07-05-26_ENTREVISTA PEDRO LENDINEZ - ILP Cribado neonatal (recogida firmas)

La asociación Más Visibles, impulsa la iniciativa legislativa popular presentada en el Congreso de los Diputados el pasado 7 de mayo, con el objetivo de alcanzar 500 000 firmas para impulsar una ampliación del cribado neonatal, garantizando equidad en España. La recogida de firmas entra en su recta final y se está llevando a cabo una captación a nivel local, a través de la que marteños y marteñas pueden sumarse a la misma. Pedro Lendinez, impulsor de +Visibles nos habló sobre esta iniciativa que pretende la promulgación de una ley estatal para que se realice un diagnóstico temprano de vidas y mejora de la atención a quienes nacen con enfermedades raras. Asimismo nos ha adelantado que el 4 de junio se llevará a cabo la proyección del documental “La vida en una gota”, producido por la asociación, en el que se expone la problemática. Además la capital acogerá los días 15 y 16, unas jornadas internacionales sobre enfermedades raras y cribado neonatal con importantes ponentes.

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