133: Bek’s Story | Solo Medical Parenting, 13 Years of Living in Survival Mode + Grieving the Children She Dreamed of Having

Like many of us, the diagnosis of a genetic disease for her son came as a surprise to Bek. One moment she had a “typical” pregnancy and the next minute, she had a medically complex baby. That was 13 years ago, and since then, Bek’s been navigating how to parent a medically complex child on her own as a single mother. In this episode, she shares with us just how lonely and alienating parts of her journey have felt, both as a single mother and as the mother of a medically complex child whose needs are very different than many of his peers. Bek also shares how her life and the way she must care for her son have changed as he’s gotten older. Bek’s speaks so vulnerably, and I can guarantee that there’s something here for everyone, even if your life circumstances differ. I can’t wait for you to hear her story. And a big thanks to this week’s sponsor, GeneDx. Check them out if you're in the process of finding a genetic diagnosis for someone in your life. Links: Check out GeneDx and see all their options for genetic testing! Listen to Ep 130 on Anticipatory Grief Follow Bek on Instagram @bek_bradley! Follow us on Instagram @the_rare_life! Donate to the podcast or Contact me about sponsoring an episode. Fill out our contact form to get a reminder about upcoming discussion meetings and the Skype link to join! Follow the Facebook page. Join the Facebook group Parents of Children with Rare Conditions. Access the transcript on the website here. And if you love this podcast, please leave us a rating or review in your favorite podcast app!