13.6 Hypermobile Ehlers-Danlos Syndrome during pregnancy, birth and beyond

Ehlers Danlos Syndrome (EDS) affects connective tissue throughout the body and has profound impacts during pregnancy, birth and beyond. In this session, Dr Sally Pezaro will first illuminate the ways in which she led a multidisciplinary and international team in co-creating the first evidence based clinical guidelines for the management of childbearing with hypermobile EDS (hEDS) and Hypermobility Spectrum Disorders (HSD). Secondly, as there have been hypotheses put forward suggesting that symptomologies and other factors related to Ehlers-Danlos Syndrome, Mast Cell Activation, and Dysautonomia are interrelated, Dr Brock will highlight the ways in which a systematic literature review may offer us further insights into these phenomena. Dr Pezaro and Dr Brock are collaborators on both of these projects, working within a large international consortium which includes the patient voice throughout. They are keen to invite questions and thought provoking conversations about this work. They are also keen to disseminate the guidelines in particular for use in clinical practice. Join us in the discovery of how people birthing with hEDS/HSD may be better supported for optimal outcomes. Hosted by: Sue Macdonald, Midwifery Expert; Host and Curator, Maternity and Midwifery Festivals/Midwifery Hour, Editor, Mayes Midwifery Contribution from: Dr Sally Pezaro, Research Enriched Learning Lead for the Research Centre for Healthcare and Communities, Coventry University Isabelle Brock, MD, QoLify Chief Scientific Officer, NovaCombian Research Institute Supported by MATFLIX: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://matflix.co.uk⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ Register to watch the next episode LIVE or attend a Maternity & Midwifery Festival: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://mmf.eventbrite.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ Watch the live stream: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://facebook.com/midwiferyforum/live⁠