaches to health education and research.Tony shares how his work blends social entrepreneurship and social justice. He uses creative strategies such as leveraging entertainment to increase HIV testing and research participation in Black communities as he emphasizes the need for Black voices and leadership in public health spaces, explaining that those who understand the culture are best positioned to guide solutions.They dive deep into challenges navigating systems dominated by those outside of Black communities. He stresses the importance of standing firm in cultural identity and explains why collaboration between community leaders and institutional partners is essential to creating meaningful impact.🎧 Tune in for an inspiring conversation on authenticity, cultural pride, and actionable strategies for advancing health equity.Must-Hear Insights and Key MomentsCommunity-Centered Research: Understanding local health needs is key to expanding study opportunities in diverse populations.Beyond Standard Care: Clinical trials as an option for physicians to offer patients, complementing traditional treatments.Challenging the Status Quo: Advocating for flexibility and customization in site strategies and SOPs.Cultural Competence in Teams: Building staff who can communicate effectively and connect with the community.Word of Mouth Matters: Positive participant experiences drive recruitment and trust.Scaling Impact: Leveraging initiatives like Latinos in Clinical Research and Save Our Sites to educate, diversify, and connect the industry.About TonyTony Wafford is the President and CEO of I Choose Life Health and Wellness Center (ICL), an organization dedicated to addressing health inequities in Black communities across the United States. With over 20 years of experience, Tony partners with community-based organizations to increase health literacy, expand access to healthcare services, and provide education and testing for HIV, STIs, and other health concerns.He has been instrumental in designing culturally competent public health campaigns, and for the past ten years, he has collaborated with the Centers for Disease Control and Prevention (CDC) on the Act Against AIDS Leadership Initiative. Tony has successfully launched over 30 I Choose Life chapters nationwide, all focused on promoting the health and wellness of Black communities.Through his work, Tony is passionate about empowering communities, advancing health equity, and creating programs that combine social entrepreneurship, cultural understanding, and practical action to improve public health outcomes.Follow Tony Wafford:LinkedInFollow Dr. Ren:WebsiteInstagramLinkedInWe Want to Hear Your Voice!Your insights on how inclusive research impacts your life and community are invaluable. Share your experiences and thoughts on how we can bridge the gap between research and real-world needs. Your stories drive our mission and inspire the future of inclusive research!

In this episode of Voices of Inclusive Research, Dr. Renarda Jones speaks with Judy Galindo, site owner and co-founder of Latinos in Clinical Research, about how her team is expanding clinical trial access in Imperial County and beyond.Judy shares how Sun Valley Research Center has grown from psych CNS studies to new areas like diabetes, hypertension, and obesity, driven by her community’s health needs. She highlights the value of collaboration, education, and culturally informed engagement.Judy also discusses initiatives like Latinos in Clinical Research and Save Our Sites, which promote diversity, workforce development, and inclusive participation.🎧 Tune in for an inspiring look at how community-centered leadership is transforming access to clinical research.Must-Hear Insights and Key MomentsCommunity-Centered Research: Understanding local health needs is key to expanding study opportunities in diverse populations.Beyond Standard Care: Clinical trials as an option for physicians to offer patients, complementing traditional treatments.Challenging the Status Quo: Advocating for flexibility and customization in site strategies and SOPs.Cultural Competence in Teams: Building staff who can communicate effectively and connect with the community.Word of Mouth Matters: Positive participant experiences drive recruitment and trust.Scaling Impact: Leveraging initiatives like Latinos in Clinical Research and Save Our Sites to educate, diversify, and connect the industry.About JudyJudy Galindo is a first-generation bilingual Latina and the Executive Director and Co-Owner of Sun Valley Research Center, Inc., a private clinical research site in Imperial County, California. With 20 years of experience serving a predominantly Latino and underserved population, she is dedicated to expanding access to clinical trials in rural and underrepresented communities.She holds a Master of Advanced Studies in Clinical Research from UC San Diego and a bachelor’s degree in biology with a background in psychology. Judy has been a certified clinical research coordinator through ACRP since 2008. She is also the co-founder of Latinos in Clinical Research, The Clinical Research Circle, and Save Our Sites (SOS), all focused on education, advocacy, and sustainability for clinical research sites in diverse and underserved areas.Follow Judy Galindo:WebsiteWebsiteInstagramFollow Dr. Ren:WebsiteInstagramLinkedInWe Want to Hear Your Voice!Your insights on how inclusive research impacts your life and community are invaluable. Share your experiences and thoughts on how we can bridge the gap between research and real-world needs. Your stories drive our mission and inspire the future of inclusive research!

In this episode of Voices of Inclusive Research, Dr. Ren sits down with Jennifer Hairston to explore the intersections of self-reflection, accountability, and resilience in leadership. Jennifer shares her journey of navigating career challenges, personal loss, and the drive to create inclusive and equitable spaces in the workplace.Listeners will hear how self-awareness and education provide a foundation for confidence and growth, even in difficult circumstances. Jennifer discusses the importance of support networks, mentorship, and community in navigating professional and personal challenges, and how connection and collaboration amplify impact.This episode is a heartfelt exploration of balancing purpose-driven work with personal wellbeing, finding joy amidst adversity, and using knowledge and lived experience as tools for lasting influence.🎧 Tune in for an inspiring conversation on leadership, accountability, resilience, and the power of community.Must-Hear Insights and Key MomentsAccountability as a Personal Practice – True accountability is for oneself, not for others, and it empowers growth and confidence.The Power of Education – Knowledge and continued learning are tools no one can take away, forming a foundation for influence and leadership.Self-Reflection in Action – Responding authentically, even under pressure, allows leaders to stay aligned with their values and mission.Finding Joy Amidst Challenges – Joy is cultivated through purpose, connection, and celebrating progress in the work that outlives oneself.Community and Collaboration – Building strong networks and supporting one another amplifies impact and reduces isolation in high-stakes environments.Legacy and Resilience – Personal loss and professional obstacles are reframed into motivation to continue purposeful work, building lasting change.About JenniferJennifer Hairston is a People & Culture leader with 10+ years of experience in people strategy, organizational culture, and execution. She holds a BS in Business with a specialization in Project Management and has partnered with CEOs and leaders to strengthen employee engagement, operational excellence, and lasting change.Follow Jennifer Hairston:LinkedInFollow Dr. Ren:WebsiteInstagramLinkedInWe Want to Hear Your Voice!Your insights on how inclusive research impacts your life and community are invaluable. Share your experiences and thoughts on how we can bridge the gap between research and real-world needs. Your stories drive our mission and inspire the future of inclusive research!

In this solo episode of Voices of Inclusive Research, I reflect on the meaning and mission behind Diverse Research Now, and why the distinction between diversity and diverse matters.Reading from the organization’s latest blog, I explore how our language shapes inclusion, accountability, and representation in clinical research. I remind listeners that “diversity” can be a checkbox without action, while diverse centers real people and lived experiences often excluded from medical research.This episode is a declaration and call to action: to ensure clinical research reflects America’s population and that inclusion is a present responsibility.🎧 Tune in for an inspiring reflection on identity, equity, and the real work of creating access and trust in clinical research.Must-Hear Insights and Key MomentsThe Power of Language – How shifting from “diversity” to “diverse” changes the focus from abstract ideals to real people.Beyond a Checkbox – Diversity can exist in name only, but diverse is active and people-centered.Representation in Research – When studies don’t include all populations, innovation and fairness are limited.Building Trust Through Inclusion – True engagement starts when communities are informed, seen, and valued.A Movement, Not a Motto – Diverse Research Now is more than a name — it’s a commitment to action, accountability, and representation.Follow Dr. Ren:WebsiteInstagramLinkedInWe Want to Hear Your Voice!Your insights on how inclusive research impacts your life and community are invaluable. Share your experiences and thoughts on how we can bridge the gap between research and real-world needs. Your stories drive our mission and inspire the future of inclusive research!

In this episode of Voices of Inclusive Research, Dr. Renarda Jones speaks with Dr. Jose Rubio, rheumatologist and clinical researcher at the University of Alabama at Birmingham, about the future of lupus research and the importance of diversity in trials.Dr. Rubio explains how lupus is not a single disease but a spectrum of immune system misfires, which makes personalized medicine essential. He shares how genetic markers, biologics, and targeted therapies are helping researchers move closer to matching the right patient with the right treatment from the beginning.He also highlights how patient voices, digital tools, and community trust are shaping research. The conversation makes it clear that diversity is not only about fairness but about making science stronger and more effective for everyone.🎧 Tune in for an insightful and hopeful conversation that connects science, community, and the urgent need for equity in lupus research and care.Must-Hear Insights and Key MomentsLupus Is a Spectrum – Lupus isn’t one disease but multiple immune misfires, requiring more precise and personalized treatment options.The Promise of Personalized Medicine – Genetic markers and immune signatures may soon allow doctors to match patients with the right therapies from the very start.Biologics and Beyond – New therapies offer more effective treatment with fewer side effects compared to older, broad immunosuppressants.Patients as Partners – Digital apps and symptom reporting tools allow patients to guide research and highlight what matters most in real life.Diversity Strengthens Science – Inclusive trials ensure new therapies reflect the real-world needs of patients across racial and ethnic backgrounds.Trust and Community – Representation within research teams and partnerships with advocacy groups are key to building trust with underrepresented communities.About Dr. RubioDr. Jose Rubio is a practicing rheumatologist based in Birmingham, Alabama, with affiliations at several hospitals, including the University of Alabama at Birmingham Hospital and USA Health University Hospital. He earned his medical degree from the Universidad de Guayaquil, School of Medicine, and has been practicing for 11 to 20 years. His areas of expertise include arthritis, rheumatoid arthritis, and other related conditions. Dr. Rubio accepts a range of insurance providers, including Medicare, Aetna, Cigna, Blue Cross, and United Healthcare.Follow Dr. Rubio:LinkedInFollow Dr. Ren:WebsiteInstagramLinkedInWe Want to Hear Your Voice!Your insights on how inclusive research impacts your life and community are invaluable. Share your experiences and thoughts on how we can bridge the gap between research and real-world needs. Your stories drive our mission and inspire the future of inclusive research!

