1. The Rise of the Patient Researcher: Putting Patient Experience at the Heart of Brain Health Research. Conversation with Robert Joyce.

In the first of the NeuroCentury podcast episodes, Paweł Świeboda talks to Robert Joyce, MS patient advocate and embedded patient researcher. This is a very special conversation. Robert Joyce has been a Multiple Sclerosis patient since his early 20s. He had also been diagnosed with asthma at a young age. A car accident in 2014 left him with persistent post-traumatic headaches. Nevertheless, Robert has pursued an active career as a small business consultant. This has not always been possible since fatigue, mobility problems and pain have often been too much to bear. A few years ago, Robert became active in patient advocacy, starting his blog, “A 30 Minute Life: Living with Multiple Sclerosis and Pain”: https://a30minutelife.com/ He then joined a research project for a new therapy to aid cognition for people living with Multiple Sclerosis: https://cob-ms.com/. As an Embedded Patient Researcher, he became the voice of the patient. Robert advises the Irish Health Service Executive and pharmaceutical companies. He is a co-author of peer-reviewed publications. His passion for the importance of including the patient in research and improving the quality of life of patients will give everyone much to think about. #brain #brainhealth #mentalhealth #braincapital #neurotechnology #ethics #multiplesclerosis #patientresearcher #a30minutelife neurocentury.com Music for the NeuroCentury podcast is composed by Rafał Kulczycki