12: Advocating for Your Child with Complex Genetic Concerns with Rachel Divin

In this episode of The MyoHacker Podcast, host Karindy Ong interviews Rachel Divin, who shares her journey as a mother advocating for her son and uncovering multiple diagnoses in her persistence to find answers. The conversation explores the importance of early intervention, the complexities of differing medical opinions, and the impact of loving and accepting a child exactly as they are. Rachel's highlights the significance of understanding diagnoses and proactive steps parents can take to advocate for their children's health and well-being. Finally, they highlight what a joy it is to know and be known by Rachel's son as he shares gentle hope and kindness to everyone he meets.  To find out more about PTEN, please visit: https://ptenfoundation.org/  Takeaways Every child has unique set of strengths that can be nurtured. A child (and their family) can make a big impact on their providers. Family involvement can enhance therapeutic outcomes. Therapy impacts a family, not just the child in therapy.  Teletherapy can be effective and engaging for kids. Understanding a child's diagnosis can provide clarity and direction. Navigating medical opinions requires persistence and advocacy. PTEN is a genetic condition that can impact development. Holistic health approaches can benefit both children and parents. Connect with Karindy:  https://www.myohackerslp.com/ Instagram  |  @myohackerslp  Facebook  |  @myohackerslp  Threads  |  @myohackerslp   YouTube  |  @theMyohackerPodcast   Spotify  |  The Myohacker Podcast Apple Podcast  |  The Myohacker Podcast Get access to Myohacker courses and guides at https://www.myohackerslp.com/course-guides    The Myohacker Podcast is hosted by Karindy Ong, MA, CCC-SLP and edited by Allison Massengale. Song “Better Sweater” performed by Desert Dive, licensed via Soundstripe. Content ID: RSYJ1F4PBHGWSHFI   Disclaimer: The content shared in this podcast is for informational and entertainment purposes only. The views and opinions expressed by the host and guests do not necessarily reflect those of the podcast or its affiliates. This podcast does not provide medical, legal, or professional advice. Always consult with appropriate professionals regarding your individual circumstances. By listening, you agree that the host and podcast are not responsible for any actions you may take based on the information provided.