In this compelling episode of Voices of Inclusive Research, Dr. Ren speaks with Dr. Eugene Manley Jr., lung cancer researcher, advocate, and educator, about the critical need for equity, representation, and advocacy in lung cancer care and research.Dr. Manley shares his personal experiences navigating the healthcare system, including the challenges he faced as a Black Medicaid patient during his post-surgical recovery. Dr. Manley underscores the importance of engaging patients at all stages of research, giving them agency over their samples, and ensuring fair compensation while maintaining ethical standards.Third Lung Cancer Intervention Summit (Chicago, October 24-25) – Free for patients, caregivers, and survivors. Info and registration here.Patient Resources & Infographics – Free educational resources for patients, caregivers, and survivors.Webinar Series on Lung Cancer – Learn more about research and clinical trial opportunities.Microscopes to Moonshots Podcast – Real stories in STEM and patient advocacy, airing soon🎧 Tune in for a deeply personal, eye-opening discussion about the intersection of research, patient advocacy, and systemic inequities in healthcare.Must-Hear Insights and Key MomentsSystemic Barriers in Care – Even educated patients can face bias, dismissive treatment, and unsafe discharge practices.Representation Matters – The majority of lung cancer research materials and clinical trials lack diversity, affecting treatment efficacy for underrepresented populations.Patient Advocacy Is Critical – Having a medical proxy, documenting care, and knowing how to report violations can prevent harm and empower patients.Community Engagement Works – Programs like mentorship initiatives and patient summits bridge gaps in education, support, and access.Empowerment Is Key – Patients and caregivers are encouraged to be active participants in care, research, and advocacy.About Dr. EugeneDr. Eugene Manley, Jr. is a scientist, health equity advocate, and public speaker dedicated to improving outcomes for underserved communities in cancer care. He is the Founder and CEO of the SCHEQ (STEMM & Cancer Health Equity) Foundation, advancing diversity in STEMM fields and supporting underserved patients navigating cancer.Dr. Manley combines scientific expertise and lived experience to foster trust, awareness, and empowerment while promoting structural change in healthcare and STEMM education.Follow Dr. Eugene Manley Jr.:WebsiteInstagramLinkedIn (SCHEQ)LinkedInYouTubeFollow Dr. Ren:WebsiteInstagramLinkedInWe Want to Hear Your Voice!Your insights on how inclusive research impacts your life and community are invaluable. Share your experiences and thoughts on how we can bridge the gap between research and real-world needs. Your stories drive our mission and inspire the future of inclusive research!

In this powerful episode of Voices of Inclusive Research, Dr. Renarda Jones sits down with survivor and advocate Chenyka “Nyka” Ramos to talk about her journey with Hodgkin’s Lymphoma, cold capping, and what it means to navigate treatment as a woman of color.Together, she and Dr. Ren unpack the larger issue of representation in research and treatment protocols—from the absence of women of color in cold capping studies, to the small yet meaningful resources and advocacy networks that can make this option more accessible.Penguin Cold Caps – Learn how cold capping can help reduce hair loss during treatment: penguincoldcaps.com.HairToStay – This nonprofit makes scalp cooling more accessible by providing subsidies for patients in need: hairtostay.org.Watch the video that inspired Nyka to try cold capping herself: https://youtu.be/eSv9JKGl4oQ🎧 Tune in for an honest, deeply personal, and practical conversation that blends survival, science, and the urgent need for equity in cancer care.Must-Hear Insights and Key MomentsHair Is More Than Cosmetic – For many women, especially women of color, preserving hair during treatment is about dignity, identity, and strength.Representation Gaps in Research – Most cold capping studies and recommendations don’t account for textured hair, leaving women of color without guidance.Barriers Beyond Cost – Awareness, cultural stigma, and provider education shape who even gets offered the chance to try cold capping.Community and Advocacy Matter – Nonprofits, resource lists, and persistence can help patients access funding and support.Success Is Personal – Keeping 50% of her hair was a victory that made the journey feel more survivable.Words of Wisdom: Standout Quotes from This Episode“Don’t be afraid to ask questions. Don’t be afraid to say, Hey, can I get support with this? Or, Hey, are there any subsidies or is there any money out there for this? Because there is.” – Chenyka Ramos“Just because one door closes… doesn’t mean you stop trying. ’Cause I got plenty of no’s.” – Chenyka Ramos“Anything that’s gonna help me feel more like myself, I’m gonna take it.” – Chenyka Ramos“You gave yourself a chance and it worked.” – Dr. Renarda Jones“That’s what research is like, finding the answers that are gonna work for us.” – Dr. Renarda JonesAbout ChenykaNyka is a San Diego native who completed both her bachelor’s and master’s degree at Alliant International University. She is a recent survivor of Hodgkin's Lymphoma and has made a commitment to providing advocacy and education on the disease. She is excited to share her experience with cold capping and will continue to advocate for the use of hair preservation treatments.Follow Chenyka Ramos:InstagramLinkedInFollow Renarda Jones:Follow Dr. Ren:WebsiteInstagramLinkedInWe Want to Hear Your Voice!Your insights on how inclusive research impacts your life and community are invaluable. Share your experiences and thoughts on how we can bridge the gap between research and real-world needs. Your stories drive our mission and inspire the future of inclusive research!

“We are not bystanders, we are participants. We are partners and leaders in this space.” – Dr. Renarda JonesIn this solo episode of Voices of Inclusive Research, I open up about why this work matters and why health equity must stay at the heart of clinical research.I share why brain health and lupus, conditions that deeply impact communities of color, aren’t just medical terms, but lived experiences for families and caregivers.Even with challenges like limited funding and pushback, we at Diverse Research Now keep pressing forward with community events, partnerships, and advocacy—because no one should be left out of the science that shapes our future.🎧 Tune in to hear why this work is about equity, hope, and building healthier futures together.Must-Hear Insights and Key MomentsWhy Brain Health Matters – Dementia and memory loss impact not just individuals, but entire families and communities. Education and awareness are essential for prevention and support.Lupus in Focus – Often misunderstood, often misdiagnosed, and disproportionately affecting Black women—lupus requires more resources, visibility, and research equity.Health Equity at the Core – Diversity and inclusion are part of the mission, but the bigger picture is ensuring everyone has access to the best science, care, and opportunities—no matter who they are or where they live.The Call to Action – From community events like Chow & Chat to partnerships with churches, workplaces, and researchers, real impact happens when everyone shows up and works together.Commitment Despite Challenges – The mission continues: standing with communities and building a healthier, more equitable future.Words of Wisdom: Standout Quotes from This EpisodeWe are not bystanders, we are participants. We are partners and leaders in this space.” – Dr. Renarda Jones “Health equity means no matter where you live, what you look like or what your income is, you should have access to the very best science, the very best care, and the very best opportunities to live a healthy life.” – Dr. Renarda Jones“This work is about families, about stories, and about building a future rooted in equity and health and hope.” – Dr. Renarda JonesFollow Dr. Ren:WebsiteInstagramLinkedInWe Want to Hear Your Voice!Your insights on how inclusive research impacts your life and community are invaluable. Share your experiences and thoughts on how we can bridge the gap between research and real-world needs. Your stories drive our mission and inspire the future of inclusive research!

