097 - A life of Ehlers Danlos Advocacy - Lara Bloom

We are often surprised by the twists and turns of life - especially when confronted with disability.   Lara Bloom was surprised when she was diagnosed with Ehlers Danlos Syndrome.  She was even more surprised to meet a man who helped her find her purpose - launching The Ehlers Danlos Society. Lara is president and CEO of The Ehlers Danlos Society and she is a global leader in the rare disease community. Lara has taken life's twists and surprises and turned them into a beautiful life of service to others. Join us for laughter and a conversation about what it means to build and sustain a life of advocacy.