032 - “Not Value for Money” Aoife’s Fight for a Future, Living with Friedrich’s Ataxia - Aoife Quinn

Aoife Quinn is 23, from Galway, and living with a rare condition called Friedreich’s Ataxia.Right now, her symptoms are manageable.But she knows what’s coming.She knows there’s a drug that could slow the progression of her condition and protect her future.The problem?It has been deemed “not value for money.”In this episode, we talk about:Being diagnosed at 18Living with uncertainty and fearThe impact on family and identityFighting for access to life-changing treatmentThis isn’t just about chronic illness.It’s about what happens when the treatment exists… but you can’t access it.Aoife isn’t asking for a miracle.She’s asking for a chance.🔗 Support Aoife - https://www.change.org/p/make-skyclarys-available-in-irelandIG - @aoifequinn31Massive thank you to todays sponsor Western Auto Parts Oranmore. For all you motoring needs contact: 091-79014