“Don’t come into someone’s home for a party without bringing a gift.” – Stephanie MonroeIn this episode of Voices of Inclusive Research, Dr. Renarda Jones sits down with Stephanie Monroe, advocate and community leader, for an empowering conversation about what true inclusion in clinical research really looks like.Stephanie shares her perspective on patient-centered care, and why small but vital supports like patient navigators, and trusted advocates make or break participation in clinical trials. Stephanie illustrates how cultural context and grassroots leadership drive engagement and retention in trials. She also calls out the responsibility of pharmaceutical companies and academic centers to prioritize representation, diversify advisory boards, and honor the wisdom of patients and caregivers in shaping research.🎧 Tune in for an honest and practical discussion about equity, advocacy, and the power of community to transform health outcomes.Must-Hear Insights and Key MomentsTrust Is Earned, Not Assumed – Real partnerships take time, presence, and respect.The Details Make the Difference – From parking access to navigation support, small barriers can make or break participation in a clinical trial.Representation Creates Belonging – When diverse voices sit on advisory boards, communities see themselves reflected and valued in research decisions.Equity Is About People – Clinical research isn’t only about data or science—it’s about families, caregivers, and communities who deserve care and inclusion.Words of Wisdom: Standout Quotes from This Episode" They don't need a savior, they don't need someone parachuting in. You need to ask them" – Stephanie Monroe" You don't come into someone's home for a party without bringing a gift." – Stephanie Monroe" Don't be ashamed to include other people." – Stephanie Monroe" Knowing the community that you want to touch is so important" – Dr. Renarda Jones" Prevention is huge. " – Dr. Renarda JonesAbout StephanieStephanie J. Monroe is Vice President and Senior Advisor of Health Equity and Access at UsAgainstAlzheimer’s, where she leads the Center for Brain Health Equity and directs African Americans Against Alzheimer’s—the first national network addressing the disease’s disproportionate impact on African Americans. Through national, local, and strategic partnerships, she raises awareness of disparities, advocates for inclusive clinical trials, and promotes brain health in at-risk communities.An attorney with three decades in federal policy, Monroe previously served as Assistant Secretary of Education for Civil Rights and spent 25 years on Capitol Hill in senior staff roles, including Chief Counsel of the Senate HELP Committee. She also serves on the National Academy of Sciences Board for Children, Youth, and Families and advises institutions on strategies for inclusive participation in clinical research.Follow Stephanie Monroe:WebsiteFollow Dr. Ren:WebsiteInstagramLinkedInWe Want to Hear Your Voice!Your insights on how inclusive research impacts your life and community are invaluable. Share your experiences and thoughts on how we can bridge the gap between research and real-world needs. Your stories drive our mission and inspire the future of inclusive research!

“It might take me out, but it's gonna have to chase me down to do it.” – Shanell MatlockIn this episode of Voices of Inclusive Research, Dr. Renarda Jones sits down with Emmitt Henderson III — founder of Male Lupus Warriors — and Shanell Matlock, his partner and fellow advocate. Together, they open up about the raw realities of living with chronic illness, navigating kidney failure, and learning how to love, support, and grow through the chaos.Emmitt shares how lupus transformed his life and how clinical trials became part of his healing and survival. Shannell brings insight as both a partner and a patient herself, offering a layered perspective on caretaking, communication, and mental health. From near-death experiences to advocacy work, they shed light on what it means to fight and not just for survival, but for joy, purpose, and representation.🎧 Tune in for an honest, emotional, and uplifting conversation about illness, identity, and the power of being seen and heard in research spaces.Must-Hear Insights and Key MomentsClinical Trials Saved My Life – How participating in a clinical trial gave a second chance and why diversity in research participation is critical for discovering what works for different bodies and backgrounds.Representation Matters in Research – Greater inclusion of minority men in clinical studies and urges researchers and pharmaceutical companies to do more to engage underserved communities with intention and respect.Love in the Time of Kidney Failure – Personal look at how chronic illness affects relationships, communication, and emotional vulnerability."It’s Okay to Not Be Okay" – The emotional toll of illness, and how support systems, from advocacy groups to romantic partners can make all the difference.Worth the Fight – Invite listeners to claim their own value, seek support, and keep pushing forward.Words of Wisdom: Standout Quotes from This Episode“It might take me out, but it's gonna have to chase me down to do it.” – Shanell Matlock“We're the same, but we're different.” – Emmitt Henderson III“It's okay to not be okay. You're stronger than what you're going through. But you have to pull that out from inside of you.” – Emmitt Henderson III“I can’t say I’m scared of his illness. I have one too. What do I look like judging him for what I live with myself?” – Shanell Matlock“Let’s not just accept the diagnosis. Let’s fight. We’re worth the fight.” – Dr. Renarda JonesFollow Dr. Ren:WebsiteInstagramLinkedInWe Want to Hear Your Voice!Your insights on how inclusive research impacts your life and community are invaluable. Share your experiences and thoughts on how we can bridge the gap between research and real-world needs. Your stories drive our mission and inspire the future of inclusive research!

"Translations aren't just helpful — they're essential."In this episode, Dr. Renarda Jones sits down with Ricky Ricardo Villa, owner of Casa Sur Hacienda and a dedicated community leader who has been helping Diverse Research Now bring clinical trial education to Spanish-speaking communities.They talk about the importance of accurate translation and interpretation at research events and how language is deeply connected to culture, trust, and access. Ricky shares why adapting messages to reflect community beliefs and backgrounds is key to building understanding and breaking down barriers. From health fairs to bilingual education, this episode explores what it means to truly communicate (not just translate) in a way that makes clinical research feel more accessible and responsive to community needs.🎧 Tune in to hear how one conversation can help bridge the gap between research and the people it’s meant to serve.Must-Hear Insights and Key MomentsLanguage Is Access – Translation is more than swapping words. It’s about cultural knowledge, social context, and helping people feel informed and respected.The Role of Trusted Messengers – Community advocates like Ricky play a critical role in building trust where mistrust once lived.From Correction to Prevention – The Latino community is becoming more proactive about health. With the right tools and education, we can shift from crisis response to prevention.Documents Are Not Enough – AI tools can translate quickly, but only human connection can explain, adapt, and guide people through unfamiliar systems.Inclusive Research Starts with Language – Diversity in trials, we must first speak the language of the communities we serve — clearly, respectfully, and with care.Words of Wisdom: Standout Quotes from This Episode"Part of my life purpose is to support people who are making an impact socially." – Ricky Ricardo Villa"What AI doesn’t take into consideration is the background knowledge of the people."  – Ricky Ricardo Villa"With the right education, right explanation, people can understand and make educated decisions." – Ricky Ricardo Villa "The Latino community are becoming more proactive to have prevention versus correction." – Ricky Ricardo Villa"Translations and interpretations of different languages are so important as we are trying to get more diverse communities involved in research." – Dr. Renarda JonesAbout RickyRicky Ricardo Villa is the Founder & Executive Director of the Casa Sur Foundation & Retreat Center in Chula Vista, CA. A Non-Profit and Retreat Center for education, community, co-creation and art.Connect with Ricky Ricardo Villa:WebsiteInstagramLinkedInFollow Dr. Ren:WebsiteInstagramLinkedInWe Want to Hear Your Voice!Your insights on how inclusive research impacts your life and community are invaluable. Share your experiences and thoughts on how we can bridge the gap between research and real-world needs. Your stories drive our mission and inspire the future of inclusive research!

Prescreening gives us a chance to educate before decisions are made.In this solo episode, I talk about why prescreening is one of the most important and overlooked steps in the clinical trial process. At Diverse Research Now, we use Advocate Assisted Prescreening to bridge the gap between clinical trials and the communities that are too often left out.Through health fairs, community events, and real conversations, I have seen how trust and education help open doors. Inclusion does not begin when someone joins a study. It begins the moment we show up, listen, and build relationships.If you are a researcher, funder, or community leader, I invite you to think differently about how we connect with the people who need research the most. Let’s keep moving toward equity, one step at a time.🎧 Tune in for a real look at how one conversation can lead to real change.Must-Hear Insights and Key MomentsPrescreening Is Power – It’s more than a checklist. Prescreening is how we open the door to discovery and ensure no one gets left out.People Want to Help – From Alzheimer’s to lupus, communities are eager to be part of the solution when they feel respected, informed, and seen.Trust Starts with Representation – Advocate-Assisted Prescreening puts familiar, trusted faces at the frontlines of clinical education and access.Research Needs More Than Forms – Real conversations build real participation. Handouts can’t replace human connection.Fear Comes from the Unknown – Education is the antidote. When people understand trials, they’re more likely to participate and benefit.Words of Wisdom: Standout Quotes from This Episode"Your health, your voice, your participation matters in this field." – Dr. Renarda Jones"No one ever invited me to join the study. I didn’t know those trials were for us. – Dr. Renarda Jones"When they say, 'I'm here to walk you through this,' that changes the game." – Dr. Renarda Jones"At the end of the day, this isn’t just about filling seats for us in a study, it’s about health equity." – Dr. Renarda Jones"Together we can break down barriers and build bridges—one conversation, one pre-screener, one trial at a time." – Dr. Renarda Jones"Your health, your voice, your participation matters in this field." – Dr. Renarda JonesFollow Dr. Ren:WebsiteInstagramLinkedInWe Want to Hear Your Voice!Your insights on how inclusive research impacts your life and community are invaluable. Share your experiences and thoughts on how we can bridge the gap between research and real-world needs. Your stories drive our mission and inspire the future of inclusive research!

