136: Bethany’s Story | Trach Life, Calloused to Trauma, + Making Space for Anger

Having to rely on a medical device for your child’s survival is equal parts frustrating and terrifying. It’s not that we aren’t grateful that the technologies exist to keep our children healthy... but medical devices aren’t fool-proof, and when things go awry, it’s traumatic for everyone involved. In today’s episode, Bethany Beazley shares her experience of receiving her son’s diagnosis and how her family’s life changed in the blink of an eye when her son William was given a tracheotomy shortly after his birth. While William’s trache helped him to breath well most of the time, he had more than one terrifying incident when his trache didn’t function as planned. Bethany explains, in heartfelt detail, the emotional fallout from those moments, and how her perspective of disability has changed through her experience. You won’t want to miss it.   A big thanks to the sponsor for this episode, Functional Formularies!   Links: Visit today’s sponsor Functional Formularies your child’s special dietary needs! Grab a copy of Bethany’s book “William Tries Again.” Follow Bethany on Instagram @joyfulblondie Follow us on Instagram @the_rare_life! Donate to the podcast or Contact me about sponsoring an episode. Fill out our contact form to get a reminder about upcoming discussion eetings and the Skype link to join! Follow the Facebook page. Join the Facebook group Parents of Children with Rare Conditions. Access the transcript on the website here. And if you love this podcast, please leave us a rating or review in your favorite podcast app!