014 - Quadruple Feeding a Newborn with Down Syndrome

Many of us have heard of triple feeding, but have you ever heard of quadruple feeding?Quadruple feeding is doing four things to try to feed your baby every day, and it’s exhausting!Danielle Kawlewski's baby was born with Down syndrome and a heart defect.In today’s episode, she shares the struggles of feeding, losing the sucking reflex, and then going straight from tube feeding to thickened breastmilk through a straw by eight months old… along with trying everything else under the sun in between.Connect with Danielle online: IG-  Danielles_scrunchy_kids FB- Danielle KawlewskiShe Also Shares: 2:45 - Living in Wisconsin on 50 acres  4mins - Had Daughter in Aug 2021. Born with Down syndrome 6:30 - Started to try to collect colostrum at 37 weeks 7:30 - Birth Story - Started as a home birth with a pool and a midwife 9:15 - Found out her baby was in breach position 9:45 - Decide to go to hospital 11:15 - At the hospital, ended up having a C-section (because the baby was breach) 12:15 - Baby went to Nicu at a DIFFERENT HOSPITAL for 30 days because of low oxygen, and her Down syndrome caused two holes in her heart. But, they stayed so long mainly because of feeding issues. 15 mins - learn she was transferred to Madison Wisconsin hospital 90mins away because that’s where they have all the Nicu resources for babies with Down syndrome 18:45 - Stayed at the Ronald MacDonald house around the corner. Baby got Donor milk for first 24hrs 19:20 -Able to use the colostrum she’d expressed before giving birth during the first 24hrs 20:40 - Explain all about a Ronald MacDonald House 23:30 - lactation cookies recipe 26:45 - Quadruple Feedings 27:20 - Sucking Reflex went away due to downs and the two holes in her heart 32:00 - Having a g-tube placed so they could go home from the Nicu 33:30 - How to thicken breastmilk 35:30 - Lactation consultants are the best 37mins - The Power of the Manual Pump 40:30 - Pumpin’ Pals Silicone Flanges worked well for her 42 mins - What happened when daughter lost suction ability 44 mins - Getting heart surgery 48:30 mins - Bottle to a straw cup at eight months old 49:30 - Resource Share: Honey bear cups 51 mins - Started foods at five months 53:30 - pumped for 11 months 55:30 - The unexpected joy of it all 57:30 - Journaling 59 - Dealing with all the emotions after birth 60mins - EMDR Therapy (Eye Movement Desensitization and Reprocessing) 61:45 - Started an at-home daycare after her baby had heart surgery 65 mins - weaned off the breast pump with cabbage leaves 66 mins - Finding your voice after having a kid 69 mins - Scrunchy Kids 73 mins - Rapid Fire Question Round 74mins - Resource: Jill Rabin Book: Your baby can self-feed too. 78 mins - Resource: Breastfeeding and Down syndrome 79:45 - Resource: Badass Breastfeeder - Pumping Hacks episode is great