“Let’s stop just talking about inclusion. Let’s go do the work.”Host Dr. Ren Jones talks with Dr. Jazmine Crain, founder of Covalent Clinical Research, about building real trust and access in clinical research—starting in Mississippi. Dr. Crain shares how she meets communities where they are, from churches to clinics, making research visible and relevant. Together, they call on sponsors and researchers to invest in underserved areas, build infrastructure, and partner with local leaders. This episode is a clear message: inclusion isn’t just talk—it’s action.🎧 Listen in for an honest, boots-on-the-ground look at how real inclusion takes root.Must-Hear Insights and Key MomentsInclusion Means Showing Up – Dr. Crain isn’t waiting for change—she’s showing up at churches, town halls, and clinics to bring clinical research directly to the community.We Can’t Build Trust Without Listening – By meeting people where they are and hearing their concerns, Dr. Crain is helping shape research that reflects real-life needs and lived experiences.Doctors Need Education Too – Community engagement is vital, but so is provider engagement. Dr. Crain shares how working with local physicians can open the door to more inclusive research participation.Representation Starts with Infrastructure – Sponsors can’t keep overlooking underserved areas. Real inclusion means investing in local sites and supporting grassroots leaders like Dr. Crain.It’s Bigger Than Recruitment – Education, ongoing relationships, and culturally relevant outreach are the keys to long-term impact—not just short-term enrollment numbers.Words of Wisdom: Standout Quotes from This Episode"Let’s just not do talking. Let’s just do the work." – Dr. Jazmine Crain"We have to get them in that middle place." – Dr. Renarda Jones"Inclusion starts with infrastructure—and Dr. Crain is building it." – Dr. Renarda Jones"The more we get involved in research, the more beneficial the methods and the treatments will be for us." – Dr. Jazmine Crain"We deserve to have to live a healthier lifestyle." – Dr. Jazmine CrainAbout Dr. CrainDr. Jazmine Crain is the founder of Covalent Clinical Research and a passionate advocate for health equity in Mississippi. A bioorganic analytical chemist by training, she’s on a mission to bring clinical trials and health education to underserved communities, especially in the Mississippi Delta. Dr. Crain works to break down barriers to research participation by building local partnerships, expanding access, and creating a more inclusive future for clinical care.Connect with Dr. Jazmine Craine:LinkedInFollow Dr. Ren:WebsiteInstagramLinkedInWe Want to Hear Your Voice!Your insights on how inclusive research impacts your life and community are invaluable. Share your experiences and thoughts on how we can bridge the gap between research and real-world needs. Your stories drive our mission and inspire the future of inclusive research!

“Just because we’re slowing down doesn’t mean we’re stopping.”In this special solo episode, I share some exciting updates, a few changes, and what’s ahead for Voices of Inclusive Research.We’re shifting from a biweekly release to a monthly schedule so I can pace myself and still show up with the energy this work deserves. Don’t worry—we’re still here, and I’m still committed to amplifying the voices of our community.I also share a behind-the-scenes look at our second annual Community Clinical Trial Health Forum—yes, clinical trial trivia was a hit! We’re finding creative ways to make research education fun, accessible, and culturally relevant.Coming up, we’re focusing even more on lupus initiatives, brain health, and mindful aging in our local communities. And as a nonprofit, we’re calling on our supporters—if this podcast or our mission has made an impact on you, I hope you’ll support however you can.🎧 Tune in for a heartfelt check-in, some celebrations, and a reminder that this fire is still burning.Must-Hear Insights and Key MomentsWe’re Pacing for Impact - I’m moving the podcast to a monthly format—not to slow down, but to sustain the work and protect the mission.Clinical Trial Trivia Was a Hit! - We brought research education to life at our health forum with competitive, fun, culturally relevant trivia. Yes, learning can be fun.Our Work on Lupus & Brain Health is Growing - I’m excited to expand our lupus partnerships and continue our mindful aging events focused on Alzheimer’s and cognitive health.Community Always Comes First - If it matters to our community, it matters to us. We’ll keep showing up and creating space for your voices in this movement.This Is Purpose Work, Not Profit Work - We’re a nonprofit driven by passion, not funding—and I’m calling on you to help sustain this work in whatever way you can.Follow Dr. Ren:WebsiteInstagramLinkedInWe Want to Hear Your Voice!Your insights on how inclusive research impacts your life and community are invaluable. Share your experiences and thoughts on how we can bridge the gap between research and real-world needs. Your stories drive our mission and inspire the future of inclusive research!

What happens when a passion for research runs in the family?In this heartfelt episode of Voices of Inclusive Research, host Dr. Renarda Jones is joined by her sister, Elisha Butts—a clinical research professional with over 13 years of experience. Together, they reflect on their parallel journeys from Alzheimer’s research assistants to community-engaged advocates for inclusive science.Elisha shares her unique perspective as a coverage analyst in pediatric clinical trials, offering insights into study startup, parental consent, and how diversity plays out differently when children are involved. She also opens up about the unexpected ways her early work in Black communities shaped her passion for making research more accessible and compassionate.This episode reminds us that research isn’t just data and diagnostics—it’s about people, trust, and family. Whether you’re in the field, raising a future researcher, or simply care about representation in science, this conversation will leave you inspired.Must-Hear Insights and Key MomentsPediatric Clinical Trials Are a Hidden Frontier - Elisha shares how pediatric studies have unique dynamics, including greater parental involvement and challenges around consent. Contrary to assumptions, many parents are eager to participate when they understand how it could help their child.Representation Matters at Every Stage - Whether working in Alzheimer’s research or pediatric study startup, Elisha emphasizes that diversity can’t just be about participants—it must include those designing, launching, and communicating the studies.Coverage Analysis Reveals Structural Barriers - In her role as a coverage analyst, Elisha sees how insurance requirements can impact who has access to trials. Clarifying which procedures are billed to research vs. insurance is key to reducing hidden barriers for families.Community Relationships Build Trust - Both Elisha and Renarda reflect on their early work conducting assessments in Black seniors’ homes and how being a trusted, familiar face made all the difference.Research Really Is a Family Affair - Elisha and Renarda’s shared passion highlights the power of personal connection in inclusive research. From their career beginnings to now, their story shows that equity work can start at the kitchen table.Connect with Elisha ButtsLinkedInFollow Dr. Ren:WebsiteInstagramLinkedInWe Want to Hear Your Voice!Your insights on how inclusive research impacts your life and community are invaluable. Share your experiences and thoughts on how we can bridge the gap between research and real-world needs. Your stories drive our mission and inspire the future of inclusive research!

What does it take to move health equity from conversation to action?In this special episode, Dr. Renarda Jones brings us inside the Health Equity Congress—where powerful voices from across disciplines gathered to reimagine inclusion in research and care.From bedside insights to boardroom strategies, you’ll hear from public health professionals, researchers, and community leaders who are challenging systems and championing equity. These conversations underscore the urgency of cultural humility, trust-building, and dismantling barriers—especially for marginalized communities.This isn’t just a recap—it’s a real-time pulse check on what equity means today and what it must become tomorrow. Whether it’s navigating stigma in clinical trials, confronting racial disparities in diagnostics, or empowering underrepresented investigators, this episode is packed with reflections that will spark new thinking.Tune in to hear what’s shifting—and what still must change—in the fight for equitable healthcare.Must-Hear Insights and Key MomentsShifting Power Through Inclusion - Many guests emphasized the importance of centering community voices—not just as participants in research, but as collaborators in co-creating solutions. Authentic inclusion requires institutions to shift power and listen deeply.Representation Is More Than Demographics - Several attendees noted that representation in health equity isn’t just about who is at the table—but how safe they feel to speak. Psychological safety, mentorship, and funding are just as crucial as numbers.Culture, Stigma & Clinical Trials - Guests reflected on how cultural stigma often prevents Black and Brown communities from participating in research. Trust-building and culturally tailored approaches must become the norm, not the exception.The Future of Health Equity Requires Structural Change - Incremental changes aren’t enough. From federal research funding to institutional policy, guests called for bold, systemic transformation to make equity sustainable—not just performative.Follow Dr. Ren:WebsiteInstagramLinkedInWe Want to Hear Your Voice!Your insights on how inclusive research impacts your life and community are invaluable. Share your experiences and thoughts on how we can bridge the gap between research and real-world needs. Your stories drive our mission and inspire the future of inclusive research!

"I didn’t choose caregiving—it chose me."In this deeply moving episode of Voices of Inclusive Research, host Dr. Renarda Jones sits down with Carla Preyer, founder of From the Salon Chair to Self-Care and advocate for dementia caregivers. Carla shares the powerful story of caring for her husband, Patrick, through his eight-year battle with Lewy body dementia—a journey filled with misdiagnoses, delays, and the emotional toll of navigating a misunderstood condition.Carla also opens up about her role in the acclaimed documentary Facing the Wind, the isolation of being one of the few women of color in support spaces, and the importance of bringing education and research opportunities to caregivers.From advocating for earlier diagnoses to using walking and wellness routines to stay strong, Carla’s story is a reminder that caregivers need just as much care as the people they support.🎧 Listen now to hear how Carla is transforming her grief into advocacy—and why community, support, and visibility in research matter.Must-Hear Insights and Key MomentsMisdiagnosis Delays are Too CommonCarla's husband went undiagnosed for four years, despite clear symptoms. Her story highlights the urgent need for early detection tools like PET scans—and for doctors to truly listen to caregivers.The Power of Support GroupsFinding a safe space through caregiver support groups changed everything for Carla. It not only led her to helpful resources but eventually connected her to a life-changing documentary, Facing the Wind.Caregiver Wellness is EssentialFrom daily walks to self-care routines, Carla emphasizes that caregivers must prioritize their health, too—because without them, their loved ones are left vulnerable.We Need More People of Color in the RoomWhether in clinical trials or caregiver spaces, Carla consistently found herself as the only Black woman. She’s now on a mission to change that through advocacy and storytelling.Research Must Reach the Right PeopleCarla learned about studies only through support groups—not doctors. It’s a clear call for more proactive outreach and culturally responsive education about clinical trial opportunities.Words of Wisdom: Standout Quotes from This Episode"I didn’t choose this journey. It chose me." – Carla Preyer"You should never try to do this journey alone." – Carla Preyer"Support groups became my lifeline. They changed everything." – Carla Preyer"Being the only person of color in the room—again and again—was heartbreaking." – Carla Preyer"We have to stop dealing with dementia in silence." – Dr. Ren"The earlier we educate, the more lives we change." – Dr. RenConnect with Carla Preyer:LinkedInWebsiteInstagramFacebookFollow Dr. Ren:WebsiteInstagramLinkedInWe Want to Hear Your Voice!Your insights on how inclusive research impacts your life and community are invaluable. Share your experiences and thoughts on how we can bridge the gap between research and real-world needs. Your stories drive our mission and inspire the future of inclusive research!

