116 Embracing the Role of a Caregiver: Tips and Techniques with Lili Udell Fiore

116 Embracing the Role of a Caregiver: Tips and Techniques with Lili Udell Fiore In episode 116 of 'Hospice Explained,' host Marie Betcher RN interviews Lili Udell Fiore, author of 'Lili's Caregiver's Guide.' Lili shares her personal journey of caregiving for her aunt and parents, providing valuable insights on managing grief, organizing caregiving tasks, and improving the quality of life for loved ones. Lili, also a death doula, offers practical advice on dealing with dementia, understanding the importance of self-care, and navigating the responsibilities of a caregiver. She emphasizes the importance of recognizing changes in loved ones, understanding their needs, and ensuring their end-of-life wishes are honored. Additionally, Lili discusses the significance of understanding and addressing grief, especially in children, and the role of hospice care and chaplain support in the final stages of life. This episode is filled with actionable tips and resources for caregivers and those supporting loved ones through end-of-life care. 00:00 Introduction to Hospice Explained 00:37 Meet Lili Udell Fiore: Author and Caregiver 00:59 Lili's Personal Caregiving Journey 01:32 Insights on Grief and Living Again 02:11 Welcome Lili: Author and End of Life Doula 02:23 Lili's Caregiving Tips and Experiences 08:50 Understanding the Five Love Languages 10:34 Caregiving for Dementia: Tips and Stories 16:16 Practical Tips for Home Caregivers 18:13 Becoming a Death Doula 19:44 Organizing Caregiving with Tracking Forms 21:42 Sensory Care Method for Joyful Living 23:17 Remembering Lili's Father: A Legacy of Care 24:48 The Value of Perspective in Caregiving 25:27 Understanding and Validating Emotions 26:42 Engaging with Loved Ones Through Sensory Cues 29:04 The Importance of Hospice and Palliative Care 32:55 Navigating Grief and Loss 38:41 Communicating with Children About Death 43:31 Final Thoughts and Practical Advice https://www.liliudellfiore.com/  Book On Amazon: https://a.co/d/4hzMjCy   Finding a Hospice Agency 1. You can use Medicare.gov to help find a hospice agency, 2. choose Find provider 3. Choose Hospice 4. then add your zip code This should be a list of Hospice Agencies local to you or your loved one.  Hospice Explained Affiliates & Contact Information Buying from these Affilite links will help support this Podcast.   In addition you can donate to help support Hospice Explained at the Buy me a Coffee link  https://www.buymeacoffee.com/Hospice Kacie Gikonyo's Death Doula School https://hospiceexplained--deathdoulaschool.thrivecart.com/death-doula-school/ Affilitate for the Caregiving Years Training Academy:  https://www.careyearsacademy.com/ref/1096/  Affiliate for DNA is Love listeners also get a 5% discount!! https://dnaislove.com/?coupon=hospiceexplained5  The Death Deck and the E*O*L deck:  https://thedeathdeck.goaffpro.com/  Marie's Contact [email protected] www.HospiceExplained.com