“Research is not just data. It’s people, their stories, and their trust.”In this compelling episode of Voices of Inclusive Research, Dr. Ren sits down with Dr. Dung Trinh — a Vietnam War refugee turned physician, researcher, and global health advocate. His journey from a refugee camp to the forefront of Alzheimer's research and inclusive healthcare isn’t just inspirational — it’s transformative.Dr. Trinh shares how his early experiences in underserved communities shaped his passion for accessible, culturally competent research. He dives into the ethical and practical dimensions of clinical trials, especially for conditions like Alzheimer's disease, and the barriers that persist for underrepresented populations.From the intersection of faith and science to innovative strategies for building trust in the clinical trial process, this episode is packed with heart, insight, and practical wisdom.If you’ve ever wondered how inclusion really works in clinical research, or how personal history informs professional purpose—this is a conversation you won’t want to miss.🎧 Listen now!Must-Hear Insights and Key MomentsFaith and Science Aren’t Opposites Dr. Trinh discusses how his Christian faith not only aligns with but enhances his commitment to scientific inquiry and inclusive healthcare. Rather than conflict, faith provides him the moral compass to pursue equitable treatment for all.The Power of Lived ExperienceAs a former refugee, Dr. Trinh brings firsthand understanding of health disparities and cultural mistrust. His background fuels his mission to democratize access to research and elevate the voices of the overlooked.Bridging the Trust Gap in Clinical TrialsDr. Trinh outlines the urgent need for diverse representation in research and offers tangible methods for gaining trust within underrepresented communities—especially in the realm of Alzheimer’s disease studies.Global Health Isn’t Just AbroadHe reveals how global health starts at home, in our local underserved neighborhoods, and emphasizes the importance of meeting patients where they are—linguistically, culturally, and socially.Words of Wisdom: Standout Quotes from This Episode“I see patients who are rich in culture, but poor in healthcare access.”- Dr. Dung Trinh“Trust is earned. Especially in communities that have historically been left behind.” - Dr. Dung Trinh“Faith gives me the courage to step into places science alone doesn’t explain.” - Dr. Dung Trinh“We can’t talk about inclusion without talking about history.”- Dr. Renarda Jones“The story behind the research is just as important as the results.”- Dr. Renarda JonesConnect with Dr. Trinh:LinkedInWebsiteYoutubeFollow Dr. Ren:WebsiteInstagramLinkedInWe Want to Hear Your Voice!Your insights on how inclusive research impacts your life and community are invaluable. Share your experiences and thoughts on how we can bridge the gap between research and real-world needs. Your stories drive our mission and inspire the future of inclusive research!

What does true representation in clinical research look like? And why does it matter?In this episode of Voices of Inclusive Research, host Dr. Ren sits down with a special guest, her husband Michael Jones to discuss the pressing need for diversity in clinical trials. They dive deep into the systemic barriers that prevent communities of color from participating in research and explore the real-world consequences of underrepresentation. Mike shares his firsthand experience as a participant in clinical trials, shedding light on how trust, awareness, and access play important roles in ensuring equitable healthcare outcomes.Tune in as Renarda and Mike break down the challenges, dispel common myths, and offer solutions to make clinical research more inclusive. Whether you're a researcher, healthcare professional, or advocate for health equity, this conversation is a must-listen.🎧 Listen now!Must-Hear Insights and Key MomentsRepresentation in Research: A Critical NeedMichael Jones discusses why representation in clinical trials is not just an ethical issue but a scientific necessity. When studies fail to include diverse populations, medical advancements can leave entire communities behind.Trust and Mistrust in Medical ResearchA long history of unethical medical practices has led to deep mistrust in communities of color. Mike and Renarda explore ways to rebuild trust through education, transparency, and authentic community engagement.Breaking Down Barriers to ParticipationMany individuals are unaware of clinical trial opportunities or face logistical barriers such as cost and transportation. Mike shares strategies to improve accessibility and ensure that clinical research benefits everyone, not just a select few.Words of Wisdom: Standout Quotes from This Episode"We can’t achieve true health equity if clinical research doesn’t reflect the diversity of the world we live in." – Michael Jones"Trust is built over time, and the only way to earn it is through transparency and action." – Michael Jones"People can’t participate in what they don’t know exists. Awareness is just as important as access." – Dr. Ren"Clinical research isn’t just about science—it’s about people, and people need to see themselves represented." – Michael Jones"Diversity in clinical trials isn’t a box to check; it’s a responsibility we all share in the pursuit of better health outcomes." – Dr. RenFollow Dr. Ren:WebsiteInstagramLinkedInWe Want to Hear Your Voice!Your insights on how inclusive research impacts your life and community are invaluable. Share your experiences and thoughts on how we can bridge the gap between research and real-world needs. Your stories drive our mission and inspire the future of inclusive research!

Did you know that thyroid eye disease (TED) can cause vision loss, double vision, and even blindness?In this episode of Voices of Inclusive Research, host Renarda Jones sits down with Dr. Vivek Patel, Chief of Neuro-Ophthalmology at UC Irvine, to explore new breakthroughs in thyroid eye disease treatment and the critical need for diverse participation in clinical trials.Dr. Patel explains the warning signs of TED, who is most at risk, and why many clinical studies lack representation from communities of color. He breaks down the latest biological treatments beyond steroids and surgery, and how they’re transforming care for TED patients.Why does representation matter in TED research? Because different populations may respond differently to treatments, and without diversity in clinical trials, we don’t have the full picture.🎧 Listen now to learn more about the latest advancements in TED research and why diverse participation is key to better outcomes for all.Learn more about TED research and clinical trials:TED Community link for more TED patient and caregiver information and resources. That URL is https://tedcommunity.org/argenx website: https://argenx.com/argenx Clinical Trials List: https://argenx.com/patients/clinical-trialsUplighted Study – TED Research: https://uplightedstudyus.com/Contact: [email protected] (Patient Advocacy Lead for the Thyroid Eye Disease program at argenx)Must-Hear Insights and Key MomentsWhat is Thyroid Eye Disease?Dr. Patel explains TED as an autoimmune disorder that impacts the eyes, causing inflammation, vision issues, and disfigurement—sometimes leading to blindness.The Evolution of TED TreatmentsFor years, steroids and surgery were the only treatment options. Now, new biological therapies are changing how TED is managed.The Importance of Early DetectionCommon symptoms like dry eyes, puffiness, and double vision can signal TED. Seeing an eye doctor early can lead to faster diagnosis and treatment.Diversity in Clinical Trials MattersMost research on TED has been conducted on predominantly white populations—meaning we lack critical data on how different ethnic groups respond to treatments.Why More People Should Consider Clinical TrialsDr. Patel highlights how clinical trial participants receive high-quality, closely monitored care and play a crucial role in advancing treatment options for future generations.Connect with argenx:WebsiteFollow Dr. Ren:WebsiteInstagramLinkedInWe Want to Hear Your Voice!Your insights on how inclusive research impacts your life and community are invaluable. Share your experiences and thoughts on how we can bridge the gap between research and real-world needs. Your stories drive our mission and inspire the future of inclusive research!

What does inclusive research really look like in action?In this special solo episode of Voices of Inclusive Research, I share exciting community updates, upcoming events, and ways you can get involved in advancing inclusive healthcare research.From monthly Chow & Chat discussions on health topics like brain health and autoimmune diseases to major events like the Community Clinical Trial Health Forum, there are more opportunities than ever to learn, connect, and take action. Plus, don’t miss the Spring Into Action fundraising gala, a night dedicated to celebrating progress and raising support for impactful initiatives.Your voice matters! Have ideas for future events? Diverse Research Now wants to hear from you. Tune in to learn how you can help shape the future of research and health equity.🎧 Listen now to be part of the movement for inclusive research!Must-Hear Insights and Key MomentsChow & Chat: Community Conversations on HealthMonthly events in San Diego and Chula Vista bring the community together to discuss health topics and cutting-edge research in a welcoming and informative space.The Importance of the Community Clinical Trial Health ForumThis event connects researchers and community members, creating real conversations about clinical trials, health equity, and access to care.The Power of Fundraising for Inclusive ResearchThe Spring Into Action fundraising gala supports initiatives that ensure underrepresented communities have a voice in research and healthcare advancements.Why Community Feedback is VitalDiverse Research Now is committed to creating events that truly serve the needs of the community. I encourage the listeners to submit ideas and help shape future initiatives.The Bigger Mission: Inclusive Research for Better HealthI emphasize that clinical research must reflect the diversity of the communities it serves, ensuring equitable health outcomes for all.Follow Dr. Ren:WebsiteInstagramLinkedInWe Want to Hear Your Voice!Your insights on how inclusive research impacts your life and community are invaluable. Share your experiences and thoughts on how we can bridge the gap between research and real-world needs. Your stories drive our mission and inspire the future of inclusive research!

What happens when personal experiences collide with a passion for science and business?Dr. Denise Bronner, CEO and founder of Impactful Ventures, shares her journey from academia to consulting, pharma, and venture capital—all with the goal of driving meaningful change in healthcare.In this episode of Voices of Inclusive Research, host Dr. Ren and Dr. Bronner discuss the urgent need for diversity in clinical research, the importance of equitable healthcare, and how pharma can better engage communities. Drawing from her own family’s health struggles, Dr. Bronner highlights why representation in research is critical and why it’s time to challenge the assumption that certain demographics "aren’t interested" in clinical trials.Whether you're a patient, a researcher, or someone invested in health equity, this conversation is a must-listen. Join us as we explore how to create lasting change in the industry.🎧 Listen now and be part of the movement for inclusive research!About Dr. Denise BronnerDr. Denise Bronner is the CEO and founder of Impactful Ventures, an organization dedicated to advancing equity and innovation in healthcare. With 15 years of experience spanning academia, pharma, consulting, and venture capital, Dr. Bronner is a champion for diversity in clinical research. She holds a PhD in microbiology and immunology and has worked at industry giants like Johnson & Johnson before launching her own venture. Passionate about mentorship, she actively engages with STEM programs to ensure young people—especially those from underrepresented backgrounds—see themselves in science and business.Connect with Dr. Denise:InstagramLinkedInFollow Dr. Ren:WebsiteInstagramLinkedInWe Want to Hear Your Voice!Your insights on how inclusive research impacts your life and community are invaluable. Share your experiences and thoughts on how we can bridge the gap between research and real-world needs. Your stories drive our mission and inspire the future of inclusive research!

Can research truly serve as a resource for the community?In this episode of Voices of Inclusive Research, host Dr. Renarda Jones sits down with Dr. Krystal Lira, a Senior Research Associate at UCSD, to discuss the power of community-driven mental health research. Dr. Lira shares her journey from academia to real-world research, highlighting the importance of lived experience in shaping effective health solutions.The conversation dives into why diverse communities struggle to access mental health resources, the barriers they face in research participation, and the critical role of community engagement in building trust. Dr. Lira also emphasizes the need for research to go beyond data collection and become a true resource for underserved populations.If you’re passionate about health equity, representation in research, and creating real change, this episode is a must-listen!🎧 Tune in now to learn how we can make research work for everyone!Must-Hear Insights and Key MomentsThe Role of Lived Experience in ResearchDr. Lira explains why researchers with lived experiences are essential in shaping mental health and behavioral studies that truly address community needs.Bridging the Gap Between Research and ResourcesResearch shouldn’t just collect data—it should provide tangible resources to help communities access care and support.Mental Health Disparities in Underserved CommunitiesLong wait times, cultural barriers, and lack of awareness prevent many from getting the help they need. Dr. Lira discusses how research can bridge these gaps.The Disconnect Between Data Collection and ActionCommunities are tired of sharing their concerns without seeing change. Dr. Lira highlights the need for accountability and transparency in research efforts.The Future of Inclusive ResearchDr. Lira and Dr. Jones explore how research institutions and pharma companies can better engage with diverse populations to ensure representation in mental health studies.About Dr. Krystal LiraDr. Krystal Lira is a Senior Research Associate at UC San Diego, specializing in mental health research and community engagement. She earned her PhD in Educational Psychology from Michigan State University in 2022, where her research focused on race, motivation, and identity in STEM fields. Passionate about health equity and behavioral research, Dr. Lira actively works with underserved communities to assess their mental health needs and bridge gaps between research institutions and real-world solutions.Connect with Dr. Krystal:LinkedInFollow Dr. Ren:WebsiteInstagramLinkedInWe Want to Hear Your Voice!Your insights on how inclusive research impacts your life and community are invaluable. Share your experiences and thoughts on how we can bridge the gap between research and real-world needs. Your stories drive our mission and inspire the future of inclusive research!

How do we ensure that underrepresented communities benefit from clinical research?In this episode of Voices of Inclusive Research, Dr. Ren sits down with Dr. Aliya Frederick, a child neurologist and researcher specializing in pediatric migraines. Dr. Frederick shares her inspiring journey, from her early fascination with neuroscience to leading groundbreaking clinical trials at UCSD.Discover how Dr. Frederick uses her unique platform, Inspired Dream Bigger, to encourage young people of color to envision themselves in healthcare and research roles. The discussion highlights the prevalence and impact of migraines in children and adolescents, with Dr. Frederick emphasizing the importance of representation in medicine and bridging gaps in clinical research.Listen in as the two explore innovative treatments, the role of mentorship, and the critical need for inclusivity in medical trials.Must-Hear Insights and Key MomentsThe Intersection of Advocacy and Research: Dr. Frederick’s platform, Inspired Dream Bigger, combines her passion for mentorship with her commitment to increasing diversity in healthcare and research fields.Pediatric Migraines and Clinical Trials: Dr. Frederick sheds light on the high prevalence of migraines in children, their impact on quality of life, and the role of clinical trials in expanding treatment options.Representation Matters: As a Black woman in neurology, Dr. Frederick emphasizes the importance of representation in healthcare, helping young individuals from diverse backgrounds envision themselves in these spaces.About Dr. Aliya FrederickDr. Aliya Frederick is a child neurologist and researcher at UCSD, specializing in pediatric migraines. With a passion for mentorship and representation, she founded Inspired Dream Bigger, a platform aimed at helping young individuals from diverse backgrounds see themselves in healthcare roles. A graduate of the University of Maryland Baltimore County and an MD-PhD holder in neuroscience, Dr. Frederick combines her expertise in clinical and basic science research to develop innovative treatments. Beyond medicine, she’s a beauty queen using pageantry as a tool for advocacy and community connection.Connect with Dr. Aliya:WebsiteInstagramLinkedInFollow Dr. Ren:WebsiteInstagramLinkedInWe Want to Hear Your Voice!Your insights on how inclusive research impacts your life and community are invaluable. Share your experiences and thoughts on how we can bridge the gap between research and real-world needs. Your stories drive our mission and inspire the future of inclusive research!

“True health starts with purpose—and purpose thrives in community.”In this episode of Voices of Inclusive Research, Renarda Jones talks with Justin Campbell, a UX designer turned health and mindset coach, about the intersection of personal growth, wellness, and inclusive health data. Justin shares how his shift from tech to health coaching was driven by a desire to help others achieve holistic well-being.He highlights the importance of aligning health goals with personal values, explaining that lasting wellness comes from purpose, not just discipline. This deeper connection, he argues, fosters sustainable habits and meaningful change.The conversation also tackles the vital role diversity plays in clinical research and how underrepresented communities face barriers to healthcare, often rooted in distrust of medical systems. By increasing diversity among researchers and outreach efforts, they believe these gaps can be bridged, leading to more equitable solutions for all.If you’re interested in personal growth or passionate about health equity, this episode offers actionable insights and inspiring takeaways on how purpose and inclusion shape better health outcomes.Must-Hear Insights and Key MomentsCuriosity as a Catalyst for Growth: Justin Campbell shares how his curiosity led him from design to UX and health coaching, stressing the value of asking deeper questions to optimize life.Health and Life Purpose Connection: Emphasizes the crucial link between health and life purpose, noting that good health is essential to achieving personal goals and living with purpose.Personalized Health and Research: The need for personalized health care and research, advocating for more inclusive studies to provide accurate, accessible recommendations for all.Building Trust with Communities of Color: Justin calls for pharmaceutical companies to build trust by including people of color in both research and decision-making processes, ensuring health advice is culturally relevant.Improving Research Accessibility: Making research more accessible by going to communities, rather than expecting participants to come to research sites, to increase participation from underrepresented groups.Health Coaching as a Personalized Guide: Focuses on guiding clients through their unique health journeys, offering tailored advice based on individual needs and goals.About Justin CampbellJustin is a San Diego-based multi-disciplinary user experience designer and health and mindset coach with a deep-rooted belief in the power of self-mastery, discipline, and a growth mindset to help people achieve holistic well-being. He is passionate about crafting experiences that empower individuals to unlock their full potential, leveraging my expertise in designing enterprise software products, guiding clients in meditation, and coaching them through systematic habit formation to cultivate healthier, more fulfilling lives.Connect with Justin:WebsiteInstagramLinkedInFollow Dr. Ren:WebsiteInstagramLinkedInWe Want to Hear Your Voice!Your insights on how inclusive research impacts your life and community are invaluable. Share your experiences and thoughts on how we can bridge the gap between research and real-world needs. Your stories drive our mission and inspire the future of inclusive research!

"Inclusive research isn’t just a goal—it’s a responsibility we all share."In this special holiday episode of Voices of Inclusive Research, host Dr. Renarda Jones takes a moment to celebrate the incredible journey of the podcast and reflect on the powerful lessons shared by past guests. From breaking misconceptions to fostering trust and advocating for representation, this episode revisits the pivotal conversations that have shaped the podcast’s mission.She highlights key moments, including Joseph Frazier’s wisdom on preventive research, Mary Futrell’s advocacy for Alzheimer’s awareness, Jen Lothridge’s insights on trust and community engagement, and Fannie Johnson’s practical advice for overcoming mistrust in clinical trials. Dan Sfera’s call for creative approaches to diversity and Tracy Phillips’ emphasis on amplifying underrepresented voices round out this impactful reflection.She invites listeners to share their unique perspectives on inclusive research. The episode concludes with a heartwarming note on the annual Christmas toy giveaway for pediatric clinical trial participants, reminding us that every voice, no matter how young, matters.Every voice has the power to change the world. Must-Hear Insights and Key MomentsThe Impact of Inclusive Research: Recap of how inclusive research transforms healthcare outcomes, with actionable insights shared by past guests like Joseph Frazier and Fannie Johnson.Overcoming Mistrust in Clinical Trials: Practical strategies from Fannie Johnson and Tracy Phillips on building trust in underserved communities.Passing Down Knowledge: Guests like Joseph Frazier and Jen Lothridge emphasize the critical role of sharing health knowledge to empower future generations.Community-Centered Approaches: Dan Sfera highlights the importance of creativity, word-of-mouth outreach, and genuine community connections in achieving true diversity.Words of Wisdom: Standout Quotes from This Episode"Passing down knowledge to empower future generations with vital health information is crucial." – Renarda Jones"Building trust between researchers and communities is key to achieving better health outcomes." – Renarda Jones"Amplifying every voice is how we drive meaningful change in healthcare outcomes." – Renarda JonesFollow Dr. Ren:WebsiteInstagramLinkedInWe Want to Hear Your Voice!Your insights on how inclusive research impacts your life and community are invaluable. Share your experiences and thoughts on how we can bridge the gap between research and real-world needs. Your stories drive our mission and inspire the future of inclusive research!

Real change starts when every voice is heard.In this episode of Voices of Inclusive Research, Renarda Jones welcomes Tracy Phillips, a dedicated advocate for inclusion in clinical trials. Tracy shares her deep insights into the critical role genuine representation plays in transforming clinical research and ensuring no community is left behind. She emphasizes the importance of intentional outreach, offering thoughtful strategies to bridge the gaps in underrepresented communities and make clinical research more equitable and impactful.This conversation is packed with actionable insights, offering a practical roadmap for researchers, healthcare professionals, and advocates who are committed to making a difference. Tracy’s perspective on amplifying every voice in clinical research reminds listeners that true inclusivity is not just an ideal but a necessity for driving meaningful change and delivering better healthcare outcomes for all.If you’re looking to be inspired and equipped with ideas to break down barriers in clinical research, this episode is a must-listen. Tracy and Renarda challenge the status quo and call for bold, innovative steps to ensure everyone’s voice is heard and valued in the research landscape. Listen now to join the conversation, spark meaningful change, and help shape a more inclusive and equitable future in clinical research. This episode isn’t just about learning—it’s about being part of a movement that transforms how research connects with the world.Must-Hear Insights and Key MomentsThe Power of Support Networks: Tracy Phillips emphasizes the importance of a reliable support network during critical health challenges. His journey revealed the true nature of his relationships, showing who genuinely stood by him in tough times.The Importance of Advocacy and Research: Tracy’s story highlights the need for patients to be their own advocates by conducting thorough research and asking questions. He stresses that understanding treatment options, side effects, and clinical trial opportunities is crucial for informed decision-making.Stress and Healing: Tracy underscores the detrimental impact of stress on health, particularly for individuals managing conditions like multiple myeloma. He advocates for setting boundaries with stressful individuals and environments to create a healing space.Challenges in Clinical Trial Access: Tracy shares his frustration with being disqualified from clinical trials after starting medication. He stresses the need for better education for newly diagnosed patients about trial eligibility and timing.Gratitude and Perspective: Despite his diagnosis, Tracy maintains a sense of gratitude and humor, finding silver linings in his experience, such as deeper connections with loved ones and an appreciation for life.The Role of Healthcare Providers: Tracy's journey reveals the gaps in communication between healthcare teams and patients, particularly in providing clear, actionable guidance. He calls for more collaboration between healthcare providers and clinical researchers to inform patients about trials early in their diagnosis.Follow Dr. Ren:WebsiteInstagramLinkedInWe Want to Hear Your Voice!Your insights on how inclusive research impacts your life and community are invaluable. Share your experiences and thoughts on how we can bridge the gap between research and real-world needs. Your stories drive our mission and inspire the future of inclusive research!

Sometimes the best innovations come from just figuring it out as you go.In this Voices of Inclusive Research episode, Renarda sits down with Dan Sfera, the trailblazing "Clinical Trials Guru" and a seasoned research site owner. Dan opens up about his unplanned journey into clinical research, sharing the highs and lows that shaped his two-decade-long career. From his early days struggling as a pre-med student to becoming a go-to expert in the field, Dan’s story is one of resilience, creativity, and learning on the fly.Dan emphasizes the power of community engagement, the impact of word-of-mouth recruitment, and the need for innovative approaches to make clinical trials more inclusive. He highlights the value of genuine relationships with study participants, revealing how these connections can drive recruitment and retention, especially within underrepresented communities.This episode is packed with Dan’s candid insights on breaking away from industry norms, challenging the status quo, and focusing on people, not just processes. It's a must-listen for anyone interested in transforming the clinical research landscape by putting communities first and embracing change.Must-Hear Insights and Key MomentsUnconventional Path: Dan shares his unexpected journey into clinical research, detailing how he went from pre-med aspirations to becoming a prominent site owner and educator in the industry.Importance of Community Engagement: Dan highlights the effectiveness of engaging directly with local communities, emphasizing that trust and word-of-mouth are essential for successful recruitment, especially within diverse populations.Innovation in Patient Recruitment: Dan advocates for creative recruitment strategies, like leveraging community influencers or “super recruiters” within specific communities, to boost diversity and trust in trials.Addressing Diversity in Clinical Trials: Through personal anecdotes, Dan stresses the need for diverse site ownership and patient recruitment strategies, calling for practical, people-centered solutions over bureaucratic approaches.Challenging the Status Quo: Dan encourages the industry to break away from traditional, risk-averse models, advocating for bold ideas and real accountability to improve inclusivity and community-centered research.About Dan SferaDan Sfera is a visionary leader and influential figure in the clinical research industry. With over 15 years of experience, he has dedicated his career to advancing clinical trial practices through innovative strategies and knowledge-sharing. Known for his commitment to site-centric solutions, Dan has been a driving force in enhancing research methodologies to support clinical researchers since 2005. His focus remains on optimizing patient engagement, empowering site operations, and ensuring the highest standards in clinical trials.Connect with Dan Sfera:LinkedInInstagramYoutubeFollow Dr. Ren:WebsiteInstagramLinkedInWe Want to Hear Your Voice!Your insights on how inclusive research impacts your life and community are invaluable. Share your experiences and thoughts on how we can bridge the gap between research and real-world needs. Your stories drive our mission and inspire the future of inclusive research!

Welcome to the Voices of Inclusive Research Podcast.A space where we amplify the voices of underrepresented communities in clinical research, sharing stories and insights to foster diversity and inclusivity in healthcare. In this episode, Renarda welcomes Fannie Johnson, a long-time participant in clinical research, to share her journey and insights. She discusses her 20-year involvement in the Memory and Aging Project, emphasizing how clinical research has positively impacted her health and well-being. Together, they address the deep-seated fears in communities of color about participating in clinical trials and explore ways to transition from fear to trust.Fannie’s story highlights the importance of education, awareness, and community engagement in overcoming the historical mistrust that often hinders participation in research. She advocates for researchers to be more present in the community and to provide clear communication about the benefits of clinical trials.Must-Hear Insights and Key MomentsImpact of Participation: Fannie shares how her two-decade involvement in the Memory and Aging Project has improved her memory and well-being, showcasing the tangible benefits of participating in clinical research.Overcoming Fear: She addresses fears within communities of color about clinical trials, highlighting how transparency and sharing personal experiences can help alleviate these concerns.Building Trust: Regular, respectful communication from researchers has helped build Fannie’s trust, showing how crucial consistent engagement is in fostering confidence in clinical research.Educational Value: Fannie emphasizes the importance of educating communities on clinical research benefits to overcome historical mistrust and encourage more inclusive participation.Community Engagement: Researchers should actively engage with communities and provide clear, transparent information to build trust and enhance inclusivity in clinical trials.Follow Dr. Ren:WebsiteInstagramLinkedInWe Want to Hear Your Voice!Your insights on how inclusive research impacts your life and community are invaluable. Share your experiences and thoughts on how we can bridge the gap between research and real-world needs. Your stories drive our mission and inspire the future of inclusive research!

"Without diversity in clinical trials, we're missing pieces of the puzzle that could save lives." This message is central to this episode of Voices of Inclusive Research, where host Renarda Jones chats with Jen Lothridge, a clinical trial participant and advocate, about how inclusive research can transform healthcare for underrepresented communities.Jen shares her journey in medical research, highlighting the importance of safety, ethics, and informed consent—especially for Black and Brown communities that have been historically mistreated in research. She stresses that trust and cultural competence are crucial to meaningful participation in clinical trials.This episode is a powerful reminder of the importance of equitable research and the role communities of color can play in shaping a healthier future. Must-Hear Insights and Key MomentsImportance of Diversity: Emphasizes that without diversity in clinical trials, vital insights into health disparities are missed, potentially jeopardizing lives, especially in underrepresented communities.Trust and Cultural Competence: Learn the necessity of building trust and demonstrating cultural competence in clinical research to ensure meaningful participation from historically marginalized groups.Safety and Ethics: Importance of informed consent, safety protocols, and ethical considerations in clinical trials.Passing Down Health Knowledge: The significance of sharing health knowledge across generations to empower communities and improve health outcomes.The Concept of Snowballing: Learn about "snowballing," where positive trial experiences inspire others to participate, creating a ripple effect that enhances diversity and representation in clinical research.About Jen LothridgeJen (she/her/ella) is a passionate advocate and community leader with over 20 years of experience in social services, specializing in Person-Centered Care. Born and raised in San Diego, she embraces life wholeheartedly and brings a deep commitment to supporting the HIV/AIDS community through volunteer roles with the San Diego County HIV Planning/Community Engagement Group, POZabilities, and other key organizations.Currently a Bachelor of Social Work and Gerontology student at San Diego State University, Jen also serves as the Aging & Research Program Supervisor at Christie’s Place, where she connects with and empowers individuals facing the challenges of aging.Her mission extends into healing and trust-building within communities affected by medical injustices, especially among Black and African American women. By promoting informed consent, harm reduction, and trauma-informed care, Jen envisions research participation as a positive path toward advancing medical equity and rebuilding trust in healthcare.Connect with Jen Lothridge:WebsiteInstagramFollow Dr. Ren:WebsiteInstagramLinkedInWe Want to Hear Your Voice!Your insights on how inclusive research impacts your life and community are invaluable. Share your experiences and thoughts on how we can bridge the gap between research and real-world needs. Your stories drive our mission and inspire the future of inclusive research!

Clinical research holds the power to change the future of healthcare for communities of color—but it can't happen without your voice. In this episode of Voices of Inclusive Research, Dr. Renarda Jones sits down with Mary Futrell, a community leader and seasoned research participant, to discuss the significance of involving underserved populations in clinical studies. Mary shares her experience in advocating for research in communities where access to healthcare and education is limited, but the need is great. She highlights the misconceptions and stigmas that often prevent participation, particularly in understanding diseases like Alzheimer’s. She explains that by engaging in research, individuals help shape treatments and preventive measures for future generations, ensuring that healthcare becomes more inclusive and effective. Building trust between researchers and communities is vital, and Mary emphasizes the power of relationship-building and word of mouth in encouraging more people to get involved. Tune in to this episode and learn how you can be part of shaping a healthier, more inclusive future for all. Must-Hear Insights and Key MomentsThe Power of Participation: Learn how community participation in clinical research helps shape future treatments and preventive measures for more inclusive healthcare.Breaking Misconceptions: Discover the common misconceptions and stigmas that often prevent people from getting involved in clinical studies, and how to overcome them.Preventive Research and Chronic Illness: Gain insights into the critical role of preventive research in addressing chronic illnesses like diabetes and dementia within communities of color.The Value of Health Education: Hear why educating yourself about health conditions and passing that knowledge to others is essential in empowering communities.Building Trust for Better Research: Know the importance of building trust between researchers and communities to foster more active involvement in clinical research.Word of Mouth as a Tool: Discover the power of word of mouth in encouraging others to participate in research and make a difference.Words of Wisdom: Standout Quotes from This Episode“If a cure comes and you have not participated, they won't know about your race and it may not work perfectly.”— Mary Futrell“They might be stepping back if they don't step up.” — Mary Futrell“Even if the research doesn't help you, you have children and grandchildren that you should want to bring them to another level.” — Mary Futrell“If you don't give your voice, they're only going to hear everybody else's voice.” — Mary Futrell“Research is about fixing cracks.” — Mary Futrell“I started diverse research now to serve the community, to give them something back.” — Dr. Renarda Jones“We can't just go in and ask them to participate in things. We have to serve them and give them something.” — Dr. Renarda Jones“Building that relationship and not just talking about the research, because there's so many other things that's going on in their life.” — Dr. Renarda JonesFollow Dr. Ren:WebsiteInstagramLinkedInWe Want to Hear Your Voice!Your insights on how inclusive research impacts your life and community are invaluable. Share your experiences and thoughts on how we can bridge the gap between research and real-world needs. Your stories drive our mission and inspire the future of inclusive research!

Research is the bridge that connects our past health disparities with a future of equitable solutions, but only if we choose to cross it together.In this episode of Voices of Inclusive Research, Dr. Renarda Jones sits down with community member Joseph Frazier to discuss the critical role of clinical research in addressing health disparities in communities of color. Joseph shares his personal experience with vascular dementia in his family, highlighting how it has shaped his perspective on the importance of research. He opens up about the misconceptions many have, such as the fear of being a "guinea pig" in research, and how these beliefs often prevent people from seeking valuable health information.The conversation also emphasizes the need to pass down health knowledge to future generations and advocates for greater participation in research as a pathway to better health outcomes for all.Must-Hear Insights and Key MomentsPersonal Health Journey: Hear Joseph Frazier's heartfelt story of how vascular dementia affected his family and how clinical research could provide valuable insights for prevention.Debunking Myths: The episode addresses common misconceptions, like the fear of being a "guinea pig" in clinical trials, and helps listeners understand the real purpose and benefits of research participation.Understanding Health Disparities: Learn how clinical trials play a vital role in addressing chronic diseases, like dementia and diabetes, which disproportionately affect Black communities.Empowerment Through Research: Discover how participating in clinical trials can empower individuals to contribute to solutions that improve the health of their communities.Generational Knowledge Sharing: Gain insights into the importance of passing down health knowledge to future generations, helping families make informed health decisions.Words of Wisdom: Standout Quotes from This Episode“It's important to understand some of the things that affect us more than it affects others.” — Joseph Frazier“A lot of the reasons that our community suffers is because we eat the same thing.” — Joseph Frazier“Maybe we expect people to give us something, but you have to want more for yourself.” — Joseph Frazier“How you live and how much stress you have in your life will affect how long and how well you live.” — Joseph Frazier“I want us to understand that, yes, you can ask someone for help, but you also have to follow up and do the work.” — Joseph Frazier“If you can be involved in the research, it could be valuable to you.” — Dr. Renarda Jones“Participating in research is not for everybody, but it is a way to address it.” — Dr. Renarda Jones“A lot of research is about preventive measures.” — Dr. Renarda Jones“We want to bring better health to our community. Better health is longer health.” — Dr. Renarda Jones“You need to pass that down to your children. And that is mostly why you would participate.” — Dr. Renarda JonesFollow Dr. Ren:WebsiteInstagramLinkedInWe Want to Hear Your Voice!Your insights on how inclusive research impacts your life and community are invaluable. Share your experiences and thoughts on how we can bridge the gap between research and real-world needs. Your stories drive our mission and inspire the future of inclusive research!

Welcome to the Voices of Inclusive Research Podcast.A space dedicated to bridging the gap between researchers and the community, ensuring all voices are heard, and fostering a more inclusive research landscape.In our very first episode, Dr. Renarda Jones speaks directly to the community, emphasizing why research matters to everyone, not just scientists. She breaks down the barriers between research and everyday life, highlighting how inclusive research can lead to better health outcomes for all. Dr. Jones calls on both the community and researchers to engage, build trust, and ensure that every voice is heard in the research that shapes our lives. She stresses that inclusive research isn’t just a nice-to-have—it’s essential. Without it, we risk developing treatments and policies that fail to serve diverse populations. This episode invites the listeners to stay curious, empowered, and engaged, reminding them that inclusive research is everyone’s business.Tune in for more from both the community and researchers!Must-Hear Insights and Key MomentsInclusive Research is Essential: Research must include diverse populations to develop treatments and policies that effectively serve all communities. Without this inclusivity, there’s a risk of overlooking the needs of different groups.Breaking Down Barriers: The episode explains how research impacts daily life and how removing barriers between scientific research and the public can lead to better health outcomes for everyone.Historical Mistrust: Dr. Jones addresses the historical mistrust in research within certain communities, emphasizing the need for transparency and engagement to rebuild trust.Empowering Community Voices: Greater community involvement in research is crucial. Both community members and researchers need to work together to ensure that all voices are heard and valued in the research process.Follow Dr. Ren:WebsiteInstagramLinkedInWe Want to Hear Your Voice!Your insights on how inclusive research impacts your life and community are invaluable. Share your experiences and thoughts on how we can bridge the gap between research and real-world needs. Your stories drive our mission and inspire the future of inclusive research!

Voices of Inclusive Research is a podcast dedicated to exploring the diverse and dynamic world of inclusive research. Each episode features thought leaders, community members and advocates who we welcome to share their questions, concerns,  insights, lived experiences and groundbreaking work. Our mission is to give the community a voice in clinical research.  We aim to inspire and inform by highlighting the importance of diversity and inclusivity in clinical research.Follow Dr. Ren:WebsiteInstagramLinkedInWe Want to Hear Your Voice!Your insights on how inclusive research impacts your life and community are invaluable. Share your experiences and thoughts on how we can bridge the gap between research and real-world needs. Your stories drive our mission and inspire the future of inclusive research!